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Palliative care, end of life care, hospice

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https://www.readbyqxmd.com/read/29439104/costs-at-the-end-of-life-perspectives-for-north-carolina
#1
Natalie C Ernecoff, Sally C Stearns
Many elders require supportive services, with many costs covered by Medicaid. Once terminal illness sets in, palliative care and hospice may help control cost while ensuring quality. This commentary reviews trends in cost at the end of life and describes selected strategies to improve patient-centered care in North Carolina.
January 2018: North Carolina Medical Journal
https://www.readbyqxmd.com/read/29427739/predictors-of-late-palliative-care-referral-in-children-with-cancer
#2
Erica C Kaye, Jonathan Jerkins, Courtney A Gushue, Samantha DeMarsh, April Sykes, Zhaohua Lu, Jennifer M Snaman, Lindsay Blazin, Liza-Marie Johnson, Deena R Levine, R Ray Morrison, Justin N Baker
CONTEXT: Early integration of palliative care (PC) in the management of children with high-risk cancer is widely endorsed by patients, families, clinicians, and national organizations. However, optimal timing for PC consultation is not standardized, and variables that influence timing of PC integration for children with cancer remain unknown. OBJECTIVES: To investigate associations between demographic, disease, treatment, and end-of-life attributes and timing of PC consultation for children with high-risk cancer enrolled on a PC service...
February 7, 2018: Journal of Pain and Symptom Management
https://www.readbyqxmd.com/read/29425055/caring-for-life-limiting-illness-in-ethiopia-a-mixed-methods-assessment-of-outpatient-palliative-care-needs
#3
Eleanor Anderson Reid, Esayas Kebede Gudina, Nicola Ayers, Wondimagegnu Tigineh, Yoseph Mamo Azmera
BACKGROUND: Palliative care aims to reduce physical suffering and the emotional, spiritual, and psychosocial distress of life-limiting illness. Palliative care is a human right, yet there are vast disparities in its provision: of the 40 million people globally in need of palliative care, less than 10% receive it, largely in high-income countries. There is a particular paucity of data on palliative care needs across the spectrum of incurable disease in Ethiopia. OBJECTIVES: The aims of this research were to assess the overall burden of life-limiting illness, the costs associated with life-limiting illness, and barriers to accessing palliative care in Ethiopia...
February 9, 2018: Journal of Palliative Medicine
https://www.readbyqxmd.com/read/29421848/characterization-conservation-and-loss-of-dignity-at-the-end-of-life-in-the-emergency-department-a-qualitative-protocol
#4
Cayetano Fernández-Sola, José Granero-Molina, María Del Mar Díaz-Cortés, Francisca Rosa Jiménez-López, Pablo Roman-López, Encarnación Saez-Molina, Cayetano José Aranda-Torres, José María Muñoz-Terrón, María Paz García-Caro, José Manuel Hernández-Padilla
AIMS: to explore and understand the experiences of terminally-ill patients and their relatives regarding dignity during end-of-life care in the emergency department. BACKGROUND: the respect given to the concept of dignity is significantly modifying the clinical relationship and the care framework involving the end-of-life patient in palliative care units, critical care units, hospices and their own homes. This situation is applicable to in-hospital emergency departments, where there is a lack of research which takes the experiences of end-of-life patients and their relatives into account...
February 8, 2018: Journal of Advanced Nursing
https://www.readbyqxmd.com/read/29420142/the-surprise-question-and-identification-of-palliative-care-needs-among-hospitalized-patients-with-advanced-hematologic-or-solid-malignancies
#5
Kathryn Elizabeth Hudson, Steven Paul Wolf, Gregory P Samsa, Arif H Kamal, Amy Pickar Abernethy, Thomas William LeBlanc
BACKGROUND: Little is known about quality of life (QOL), depression, and end-of-life (EOL) outcomes among hospitalized patients with advanced cancer. OBJECTIVE: To assess whether the surprise question identifies inpatients with advanced cancer likely to have unmet palliative care needs. DESIGN: Prospective cohort study and long-term follow-up. SETTING/SUBJECTS: From 2008 to 2010, we enrolled 150 inpatients at Duke University with stage III/IV solid tumors or lymphoma/acute leukemia and whose physician would not be surprised if they died in less than one year...
