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Krista L Best, Karen Ethans, B Catharine Craven, Luc Noreau, Sander L Hitzig
OBJECTIVE: To identify and classify quality of life (QoL) tools for assessing the influence of neurogenic bladder after spinal cord injury/disease (SCI). DESIGN: Systematic Review Methods: Medline/Pubmed, CINAHL, and PsycInfo were searched using terms related to SCI, neurogenic bladder and QoL. Studies that assessed the influence neurogenic bladder on QoL (or related construct) in samples consisting of ≥50% individuals with SCI were included. Two independent reviewers screened titles and abstracts of 368 identified references; 118 full-text articles were assessed for eligibility, and 42 studies were included...
October 13, 2016: Journal of Spinal Cord Medicine
Mikako Yoshida, Yasuhiko Igawa, Shiho Higashimura, Motofumi Suzuki, Aya Niimi, Hiromi Sanada
AIMS: Quality of life in the context of intermittent self-catheterization varies depending on the type of catheter used. This study translated into Japanese, evaluated the feasibility, reliability, and validity of the Intermittent Self-Catheterization Questionnaire (ISC-Q) among users of both reusable and disposable catheters, and examined the differences of it between them. METHODS: Seventy patients (age mean ± SD: 62.8 ± 17.7 years) completed the Japanese version of the ISC-Q (J-ISC-Q) at baseline and 4 weeks later...
October 4, 2016: Neurourology and Urodynamics
Charles Fattal, Claire Anquetil, Samer Abdelhamid
OBJECTIVE: To compare quality of life (QoL) in patients with spinal cord injury who underwent overactive detrusor treatment by Botulinum Toxin (BT) versus augmentation cystoplasty (AC). MATERIALS/PATIENTS AND METHODS: Prospective and descriptive study. Patients with refractory overactive bladder due to SCI were treated by at least 2 successive injections of BT or by AC. QoL was assessed using Qualiveen-30 (Q30). Clinical data and urodynamic parameters were collected and compared...
September 2016: Annals of Physical and Rehabilitation Medicine
Catherine Montaut, Xavier Gamé, Xavier de Boissezon, Philippe Marque, Evelyne Castel-Lacanal
OBJECTIVE: Lower urinary tract dysfunctions (LUTD) are very common in neurological diseases. TENS is a therapeutic alternative in the treatment of urinary and pelvic perineal symptoms, whose effectiveness has been proven in multiple sclerosis. Evaluate the benefits of treatment with TENS (U3 program) in clinical practice for neurological lower urinary tract dysfunctions (LUTD), incompletely controlled by the usual pharmacological treatment, on urinary symptoms and quality of life. MATERIALS/PATIENTS AND METHODS: We performed a cohort, and prospective study, between June 2014 and September 2015 in the Physical Medicine and Rehabilitation Service in CHU Toulouse, Rangueil...
September 2016: Annals of Physical and Rehabilitation Medicine
Giorgio Scivoletto, Stefania Musco, Cosimo De Nunzio, Giulio Del Popolo
BACKGROUND: Intermittent self catheterization questionnaire (ISC-Q) is a questionnaire exploring four issues related to self-intermittent catheterization (ISC): ease of use, convenience, discreteness and psychological well-being. Aim of the study is to develop and validate the Italian version of the ISC-Q. METHODS: Two independent translations of the ISC-Q were performed and compared by an expert committee. A back translation to English was made by a linguistic expert, blinded to the original version...
September 13, 2016: Minerva Urologica e Nefrologica, the Italian Journal of Urology and Nephrology
Kristijonas Milinis, Alan Tennant, Carolyn A Young
BACKGROUND: A 30-item Qualiveen questionnaire was developed to measure the impact of urinary problems on everyday living in spinal cord injury, and subsequently an 8-item SF-Qualiveen was developed for those with multiple sclerosis (MS). The validity of this short form has not been previously examined using modern psychometric techniques, such as the Rasch measurement model. OBJECTIVE: The aim of this study is to test if the short form meets the requirements of the Rasch model...
July 26, 2016: Neurourology and Urodynamics
C Anquetil, S Abdelhamid, A Gelis, C Fattal
STUDY DESIGN: Cross-sectional study. OBJECTIVES: To compare quality of life (QoL) in patients with spinal cord injury (SCI) who underwent overactive detrusor treatment by botulinum toxin (BT) versus augmentation cystoplasty (AC). SETTING: France. METHODS: Prospective and descriptive study: Patients with a refractory overactive bladder due to SCI treated by at least two successive injections of BT or by AC. QoL was assessed using Qualiveen-30 (Q30)...
