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Participatory action research

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https://www.readbyqxmd.com/read/29471544/10-best-resources-on-power-in-health-policy-and-systems-in-low-and-middle-income-countries
#1
Veena Sriram, Stephanie M Topp, Marta Schaaf, Arima Mishra, Walter Flores, Subramania Raju Rajasulochana, Kerry Scott
Power is a critical concept to understand and transform health policy and systems. Power manifests implicitly or explicitly at multiple levels-local, national and global-and is present at each actor interface, therefore shaping all actions, processes and outcomes. Analysing and engaging with power has important potential for improving our understanding of the underlying causes of inequity, and our ability to promote transparency, accountability and fairness. However, the study and analysis of the role of power in health policy and systems, particularly in the context of low- and middle-income countries, has been lacking...
February 17, 2018: Health Policy and Planning
https://www.readbyqxmd.com/read/29448885/-recognize-our-humanity-immigrant-youth-voices-on-health-care-in-arizona-s-restrictive-political-environment
#2
Sofía Gómez, Heide Castañeda
The "DACAmented Voices in Healthcare" project examined the intersection of restrictive immigration policies and health care via photovoice, a participatory action research approach, with immigrant youth living in Arizona, who were recipients of the Deferred Action for Childhood Arrivals (DACA) program. These "DACAmented" youth took part in nine photovoice sessions exploring their health care experiences and accessibility to care using documentary photography and narratives. They poignantly illustrated their experiences through images identifying their main health concerns and strengths, facilitating the development of health policy recommendations...
February 1, 2018: Qualitative Health Research
https://www.readbyqxmd.com/read/29420196/enhanced-patient-research-participation-a-photovoice-study-in-blantyre-malawi
#3
Maya Jane Bates, Jane Ardrey, Treza Mphwatiwa, Stephen Bertel Squire, Louis Willem Niessen
OBJECTIVES: Patient involvement in palliative care research is a desirable if challenging goal. Photovoice is an action research method in which affected communities gather photographs to document and discuss their communities' strengths and concerns. Engagement with policymakers is a separately stated goal. Photovoice is increasingly used in health-related research but has not been widely described in the palliative care literature. We report on experiences and lessons learnt using Photovoice in Blantyre, Malawi to encourage its wider use in research and practice...
February 1, 2018: BMJ Supportive & Palliative Care
https://www.readbyqxmd.com/read/29418053/preparing-researchers-for-patient-and-public-involvement-in-scientific-research-development-of-a-hands-on-learning-approach-through-action-research
#4
Maarten de Wit, Anna Beurskens, Barbara Piškur, Esther Stoffers, Albine Moser
BACKGROUND: Acquiring the theoretical and practical knowhow of conducting patient and public involvement (PPI) in research is not part of the traditional curriculum of researchers. Zuyd University of Applied Sciences and Huis voor de Zorg, a regional umbrella patient organization, therefore started a 1.5-year coaching programme. OBJECTIVE: To establish a community of practice by developing a PPI coaching programme for senior and junior health services researchers of Zuyd University...
February 8, 2018: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
https://www.readbyqxmd.com/read/29402108/the-evolution-of-the-kelley-community-capacity-development-model-for-palliative-care
#5
Mary Lou Kelley
This oral presentation will describe the conceptual evolution of the Kelley model for Community Capacity Development [2000-2016]. It will illustrate how and why the model changed to become a powerful Canadian example of a public health approach to developing community based palliative care programs. Based on conducting participatory action research in rural, First Nations communities and long-term care homes, the perspective of "community" gradually expanded beyond health care professionals to include natural helpers, front line care providers, formal and informal community leaders, and social services...
