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https://www.readbyqxmd.com/read/28632445/critique-and-contribute-a-practice-based-framework-for-improving-critical-data-studies-and-data-science
#1
Gina Neff, Anissa Tanweer, Brittany Fiore-Gartland, Laura Osburn
What would data science look like if its key critics were engaged to help improve it, and how might critiques of data science improve with an approach that considers the day-to-day practices of data science? This article argues for scholars to bridge the conversations that seek to critique data science and those that seek to advance data science practice to identify and create the social and organizational arrangements necessary for a more ethical data science. We summarize four critiques that are commonly made in critical data studies: data are inherently interpretive, data are inextricable from context, data are mediated through the sociomaterial arrangements that produce them, and data serve as a medium for the negotiation and communication of values...
June 2017: Big Data
https://www.readbyqxmd.com/read/28603156/conflicts-of-interest-and-distribution-of-resources-to-community-partners-an-organizational-ethics-dilemma
#2
Allison M Cole, Laura-Mae Baldwin, Gina A Keppel, Ellen Kuwana, Brenda L Mollis, Benjamin S Wilfond
BACKGROUND: Conflicts of interest can arise when faculty and staff administer programs that distribute research funds, training opportunities, and other resources across academic and community partners. We describe the ethical concerns encountered by a Clinical Translational Science Award (CTSA) program in administering its community-focused pilot grant program and how its Research Bioethics Consultation service helped to address them.Ethical Concerns: CTSA program faculty and staff identified ethical concerns in several areas, including appropriateness of including Regional Research Collaborations (RRC) faculty as principal or co-investigators on applications, determining how much help RRC faculty and staff should provide to prospective applicants, and creating a fair and effective application review process...
2017: Progress in Community Health Partnerships: Research, Education, and Action
https://www.readbyqxmd.com/read/28580892/harmonizing-health-technology-assessment-practices-in-university-hospitals-to-what-extent-is-the-mini-hta-model-suitable-in-the-french-context
#3
Nicolas Martelli, Capucine Devaux, Hélène van den Brink, Mathilde Billaux, Judith Pineau, Patrice Prognon, Isabelle Borget
BACKGROUND: The number of new medical devices for individual use that are launched annually exceeds the assessment capacity of the French national health technology assessment (HTA) agency. This has resulted in hospitals, and particularly university hospitals (UHs), developing hospital-based HTA initiatives to support their decisions for purchasing innovative devices. However, the methodologies used in such hospitals have no common basis. The aim of this study was to assess a mini-HTA model as a potential solution to harmonize HTA methodology in French UHs...
June 5, 2017: International Journal of Technology Assessment in Health Care
https://www.readbyqxmd.com/read/28573927/psychometric-evaluation-of-the-moral-distress-risk-scale-a-methodological-study
#4
Rafaela Schaefer, Elma Lcp Zoboli, Margarida M Vieira
BACKGROUND: Moral distress is a kind of suffering that nurses may experience when they act in ways that are considered inconsistent with moral values, leading to a perceived compromise of moral integrity. Consequences are mostly negative and include physical and psychological symptoms, in addition to organizational implications. OBJECTIVE: To psychometrically test the Moral Distress Risk Scale. RESEARCH DESIGN: A methodological study was realized...
January 1, 2017: Nursing Ethics
https://www.readbyqxmd.com/read/28555958/industrial-safety-and-utopia-insights-from-the-fukushima-daiichi-accident
#5
Sébastien Travadel, Franck Guarnieri, Aurélien Portelli
Feedback from industrial accidents is provided by various state or even international, institutions, and lessons learned can be controversial. However, there has been little research into organizational learning at the international level. This article helps to fill the gap through an in-depth review of official reports of the Fukushima Daiichi accident published shortly after the event. We present a new method to analyze the arguments contained in these voluminous documents. Taking an intertextual perspective, the method focuses on the accident narratives, their rationale, and links between "facts," "causes," and "recommendations...
May 29, 2017: Risk Analysis: An Official Publication of the Society for Risk Analysis
https://www.readbyqxmd.com/read/28544136/conceptualizations-of-fairness-and-legitimacy-in-the-context-of-ethiopian-health-priority-setting-reflections-on-the-applicability-of-accountability-for-reasonableness
#6
Kadia Petricca, Asfaw Bekele
A critical element in building stronger health systems involves strengthening good governance to build capacity for transparent and fair health planning and priority setting. Over the past 20 years, the ethical framework Accountability for Reasonableness (A4R) has been a prominent conceptual guide in strengthening fair and legitimate processes of health decision-making. While many of the principles embedded within the framework are congruent with Western conceptualizations of what constitutes procedural fairness, there is a paucity in the literature that captures the degree of resonance between these principles and the views of decision makers from non-Western settings; particularly in Africa, where many countries have only recently, within the last 20-30 years, become more democratic...
