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Participatory action research

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https://www.readbyqxmd.com/read/29034670/-community-based-research-in-therapeutic-patient-education-practices-and-contributions-a-literature-review
#1
Olivia Gross, Vincent de Andrade, Rémi Gagnayre
INTRODUCTION: Community-based research (CBR) in health involves both researchers and people concerned by the results of the research. It aims to empower populations, using their exposure to the phenomenon being studied as a starting point. The use of CBR in the field of therapeutic patient education (TPE) is of interest, as the two share such characteristics as the desire to foster self-reliance and participation and a culture of interdisciplinarity. AIM: To characterize CBR in the therapeutic patient education field...
October 2, 2017: Santé Publique: Revue Multidisciplinaire Pour la Recherche et L'action
https://www.readbyqxmd.com/read/29027661/negotiating-ethical-paradoxes-in-conducting-a-randomized-controlled-trial-aligning-intervention-science-with-participatory-values
#2
Shabnam Javdani, Sukhmani Singh, Corianna E Sichel
In this article, we describe ethical tensions we have faced in the context of our work as intervention scientists, where we aim to promote social justice and change systems that impact girls involved in the juvenile legal system. These ethical tensions are, at their core, about resisting collusion with systems of control while simultaneously collaborating with them. Over the course of designing and implementing a randomized controlled trial (RCT) of an ecological advocacy intervention for girls, called ROSES, ethical paradoxes crystalized and prompted us to engage in critical reflection and action toward the aim of moving away from conducting research on legal-system-involved girls and moving toward a more democratic, participatory process of inquiry with girls...
October 13, 2017: American Journal of Community Psychology
https://www.readbyqxmd.com/read/29024214/regenerative-medicine-stroke-survivor-and-carer-views-and-motivations-towards-a-proposed-stem-cell-clinical-trial-using-placebo-neurosurgery
#3
Nicola A Cunningham, Purva Abhyankar, Julie Cowie, Jayne Galinsky, Karen Methven
BACKGROUND: Few studies explore stroke survivor views and motivations towards stem cell therapy (SCT). This qualitative study explores the views and motivations of both stroke survivors and their partners/carers towards a proposed 2-arm Phase III Randomised Controlled Trial (RCT) comparing intracerebral insertion of stem cells with placebo neurosurgery in stroke survivors with disability. OBJECTIVE: To explore views and motivations towards a proposed 2-arm stem cell trial and identify factors that may impede and enhance participation...
October 12, 2017: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
https://www.readbyqxmd.com/read/29017337/promoting-face-to-face-dialogue-for-community-engagement-in-a-digital-age
#4
Lynn S Scruby, Mary K Canales, Evelyn Ferguson, David Gregory
Background Health researchers in urban centers recognize the need to engage with inner-city community-based organizations. Funding for face-to-face engagement is often limited because most work done by agencies and academics now focuses on the use of digital technology. Purpose This article presents reflections from a grant project aimed at establishing community engagement between academic health researchers and interdisciplinary inner-city community health and social service providers. Method This study utilized a community-based participatory action approach...
January 1, 2017: Canadian Journal of Nursing Research, Revue Canadienne de Recherche en Sciences Infirmières
https://www.readbyqxmd.com/read/29016153/the-implementation-and-effect-of-trauma-informed-care-within-residential-youth-services-in-rural-canada-a-mixed-methods-case-study
#5
Courtney N Baker, Steven M Brown, Patricia Wilcox, Jorge M Verlenden, Corey L Black, Billie-Jo E Grant
OBJECTIVE: The prevalence and associated risks of trauma have led youth-serving institutions to adopt trauma-informed care (TIC). A limited research base has linked TIC with improved outcomes. Associations between TIC and vicarious traumatization (VT) are even less commonly studied. The purpose of this case study is to evaluate the implementation and effect of TIC within 1 residential youth services division in rural Canada using the curriculum-based Risking Connection (RC; Saakvitne et al...