January 2018: Annals of Palliative Medicine
https://www.readbyqxmd.com/read/29402097/lessons-we-are-learning-using-participatory-action-research-to-integrate-palliative-care-health-promotion-and-public-health-through-the-d%C3%A3-bra-research-program-in-sweden
#6
Carol Tishelman
Public health and health promotion approaches to end-of-life (EoL) research and care are still rare in Sweden. People remain generally ill-prepared for encounters with death and unable to advocate for quality EoL care; this may be reflected in Sweden's low scores for community engagement in the 2015 Quality of Death index. We have consolidated our endeavours into a cohesive national transdisciplinary research program, DöBra (a pun meaning both 'dying well' and 'awesome' in Swedish). In DöBra, we investigate how culture, the environment and conversation can promote constructive change and support better quality of life and death among the general population, in specific subgroups and in interventions directed to staff caring for dying individuals, their friends and families...
January 2018: Annals of Palliative Medicine
https://www.readbyqxmd.com/read/29401222/older-coresearchers-exploring-age-friendly-communities-an-insider-perspective-on-the-benefits-and-challenges-of-peer-research
#7
Tine Buffel
Background and Objectives: A growing body of work suggests that co- or peer-research may contribute to understanding the complex health and social problems experienced in later life. Yet, only a limited number of studies have involved older persons as partners in the research process. Moreover, in conflict with the philosophy of participatory research, the views of those acting as coresearchers tend to be ignored. This paper gives an "insider" account of the process of coresearch, drawing upon the experiences of older people trained to undertake a community-based research project...
February 1, 2018: Gerontologist
https://www.readbyqxmd.com/read/29386034/integrating-community-based-health-promotion-programs-and-primary-care-a-mixed-methods-analysis-of-feasibility
#8
Aaron L Leppin, Karen Schaepe, Jason Egginton, Sara Dick, Megan Branda, Lori Christiansen, Nicole M Burow, Charlene Gaw, Victor M Montori
BACKGROUND: Implementation of evidence-based programs (EBPs) for disease self-management and prevention is a policy priority. It is challenging to implement EBPs offered in community settings and to integrate them with healthcare. We sought to understand, categorize, and richly describe key challenges and opportunities related to integrating EBPs into routine primary care practice in the United States. METHODS: As part of a parent, participatory action research project, we conducted a mixed methods evaluation guided by the PRECEDE implementation planning model in an 11-county region of Southeast Minnesota...
January 31, 2018: BMC Health Services Research
https://www.readbyqxmd.com/read/29382275/rebuilding-people-centred-maternal-health-services-in-post-ebola-liberia-through-participatory-action-research
#9
Theresa Jones, Lara Ho, Kelvin Koffa Kun, Penelope Milsom, John Shakpeh, Ruwan Ratnayake, Rene Loewenson
During the March 2014-January 2016 Ebola crisis in Liberia, Redemption Hospital lost 12 staff and became a holding facility for suspected cases, prompting violent hostility from the surrounding New Kru Town community, in the capital city Monrovia. Inpatient services were closed for 6 months, leaving the population without maternity care. In January 2015, Redemption reopened, but utilization was low, especially for deliveries. A key barrier was community trust in health workers which worsened during the epidemic...
January 31, 2018: Global Public Health
https://www.readbyqxmd.com/read/29374389/community-action-research-track-community-based-participatory-research-and-service-learning-experiences-for-medical-students
#10
Nora Gimpel, Tiffany Kindratt, Alvin Dawson, Patti Pagels
Community-based participatory research (CBPR) and service-learning are unique experiential approaches designed to train medical students how to provide individualized patient care from a population perspective. Medical schools in the US are required to provide support for service-learning and community projects. Despite this requirement, few medical schools offer structured service-learning. We developed the Community Action Research Track (CART) to integrate population medicine, health promotion/disease prevention and the social determinants of health into the medical school curriculum through CBPR and service-learning experiences...
January 26, 2018: Perspectives on Medical Education
https://www.readbyqxmd.com/read/29371273/management-and-point-of-care-for-tobacco-dependence-prompt-a-feasibility-mixed-methods-community-based-participatory-action-research-project-in-ottawa-canada
#11
Smita Pakhale, Tina Kaur, Catherine Charron, Kelly Florence, Tiffany Rose, Sadia Jama, Robert Boyd, Joanne Haddad, Gonzalo Alvarez, Mark Tyndall
OBJECTIVE: To determine the feasibility of a Community-Based Participatory Tobacco Dependence Strategy (PROMPT) in the inner city population of Ottawa (Canada). DESIGN: A feasibility mixed methods prospective cohort study following principles of community-based participatory action research. INTERVENTION: Recruited 80 people whouse drugs, followed them for 6 months while providing access to counselling, nicotine replacement therapy and peer-support in a community setting...