February 8, 2018: Journal of Palliative Medicine
https://www.readbyqxmd.com/read/29414846/pediatric-palliative-care-in-infants-and-neonates
#6
REVIEW
Brian S Carter
The application of palliative and hospice care to newborns in the neonatal intensive care unit (NICU) has been evident for over 30 years. This article addresses the history, current considerations, and anticipated future needs for palliative and hospice care in the NICU, and is based on recent literature review. Neonatologists have long managed the entirety of many newborns' short lives, given the relatively high mortality rates associated with prematurity and birth defects, but their ability or willingness to comprehensively address of the continuum of interdisciplinary palliative, end of life, and bereavement care has varied widely...
February 7, 2018: Children
https://www.readbyqxmd.com/read/29402110/addressing-the-cultural-spiritual-and-religious-perspectives-of-palliative-care
#7
Hodan Nalayeh
Healthcare services are often out of sync with cultural, spiritual and religious perspectives on health, death, and grieving. This dissonance affects attitudes and behaviours in seeking and utilizing end-of-life health services and can lead to poor clinical communication, misunderstanding, and anxiety as patients, families and health providers interact during a serious illness. To address a gap in cultural-specific information Canadian Virtual Hospice launched LivingMyCulture.ca-an evidence-informed collection of videos of immigrants, refugees, and Indigenous people sharing their stories about the intersection of culture, spirituality, and religion with their experiences of advanced illness, palliative care, and grief...
January 2018: Annals of Palliative Medicine
https://www.readbyqxmd.com/read/29402100/collaborative-model-used-to-develop-a-resource-guide-for-communities-to-enhance-their-palliative-and-end-of-life-care-the-case-of-alberta-canada
#8
Kyle Whitfield
In response to the desire of community organizations in Alberta for information and guidance as they seek to improve palliative and end of life care in their communities, a large number of organizations collaborated to develop a resource guide. In order to achieve this goal, it was first necessary to identify the common information needs of Alberta communities as they pursue their vision for improving local Palliative and End-of-Life Care. A committee comprised of representatives from Alberta Health Services, Alberta Health, Alberta Hospice Palliative Care Association, Hospice Societies, University researchers, Indigenous Health and Palliative Care physicians surveyed numerous community groups and stakeholders about their information needs...
January 2018: Annals of Palliative Medicine
https://www.readbyqxmd.com/read/29402096/collaborative-and-participatory-approaches-to-building-community-capacity-for-palliative-and-end-of-life-care
#9
Martin LaBrie
People living in rural and smaller urban areas near Calgary experience difficulty accessing palliative care services which are concentrated in metropolitan areas. The Cumming School of Medicine, Alberta Health Services and community hospice palliative care societies in two rural communities have been working to develop a partnership that incorporates local health system resources and community initiatives in supporting individuals and families living with progressive, life-limiting illnesses. This presentation will provide an understanding of how academic institutions and health services can collaborate with community members to enhance capacity for end of life care, and enrich communities in the process...
January 2018: Annals of Palliative Medicine
https://www.readbyqxmd.com/read/29402095/community-capacity-development-to-enhance-hospice-palliative-care-in-alberta-canada-communities-evidence-demonstrating-the-value-of-a-community-engaged-model
#10
Kyle Whitfield
Our study explored the value of a community engaged model for good hospice care in three rural communities in Alberta, Canada. When communities are highly engaged in planning and implementing hospice care in their communities, our study discovered that they have key characteristics: that volunteerism needs to be balanced to prevent burnout; that the local knowledge of community members is used in a number of ways to plan and provide good hospice care; that a variety of resources, infrastructure, policies and expertise are used by the community to nurture community-focused palliative care initiatives...
