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https://www.readbyqxmd.com/read/29334475/abandonment-of-assistive-products-assessing-abandonment-levels-and-factors-that-impact-on-it
#1
André T Sugawara, Vinícius D Ramos, Fábio M Alfieri, Linamara R Battistella
PURPOSE: To investigate the levels and factors that influence the abandonment of assistive products by users of a local reference rehabilitation center. METHODS: This observational study involved users who received services and assistive products provided by our center of rehabilitation. Users were identified using the records of the center and their responses about the abandonment were collected through face-to-face interviews. RESULTS: The abandonment level of assistive products was 19...
January 15, 2018: Disability and Rehabilitation. Assistive Technology
https://www.readbyqxmd.com/read/29329773/total-energy-expenditure-and-body-composition-of-children-with-developmental-disabilities
#2
Michele Polfuss, Kathleen J Sawin, Paula E Papanek, Linda Bandini, Bethany Forseth, Andrea Moosreiner, Kimberley Zvara, Dale A Schoeller
BACKGROUND: Obesity prevalence is increased in children with developmental disabilities, specifically in children with spina bifida and Down syndrome. Energy expenditure, a critical aspect of weight management, has been extensively studied in the typically developing population, but not adequately studied in children with developmental disabilities. OBJECTIVE: Determine energy expenditure, fat-free mass and body fat percentile and the impact of these findings on recommended caloric intake in children with spina bifida and Down syndrome...
December 28, 2017: Disability and Health Journal
https://www.readbyqxmd.com/read/29322964/natural-history-of-a-cohort-of-duchenne-muscular-dystrophy-children-seen-between-1998-and-2014-an-observational-study-from-south-india
#3
Ravinder-Jeet Singh, Mahadevappa Manjunath, Veeramani Preethish-Kumar, Kiran Polavarapu, Seena Vengalil, Priya T Thomas, Kandavel Thennarasu, Narayanappa Gayathri, Deepha Sekar, Saraswati Nashi, Atchayaram Nalini
BACKGROUND: Duchenne muscular dystrophy (DMD) is the most common muscular dystrophy. There are no large studies describing its natural course from India. MATERIALS AND METHODS: Immunohistochemically/genetically confirmed DMD patients diagnosed between 1998 and 2014 were ambispectively included. The main aim was to study the natural course of motor milestones, i.e., age at onset of wheelchair status, bedbound state, and age at death, which were considered as primary outcome measures...
January 2018: Neurology India
https://www.readbyqxmd.com/read/29316850/demographics-and-clinical-characteristics-of-primary-lateral-sclerosis-case-series-and-a-review-of-literature
#4
Ramnath Santosh Ramanathan, Sandeep Rana
AIM: Primary lateral sclerosis (PLS) is a form of motor neuron disease involving only upper motor neurons. In some patients presenting as PLS, the disease progresses to involve lower motor neurons and thereby converting to amyotrophic lateral sclerosis (ALS). However, pure forms of PLS do exist. Our aim was to study epidemiological and clinical characteristics of pure PLS patients treated at our neuromuscular clinic. METHODS: We retrospectively reviewed 15 patients from July 2011 to October 2014 with PLS treated at the neuromuscular disorder clinic at our hospital...
January 10, 2018: Neurodegenerative Disease Management
https://www.readbyqxmd.com/read/29313712/energy-efficiency-in-children-with-myelomeningocele-during-acute-use-of-assistive-devices-a-pilot-study
#5
Jennifer K Sansom, Beverly D Ulrich
Due to increased metabolic demands during walking, ∼50% of children with myelomeningocele transition to wheelchair use during adolescence/early adulthood. The purpose of our pilot study involving children with myelomeningocele was to determine: (a) energy expenditure needs during acute use of common assistive devices and (b) if walking poles are a feasible assistive device. Oxygen uptake was recorded for eight (5-12 years old) children in four conditions: independent, walker, crutches, and poles. Acute pole use did not significantly differ from independent walking net energy consumption or cost...