May 22, 2017: Developing World Bioethics
https://www.readbyqxmd.com/read/28523116/obstacles-and-problems-of-ethical-leadership-from-the-perspective-of-nursing-leaders-a-qualitative-content-analysis
#7
Maasoumeh Barkhordari-Sharifabad, Tahereh Ashktorab, Foroozan Atashzadeh-Shoorideh
In the nursing profession, leadership plays a significant role in creating motivation and thus enabling nurses to provide high quality care. Ethics is an essential component of leadership qualifications and the ethical leader can help create an ethical atmosphere, offer ethical guidance, and ensure the occupational satisfaction of personnel through prioritizing moralities. However, some issues prevent the implementation of this type of leadership by nursing leaders. The aim of this study was to identify and describe some problems and obstacles in ethical leadership faced by nursing leaders, and to help them achieve more accurate information and broader perspective in this field...
2017: Journal of Medical Ethics and History of Medicine
https://www.readbyqxmd.com/read/28515799/implementing-mindfulness-in-the-mainstream-making-the-path-by-walking-it
#8
Rebecca S Crane
There is expanding interest in mindfulness-based programs (MBPs) within the mainstream. While there are research gaps, there is empirical evidence for these developments. Implementing new evidence into practice is always complex and difficult. Particular complexities and tensions arise when implementing MBPs in the mainstream. MBPs are emerging out of the confluence of different epistemologies-contemplative teaching and practice, and contemporary Western empiricism and culture. In the process of navigating implementation and integrity, and developing a professional practice context for this emerging field, the diverse influences within this confluence need careful attention and thought...
2017: Mindfulness
https://www.readbyqxmd.com/read/28514133/-the-influence-of-the-israeli-legislation-on-the-relationship-between-physicians-and-pharmaceutical-companies
#9
Rachel Nissanholtz-Gannot, Ariel Yankellevich, Nurit Nirel
INTRODUCTION: The relationship between physicians and pharmaceutical-companies raises many dilemmas. There are two types of solutions to these dilemmas: self-regulation and government regulation. Our goal was to review in what way legislative intervention and self-regulation standardize and affect the relationship. In addition, we examined the positions of relevant stakeholders regarding: 1. The relationship between physicians and pharmaceutical companies; 2. Future measures we should take to address the ethical dilemmas inherent in this relationship...
July 2016: Harefuah
https://www.readbyqxmd.com/read/28499321/-group-discussions-in-health-services-research-part-1-introduction-and-deliberations-on-selection-of-method-and-planning
#10
Nadine Janis Pohontsch, Veronika Müller, Susanne Brandner, Christoph Karlheim, Saskia Jünger, Katharina Klindtworth, Maren Stamer, Nicole Höfling-Engels, Vera Kleineke, Benigna Brandt, Margret Xyländer, Christiane Patzelt, Thorsten Meyer
Health services researchers focus on the players, structures and impact of health care in "real life". They investigate how social aspects, financing, organizational structures, technologies and personal attitudes affect the process and outcomes of health care. Qualitative research methods are used here, which address how people act according to their unique living conditions (outside the context of experimental studies). Different methods of debriefing groups are essential for qualitative health services research...
May 12, 2017: Das Gesundheitswesen
https://www.readbyqxmd.com/read/28495345/the-georges-pompidou-university-hospital-clinical-data-warehouse-a-8-years-follow-up-experience
#11
Anne-Sophie Jannot, Eric Zapletal, Paul Avillach, Marie-France Mamzer, Anita Burgun, Patrice Degoulet
BACKGROUND: When developed jointly with clinical information systems, clinical data warehouses (CDWs) facilitate the reuse of healthcare data and leverage clinical research. OBJECTIVE: To describe both data access and use for clinical research, epidemiology and health service research of the "Hôpital Européen Georges Pompidou" (HEGP) CDW. METHODS: The CDW has been developed since 2008 using an i2b2 platform. It was made available to health professionals and researchers in October 2010...
June 2017: International Journal of Medical Informatics
https://www.readbyqxmd.com/read/28488922/predicting-prognosis-in-patients-with-advanced-cancer-a-prospective-study
#12
Teresa Tavares, Margarida Oliveira, João Gonçalves, Vera Trocado, Jéssica Perpétuo, Alexandra Azevedo, Firmino Machado, Vasco Barreto, Céu Rocha
BACKGROUND: Prognosis is one of the most challenging questions with which physicians are confronted. Accuracy in the prediction of survival is necessary for clinical, ethical, and organizational reasons. AIM: Evaluate young doctors' clinical prediction of survival and the aids they could get: expert opinion, Palliative Prognostic score, and Palliative Prognostic Index. DESIGN: Prospective, observational study. SETTING/PARTICIPANTS: Advanced cancer patients under observation of an inhospital palliative care team, from April to July 2014...
May 1, 2017: Palliative Medicine
https://www.readbyqxmd.com/read/28484305/moral-stress-and-job-burnout-among-frontline-staff-conducting-clinical-research-on-affective-and-anxiety-disorders
#13
Adam L Fried, Celia B Fisher
There has been increased attention on job-related stress and burnout experienced by clinicians working with vulnerable and at-risk populations, including effects on personal mental health, therapeutic decision-making, and job effectiveness. Little is known, however, about the job-related stressors and symptoms of burnout experienced by clinical research staff working with similar populations, especially in terms of moral stress they may experience when adherence to scientific procedures appears to conflict with their personal commitment to address the clinical needs of their research participants or role as health care provider...
