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death dying and reflective practice

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https://www.readbyqxmd.com/read/28899296/caring-science-conscious-dying-an-emerging-metaparadigm
#1
William Rosa, Tarron Estes, Jean Watson
Caring science is an extant theory of human relationship, guiding the profession of nursing with the understanding and application of a moral-ethical praxis that promotes, protects, and provides human dignity throughout the life continuum. Over the past 30 or more years, caring science has transformed nursing by calling for a heightened ethical perspective of human dignity in how nurses practice, educate, research, and evolve the profession. Conscious dying is a framework rooted in a human caring ontology, which strives to deepen the nurse healer's awareness in tending to a patient's dying and death, returning death to its sacred place in the cycle of life...
January 2017: Nursing Science Quarterly
https://www.readbyqxmd.com/read/28756754/never-say-die-death-euphemisms-misunderstandings-and-their-implications-for-practice
#2
Deborah Rawlings, Jennifer J Tieman, Christine Sanderson, Deborah Parker, Lauren Miller-Lewis
BACKGROUND: A Massive Open Online Course (MOOC) on death and dying was conducted to open the dialogue around death and dying. In one activity, participants were asked to engage with language and to think of alternative words (or euphemisms) that are used to describe death. AIM: To reflect from a nursing perspective how language enables and sometimes disguises important messages and conversations. METHODS: Four hundred and seventy one participants provided 3053 euphemisms...
July 2, 2017: International Journal of Palliative Nursing
https://www.readbyqxmd.com/read/28748639/how-nurses-cope-with-patient-death-a-systematic-review-and-qualitative-meta-synthesis
#3
REVIEW
Ruishuang Zheng, Susan Fiona Lee, Melissa Jane Bloomer
AIMS AND OBJECTIVES: To review literature on nurses' coping strategies with patient death. BACKGROUND: dealing with the loss of a patient was viewed as one of the most demanding and challenging encounters in clinical practice. Those nurses who are not competent in coping with patient death may be inadequate in supporting dying patients and their family members, and minimize the quality of end-of-life care. To get a broader understanding of how nurses cope with patient death and to develop meaningful and effective interventions, a systematic review which would help underpin the multidimensional approaches is needed...
July 26, 2017: Journal of Clinical Nursing
https://www.readbyqxmd.com/read/28673257/experiences-of-end-of-life-amongst-family-carers-of-people-with-advanced-dementia-longitudinal-cohort-study-with-mixed-methods
#4
Kirsten J Moore, Sarah Davis, Anna Gola, Jane Harrington, Nuriye Kupeli, Victoria Vickerstaff, Michael King, Gerard Leavey, Irwin Nazareth, Louise Jones, Elizabeth L Sampson
BACKGROUND: Many studies have examined the mental health of carers of people with dementia. Few have examined their experiences in the advanced stages of disease and into bereavement. We aimed to understand the experiences of carers during advanced dementia exploring the links between mental health and experiences of end of life care. METHODS: Mixed methods longitudinal cohort study. Thirty-five family carers of people with advanced dementia (6 at home, 29 in care homes) were recruited and assessed monthly for up to nine months or until the person with dementia died, then at two and seven months into bereavement...
July 3, 2017: BMC Geriatrics
https://www.readbyqxmd.com/read/28663341/determinants-of-hospital-death-in-haematological-cancers-findings-from-a-qualitative-study
#5
Dorothy McCaughan, Eve Roman, Alexandra G Smith, Anne Garry, Miriam Johnson, Russell Patmore, Martin Howard, Debra A Howell
OBJECTIVES: Current UK health policy promotes enabling people to die in a place they choose, which for most is home. Despite this, patients with haematological malignancies (leukaemias, lymphomas and myeloma) are more likely to die in hospital than those with other cancers, and this is often considered a reflection of poor quality end-of-life care. This study aimed to explore the experiences of clinicians and relatives to determine why hospital deaths predominate in these diseases. METHODS: The study was set within the Haematological Malignancy Research Network (HMRN-www...
June 29, 2017: BMJ Supportive & Palliative Care
https://www.readbyqxmd.com/read/28552003/-i-m-only-dealing-with-the-acute-issues-how-medical-ward-busyness-constrains-care-of-the-dying
#6
Lisa S Chan, Mary Ellen Macdonald, Franco A Carnevale, S Robin Cohen
Acute hospital units are a common location of death. Curative characteristics of the acute medical setting make it difficult to provide adequate palliative care; these characteristics include an orientation to life-prolonging treatment, an emphasis on routine or task-oriented care and a lack of priority on emotional engagement with patients. Indeed, research shows that dying patients in acute medical units often experience unmet needs at the end of life, including uncontrolled symptoms (e.g. pain, breathlessness), inadequate emotional support and poor communication...
