keyword
Keywords Caregivers of developmental de...

Caregivers of developmental delayed children

https://read.qxmd.com/read/38106783/teleconsultation-for-children-with-developmental-disabilities-during-the-coronavirus-pandemic-caregivers-experience
#21
JOURNAL ARTICLE
Urmila Dahake, Jaya Prasad Tripathy, Abhijit Choudhary, Shikha Jain, Akash Bang, Meenakshi Girish
Background The unprecedented situation due to the coronavirus disease 2019 (COVID-19) lockdown necessitated the need for teleconsultations with caregivers of children with disabilities. The objective of this study was to explore the acceptability, satisfaction, perceived relevance, and barriers to teleconsultation from a caregiver's perspective. Methodology This was a descriptive qualitative study (telephonic interviews) involving in-depth interviews (IDIs) with the caregivers of children with developmental disabilities who received teleconsultations...
November 2023: Curēus
https://read.qxmd.com/read/38103308/outcome-measures-for-use-in-trials-of-paediatric-otorrhoea-a-systematic-review
#22
JOURNAL ARTICLE
Elliot Heward, James Dempsey, John Molloy, Rachel Isba, Judith Lunn, Darren M Ashcroft, Alastair D Hay, Jaya R Nichani, Iain A Bruce
INTRODUCTION: Paediatric otorrhoea (PO) describes a middle ear infection that results in a perforation of the tympanic membrane and ear discharge, in children and young people (CYP). Prolonged infection may be associated with hearing loss and developmental delay. The current management of paediatric otorrhoea is variable, including non-invasive treatments (conservative, oral antibiotics, topical antibiotics) and surgery, reflecting the lack of a sufficiently strong evidence base. Outcome reporting is fundamental to producing reliable and meaningful evidence to inform best practice...
December 7, 2023: International Journal of Pediatric Otorhinolaryngology
https://read.qxmd.com/read/38099402/risk-factors-and-clinical-correlates-of-sensory-dysfunction-in-preschool-children-with-and-without-autism-spectrum-disorder
#23
JOURNAL ARTICLE
Lisa D Wiggins, Katie Overwyk, Julie Daniels, Brian Barger, Hayley Crain, Rebecca Grzadzinski, Eric Moody, Ann Reynolds, Nuri Reyes, Cordelia Rosenberg, Steven Rosenberg, Karen Pazol
Sensory dysfunction is a common feature of autism spectrum disorder (ASD). The objectives of this analysis were to examine risk factors and clinical correlates of sensory dysfunction in preschool children with and without ASD. Children aged 2-5 years were enrolled in a multi-site case-control study. Data were collected in eight areas across the United States in three phases. Caregivers completed an interview with questions on assisted delivery, maternal alcohol use, maternal anxiety during pregnancy, pregnancy weight gain, neonatal jaundice, preterm birth, and child sensory diagnosis given by a healthcare provider...
December 15, 2023: Autism Research: Official Journal of the International Society for Autism Research
https://read.qxmd.com/read/38098032/caregiver-child-interaction-as-an-effective-tool-for-identifying-autism-spectrum-disorder-evidence-from-eeg-analysis
#24
JOURNAL ARTICLE
Lin Deng, Wei-Zhong He, Qing-Li Zhang, Ling Wei, Yuan Dai, Yu-Qi Liu, Zi-Lin Chen, Tai Ren, Lin-Li Zhang, Jing-Bo Gong, Fei Li
BACKGROUND: Autism Spectrum Disorder (ASD) is a complex neurodevelopmental disorder that affects individuals across their lifespan. Early diagnosis and intervention are crucial for improving outcomes. However, current diagnostic methods are often time-consuming, and costly, making them inaccessible to many families. In the current study, we aim to test caregiver-child interaction as a potential tool for screening children with ASD in clinic. METHODS: We enrolled 85 preschool children (Mean age: 4...
December 14, 2023: Child and Adolescent Psychiatry and Mental Health
https://read.qxmd.com/read/38097525/prevalence-and-recurrence-of-pica-behaviors-in-early-childhood-within-the-alspac-birth-cohort
#25
JOURNAL ARTICLE
Natalie M Papini, Cynthia M Bulik, Samuel J R A Chawner, Nadia Micali
OBJECTIVE: The present study examined prevalence and correlates of pica behaviors during childhood using data from the Avon Longitudinal Study of Parents and Children (ALSPAC) study. METHOD: Data on 10,109 caregivers from the ALSPAC study who reported pica behavior at 36, 54, 65, 77, and 115 months on their child were included. Autism was obtained through clinical and education records, while DD was derived from the Denver Developmental Screening Test. RESULTS: A total of 312 parents (3...
