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https://www.readbyqxmd.com/read/28635570/quality-dementia-care-prerequisites-and-relational-ethics-among-multicultural-healthcare-providers
#1
Gerd Sylvi Sellevold, Veslemøy Egede-Nissen, Rita Jakobsen, Venke Sørlie
BACKGROUND: Many nursing homes appear as multicultural workplaces where the majority of healthcare providers have an ethnic minority background. This environment creates challenges linked to communication, interaction and cultural differences. Furthermore, the healthcare providers have varied experiences and understanding of what quality care of patients with dementia involves. PURPOSE: The aim of this study is to illuminate multi-ethnic healthcare providers' lived experiences of their own working relationship, and its importance to quality care for people with dementia...
January 1, 2017: Nursing Ethics
https://www.readbyqxmd.com/read/28632241/nursing-support-of-home-hospice-caregivers-on-the-day-of-patient-death
#2
Margaret F Clayton, Jennifer Hulett, Kirandeep Kaur, Maija Reblin, Andrew Wilson, Lee Ellington
PURPOSE/OBJECTIVES: To describe nurse-caregiver communication on the day of patient death.
. DESIGN: A descriptive secondary analysis of 44 audio-recorded home hospice nursing visits on day of death.
. SETTING: Nine hospices in Utah, Oregon, and Massachusetts.
. SAMPLE: 42 caregiver-patient dyads, 27 hospice nurses.
. METHODS: Transcripts of audio recordings were coded for supportive nursing communication and relative time spent in physical, psychosocial, and spiritual discussion...
July 1, 2017: Oncology Nursing Forum
https://www.readbyqxmd.com/read/28631493/awareness-and-misperceptions-of-hospice-and-palliative-care-a-population-based-survey-study
#3
Ariel Shalev, Veerawat Phongtankuel, Elissa Kozlov, Megan Johnson Shen, Ronald D Adelman, M C Reid
BACKGROUND: Despite the documented benefits of palliative and hospice care on improving patients' quality of life, these services remain underutilized. Multiple factors limit the utilization of these services, including patients' and caregivers' lack of knowledge and misperceptions. OBJECTIVES: To examine palliative and hospice care awareness, misperceptions, and receptivity among community-dwelling adults. DESIGN: Cross-sectional study. SUBJECTS: New York State residents ≥18 years old who participated in the 2016 Empire State Poll...
January 1, 2017: American Journal of Hospice & Palliative Care
https://www.readbyqxmd.com/read/28629247/obstetric-practice-patterns-in-pregnancies-complicated-by-fetal-trisomy-13-or-18
#4
Sarah K Dotters-Katz, Marcela C Smid, Cora Mcelwain, Jeffrey A Kuller, Jay Schulkin
PURPOSE: Describe practice patterns among obstetrician/gynecologists (OB/GYNs) when caring for women with pregnancy complicated by fetal trisomy 13(T13) or 18(T18), and compare these between maternal-fetal-medicine (MFM) and non-MFM providers. MATERIALS AND METHODS: We conducted an electronic survey using the American College of Obstetricians and Gynecologists database. Using simple statistics, we describe demographics and practice patterns among respondents, and compare those of MFM practitioners with non-MFM providers...
June 19, 2017: Journal of Maternal-fetal & Neonatal Medicine
https://www.readbyqxmd.com/read/28627303/the-surprise-question-in-paediatric-palliative-care-a-prospective-cohort-study
#5
Kimberley Burke, Lucy Helen Coombes, Antoinette Menezes, Anna-Karenia Anderson
BACKGROUND: The question 'would you be surprised if this patient died in the next 12-months' is widely used for identifying adult patients in the last year of life. However, this has not yet been studied in children. AIM: To assess the prognostic accuracy of the surprise question when used by a multidisciplinary team to predict survival outcomes of children with life-limiting conditions over a 3 and 12 month period. DESIGN: A prospective cohort study...
June 1, 2017: Palliative Medicine
https://www.readbyqxmd.com/read/28623155/care-toward-the-end-of-life-in-older-populations-and-its-implementation-facilitators-and-barriers-a-scoping-review
#6
REVIEW
Diane Erin Threapleton, Roger Y Chung, Samuel Y S Wong, Eliza L Y Wong, Nicole Kiang, Patsy Y K Chau, Jean Woo, Vincent C H Chung, Eng Kiong Yeoh
PURPOSE: To inform health system improvements for care of elderly populations approaching the end of life (EOL) by identifying important elements of care and implementation barriers and facilitators. DESIGN: A scoping review was carried out to identify key themes in EOL care. Articles were identified from MEDLINE, the Cochrane Library, organizational websites, and internet searches. Eligible publications included reviews, reports, and policy documents published between 2005 and 2016...
