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https://www.readbyqxmd.com/read/28328379/participation-of-citizen-scientists-in-clinical-research-and-access-to-research-ethics-consultation
#1
Elaine Collier, Marion Danis
No abstract text is available yet for this article.
April 2017: American Journal of Bioethics: AJOB
https://www.readbyqxmd.com/read/28327852/-person-centered-clinical-care-principles-and-strategies
#2
Juan Enrique Mezzich, Alberto Perales
The development of person-centered clinical care is inscribed within an international programmatic movement towards a medicine focused on the totality of the person. This movement, with broad historical bases, has been maturing since 2008 through conferences among global health institutions, research projects and academic publications. This paper is aimed at elucidating the conceptual principles of person-centered medicine (PCM) and to delineate strategies for the practical application of such principles in clinical care services...
October 2016: Revista Peruana de Medicina Experimental y Salud Pública
https://www.readbyqxmd.com/read/28324205/levels-of-intervention-how-are-they-used-in-quebec-hospitals
#3
Marjolaine Frenette, Jocelyne Saint-Arnaud, Karim Serri
In order to promote better practices and communication around end-of-life decision-making, several Canadian hospitals in the province of Quebec have developed a tool called "Levels of Intervention" (LOI). No work to date has been published demonstrating improvement since these forms were implemented. The purpose of the present study was to obtain information about the use of LOI forms across Quebec hospitals and to identify gaps in practice as well as areas for improvement. A retrospective study was undertaken of 299 charts of patients who had died in three Quebec hospitals with a LOI ordered...
March 21, 2017: Journal of Bioethical Inquiry
https://www.readbyqxmd.com/read/28279994/multicentre-randomised-study-of-the-effect-and-experience-of-an-early-inhome-programme-prehomecare-for-preterm-infants-using-video-consultation-and-smartphone-applications-compared-with-inhospital-consultations-protocol-of-the-prehomecare-study
#4
Mai-Britt Hägi-Pedersen, Annelise Norlyk, Ram Dessau, Hristo Stanchev, Hanne Kronborg
INTRODUCTION: Although premature infants and their parents are discharged earlier to inhomecare programmes, how to optimally support parents during this transition remains unknown. The aim of this study is to compare the effects of early inhomecare (PreHomeCare) including video consultations and mobile applications with those of inhospital consultations regarding breast feeding, parental confidence and parent-infant interactions. METHODS AND ANALYSIS: A randomised controlled intervention study will be conducted in four neonatal departments offering PreHomeCare (ie, premature infant inhomecare) in Denmark...
March 9, 2017: BMJ Open
https://www.readbyqxmd.com/read/28265798/the-role-of-a-hospital-ethics-consultation-service-in-decision-making-for-unrepresented-patients
#5
Andrew M Courtwright, Joshua Abrams, Ellen M Robinson
Despite increased calls for hospital ethics committees to serve as default decision-makers about life-sustaining treatment (LST) for unrepresented patients who lack decision-making capacity or a surrogate decision-maker and whose wishes regarding medical care are not known, little is known about how committees currently function in these cases. This was a retrospective cohort study of all ethics committee consultations involving decision-making about LST for unrepresented patients at a large academic hospital from 2007 to 2013...
March 6, 2017: Journal of Bioethical Inquiry
https://www.readbyqxmd.com/read/28257544/navigating-clinical-ethics-using-real-case-constellations-to-guide-learners-and-teachers-in-medicine
#6
Katherine Wasson, Mark Kuczewski, Michael P McCarthy, Kayhan Parsi, Emily E Anderson, Paul Hutchison
Case-based learning is a staple of clinical ethics education in medicine. The sources for medical educators generally are lengthy case books or single, often rare, case analyses in the literature. Busy clinicians may not have the time or inclination to sift through case books to find suitable teaching material, and the latter present unusual cases that many physicians may never encounter in their own practice. Relatively few articles present multiple cases involving ethical issues that are likely to appear in everyday practice in an accessible format for teaching...
March 2017: Southern Medical Journal
https://www.readbyqxmd.com/read/28246142/evaluating-the-effectiveness-impact-and-safety-of-live-attenuated-and-seasonal-inactivated-influenza-vaccination-protocol-for-the-seasonal-influenza-vaccination-effectiveness-ii-sive-ii-study
#7
Colin R Simpson, Nazir I Lone, Kimberley Kavanagh, Chris Robertson, Jim McMenamin, Beatrix von Wissmann, Eleftheria Vasileiou, Chris Butler, Lewis D Ritchie, Rory Gunson, Jürgen Schwarze, Aziz Sheikh
INTRODUCTION: Seasonal (inactivated) influenza vaccination is recommended for all individuals aged 65+ and in individuals under 65 who are at an increased risk of complications of influenza infection, for example, people with asthma. Live attenuated influenza vaccine (LAIV) was recommended for children as they are thought to be responsible for much of the transmission of influenza to the populations at risk of serious complications from influenza. A phased roll-out of the LAIV pilot programme began in 2013/2014...
