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https://www.readbyqxmd.com/read/29453914/medication-adherence-and-health-related-quality-of-life-among-patients-with-chronic-obstructive-pulmonary-disease
#1
Nejc Horvat, Igor Locatelli, Mitja Kos, Ana Janežič
This study evaluated medication adherence and health-related quality of life (HRQoL) of Slovenian patients with chronic obstructive pulmonary disease (COPD) and examined the factors associated with HRQoL. Demographic and therapy information was collected from 65 patients through interviews. The St. George's Respiratory Questionnaire and the Morisky Medication Adherence Scale were used to evaluate HRQoL and adherence, resp. A multiple linear regression model was used to assess the association between the factors and HRQoL...
March 1, 2018: Acta Pharmaceutica
https://www.readbyqxmd.com/read/29453581/health-related-quality-of-life-in-children-born-with-congenital-diaphragmatic-hernia
#2
Elin Öst, Björn Frenckner, Margret Nisell, Carmen Mesas Burgos, Maria Öjmyr-Joelsson
PURPOSE: The aim of this study was to examine health-related quality of life (HRQoL) in children born with congenital diaphragmatic hernia (CDH). METHODS: Between 1993 and 2003, a total of 102 children born with CDH were treated at Astrid Lindgren Children's hospital in Stockholm. In 2012, long-term survivors (n = 77) were asked to participate in the present study, which resulted in a 46% (n = 35) response rate. The KIDSCREEN-52 questionnaire was used for measuring HRQoL and a detailed review of medical records was performed...
February 16, 2018: Pediatric Surgery International
https://www.readbyqxmd.com/read/29453505/does-hope-matter-associations-among-self-reported-hope-anxiety-and-health-related-quality-of-life-in-children-and-adolescents-with-cancer
#3
Ana Rita Martins, Carla Crespo, Ágata Salvador, Susana Santos, Carlos Carona, Maria Cristina Canavarro
This study aimed to examine the direct and indirect effects of hope on health-related quality of life (HRQoL) via anxiety of children/adolescents with cancer. We proposed to test if the mediation model was moderated by the child/adolescent's treatment status. The participants were 211 children/adolescents diagnosed with cancer, divided into two clinical groups according to treatment status: 97 patients on-treatment and 114 off-treatment. Self-reported questionnaires measured the youths' hope, anxiety, and HRQoL perceptions...
February 16, 2018: Journal of Clinical Psychology in Medical Settings
https://www.readbyqxmd.com/read/29452782/multimorbidity-and-quality-of-life-at-mid-life-a-systematic-review-of-general-population-studies
#4
REVIEW
Jeeva Kanesarajah, Michael Waller, Jennifer A Whitty, Gita D Mishra
There is substantial multimorbidity at mid-life but little is known about the strength of evidence on multimorbidity and health-related quality of life (HrQoL) at mid-life. This review addresses this gap, focusing on studies of the general population. PubMed, Web of Science, Embase and APA PsycNET databases were screened on 6 March 2017 for original research on multimorbidity and HrQoL in adults aged 40-65 years from the general population. Studies focused on index conditions, using single-item HrQoL measures, unlikely to represent the general population (e...
March 2018: Maturitas
https://www.readbyqxmd.com/read/29452283/posterolateral-fusion-plf-vs-transforaminal-lumbar-interbody-fusion-tlif-for-spondylolisthesis-a-systematic-review-and-meta-analysis
#5
REVIEW
Jay M Levin, Joseph E Tanenbaum, Michael P Steinmetz, Thomas E Mroz, Samuel C Overley
BACKGROUND CONTEXT: Lumbar fusion is an effective and durable treatment for symptomatic lumbar spondylolisthesis, however the current literature provides insufficient evidence to recommend an optimal surgical fusion strategy. PURPOSE: To compare the clinical outcomes, fusion rates, blood loss, and operative times between open posterolateral lumbar fusion (PLF) alone and open transforaminal lumbar interbody fusion + posterolateral fusion (TLIF) for spondylolisthesis...