December 14, 2023: International Journal of Eating Disorders
https://read.qxmd.com/read/38055183/profiling-autism-and-attention-deficit-hyperactivity-disorder-traits-in-children-with-syngap1-related-intellectual-disability
#26
JOURNAL ARTICLE
Damien Wright, Aisling Kenny, Lindsay A M Mizen, Andrew G McKechanie, Andrew C Stanfield
SYNGAP1-related ID is a genetic condition characterised by global developmental delay and epilepsy. Individuals with SYNGAP1-related ID also commonly show differences in attention and social communication/interaction and frequently receive additional diagnoses of Autism Spectrum Disorder (ASD) or Attention Deficit Hyperactivity Disorder (ADHD). We thus set out to quantify ASD and ADHD symptoms in children with this syndrome. To assess ASD and ADHD, parents and caregivers of a child with SYNGAP1-related ID (N = 34) or a typically developing control (N = 21) completed the Social Responsiveness Scale-2, the Social Communication Questionnaire with a subset of these also completing the Conners-3...
December 6, 2023: Journal of Autism and Developmental Disorders
https://read.qxmd.com/read/38016796/effectiveness-of-a-government-led-multiarm-intervention-on-early-childhood-development-and-caregiver-mental-health-a-study-protocol-for-a-factorial-cluster-randomised-trial-in-rural-china
#27
JOURNAL ARTICLE
Qi Jiang, Boya Wang, Yiwei Qian, Dorien Emmers, Shanshan Li, Lucy Pappas, Eleanor Tsai, Letao Sun, Manpreet Singh, Lia Fernald, Scott Rozelle
INTRODUCTION: The high incidences of both the developmental delay among young children and the mental health problems of their caregivers are major threats to public health in low-income and middle-income countries. Parental training interventions during early childhood have been shown to benefit early development, yet evidence on strategies to promote caregiver mental health remains limited. In addition, evidence on the optimal design of scalable interventions that integrate early child development and maternal mental health components is scarce...
November 28, 2023: BMJ Open
https://read.qxmd.com/read/37984282/autism-spectrum-disorder-in-the-us-have-we-done-enough
#28
JOURNAL ARTICLE
Sadia Rehman Safwi
Autism spectrum disorders (ASD) are a collection of neurodevelopmental disabilities, defined by the presence of social, behavioral and communication deficits, that are typically recognized during the first three years of life. Autism has emerged as a significant public health concern, yet there are no answers to its increasing rates. Recent data from the Autism and Developmental Disability Monitoring (ADDM) Network reported that 1 in every 36 (2.8 %) 8-year-old children were found to have autism in 2020...
November 7, 2023: Psychiatry Research
https://read.qxmd.com/read/37979313/costs-of-receiving-developmental-services-for-children-with-global-developmental-delay-at-siriraj-hospital-in-bangkok-thailand
#29
JOURNAL ARTICLE
Krittaporn Sinpho, Pat Rojmahamongkol
OBJECTIVES: To identify the cost from the societal, caregiver, and hospital perspectives for receiving developmental services for children with global developmental delay (GDD) at Siriraj Hospital. METHODS: This descriptive study collected data from children under 5 years old with GDD from November, 2021 to October, 2022. The hospital's perspective cost and caregivers' direct medical costs were obtained from the Siriraj database. Caregivers were interviewed about their expenses for direct nonmedical and indirect costs...
November 16, 2023: Value in Health Regional Issues
https://read.qxmd.com/read/37953072/delays-to-care-in-infantile-epileptic-spasms-syndrome-racial-and-ethnic-inequities
#30
JOURNAL ARTICLE
Christina Briscoe Abath, Nishtha Gupta, Aristides Hadjinicolaou, Stephanie Donatelli, Avantika Singh, Sabrina Merchant, Morgan E Ryan, Meghann Soby, Christopher Ryan, Adrianne Katrina Nelson, John E Maldonado Pacheco, Bo Zhang, David N Williams, Christopher J Yuskaitis, Chellamani Harini
OBJECTIVE: Non-Hispanic (NH) Black children are less likely to receive a standard treatment course for infantile epileptic spasms syndrome (IESS) than White/NH children at pediatric tertiary care epilepsy centers in the United States. However, if inequities exist in time to diagnosis is unknown. Diagnostic delays as little as a week can be associated with worse developmental outcomes. METHODS: Diagnostic delays were evaluated in a retrospective cohort of 100 children with new onset IESS between January 2019 and May 2022...