February 28, 2017: BMJ Open
https://www.readbyqxmd.com/read/28243671/qualitative-investigation-of-the-reasons-behind-opposition-to-water-fluoridation-in-regional-nsw-australia
#8
Matthew C Knox, Alexander Garner, Alan Dyason, Thomas Pearson, Sabrina W Pit
OBJECTIVES: To investigate reasons behind strong opposition to water fluoridation in regional New South Wales, Australia, and to make recommendations to improve community engagement. IMPORTANCE: Few studies have used qualitative methodologies to understand the reasons for strong antifluoridation views. An understanding of these reasons could be useful when designing public campaigns to combat the strong antifluoridation message. METHODS: The qualitative study used semistructured interviewing and thematic analysis...
February 15, 2017: Public Health Research & Practice
https://www.readbyqxmd.com/read/28242771/improving-outcomes-from-high-risk-surgery-a-multimethod-evaluation-of-a-patient-centred-advanced-care-planning-intervention
#9
Amanda Selwood, Siva Senthuran, Brette Blakely, Paul Lane, John North, Robyn Clay-Williams
INTRODUCTION: Patients who are frail, have multiple comorbidities or have a terminal illness often have poor outcomes from surgery. However, sole specialists may recommend surgery in these patients without consultation with other treating clinicians or allowing for patient goals. The Patient-Centred Advanced Care Planning (PC-ACP) model of care provides a framework in which a multidisciplinary advanced care plan is devised to incorporate high-risk patients' values and goals. Decision-making is performed collaboratively by patients, their family, surgeons, anaesthetists, intensivists and surgical case managers...
February 27, 2017: BMJ Open
https://www.readbyqxmd.com/read/28225694/polarities-in-clinical-thinking-and-practice
#10
John Z Sadler
This analysis of a case of a bereaved patient that poses two treatment options-watchful waiting or medication-focuses on five "polarities" in clinical practice: (1) the normal and the pathological, (2) the individual and the diagnostic collective, (3) the primary care physician and the consultant, (4) the expert and nonexpert, and (5) the moment and the process. These polarities can accentuate ethical problems posed by this case, for example, by creating stark contrasts that mask the complex contexts of care and characteristics of patients...
February 1, 2017: AMA Journal of Ethics
https://www.readbyqxmd.com/read/28222476/-positionpaper-on-telemonitoring-in-sleep-related-breathing-disorders
#11
W Randerath, M Bögel, C Franke, A Hellmann, B Jany, G Nilius, T Penzel, T Voshaar, A Wiater
The use of telemonitoring in the care of patients with Sleep-related Breathing Disorders (SBD) can enhance medical support significantly. Telemonitoring aims at helping physicians to detect therapy problems early and thus improve patients' therapy adherence. Diagnostics and therapy decisions in the telemonitoring process nevertheless remain the responsibility of sleep specialists. The selection of data monitored, their evaluation and resulting consequences fall to the physician, who makes decisions and prescribes therapy in consultation with the patient...
February 2017: Pneumologie
https://www.readbyqxmd.com/read/28221072/reflections-on-quagmires-for-clinicians-and-coaches-comment-on-gebhardt-2016
#12
Anthony M Grant
Professional coaching can be considered an example of a postprofessional discipline-a discipline that transcends the traditional boundaries between professional clinical psychology and business consulting and coaching. Not surprisingly, a number of potential quagmires in relation to ethical, educational, and credentialing issues have arisen. However, such tensions present an opportunity to build more solid foundations for the delivery of professional coaching services. A way forward is to more broadly engage with university-level theoretically grounded, coaching-specific educational programs...
February 2017: American Psychologist
https://www.readbyqxmd.com/read/28216956/assessment-of-cost-of-illness-for-diabetic-patients-in-south-indian-tertiary-care-hospital
#13
Leelavathi D Acharya, N R Rau, N Udupa, M Surulivel Rajan, K Vijayanarayana
BACKGROUND: The impact of diabetes on health-care expenditures has been increasingly recognized. To formulate an effective health planning and resource allocation, it is important to determine economic burden. OBJECTIVE: The objective of this study is to assess the cost of illness (COI) for diabetic inpatients with or without complications. METHODOLOGY: The study was conducted in the medicine wards of tertiary care hospital after ethical approval by the Institutional Ethical Committee...
October 2016: Journal of Pharmacy & Bioallied Sciences
https://www.readbyqxmd.com/read/28213599/health-information-needs-source-preferences-and-engagement-behaviours-of-women-with-metastatic-breast-cancer-across-the-care-continuum-protocol-for-a-scoping-review
#14
Carol A Tucker, M Pilar Martin, Ray B Jones
INTRODUCTION: The health information needs, information source preferences and engagement behaviours of women with metastatic breast cancer (mBC) depend on personal characteristics such as education level, prior knowledge, clinical complications, comorbidities and where they are in the cancer journey. A thorough understanding of the information behaviours of women living with mBC is essential to the provision of optimal care. A preliminary literature review suggests that there is little research on this topic, but that there may be lessons from a slightly broader literature...