January 2018: Annals of Palliative Medicine
https://www.readbyqxmd.com/read/29389725/end-of-life-communication-nurses-cocreating-the-closing-composition-with-patients-and-families
#11
Mary J Isaacson, Mary E Minton
Communication is imperative for end-of-life decision-making; however, descriptions of key strategies used by nurses are missing. A phenomenological approach was used to interpret interviews from 10 hospice/palliative nurses. The overarching pattern is the closing composition. Key communication strategies/patterns include establishing context, acknowledging through attentive listening, making it safe for them to die, planning goals of care, and being honest. Essential is the awareness that nurse, patient, and family all hold expertise in the subject matter...
January 2018: ANS. Advances in Nursing Science
https://www.readbyqxmd.com/read/29389224/perspectives-on-palliative-care-in-cancer-clinical-trials-diverse-meanings-from-multidisciplinary-cancer-care-providers
#12
Michelle A Mollica, Erin E Kent, Kathleen M Castro, Erin M Ellis, Rebecca A Ferrer, Angela L Falisi, Anna Gaysynsky, Grace C Huang, Martha A Palan, Wen-Ying Sylvia Chou
BACKGROUND: Palliative care (PC) is often misunderstood as exclusively pertaining to end-of-life care, which may be consequential for its delivery. There is little research on how PC is operationalized and delivered to cancer patients enrolled in clinical trials. OBJECTIVE: We sought to understand the diverse perspectives of multidisciplinary oncology care providers caring for such patients in a teaching hospital. METHODS: We conducted qualitative semistructured interviews with 19 key informants, including clinical trial principal investigators, oncology fellows, research nurses, inpatient and outpatient nurses, spiritual care providers, and PC fellows...
February 1, 2018: Journal of Palliative Medicine
https://www.readbyqxmd.com/read/29387995/the-challenge-of-sustainability-in-healthcare-systems-frequency-and-cost-of-diagnostic-procedures-in-end-of-life-cancer-patients
#13
Ilaria Massa, William Balzi, Mattia Altini, Raffaella Bertè, Monica Bosco, Davide Cassinelli, Valentina Vignola, Luigi Cavanna, Flavia Foca, Monia Dall'Agata, Oriana Nanni, Romina Rossi, Marco Maltoni
BACKGROUND: Literature data on the overuse and misuse of diagnostic procedures leading to end-of-life aggressiveness are scarce due to the limited amount of estimated economic waste. This study investigated the potential overuse of diagnostic procedures in a population of end-of-life patients. METHODS: This is a retrospective study on consecutive advanced patients admitted into two Italian hospices. Frequency and relative costs of X-ray imaging, CT scans, MRI, and interventional procedures prescribed in the 3 months before admission were collected in patient electronic charts and/or in administrative databases...
February 1, 2018: Supportive Care in Cancer: Official Journal of the Multinational Association of Supportive Care in Cancer
https://www.readbyqxmd.com/read/29386222/is-palliative-care-support-associated-with-better-quality-end-of-life-care-indicators-for-patients-with-advanced-cancer-a-retrospective-cohort-study
#14
Lucy E Ziegler, Cheryl L Craigs, Robert M West, Paul Carder, Adam Hurlow, Pablo Millares-Martin, Geoff Hall, Michael I Bennett
OBJECTIVES: This study aimed to establish the association between timing and provision of palliative care (PC) and quality of end-of-life care indicators in a population of patients dying of cancer. SETTING: This study uses linked cancer patient data from the National Cancer Registry, the electronic medical record system used in primary care (SystmOne) and the electronic medical record system used within a specialist regional cancer centre. The population resided in a single city in Northern England...
January 31, 2018: BMJ Open
https://www.readbyqxmd.com/read/29385757/in-hospital-palliative-care-should-we-need-to-reconsider-what-role-hospitals-should-have-in-patients-with-end-stage-disease-or-advanced-cancer
#15
REVIEW
Paolo Cotogni, Andrea Saini, Anna De Luca
Traditionally, palliative care (PC) systems focused on the needs of advanced cancer patients, but most patients needing PC have end-stage organ diseases. Similarly, PC models focus on the needs of patients in hospices or at home; however, in most cases PC is provided in acute hospitals. Indeed, the symptom burden that these patients experience in the last year of life frequently forces them to seek care in emergency departments. The majority of them are admitted to the hospital and many die. This issue poses important concerns...