June 13, 2017: Journal of the American Medical Directors Association
https://www.readbyqxmd.com/read/28622481/hospice-visit-patterns-in-the-last-seven-days-of-life-and-the-service-intensity-add-on-payment
#7
Pedro L Gozalo, Joan M Teno, Carol Spence
BACKGROUND: Hospice in-person visits in the last week of life are critical to ensure quality of care. In 2016, The Centers for Medicare & Medicaid Services (CMS) introduced a Service Intensity Add-on (SIA) payment for in-person routine home care (RHC) visits by a registered nurse or social worker in the last 7 days of life. OBJECTIVES: The aim of the study was to examine visit patterns in the last week of life and provide SIA payment impact estimates. DESIGN/MEASUREMENTS: Hospice data from 42 volunteer hospice programs for the 6-year period of 2005-2010 were examined...
June 16, 2017: Journal of Palliative Medicine
https://www.readbyqxmd.com/read/28622348/factors-influencing-practitioner-adoption-of-carer-led-assessment-in-palliative-homecare-a-qualitative-study-of-the-use-of-the-carer-support-needs-assessment-tool-csnat
#8
Lynn Austin, Gail Ewing, Gunn Grande
INTRODUCTION: Informal caregivers play a pivotal role in supporting patients approaching the end of life. The Carer Support Needs Assessment Tool (CSNAT) is designed to facilitate person-centred assessment and support through a process that is practitioner-facilitated, but carer-led. This study explored practitioners' experiences of implementing the CSNAT in palliative homecare. METHODS: We conducted qualitative interviews/focus groups with 20 practitioners in one UK hospice homecare service (18 nurses, two healthcare assistants) before and after the implementation of the CSNAT...
2017: PloS One
https://www.readbyqxmd.com/read/28615954/response-to-lipuma-and-demarco-s-article-on-hastening-death
#9
REVIEW
Julia Zenz
The paper "Palliative care and patient autonomy: moving beyond prohibitions against hastening death" by LiPuma and DeMarco deals with an aspect of end of life care which is the source of considerable disagreement. It is important to emphasize that autonomy is not the unique feature for end of life care. There is always a medical and ethical commitment to care, i.e. beneficence and nonmaleficence. All of these aspects have to be taken into account when treating patients at the very end of life. There is considerable scientific proof indicating that most patients and families can experience a death in dignity when being cared for in palliative care or hospice units...
2017: Health Services Insights
https://www.readbyqxmd.com/read/28612712/subcutaneous-injection-induced-cellulites
#10
Kao-Chi Cheng, Po-Tsung Huang, Chiu-Shong Liu, Wen-Yuan Lin
In the hospice ward where patients are in the terminal stages of cancer, it is common practice to give them a subcutaneous injection of pain relievers to reduce their pain and make them more comfortable. Most of these patients are elderly and have low blood pressure or poor veins, which often makes it difficult to inject them because of the calcification at previous injection sites. Thus, subcutaneous injections are a convenient way to maintain analgesia and patient comfort. Our patient, a 73-year-old aboriginal woman, was diagnosed with gastric adenocarcinoma and peritoneal carcinomatosis in March, 2004...
June 2017: BioMedicine
https://www.readbyqxmd.com/read/28612352/pain-management-in-home-hospice-patients-a-retrospective-descriptive-study
#11
Cathy L Campbell, Meghan Kelly, Virginia Rovnyak
The development and evaluation of evidence-based, safe, and effective home-based pain management models for caregivers implementation is receiving greater attention in the literature because of international initiatives intended to increase the number of people who receive end-of-life care in home-based settings. The purpose of this "retrospective descriptive design" study was to describe pharmacological pain management and outcomes for 40 cancer and non-cancer patients receiving hospice care at home. While the median pain score was higher at admission in the cancer group than in the hospice care at home group, the difference was not significant at or within 48 hour of admission...
June 13, 2017: Nursing & Health Sciences
https://www.readbyqxmd.com/read/28610528/oncologists-say-hospice-is-best-place-for-blood-cancer-care
#12
(no author information available yet)
Patients with blood cancer needing end of life care are better off in a hospice than being cared for at home, according to a survey of US oncologists.
June 14, 2017: Nursing Standard
https://www.readbyqxmd.com/read/28610510/around-the-world
#13
(no author information available yet)
1. Third International Conference on Palliative Care and Hospice Nursing 21-22 June, Philadelphia, US tinyurl.com/palliative-hospice-nursing.
June 14, 2017: Nursing Standard
https://www.readbyqxmd.com/read/28610431/palliative-care-experience-in-the-last-3-months-of-life-a-quantitative-comparison-of-care-provided-in-residential-hospices-hospitals-and-the-home-from-the-perspectives-of-bereaved-caregivers
#14
Daryl Bainbridge, Hsien Seow
OBJECTIVE: This study captured the end-of-life care experiences across various settings from bereaved caregivers of individuals who died in residential hospice. METHODS: A retrospective, observational design using the CaregiverVoice survey with bereaved caregivers of patients in 22 hospices in Ontario, Canada. The survey assessed various dimensions of the patient's care experiences across multiple care settings in the last 3 months of life. RESULTS: A total of 1153 caregivers responded to the survey (44% response rate)...