January 25, 2018: BMJ Open
https://www.readbyqxmd.com/read/29368103/culturally-relevant-online-education-improves-health-workers-capacity-and-intent-to-address-cancer
#12
Katie Cueva, Melany Cueva, Laura Revels, Mark Dignan
To address a desire for timely, medically-accurate cancer education in rural Alaska, ten culturally-relevant online learning modules were developed, implemented, and evaluated with, and for, Alaska's Community Health Aides/Practitioners (CHA/Ps). The project was guided by the framework of Community-Based Participatory Action Research, honored Indigenous Ways of Knowing, and was informed by Empowerment Theory. Each learner was invited to complete an end-of-module evaluation survey. The survey asked about changes in intent to share cancer information with patients as a result of the module...
January 24, 2018: Journal of Community Health
https://www.readbyqxmd.com/read/29366333/meanings-and-experiences-associated-with-computer-use-of-older-immigrant-adults-of-lower-socioeconomic-status-les-sens-et-les-exp%C3%A3-riences-associ%C3%A3-s-%C3%A3-l-utilisation-des-ordinateurs-chez-les-immigrants-%C3%A3-g%C3%A3-s-ayant-un-faible-statut-socio%C3%A3-conomique
#13
Lynne C Andonian
BACKGROUND: Immigrant older adults are a substantial demographic composing 12% to 30% of older adults in the United States and Canada, yet no research has addressed the meanings associated with computer use for low-socioeconomic-status and immigrant older adults. PURPOSE: The study explored the meanings, occupational engagement, and experiences associated with computer use. METHOD: A mixed-methods approach, qualitative participatory action research (photovoice) and survey (Computer Proficiency Questionnaire), was used...
January 1, 2018: Canadian Journal of Occupational Therapy. Revue Canadienne D'ergothérapie
https://www.readbyqxmd.com/read/29363336/involvement-of-people-with-dementia-in-raising-awareness-and-changing-attitudes-in-a-dementia-friendly-community-pilot-project
#14
Lyn Phillipson, Danika Hall, Elizabeth Cridland, Richard Fleming, Chris Brennan-Horley, Nick Guggisberg, Dennis Frost, Helen Hasan
Low levels of public understanding can contribute to the fear, stigma and social exclusion associated with living with dementia. Dementia friendly communities aim to address this by empowering people with dementia and increasing their social inclusion. As a part of a Community Based Participatory Action Research (CBPAR) process, a multicomponent dementia friendly community intervention supported: research; the establishment of a Dementia Advisory Group and Alliance; an awareness campaign and education in community organisations...
January 1, 2018: Dementia
https://www.readbyqxmd.com/read/29362952/the-role-of-the-clinician-in-the-multi-omics-era-are-you-ready
#15
Clara D M van Karnebeek, Saskia B Wortmann, Maja Tarailo-Graovac, Mirjam Langeveld, Carlos R Ferreira, Jiddeke M van de Kamp, Carla E Hollak, Wyeth W Wasserman, Hans R Waterham, Ron A Wevers, Tobias B Haack, Ronald J A Wanders, Kym M Boycott
Since Garrod's first description of alkaptonuria in 1902, and newborn screening for phenylketonuria introduced in the 1960s, P4 medicine (preventive, predictive, personalized, and participatory) has been a reality for the clinician serving patients with inherited metabolic diseases. The era of high-throughput technologies promises to accelerate its scale dramatically. Genomics, transcriptomics, epigenomics, proteomics, glycomics, metabolomics, and lipidomics offer an amazing opportunity for holistic investigation and contextual pathophysiologic understanding of inherited metabolic diseases for precise diagnosis and tailored treatment...
