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Participatory action research

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https://www.readbyqxmd.com/read/27912783/exploring-levers-and-barriers-to-accessing-primary-care-for-marginalised-groups-and-identifying-their-priorities-for-primary-care-provision-a-participatory-learning-and-action-research-study
#1
Patrick O'Donnell, Edel Tierney, Austin O'Carroll, Diane Nurse, Anne MacFarlane
BACKGROUND: The involvement of patients and the public in healthcare has grown significantly in recent decades and is documented in health policy documents internationally. Many benefits of involving these groups in primary care planning have been reported. However, these benefits are rarely felt by those considered marginalised in society and they are often excluded from participating in the process of planning primary care. It has been recommended to employ suitable approaches, such as co-operative and participatory initiatives, to enable marginalised groups to highlight their priorities for care...
December 3, 2016: International Journal for Equity in Health
https://www.readbyqxmd.com/read/27892824/experiences-of-korean-mothers-of-children-with-cancer-a-photovoice-study
#2
Min Ah Kim, Jaehee Yi, Jina Sang, Soo Hyun Kim, InYoung Heo
Using Photovoice, a participatory action research methodology, we investigated Korean mothers' lives postdiagnosis of their child with cancer. Photovoice was used to understand the mothers' perceptions of how they have adapted to their children's illnesses. Five mothers of children with cancer participated in five sessions of the Photovoice project, during which they took and shared photographs and narratives about their experiences and joined weekly group discussions on their selected themes. The following themes and subthemes emerged: "What I would like to do (taking a break, socializing with friends, spending time with other family members, developing my career)," "My child and food (whatever my child wants to eat, love of family)," "My days for my child (doing what my child wants to do, being a playmate, changing for my child)," and "Power sources for me (family, courage of children, mom is strong, hope)...
November 28, 2016: Journal of Psychosocial Oncology
https://www.readbyqxmd.com/read/27867262/colonial-legacy-and-the-experience-of-first-nations-women-in-cervical-cancer-screening-a-canadian-multi-community-study
#3
Pamela Wakewich, Brianne Wood, Crystal Davey, Ashlie Laframboise, Ingeborg Zehbe
Regular Papanicolaou (Pap) screening has dramatically reduced cervical cancer incidence in Canada since the 1950s. However, Indigenous women's rates of cervical cancer remain disproportionately high, a factor which is not acknowledged in national media or in educational materials reporting Canada's new cervical cancer screening guidelines. Here, we present findings from a cervical cancer screening initiative in Northwestern Ontario. Based on participatory action research, we worked with 10 First Nations communities in the Robinson Superior Treaty area to increase awareness of cervical cancer risk, develop culturally sensitive tools for screening and education and test the efficacy of human papillomavirus (HPV) self-sampling as an alternative to Pap cytology...
January 1, 2016: Critical Public Health
https://www.readbyqxmd.com/read/27867211/teaching-tools-to-engage-anishinaabek-first-nations-women-in-cervical-cancer-screening-report-of-an-educational-workshop
#4
Ingeborg Zehbe, Brianne Wood, Pamela Wakewich, Marion Maar, Nicholas Escott, Naana Jumah, Julian Little
OBJECTIVE: To explore educational strategies for engaging First Nations women in Canada to attend cervical cancer screening. DESIGN: Within a participatory action research framework, semi-structured interviews with health-care providers in First Nations communities revealed that education about the value of screening is perceived as being a key factor to promote cervical cancer screening. SETTING: To obtain feedback from workshop informants, a 1-day educational workshop was held to identify appropriate educational intervention strategies, which would be applied in a forthcoming randomised controlled cervical screening trial...
April 1, 2016: Health Education Journal
https://www.readbyqxmd.com/read/27846834/exploring-resistance-to-implementation-of-welfare-technology-in-municipal-healthcare-services-a-longitudinal-case-study
#5
Etty R Nilsen, Janne Dugstad, Hilde Eide, Monika Knudsen Gullslett, Tom Eide
BACKGROUND: Industrialized and welfare societies are faced with vast challenges in the field of healthcare in the years to come. New technological opportunities and implementation of welfare technology through co-creation are considered part of the solution to this challenge. Resistance to new technology and resistance to change is, however, assumed to rise from employees, care receivers and next of kin. The purpose of this article is to identify and describe forms of resistance that emerged in five municipalities during a technology implementation project as part of the care for older people...
