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Participatory action research

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https://www.readbyqxmd.com/read/29905089/thyroid-cancer-treatment-choice-a-pilot-study-of-a-tool-to-facilitate-conversations-with-patients-with-papillary-microcarcinomas-considering-treatment-options
#1
Juan P Brito, Jae Hoon Moon, Rebecca Zeuren, Sung Hye Kong, Yeo Koon Kim, Nicole M Iñiguez-Ariza, June Young Choi, Kyu Eun Lee, Ji-Hoon Kim, Ian Hargraves, Victor Bernet, Victor Montori, Young Joo Park, R Michael Tuttle
BACKGROUND: The 2015 American Thyroid Association guidelines recognize active surveillance as an alternative to immediate surgery in patients with papillary microcarcinomas (PMCs). As a way to incorporate active surveillance as one of the management options for patients with PMCs, we describe the development and initial testing of a tool to support conversations between clinicians and patients with PMCs considering treatment options. METHODS: Thyroid Cancer Treatment Choice was developed using an iterative process based on the principles of interaction, design and participatory action research...
June 15, 2018: Thyroid: Official Journal of the American Thyroid Association
https://www.readbyqxmd.com/read/29902090/a-youth-participatory-project-to-address-stis-and-hiv-among-homeless-youth
#2
Michelle T Dang, Aaron Amos, Monique Dangerfield, Brian Ford, Kayla Kern, Martha Moon
The purpose of this study was to conduct a youth participatory action research project to address the disparities in sexually transmitted infection (STI) and HIV rates among homeless youth. Four youth served as co-investigators and cultural informants for the project. The team conducted focus groups (N = 22; ages 16-22) and in-depth interviews (N = 20; ages 18-24) with homeless youth to explore decisions about condomless sex, knowledge of STIs and HIV, health-care access for STI-related services, and perceptions about STI testing...
June 14, 2018: Comprehensive Child and Adolescent Nursing
https://www.readbyqxmd.com/read/29891023/combining-participatory-action-research-and-appreciative-inquiry-to-design-deliver-and-evaluate-an-interdisciplinary-continuing-education-program-for-a-regional-health-workforce
#3
Julie-Anne Martyn, Jackie Scott, Jasper H van der Westhuyzen, Dale Spanhake, Sally Zanella, April Martin, Ruth Newby
Objective. Continuing education (CE) is essential for a healthcare workforce, but in regional areas of Australia there are challenges to providing and accessing relevant, reliable and low-cost opportunities. The aim of the present study was to collaborate with the local regional healthcare workforce to design, deliver and evaluate an interdisciplinary CE (ICE) program. Methods. A participatory action research (PAR) model combined with an appreciative inquiry (AI) framework was used to design, deliver and evaluate an ICE program...
June 12, 2018: Australian Health Review: a Publication of the Australian Hospital Association
https://www.readbyqxmd.com/read/29890358/negotiating-acquired-spinal-conditions-recovery-with-in-bodily-materiality-and-fluids
#4
Jayne M Jeffries
The paper explores the concept of recovery; the unexpected material changes that occur to, and within bodies following acquired spinal conditions. The phrase 'acquired spinal conditions' is used as a collective name for the four accounts of recovery that emerged using Participatory Action Research in the north east of England (2010-11). Using two qualitative methods, Photovoice and participatory diagramming, the empirical material examines the role of physiological changes as a way to enrich understandings of disability and the bodily experience of impairment...
April 16, 2018: Social Science & Medicine
https://www.readbyqxmd.com/read/29871675/social-media-for-health-promotion-in-diabetes-study-protocol-for-a-participatory-public-health-intervention-design
#5
E Gabarron, M Bradway, L Fernandez-Luque, T Chomutare, A H Hansen, R Wynn, E Årsand
BACKGROUND: Participatory health approaches are increasingly drawing attention among the scientific community, and could be used for health promotion programmes on diabetes through social media. The main aim of this project is to research how to best use social media to promote healthy lifestyles with and within the Norwegian population. METHODS: The design of the health promotion intervention (HPI) will be participatory, and will involve both a panel of healthcare experts and social media users following the Norwegian Diabetes Association...
