keyword
https://read.qxmd.com/read/38728325/-hearing-the-pupils-voices-through-my-own-struggles-a-qualitative-study-of-return-to-work-among-school-counselors-who-are-breast-cancer-survivors
#1
JOURNAL ARTICLE
Inbar Levkovich, Lahav Rosman, Christina Signorelli
For breast cancer survivors, returning to work is an important step for their personal, financial, and psycho-social recovery. Returning to work as a school counselor can be particularly challenging because of the demands of their job and stress at work. This qualitative study examines return to work among school counselors who are breast cancer survivors. In-depth, semi-structured interviews were conducted with 28 survivors of breast cancer stages I-III between the ages of 32 and 55, and up to ten years after the completion of chemotherapy...
2024: PloS One
https://read.qxmd.com/read/38726087/tele-psychotherapy-for-individuals-with-obsessive-compulsive-disorder-during-the-covid-19-outbreak-a-qualitative-study
#2
JOURNAL ARTICLE
Batul Tadayon Chaharshughi, Razieh Izadi, Azam Naghavi
BACKGROUND: One way of delivering psychological services is tele-psychotherapy, which has attracted significant attention as a viable approach. This study aimed to identify important variables in the application of tele-counseling and psychotherapy for the treatment of patients with obsessive-compulsive disorder (OCD) in Isfahan, Iran. MATERIALS AND METHODS: This research employed an exploratory qualitative methodology. The participants of this study consisted of all the clients with OCD and all the psychotherapists in the city of Isfahan...
2024: Journal of Education and Health Promotion
https://read.qxmd.com/read/38720307/structural-and-social-changes-due-to-the-covid-19-pandemic-and-their-impact-on-engagement-in-substance-use-disorder-treatment-services-a-qualitative-study-among-people-with-a-recent-history-of-injection-drug-use-in-baltimore-maryland
#3
JOURNAL ARTICLE
Eshan U Patel, Suzanne M Grieb, Abigail K Winiker, Jennifer Ching, Catherine G Schluth, Shruti H Mehta, Gregory D Kirk, Becky L Genberg
BACKGROUND: Substance use disorder treatment and recovery support services are critical for achieving and maintaining recovery. There are limited data on how structural and social changes due to the COVID-19 pandemic impacted individual-level experiences with substance use disorder treatment-related services among community-based samples of people who inject drugs. METHODS: People with a recent history of injection drug use who were enrolled in the community-based AIDS Linked to the IntraVenous Experience study in Baltimore, Maryland participated in a one-time, semi-structured interview between July 2021 and February 2022 about their experiences living through the COVID-19 pandemic (n = 28)...
May 8, 2024: Harm Reduction Journal
https://read.qxmd.com/read/38715723/the-latrobe-smoking-support-service-a-quantitative-study-of-participants-in-a-regional-area
#4
JOURNAL ARTICLE
Joanne E Porter, Daria Soldatenko, Kaye Borgelt, Lauren Sewell, Valerie Prokopiv, Megan Simic, Michelle James, Vaughan Reimers
BACKGROUND AND AIMS: More than 70% of current smokers in Australia have a definite plan to stop smoking and around half of them try to quit every year. Latrobe Community Health Service (LCHS) was commissioned by Gippsland Primary Health Network to establish Latrobe Smoking Support Service (LSSS) to break down barriers to accessing services and increase support for smoking cessation. This research aims to assess the feasibility of an ongoing smoking cessation support service and determine the effect the LSSS has on client smoking behavior...
May 2024: Health Science Reports
https://read.qxmd.com/read/38714589/genetic-testing-resources-and-practice-patterns-among-pediatric-cardiomyopathy-programs
#5
JOURNAL ARTICLE
Justin Godown, Emily H Kim, Melanie D Everitt, Wendy K Chung, Irene D Lytrivi, Sonya Kirmani, Paul F Kantor, Stephanie M Ware, Jean A Ballweg, Ashwin K Lal, Neha Bansal, Jeffrey Towbin, Steven E Lipshultz, Teresa M Lee
The use of genetic testing has enhanced the diagnostic accuracy of heritable genetic cardiomyopathies. However, it remains unclear how genetic information is interpreted and incorporated into clinical practice for children with cardiomyopathy. The primary aim of this study was to understand how clinical practice differs regarding sequence variant classifications amongst pediatric cardiologists who treat children with cardiomyopathy. A secondary aim was to understand the availability of genetic testing and counseling resources across participating pediatric cardiomyopathy programs...