October 9, 2017: Psychological Trauma: Theory, Research, Practice and Policy
https://www.readbyqxmd.com/read/28994646/envisioning-eye-care-from-a-rural-perspective-a-photovoice-project-from-india
#6
Padmaja Kumari Rani, Rajita Kasoju, Venkatiah Komara, Raju Kothapalli, Devichandar Choudary, Jyothi Korani, Jachin D Williams, Clifton M Schor, Nance Wilson
Background To understand barriers and promoters for accessing eye care by rural communities, we used a modified approach to Photovoice, a community-based participatory action research approach Methods Community members took photographs and wrote or spoke stories based upon a series of questions intended to facilitate deeper thinking. Fifteen rural paramedical team members who were affiliated with the rural network of L V Prasad Eye Institute, and 60 people from four villages reported barriers and promoters for eye care access for 20 villages Results Important barriers for accessing eye care included the following: no caretaker at home for grandchildren except for the grandparent(s), alcoholism, uncontrolled blood pressure, inadequate diabetes management, lack of escort for blind people and elders, affordability, and inadequate clinic staffing during summer season when farming villagers were available...
January 1, 2017: International Quarterly of Community Health Education
https://www.readbyqxmd.com/read/28993391/evaluating-a-novel-integrated-community-of-care-icoc-for-patients-from-an-urbanised-low-income-community-in-singapore-using-the-participatory-action-research-par-methodology-a-study-protocol
#7
Lian Leng Low, Adlina Maulod, Kheng Hock Lee
INTRODUCTION: Poorer health outcomes and disproportionate healthcare use in socioeconomically disadvantaged patients is well established. However, there is sparse literature on effective integrated care interventions that specifically target these high-risk individuals. The Integrated Community of Care (ICoC) is a novel care model that integrates hospital-based transitional care with health and social care in the community for high-risk individuals living in socially deprived communities...
October 8, 2017: BMJ Open
https://www.readbyqxmd.com/read/28977373/contextual-factors-for-aging-well-creating-socially-engaging-spaces-through-the-use-of-deliberative-dialogues
#8
Sarah L Canham, Mei Lan Fang, Lupin Battersby, Ryan Woolrych, Judith Sixsmith, Tori Hui Ren, Andrew Sixsmith
Purpose of the Study: Home and community engagement are key contextual factors for aging well, particularly for older adults in vulnerable social positions. A community-based participatory action research project conducted in Western Canada examined how to best use the shared amenity spaces in a low-income seniors' apartment complex in order to connect services and programs with tenants and to provide opportunities for service providers and local stakeholders to build upon and create new relationships toward collaboration and service delivery...
July 25, 2017: Gerontologist
https://www.readbyqxmd.com/read/28974432/what-motivates-their-food-choice-children-are-key-informants
#9
Suzie Waddingham, Kelly Shaw, Pieter Van Dam, Silvana Bettiol
In Australia, children are not eating according to the Australian Dietary Guidelines despite the incorporation of numerous public health initiatives in the school setting. Literature regarding children's views about what influences their food choice is limited. Incorporating children in the creation of strategies to build healthy public policy aligns with the World Health Organisation (WHO) Ottawa Charter framework. In this qualitative study we used participatory action research to determine why children make the food choices they do...
September 30, 2017: Appetite
https://www.readbyqxmd.com/read/28972525/integrating-participatory-design-and-health-literacy-to-improve-research-and-interventions
#10
Linda Neuhauser
Health communication is an essential health promotion strategy to convert scientific findings into actionable, empowering information for the public. Health communication interventions have shown positive outcomes, but many efforts have been disappointing. A key weakness is that expert-designed health communication is often overly generic and not adequately aligned with the abilities, preferences and life situations of specific audiences. The emergence of the field of health literacy is providing powerful theoretical guidance and practice strategies...
2017: Studies in Health Technology and Informatics
https://www.readbyqxmd.com/read/28962648/the-challenge-of-complexity-in-evaluating-health-policies-and-programs-the-case-of-women-s-participatory-groups-to-improve-antenatal-outcomes
#11
Sara Van Belle, Susan Rifkin, Bruno Marchal
BACKGROUND: During the last years, randomized designs have been promoted as the cornerstone of evidence-based policymaking. Also in the field of community participation, Random Control Trials (RCTs) have been the dominant design, used for instance to examine the contribution of community participation to health improvement. We aim at clarifying why RCTs and related (quasi-) experimental designs may not be the most appropriate approach to evaluate such complex programmes. RESULTS: We argue that the current methodological debate could be more fruitful if it would start from the position that the choice of designs should fit the nature of the program and research questions rather than be driven by methodological preferences...