February 17, 2017: BMJ Open
https://www.readbyqxmd.com/read/28202031/making-sense-of-complexity-in-context-and-implementation-the-context-and-implementation-of-complex-interventions-cici-framework
#15
Lisa M Pfadenhauer, Ansgar Gerhardus, Kati Mozygemba, Kristin Bakke Lysdahl, Andrew Booth, Bjørn Hofmann, Philip Wahlster, Stephanie Polus, Jacob Burns, Louise Brereton, Eva Rehfuess
BACKGROUND: The effectiveness of complex interventions, as well as their success in reaching relevant populations, is critically influenced by their implementation in a given context. Current conceptual frameworks often fail to address context and implementation in an integrated way and, where addressed, they tend to focus on organisational context and are mostly concerned with specific health fields. Our objective was to develop a framework to facilitate the structured and comprehensive conceptualisation and assessment of context and implementation of complex interventions...
February 15, 2017: Implementation Science: IS
https://www.readbyqxmd.com/read/28193368/-becoming-another-transformations-in-the-therapist-who-works-with-gay-and-lesbian-couples
#16
María Victoria Builes Correa, María Teresa Anderson Gómez, Beatriz Helena Arango Arbeláez
OBJECTIVE: To recognise the changes experienced by the therapist who works with gay and lesbian couples. METHOD: Qualitative with biographical-narrative method. Seven therapists were interviewed in Medellin. RESULTS: Three moments in the life trajectory of the participants were identified: Before: closeness and distances between families and the school were found (distances, makes reference, among others, to discourses about homosexuality...
January 2017: Revista Colombiana de Psiquiatría
https://www.readbyqxmd.com/read/28186947/survey-of-community-pharmacists-perception-of-electronic-cigarettes-in-london
#17
Ana C N Marques Gomes, Shereen Nabhani-Gebara, Reem Kayyali, Federico Buonocore, Gianpiero Calabrese
OBJECTIVES: To seek community pharmacists' perception on use, safety and possible effectiveness of e-cigarettes as quit smoking tools, and their future regulation. SETTING: A survey of a sample of 154 community pharmacies across London, UK. CONTEXT: E-cigarettes have exclusively established themselves in the market through consumers-led demand. To date, e-cigarettes still remain unregulated and can be easily purchased in shops, over the internet, but more controversially also in pharmacies in the UK...
November 10, 2016: BMJ Open
https://www.readbyqxmd.com/read/28178727/applying-ethical-and-legal-principles-to-new-technology-the-university-of-auckland-faculty-of-medical-and-health-sciences-policy-taking-and-sharing-images-of-patients
#18
Monique Jonas, Phillipa Malpas, Kate Kersey, Alan Merry, Warwick Bagg
AIMS: To develop a policy governing the taking and sharing of photographic and radiological images by medical students. METHODS: The Rules of the Health Information Privacy Code 1994 and the Code of Health and Disability Services Consumers' Rights were applied to the taking, storing and sharing of photographic and radiological images by medical students. Stakeholders, including clinicians, medical students, lawyers at district health boards in the Auckland region, the Office of the Privacy Commissioner and the Health and Disability Commissioner were consulted and their recommendations incorporated...
January 27, 2017: New Zealand Medical Journal
https://www.readbyqxmd.com/read/28174225/supporting-shared-decision-making-for-older-people-with-multiple-health-and-social-care-needs-a-protocol-for-a-realist-synthesis-to-inform-integrated-care-models
#19
Frances Bunn, Claire Goodman, Jill Manthorpe, Marie-Anne Durand, Isabel Hodkinson, Greta Rait, Paul Millac, Sue L Davies, Bridget Russell, Patricia Wilson
INTRODUCTION: Including the patient or user perspective is a central organising principle of integrated care. Moreover, there is increasing recognition of the importance of strengthening relationships among patients, carers and practitioners, particularly for individuals receiving substantial health and care support, such as those with long-term or multiple conditions. The overall aims of this synthesis are to provide a context-relevant understanding of how models to facilitate shared decision-making (SDM) might work for older people with multiple health and care needs, and how they might be applied to integrated care models...
February 7, 2017: BMJ Open
https://www.readbyqxmd.com/read/28171783/attitudes-regarding-the-national-forensic-dna-database-survey-data-from-the-general-public-prison-inmates-and-prosecutors-offices-in-the-republic-of-serbia
#20
Smilja Teodorović, Dragan Mijović, Una Radovanović Nenadić, Marina Savić
Worldwide, the establishment of national forensic DNA databases has transformed personal identification in the criminal justice system over the past two decades. It has also stimulated much debate centering on ethical issues, human rights, individual privacy, lack of safeguards and other standards. Therefore, a balance between effectiveness and intrusiveness of a national DNA repository is an imperative and needs to be achieved through a suitable legal framework. On its path to the European Union (EU), the Republic of Serbia is required to harmonize its national policies and legislation with the EU...
January 21, 2017: Forensic Science International. Genetics
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