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death with dignity

Leo H Wang, Michael A Elliott, Lily Jung Henson, Elba Gerena-Maldonado, Susan Strom, Sharon Downing, Jennifer Vetrovs, Paige Kayihan, Piper Paul, Kate Kennedy, Joshua O Benditt, Michael D Weiss
OBJECTIVES: To describe the amyotrophic lateral sclerosis (ALS) patients who sought medication under the Washington State Death with Dignity (DWD) Act since its inception in 2009. METHODS: Chart review at 3 tertiary medical centers in the Seattle/Puget Sound region and comparison to publicly available data of ALS and all-cause DWD cohorts from Washington and Oregon. RESULTS: In Washington State, 39 patients with ALS requested DWD from the University of Washington, Virginia Mason, and Swedish Medical Centers beginning in 2009...
October 21, 2016: Neurology
Mark Corbett
Conceivably, in an ideal world, all patients with a life-limiting illness would receive optimal hospice and palliative care so that no one would ever wish to hasten their own death. The reality, however, is that despite provision of optimal hospice and palliative care, individuals with terminal illness experience suffering, loss of meaning, or deterioration in quality of life to the extent where they express the desire to expedite the dying process. While there has been extensive discussion surrounding physician-assisted death (PAD), there has been less attention paid to the practice of voluntary stopping eating and drinking (VSED) near the end of life...
2016: Narrative Inquiry in Bioethics
Franca Benini, Roberta Vecchi, Pierina Lazzarin, Momcilo Jankovic, Luciano Orsi, Luca Manfredini, Paola Drigo, Valentina Sellaroli, Michele Gangemi, Marco Spizzichino, Marcello Orzalesi
PURPOSE: The death of a child is a devastating and tragic event for all those involved. This charter aims to help healthcare workers and people assisting terminally ill children to recognize some important rights of the child, with some related suggestions. We consider it important to have a trace of this process, based on the skillfulness of long-lasting experts. METHODS: In September 2012, a group of professionals working with children affected by incurable illness in Italy launched a project to formulate the charter...
October 8, 2016: Tumori
Yaming Li, Jianhui Li
Death with dignity is a significant issue in modern bioethics. In modern healthcare, the wide use of new technologies at the end of life has caused heated debate on how to protect human dignity. The key point of contention lies in the different understandings of human dignity and the dignity of death. Human dignity has never been a clear concept in Western ethical explorations, and the dignity of death has given rise to more confusions. Although there is no such term as "dignity" in Confucian ethics, there are discussions of a number of ideas related to human dignity and the dignity of death...
October 5, 2016: Theoretical Medicine and Bioethics
Denise J Campbell, Jonathan C Craig, David W Mudge, Fiona G Brown, Germaine Wong, Allison Tong
♦ Background: Peritoneal dialysis (PD) is recommended for adults with residual kidney function and without significant comorbidities. However, peritonitis is a serious and common complication that is associated with hospitalization, pain, catheter loss, and death. This study aims to describe the beliefs, needs, and experiences of PD patients about peritonitis, to inform the training, support, and care of these patients. ♦ Methods: Qualitative semi-structured interviews were conducted with 29 patients from 3 renal units in Australia who had previous or current experience of PD...
September 28, 2016: Peritoneal Dialysis International: Journal of the International Society for Peritoneal Dialysis
Olivia Ibáñez-Masero, Ángela M Ortega-Galán, M Inés Carmona-Rega, M Dolores Ruiz-Fernández, José Cabrera-Troya, Rogelio García-Cisneros, Fernando Relinque Medina
OBJECTIVE: To explore the meaning of dying with dignity from the perspective of the direct witnesses who have accompanied this process in dying people from Andalusia. METHOD: Phenomenological study conducted in different centres, which including analysing the transcriptions of the dialogues from discussion groups with 40 participants in five provinces in Southern Spain. The data was analysed using the Van Manen proposal and Atlas Ti 7.0 program was applied as a software tool...