November 15, 2016: BMC Health Services Research
https://www.readbyqxmd.com/read/27842495/effectiveness-of-the-empower-par-intervention-in-improving-clinical-outcomes-of-type-2-diabetes-mellitus-in-primary-care-a-pragmatic-cluster-randomised-controlled-trial
#6
Anis Safura Ramli, Sharmini Selvarajah, Maryam Hannah Daud, Jamaiyah Haniff, Suraya Abdul-Razak, Tg Mohd Ikhwan Tg-Abu-Bakar-Sidik, Mohamad Adam Bujang, Boon How Chew, Thuhairah Rahman, Seng Fah Tong, Asrul Akmal Shafie, Verna K M Lee, Kien Keat Ng, Farnaza Ariffin, Hasidah Abdul-Hamid, Md Yasin Mazapuspavina, Nafiza Mat-Nasir, Chun W Chan, Abdul Rahman Yong-Rafidah, Mastura Ismail, Sharmila Lakshmanan, Wilson H H Low
BACKGROUND: The chronic care model was proven effective in improving clinical outcomes of diabetes in developed countries. However, evidence in developing countries is scarce. The objective of this study was to evaluate the effectiveness of EMPOWER-PAR intervention (based on the chronic care model) in improving clinical outcomes for type 2 diabetes mellitus using readily available resources in the Malaysian public primary care setting. METHODS: This was a pragmatic, cluster-randomised, parallel, matched pair, controlled trial using participatory action research approach, conducted in 10 public primary care clinics in Malaysia...
November 14, 2016: BMC Family Practice
https://www.readbyqxmd.com/read/27836512/improving-community-health-through-marketing-exchanges-a-participatory-action-research-study-on-water-sanitation-and-hygiene-in-three-melanesian-countries
#7
D J Barrington, S Sridharan, S G Saunders, R T Souter, J Bartram, K F Shields, S Meo, A Kearton, R K Hughes
Diseases related to poor water, sanitation and hygiene (WaSH) are major causes of mortality and morbidity. While pursuing marketing approaches to WaSH to improve health outcomes is often narrowly associated with monetary exchange, marketing theory recognises four broad marketing exchange archetypes: market-based, non-market-based, command-based and culturally determined. This diversity reflects the need for parameters broader than monetary exchange when improving WaSH. This study applied a participatory action research process to investigate how impoverished communities in Melanesian urban and peri-urban informal settlements attempt to meet their WaSH needs through marketing exchange...
December 2016: Social Science & Medicine
https://www.readbyqxmd.com/read/27833398/intersections-of-critical-systems-thinking-and-community-based-participatory-research-a-learning-organization-example-with-the-autistic-community
#8
Dora M Raymaker
Critical systems thinking (CST) and community based participatory research (CBPR) are distinct approaches to inquiry which share a primary commitment to holism and human emancipation, as well as common grounding in critical theory and emancipatory and pragmatic philosophy. This paper explores their intersections and complements on a historical, philosophical, and theoretical level, and then proposes a hybrid approach achieved by applying CBPR's principles and considerations for operationalizing emancipatory practice to traditional systems thinking frameworks and practices...
October 2016: Systemic Practice and Action Research
https://www.readbyqxmd.com/read/27827283/evaluation-of-the-assessment-and-documentation-of-chronic-wounds-in-residential-social-care-in-the-czech-republic
#9
S Saibertová, A Pokorná
OBJECTIVE: Accurate evaluation of non-healing, chronic wounds followed by the selection of an appropriate therapeutic strategy is a must for the foundation of health-care management. Assessment of non-healing chronic wounds in clinical practice in the Czech Republic is not standardised in acute care settings or in residential social care facilities. The aim of the study was to analyse the methods being used to assess non-healing, chronic wounds in residential social services in the Czech Republic, where more patients with chronic wounds are present because of the increasing incidence of wounds in old age...
