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Participatory action research

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https://www.readbyqxmd.com/read/29240907/primary-care-for-refugees-and-newly-arrived-migrants-in-europe-a-qualitative-study-on-health-needs-barriers-and-wishes
#1
Tessa van Loenen, Maria van den Muijsenbergh, Marrigje Hofmeester, Christopher Dowrick, Nadja van Ginneken, Enkeleint Aggelos Mechili, Agapi Angelaki, Dean Ajdukovic, Helena Bakic, Danica Rotar Pavlic, Erika Zelko, Kathryn Hoffmann, Elena Jirovsky, Elisabeth Sophie Mayrhuber, Michel Dückers, Trudy Mooren, Juul Gouweloos-Trines, László Kolozsvári, Imre Rurik, Christos Lionis
Background: In order to provide effective primary care for refugees and to develop interventions tailored to them, we must know their needs. Little is known of the health needs and experiences of recently arrived refugees and other migrants throughout their journey through Europe. We aimed to gain insight into their health needs, barriers in access and wishes regarding primary health care. Methods: In the spring of 2016, we conducted a qualitative, comparative case study in seven EU countries in a centre of first arrival, two transit centres, two intermediate-stay centres and two longer-stay centres using a Participatory Learning and Action research methodology...
December 12, 2017: European Journal of Public Health
https://www.readbyqxmd.com/read/29225922/using-participatory-learning-action-pla-research-techniques-for-inter-stakeholder-dialogue-in-primary-healthcare-an-analysis-of-stakeholders-experiences
#2
T de Brún, M O'Reilly-de Brún, E Van Weel-Baumgarten, N Burns, C Dowrick, C Lionis, C O'Donnell, F S Mair, M Papadakaki, A Saridaki, W Spiegel, C Van Weel, M Van den Muijsenbergh, A MacFarlane
Plain English summary: It is important for health care workers to know the needs and expectations of their patients. Therefore, service users have to be involved in research. To achieve a meaningful dialogue between service users, healthcare workers and researchers, participatory methods are needed. This paper describes how the application of a specific participatory methodology, Participatory Learning and Action (PLA) can lead to such a meaningful dialogue. In PLA all stakeholders are regarded as equal partners and collaborators in research...
2017: Research Involvement and Engagement
https://www.readbyqxmd.com/read/29224414/using-photovoice-to-explore-quality-of-life-factors-of-adults-with-crouzon-syndrome
#3
Kelly J Wheeler, Jody O Early
In the United States, one in 60,000 adults live with Crouzon Syndrome (CS) and facial malformations. Phenomenological studies about their lived experiences and quality of life are lacking. The purpose of this participatory action research study was to gain a richer understanding of the perceived biopsychosocial and socioecological factors that impact quality of life for adults living with CS using Photovoice. Another aim was to develop a conceptual framework of quality of life for those experiencing CS to enhance tailored health education and services...
December 1, 2017: Qualitative Health Research
https://www.readbyqxmd.com/read/29211840/occupational-health-risks-and-intervention-strategies-for-us-taxi-drivers
#4
Kate E Murray, Abdimalik Buul, Rasheed Aden, Alyson M Cavanaugh, Luwam Kidane, Mikaiil Hussein, Amelia Eastman, Harvey Checkoway
Research has shown that taxi drivers are at risk for numerous health concerns, such as low back and leg pain, linked to their highly sedentary occupation, long work hours and stressors related to the job (e.g. low income, safety threats). The goal of this study was to explore occupational health risks and opportunities for health interventions with taxi drivers using community-based participatory research (CBPR) methods. A mixed methods approach included first a convenience sample of 19 East African taxi drivers participating in focus group discussions...
December 2, 2017: Health Promotion International
https://www.readbyqxmd.com/read/29211184/participatory-environmental-diagnosis-and-of-health-risks-from-the-surrounding-communities-the-petrochemical-complex-of-rio-de-janeiro-brazil
#5
Marcela de Abreu Moniz, Vera Maria Sabóia, Cleber Nascimento do Carmo, Sandra de Souza Hacon
The aim of this study was to diagnose the priority socio environmental problems and the health risks from the surrounding communities the Petrochemical Complex of Rio de Janeiro. Characterized by a participatory approach, the action research has led to the application of interviews, focal groups, meetings and workshop with social actors of Porto das Caixas and Sambaetiba districts, located in Itaboraí city/RJ from November 2013 to December 2014. A structural analysis of the problems prioritized by the communities (water supply, sewage treatment and risk of transmissible diseases; risk of air pollution and respiratory diseases; absence of public security and risk of violence) sketched out the cause-effect-intervention relationship, on the basis of the Protocol for Assessing Community Excellence in Environmental Health...