May 7, 2024: Pediatric Cardiology
https://read.qxmd.com/read/38712894/wic-peer-counselors-support-breastfeeding-among-wic-participants
#6
JOURNAL ARTICLE
Lisa Wagner, Carolyn A Phillips
BACKGROUND: The Special Supplemental Nutrition Program for Women, Infants, and Children, also known as WIC, is associated with improved health outcomes for participants. The role of WIC Peer Counselors was created to support breastfeeding among WIC participants. OBJECTIVE: This Naturalistic Inquiry study explored the perceptions and experiences of 9 WIC Peer Counselors located in Southeast Texas. METHODS: The WIC Peer Counselors were recruited via purposive and snowball sampling and participated in semi-structured face-to-face interviews...
May 7, 2024: Western Journal of Nursing Research
https://read.qxmd.com/read/38711721/algorithms-for-empathy-using-machine-learning-to-categorize-common-empathetic-traits-across-professional-and-peer-based-conversations
#7
JOURNAL ARTICLE
Scott Provence, Alyssa A Forcehimes
Introduction In this article, we describe our creation of a machine-learning model that uses a combination of rule-based and natural language processing (NLP) algorithms. We show how this "Empathy Algorithm" was developed and how its results compare to three datasets of professional counseling and peer-led conversations.  Methods These conversation datasets were rated by people with varying degrees of empathetic expertise (from counselors to student volunteers) and labeled as either low- or high-quality empathy...
April 2024: Curēus
https://read.qxmd.com/read/38711401/outcomes-of-a-universal-germline-screening-program-in-a-community-urology-practice
#8
JOURNAL ARTICLE
Neil Mendhiratta, Herman Hauver, Whitley Hatton, Andrew Ostrusky, Devika S Sathe, Sandeep Gurram, Patricia Rice, Heather Chalfin
The role of germline genetic testing in urologic oncology has expanded in recent years. However, implementation of genetic testing in community practices remains a challenge, often due to limited access to qualified genetics trained providers. In this study, we report outcomes of a universal germline screening program in a community urology practice. Between November 2021 and September 2022, all patients referred for urology clinic visits at Frederick Health (Frederick, MD, USA) were provided an online genetics screening questionnaire prior to the visit...
May 7, 2024: Clinical Genetics
https://read.qxmd.com/read/38701074/effectiveness-of-an-ehealth-intervention-for-reducing-psychological-distress-and-increasing-covid-19-knowledge-and-protective-behaviors-among-racialized-sexual-and-gender-minority-adults-a-quasi-experimental-study-safehandssafehearts
#9
JOURNAL ARTICLE
Peter A Newman, Venkatesan Chakrapani, Notisha Massaquoi, Charmaine C Williams, Wangari Tharao, Suchon Tepjan, Surachet Roungprakhon, Joelleann Forbes, Sarah Sebastian, Pakorn Akkakanjanasupar, Muna Aden
PURPOSE: Sexual and gender minority and racialized populations experienced heightened vulnerability during the Covid-19 pandemic. Marginalization due to structural homophobia, transphobia and racism, and resulting adverse social determinants of health that contribute to health disparities among these populations, were exacerbated by the Covid-19 pandemic and public health measures to control it. We developed and tested a tailored online intervention (#SafeHandsSafeHearts) to support racialized lesbian, gay, bisexual, transgender, queer, and other persons outside of heteronormative and cisgender identities (LGBTQ+) in Toronto, Canada during the pandemic...
2024: PloS One
https://read.qxmd.com/read/38698439/information-needs-of-lynch-syndrome-and-brca-1-2-mutation-carriers-considering-risk-reducing-gynecological-surgery-a-qualitative-study-of-the-decision-making-process
#10
JOURNAL ARTICLE
Lucy Zhao, Lorrie Lynch, Lua Eiriksson
BACKGROUND: Risk-reducing gynecological surgery (RRGS) is a prophylactic procedure that may be offered to BRCA1, BRCA2, and Lynch syndrome (LS) mutation carriers to reduce the risk of developing gynecological cancer. This study was conducted to better understand patients' information needs and evaluate how patients weigh different sources of information in their decision-making process surrounding RRGS. METHODS: This study used a qualitative approach to understanding women's perspectives towards RRGS...
