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Participatory action research

Jonathon Breen, Farinaz Havaei, Cristina Pitassi
PURPOSE: The purpose of this two-part study was to provide input into a strategy to improve employment opportunities for persons with disabilities in Armenia. BACKGROUND: Employment rates for persons with disabilities in Armenia have been variously reported between eight and 21%, much below the general employment rate of 82%. METHOD: First, a Participatory Action Research process led to the development of a 15 item self-report measure - the Perceived Barriers to Employing Persons with Disabilities Scale - which was administered to 158 employers...
April 17, 2018: Disability and Rehabilitation
Michelo Syakalima, Martin Simuunza, Victor Chisha Zulu
Aim: Ethno veterinary knowledge has rarely been recorded, and no or limited effort has been made to exploit this knowledge despite its widespread use in Zambia. This study documented the types of plants used to treat important animal diseases in rural Zambia as a way of initiating their sustained documentation and scientific validation. Materials and Methods: The study was done in selected districts of the Southern Zambia, Africa. The research was a participatory epidemiological study conducted in two phases...
February 2018: Veterinary World
Marie-Claude Tremblay, Debbie H Martin, Alex M McComber, Amelia McGregor, Ann C Macaulay
BACKGROUND: A longstanding challenge of community-based participatory research (CBPR) has been to anchor evaluation and practice in a relevant theoretical framework of community change, which articulates specific and concrete evaluative benchmarks. Social movement theories provide a broad range of theoretical tools to understand and facilitate social change processes, such as those involved in CBPR. Social movement theories have the potential to provide a coherent representation of how mobilization and collective action is gradually developed and leads to systemic change in the context of CBPR...
April 12, 2018: BMC Public Health
Andrea Young, Devidas Menon, Jackie Street, Walla Al-Hertani, Tania Stafinski
INTRODUCTION: Reimbursement decisions on orphan drugs carry significant uncertainty, and as the amount increases, so does the risk of making a wrong decision, where harms outweigh benefits. Consequently, patients often face limited access to orphan drugs. Managed access programmes (MAPs) are a mechanism for managing risk while enabling access to potentially beneficial drugs. Patients and their caregivers have expressed support for these programmes and see patient input as critical to successful implementation...
April 6, 2018: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
Noah J Glaser, Matthew Schmidt, Shari L Wade, Aimee Smith, Luke Turnier, Avani C Modi
This case study discusses the design, development, and formative evaluation of Epilepsy Journey, an individually-tailored, web-based intervention designed to address the unique executive functioning (EF) needs of adolescents with epilepsy. This intervention was designed through a three-phase iterative, patient-centered participatory action research process. First, a front-end analysis was completed to identify the unique needs of adolescents with epilepsy and initial design ideas via focus groups. Second, a preliminary design of the intervention was developed from focus group results...
December 2017: Journal of formative design in learning
Kirsten Budig, Julia Diez, Paloma Conde, Marta Sastre, Mariano Hernán, Manuel Franco
BACKGROUND: Photovoice is a visual research methodology with the intention to foster social change. Photovoice has been used to investigate change in empowerment in vulnerable communities, However, the individual experience of participants involved in Photovoice projects is seldom scrutinized. Our aim was to explore and describe the individual experiences of the female individuals who participated in a previous Photovoice project. We analyzed a change in the women's empowerment in terms of: 1) gain in knowledge and skills, 2) change in self-perception, and 3) access to and use of resources...
April 2, 2018: BMC Public Health
Katie Cueva, Ventura Lovato, Travis Nieto, Nicole Neault, Allison Barlow, Kristen Speakman
BACKGROUND: A mobile grocery (MoGro) was developed through a partnership with community stakeholders, community advisory boards (CABs), Rick and Beth Schnieders, and the Johns Hopkins Center for American Indian Health (JHCAIH). MoGro provided access to subsidized healthy foods, with complementary events, including fitness activities and cooking classes. OBJECTIVES: MoGro is an innovative approach to promoting food security. METHODS: Within a community-based participatory action research (CPBAR) framework, the JHCAIH and partners designed and administered household surveys at baseline and 3 months after MoGro's launch...