May 1, 2017: Health (London)
https://www.readbyqxmd.com/read/28386983/investigating-the-factors-that-affect-the-communication-of-death-related-bad-news-to-people-with-intellectual-disabilities-by-staff-in-residential-and-supported-living-services-an-interview-study
#7
I Tuffrey-Wijne, T Rose
BACKGROUND: Most staff working in intellectual disability services will be confronted with people with intellectual disabilities who need support around death, dying and bereavement. Previous studies suggest that intellectual disability staff tend to protect clients from knowing about death and avoid communication about death. The aims of this study were to gain further insight into the individual, organisational and contextual factors that affect the communication of death-related bad news to people with intellectual disabilities by intellectual disability staff and to develop guidelines for services to enable appropriate communication with clients about death and dying...
August 2017: Journal of Intellectual Disability Research: JIDR
https://www.readbyqxmd.com/read/28324205/levels-of-intervention-how-are-they-used-in-quebec-hospitals
#8
Marjolaine Frenette, Jocelyne Saint-Arnaud, Karim Serri
In order to promote better practices and communication around end-of-life decision-making, several Canadian hospitals in the province of Quebec have developed a tool called "Levels of Intervention" (LOI). No work to date has been published demonstrating improvement since these forms were implemented. The purpose of the present study was to obtain information about the use of LOI forms across Quebec hospitals and to identify gaps in practice as well as areas for improvement. A retrospective study was undertaken of 299 charts of patients who had died in three Quebec hospitals with a LOI ordered...
June 2017: Journal of Bioethical Inquiry
https://www.readbyqxmd.com/read/28100140/human-rights-and-dignity-behind-bars
#9
Tina Maschi, Marina Richter
Death and dying in prisons constitute a topic of growing importance across the globe. Based on the contributions made in this special issue, we reflect on current debates and outline recommendations for dialogue and practice. Scientific dialogue across the Atlantic, and across the globe, provides insights into different national carceral systems and their ways of dealing with end of life behind bars. At the same time, the comparison also helps to identify basic needs and practices that can work in various settings...
January 2017: Journal of Correctional Health Care
https://www.readbyqxmd.com/read/27989403/-speaking-about-life-and-death-in-neonatology-how-can-communication-with-families-be-optimized
#10
T Pennaforte, A Moussa, A Janvier
Technological progress and improved clinical knowledge have increased survival of neonates who would previously have died. Survival is sometimes accompanied by a risk of short- or long-term adverse outcomes, which may lead to complex decisions about withholding or withdrawing life-sustaining interventions. These decisions are among the most difficult decisions in pediatric practice. They also involve communicating with parents and are emotionally charged. Many articles examining end-of-life decisions in neonatology state the need for healthcare providers to be caring, compassionate, and human without offering clear, practical advice...
February 2017: Archives de Pédiatrie: Organe Officiel de la Sociéte Française de Pédiatrie
https://www.readbyqxmd.com/read/27845612/between-east-and-west-a-diachronic-overview-of-finnish-death-culture
#11
Maija Butters
Finland holds a unique place in the geographical and cultural map of Europe by being situated between the East and the West. This article will offer a historical overview of Finland's death culture from the point of view of the various religious and ideological practices that reflect influence from these two sides. I also explore the factors that may explain the Lutheran Church's hegemony over death and dying in Finland.
January 2017: Death Studies
https://www.readbyqxmd.com/read/27531449/advance-care-planning-in-norwegian-nursing-homes-who-is-it-for
#12
Lisbeth Thoresen, Rolf Ahlzén, Kari Nyheim Solbrække
Advance care planning (ACP) is an international concept for improving patient autonomy and communication in the context of anticipated deterioration and end-of-life care. In a preparatory conversation, health care professionals facilitate one or more conversations where nursing home residents are invited to reflect on, and articulate wishes and preferences concerning future medical treatment and end-of-life care. Our aim with this study was to increase knowledge of existing ACP practices in Norwegian nursing homes...
August 2016: Journal of Aging Studies
https://www.readbyqxmd.com/read/27525361/experiences-and-expressions-of-spirituality-at-the-end-of-life-in-the-intensive-care-unit
#13
Marilyn Swinton, Mita Giacomini, Feli Toledo, Trudy Rose, Tracy Hand-Breckenridge, Anne Boyle, Anne Woods, France Clarke, Melissa Shears, Robert Sheppard, Deborah Cook
RATIONALE: The austere setting of the intensive care unit (ICU) can suppress expressions of spirituality. OBJECTIVES: To describe how family members and clinicians experience and express spirituality during the dying process in a 21-bed medical-surgical ICU. METHODS: Reflecting the care of 70 dying patients, we conducted 208 semistructured qualitative interviews with 76 family members and 150 clinicians participating in the Three Wishes Project...
January 15, 2017: American Journal of Respiratory and Critical Care Medicine
https://www.readbyqxmd.com/read/27435980/the-impact-of-existential-vulnerability-for-nursing-home-doctors-in-end-of-life-care-a-focus-group-study
#14
Kristian Jansen, Sabine Ruths, Kirsti Malterud, Margrethe Aase Schaufel
OBJECTIVE: Explore the impact of existential vulnerability for nursing home doctors' experiences with dying patients and their families. METHODS: We conducted a qualitative study based on three focus group interviews with purposive samples of 17 nursing home doctors. The interviews were audio-recorded, transcribed, and analyzed with systematic text condensation. RESULTS: Nursing home doctors experienced having to balance treatment compromises in order to assist patients' and families' preparation for death, with their sense of professional conduct...