February 13, 2018: Spine Journal: Official Journal of the North American Spine Society
https://www.readbyqxmd.com/read/29451957/outcome-of-childhood-anorexia-nervosa-the-results-of-a-five-to-ten-year-follow-up-study
#6
Beate Herpertz-Dahlmann, Astrid Dempfle, Karin Maria Egberts, Viola Kappel, Kerstin Konrad, Jennifer Anne Vloet, Katharina Bühren
OBJECTIVE: Although admissions of children with anorexia nervosa (AN) are increasing, there remains a dearth of up-to-date knowledge of the course and outcome of early-onset AN. The aim of the present study was to investigate the outcomes of patients with AN onset before the age of 14. METHOD: Sixty-eight consecutive former patients who met the DSM-IV criteria for AN and who had been treated at one of three German university hospitals were asked to participate in a follow-up study...
February 16, 2018: International Journal of Eating Disorders
https://www.readbyqxmd.com/read/29451059/-oncokompas-a-web-based-self-management-application-to-support-patient-activation-and-optimal-supportive-care-a-feasibility-study-among-breast-cancer-survivors
#7
Heleen C Melissant, Irma M Verdonck-de Leeuw, Birgit I Lissenberg-Witte, Inge R Konings, Pim Cuijpers, Cornelia F Van Uden-Kraan
BACKGROUND: Cancer survivors have to deal with symptoms related to cancer and its treatment. In Oncokompas, cancer survivors monitor their quality of life by completing patient reported outcome measures (PROMs), followed by personalized feedback, self-care advice, and supportive care options to stimulate patient activation. The aim of this study was to investigate feasibility and pretest-posttest differences of Oncokompas including a newly developed breast cancer (BC) module among BC survivors...
February 16, 2018: Acta Oncologica
https://www.readbyqxmd.com/read/29450855/health-related-quality-of-life-among-us-military-personnel-injured-in-combat-findings-from-the-wounded-warrior-recovery-project
#8
Susan I Woodruff, Michael R Galarneau, Cameron T McCabe, Daniel I Sack, Mary C Clouser
PURPOSE: Little is known about the long-term, health-related quality of life (HRQOL) of those wounded in combat during Operations Enduring Freedom, Iraqi Freedom, and New Dawn. The present study described the overall HRQOL for a large group of US service members experiencing mild-to-severe combat-related injuries, and assessed the unique contribution of demographics, service- and injury-related characteristics, and mental health factors on long-term HRQOL. METHOD: The Wounded Warrior Recovery Project examines patient-reported outcomes in a cohort of US military personnel wounded in combat...
February 15, 2018: Quality of Life Research
https://www.readbyqxmd.com/read/29449598/health-related-quality-of-life-in-adolescents-and-the-retinal-microvascular-structure
#9
Bamini Gopinath, Gerald Liew, George Burlutsky, Louise A Baur, Paul Mitchell
We aimed to investigate whether health-related quality of life (HRQoL) is associated with retinal vascular caliber, an indicator of subclinical cardiovascular disease risk. 1600 students aged between 11-19 years (821 girls and 779 boys) were examined during 2009-2011. Retinal vessel caliber was measured from digital retinal images. HRQoL was assessed by the Pediatric Quality of Life Inventory (PedsQL). In the overall cohort, each 1-unit increase in PedsQL total score and the psychosocial summary score was associated with ~0...
February 15, 2018: Scientific Reports
https://www.readbyqxmd.com/read/29447362/eq-5d-y-for-the-assessment-of-health-related-quality-of-life-among-taiwanese-youth-with-mild-to-moderate-chronic-kidney-disease
#10
Chien-Ning Hsu, Hsiang-Wen Lin, A Simon Pickard, You-Lin Tain
Objective: To assess if health-related quality of life (HRQOL) of children with chronic kidney disease (CKD) and different comorbid conditions can be identified based on the EQ-5D child-friendly version (EQ-5D-Y). Design: Prospective cross-sectional study. Setting: A tertiary care medical center in Taiwan. Study participants: All CKD patients aged 7-18 years treated at the center between May 2014 and December 2016. Main Outcome Measures: HRQOL assessment was done using EQ-5D-Y...
