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Participatory action research

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https://www.readbyqxmd.com/read/28428165/a-framework-for-the-study-of-complex-mhealth-interventions-in-diverse-cultural-settings
#1
Marion A Maar, Karen Yeates, Nancy Perkins, Lisa Boesch, Diane Hua-Stewart, Peter Liu, Jessica Sleeth, Sheldon W Tobe
BACKGROUND: To facilitate decision-making capacity between options of care under real-life service conditions, clinical trials must be pragmatic to evaluate mobile health (mHealth) interventions under the variable conditions of health care settings with a wide range of participants. The mHealth interventions require changes in the behavior of patients and providers, creating considerable complexity and ambiguity related to causal chains. Process evaluations of the implementation are necessary to shed light on the range of unanticipated effects an intervention may have, what the active ingredients in everyday practice are, how they exert their effect, and how these may vary among recipients or between sites...
April 20, 2017: JMIR MHealth and UHealth
https://www.readbyqxmd.com/read/28423992/secrecy-empowerment-and-protection-positioning-prep-in-kwazulu-natal-south-africa
#2
Eliza Govender, Leila Mansoor, Kate MacQueen, Quarraisha Abdool Karim
The release of World Health Organisation guidelines recommending the prophylactic use of daily Truvada(®) for all populations at high risk of acquiring HIV opens the way for implementation of oral pre-exposure prophylaxis (PrEP). The impact of new prevention technologies is, however, dependent on demand creation strategies such as user awareness, acceptability and access, which in turn are influenced by sociocultural and gender norms. This study was conducted in three locations in KwaZulu-Natal, urban, rural and peri-urban, with six participatory workshops...
April 20, 2017: Culture, Health & Sexuality
https://www.readbyqxmd.com/read/28423816/a-method-for-co-designing-theory-based-behaviour-change-systems-for-health-promotion
#3
Rebecka Janols, Helena Lindgren
A methodology was defined and developed for designing theory-based behaviour change systems for health promotion that can be tailored to the individual. Theories from two research fields were combined with a participatory action research methodology. Two case studies applying the methodology were conducted. During and between group sessions the participants created material and designs following the behaviour change strategy themes, which were discussed, analysed and transformed into a design of a behaviour change system...
2017: Studies in Health Technology and Informatics
https://www.readbyqxmd.com/read/28411876/stakeholders-perceptions-of-care-coordination-a-participatory-process
#4
Annmarie A Lyles, Penny Morgan Overgaard, Grace L Caputo, Elizabeth Reifsnider
OBJECTIVE: Children with special health care needs or chronic conditions are more likely to have unmet health needs than other children. The purpose of this study was to use a community engagement research strategy to assess the essential elements of care coordination that can serve as the foundation for a system-wide care coordination model for children with special health care needs. STUDY DESIGN: As part of a summit designed to review the status of pediatric care coordination within the state of Arizona and a call to action, a qualitative descriptive study was conducted to solicit anonymous feedback from 104 stakeholders (family, health care provider, or community entity) on the strengths and areas of improvement in the current system that provides care to Arizona children with special health care needs...
April 12, 2017: Journal of Pediatric Health Care
https://www.readbyqxmd.com/read/28405897/culturally-relevant-online-cancer-education-modules-empower-alaska-s-community-health-aides-practitioners-to-disseminate-cancer-information-and-reduce-cancer-risk
#5
Katie Cueva, Laura Revels, Melany Cueva, Anne P Lanier, Mark Dignan, K Viswanath, Teresa T Fung, Alan C Geller
To address a desire for timely, medically accurate cancer education in rural Alaska, ten culturally relevant online learning modules were developed with, and for, Alaska's Community Health Aides/Practitioners (CHA/Ps). The project was guided by the framework of Community-Based Participatory Action Research, honored Indigenous Ways of Knowing, and was informed by Empowerment Theory. A total of 428 end-of-module evaluation surveys were completed by 89 unique Alaska CHA/Ps between January and December 2016. CHA/Ps shared that as a result of completing the modules, they were empowered to share cancer information with their patients, families, friends, and communities, as well as engage in cancer risk reduction behaviors such as eating healthier, getting cancer screenings, exercising more, and quitting tobacco...
