keyword
MENU ▼
Read by QxMD icon Read
search

Caregivers of developmental delayed children

keyword
https://www.readbyqxmd.com/read/29754762/developmental-delay-in-communication-among-toddlers-and-its-relationship-to-caregiving-behavior-among-violence-exposed-posttraumatically-stressed-mothers
#1
R Torrisi, E Arnautovic, V C Pointet Perizzolo, M Vital, A Manini, F Suardi, M Gex-Fabry, S Rusconi Serpa, D S Schechter
OBJECTIVES: This study aimed to understand if maternal interpersonal violence-related posttraumatic stress disorder (IPV-PTSD) is associated with delayed language development among very young children ("toddlers"). METHODS: Data were collected from 61 mothers and toddlers (ages 12-42 months, mean age = 25.6 months SD = 8.70). Child expressive and receptive language development was assessed by the Ages and Stages Questionnaire (ASQ) communication subscale (ASQCS) that measures language acquisition...
May 10, 2018: Research in Developmental Disabilities
https://www.readbyqxmd.com/read/29663621/neurodevelopmental-outcomes-of-young-children-born-to-hiv-positive-mothers-in-rural-yunnan-china
#2
Jie Wu, Jing Li, Yan Li, Kek Khee Loo, Haixia Yang, Qiong Wang, Rufei Duan, Xia Xiao, Xiaoxiao Song, Siwei Yang, Lin Sun
BACKGROUND: Children born to HIV-infected mothers are at risk for neurodevelopmental delay. Little is known about neurodevelopmental outcomes of infants and toddlers who were born to HIV-positive mothers but were not themselves infected by HIV, especially in poor rural areas. This study was conducted to compare developmental outcomes between young children who were HIV-exposed but uninfected (HEU) and their HIV-unexposed and uninfected (HUU) peers in rural Yunnan, China. METHODS: A total of 250 HEU children aged 6-36 months and 250 HUU children matched on age, gender and residency were recruited from rural Yunnan, China...
April 16, 2018: Pediatrics International: Official Journal of the Japan Pediatric Society
https://www.readbyqxmd.com/read/29610408/family-characteristics-and-children-s-receipt-of-autism-services-in-low-resourced-families
#3
Elizabeth A Karp, Rebecca Dudovitz, Bergen B Nelson, Wendy Shih, Amanda Gulsrud, Felice Orlich, Costanza Colombi, Alice A Kuo
OBJECTIVES: Parents of children with autism spectrum disorder (ASD) face competing demands when caring for their child and fulfilling family commitments. It remains unknown whether family obligations and parental stress might decrease the use of intervention services for young children with ASD. METHODS: The current study is a secondary analysis of baseline date from a published randomized control trial with 147 low-resourced caregiver-child dyads. Demographic information, data on service use, maternal employment, parent's perception of their child's development, and parental stress were collected for primary caregivers of 2- to 5-year-old children with ASD from 5 sites...
April 2018: Pediatrics
https://www.readbyqxmd.com/read/29579119/high-levels-of-caregiver-burden-in-prader-willi-syndrome
#4
Nathalie Kayadjanian, Lauren Schwartz, Evan Farrar, Katherine Anne Comtois, Theresa V Strong
OBJECTIVES: Prader-Willi syndrome (PWS) is a rare genetic neurodevelopmental disorder that is characterized by hyperphagia, developmental delay, incomplete sexual development, mild-to-moderate intellectual disability, and a variety of challenging behavioral and psychiatric symptoms. The characteristics of PWS can be difficult for caregivers to cope with and are likely to cause significant and long- term caregiver burden. The current study examined burden in 142 caregivers of children and adults with PWS living in the US using the Zarit Burden Interview (ZBI)...
2018: PloS One
https://www.readbyqxmd.com/read/29532976/psychometric-properties-of-the-spanish-version-of-the-family-centred-practices-scale-for-use-with-families-of-young-children-receiving-early-childhood-intervention
#5
Joana M Mas, Marga Cañadas, Anna Balcells-Balcells, Climent Giné, Ana M Serrano, Carl J Dunst
BACKGROUND: Early childhood intervention (ECI) centres in Spain recently initiated a process of change towards the adoption of family-centred practices (FCPs). Knowledge about the extent to which practitioners' use FCPs is needed. The psychometric properties of the Spanish version of the FCPs scale were examined. METHOD: A convenience sample of 105 families of children with developmental delays attending three different ECI centres in Spain completed the FCPs scale and provided information about the ECI centre characteristics and practices, caregiver self-efficacy beliefs, and family and child demographic information...
