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https://www.readbyqxmd.com/read/29326428/human-germline-gene-editing-recommendations-of-eshg-and-eshre
#1
Guido de Wert, Guido Pennings, Angus Clarke, Ursula Eichenlaub-Ritter, Carla G van El, Francesca Forzano, Mariëtte Goddijn, Björn Heindryckx, Heidi C Howard, Dragica Radojkovic, Emmanuelle Rial-Sebbag, Basil C Tarlatzis, Martina C Cornel
Technological developments in gene editing raise high expectations for clinical applications, first of all for somatic gene editing but in theory also for germline gene editing (GLGE). GLGE is currently not allowed in many countries. This makes clinical applications in these countries impossible now, even if GLGE would become safe and effective. What were the arguments behind this legislation, and are they still convincing? If a technique can help to avoid serious genetic disorders, in a safe and effective way, would this be a reason to reconsider earlier standpoints? The European Society of Human Reproduction and Embryology (ESHRE) and the European Society of Human Genetics (ESHG) together developed a Background document and Recommendations to inform and stimulate ongoing societal debates...
January 12, 2018: European Journal of Human Genetics: EJHG
https://www.readbyqxmd.com/read/29313786/expanding-the-scope-of-research-ethics-consultation-services-in-safeguarding-research-integrity-moving-beyond-the-ethics-of-human-subjects-research
#2
Zubin Master, Brian C Martinson, David B Resnik
No abstract text is available yet for this article.
January 2018: American Journal of Bioethics: AJOB
https://www.readbyqxmd.com/read/29313784/clinical-ethics-consultation-and-research-ethics-consultation-a-call-for-italy
#3
Ludovica De Panfilis, Domenico Franco Merlo, Roberto Satolli, Teresa Coppola, Luca Ghirotto, Massimo Costantini
No abstract text is available yet for this article.
January 2018: American Journal of Bioethics: AJOB
https://www.readbyqxmd.com/read/29313783/hotline-bling-late-night-ethics-calls-as-an-alternative-to-research-ethics-consultations
#4
Dov Greenbaum
No abstract text is available yet for this article.
January 2018: American Journal of Bioethics: AJOB
https://www.readbyqxmd.com/read/29313773/clinical-and-translational-research-ethics-training-consultants-and-biomedical-research-personnel
#5
Jason F Arnold, Andrea D Boan, Daniel T Lackland, Robert M Sade
No abstract text is available yet for this article.
January 2018: American Journal of Bioethics: AJOB
https://www.readbyqxmd.com/read/29313771/the-emergence-of-clinical-research-ethics-consultation-insights-from-a-national-collaborative
#6
Kathryn M Porter, Marion Danis, Holly A Taylor, Mildred K Cho, Benjamin S Wilfond
The increasing complexity of human subjects research and its oversight has prompted researchers, as well as institutional review boards (IRBs), to have a forum in which to discuss challenging or novel ethical issues not fully addressed by regulations. Research ethics consultation (REC) services provide such a forum. In this article, we rely on the experiences of a national Research Ethics Consultation Collaborative that collected more than 350 research ethics consultations in a repository and published 18 challenging cases with accompanying ethical commentaries to highlight four contexts in which REC can be a valuable resource...
January 2018: American Journal of Bioethics: AJOB
https://www.readbyqxmd.com/read/29313769/the-challenges-of-incorporating-research-ethics-consultation-into-institutional-human-subjects-protections-programs
#7
Erin Talati Paquette, Lainie Ross
No abstract text is available yet for this article.
January 2018: American Journal of Bioethics: AJOB
https://www.readbyqxmd.com/read/29302602/what-are-the-ethical-questions-raised-by-the-integration-of-intensive-care-into-advance-care-planning
#8
REVIEW
Jean-Pierre Quenot, Fiona Ecarnot, Nicolas Meunier-Beillard, Auguste Dargent, Audrey Large, Pascal Andreu, Jean-Philippe Rigaud
A major goal of intensive care units (ICUs) is to offer optimal management, but for many patients admitted to the ICU, they are unlikely to yield any lasting benefit. In this context, the ICU physician remains a key intermediary, particularly when a decision regarding possible limitation or withdrawal of life-sustaining therapy becomes necessary. The possibility of admission to the ICU, and the type of care the patient would like to receive there, should be integrated into the healthcare project in agreement with the patient, regardless of the stage of disease that the patient suffers from...