April 12, 2017: Journal of Cancer Education: the Official Journal of the American Association for Cancer Education
https://www.readbyqxmd.com/read/28389127/participatory-quantitative-health-impact-assessment-of-urban-and-transport-planning-in-cities-a-review-and-research-needs
#6
REVIEW
Mark J Nieuwenhuijsen, Haneen Khreis, Ersilia Verlinghieri, Natalie Mueller, David Rojas-Rueda
INTRODUCTION: Urban and transport planning have large impacts on public health, but these are generally not explicitly considered and/or quantified, partly because there are no comprehensive models, methods and tools readily available. Air pollution, noise, temperature, green space, motor vehicle crashes and physical activity are important pathways linking urban and transport planning and public health. For policy decision-making, it is important to understand and be able to quantify the full-chain from source through pathways to health effects and impacts to substantiate and effectively target actions...
April 4, 2017: Environment International
https://www.readbyqxmd.com/read/28388937/advancing-engagement-methods-for-trials-the-core-study-relational-model-of-engagement-for-a-stepped-wedge-cluster-randomised-controlled-trial-of-experience-based-co-design-for-people-living-with-severe-mental-illnesses
#7
Lauralie Richard, Donella Piper, Wayne Weavell, Rosemary Callander, Rick Iedema, John Furler, David Pierce, Kali Godbee, Jane Gunn, Victoria J Palmer
BACKGROUND: Engagement is essential in trials research but is rarely embedded across all stages of the research continuum. The development, use, effectiveness and value of engagement in trials research is poorly researched and understood, and models of engagement are rarely informed by theory. This article describes an innovative methodological approach for the development and application of a relational model of engagement in a stepped wedge designed cluster randomised controlled trial (RCT), the CORE study...
April 8, 2017: Trials
https://www.readbyqxmd.com/read/28387794/engaging-african-american-women-in-research-an-approach-to-eliminate-health-disparities-in-the-african-american-community
#8
Joedrecka S Brown Speights, Alexandra C H Nowakowski, Jessica De Leon, M Miaisha Mitchell, Ivana Simpson
Objective: To explore the success of community-based participatory research [CBPR] in engaging African American women to achieve health equity by elucidating community, trust, communication and impact. Recommendations helpful for researchers interested in engaging communities to achieve health equity in the USA are included. Inroduction: African American women experience health disparities of multifactorial etiology and are underrepresented in research. CBPR is a collaborative approach that incorporates perspectives, which address the intricate determinants of health and has been reported as an effective means to address health disparities...
April 6, 2017: Family Practice
https://www.readbyqxmd.com/read/28353402/everyday-ethics-of-participation-a-case-study-of-a-cbpr-in-nunavik
#9
Sarah Fraser, Georgia Vrakas, Arlene Laliberté, Raymond Mickpegak
INTRODUCTION: Multiple reports highlight the need for community-based family-oriented prevention services for Aboriginal peoples in order to address important health and social inequalities. Participatory, empowerment-based approaches are generally favoured for these means. Faced with important social issues, in a context of colonisation and complex power dynamics, we question how community members experience participation, as well as the everyday dynamics that take place when attempting to create community-level change...
March 1, 2017: Global Health Promotion
https://www.readbyqxmd.com/read/28342424/end-of-life-care-in-a-community-garden-findings-from-a-participatory-action-research-project-in-regional-australia
#10
Pauline Marsh, Gabrielle Gartrell, Gwen Egg, Andrew Nolan, Merylin Cross
This article presents findings from research that explored how a community garden might function as a place of end-of-life and bereavement support. Adopting Participatory Action Research (PAR) methods, and informed by Third Place theory and notions of therapeutic landscape, creative consultations were held in the Garden and people's homes. The findings provide insights into the nature of informal care as it is played out in the liminal garden space, between home and institution. The results illuminate the therapeutic landscape of community gardens, and contribute new understandings to the fields of PAR, health geography and end-of-life care...