May 2, 2024: Hereditary Cancer in Clinical Practice
https://read.qxmd.com/read/38695616/genetic-counseling-access-and-service-delivery-in-new-york-state-is-variable-for-parents-of-infants-with-complex-cftr-genotypes-conferring-uncertain-phenotypes
#11
JOURNAL ARTICLE
Denise M Kay, Hossein Sadeghi, Catherine Kier, Maria Berdella, Joan K DeCelie-Germana, Zafer N Soultan, Danielle M Goetz, Michele Caggana, Christopher N Fortner, Robert Giusti, Robert Kaslovsky, Colleen Stevens, Karen Voter, John J Welter, Elinor Langfelder-Schwind
BACKGROUND: New York State (NYS) utilizes a three-tiered cystic fibrosis newborn screening (CFNBS) algorithm that includes cystic fibrosis transmembrane conductance regulator (CFTR) gene sequencing. Infants with >1 CFTR variant of potential clinical relevance, including variants of uncertain significance or varying clinical consequence are referred for diagnostic evaluation at NYS cystic fibrosis (CF) Specialty Care Centers (SCCs). AIMS: As part of ongoing quality improvement efforts, demographic, screening, diagnostic, and clinical data were evaluated for 289 CFNBS-positive infants identified in NYS between December 2017 and November 2020 who did not meet diagnostic criteria for CF and were classified as either: CFTR-related metabolic syndrome/CF screen positive, inconclusive diagnosis (CRMS/CFSPID) or CF carriers...
May 2, 2024: Pediatric Pulmonology
https://read.qxmd.com/read/38682751/genetic-counseling-for-the-dystrophinopathies-practice-resource-of-the-national-society-of-genetic-counselors
#12
REVIEW
Angela M Pickart, Ann S Martin, Brianna N Gross, Lisa M Dellefave-Castillo, Leslie M McCallen, Chinmayee B Nagaraj, Alyssa L Rippert, Catherine P Schultz, Elizabeth A Ulm, Niki Armstrong
The dystrophinopathies encompass the phenotypically variable forms of muscular dystrophy caused by pathogenic variants in the DMD gene. The dystrophinopathies include the most common inherited muscular dystrophy among 46,XY individuals, Duchenne muscular dystrophy, as well as Becker muscular dystrophy and other less common phenotypic variants. With increased access to and utilization of genetic testing in the diagnostic and carrier setting, genetic counselors and clinicians in diverse specialty areas may care for individuals with and carriers of dystrophinopathy...
April 29, 2024: Journal of Genetic Counseling
https://read.qxmd.com/read/38676915/negative-clinic-experiences-as-a-barrier-to-care-for-people-with-hiv-and-their-impact-on-patient-preferences-for-intervention-support-a-qualitative-study-in-cape-town-south-africa
#13
JOURNAL ARTICLE
Clare Killian, Rebecca L West, Catherine Orrell, Allen Gifford, Jessica E Haberer, Nafisa Halim, Lauren Jennings, Natacha Berkowitz, Stephanie Fourie, Lora Sabin
We conducted qualitative research among people with HIV (PWH) and care providers in Cape Town, South Africa to understand the impact of negative clinic experiences on adherence and support preferences. In-depth interviews were conducted with 41 patients with an unsuppressed viral load or a treatment gap, and focus group discussions with physicians, nurses, counselors, and community health workers. Questions addressed treatment history and adherence barriers, then participants evaluated evidence-based adherence interventions for potential scale up...
April 27, 2024: AIDS Care
https://read.qxmd.com/read/38672679/no-racial-disparities-observed-using-point-of-care-genetic-counseling-and-testing-for-endometrial-and-ovarian-cancer-in-a-diverse-patient-population-a-retrospective-cohort-study
#14
JOURNAL ARTICLE
Michael Kim, Judy Hayek, Cheyenne Acker, Anjile An, Peilin Zhang, Constantine Gorelick, Margaux J Kanis
We investigated genetic counseling and testing rates for patients with gynecologic malignancy at a tertiary care center with a large minority population. Our retrospective cohort included newly diagnosed epithelial ovarian, fallopian tube, peritoneal, or endometrial cancer patients between January 2014 and June 2022. For endometrial cancer, 373 patients were identified. A total of 207 (55%) patients were screened using mismatch repair immunohistochemistry (MMR IHC). A total of 82 (40%) had MMR deficiencies on IHC...
April 22, 2024: Cancers
https://read.qxmd.com/read/38664768/the-role-of-clinic-based-breastfeeding-peer-counseling-on-breastfeeding-rates-among-low-income-patients
#15
JOURNAL ARTICLE
Yetunde Awosemusi, Lauren Keenan-Devlin, Noelle Griffin Martinez, Lynn M Yee, Ann E B Borders
BACKGROUND: Despite the benefits of breastfeeding (BF), rates remain lower than public health targets, particularly among low-income Black populations. Community-based breastfeeding peer counselor (BPC) programs have been shown to increase BF. We sought to examine whether implementation of a BPC program in an obstetric clinical setting serving low-income patients was associated with improved BF initiation and exclusivity. METHODS: This is a quasi-experimental time series study of pregnant and postpartum patients receiving care before and after implementation of a BPC program in a teaching hospital affiliated prenatal clinic...