September 29, 2017: BMC Health Services Research
https://www.readbyqxmd.com/read/28946855/an-intervention-strategy-for-improving-residential-environment-and-positive-mental-health-among-public-housing-tenants-rationale-design-and-methods-of-flash-on-my-neighborhood
#12
Janie Houle, Simon Coulombe, Stephanie Radziszewski, Xavier Leloup, Thomas Saïas, Juan Torres, Paul Morin
BACKGROUND: In Canada, public housing programs are an important part of governmental strategies to fight poverty and public exclusion. The Flash on my neighborhood! project is a four-year multiphase community-based participatory action research strategy currently implemented in six public housing developments (n = 1009 households) across the province of Québec, Canada. The goal is to reduce the mental health disparities faced by these public housing tenants compared to the general population, while identifying which environmental and policy changes are needed to turn public housing settings into healthier environments...
September 25, 2017: BMC Public Health
https://www.readbyqxmd.com/read/28929301/urban-heart-detroit-a-tool-to-better-understand-and-address-health-equity-gaps-in-the-city
#13
R Mehdipanah, A J Schulz, B A Israel, C Gamboa, Z Rowe, M Khan, A Allen
The Urban Health Equity Assessment Response Tool (Urban HEART) combines statistical evidence and community knowledge to address urban health inequities. This paper describes the process of adopting and implementing this tool for Detroit, Michigan, the first city in the USA to use it. The six steps of Urban HEART were implemented by the Healthy Environments Partnership, a community-based participatory research partnership made up of community-based organizations, health service providers, and researchers based in academic institutions...
September 19, 2017: Journal of Urban Health: Bulletin of the New York Academy of Medicine
https://www.readbyqxmd.com/read/28928168/factors-that-support-successful-transition-to-the-community-among-women-leaving-prison-in-british-columbia-a-prospective-cohort-study-using-participatory-action-research
#14
Patricia A Janssen, Mo Korchinski, Sarah L Desmarais, Arianne Y K Albert, Lara-Lisa Condello, Marla Buchanan, Alison Granger-Brown, Vivian R Ramsden, Lynn Fels, Jane A Buxton, Carl Leggo, Ruth Elwood Martin
BACKGROUND: In Canada, the number of women sentenced to prison has almost doubled since 1995. In British Columbia, the rate of reincarceration is 70% within 2 years. Our aim was to identify factors associated with recidivism among women in British Columbia. METHODS: We prospectively followed women after discharge from provincial corrections centres in British Columbia. We defined recidivism as participation in criminal activity disclosed by participants during the year following release...
September 13, 2017: CMAJ Open
https://www.readbyqxmd.com/read/28922022/implementing-a-collaborative-coaching-intervention-for-professionals-providing-care-to-children-and-their-families-an-exploratory-study
#15
Sandy K Tatla, Dori Howard, Alda Antunes Silvestre, Stacey Burnes, Meghan Husson, Tal Jarus
The growing complexity of healthcare requires family and interprofessional partnerships to deliver effective care. Interprofessional coaching can enhance family-centred practice and collaboration. The purpose of this study was to explore the acceptability and feasibility of collaborative coaching training to improve family centredness within acute paediatric rehabilitation. Using a participatory action design, service providers (SPs; n = 36) underwent a 6-month coaching programme involving coaching workshops, learning triads, and tailored sessions with a licensed coach...
September 2017: Journal of Interprofessional Care
https://www.readbyqxmd.com/read/28920050/management-of-chronic-daily-headache-and-psychiatric-co-morbidities-by-lifestyle-modification-participatory-action-research-combining-new-communication-media
#16
Fakhrudin Faizi, Abbas Tavallaee, Abolfazl Rahimi, Masoud Saghafinia
BACKGROUND: Lifestyle modification has a significant role in chronic daily headache (CDH) management. Participatory action research (PAR) can play an important role in managing chronic medical conditions. However, it has been scarcely used in CDH management. OBJECTIVES: This study aimed to empower patients with CDH to modify their lifestyle in order to reduce both their headache and related psychiatric co-morbidities in a multidisciplinary headache clinic at Baqiyatallah hospital, Tehran, IR Iran...