June 2016: Professional Psychology, Research and Practice
https://www.readbyqxmd.com/read/28481317/dogs-in-the-workplace-a-review-of-the-benefits-and-potential-challenges
#14
REVIEW
Anne M Foreman, Margaret K Glenn, B Jean Meade, Oliver Wirth
Pet dogs, therapy dogs, and service dogs can be seen in workplaces with increasing frequency. Although dogs may provide many benefits to employees and employers, their presence may introduce additional hazards and concerns to the work environment. Therefore, decisions to accept dogs in the workplace may include many considerations including the health, safety, and well-being of employees, legal and cultural sensitivities, and animal welfare. The present paper serves to introduce the issue of dogs in the workplace and outline the potential benefits and challenges to their presence...
May 8, 2017: International Journal of Environmental Research and Public Health
https://www.readbyqxmd.com/read/28459380/advancing-lgbt-healthcare-policies-and-clinical-care-within-a-large-academic-healthcare-system-a-case-study
#15
Mollie A Ruben, Jillian C Shipherd, David Topor, Christopher G Ahnallen, Colleen A Sloan, Heather M Walton, Alexis R Matza, Glenn R Trezza
Culturally competent healthcare is especially important among sexual and gender minority patients as poor cultural competence contributes to health disparities. There is a need to understand how to improve healthcare quality and delivery for lesbian, gay, bisexual, and transgender (LGBT) Veterans in particular, because they bring unique physical and mental health needs as both LGBT individuals and Veterans. The following paper is a case study that focuses on the policy and clinical care practices related to LGBT clinical competency, professional training, and ethical provision of care for Veteran patients in the VA Boston Healthcare System...
May 1, 2017: Journal of Homosexuality
https://www.readbyqxmd.com/read/28449071/letter-commentary-deep-brain-stimulation-as-clinical-innovation-an-ethical-and-organizational-framework-to-sustain-deliberations-about-psychiatric-deep-brain-stimulation
#16
Eric Racine, Tejas Sankar, Philip Leger, Emily Bell
No abstract text is available yet for this article.
June 1, 2017: Neurosurgery
https://www.readbyqxmd.com/read/28433672/montreal-accord-on-patient-reported-outcomes-use-series-paper-1-introduction
#17
Susan J Bartlett, Sara Ahmed
BACKGROUND: Patient-centered healthcare, where we design and deliver care to address the needs and preferences of patients, represents an important paradigm shift. Patient reported outcomes (PROs) are critical to capture the patient voice, understand how illness and treatments affect people, and establish how well services and treatments address what matters most to patients. OBJECTIVE: Originally developed for use in research, PROs are now used to monitor individuals and populations, manage care, evaluate services and providers, and inform policy...
April 19, 2017: Journal of Clinical Epidemiology
https://www.readbyqxmd.com/read/28428732/access-to-information-and-counselling-older-cancer-patients-self-report-a-cross-sectional-survey
#18
Kristin Vassbotn Guldhav, Randi Jepsen, Siri Ytrehus, Ellen Karine Grov
BACKGROUND: An increasingly older population, improved diagnostics and treatment increase the number of older cancer survivors, thus more than 60% of those affected by cancer are over the age of 65. Symptom relief and the prevention of functional impairment are important tasks for home care nursing, considering that patients can live a long time with their cancer disease and related side effects. The aim of this study was to investigate the extent to which cancer patients over the age of 65 reported access to information and counselling from home care nursing services, including those offered by the cancer coordinator...
2017: BMC Nursing
https://www.readbyqxmd.com/read/28393605/strategies-of-iranian-nurses-to-overcome-professional-discrimination-an-explorative-qualitative-study
#19
Masoumeh Shohani
BACKGROUND: Discrimination is a situation in which individuals receive unequal social benefits in return for equal roles they play. They react to such a situation in different ways. OBJECTIVE: This study aims at identifying the strategies used by Iranian nurses to overcome professional discrimination. RESEARCH DESIGN: This qualitative study was conducted with the participation of 23 nurses who worked in hospitals in the cities of Tehran, Tabriz, and Ilam...
January 1, 2017: Nursing Ethics
https://www.readbyqxmd.com/read/28352505/the-use-of-evaluation-in-treatment-programs-for-children-with-autism
#20
Kristin L Miller
Program evaluation is the use of planned activities to monitor process, outcomes, and impact of a health program or intervention. The application of program evaluation to behavioral analytic treatment programs for children with autism is a useful and necessary activity to inform practitioners and other stakeholders of the efficacy of these programs and to promote adherence to best-practice treatments. A brief survey of behavioral providers in California and Texas and search of the behavioral literature suggest that the practice of program evaluation is underutilized among providers of behavioral services...
March 2017: Behavior Analysis in Practice
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