November 2, 2016: Journal of Wound Care
https://www.readbyqxmd.com/read/27822876/leaves-imitate-trees-minnesota-hmong-concepts-of-heredity-and-applications-to-genomics-research
#10
Kathleen A Culhane-Pera, MaiKia Moua, Pachia Vue, Kang Xiaaj, May Xia Lo, Robert J Straka
Historically, Hmong refugees in the USA were distrustful of Western medicine, medicines, and medical research due to concerns about harm and experimentation. Current Hmong concerns about genomics research are not well known. Our research aims were to identify cultural and ethical issues about conducting genomic studies in the Hmong community. Using a community-based participatory action process, the West Side Hmong Genomics Research Board conducted a qualitative exploratory research study that included semistructured interviews with five Hmong key informants and five focus groups with 42 Hmong adults near Saint Paul, Minnesota...
November 7, 2016: Journal of Community Genetics
https://www.readbyqxmd.com/read/27821125/advancing-services-for-adult-adhd-the-development-of-the-adhd-star-as-a-framework-for-multidisciplinary-interventions
#11
Marios Adamou, Katharine Graham, Joy MacKeith, Sara Burns, Lisa-Marie Emerson
BACKGROUND: Attention Deficit Hyperactivity Disorder is prevalent in adulthood, resulting in serious impairment across multiple domains of living. Despite clinical guidance recommendations, the relative infancy of research on service provision for adults with ADHD, along with the evidence transfer gap, means that there is a lack of specific frameworks for service delivery. Igniting research and developing service delivery frameworks within adult ADHD is an essential step in the provision of effective services for adults with ADHD...
November 8, 2016: BMC Health Services Research
https://www.readbyqxmd.com/read/27815232/enhancing-self-efficacy-for-help-seeking-among-transition-aged-youth-in-postsecondary-settings-with-mental-health-and-or-substance-use-concerns-using-crowd-sourced-online-and-mobile-technologies-the-thought-spot-protocol
#12
David Wiljer, Alexxa Abi-Jaoude, Andrew Johnson, Genevieve Ferguson, Marcos Sanches, Andrea Levinson, Janine Robb, Olivia Heffernan, Tyson Herzog, Gloria Chaim, Kristin Cleverley, Gunther Eysenbach, Joanna Henderson, Jeffrey S Hoch, Elisa Hollenberg, Huan Jiang, Wanrudee Isaranuwatchai, Marcus Law, Sarah Sharpe, Tim Tripp, Aristotle Voineskos
BACKGROUND: Seventy percent of lifetime cases of mental illness emerge prior to age 24. While early detection and intervention can address approximately 70% of child and youth cases of mental health concerns, the majority of youth with mental health concerns do not receive the services they need. OBJECTIVE: The objective of this paper is to describe the protocol for optimizing and evaluating Thought Spot, a Web- and mobile-based platform cocreated with end users that is designed to improve the ability of students to access mental health and substance use services...
November 4, 2016: JMIR Research Protocols
https://www.readbyqxmd.com/read/27807865/the-meaning-of-participation-for-children-in-malawi-insights-from-children-and-caregivers
#13
F Nelson, C Masulani-Mwale, E Richards, S Theobald, M Gladstone
BACKGROUND: Global rates of childhood disability are high and are estimated through tools that focus on impairment, functioning and activity. The International Classification of Functioning, Disability and Health has promoted a framework to define disability more broadly and to include participation. New outcome measures have now been created to assess participation of children with disabilities for use in research and clinical practice. In order to use these in other cultural contexts, the validity of concepts and tools developed should be evaluated prior to use...
November 2, 2016: Child: Care, Health and Development
https://www.readbyqxmd.com/read/27799005/influences-of-geo-spatial-location-on-pre-exposure-prophylaxis-use-in-south-africa-positioning-microbicides-for-better-product-uptake
#14
Eliza M Govender, Leila E Mansoor, Quarraisha Abdool Karim
Young women bear a disproportionately high burden of HIV infection in sub-Saharan Africa, prioritising pre-exposure prophylaxis (PrEP) can be an integral part of HIV prevention combination strategies. Women initiated HIV prevention technology options will require consistent adherence, an imperative for product effectiveness. With several PrEP clinical trials underway; exploring women's acceptability to advances in HIV prevention technologies can better facilitate demand creation for future PrEP roll out. This study utilised the opportunity of post-trial access to CAPRISA 008 women (trial) and non-trial women from three geo-spatial settings (urban, rural and peri-urban) to identify microbicide acceptability and how product associations of microbicides can influence future HIV prevention choices...