January 9, 2018: Adapted Physical Activity Quarterly: APAQ
https://www.readbyqxmd.com/read/29305847/the-extent-to-which-caregivers-enhance-the-wheelchair-skills-capacity-and-confidence-of-power-wheelchair-users-a-cross-sectional-study
#6
R Lee Kirby, Paula W Rushton, Francois Routhier, Louise Demers, Laura Titus, Jan Miller-Polgar, Cher Smith, Mike McAllister, Chris Theriault, Kara Matheson, Kim Parker, Bonita Sawatzky, Delphine Labbé, William C Miller
OBJECTIVE: The objectives of this study were to test the hypothesis that caregivers enhance the wheelchair skills capacity and confidence of the power wheelchair users to whom they provide assistance and to describe the nature of that assistance. DESIGN: Multi-center cross-sectional study. SETTING: Rehabilitation centers and communities. PARTICIPANTS: We studied 152 participants - 76 caregivers and 76 wheelchair users...
January 3, 2018: Archives of Physical Medicine and Rehabilitation
https://www.readbyqxmd.com/read/29305133/phenotypic-stratification-and-genotype-phenotype-correlation-in-a-heterogeneous-international-cohort-of-gne-myopathy-patients-first-report-from-the-gne-myopathy-disease-monitoring-program-registry-portion
#7
Oksana Pogoryelova, Phillip Cammish, Hank Mansbach, Zohar Argov, Ichizo Nishino, Alison Skrinar, Yiumo Chan, Shahriar Nafissi, Hosein Shamshiri, Emil Kakkis, Hanns Lochmüller
GNE myopathy is a rare distal myopathy, caused by mutations in the GNE gene, affecting sialic acid synthesis. Clinical presentation varies from asymptomatic early stage patients to severely debilitating forms. This first report describes clinical presentations and severity of the disease, using data of 150 patients collected via the on-line, patient-reported registry component of the GNE Myopathy Disease Monitoring Program (GNEM-DMP). Disease progression was prospectively analysed, over a 2-year period, using the GNE myopathy functional activity scale (GNEM-FAS)...
November 14, 2017: Neuromuscular Disorders: NMD
https://www.readbyqxmd.com/read/29304035/wheelchair-tiedown-and-occupant-restraint-practices-in-paratransit-vehicles
#8
Karen Frost, Gina Bertocci, Craig Smalley
The purpose of this study was to characterize wheelchair tiedown and occupant restraint system (WTORS) usage in paratransit vehicles based on observations of wheelchair and scooter (wheeled mobility devices, collectively, "WhMD") passenger trips. A retrospective review of on-board video monitoring recordings of WhMD trips was conducted. Four hundred seventy-five video recordings were collected for review and analysis. The use of all four tiedowns to secure the WhMD was observed more frequently for power WhMDs (82%) and manual WhMDs (80%) compared to scooters (39%), and this difference was significant (p< 0...
2018: PloS One
https://www.readbyqxmd.com/read/29299222/functional-electrical-stimulation-cycling-strategies-tested-during-preparation-for-the-first-cybathlon-competition-a-practical-report-from-team-ens-de-lyon
#9
Amine Metani, Lana Popović-Maneski, Sebastien Mateo, Laura Lemahieu, Vance Bergeron
Whether it is from the patient's or the physical therapist's point of view, FES cycling can be considered either as a recreational activity, or an engaging rehabilitation tool. In both cases, it keeps patients with lower-limb paralysis motivated to sustain a regular physical activity. Thus, it is not surprising that it was selected as one of the six disciplines of the first Cybathlon competition held on October 8, 2016. However, many unresolved issues prevent FES cycling from being an activity practiced outdoors on a daily basis; such as, low power production, rapid muscle fatigue, precise electrode positioning, lack of systematic procedures to determine stimulation patterns, and the difficulty of transferring disabled riders from their wheelchair to the tricycle...
December 5, 2017: European Journal of Translational Myology
https://www.readbyqxmd.com/read/29284794/prevalence-and-factors-associated-with-a-higher-risk-of-neck-and-back-pain-among-permanent-wheelchair-users-a-cross-sectional-study
#10
Francisco M Kovacs, Jesús Seco, Ana Royuela, Andrés Barriga, Javier Zamora
STUDY DESIGN: Cross-sectional study. OBJECTIVES: To determine the prevalence of, and factors associated with, spinal pain among wheelchair users. SETTING: Four Spanish hospitals specialized in providing care for wheelchair users. METHODS: Persons who had used a wheelchair for a median (IRQ) of 10 (5;19) years, 27% of them due to reasons other than spinal cord injury, were recruited consecutively (n = 750). Data on 43 demographic, psychosocial, ergonomic, and clinical variables were collected, and analyzed...