June 5, 2018: BMC Health Services Research
https://www.readbyqxmd.com/read/29868698/effectiveness-of-allied-health-clinical-supervision-a-cross-sectional-survey-of-supervisees
#6
Marcus J Gardner, Carol McKinstry, Byron Perrin
OBJECTIVE: Clinical supervision (CS) is widely used by allied health (AH) professionals, although with limited supporting research evidence. The aim of this study was to evaluate the effectiveness of CS for AH professionals in a regional health setting and to investigate differences in CS perceptions between AH disciplines. METHODS: Within a participatory action research project, a quantitative cross-sectional survey was distributed to AH professionals at a regional Australian health service...
2018: Journal of Allied Health
https://www.readbyqxmd.com/read/29866114/understanding-the-dynamics-of-sustainable-change-a-20-year-case-study-of-integrated-health-and-social-care
#7
Charlotte Klinga, Henna Hasson, Magna Andreen Sachs, Johan Hansson
BACKGROUND: Change initiatives face many challenges, and only a few lead to long-term sustainability. One area in which the challenge of achieving long-term sustainability is particularly noticeable is integrated health and social care. Service integration is crucial for a wide range of patients including people with complex mental health and social care needs. However, previous research has focused on the initiation, resistance and implementation of change, while longitudinal studies remain sparse...
June 4, 2018: BMC Health Services Research
https://www.readbyqxmd.com/read/29847313/exploring-and-improving-student-engagement-in-an-accelerated-undergraduate-nursing-program-through-a-mentoring-partnership-an-action-research-study
#8
Marguerite Bramble, Hazel Maxwell, Rochelle Einboden, Sally Farington, Richard Say, Chin Liang Beh, Grace Stankiewicz, Graham Munro, Esther Marembo, Greg Rickard
This Participatory Action Research (PAR) project aimed to engage students from an accelerated 'fast track' nursing program in a mentoring collaboration, using an interdisciplinary partnership intervention with a group of academics. Student participants represented the disciplines of nursing and paramedicine with a high proportion of culturally and linguistically diverse (CALD) students. Nine student mentors were recruited and paired with academics for a three-month 'mentorship partnership' intervention. Data from two pre-intervention workshops and a post-intervention workshop were coded in NVivo11 using thematic analysis...
May 30, 2018: International Journal of Nursing Education Scholarship
https://www.readbyqxmd.com/read/29777554/development-and-feasibility-testing-of-an-avatar-based-education-application-for-patients-with-acute-coronary-syndrome
#9
Jintana Tongpeth, Hui Yun Du, Robyn A Clark
AIMS: To develop and evaluate an interactive, avatar-based education application, for improving patients' knowledge of, and response to, ACS symptoms. BACKGROUND: A patient's ability to recognise and respond to the symptoms of acute coronary syndrome (ACS) is imperative for seeking timely medical intervention. Innovative patient education interventions are needed to support patient education and patient self-care. METHODS: Participatory action research methods were used to engage consumers with cardiac and IT experts to develop an avatar-based education application...
May 18, 2018: Journal of Clinical Nursing
https://www.readbyqxmd.com/read/29764276/-it-s-our-everyday-life-the-perspectives-of-persons-with-intellectual-disabilities-in-norway
#10
Aud Elisabeth Witsø, Brit Hauger
This study illuminates how adults with intellectual disabilities understand and describe their everyday life and its shortcomings when it comes to equal rights in the context of Norwegian community living. An inclusive research design, including nine persons with mild intellectual disability, two university researchers and two intellectual disability nurses from the municipality, was undertaken. An inductive thematic analysis of data identified three key themes: everyday life - context, rhythm and structure, social participation and staff - an ambiguous part of everyday life...