March 13, 2018: Journal of Applied Research in Intellectual Disabilities: JARID
https://www.readbyqxmd.com/read/29527735/the-uganda-version-of-the-pediatric-evaluation-of-disability-inventory-pedi-part-i-cross-cultural-adaptation
#6
A Kakooza-Mwesige, J K Tumwine, H Forssberg, A-C Eliasson
BACKGROUND: The Pediatric Evaluation of Disability Inventory (PEDI) was developed and standardized to measure functional performance in American children. So far, no published study has examined the use of the PEDI in sub-Saharan Africa. This study describes the adaptation, translation, and validation process undertaken to develop a culturally relevant PEDI for Uganda (PEDI-UG). METHOD: The cross-cultural adaptation and translation of the PEDI was performed in a series of steps...
March 12, 2018: Child: Care, Health and Development
https://www.readbyqxmd.com/read/29500757/caregiver-mental-health-parenting-practices-and-perceptions-of-child-attachment-in-children-with-autism-spectrum-disorder
#7
Samantha J Teague, Louise K Newman, Bruce J Tonge, Kylie M Gray
This paper investigates the role of caregiver mental health and parenting practices as predictors of attachment in children with intellectual disability/developmental delay, comparing between children with ASD (n = 29) and children with other developmental disabilities (n = 20). Parents reported that children with ASD had high levels of anxiety and stress, and attachment insecurity in children (less closeness and more conflict in attachment relationships, and more inhibited attachment behaviours) compared with children with other developmental disabilities...
March 2, 2018: Journal of Autism and Developmental Disorders
https://www.readbyqxmd.com/read/29461997/best-worst-scaling-to-prioritize-outcomes-meaningful-to-caregivers-of-youth-with-mental-health-multimorbidities-a-pilot-study
#8
Wendy Camelo Castillo, Melissa Ross, Saad Tariq, Susan dosReis
OBJECTIVE: Health care decision-making for youth with mental health multimorbidity is guided by outcomes that are considered most meaningful and important. The study objective was to pilot test a best-worst scaling (BWS) instrument designed to assess trade-offs among caregiver-defined, meaningful health care outcomes. METHODS: A BWS was designed with continuous stakeholder involvement to elicit caregiver-defined outcomes in 4 domains: school, behavioral, social, and independence...
February 2018: Journal of Developmental and Behavioral Pediatrics: JDBP
https://www.readbyqxmd.com/read/29456343/factors-influencing-institutional-based-pediatric-rehabilitation-services-among-caregivers-of-children-with-developmental-delay-in-southwestern-rajasthan
#9
Kriti Mishra, V Siddharth
Context: A limited number of caregivers of children with developmental delay access rehabilitation facilities in India. The study explored utilization of rehabilitation services at a tertiary care setup in southwestern Rajasthan and various factors influencing it. Aims: The aim of this study is to explore rehabilitation service utilization among children with developmental delay at a tertiary care setup and to ascertain factors that influence this pattern. Settings: This study was conducted at the department of physical medicine and rehabilitation at tertiary care setup...
January 2018: Journal of Neurosciences in Rural Practice
https://www.readbyqxmd.com/read/29288186/long-term-early-development-research-in-congenital-heart-disease-leader-chd-a-study-protocol-for-a-prospective-cohort-observational-study-investigating-the-development-of-children-after-surgical-correction-for-congenital-heart-defects-during-the-first-3-years
#10
Hannah Ferentzi, Constanze Pfitzer, Lisa-Maria Rosenthal, Felix Berger, Katharina R L Schmitt
INTRODUCTION: Congenital heart disease (CHD) is the most common birth defect. Studies on the development of children with CHD point towards deficits in motoric, cognitive and language development. However, most studies are cross-sectional and there is a gap in the knowledge concerning developmental trajectories, risk and protective factors and a lack of research concerning environmental predictors. Specifically, no studies have so far considered the importance of early caregiving experiences and child temperament for the development of children with CHD...
December 28, 2017: BMJ Open