November 1, 2016: AIDS Care
https://www.readbyqxmd.com/read/27740918/using-photovoice-in-adolescent-health-research-a-case-study-of-the-well-being-of-adolescents-in-vulnerable-environments-wave-study-in-ibadan-nigeria
#15
Adesola O Olumide, Emmanuel S Adebayo, Oladosu A Ojengbede
Photovoice is a participatory action research method in which people are given cameras and asked to take pictures of specific issues within their community. It is often used among marginalised populations. This method helps people capture specific issues within their community using photographs, critically discuss these issues within a group and present their findings to inform policies within their community. Photovoice has been used in developed countries and among adult participants; however, the extent to which it has been used in developing countries and among adolescent participants is yet to be extensively reported...
October 14, 2016: International Journal of Adolescent Medicine and Health
https://www.readbyqxmd.com/read/27740875/using-community-based-participatory-action-research-to-define-positive-youth-development-program-goal-priorities-with-a-latino-community
#16
Manuel Ángel Oscós-Sánchez, Janna Lesser, L Dolores Oscós-Flores
No abstract text is available yet for this article.
October 14, 2016: Issues in Mental Health Nursing
https://www.readbyqxmd.com/read/27729197/participatory-health-impact-assessment-used-to-support-decision-making-in-waste-management-planning-a-replicable-experience-from-italy
#17
Nunzia Linzalone, Alessio Coi, Paolo Lauriola, Daniela Luise, Alessandra Pedone, Roberto Romizi, Domenico Sallese, Fabrizio Bianchi
The lack of participatory tools in Health Impact Assessment (HIA) to support decision-makers is a critical factor that negatively affects the impacts of waste policies. This study describes the participatory HIA used in deciding on the possible doubling of the municipal solid waste incinerating plant located near the city of Arezzo, Italy. Within the framework of the new waste management plan, a methodology for the democratic participation of stakeholders was designed adopting the Local Agenda 21 methodology...
October 8, 2016: Waste Management
https://www.readbyqxmd.com/read/27716230/building-capacity-for-knowledge-translation-in-occupational-therapy-learning-through-participatory-action-research
#18
Sally Bennett, Mary Whitehead, Sally Eames, Jennifer Fleming, Shanling Low, Elizabeth Caldwell
BACKGROUND: There has been widespread acknowledgement of the need to build capacity in knowledge translation however much of the existing work focuses on building capacity amongst researchers rather than with clinicians directly. This paper's aim is to describe a research project for developing a knowledge translation capacity building program for occupational therapy clinicians. METHODS: Participatory action research methods were used to both develop and evaluate the knowledge translation capacity-building program...
October 1, 2016: BMC Medical Education
https://www.readbyqxmd.com/read/27716068/developing-physical-activity-counselling-in-primary-care-through-participatory-action-approach
#19
Minna Aittasalo, Katriina Kukkonen-Harjula, Erja Toropainen, Marjo Rinne, Kari Tokola, Tommi Vasankari
BACKGROUND: Many adults are insufficiently physically active for health. Counselling is the main method to promote physical activity (PA) in primary care but often implemented inadequately. The aim of this study was to increase health professionals' i) know-how about health-related PA and PA counselling, ii) implementation and quality of PA counselling, iii) familiarity with and use of Physical Activity Prescription (PAP), iv) internal and external collaboration and v) use of electronic patient record system in PA counselling...
October 4, 2016: BMC Family Practice
https://www.readbyqxmd.com/read/27708821/using-cognitive-behaviour-therapy-to-explore-resilience-in-the-life-stories-of-16-uk-centenarians
#20
Nimmi Hutnik, Pam Smith, Tina Koch
AIM: In 2010, we interviewed 16 UK centenarians about their lives and later published a paper on the socio-emotional aspects of positive ageing. We were struck by their ability to 'move on' from difficult situations which we recognized conceptually as 'resilience'. In the effort to understand aspects of resilience as portrayed in their stories, we re-examined their data. METHODOLOGY: In the original study, we used participatory action research (PAR) for its storytelling and group process components...
April 2016: Nursing Open
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