January 1, 2018: Journal of Intellectual Disabilities: JOID
https://www.readbyqxmd.com/read/29764175/caring-communities-as-collective-learning-process-findings-and-lessons-learned-from-a-participatory-research-project-in-austria
#11
Klaus Wegleitner, Patrick Schuchter
BACKGROUND: By now, the public health end-of-life care approach is well established and has induced diverse initiatives-subsumed under the concept of compassionate or caring communities-to engage the community in supporting vulnerable, dying people and their beloved ones. In the light of a participatory research project our paper examines the question: what are the deeper ideas behind caring communities and what constitutes a caring community? METHODS: A multi-level analysis based on (I) qualitative research with focus groups and interviews with community members within the project; (II) the reflection of the role of participatory research in caring community initiatives, and (III) the meta-analysis of an international expert workshop, which allowed to discuss our experiences and insights in the light of international caring community models and expertise...
April 2018: Annals of Palliative Medicine
https://www.readbyqxmd.com/read/29764173/developing-palliative-care-programs-in-indigenous-communities-using-participatory-action-research-a-canadian-application-of-the-public-health-approach-to-palliative-care
#12
Mary Lou Kelley, Holly Prince, Shevaun Nadin, Kevin Brazil, Maxine Crow, Gaye Hanson, Luanne Maki, Lori Monture, Christopher J Mushquash, Valerie O'Brien, Jeroline Smith
BACKGROUND: The Indigenous people of Canada include First Nations, Inuit and Metis. This research focused on four diverse First Nations communities located in Ontario and Manitoba. First Nations communities have well-established culturally-based social processes for supporting their community members experiencing dying, loss, grief and bereavement. However, communities do not have formalized local palliative care (PC) programs and have limited access to medical services, especially pain and symptom management...
April 2018: Annals of Palliative Medicine
https://www.readbyqxmd.com/read/29755057/processes-and-outcomes-of-a-community-based-participatory-research-driven-health-needs-assessment-a-tool-for-moving-health-disparity-reporting-to-evidence-based-action
#13
Tabia Henry Akintobi, Elise Lockamy, Lisa Goodin, Natalie D Hernandez, Tanesha Slocumb, Daniel Blumenthal, Ronald Braithwaite, Larry Leeks, Micah Rowland, Thomas Cotton, LaShawn Hoffman
BACKGROUND: The community-based participatory research (CBPR)-driven health needs assessment was a tool used to inform community-led, -implemented, and -sustained research and prevention strategies. METHODS: The Morehouse School of Medicine Prevention Research Center (MSM PRC) research and prevention initiatives are implemented in direct response to priorities identified through this process and tool. Led by a community-majority coalition board, the assessment coupled state and city secondary data with primary survey data collected by and from community residents...
2018: Progress in Community Health Partnerships: Research, Education, and Action
https://www.readbyqxmd.com/read/29755055/a-multigenerational-strategy-to-transform-health-education-into-community-action
#14
Roma Stovall Hanks, Hattie Myles, Sarah Wraight, Mary C Williams, Candis Patterson, Barbara M Hodnett, Alexandria Broadnax, Shannon Shelley-Tremblay, Errol Crook
BACKGROUND: The National Institute for Minority Health and Health Disparities funded Centers of Excellence to address health disparities through research, education and professional training, and community engagement. This article summarizes a decade of multigenerational educational programing embedded in the Community Engagement Core (CEC) of the National Institute for Minority Health and Health Disparities-funded Center for Healthy Communities-Center of Excellence at the University of South Alabama...
2018: Progress in Community Health Partnerships: Research, Education, and Action
https://www.readbyqxmd.com/read/29755053/state-licensing-regulations-on-screen-time-in-childcare-centers-an-impetus-for-participatory-action-research
#15
Amanda E Staiano, Andrew T Allen, Whitney Fowler, Jeanette Gustat, Maura M Kepper, Leslie Lewis, Corby K Martin, Jessica St Romain, E Kipling Webster
BACKGROUND: New licensing regulations require Louisiana early care and education centers (ECEs) to limit children's screen time and increase physical activity. A community- academic partnership involving academic, community, government, and ECE stakeholders launched two initiatives: (1) an evaluation of the implementation of licensing regulations at the local level and (2) a statewide effort to develop technical assistance for ECE directors. OBJECTIVES: To describe the methods and lessons learned and to establish recommendations based on this ongoing participatory action research...