March 22, 2017: Health & Place
https://www.readbyqxmd.com/read/28334802/engagement-strategies-that-foster-community-self-determination-in-participatory-research-insider-ownership-through-outsider-championship
#11
Jon Salsberg, Soultana Macridis, Enrique Garcia Bengoechea, Ann C Macaulay, Spencer Moore
Background.: In order to maximize the benefits of community-based participatory research, effective ownership over the research process must be at least equally in the hands of the community. A previous social network analysis documented that the participatory research process shifted ownership from academic to community partners, but did not show what actions and strategies fostered this shift. Objectives.: This study follows the trajectory of a community-academic partnership and asks, from the perspective of the project stakeholders, which actions and strategies over the lifespan of the research led to the observed shift in ownership and decision-making from the original external academics to the community stakeholders? Methods...
February 18, 2017: Family Practice
https://www.readbyqxmd.com/read/28334748/the-shifting-dynamics-of-social-roles-and-project-ownership-over-the-lifecycle-of-a-community-based-participatory-research-project
#12
Jon Salsberg, Soultana Macridis, Enrique Garcia Bengoechea, Ann C Macaulay, Spencer Moore
Background: . Community based participatory research (CBPR) is often initiated by academic researchers, yet relies on meaningful community engagement and ownership to have lasting impact. Little is understood about how ownership shifts from academic to community partners. Objectives: . We examined a CBPR project over its life course and asked: what does the evolution of ownership look like from project initiation by an academic (non-community) champion (T1); to maturation-when the intervention is ready to be deployed (T2); to independence-the time when the original champion steps aside (T3); and finally, to its maintenance-when the community has had an opportunity to function independently of the original academic champion (T4)? Methods: ...
February 21, 2017: Family Practice
https://www.readbyqxmd.com/read/28320374/using-a-multimethod-approach-to-develop-implementation-strategies-for-a-cervical-self-sampling-program-in-kenya
#13
Irene Podolak, Caroline Kisia, Gloria Omosa-Manyonyi, Jarold Cosby
BACKGROUND: Numerous health policy makers/researchers are concerned about the limitations of research being applied to support informed decision/policy making and the implementation of practical solutions. The aim of the Chaguo Letu project (which means our choice in Swahili) was to determine how local decision makers could apply a multimethod approach to make strategic decisions to effectively implement a Cervical Self-Sampling Program in Kenya. METHODS: A multimethod approach, involving participatory action research, scenario based planning, and phenomenology, was applied in conjunction with two tools to identify relevant factors (negative or positive) that could impact Cervical Self-Sampling Program implementation...
March 21, 2017: BMC Health Services Research
https://www.readbyqxmd.com/read/28294320/nursing-clinical-practice-changes-to-improve-self-management-in-chronic-obstructive-pulmonary-disease
#14
J M Padilha, P A F Sousa, F M S Pereira
AIM: To propose nursing clinical practice changes to improve the development of patient self-management. BACKGROUND: Chronic obstructive pulmonary disease is one of the main causes of chronic morbidity, loss of quality of life and high mortality rates. INTRODUCTION: Control of the disease's progression, the preservation of autonomy in self-care and maintenance of quality of life are extremely challenging for patients to execute in their daily living...
March 13, 2017: International Nursing Review
https://www.readbyqxmd.com/read/28280948/-wear-some-thick-socks-if-you-walk-in-my-shoes-agency-resilience-and-well-being-in-communities-of-north-american-sex-workers
#15
Theodore R Burnes, Elizabeth M Rojas, Irena Delgado, Tianna E Watkins
Using a participatory action research (PAR) paradigm, this study investigated how 35 individuals involved in the sex work industry exemplified aspects of agency and intentional well-being under harsh work environments. Using PAR and qualitative research, sex workers were asked to identify research questions and help to design a study investigating the relationship between well-being and sex worker agency. Participants in the study each completed one semi-structured individual interview to share their experiences in the sex work industry...