April 25, 2024: BMC Pregnancy and Childbirth
https://read.qxmd.com/read/38654739/analysis-of-spinal-muscular-atrophy-carrier-screening-results-in-32-416-pregnant-women-and-7-231-prepregnant-women
#16
JOURNAL ARTICLE
Bing-Bo Zhou, Xue Chen, Chuan Zhang, Yu-Pei Wang, Pan-Pan Ma, Sheng-Ju Hao, Ling Hui, Yun-Fei Bai
OBJECTIVES: Spinal muscular atrophy (SMA) is an autosomal recessive disease that is one of the most common in childhood neuromuscular disorders. Our screenings are more meaningful programs in preventing birth defects, providing a significant resource for healthcare professionals, genetic counselors, and policymakers involved in designing strategies to prevent and manage SMA. METHOD: We screened 39,647 participants from 2020 to the present by quantitative real-time PCR, including 7,231 pre-pregnancy participants and 32,416 pregnancy participants, to detect the presence of SMN1 gene EX7 and EX8 deletion in the DNA samples provided by the subjects...
2024: Frontiers in Neurology
https://read.qxmd.com/read/38653471/-on-the-potential-of-prevention-counselors-in-the-primary-care-setting-evaluation-study-of-an-intervention-in-the-state-of-brandenburg-germany
#17
JOURNAL ARTICLE
Tim Holetzek, Sylvia Euler, Philipp Jaehn, Laura Josephin Schliephacke, Andrea Trunev, Christine Holmberg
PURPOSE OF THE STUDY: The study investigates the extent to which medical assistants can support primary prevention measures in family practices as prevention advisors. METHODS: Between July 2019 and December 2020, preventive measures were implemented by trained prevention counselors in general practitioners' practices in a rural region in Brandenburg. They consisted of longer-term support for individuals in lifestyle changes in the areas of "nutrition", "exercise" and "relaxation"...
April 23, 2024: Das Gesundheitswesen
https://read.qxmd.com/read/38652533/testing-the-effectiveness-of-an-intervention-to-improve-romanian-teachers-lgbt-related-attitudes-cognitions-behaviors-and-affect-protocol-for-a-randomized-controlled-trial
#18
RANDOMIZED CONTROLLED TRIAL
Ioana Latu, Nastasia Sălăgean, Torill M B Larsen, Andreea Bogdana Isbasoiu, Florin Alin Sava
BACKGROUND: Repeated stigmatization due to group membership constitutes a recurrent stressor with negative impact on physical and mental health (minority stress model). Among European countries, Romania ranks low on LGBT+ (lesbian, gay, bisexual, and transgender people. The "+" represents individuals whose identities do not fit typical binary notions of male and female [nonbinary]) inclusion, with 45% of Romanian LGBT+ respondents reporting discrimination in at least 1 area of life in the year preceding the survey...
April 23, 2024: JMIR Research Protocols
https://read.qxmd.com/read/38652248/genetic-aortopathies-a-case-based-approach-to-multidisciplinary-program-development
#19
JOURNAL ARTICLE
Christopher P Jordan, Akos Berthold, Jason Bonomo
PURPOSE OF REVIEW: The incorporation of genetic counseling and testing is essential to evaluation and management of thoracic aortic disease in patients under 60 years of age and those with family histories suspicious for heritable thoracic aortic disease and disorders associated with increased risk for acute type-A aortic dissection. RECENT FINDINGS: As many as 20% of individuals with thoracic aortic disease under the age of 60 years have autosomal dominant patterns of inheritance...
April 22, 2024: Current Opinion in Cardiology
https://read.qxmd.com/read/38650489/comparative-effectiveness-of-clinician-versus-peer-supported-problem-solving-therapy-for-rural-older-adults-with-depression
#20
JOURNAL ARTICLE
Brooke Hollister, Rebecca Crabb, Patricia Areán
OBJECTIVE: Self-guided and peer-supported treatments for depression among rural older adults may address some common barriers to treatment. This pilot study compared the effect on depression of peer-supported, self-guided problem-solving therapy (SG-PST) with case management problem-solving therapy (CM-PST) among older adults in rural California. METHODS: Older adults with depression (N=105) received an introductory PST session with a clinician, followed by 11 sessions of CM-PST with a clinician (N=85) or SG-PST with a peer counselor (N=20)...
April 23, 2024: Psychiatric Services: a Journal of the American Psychiatric Association
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