January 23, 2018: Journal of Inherited Metabolic Disease
https://www.readbyqxmd.com/read/29355352/community-based-participatory-research-cbpr-towards-equitable-involvement-of-community-in-psychology-research
#16
Susan E Collins, Seema L Clifasefi, Joey Stanton, Kee J E Straits, Eleanor Gil-Kashiwabara, Patricia Rodriguez Espinosa, Andel V Nicasio, Michele P Andrasik, Starlyn M Hawes, Kimberly A Miller, Lonnie A Nelson, Victoria E Orfaly, Bonnie M Duran, Nina Wallerstein
Community-based participatory research (CBPR) answers the call for more patient-centered, community-driven research approaches to address growing health disparities. CBPR is a collaborative research approach that equitably involves community members, researchers, and other stakeholders in the research process and recognizes the unique strengths that each bring. The aim of CBPR is to combine knowledge and action to create positive and lasting social change. With its origins in psychology, sociology, and critical pedagogy, CBPR has become a common research approach in the fields of public health, medicine, and nursing...
January 22, 2018: American Psychologist
https://www.readbyqxmd.com/read/29353542/dark-clouds-in-co-creation-and-their-silver-linings-practical-challenges-we-faced-in-a-participatory-project-in-a-resource-constrained-community-in-india-and-how-we-overcame-some-of-them
#17
Preeti Sushama, Cristian Ghergu, Agnes Meershoek, Luc P de Witte, Onno C P van Schayck, Anja Krumeich
BACKGROUND: While any type of field-based research is challenging, building action-oriented, participatory research in resource-constrained settings can be even more so. OBJECTIVE: In this article, we aim to examine and provide insights into some of the practical challenges that were faced during the course of a participatory project based in two non-notified slums in Bangalore, India, aiming to build solutions to indoor air pollution from cooking on traditional cook stoves...
2018: Global Health Action
https://www.readbyqxmd.com/read/29349899/collaborative-child-home-injury-prevention-in-thailand-an-action-research-study
#18
Alison I Machin, Amornrat Ngamsuoy, Pauline Pearson
Child home accidental injury is a global health issue, and promoting child safety is a pediatric nursing challenge worldwide. Planning child home accidental injury prevention requires understanding of factors influencing parents' behavior. Evidence suggests that participatory health promotion positively influences behavior; however, research on Thai parents is limited. This qualitative, action research study aimed to understand Thai parents' experiences of participating in a collaborative child home accidental injury prevention program and its influence on their behavior...
January 18, 2018: Nursing & Health Sciences
https://www.readbyqxmd.com/read/29349217/the-mothers-on-respect-mor-index-measuring-quality-safety-and-human-rights-in-childbirth
#19
Saraswathi Vedam, Kathrin Stoll, Nicholas Rubashkin, Kelsey Martin, Zoe Miller-Vedam, Hermine Hayes-Klein, Ganga Jolicoeur
Background: Abuse of human rights in childbirth are documented in low, middle and high resource countries. A systematic review across 34 countries by the WHO Research Group on the Treatment of Women During Childbirth concluded that there is no consensus at a global level on how disrespectful maternity care is measured. In British Columbia, a community-led participatory action research team developed a survey tool that assesses women's experiences with maternity care, including disrespect and discrimination...
December 2017: SSM—Population Health
https://www.readbyqxmd.com/read/29349205/cool-young-people-investigate-living-in-cold-housing-and-fuel-poverty-a-mixed-methods-action-research-study
#20
Kimberley C O'Sullivan, Philippa Howden-Chapman, Dalice Sim, James Stanley, Rebekah L Rowan, Isobel K Harris Clark, Lydia L A Morrison
Background: Living in cold housing conditions and risk of fuel poverty presents a range of physiological and psychosocial health risks. Limited research has specifically investigated the effects of fuel poverty on children and young people, and even less has been conducted with youth input into the research process. Methods: The Cool? Study used mixed methods, participatory action research carried out with youth researchers involved at all stages through questionnaire design, analysis, qualitative design, e-interviewing and dissemination of results...
December 2017: SSM—Population Health
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