April 2017: Anesthesiology and Pain Medicine
https://www.readbyqxmd.com/read/28915842/towards-the-development-of-a-wellbeing-model-for-aboriginal-and-torres-strait-islander-peoples-living-with-chronic-disease
#17
Carol Davy, Elaine Kite, Leda Sivak, Alex Brown, Timena Ahmat, Gary Brahim, Anna Dowling, Shaun Jacobson, Tania Kelly, Kaylene Kemp, Fiona Mitchell, Tina Newman, Margaret O'Brien, Jason Pitt, Kesha Roesch, Christine Saddler, Maida Stewart, Tiana Thomas
BACKGROUND: Re-defining the way in which care is delivered, to reflect Aboriginal and Torres Strait Islander peoples' needs and values, is essential for improving the accessibility of primary healthcare. This study focused on developing a Framework to support the quality of care and quality of life of, as well as treatment for, Aboriginal and Torres Strait Islander peoples living with chronic disease. METHODS: A team of researchers, including thirteen experienced Aboriginal healthcare professionals, came together to undertake this important work...
September 15, 2017: BMC Health Services Research
https://www.readbyqxmd.com/read/28913882/reducing-disparities-in-cancer-screening-and-prevention-through-community-based-participatory-research-partnerships-with-local-libraries-a-comprehensive-dynamic-trial
#18
Bruce D Rapkin, Elisa Weiss, David Lounsbury, Tamara Michel, Alexis Gordon, Jennifer Erb-Downward, Eilleen Sabino-Laughlin, Alison Carpenter, Carolyn E Schwartz, Linda Bulone, Margaret Kemeny
Reduction of cancer-related disparities requires strategies that link medically underserved communities to preventive care. In this community-based participatory research project, a public library system brought together stakeholders to plan and undertake programs to address cancer screening and risk behavior. This study was implemented over 48 months in 20 large urban neighborhoods, selected to reach diverse communities disconnected from care. In each neighborhood, Cancer Action Councils were organized to conduct a comprehensive dynamic trial, an iterative process of program planning, implementation and evaluation...
September 15, 2017: American Journal of Community Psychology
https://www.readbyqxmd.com/read/28911749/effect-of-participatory-women-s-groups-and-counselling-through-home-visits-on-children-s-linear-growth-in-rural-eastern-india-caring-trial-a-cluster-randomised-controlled-trial
#19
Nirmala Nair, Prasanta Tripathy, H S Sachdev, Hemanta Pradhan, Sanghita Bhattacharyya, Rajkumar Gope, Sumitra Gagrai, Shibanand Rath, Suchitra Rath, Rajesh Sinha, Swati Sarbani Roy, Suhas Shewale, Vijay Singh, Aradhana Srivastava, Anthony Costello, Andrew Copas, Jolene Skordis-Worrall, Hassan Haghparast-Bidgoli, Naomi Saville, Audrey Prost
BACKGROUND: Around 30% of the world's stunted children live in India. The Government of India has proposed a new cadre of community-based workers to improve nutrition in 200 districts. We aimed to find out the effect of such a worker carrying out home visits and participatory group meetings on children's linear growth. METHODS: We did a cluster-randomised controlled trial in two adjoining districts of Jharkhand and Odisha, India. 120 clusters (around 1000 people each) were randomly allocated to intervention or control using a lottery...
October 2017: Lancet Global Health
https://www.readbyqxmd.com/read/28901552/improving-the-therapeutic-relationship-in-inpatient-psychiatric-care-assessment-of-the-therapeutic-alliance-and-empathy-after-implementing-evidence-based-practices-resulting-from-participatory-action-research
#20
Antonio R Moreno-Poyato, Pilar Delgado-Hito, Raquel Suárez-Pérez, Teresa Lluch-Canut, Juan F Roldán-Merino, Pilar Montesó-Curto
PURPOSE: To examine how evidence about the therapeutic alliance gleaned from participatory action project affected the level of this alliance and the degree of empathy of psychiatric nurses. DESIGN AND METHODS: Quasi-experimental study in two psychiatric units. In one group, evidence-based practices that affected the therapeutic alliance were implemented; in the comparison group, there was no such intervention. FINDINGS: The nurses from the intervention group improved their degree of empathy and factors such as agreement on objectives and tasks with the patient...
September 13, 2017: Perspectives in Psychiatric Care
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