December 28, 2017: Spinal Cord
https://www.readbyqxmd.com/read/29284303/-i-am-free-in-my-wheelchair-but-pain-does-have-a-say-in-it-though-the-meaning-and-experience-of-quality-of-life-when-living-with-paraplegia-and-chronic-pain
#11
Melanie Hughes, Amy E Burton, Robert C Dempsey
This study investigated how wheelchair-using individuals with paraplegia and chronic pain make sense of the factors associated with quality of life based on interviews using photo-elicitation and interpretative phenomenological analysis. Three superordinate themes emerged in the analysis: experiencing quality of life through the perception of self and identity, interpersonal relationships as facilitators and barriers to quality of life and life in a wheelchair: pain experience and management. Quality of life for those living with paraplegia and chronic pain is experienced as a complex interaction across several life domains...
December 1, 2017: Journal of Health Psychology
https://www.readbyqxmd.com/read/29282131/cybathlon-experiences-of-the-graz-bci-racing-team-mirage91-in-the-brain-computer-interface-discipline
#12
Karina Statthaler, Andreas Schwarz, David Steyrl, Reinmar Kobler, Maria Katharina Höller, Julia Brandstetter, Lea Hehenberger, Marvin Bigga, Gernot Müller-Putz
BACKGROUND: In this work, we share our experiences made at the world-wide first CYBATHLON, an event organized by the Eidgenössische Technische Hochschule Zürich (ETH Zürich), which took place in Zurich in October 2016. It is a championship for severely motor impaired people using assistive prototype devices to compete against each other. Our team, the Graz BCI Racing Team MIRAGE91 from Graz University of Technology, participated in the discipline "Brain-Computer Interface Race". A brain-computer interface (BCI) is a device facilitating control of applications via the user's thoughts...
December 28, 2017: Journal of Neuroengineering and Rehabilitation
https://www.readbyqxmd.com/read/29276543/an-investigation-of-home-advantage-in-the-summer-paralympic-games
#13
Darryl Wilson, Girish Ramchandani
Purpose: There is a paucity of home advantage research set in the context of para-sport events. It is this gap in the knowledge that this paper addresses by investigating the prevalence and size of home advantage in the Summer Paralympic Games. Methods: Using a standardised measure of success, we compared the performances of nations when competing at home with their own performances away from home in the competition between 1960 and 2016. Both country-level and individual sport-level analyses were conducted for this time frame...
2017: Sport Sciences for Health
https://www.readbyqxmd.com/read/29273759/orientation-in-virtual-reality-does-not-fully-measure-up-to-the-real-world
#14
Kazushige Kimura, James F Reichert, Ashley Olson, Omid Ranjbar Pouya, Xikui Wang, Zahra Moussavi, Debbie M Kelly
Adult participants learned to reorient to a specific corner inside either a real or virtual rectangular room containing a distinct featural object in each corner. Participants in the virtual-reality (VR) condition experienced an immersive virtual version of the physical room using a head-mounted display (HMD) and customized manual wheelchair to provide self-movement. Following a disorientation procedure, people could reorient by using either the geometry of the room and/or the distinct features in the corners...
December 22, 2017: Scientific Reports
https://www.readbyqxmd.com/read/29258231/hazardous-object-detection-by-using-kinect-sensor-in-a-handle-type-electric-wheelchair
#15
Jeyeon Kim, Takaaki Hasegawa, Yuta Sakamoto
To ensure the safety of a handle-type electric wheelchair (hereinafter, electric wheelchair), this paper describes the applicability of using a Kinect sensor. Ensuring the mobility of elderly people is a particularly important issue to be resolved. An electric wheelchair is useful as a means of transportation for elderly people. Considering that the users of electric wheelchairs are elderly people, it is important to ensure the safety of electric wheelchairs at night. To ensure the safety of an electric wheelchair at night, we constructed a hazardous object detection system using commercially available and inexpensive Kinect sensors and examined the applicability of the system...