January 30, 2018: Journal of Clinical Medicine
https://www.readbyqxmd.com/read/29384570/teaching-methodologies-for-end-of-life-care-in-undergraduate-nursing-students
#16
Jennifer N Carmack, Stephanie Kemery
BACKGROUND: The purpose of this literature review was to explore methodologies for teaching end-of-life (EOL) care to undergraduate nursing students. METHOD: Articles were retrieved by searching CINAHL, Academic Search Complete, and MEDLINE databases using the terms terminal care, palliative care, end of life care, undergraduate nurs*, hospice care, baccalaureate nurs*, prelicensure nurs*, palliative nurs*, training, and undergraduate education. A total of 728 articles were preliminarily evaluated for inclusion, with 22 relevant to this literature review...
February 1, 2018: Journal of Nursing Education
https://www.readbyqxmd.com/read/29379830/hospice-and-palliative-care-in-china-development-and-challenges
#17
REVIEW
Yuhan Lu, Youhui Gu, Wenhua Yu
Hospice and palliative care have been demonstrated to improve quality of life, shorten hospital stays, and save costs. As a developing country, faced with a rapidly aging population and an increasing number of patients with life-threatening illnesses such as cancer, China has made great progress in promoting hospice and palliative care during the past few decades. A trained nurse can play a significant role in promoting quality hospice and palliative care by providing care, coordinating a multidisciplinary team, calling for policy support, and raising public awareness...
January 2018: Asia-Pacific Journal of Oncology Nursing
https://www.readbyqxmd.com/read/29379824/palliative-care-opportunities-for-nursing
#18
EDITORIAL
Ayda Gan Nambayan
Ayda G. Nambayan, PhD, RN is the Training Consultant for The Ruth Foundation for Palliative and Hospice Care. Prior to this, she held various positions as a Consultant for Advanced Education and Training at Makati Medical Center, Philippines; a curriculum and distance learning developer for www.Cure4Kids.org, the educational website of the International Outreach Program of St. Jude Children's Research Hospital in Memphis, TN. In 2002, she retired from a faculty position from the University of Alabama at Birmingham, where she taught Adult Health Nursing for 25 years...
January 2018: Asia-Pacific Journal of Oncology Nursing
https://www.readbyqxmd.com/read/29362056/end-of-life-care-and-bereavement-issues-in-human-immunodeficiency-virus-aids
#19
REVIEW
Karl Goodkin, Sindhura Kompella, Steven F Kendell
This review article addresses end-of-life care issues characterizing human immunodeficiency virus progression by delineating associated stages of medical and nursing care. The initial progression from primary medical and nursing care aimed at functional cure to palliative care is discussed. This transition is considered in accord with the major symptoms experienced, including fatigue, pain, insomnia; decreased libido, hypogonadism, memory, and concentration; depression; and distorted body image. From the stage of palliative care, progression is delineated onward through the stages of hospice care, death and dying, and the subsequent bereavement process...
March 2018: Nursing Clinics of North America
https://www.readbyqxmd.com/read/29361829/barriers-to-hospice-care-in-trauma-patients-the-disparities-in-end-of-life-care
#20
Krista L Haines, Hee Soo Jung, Tiffany Zens, Scott Turner, Charles Warner-Hillard, Suresh Agarwal
INTRODUCTION: End-of-life and palliative care are important aspects of trauma care and are not well defined. This analysis evaluates the racial and socioeconomic disparities in terms of utilization of hospice services for critically ill trauma patients. METHODS: Trauma patients ≥15 years old from 2012 to 2015 were queried from the National Trauma Databank. Chi-square and multivariate logistic regression analyses for disposition to hospice were performed after controlling for age, gender, comorbidities, injury severity, insurance, race, and ethnicity...
January 1, 2018: American Journal of Hospice & Palliative Care
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