February 13, 2018: International Journal for Quality in Health Care
https://www.readbyqxmd.com/read/29445989/relevance-of-sleep-quality-on-caregiver-burden-in-parkinson-s-disease
#11
Luigi Bartolomei, Andrea Pastore, Lucia Meligrana, Elena Sanson, Nicola Bonetto, Giacomo Maria Minicuci, Sandro Zambito Marsala, Tiziana Mesiano, Lorenzo Bragagnolo, Angelo Antonini
Parkinson's disease (PD) is a neurodegenerative disorder which affects the quality of life of patient and their family. Sleep disorders appear in 80-90% of PD patients and have a great impact on the PD well-being. We examined the relationship of patients' sleep quality and depression on burden, mood, quality of life, and quality of sleep of their caregivers. A multicenter, regional (Veneto), observational, cross-sectional study that included 55 patient-caregiver pairs was conducted. Patients were assessed using Parkinson's Disease Sleep Scale (PDSS) and Epworth Sleepiness Scale (ESS) for sleep disorders, Beck Depression Inventory (BDI) as a measure of depression, and Parkinson's Disease Questionnaire (PDQ-39) as a measure of quality of life...
February 14, 2018: Neurological Sciences
https://www.readbyqxmd.com/read/29445051/socioeconomic-inequalities-in-poor-health-related-quality-of-life-in-kermanshah-western-iran-a-decomposition-analysis
#12
Satar Rezaei, Mohammad Hajizadeh, Masoud Khosravipour, Farid Khosravi, Shahab Rezaeian
BACKGROUND: Socioeconomic status (SES) is an important determinant of health-related quality of life (HRQoL). We aimed to quantify socioeconomic-related inequality in poor-HRQoL among adults in Kermanshah, western Iran. STUDY DESIGN: A cross-sectional study. METHODS: Overall, 1730 adults (18-65 yr) were selected using convenience sampling from Kermanshah, Iran. A self-administrated questionnaire was used to collect data on socio-demographic characteristics, SES, lifestyle factors and HRQoL of participants over the period between May and Aug 2017...
January 27, 2018: Journal of Research in Health Sciences
https://www.readbyqxmd.com/read/29444783/mortality-and-quality-of-death-certification-in-a-cohort-of-patients-with-parkinson-s-disease-and-matched-controls-in-north-wales-uk-at-18-years-a-community-based-cohort-study
#13
Peter Hobson, Jolyon Meara
OBJECTIVE: This investigation reports the cause and the quality of death certification in a community cohort of patients with Parkinson's disease (PD) and controls at 18 years. SETTING: Denbighshire North Wales, UK. PARTICIPANTS: The community-based cohorts consisted of 166 patients with PD and 102 matched controls. PRIMARY OUTCOMES: All-cause mortality was ascertained at 18 years by review of hospitals' primary care records and examination of death certificates obtained from the UK General Register Office...
February 14, 2018: BMJ Open
https://www.readbyqxmd.com/read/29440887/long-term-health-related-quality-of-life-and-symptom-response-profiles-with-arformoterol-in-copd-results-from-a-52-week-trial
#14
James F Donohue, Vamsi K Bollu, Donald E Stull, Lauren M Nelson, Valerie Sl Williams, Michael D Stensland, Nicola A Hanania
Background: Symptom severity is the largest factor in determining subjective health in COPD. Symptoms (eg, chronic cough, dyspnea) are associated with decreased health-related quality of life (HRQoL). We evaluated the impact of arformoterol on HRQoL in COPD patients, measured by St George's Respiratory Questionnaire (SGRQ). Post hoc growth mixture model (GMM) analysis examined symptom response profiles. Methods: We examined data from a randomized, double-blind, parallel-group, 12-month safety trial of twice-daily nebulized arformoterol 15 µg (n=420) versus placebo (n=421)...
2018: International Journal of Chronic Obstructive Pulmonary Disease
https://www.readbyqxmd.com/read/29440817/quality-of-life-of-patients-with-chronic-kidney-disease-in-iran-systematic-review-and-meta-analysis
#15
REVIEW
Bahareh Ghiasi, Diana Sarokhani, Ali Hasanpour Dehkordi, Kourosh Sayehmiri, Mohammad Hossein Heidari
Introduction: Renal diseases are among the major health problems around the world that cause major changes in patients' lifestyle and affect their quality of lives. The aim of this study was to evaluate the quality of life of patients with chronic kidney disease (CKD) in Iran through a meta-analysis. Materials and Methods: This study was conducted using authentic Persian and English keywords in the national and international databases including IranMedex, SID, Magiran, IranDoc, Medlib, Science Direct, Pubmed, Scopus, Cochrane, Embase, Web of Science, and Medline...