2018: Progress in Community Health Partnerships: Research, Education, and Action
Arely Anahy Paredes-Chi, María Teresa Castillo-Burguete
Normal schools in Mexico train teachers for basic level education. Classified as Higher Education Institutions, part of their mandate is to conduct scientific research to improve educational quality. Currently, normal school students can meet graduation requirements by either writing a thesis or reporting on professional practice using Participatory Action Research (PAR). Teachers at normal schools have only limited experience in conducting and supervising PAR projects. With the aim of analyzing the situation and addressing this paradox, we used PAR to develop a plan to train normal school teachers in application of PAR methodology...
March 26, 2018: Evaluation and Program Planning
Amy E Ritterbusch, Catalina Correa Salazar, Andrea Correa
Drawing from qualitative research conducted in a participatory action research framework with 28 transgender women in Colombia, this paper presents the stigma-related barriers to healthcare experienced by trans women and their experiences of multi-level violence within the healthcare system. The authors also discuss how advocacy work was conducted as part of the research process and how trans community leaders were involved throughout the project in order to promote policy-relevance and community-based implementation of findings...
March 27, 2018: Global Public Health
Hannah G Lane, Kathleen J Porter, Erin Hecht, Priscilla Harris, Jamie M Zoellner
Children and adolescents consume excessive amounts of sugar-sweetened beverages (SSBs), which are associated with adverse health outcomes. We describe a yearlong participatory research study to reduce SSBs in Central Appalachia, where excessive consumption is particularly prevalent. This study was conducted in partnership with a community advisory board in Southwest Virginia. Nine "youth ambassadors," aged 10 to 13 years helped to systematically adapt SIPsmartER, an effective theory-based program for Appalachian adults, to be age and culturally appropriate and meet desired theoretical objectives...
March 1, 2018: Health Promotion Practice
Michelle Teti, Erica Koegler, Donaldson F Conserve, Lara Handler, Melissa Bedford
We describe how Photovoice-a participatory method in which people express and share ideas via images-has been used in research with people living with HIV (PLWH). Four databases, reference lists, and journal tables of content were searched to identify peer-reviewed original research, in English, using Photovoice with a sample of PLWH, between 1994 and 2016. Of 1,898 citations identified, 22 studies were included. Studies included a mean of 18 (range 4-38) participants. Studies were of strong quality but lacked consistent procedures...
March 22, 2018: Journal of the Association of Nurses in AIDS Care: JANAC
Olivia Mitchell, Christina Malatzky, Lisa Bourke, Jane Farmer
BACKGROUND: The sickest Australians are often those belonging to non-privileged groups, including Indigenous Australians, gay, lesbian, bisexual, transsexual, intersex and queer people, people from culturally and linguistically diverse backgrounds, socioeconomically disadvantaged groups, and people with disabilities and low English literacy. These consumers are not always engaged by, or included within, mainstream health services, particularly in rural Australia where health services are limited in number and tend to be generalist in nature...
March 23, 2018: Australian Journal of Rural Health
Penny Dodds, Katharine Martyn, Mary Brown
This work was part of a National Institute for Health Research participatory action research and practice development study, which focused on the use of a therapeutic, robotic baby seal (PARO, for personal assistive robot) in everyday practice in a single-site dementia unit in Sussex. From the beginning of January 2017 until the end of September 2017, the cleaning and cleanliness of PARO was monitored through a service audit process that focused on the cleaning, amount of use and testing of contamination of PARO being used in everyday clinical practice with individuals and in group sessions...
March 23, 2018: Nursing Older People
Katie Cueva, Melany Cueva, Laura Revels, Anne P Lanier, Mark Dignan, K Viswanath, Teresa T Fung, Alan C Geller
Culturally relevant health promotion is an opportunity to reduce health inequities in diseases with modifiable risks, such as cancer. Alaska Native people bear a disproportionate cancer burden, and Alaska's rural tribal health workers consequently requested cancer education accessible online. In response, the Alaska Native Tribal Health Consortium cancer education team sought to create a framework for culturally relevant online learning to inform the creation of distance-delivered cancer education. Guided by the principles of community-based participatory action research and grounded in empowerment theory, the project team conducted a focus group with 10 Alaska Native education experts, 12 culturally diverse key informant interviews, a key stakeholder survey of 62 Alaska Native tribal health workers and their instructors/supervisors, and a literature review on distance-delivered education with Alaska Native or American Indian people...