November 12, 2023: Epilepsia
https://read.qxmd.com/read/37906320/infant-communication-across-the-transition-to-walking-developmental-cascades-among-infant-siblings-of-children-with-autism
#31
JOURNAL ARTICLE
Kelsey L West, Sarah E Steward, Emily Roemer Britsch, Jana M Iverson
New motor skills can shape how infants communicate with their caregivers. For example, learning to walk allows infants to move faster and farther than they previously could, in turn allowing them to approach their caregivers more frequently to gesture or vocalize. Does the link between walking and communication differ for infants later diagnosed with autism spectrum disorder (ASD), whose communicative and motor development differs from their neurotypically developing peers? We prospectively followed two groups of infants longitudinally during the transition from crawling to walking: (1) N = 25 infants with no family history of ASD; and (2) N = 91 infants with an older sibling with ASD...
October 31, 2023: Journal of Autism and Developmental Disorders
https://read.qxmd.com/read/37885260/age-at-diagnosis-and-diagnostic-delay-across-attention-deficit-hyperactivity-and-autism-spectrums
#32
JOURNAL ARTICLE
Rachael Knott, Olivia J Mellahn, Jeggan Tiego, Kathryn Kallady, Louise E Brown, David Coghill, Katrina Williams, Mark A Bellgrove, Beth P Johnson
BACKGROUND: Despite the known benefits of accurate and timely diagnosis for children with attention-deficit hyperactivity disorder and autism spectrum disorders (autism), for some children this goal is not always achieved. Existing research has explored diagnostic delay for autism and attention-deficit hyperactivity disorder only, and when attention-deficit hyperactivity disorder and autism co-occur, autism has been the focus. No study has directly compared age at diagnosis and diagnostic delay for males and females across attention-deficit hyperactivity disorder, autism and specifically, attention-deficit hyperactivity disorder + autism...
February 2024: Australian and New Zealand Journal of Psychiatry
https://read.qxmd.com/read/37875274/associations-between-parenting-behaviors-and-behavioral-problems-in-young-children-with-developmental-delays
#33
JOURNAL ARTICLE
Mathew C Luehring, Laura Lee McIntyre
Children with developmental delays (DD) are at heightened risk for developing behavior problems, which contribute to parenting stress and caregiving burden. There is an established relation between parenting behaviors and child developmental outcomes with less known about parent-child interactions in young children with DD. The present study examined the associations between parenting behaviors and child behavior in a sample of 180 families with preschool-aged children with DD. Results indicated that caregivers' harsh and coercive behaviors were associated with observed challenging behavior in children...
November 1, 2023: American Journal on Intellectual and Developmental Disabilities
https://read.qxmd.com/read/37871284/young-children-s-development-and-behavior-associations-with-timing-of-household-food-insecurity-in-a-racially-and-ethnically-diverse-early-head-start-sample
#34
JOURNAL ARTICLE
Monica S Treviño, Kathryn E Cherry, Wanjikũ F M Njoroge, Emily D Gerstein
OBJECTIVE: The objective of this study was to assess the impact of household food insecurity (HFI) over time on behavioral and developmental health in early childhood while considering the impact of timing/persistence of HFI and potential differences among racially or ethnically minoritized children. METHODS: Families from the Early Head Start Family and Child Experiences Study (N = 760) were followed longitudinally until age 3 years. Caregiver interview data were collected on HFI, problem behaviors (PBs), delays in development (DD), and sociodemographic information...
October 23, 2023: Journal of Developmental and Behavioral Pediatrics: JDBP
https://read.qxmd.com/read/37864138/screening-for-developmental-delay-in-urban-rwandan-children-a-cross-sectional-study
#35
JOURNAL ARTICLE
Victoire Tuyisenge, Febronie Mushimiyimana, Aimable Kanyamuhunga, Jean Paul Rukabyarwema, Archana A Patel, Cliff O'Callahan
BACKGROUND: Systematic or targeted screening for developmental delay (DD) is critical to the early identification of developmental disabilities. With limited available information for urban Rwandan children, this study aimed to determine the prevalence of DD and associated risk factors in infants aged 9 to 16 months living in the urban Rwandan city of Kigali. METHODS: A cross-sectional study was conducted in Rwanda from August to November 2019. A convenience sample of 376 Rwandan parents/caregivers and their children attending urban health centers for their routine immunization visits at 9 and 15 months of age was studied...