January 1, 2017: American Journal of Hospice & Palliative Care
https://www.readbyqxmd.com/read/28609408/feasibility-of-the-korean-advance-directives-among-community-dwelling-elderly-persons
#15
Shinmi Kim, Sun Woo Hong, JinShil Kim
A newly developed Korean-Advance Directive (K-AD) consists of a value statement, treatment directives, and proxy appointment. It remains undetermined whether K-AD is applicable to community-dwelling persons (≥ aged 60 years). Using a descriptive study design, 275 elderly persons completed the K-AD (mean age = 77.28 ± 8.24 years). The most frequent value at the end of life was comfort dying, followed by no burden to family (23.6%). Among 4 K-AD treatment options, more than half had a preference for hospice care and had reluctance with aggressive treatment choices of cardiopulmonary resuscitation (76...
July 2017: Holistic Nursing Practice
https://www.readbyqxmd.com/read/28604196/many-people-still-fear-child-illness
#16
(no author information available yet)
One in four people show a 'worrying' lack of understanding about children's hospices and palliative care, a survey shows.
June 12, 2017: Nursing Children and Young People
https://www.readbyqxmd.com/read/28602938/-let-s-bring-her-home-first-patient-characteristics-and-place-of-death-in-specialized-pediatric-palliative-home-care
#17
Hans Ulrich Bender, Martin Bernhard Riester, Gian Domenico Borasio, Monika Führer
CONTEXT: Specialized pediatric palliative home care (SPPHC) is the main pediatric palliative care structure in Germany. Detailed data on patient characteristics and care are sparse. Describing this population in terms of diagnoses and care needs is essential for further development of palliative care services for these patients. OBJECTIVES: We asked whether the population at our center (i) was representative compared with national mortality statistics; (ii) showed differences in the clinical course among the four diagnostic categories established by the Association for Children with Terminal Conditions/Royal College of Paediatrics and Child Health (ACT/RCPCH), and (iii) was different to published populations in pediatric palliative care regarding diagnoses, care and place of death...
June 7, 2017: Journal of Pain and Symptom Management
https://www.readbyqxmd.com/read/28602119/improving-the-quality-of-end-of-life-care-in-pediatric-oncology-patients-through-the-early-implementation-of-palliative-care
#18
Lauren Ranallo
Providing end-of-life care to children with cancer is most ideally achieved by initiating palliative care at the time of diagnosis, advocating for supportive care throughout the treatment trajectory, and implementing hospice care during the terminal phase. The guiding principles behind offering palliative care to pediatric oncology patients are the prioritization of providing holistic care and management of disease-based symptoms. Pediatric hematology-oncology nurses and clinicians have a unique responsibility to support the patient and family unit and foster a sense of hope, while also preparing the family for the prognosis and a challenging treatment trajectory that could result in the child's death...
June 1, 2017: Journal of Pediatric Oncology Nursing: Official Journal of the Association of Pediatric Oncology Nurses
https://www.readbyqxmd.com/read/28590165/the-complex-relationship-between-household-income-of-family-caregivers-access-to-palliative-care-services-and-place-of-death-a-national-household-population-survey
#19
Miriam J Johnson, Victoria Allgar, Hong Chen, Laurie Dunn, Una Macleod, David C Currow
BACKGROUND: Previous work shows that more affluent patients with cancer are more likely to die at home, whereas those dying from non-cancer conditions are more likely to die in hospital. Family caregivers are an important factor in determining place of death. AIM: To investigate associations between family caregivers' household income, patients' access to specialist palliative care and place of patients' death, by level of personal end-of-life care. DESIGN: A cross-sectional community household population survey...
June 1, 2017: Palliative Medicine
https://www.readbyqxmd.com/read/28590157/pilot-randomised-controlled-trial-of-focused-narrative-intervention-for-moderate-to-severe-depression-in-palliative-care-patients-discern-trial
#20
Mari Lloyd-Williams, Christopher Shiels, Jacqueline Ellis, Katharine Abba, Edward Gaynor, Kenneth Wilson, Christopher Dowrick
BACKGROUND: Depression is poorly detected and sub-optimally managed in palliative care patients, and few trials of psychosocial interventions have been carried out in this group of patients. AIMS: A pilot trial to determine the effect of a focused narrative intervention on depression in palliative care patients when used in addition to usual care. DESIGN: Patients scoring 10 or higher on Patient Health Questionnaire-9 randomised to focused narrative intervention in addition to usual care or usual care only and followed up at 2, 4 and 6 weeks...
June 1, 2017: Palliative Medicine
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