December 18, 2017: Sensors
https://www.readbyqxmd.com/read/29245216/magnetic-resonance-imaging-of-the-spinal-cord-in-the-evaluation-of-3-patients-with-sensory-neuronopathies-diagnostic-assessment-indications-of-treatment-response-and-impact-of-autoimmunity-a-case-report
#16
Julius Birnbaum, Aliya Lalji, Ezequiel A Piccione, Izlem Izbudak
RATIONALE: Sensory neuronopathy can be a devastating peripheral nervous system disorder. Profound loss in joint position is associated with sensory ataxia, and reflects degeneration of large-sized dorsal root ganglia. Prompt recognition of sensory neuronopathies may constitute a therapeutic window to intervene before there are irreversible deficits. However, nerve-conduction studies may be unrevealing early in the disease course. In such cases, the appearance of dorsal column lesions on spinal-cord MRI can help in the diagnosis...
December 2017: Medicine (Baltimore)
https://www.readbyqxmd.com/read/29242786/radius-and-ulna-stress-fractures-in-a-patient-with-neuromyelitis-optica-a-case-report
#17
George J M Hourston, Hadyn K N Kankam, Phillip Johnston
Introduction: Stress fractures are more common in the weight-bearing bones of the lower limb and are particularly prevalent in athletes. Whereas, those of the upper limb are usually reported as unique events in rare circumstances. Case Report: We present a case of a 40-year-old White British female with neuromyelitis optica (NMO) who mobilized in a wheelchair and presented to our center in April 2016 with a week-long history of a hot, swollen, and unstable right forearm...
September 2017: Journal of Orthopaedic Case Reports
https://www.readbyqxmd.com/read/29240522/stakeholder-views-addressing-the-development-and-uptake-of-powered-wheelchair-assistive-technology
#18
Michael Gillham, Matthew Pepper, Steve Kelly, Gareth Howells
PURPOSE: The objective of this research is to identify stakeholder views with regard to the development of effective powered wheelchair assistive technologies more suited to the user and carer needs, whilst also meeting the requirements for other stakeholders, such that developers can be better guided towards producing solutions which have a better chance of getting to the market place and hence to the end user. METHOD: A questionnaire was designed to collect the views of all stakeholders and circulated to a statistically representative number of them...
December 14, 2017: Disability and Rehabilitation. Assistive Technology
https://www.readbyqxmd.com/read/29229278/the-impact-of-hoist-sling-fabrics-on-interface-pressure-whilst-sitting-in-healthy-volunteers-and-wheelchair-users-a-comparative-study
#19
J Webb, M Twiste, L A Walton, P Hogg
AIM OF THE STUDY: To evaluate the effect of three sling fabrics on gluteal interface pressure whilst sitting in a population of wheelchair users and to compare these to data previously collected in a pilot study with a healthy population. MATERIALS AND METHODS: A repeated measures experimental design was used with 32 adult wheelchair users (15 women, 17 men). Healthy population pilot study consisted of 61 participants (51 women, 10 men) recruited from staff and students at The University of Salford...
December 6, 2017: Journal of Tissue Viability
https://www.readbyqxmd.com/read/29222006/wrist-accelerometry-for-physical-activity-measurement-in-individuals-with-spinal-cord-injury-a-need-for-individually-calibrated-cut-points
#20
Laura A McCracken, Jasmin K Ma, Christine Voss, Franco H N Chan, Kathleen A Martin Ginis, Christopher R West
OBJECTIVE: To create and compare individual and group-based cut-points for wrist-accelerometry that corresponds to moderate-to-vigorous physical activity (MVPA) in people with spinal cord injury (SCI). DESIGN: Participants completed a graded treadmill-wheeling test while being assessed for oxygen consumption, wrist-acceleration vector magnitude, and spoke acceleration. Oxygen consumption was converted to SCI metabolic equivalents (SCI METS) and linear regression was applied to determine an individualized vector magnitude cut-point (counts per minute, VM-CPM) corresponding with MVPA (≥3 SCI METS)...
December 5, 2017: Archives of Physical Medicine and Rehabilitation
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