April 26, 2016: Spinal Cord
Seungwon Shin, Jiwon Lee, Junghee Yoo, Sung Min Lim, Euiju Lee
BACKGROUND: This study protocol evaluates the effectiveness of adjuvant electroacupuncture (EA) for urinary retention in poststroke patients undergoing conventional treatments, in comparison with that of a sham control. METHODS/DESIGN: A multicenter, blinded, randomized controlled trial will be conducted in three hospitals in the Republic of Korea. We are recruiting 54 stroke survivors (aged >19 years), who were diagnosed with urinary retention based on the results of two consecutive post-void residual (PVR) tests, and dividing them randomly into two arms: the EA and Park-sham control groups...
April 12, 2016: Trials
Adélia Lúcio, Carlos Arturo Levi Dʼancona, Maria Carolina Perissinotto, Linda McLean, Benito Pereira Damasceno, Maria Helena Baena de Moraes Lopes
PURPOSE: The aim of this study was to evaluate the effect of intravaginal neuromuscular electrical stimulation (NMES) and transcutaneous tibial nerve stimulation (TTNS) on lower urinary tract symptoms (LUTS) and health-related quality of life in women undergoing pelvic floor muscle (PFM) training (PFMT) with multiple sclerosis (MS) and to compare the efficacy of these 2 approaches. DESIGN: Randomized controlled trial. METHODS: Thirty women with MS and LUTS were randomly allocated to 1 of 3 groups and received treatment for 12 weeks...
July 2016: Journal of Wound, Ostomy, and Continence Nursing
Roderick Clark, Blayne Welk
Many interventions for neurogenic bladder patients are directed towards improving quality of life (QOL). Patient reported outcome measures (PROMs) are the primary method of evaluating QOL, and they provide an important quantification of symptoms which can't be measured objectively. Our goal was to review general measurement principles, and identify and discuss PROMs relevant to neurogenic bladder patients. We identify two recent reviews of the state of the literature and updated the results with an additional Medline search up to September 1, 2015...
February 2016: Translational Andrology and Urology
K Milinis, A Tennant, C A Young
OBJECTIVES: HASH(0x45aea98) DESIGN: Cross-sectional survey. SETTING: A convenience sample of people with MS routinely attending an appointment with their local MS service. PARTICIPANTS: 701 patients with clinically definite MS. MAIN OUTCOME MEASURES: Demographic details were obtained and patients completed a battery of measures including spasticity (Multiple Sclerosis Spasticity Scale - 88), fatigue (Neurological Fatigue Index - MS), urinary dysfunction (Qualiveen-SF), pain (Neuropathic Pain Scale), mood disorder (Hospital Anxiety and Depression Scale), disability (World Health Organisation Disability Assessment Schedule) and QOL (Leeds Multiple Sclerosis QOL Scale)...
January 2016: Multiple Sclerosis and related Disorders
Amit Batla, Isabel Pareés, Mark J Edwards, Maria Stamelou, Kailash P Bhatia, Jalesh N Panicker
INTRODUCTION: Functional movement disorders (FMD) are not associated with the kind of structural or biochemical alterations seen in other movement disorders and therefore would be unlikely to be associated with lower urinary tract (LUT) dysfunction. However, LUT symptoms have been observed in patients with FMD. OBJECTIVE: To evaluate the frequency and pattern of LUT symptoms, their possible nature and the impact they have on the quality of life of patients with FMD...
February 15, 2016: Journal of the Neurological Sciences
Abolghasem Nikfallah, Saeed Rezaali, Nooredin Mohammadi, Mahboobeh Abrishamkar, Ehsan Rezaei, Mohammad Ali Sahraian, Amir H Pakpour, Mir Saeed Yekaninejad
OBJECTIVES: This study aimed to cross-culturally translate the Qualiveen-30 into Persian and validate it in Iranian patients with spinal cord injury (SCI) and multiple sclerosis (MS). METHODS: This was a cross-sectional prospective validation study. The translation and cross-cultural adaptation of the original questionnaire was performed in accordance with published guidelines. A total of 154 patients with SCI or MS who suffered from lower urinary symptoms for at least 6 months were asked to complete the questionnaire in the first visit to the clinic and after 3 weeks...
January 2015: Lower Urinary Tract Symptoms
Jacinthe J E Adriaansen, Floris W A van Asbeck, Marga Tepper, Willemijn X Faber, Johanna M A Visser-Meily, Laetitia M O de Kort, Marcel W M Post
Objectives To describe bladder-emptying methods used by people with long-term spinal cord injury (SCI) and to determine usage differences in relation to time since injury, sex, lesion level and completeness of lesion. Furthermore, to evaluate the relationship between bladder emptying methods and the impact of neurogenic lower urinary tract dysfunction (NLUTD) on quality of life (QoL). Design Cross-sectional multicenter study. Setting Dutch community. Participants Persons dependent on wheelchairs (N = 282) with traumatic or non-traumatic SCI for ≥10 years and age at injury of 18-35 years...