December 2017: Annals of Translational Medicine
https://www.readbyqxmd.com/read/29297375/the-role-of-male-partners-in-women-s-participation-in-research-during-pregnancy-a-case-study-from-the-partners-demonstration-project
#9
Kenneth Ngure, Susan Brown Trinidad, Kristin Beima-Sofie, Jared M Baeten, Nelly R Mugo, Elizabeth A Bukusi, Renee Heffron, Grace John-Stewart, Maureen C Kelley
The exclusion of pregnant women from health research remains a significant challenge globally. In settings where cultural traditions and gender norms support a more restricted decision-making role for women in general, little is known about the attitudes of male partners toward the inclusion of women in research during pregnancy. Understanding the expectations of both men and women in such cultural settings offers an opportunity to engage and address local ethical concerns to improve women's access to research during pregnancy and enhance intervention development...
December 14, 2017: Reproductive Health
https://www.readbyqxmd.com/read/29288181/research-protocol-for-the-picture-talk-project-a-qualitative-study-on-research-and-consent-with-remote-australian-aboriginal-communities
#10
Emily F M Fitzpatrick, Maureen Carter, June Oscar, Tom Lawford, Alexandra L C Martiniuk, Heather A D'Antoine, Elizabeth J Elliott
INTRODUCTION: Research with Indigenous populations is not always designed with cultural sensitivity. Few publications evaluate or describe in detail seeking consent for research with Indigenous participants. When potential participants are not engaged in a culturally respectful manner, participation rates and research quality can be adversely affected. It is unethical to proceed with research without truly informed consent. METHODS AND ANALYSIS: We describe a culturally appropriate research protocol that is invited by Aboriginal communities of the Fitzroy Valley in Western Australia...
December 28, 2017: BMJ Open
https://www.readbyqxmd.com/read/29284761/refugees-in-conflict-creating-a-bridge-between-traditional-and-conventional-health-belief-models
#11
Eran Ben-Arye, Massimo Bonucci, Michel Daher, Rejin Kebudi, Bashar Saad, Thomas Breitkreuz, Maryam Rassouli, Elio Rossi, Nahla Gafer, Omar Nimri, Mohamed Hablas, Gunver Sophia Kienle, Noah Samuels, Michael Silbermann
The recent wave of migration from Middle Eastern countries to Europe presents significant challenges to the European health profession. These include the inevitable communication gap created by differences in health care beliefs between European oncologists, health care practitioners, and refugee patients. This article presents the conclusions of a workshop attended by a group of clinicians and researchers affiliated with the Middle East Cancer Consortium, as well as four European-based health-related organizations...
December 28, 2017: Oncologist
https://www.readbyqxmd.com/read/29283656/award-for-distinguished-professional-contributions-to-independent-practice-mary-o-leary-wiley
#12
(no author information available yet)
The Award for Distinguished Professional Contributions to Independent Practice is intended to recognize outstanding independent practitioners in psychology. The award is given to a psychologist working in an area of clinical specialization, health services provision, or consulting, and services provided to any patient population or professional clientele in an independent setting. The 2017 recipient is Mary O'Leary Wiley, who has demonstrated exemplary service in the areas of child treatment and trauma as well as adoption, raising awareness of social contexts...
December 2017: American Psychologist
https://www.readbyqxmd.com/read/29275347/two-epoch-cross-sectional-case-record-review-protocol-comparing-quality-of-care-of-hospital-emergency-admissions-at-weekends-versus-weekdays
#13
Julian Bion, Cassie P Aldridge, Alan Girling, Gavin Rudge, Chris Beet, Tim Evans, R Mark Temple, Chris Roseveare, Mike Clancy, Amunpreet Boyal, Carolyn Tarrant, Elizabeth Sutton, Jianxia Sun, Peter Rees, Russell Mannion, Yen-Fu Chen, Samuel Ian Watson, Richard Lilford
INTRODUCTION: The mortality associated with weekend admission to hospital (the 'weekend effect') has for many years been attributed to deficiencies in quality of hospital care, often assumed to be due to suboptimal senior medical staffing at weekends. This protocol describes a case note review to determine whether there are differences in care quality for emergency admissions (EAs) to hospital at weekends compared with weekdays, and whether the difference has reduced over time as health policies have changed to promote 7-day services...
December 22, 2017: BMJ Open
https://www.readbyqxmd.com/read/29275156/aripiprazole-use-during-pregnancy-peripartum-and-lactation-a-systematic-literature-search-and-review-to-inform-clinical-practice
#14
REVIEW
A Cuomo, A Goracci, A Fagiolini
BACKGROUND: Aripiprazole is used relatively frequently in women with bipolar disorder or schizophrenia in childbearing years, owing to its efficacy and relatively favorable side effect profile. As is the case for other psychotropic medications, for ethical reasons, no prospective randomized placebo controlled trial to assess aripiprazole safety during pregnancy has ever been conducted. However, animal data are available and the amount of exposure and outcome data for human fetuses and infants has recently increased, providing published prospective safety data in relatively large numbers of pregnant women treated with aripiprazole...