November 2017: Ciência & Saúde Coletiva
https://www.readbyqxmd.com/read/29208000/dynamics-behind-the-scale-up-of-evidence-based-obesity-prevention-protocol-for-a-multi-site-case-study-of-an-electronic-implementation-monitoring-system-in-health-promotion-practice
#6
Kathleen P Conte, Sisse Groen, Victoria Loblay, Amanda Green, Andrew Milat, Lina Persson, Christine Innes-Hughes, Jo Mitchell, Sarah Thackway, Mandy Williams, Penelope Hawe
BACKGROUND: The effectiveness of many interventions to promote health and prevent disease has been well established. The imperative has therefore shifted from amassing evidence about efficacy to scale-up to maximise population-level health gains. Electronic implementation monitoring, or 'e-monitoring', systems have been designed to assist and track the delivery of preventive policies and programs. However, there is little evidence on whether e-monitoring systems improve the dissemination, adoption, and ongoing delivery of evidence-based preventive programs...
December 6, 2017: Implementation Science: IS
https://www.readbyqxmd.com/read/29206833/effects-of-women-s-groups-practising-participatory-learning-and-action-on-preventive-and-care-seeking-behaviours-to-reduce-neonatal-mortality-a-meta-analysis-of-cluster-randomised-trials
#7
Nadine Seward, Melissa Neuman, Tim Colbourn, David Osrin, Sonia Lewycka, Kishwar Azad, Anthony Costello, Sushmita Das, Edward Fottrell, Abdul Kuddus, Dharma Manandhar, Nirmala Nair, Bejoy Nambiar, Neena Shah More, Tambosi Phiri, Prasanta Tripathy, Audrey Prost
BACKGROUND: The World Health Organization recommends participatory learning and action (PLA) in women's groups to improve maternal and newborn health, particularly in rural settings with low access to health services. There have been calls to understand the pathways through which this community intervention may affect neonatal mortality. We examined the effect of women's groups on key antenatal, delivery, and postnatal behaviours in order to understand pathways to mortality reduction...
December 2017: PLoS Medicine
https://www.readbyqxmd.com/read/29204293/validity-reliability-and-feasibility-of-commercially-available-activity-trackers-in-physical-therapy-for-people-with-a-chronic-disease-a-study-protocol-of-a-mixed-methods-research
#8
Emmylou Beekman, Susy M Braun, Darcy Ummels, Kim van Vijven, Albine Moser, Anna J Beurskens
Background: For older people and people with a chronic disease, physical activity provides health benefits. Patients and healthcare professionals can use commercially available activity trackers to objectively monitor (alterations in) activity levels and patterns and to support physical activity. However, insight in the validity, reliability, and feasibility of these trackers in people with a chronic disease is needed. In this article, a study protocol is described in which the validity, reliability (part A), and feasibility from a patient and therapist's point of view (part B) of commercially available activity trackers in daily life and health care is investigated...
2017: Pilot and Feasibility Studies
https://www.readbyqxmd.com/read/29202072/participatory-approach-to-design-social-accountability-interventions-to-improve-maternal-health-services-a-case-study-from-the-democratic-republic-of-the-congo
#9
Eric M Mafuta, Marjolein A Dieleman, Leon Essink, Paul N Khomba, François M Zioko, Thérèse N M Mambu, Patrick K Kayembe, Tjard de Cock Buning
Background: Social accountability (SA) comprises a set of mechanisms aiming to, on the one hand, enable users to raise their concerns about the health services provided to them (voice), and to hold health providers (HPs) accountable for actions and decisions related to the health service provision. On the other hand, they aim to facilitate HPs to take into account users' needs and expectations in providing care. This article describes the development of a SA intervention that aims to improve health services responsiveness in two health zones in the Democratic Republic of the Congo...