October 8, 2015: Journal of Spinal Cord Medicine
Daniel Xavier Lima, Cleidismar Rosa Pires, Ana Clara Rezende Dos Santos, Raphaela Gomes Mendes, Carlos Eduardo Corradi Fonseca, Orlando Barreto Zocratto
Treatment of neurogenic bladder (BN) aims to upper urinary tract protection. When the conservative clinical measures are insufficient, surgical treatment is indicated. Though admittedly important, the quality of life (QoL) has been little studied in these patients, there are even contradictory results. The aim of this study was to evaluate QoL before and after bladder augmentation in patients with BN refractory to medical treatment. We analyzed, prospectively, the data of 67 patients who underwent surgical treatment for BN by questionnaire SF-36(®) and Qualiveen(®) QoL before and after six months of operation...
May 2015: International Braz J Urol: Official Journal of the Brazilian Society of Urology
Johann Hofereiter, Matthew D Smith, Jai Seth, Katarina Ivana Tudor, Zoe Fox, Anton Emmanuel, Elaine Murphy, Robin H Lachmann, Jalesh Panicker
BACKGROUND: X-linked adrenoleukodystrophy (X-ALD) is a disorder caused by mutations in the ABCD1 gene. The commonest phenotype of X-ALD is adrenomyeloneuropathy (AMN), which is characterised by involvement of the spinal cord and peripheral nerves. The aim of this study was to evaluate bladder and bowel symptoms in men with AMN and female X-ALD carriers. METHODS: In this cross-sectional study, patients with confirmed mutation of the ABCD1 gene attending a tertiary care service were approached about bladder and bowel complaints and completed the Urinary Symptom Profile (USP), Qualiveen Short Form (SF-Qualiveen), International Prostate Symptom Score (IPSS) and Neurogenic Bowel Dysfunction (NBD) questionnaires...
2015: JIMD Reports
Solange Gonzalez Chiappe, Andrea Lasserre, Emmanuel Chartier Kastler, Alessandra Falchi, Fanette Blaizeau, Thierry Blanchon, Thomas Hanslik, Pierre Denys
AIMS: To estimate the prevalence of GP (general practitioner) patients performing ISC (intermittent self-catheterization), to describe GP and patient knowledge about ISC and to assess the patients' quality of life. METHODS: A cross-sectional study was conducted in metropolitan France between November 2012 and September 2013 with French Sentinelles GPs and their patients (≥18 years) performing ISC. Linear regression models assessed independent associations between quality of life scores (Qualiveen and SF-12 scores) and patients' characteristics...
April 2016: Neurourology and Urodynamics
Darshan P Patel, Sean P Elliott, John T Stoffel, William O Brant, James M Hotaling, Jeremy B Myers
AIM: To describe existing bladder and bowel specific quality of life (QoL) measurement tools, QoL in patients with multiple sclerosis (MS), spinal cord injury (SCI), Parkinson's Disease (PD), stroke, or spina bifida (SB) affected by bladder or bowel dysfunction, and the impact of specific bladder and bowel management on QoL. METHODS: We performed a systematic review in PubMed/Medline databases in accordance with the PRISMA statement for English publications between January 1, 2000 and January 1, 2014...
January 2016: Neurourology and Urodynamics
L Gaspard, B Tombal, R-J Opsomer, Y Castille, V Van Pesch, C Detrembleur
AIM: This randomized controlled trial compare the efficacy of pelvic floor muscle training vs. transcutaneous posterior tibial nerve stimulation. PATIENTS AND METHODS: Inclusion criteria were EDSS score<7 and presence of lower urinary tract symptoms. Exclusion criteria were multiple sclerosis relapse during the study, active urinary tract infection and pregnancy. The primary outcome was quality of life (SF-Qualiveen questionnaire). Secondary outcomes included overactive bladder (USP questionnaire) score and frequency of urgency episodes (3-day bladder diary)...
September 2014: Progrès en Urologie
Blayne Welk, Sarah Morrow, Wendy Madarasz, Richard Baverstock, Jennifer Macnab, Keith Sequeira
PURPOSE: The neurogenic bladder symptom score is a tool to measure urinary symptoms and consequences in patients with acquired or congenital neurogenic bladder. We describe score validity and reliability. MATERIALS AND METHODS: Exploratory factor analysis was used to assess item variability and subscale structure. Reliability was assessed by the Cronbach α and correlation with retest data. Validity was assessed with a priori hypotheses specifying relationships with the AUASS (American Urological Association symptom score), ICIQ-UI (International Consultation on Incontinence-Urinary Incontinence) and urinary specific quality of life SF-Qualiveen questionnaires, and a self-assessed global bladder problem score...
August 2014: Journal of Urology
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