March 9, 2017: Archives of Sexual Behavior
https://www.readbyqxmd.com/read/28265251/looking-through-the-glass-ceiling-a-qualitative-study-of-stem-women-s-career-narratives
#16
Mary J Amon
Although efforts have been directed toward the advancement of women in science, technology, engineering, and mathematics (STEM) positions, little research has directly examined women's perspectives and bottom-up strategies for advancing in male-stereotyped disciplines. The present study utilized Photovoice, a Participatory Action Research method, to identify themes that underlie women's experiences in traditionally male-dominated fields. Photovoice enables participants to convey unique aspects of their experiences via photographs and their in-depth knowledge of a community through personal narrative...
2017: Frontiers in Psychology
https://www.readbyqxmd.com/read/28245361/community-action-research-experience-care-training-family-physicians-in-community-based-participatory-research
#17
Nora Gimpel, Patti Pagels, Tiffany Kindratt
No abstract text is available yet for this article.
February 28, 2017: Education for Primary Care
https://www.readbyqxmd.com/read/28243673/dynamic-simulation-modelling-of-policy-responses-to-reduce-alcohol-related-harms-rationale-and-procedure-for-a-participatory-approach
#18
Jo-An Atkinson, Eloise O'Donnell, John Wiggers, Geoff McDonnell, Jo Mitchell, Louise Freebairn, Devon Indig, Lucie Rychetnik
Development of effective policy responses to address complex public health problems can be challenged by a lack of clarity about the interaction of risk factors driving the problem, differing views of stakeholders on the most appropriate and effective intervention approaches, a lack of evidence to support commonly implemented and acceptable intervention approaches, and a lack of acceptance of effective interventions. Consequently, political considerations, community advocacy and industry lobbying can contribute to a hotly contested debate about the most appropriate course of action; this can hinder consensus and give rise to policy resistance...
February 15, 2017: Public Health Research & Practice
https://www.readbyqxmd.com/read/28238674/experiences-and-effects-of-structurally-involving-residents-in-the-nursing-home-by-means-of-participatory-action-research-a-mixed-method-study
#19
Lien Van Malderen, Patricia De Vriendt, Tony Mets, Dominique Verté, Ellen Gorus
OBJECTIVES: This study aimed to examine the effects of introducing participatory action research (PAR) within the nursing home (NH) on residents' quality of life (QoL) and NH experience and participation, and to explore their experiences with PAR. DESIGN: A mixed methods design was chosen, including a clustered randomized controlled trial (RCT) and qualitative interviews. SETTING: For the RCT, 3 NHs were randomly allocated to 3 conditions: an intervention (weekly PAR activity), an active control (weekly reminiscence-activity), or passive control (care as usual)...
February 23, 2017: Journal of the American Medical Directors Association
https://www.readbyqxmd.com/read/28237585/invited-review-determinants-of-farmers-adoption-of-management-based-strategies-for-infectious-disease-prevention-and-control
#20
REVIEW
Caroline Ritter, Jolanda Jansen, Steven Roche, David F Kelton, Cindy L Adams, Karin Orsel, Ron J Erskine, Geart Benedictus, Theo J G M Lam, Herman W Barkema
The prevention and control of endemic pathogens within and between farms often depends on the adoption of best management practices. However, farmers regularly do not adopt recommended measures or do not enroll in voluntary disease control programs. This indicates that a more comprehensive understanding of the influences and extension tools that affect farmers' management decisions is necessary. Based on a review of relevant published literature, we developed recommendations to support policy-makers, industry representatives, researchers, veterinarians, and other stakeholders when motivating farmers to adopt best management practices, and to facilitate the development and implementation of voluntary prevention and control programs for livestock diseases...
May 2017: Journal of Dairy Science
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