https://www.readbyqxmd.com/read/29280496/silent-aspiration-who-is-at-risk
#11
Priatharisiny Velayutham, Alexandria L Irace, Kosuke Kawai, Pamela Dodrill, Jennifer Perez, Monica Londahl, Lauren Mundy, Natasha D Dombrowski, Reza Rahbar
OBJECTIVE: To determine the prevalence of silent aspiration in pediatric patients and identify which diagnoses may be associated with this finding. METHODS: An institutional review board-approved retrospective review was conducted for all patients under the age of 18 who underwent modified barium swallow (MBS) studies at a tertiary children's hospital in 2015. Speech-language pathologists reviewed MBS studies to identify aspiration/silent aspiration on each fluid consistency tested...
December 27, 2017: Laryngoscope
https://www.readbyqxmd.com/read/29230307/who-parents-skills-training-pst-programme-for-children-with-developmental-disorders-and-delays-delivered-by-family-volunteers-in-rural-pakistan-study-protocol-for-effectiveness-implementation-hybrid-cluster-randomized-controlled-trial
#12
S U Hamdani, P Akhtar, Zill-E-Huma, H Nazir, F A Minhas, S Sikander, D Wang, C Servilli, A Rahman
Background: Development disorders and delays are recognised as a public health priority and included in the WHO mental health gap action programme (mhGAP). Parents Skills Training (PST) is recommended as a key intervention for such conditions under the WHO mhGAP intervention guide. However, sustainable and scalable delivery of such evidence based interventions remains a challenge. This study aims to evaluate the effectiveness and scaled-up implementation of locally adapted WHO PST programme delivered by family volunteers in rural Pakistan...
2017: Global Mental Health
https://www.readbyqxmd.com/read/29221530/parenting-practices-and-associations-with-development-delays-among-young-children-in-dominican-republic
#13
Omolara Thomas Uwemedimo, Afrin Howlader, Giselina Pierret
BACKGROUND: According to the World Health Organization, >200 million children in low- and middle-income countries experience developmental delays. However, household structure and parenting practices have been minimally explored as potential correlates of developmental delay in low- and middle-income countries, despite potential as areas for intervention. OBJECTIVE: The objective of the study was to examine associations of developmental delays with use of World Health Organization-recommended parenting practices among a clinic-based cohort of children aged 6-60 months attending in La Romana, Dominican Republic...
May 2017: Annals of Global Health
https://www.readbyqxmd.com/read/29221451/inequality-in-early-childhood-neurodevelopment-in-six-poor-rural-counties-of-china-a-decomposition-analysis
#14
Cuihong Zhang, Chunxia Zhao, Xiangyu Liu, Qianwei Wei, Shusheng Luo, Sufang Guo, Jingxu Zhang, Xiaoli Wang, Robert W Scherpbier
BACKGROUND: Previous studies about inequality in children's health focused more on physical health than the neurodevelopment. In this study, we aimed to evaluate the inequality in early childhood neurodevelopment in poor rural China and explore the contributions of socioeconomic factors to the inequality. METHOD: Information of 2120 children aged 0 to 35 months and their households in six poor rural counties of China was collected during July - September, 2013...
December 8, 2017: International Journal for Equity in Health
https://www.readbyqxmd.com/read/29118206/social-origins-of-developmental-risk-for-mental-and-physical-illness
#15
REVIEW
Judy L Cameron, Kathie L Eagleson, Nathan A Fox, Takao K Hensch, Pat Levitt
Adversity in early childhood exerts an enduring impact on mental and physical health, academic achievement, lifetime productivity, and the probability of interfacing with the criminal justice system. More science is needed to understand how the brain is affected by early life stress (ELS), which produces excessive activation of stress response systems broadly throughout the child's body (toxic stress). Our research examines the importance of sex, timing and type of stress exposure, and critical periods for intervention in various brain systems across species...
November 8, 2017: Journal of Neuroscience: the Official Journal of the Society for Neuroscience
https://www.readbyqxmd.com/read/29095389/paroxysmal-tonic-upgaze-in-children-three-case-reports-and-a-review-of-the-literature
#16
Ayse Kartal