2017: Global Health Research and Policy
https://www.readbyqxmd.com/read/29193481/instilling-hope-for-a-brighter-future-a-mixed-method-mentoring-support-program-for-individuals-with-and-recovered-from-anorexia-nervosa
#10
Lucie M Ramjan, Sarah Fogarty, Daniel Nicholls, Phillipa Hay
AIMS AND OBJECTIVES: To investigate the feasibility of a 13-week mentoring program in providing social support to promote hope for recovery in anorexia nervosa. BACKGROUND: With no clear first line psychological treatment for people with anorexia nervosa, mentoring support programs, as an adjunct to treatment, may provide the social support necessary to promote hope for recovery. DESIGN: A mixed method study; Participatory action research...
November 30, 2017: Journal of Clinical Nursing
https://www.readbyqxmd.com/read/29193434/working-in-a-storied-way-narrative-based-approaches-to-person-centred-care-and-practice-development-in-older-adult-residential-care-settings
#11
Catherine Buckley, Brendan Mccormack, Assumpta Ryan
AIMS AND OBJECTIVES: To evaluate the effects of the implementation of a methodological framework for a narrative based approach to practice development and person-centred care in residential aged care settings. BACKGROUND: Care in long-term residential settings for older people is moving away from the biomedical approach and adopting a more person-centred one. Narrative can help shape the way care is planned and organised. The provision of person-centred care that is holistic and that takes account of resident's beliefs and values can be enhanced by incorporating narrative approaches to care within a practice development framework...
November 30, 2017: Journal of Clinical Nursing
https://www.readbyqxmd.com/read/29185598/elements-of-the-socio-critical-paradigm-in-nursing-care-practices-an-integrative-review
#12
Silvana Ceolin, Manuelle Arias Piriz, Marjoriê da Costa Mendieta, José Siles González, Rita Maria Heck
OBJECTIVE: Analyze the evidence available in Brazilian theses on the elements of the socio-critical paradigm in the construction of knowledge and practices of nursing care. METHOD: An integrative literature review was carried out in the Theses Database of the Coordination for the Improvement of Higher Education Personnel and the Brazilian Digital Library of Theses and Dissertations. RESULTS: Of a total of 320 theses, only 19 had elements of the socio-critical paradigm in their construction, among which the use of participatory investigations stand out (especially action-research), which present interaction between the researcher and the participants, the use of data collection techniques such as focus groups and culture circles, and theoretical frameworks for analyzing the phenomena in their complexity...
November 27, 2017: Revista da Escola de Enfermagem da U S P
https://www.readbyqxmd.com/read/29181893/developing-inclusive-residential-care-for-older-lesbian-gay-bisexual-and-trans-lgbt-people-an-evaluation-of-the-care-home-challenge-action-research-project
#13
Trish Hafford-Letchfield, Paul Simpson, Paul B Willis, Kathryn Almack
There have been substantial achievements in legislative and human rights for lesbian, gay, bisexual and transgender (LGBT) older people and their visibility in health and social care has equally increased. These appear to have surpassed the ability of care services to meet their needs given documented concerns about the accessibility, inclusiveness and safety of care services particularly institutionalised care. This requires systemic change not easy to operationalise. This paper describes an action research initiative where six care homes belonging to a national care provider, collaborated to assess and develop their services with the support of local LGBT "Community Advisors" and academic partners...
November 27, 2017: Health & Social Care in the Community
https://www.readbyqxmd.com/read/29179778/determining-requirements-for-patient-centred-care-a-participatory-concept-mapping-study
#14
Kathryn Ogden, Jennifer Barr, David Greenfield
BACKGROUND: Recognition of a need for patient-centred care is not new, however making patient-centred care a reality remains a challenge to organisations. We need empirical studies to extend current understandings, create new representations of the complexity of patient-centred care, and guide collective action toward patient-centred health care. To achieve these ends, the research aim was to empirically determine what organisational actions are required for patient-centred care to be achieved...
November 28, 2017: BMC Health Services Research
https://www.readbyqxmd.com/read/29160115/linking-participatory-action-research-on-health-systems-to-justice-in-global-health-a-case-study-of-the-maternal-and-neonatal-implementation-for-equitable-health-systems-project-in-rural-uganda
#15
Bridget Pratt, Adnan A Hyder
An ethical framework called "research for health justice" provides initial guidance on how to link health systems research in low- and middle-income countries to health equity. To further develop the largely conceptual framework, we tested its guidance against the experience of the Maternal and Neonatal Implementation for Equitable Health Systems (Manifest) project, which was performed in rural Uganda by researchers from Makerere University. We conducted 21 in-depth interviews with investigators and research implementers, directly observed study sites, and reviewed study-related documents...