December 14, 2017: Journal of Affective Disorders
https://www.readbyqxmd.com/read/29247100/mapping-evidence-of-patients-experiences-in-integrated-care-settings-a-protocol-for-a-scoping-review
#15
Alaa T Youssef, Rosa Constantino, Zarah K Chaudhary, Andrew Lee, David Wiljer, Maria Mylopoulos, Sanjeev Sockalingam
INTRODUCTION: Integrated care (IC) models have emerged to address gaps in care for individuals with complex healthcare needs. Although the clinical and cost-effectiveness of IC models are well-established, our understanding of whether IC models facilitate a patient-centred care experience from the patients' perspective is not well understood. This scoping review aims to comprehensively map the literature to provide a broad overview of patients' experiences in IC settings with a focus on the experiences of complex patients with comorbid mental and physical illnesses...
December 14, 2017: BMJ Open
https://www.readbyqxmd.com/read/29241598/organ-donation-after-controlled-cardiac-death-under-maastricht-category-iii-ethical-implications-and-end-of-life-care
#16
M Isabel González-Méndez, Luís López-Rodríguez
The decrease in potential donation after brain death has resulted in a need to evaluate alternative sources. Donation after cardiac death is a good option. The objectives of this article were to describe the Maastricht type iii controlled organ donation characteristics and to determine end-of-life care and the role of nurses in the donation process. In this type of donation, cardiocirculatory arrest is predictable after the limitation of life sustaining treatments. These are patients for whom there are no effective therapy options and, in the context of an organised and planned practice involving all the professionals involved in the care of the patient, the decision is made, in consultation with the family, to withdraw life support measures...
December 11, 2017: Enfermería Clínica
https://www.readbyqxmd.com/read/29225935/gendered-negotiations-for-research-participation-in-community-based-studies-implications-for-health-research-policy-and-practice
#17
Dorcas M Kamuya, Catherine S Molyneux, Sally Theobald
There is a growing literature documenting the complex realities of consent processes in the field, and the negotiations and ethical dilemmas involved. Much has also been written about how gender and power shape household decision-making processes. However, these bodies of literature have rarely been brought together to inform research theory and practice in low-income settings. In this paper, qualitative research (observation, focus group discussions and interviews) were used alongside large clinical community-based studies conducted on the Kenyan Coast to explore how gender and power relations within households and communities and between fieldworkers and communities shape consent processes and interactions...
2017: BMJ Global Health
https://www.readbyqxmd.com/read/29225934/health-policy-and-systems-research-towards-a-better-understanding-and-review-of-ethical-issues
#18
REVIEW
Valerie Ann Luyckx, Nikola Biller-Andorno, Abha Saxena, Nhan T Tran
Given the focus on health systems in the post-millennium development goal era and moving towards the sustainable development goals, there is a compelling need for a common framework for health policy and systems research ethics to guide researchers and facilitate review by research ethics committees. A consultation of global health policy and systems research and ethics experts was convened to identify ethical considerations relevant to health policy and systems research based on existing knowledge and to identify knowledge gaps through a scoping review and further expert deliberation...
2017: BMJ Global Health
https://www.readbyqxmd.com/read/29223940/-when-to-consult-the-institutional-bioethics-committee-the-deliberative-method-for-resolving-possible-dilemmas
#19
Alejandra T Rabadán, Vilma A Tripodoro
In healthcare, an ethical concern that arises during the decision making process is considered to be a bioethical dilemma. It is often the case that in the absence of proper deliberation, the problem is transferred to a bioethics committee, not even representing precisely a dilemma. Bioethics emerged as a discipline in the mid-20th century. It is defined as a support to decision-making in ethical dilemmas centered on two aspects: ethics of clinical investigation, focused on protecting the rights of research subjects, and bioethics in medical practice, of an advisory nature...
2017: Medicina
https://www.readbyqxmd.com/read/29187412/protocol-for-the-melatools-skin-self-monitoring-trial-a-phase-ii-randomised-controlled-trial-of-an-intervention-for-primary-care-patients-at-higher-risk-of-melanoma
#20
Katie Mills, Jon Emery, Rebecca Lantaff, Michael Radford, Merel Pannebakker, Per Hall, Nigel Burrows, Kate Williams, Catherine L Saunders, Peter Murchie, Fiona M Walter
INTRODUCTION: Melanoma is the fifth most common cancer in the UK. Incidence rates have quadrupled over the last 30 years and continue to rise, especially among younger people. As routine screening of the general population is not currently recommended in the UK, a focus on secondary prevention through early detection and prompt treatment in individuals at increased risk of melanoma could make an important contribution to improve melanoma outcomes. This paper describes the protocol for a phase II, multisite, randomised controlled trial, in the primary care setting, for patients at increased risk of melanoma...
November 28, 2017: BMJ Open
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