January 2018: Indian Journal of Palliative Care
https://www.readbyqxmd.com/read/29435802/measuring-health-related-quality-of-life-hrqol-in-community-and-facility-based-care-settings-with-the-interrai-assessment-instruments-development-of-a-crosswalk-to-hui3
#16
John P Hirdes, Julie Bernier, Rochelle Garner, Philippe Finès, Micaela Jantzi
BACKGROUND: Health-related quality of life (HRQoL) measures are of interest because they can be used to describe health of populations and represent a broader health outcome for population health analyses than mortality rates or life expectancy. The most widely used measure of HRQoL for deriving estimates of health-adjusted life expectancy is the Health Utilities Index Mark 3 (HUI3). The HUI3 is available in most national surveys administered by Statistics Canada, and has been used as part of a microsimulation model to examine the impact of neurological conditions over the life course...
February 12, 2018: Quality of Life Research
https://www.readbyqxmd.com/read/29435312/determinant-factors-of-quality-of-life-in-adult-patients-with-eosinophilic-esophagitis
#17
Alfredo J Lucendo, Laura Arias-González, Javier Molina-Infante, Ángel Arias
Background: Eosinophilic esophagitis (EoE) affects health-related quality of life (HRQoL). Data on determinant factors and the influence of dietary interventions are scarce. Objective: The objective of this article is to evaluate factors influencing HRQoL in adult EoE patients. Methods: We conducted a multicenter observational, cross-sectional study. A validated Spanish version of the self-administered Adult Eosinophilic Esophagitis Quality of Life (EoE-QoL-A) questionnaire and specific surveys were used...
February 2018: United European Gastroenterology Journal
https://www.readbyqxmd.com/read/29433948/adherence-barriers-in-pediatric-epilepsy-from-toddlers-to-young-adults
#18
Ana M Gutierrez-Colina, Aimee W Smith, Constance A Mara, Avani C Modi
OBJECTIVE: The objectives of this study were to examine the continuity of adherence barriers across stages of development in pediatric epilepsy and to assess the differential influence of barriers on several important clinical outcomes from early childhood to young adulthood, including adherence, seizures, and health-related quality of life (HRQOL). METHOD: A developmentally representative sample of youth 2-25years with epilepsy was obtained by combining data from five different studies...
February 9, 2018: Epilepsy & Behavior: E&B
https://www.readbyqxmd.com/read/29433573/design-of-the-growth-hormone-deficiency-and-efficacy-of-treatment-get-score-and-non-interventional-proof-of-concept-study
#19
Peter H Kann, Simona Bergmann, Martin Bidlingmaier, Christina Dimopoulou, Birgitte T Pedersen, Günter K Stalla, Matthias M Weber, Stefanie Meckes-Ferber
BACKGROUND: The adverse effects of growth hormone (GH) deficiency (GHD) in adults (AGHD) on metabolism and health-related quality of life (HRQoL) can be improved with GH substitution. This investigation aimed to design a score summarising the features of GHD and evaluate its ability to measure the effect of GH substitution in AGHD. METHODS: The Growth hormone deficiency and Efficacy of Treatment (GET) score (0-100 points) assessed (weighting): HRQoL (40%), disease-related days off work (10%), bone mineral density (20%), waist circumference (10%), low-density lipoprotein cholesterol (10%) and body fat mass (10%)...
February 13, 2018: BMC Endocrine Disorders
https://www.readbyqxmd.com/read/29432203/associations-between-health-related-quality-of-life-and-body-mass-index-in-portuguese-adolescents-labmed-physical-activity-study
#20
Sofia Evaristo, Carla Moreira, Rute Santos, Luís Lopes, Sandra Abreu, César Agostinis-Sobrinho, José Oliveira-Santos, Jorge Mota
Background In adolescence there are several biological and physiological changes associated with overweight and obesity. Objective The purpose of this study was to analyze the associations between health-related quality of life (HRQoL) and body mass index (BMI) in adolescents. Methods This is a cross-sectional analysis of 957 Portuguese adolescents (446 girls and 511 boys) aged 12-18 years. A series of variables were collected: (a) HRQoL was assessed using the KIDSCREEN-10 questionnaire; (b) socioeconomic status (SES) was measured using the Family Affluence Scale; (c) body composition (weigh, height) were measured and BMI was calculated and, (d) pubertal stage was assessed with Tanner stages; (e) the 20-m shuttle-run was used to estimate cardiorespiratory fitness...
February 12, 2018: International Journal of Adolescent Medicine and Health
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