2018: Progress in Community Health Partnerships: Research, Education, and Action
https://www.readbyqxmd.com/read/29755047/domestic-violence-and-pregnancy-a-cbpr-coalition-approach-to-identifying-needs-and-informing-policy
#16
Candace Forbes Bright, Braden Bagley, Ivie Pulliam, Amy Swetha Newton
BACKGROUND: Community engagement-the collaborative process of addressing issues that impact the well-being of a community-is a strategic effort to address community issues. The Gulf States Health Policy Center (GS-HPC) formed the Hattiesburg Area Health Coalition (HAHC) in November 2014 for the purpose of addressing policies impacting the health of Forrest and Lamar counties in Mississippi. OBJECTIVES: To chronicle the community-based participatory research (CBPR) process used by HAHC's identification of infant and maternal health as a policy area, domestic violence in pregnancy as a priority area within infant and maternal health, and a community action plan (CAP) regarding this priority area...
2018: Progress in Community Health Partnerships: Research, Education, and Action
https://www.readbyqxmd.com/read/29749267/a-systematic-review-of-youth-participatory-action-research-ypar-in-the-united-states-methodologies-youth-outcomes-and-future-directions
#17
Yolanda Anyon, Kimberly Bender, Heather Kennedy, Jonah Dechants
OBJECTIVES: To use a systematic review methodology to describe the state of the youth participatory action research (YPAR) literature and synthesize findings about the youth outcomes reported in these studies. METHODS: We screened and coded studies using a process consistent with the Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA). Of the 3,724 articles found in the database search, 67 reports of 63 distinct studies were included in the final sample...
May 1, 2018: Health Education & Behavior: the Official Publication of the Society for Public Health Education
https://www.readbyqxmd.com/read/29747635/implementation-of-the-evidence-for-the-improvement-of-nursing-care-to-the-critical-patient-s-family-a-participatory-action-research
#18
Laura de-la-Cueva-Ariza, Pilar Delgado-Hito, Gemma Martínez-Estalella, Gemma Via-Clavero, Teresa Lluch-Canut, Marta Romero-García
BACKGROUND: There are many descriptive studies regarding the needs of the family, as well as those regarding nursing care aimed directly at family members. However, there is no widespread application of such evidence in clinical practice. There has also been no analysis made of the evolution of patterns of knowing during the act of improving clinical practice. Therefore, the purpose of the study is to understand the change process aimed at improving care to critical patient's families, and to explore the evolution of patterns of knowing that nurses use in this process...
May 11, 2018: BMC Health Services Research
https://www.readbyqxmd.com/read/29727460/cultural-background-gender-and-institutional-status-have-an-effect-on-the-evaluation-of-multi-disciplinary-participatory-action-research
#19
Frieder Graef, Stefan Sieber
Research and development increasingly apply participatory approaches that involve both stakeholders and scientists. This article presents an evaluation of German and Tanzanian researchers' perceptions during their activities as part of a large interdisciplinary research project in Tanzania. The project focused on prioritizing and implementing food-securing upgrading strategies across the components of rural food value chains. The participants involved during the course of the project were asked to provide feedback on 10 different research steps and to evaluate eight core features related to the functioning and potential shortcomings of the project...
2018: PloS One
https://www.readbyqxmd.com/read/29724108/wiisokotaatiwin-development-and-evaluation-of-a-community-based-palliative-care-program-in-naotkamegwanning-first-nation
#20
Shevaun Nadin, Maxine Crow, Holly Prince, Mary Lou Kelley
INTRODUCTION: Approximately 474 000 Indigenous people live in 617 First Nations communities across Canada; 125 of those communities are located in Ontario, primarily in rural and remote areas. Common rural health challenges, including for palliative care, involve quality and access. The need for culturally relevant palliative care programs in First Nations communities is urgent because the population is aging with a high burden of chronic and terminal disease. Because local palliative care is lacking, most First Nations people now leave their culture, family and community to receive care in distant hospitals or long-term care homes...
April 2018: Rural and Remote Health
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