July 12, 2016: Patient Education and Counseling
https://www.readbyqxmd.com/read/27388766/an-ethnographic-study-of-strategies-to-support-discussions-with-family-members-on-end-of-life-care-for-people-with-advanced-dementia-in-nursing-homes
#15
MULTICENTER STUDY
Geena Saini, Elizabeth L Sampson, Sarah Davis, Nuriye Kupeli, Jane Harrington, Gerard Leavey, Irwin Nazareth, Louise Jones, Kirsten J Moore
BACKGROUND: Most people with advanced dementia die in nursing homes where families may have to make decisions as death approaches. Discussions about end-of-life care between families and nursing home staff are uncommon, despite a range of potential benefits. In this study we aimed to examine practices relating to end-of-life discussions with family members of people with advanced dementia residing in nursing homes and to explore strategies for improving practice. METHODS: An ethnographic study in two nursing homes where the Compassion Intervention was delivered...
July 7, 2016: BMC Palliative Care
https://www.readbyqxmd.com/read/27266749/storyboarding-as-an-aid-to-learning-about-death-in-children-s-nursing
#16
Yvonne Dexter
The sudden or anticipated death of a child is one of the most challenging and unique experiences that children's nursing students will encounter in practice. There is evidence to suggest that the effect this can have on a practitioner can affect quality of care. Although education for nurses about dealing with death has been studied, there is limited research into the education of those working with dying children and how effective it is in preparing them to deal with the situation. This deficit presents those involved in children's nurse education with a significant challenge and an opportunity to be innovative...
June 8, 2016: Nursing Children and Young People
https://www.readbyqxmd.com/read/27168250/the-transformation-process-in-nurses-caring-for-dying-patients
#17
Ching-Chi Huang, Jih-Yuan Chen, Hsien-Hsien Chiang
BACKGROUND: Despite the recent increase in attention to end-of-life hospice care, little empirical evidence regarding the process of emotional or mental transformation in caregivers is available. PURPOSE: This study explores the transformative process that occurs in nurses because of the spiritual suffering and conflict associated with after caring for dying patients. METHODS: A phenomenological approach was used to investigate eight nurses (27-40 years old) working in the hospice ward of a medical center in Taipei...
June 2016: Journal of Nursing Research: JNR
https://www.readbyqxmd.com/read/27045734/death-and-the-oldest-old-attitudes-and-preferences-for-end-of-life-care-qualitative-research-within-a-population-based-cohort-study
#18
Jane Fleming, Morag Farquhar, Carol Brayne, Stephen Barclay
INTRODUCTION: Increasing longevity means more people will be dying in very old age, but little is known about the preferences of the 'oldest old' regarding their care at the end of life. AIMS: To understand very old people's preferences regarding care towards the end of life and attitudes towards dying, to inform policy and practice. METHODS: Qualitative data collection for n = 42 population-based cohort study participants aged 95-101 (88% women, 42% in long-term-care): topic-guided interviews with n = 33 participants and n = 39 proxy informants, most with both (n = 30: 4 jointly + separate interviews for 26 dyads)...
2016: PloS One
https://www.readbyqxmd.com/read/27033962/resident-reflections-on-end-of-life-education-a-mixed-methods-study-of-the-3-wishes-project
#19
J Centofanti, M Swinton, J Dionne, A Barefah, A Boyle, A Woods, M Shears, D Heels-Ansdell, D Cook
OBJECTIVE: The objectives of this study were to describe residents' experiences with end-of-life (EOL) education during a rotation in the intensive care unit (ICU), and to understand the possible influence of the 3 Wishes Project. DESIGN: We enrolled dying patients, their families and 1-3 of their clinicians in the 3 Wishes Project, eliciting and honouring a set of 3 wishes to bring peace to the final days of a critically ill patient's life, and ease the grieving process for families...
March 31, 2016: BMJ Open
https://www.readbyqxmd.com/read/26567116/end-of-life-decision-making-of-terminally-ill-cancer-patients-in-a-tertiary-cancer-center-in-shanghai-china
#20
Xiaoli Gu, Menglei Chen, Minghui Liu, Zhe Zhang, Wenwu Cheng
PURPOSE: Different countries have various decision-making practices, which are formalized according to laws, rules, traditions, religious beliefs, and ethical views of different cultural backgrounds. We investigated the characteristics and factors associated with the decision-making details in terminally ill cancer patients in a tertiary cancer center in Shanghai, China. METHOD: A single center, retrospective study was performed among advanced cancer patients who died between March 2007 and December 2013 in ward at Palliative Care Unit, Fudan University Shanghai Cancer Center...
May 2016: Supportive Care in Cancer: Official Journal of the Multinational Association of Supportive Care in Cancer
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