November 1, 2017: Journal of Empirical Research on Human Research Ethics: JERHRE
https://www.readbyqxmd.com/read/29138202/development-of-a-discussion-tool-to-enable-well-being-by-providing-choices-for-people-with-dementia-a-qualitative-study-incorporating-codesign-and-participatory-action-research
#16
Dianne Patricia Goeman, Marissa Dickins, Steve Iliffe, Dimity Pond, Fleur O'Keefe
OBJECTIVE: To codesign a discussion tool to facilitate negotiation of risk between health professionals, people with dementia and carers. METHODS: A qualitative approach using codesign. Thematic analysis was used to analyse interviews and focus groups with people with dementia, carers, healthcare staff and healthy older people exploring the issue of risk in dementia, the acceptability and development of a discussion tool. RESULTS: Sixty-one participants identified the breadth, depth and complexity of risk in dementia care and the need for individualised solutions...
November 14, 2017: BMJ Open
https://www.readbyqxmd.com/read/29137836/how-participatory-action-research-changed-our-view-of-the-challenges-of-shared-decision-making-training
#17
Jette Ammentorp, Maiken Wolderslund, Connie Timmermann, Henry Larsen, Karina Dahl Steffensen, Annegrethe Nielsen, Marianne E Lau, Bodil Winther, Lars Henrik Jensen, Elisabeth Assing Hvidt, Niels Christian Hvidt, Pål Gulbrandsen
OBJECTIVE: This paper aims to demonstrate how the use of participatory action research (PAR) helped us identify ways to respond to communication challenges associated with shared decision-making (SDM) training. METHODS: Patients, relatives, researchers, and health professionals were involved in a PAR process that included: (1) two theatre workshops, (2) a pilot study of an SDM training module involving questionnaires and evaluation meetings, and (3) three reflection workshops...
November 9, 2017: Patient Education and Counseling
https://www.readbyqxmd.com/read/29132278/gendered-childcare-norms-evidence-from-rural-swaziland-to-inform-innovative-structural-hiv-prevention-approaches-for-young-women
#18
Pinky N Shabangu, Michelle R Brear
Addressing discriminatory gender norms is a prerequisite for preventing HIV in women, including young women. However, the gendered expectation that women will perform unpaid childcare-related labour is rarely conceptualised as influencing their HIV risk. Our aim was to learn from members of a rural Swazi community about how gendered childcare norms. We performed sequential, interpretive analysis of focus group discussion and demographic survey data, generated through participatory action research. The results showed that gendered childcare norms were firmly entrenched and intertwined with discriminatory norms regarding sexual behaviour...
December 2017: African Journal of AIDS Research: AJAR
https://www.readbyqxmd.com/read/29128437/participatory-action-research-opens-doors-mentoring-indigenous-researchers-to-improve-midwifery-in-urban-australia
#19
Sophie D Hickey, Sarah-Jade Maidment, Kayla M Heinemann, Yvette L Roe, Sue V Kildea
PROBLEM: There is increasing demand for capacity building among the Aboriginal and Torres Strait Islander (Indigenous) maternal and infant health workforce to improve health outcomes for mothers and babies; yet few studies describe the steps taken to mentor novice Indigenous researchers to contribute to creating a quality evidence-base in this space. BACKGROUND: The Indigenous Birthing in an Urban Setting study is a partnership project aimed at improving maternity services for Indigenous families in South East Queensland...
November 8, 2017: Women and Birth: Journal of the Australian College of Midwives
https://www.readbyqxmd.com/read/29120561/a-community-based-participatory-research-approach-to-identifying-environmental-concerns
#20
Ellizabeth Ablah, Jack Brown, Barry Carroll, Tonya Bronleewe
A community-based participatory research process was used to develop an environmental initiative in Wichita, Kansas, called the Wichita Initiative to Renew the Environment (WIRE). The two-year project, led by University of Kansas School of Medicine–Wichita faculty and a community-based organization, was funded by the U.S. Environmental Protection Agency. The project aimed to identify, prioritize, and address Wichitans’ environmental concerns by engaging the community to assist in developing the project design, establish a community-based environmental leadership council to guide the project, and identify and prioritize the community’s environmental concerns based on impact and perceived urgency for action...
December 2016: Journal of Environmental Health
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