October 20, 2023: BMC Pediatrics
https://read.qxmd.com/read/37821990/the-burden-of-mitochondrial-disease-with-associated-seizures-systematic-literature-reviews-of-health-related-quality-of-life-utilities-costs-and-healthcare-resource-use-data
#36
REVIEW
Enrico Bertini, Emily Gregg, Chris Bartlett, Vij Senthilnathan, Mick Arber, Deborah Watkins, Sara Graziadio, Ioannis Tomazos
BACKGROUND: Mitochondrial disease is a degenerative, progressive, heterogeneous group of genetic disorders affecting children and adults. Mitochondrial disease is associated with morbidity and mortality, with predominantly neurological and neuromuscular symptoms including dystonia, weakness, encephalopathy, developmental delay and seizures. Seizures are one of the most common and severe manifestations of mitochondrial disease. These seizures are typically refractory to common anti-seizure therapies...
October 11, 2023: Orphanet Journal of Rare Diseases
https://read.qxmd.com/read/37807381/b-24-neuropsychological-profile-of-a-child-with-asd-adhd-and-psychotic-features
#37
JOURNAL ARTICLE
Naomi G Uy, Erica Weiss, John McGinley, Marnina Stimmel, Diana Bronshteyn, David Masur, Ronda Facchini
OBJECTIVE: Autism Spectrum Disorder (ASD), Attention Deficit-Hyperactivity Disorder (ADHD), and psychotic traits, although highly comorbid, have rarely been studied in children. Existing research indicates that impulsivity, comprehension difficulties, and inflexibility are overlapping symptoms within the ASD and ADHD populations. Adult research shows high comorbidity estimates between ASD and psychosis. Here we describe the neuropsychological profile of a 14-year-old boy with diagnoses of ASD and ADHD with psychotic features...
October 8, 2023: Archives of Clinical Neuropsychology: the Official Journal of the National Academy of Neuropsychologists
https://read.qxmd.com/read/37807238/a-111-neuropsychological-performance-in-cdk-13-related-disorder-a-multi-year-case-study
#38
JOURNAL ARTICLE
Mary L Robinson, Akanksha M Bean, Erica M Krapf
OBJECTIVE: CDK13-related disorder (CDK13-RD) is a rare genetic condition first described in 2016 as involving congenital heart defects, dysmorphic facial features, and intellectual developmental disorder (CHDFIDD). Few studies have reported clinical presentations. There is very minimal information about cognitive and neuropsychological outcomes; however, developmental delays and intellectual disability are common. This study presents longitudinal neuropsychological outcomes of one adolescent with CKD13-RD...
October 8, 2023: Archives of Clinical Neuropsychology: the Official Journal of the National Academy of Neuropsychologists
https://read.qxmd.com/read/37806700/special-considerations-for-pediatric-burn-injuries
#39
REVIEW
Miranda Yelvington, Christopher Whitehead, Lori Turgeon
Burns are the fifth leading cause of non-fatal childhood injuries. Physiological differences between children and adults lead to unique considerations when treating young burn survivors. In addition to the physical and psychological concerns which must be considered in adult burn rehabilitation, pediatric burn rehabilitation must also consider the developmental stage of the child, preexisting developmental delays, and the impact of scaring on growth and motor skill attainment. Treatment of pediatric burn survivors requires a multidisciplinary approach centered around caring for not only the child but also for their parents, siblings, and other caregivers...
November 2023: Physical Medicine and Rehabilitation Clinics of North America
https://read.qxmd.com/read/37798211/relationship-between-caregiver-adverse-childhood-events-and-age-of-autism-spectrum-diagnosis
#40
JOURNAL ARTICLE
Michele Kilmer, Minju Hong, Emily Shah
BACKGROUND: The age at which children are diagnosed with autism spectrum disorder (ASD) has not significantly decreased in the past 20 years. Adverse childhood events (ACEs) experienced by caregivers of autistic children may predict delays in caregivers attending ASD diagnostic evaluations, negatively impacting the age at which the child is diagnosed with ASD. The purpose of this study was to further explore the caregiver delay response by analyzing recurring events common in caregivers of children at risk for ASD...
October 3, 2023: Journal of Pediatric Nursing
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