March 22, 2018: Journal of Cancer Education: the Official Journal of the American Association for Cancer Education
Helena Van den Steene, Dirk van West, Griet Peeraer, Inge Glazemakers
This study, as a part of a participatory action research project, reports the development process of an innovative collaboration between child and adolescent psychiatry and child welfare, for adolescent girls with multiple and complex needs. The findings emerge from a qualitative descriptive analysis of four focus groups with 30 professionals closely involved in this project, and describe the evolution of the collaborative efforts and outcomes through time. Participants describe large investments and negative consequences of rapid organizational change in the beginning of the collaboration project, while benefits of the intensive collaboration only appeared later...
March 23, 2018: European Child & Adolescent Psychiatry
Frank Kupper, Louk W H Peters, Sarah M Stuijfzand, Heleen A A den Besten, Nicole M C van Kesteren
Diabetes treatment involves a demanding self-management regime that is particularly challenging to adolescents. There is a need for qualitative research into the specific contexts in which adolescents attempt to balance self-management demands with the needs and desires of adolescent life. This study investigates the usefulness of image theater, a participatory form of theater using the body as an expressive tool, to articulate these dilemmas in daily life contexts. We performed a qualitative analysis of two image theater workshops with 12- to 18-year-old adolescents living with diabetes...
January 2018: Global Qualitative Nursing Research
Courtney Rogers, Joy Johnson, Brianne Nueslein, David Edmunds, Rupa S Valdez
As chronic conditions are on the rise in the USA, management initiatives outside of the inpatient setting should be explored to reduce associated cost and access disparities. Chronic conditions disproportionately affect African American public housing residents due to the effects of historical marginalization on the manifestation of economic and social problems exacerbating health disparities and outcomes. Informed by participatory research action tenets, this study focused on identifying the challenges to management of chronic conditions and developing community-envisioned initiatives to address these challenges in a predominantly African American public housing community...
March 12, 2018: Journal of Racial and Ethnic Health Disparities
Liz Floyd, Fiona Bryce, Rohit Ramaswamy, Adeyemi Olufolabi, Emmanuel Srofenyoh, David Goodman, Nancy Pearson, Kerry Morgan, Cecilia Tetteh, Victoria Ahwireng, Medge Owen
OBJECTIVE: to introduce and embed a midwife-led obstetric triage system in a busy labour ward in Accra, Ghana to improve the quality of care and to reduce delay. DESIGN: the study utilized a participatory action research design. Local staff participated in baseline data collection, the triage training course design and delivery, and post-training monitoring and evaluation. SETTING: a regional referral hospital in Accra, Ghana undertaking 11,032 deliveries in 2012...
February 12, 2018: Midwifery
Jennifer Hebert-Beirne, Sarah Gabriella Hernandez, Jennifer Felner, Jessica Schwiesow, Anna Mayer, Kevin Rak, Noel Chávez, Yvette Castañeda, Joan Kennelly
In predominately immigrant neighborhoods, the nuances of immigrant life in the ethnic enclave have important, yet underappreciated impact on community health. The complexities of immigrant experiences are essential to unpacking and addressing the impact of acculturative processes on observed racial, ethnic, and class-based health disparities in the United States. These insights because they are largely unexplored are best captured qualitatively through academic-community research partnership. We established the participatory mixed method Little Village participatory community health assessment (CHA) to explore community health in an ethnic enclave...
March 8, 2018: Journal of Community Health
Ryan J Petteway, Payam Sheikhattari, Fernando Wagner
The growing prominence of community-based participatory research (CBPR) presents as an opportunity to improve tobacco-related intervention efforts. CBPR collaborations for tobacco/health, however, typically engage only adults, thus affording only a partial understanding of community context as related to tobacco. This is problematic given evidence around age of tobacco use initiation and the influence of local tobacco environments on youth. The CEASE and Resist youth photovoice project was developed as part of the Communities Engaged and Advocating for a Smoke-free Environment (CEASE) CBPR collaboration in Southwest Baltimore...
March 1, 2018: Health Promotion Practice
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