BACKGROUND: In clinical practice, nonepileptic paroxysmal events during infancy and childhood are common reasons for parents and caregivers to seek for medical advice. These events are mostly unrecognized and considered as an epileptic seizure because of the clinical features resembling an epileptic seizure. Paroxysmal tonic upgaze, which consists of recurrent episodes of sustained upward deviation of the eyes and incomplete downward saccades, and normal horizontal eye movements without impairment of consciousness, is a diagnostic challenge for the pediatrician and pediatric neurologist...
October 31, 2017: Pediatric Emergency Care
https://www.readbyqxmd.com/read/29066421/caregiver-input-to-optimize-the-design-of-a-pediatric-care-planning-guide-for-rehabilitation-descriptive-study
#17
Mary A Khetani, Heather K Lim, Marya E Corden
BACKGROUND: Caregiver input has informed the design of a valid electronic patient-reported outcome (PRO) measure for use in pediatric rehabilitation. This proxy assessment may be further developed to expedite and enhance patient-centered care planning processes, but user input is first needed to finalize the core requirements that will guide its design. OBJECTIVE: The objective of this study was to examine the feasibility of a stepwise process for building on a baseline assessment of young children's participation in activities to develop a care plan relevant to pediatric rehabilitation...
October 24, 2017: JMIR Rehabilitation and Assistive Technologies
https://www.readbyqxmd.com/read/29026377/developmental-screening-predictors-of-follow-up-adherence-in-primary-health-care
#18
Joanné Christine Schoeman, De Wet Swanepoel, Jeannie van der Linde
BACKGROUND: The importance of early identification for infants and young children with developmental delays is well established. Poor follow-up on referrals, however, undermines the effectiveness of early intervention programmes. OBJECTIVES: To identify factors, including text message reminders, that influence follow-up adherence for early intervention after developmental screening in primary health care. A secondary objective surveyed reasons for follow-up default...
March 2017: African Health Sciences
https://www.readbyqxmd.com/read/28946866/the-effect-of-a-micronutrient-powder-home-fortification-program-on-anemia-and-cognitive-outcomes-among-young-children-in-rural-china-a-cluster-randomized-trial
#19
RANDOMIZED CONTROLLED TRIAL
Renfu Luo, Ai Yue, Huan Zhou, Yaojiang Shi, Linxiu Zhang, Reynaldo Martorell, Alexis Medina, Scott Rozelle, Sean Sylvia
BACKGROUND: Anemia early in life has been associated with delayed cognitive and motor development. The WHO recommends home fortification using multiple micronutrient powders (MNPs) containing iron as a strategy to address anemia in children under two. We evaluated the effects of a program freely distributing MNP sachets to caregivers of infants in rural China. METHODS: We conducted a cluster-randomized controlled trial in Shaanxi province, enrolling all children aged 6-11 months in target villages...
September 25, 2017: BMC Public Health
https://www.readbyqxmd.com/read/28914728/reason-for-referral-predicts-utilization-and-perceived-impact-of-early-intervention-services
#20
Karina Javalkar, Jonathan S Litt
OBJECTIVE: Children participating in early intervention (EI) vary in their medical needs and degree of delay, and previous studies have shown significant differences in EI enrollment based on the reason for referral. The effect of reason for referral on service provision and family satisfaction is largely unknown. METHODS: We used data from the National Early Intervention Longitudinal Study for our secondary data analysis. The main predictor was the reason for referral: a diagnosed condition, documented developmental delay, or other risk factors...
September 7, 2017: Journal of Developmental and Behavioral Pediatrics: JDBP
keyword
keyword
44839
1
2
Fetch more papers »
Fetching more papers... Fetching...
Read by QxMD. Sign in or create an account to discover new knowledge that matter to you.
Remove bar
Read by QxMD icon Read
×

Search Tips

Use Boolean operators: AND/OR

diabetic AND foot
diabetes OR diabetic

Exclude a word using the 'minus' sign

Virchow -triad

Use Parentheses

water AND (cup OR glass)

Add an asterisk (*) at end of a word to include word stems

Neuro* will search for Neurology, Neuroscientist, Neurological, and so on

Use quotes to search for an exact phrase

"primary prevention of cancer"
(heart or cardiac or cardio*) AND arrest -"American Heart Association"