Jeffrey Phillip Jacobs, Marshall Lewis Jacobs, Constantine Mavroudis, Carl Lewis Backer, Francois G Lacour-Gayet, Christo I Tchervenkov, Rodney C G Franklin, Marie J Béland, Kathy J Jenkins, Hal Walters, Emile A Bacha, Bohdan Maruszewski, Hiromi Kurosawa, David Robinson Clarke, J William Gaynor, Thomas L Spray, Giovanni Stellin, Tjark Ebels, Otto N Krogmann, Vera D Aiello, Steven D Colan, Paul Weinberg, Jorge M Giroud, Allen Everett, Gil Wernovsky, Martin J Elliott, Fred H Edwards
This review discusses the historical aspects, current state of the art, and potential future advances in the areas of nomenclature and databases for the analysis of outcomes of treatments for patients with congenitally malformed hearts. We will consider the current state of analysis of outcomes, lay out some principles which might make it possible to achieve life-long monitoring and follow-up using our databases, and describe the next steps those involved in the care of these patients need to take in order to achieve these objectives...
December 2008: Cardiology in the Young