August 10, 2016: Enfermería Clínica
Murat Ersel
The right to water and sanitation is an inextricable human right. Water and sanitation are critical determinants for survival in the initial stages of a disaster. An adequate amount of safe water is necessary to prevent death from dehydration, to reduce the risk of water-related disease and to provide for consumption, cooking and personal and domestic hygienic requirements. The main objective of WASH - (Water supply, Sanitation and Hygenie promotion) programmes in disasters is to reduce the transmission of faeco-oral diseases and exposure to disease-bearing vectors through the promotion of: good hygiene practices, the provision of safe drinking water, the reduction of environmental health risks, the conditions that allow people to a healthy life with dignity, comfort and security...
October 2015: Turkish Journal of Emergency Medicine
Linda Sellin, Margareta Asp, Tuula Wallsten, Lena Wiklund Gustin
The body of knowledge regarding health and recovery as experienced by patients at risk of suicide is limited. More research is needed into the meaning of recovery and what strengthens the desire to live. The aim of this study was to describe the phenomenon of recovery in a context of nursing care as experienced by persons at risk of suicide. In line with a reflective lifeworld research approach, 14 patients from a psychiatric clinic in Sweden participated in phenomenon-oriented interviews. Data were analyzed to describe the essence of the phenomenon...
July 15, 2016: International Journal of Mental Health Nursing
Jorge O Selandari, María S Ciruzzi, Adriel J Roitman, Fernanda Ledesma, Célica Menéndez, Hernán O García
INTRODUCTION: The possibility of sustaining life functions makes it difficult to distinguish between a dying patient and a patient with chances of survival, raising a dilemma for everyone around them. On the one side, continuing with life support techniques that would only extend an irreversible process and result in physical and psychological damage and harm their dignity. On the other side, withholding or withdrawing life support without an adequate reflection and diagnostic-therapeutic effort which may lead to the death of a potentially recoverable child...
August 1, 2016: Archivos Argentinos de Pediatría
Alexander Morgan Capron, Francis L Delmonico, Beatriz Dominguez-Gil, Dominique Elizabeth Martin, Gabriel M Danovitch, Jeremy Chapman
Governmental and private programs that pay next of kin who give permission for the removal of their deceased relative's organs for transplantation exist in a number of countries. Such payments, which may be given to the relatives or paid directly for funeral expenses or hospital bills unrelated to being a donor, aim to increase the rate of donation. The Declaration of Istanbul Custodian Group-in alignment with the World Health Organization Guiding Principles and the Council of Europe Convention Against Trafficking in Human Organs-has adopted a new policy statement opposing such practices...
September 2016: Transplantation
Sally Dalton-Brown
No single issue has dominated health practitioners' ethical debates in 2014 in Australia, but a controversial decision on gene patenting and the media focus on "Dr. Death," euthanasia campaigner Dr. Philip Nitschke, have given new life to these two familiar (and global) debates. Currently a dying with dignity bill, drafted by the Australian Green Party, is under examination. The Senate inquiry into the bill received more than 663 submissions, with 57% opposed and 43% in support of the bill, which has now been referred to a Senate committee...
July 2016: Cambridge Quarterly of Healthcare Ethics: CQ: the International Journal of Healthcare Ethics Committees
Eva E Bolt, H Roeline W Pasman, Dorly J H Deeg, Bregje D Onwuteaka-Philipsen
OBJECTIVES: To determine whether older people with advance directive for euthanasia (ADEs) are stable in their advance desire for euthanasia in the last years of life, how frequently older people with an ADE eventually request euthanasia, and what factors determine this. DESIGN: Mortality follow-back study nested in a cohort study. SETTING: The Netherlands. PARTICIPANTS: Proxies of deceased members of a cohort representative of Dutch older people (n = 168) and a cohort of people with advance directives (n = 154)...
August 2016: Journal of the American Geriatrics Society
Muhammad M Hammami, Safa Hammami, Hala A Amer, Nesrine A Khodr
BACKGROUND: Understanding culture-and sex-related end-of-life preferences is essential to provide quality end-of-life care. We have previously explored end-of-life choices in Saudi males and found important culture-related differences and that Q-methodology is useful in identifying intraculture, opinion-based groups. Here, we explore Saudi females' end-of-life choices. METHODS: A volunteer sample of 68 females rank-ordered 47 opinion statements on end-of-life issues into a nine-category symmetrical distribution...
2016: Patient Preference and Adherence
Narges Sadeghi, Marzieh Hasanpour, Mohamad Heidarzadeh, Aliakbar Alamolhoda, Elisha Waldman
CONTEXT: The hospital is a place full of distress and questions about the meaning of life. The death of a child can cause a spiritual struggle and crisis. Therefore, it is necessary for health care providers in the neonatal intensive care unit (NICU) to assess the spiritual needs of families that have lost a child. OBJECTIVES: The purpose of this study was to explore the spiritual needs of families in Iran at the end of their baby's life and through bereavement in the NICU...
July 2016: Journal of Pain and Symptom Management
Ellen Fink-Samnick
PURPOSE AND OBJECTIVES: This article: PRIMARY PRACTICE SETTINGS(S): : Applicable to all health care sectors where case management is practiced. FINDINGS/CONCLUSION: Few topics are more intimate and multifaceted for case managers than engaging with today's culturally diverse patient populations around end-of-life processes. The already prominent focus of this issue has been further elevated by a series of events to receive public attention...
July 2016: Professional Case Management
Suzanne K Powell
Ethical issues and dilemmas span from conception to the grave. The interconnectedness of advocacy, ethics, and end of life/death with dignity are woven into this issue of the Professional Case Management journal. Case management is a critical member of the team when these discussions arise. And knowledge of the issues, along with legal, ethical, and professional codes, is highlighted.
July 2016: Professional Case Management
Kathleen Greenway, Paula Johnson
Rationale and key points This article provides nurses with information about how to care for a patient after death, and support their family and loved ones in the community setting. ▶ Care after death involves supporting the family and significant others, and providing personal care to the patient. ▶ It is important to ensure privacy, dignity and respect of the deceased and to recognise this is a sensitive and difficult time for families. ▶ Staff undertaking care after death should be offered support...
May 11, 2016: Nursing Standard
James J Sciubba
Past the point of no longer being able to control malignancies of the oral cavity and head and neck, the decision-making process must shift to one that essentially concerns itself with creating comfort for the patient. The role of family, physicians and other care givers becomes, in many ways more directed as active neoplasia-related concerns become less relevant. Challenges remain significant in terms of continuing management of prior treatment-related side effects and functional impairments to providers concerning themselves with maintenance of dignity, honoring the wishes of the family and creating full understanding on the part of all parties concerned what the goals of treatment cessation and palliation are key as death approaches...
May 19, 2016: Oral Diseases
Carole Ramsey
The world's first legal euthanasia death occurred in the Australian City of Darwin on Sunday 22 September 1996 when Bob Dent ended his life under the Northern Territory's short-lived Rights of the Terminally Ill Act 1995. Dent's death intensified argument about euthanasia in Australia, transforming the debate from a textbook discussion in social ethics into a vigorous and divisive social dispute. The day before he ended his life, Dent dictated a letter, written down by his wife. This description of his experience with terminal illness is graphic-the letter, his last effort to bring the plight of those living with terminal illness to public consciousness...
March 2016: Monash Bioethics Review
Nikolas T Nikas, Dorinda C Bordlee, Madeline Moreira
Despite seeming uniformity in the law, end-of-life controversies have highlighted variations among state brain death laws and their interpretation by courts. This article provides a survey of the current legal landscape regarding brain death in the United States, for the purpose of assisting professionals who seek to formulate or assess proposals for changes in current law and hospital policy. As we note, the public is increasingly wary of the role of organ transplantation in determinations of death, and of the variability of brain death diagnosing criteria...
June 2016: Journal of Medicine and Philosophy
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