keyword
https://read.qxmd.com/read/38532989/access-and-cost-of-services-for-autistic-children-and-adults-in-italy-a-carers-perspective
#21
JOURNAL ARTICLE
Martina Micai, Francesca Fulceri, Tommaso Salvitti, Giovanna Romano, Maria Luisa Scattoni
BACKGROUND: Limited information exists on autistic service access and costs in Italy. OBJECTIVES: This study aims to investigate access to educational, healthcare, social, and related services for autistic individuals in Italy as part of the Autism Spectrum Disorder in the European Union (ASDEU) project. METHODS: Italian carers of autistic individuals completed an online survey regarding services and costs in the 6 months before completion...
2024: Frontiers in Psychiatry
https://read.qxmd.com/read/38532979/have-immigrant-children-been-left-behind-in-covid-19-testing-rates-a-quantitative-study-in-the-lisbon-metropolitan-area-between-march-2020-and-may-2023
#22
JOURNAL ARTICLE
Iolanda B Alves, Silvia Panunzi, António C Silva, Regina B R Loesch, Sofia C R Pereira, M Rosário O Martins
Immigrant children often encounter additional barriers in accessing health care than their peers. However, there is a lack of evidence globally regarding how migrant status may have affected access to COVID-19 testing during the pandemic. This study aimed to analyze migrant status as a determinant of COVID-19 testing rates among children in the Lisbon metropolitan area, Portugal. This cross-sequential study included 722 children aged 2-8 years (47% non-immigrants; 53% immigrants). We collected data from a national surveillance system on laboratory-confirmed COVID-19 tests conducted between March 2020 and May 2023 and assessed whether children were ever tested for COVID-19 and testing frequency...
2024: Frontiers in Public Health
https://read.qxmd.com/read/38532972/a-study-on-the-effect-of-using-the-video-teach-back-method-in-continuous-nursing-care-of-stroke-patients
#23
JOURNAL ARTICLE
Fei Wang, Wen-Ming Feng, Ming Zhu, Qi Sun, Yong-Mei Zhang, Bing Wang, Xiao-Yong Luo, Jian-Tong Shen, Xiao-Wei Fang, Ting Zhang, Ge Cui
OBJECTIVE: To explore the effect of a video teach-back method on continuous family nursing care of stroke patients. METHODS: Stroke patients hospitalized in our hospital between March 2020 and March 2023 who met the inclusion criteria were randomly divided into an intervention group ( n  = 45), who received routine health education plus video teach-back training of caregivers, and a control group ( n  = 45), who received routine health education only...
2024: Frontiers in Public Health
https://read.qxmd.com/read/38532961/quantifying-the-cost-of-shigella-diarrhea-in-the-enterics-for-global-health-efgh-shigella-surveillance-study
#24
JOURNAL ARTICLE
Chloe Morozoff, Naveed Ahmed, Jobiba Chinkhumba, Md Taufiqul Islam, Abdoulie F Jallow, Billy Ogwel, Loyda Fiorella Zegarra Paredes, Doh Sanogo, Hannah E Atlas, Henry Badji, Naor Bar-Zeev, Bakary Conteh, Mario Güimack Fajardo, Erika Feutz, Fadima C Haidara, Mehrab Karim, Adama Mamby Keita, Youssouf Keita, Farhana Khanam, Margaret N Kosek, Karen L Kotloff, Rebecca Maguire, Ishmail S Mbutuka, Maureen Ndalama, John Benjamin Ochieng, Collins Okello, Richard Omore, Karin F Perez Garcia, Farah Naz Qamar, Syed Qudrat-E-Khuda, Sonia Qureshi, Md Nazmul Hasan Rajib, Wagner Valentino Shapiama Lopez, Shazia Sultana, Desiree Witte, Mohammad Tahir Yousafzai, Alex O Awuor, Nigel A Cunliffe, M Jahangir Hossain, Maribel Paredes Olortegui, Milagritos D Tapia, K Zaman, Arianna Rubin Means
BACKGROUND: Comparative costs of public health interventions provide valuable data for decision making. However, the availability of comprehensive and context-specific costs is often limited. The Enterics for Global Health (EFGH) Shigella surveillance study-a facility-based diarrhea surveillance study across 7 countries-aims to generate evidence on health system and household costs associated with medically attended Shigella diarrhea in children. METHODS: EFGH working groups comprising representatives from each country (Bangladesh, Kenya, Malawi, Mali, Pakistan, Peru, and The Gambia) developed the study methods...
March 2024: Open Forum Infectious Diseases
https://read.qxmd.com/read/38532916/evaluation-of-oral-health-education-programs-among-patients-with-schizophrenia-in-india-an-interventional-study
#25
JOURNAL ARTICLE
Binu Purushothaman, Karishma, Akriti Agrawal, Jazib Nazeer, Basanta K Choudhury, Jagadish Prasad Rajguru, Irfanula Huda, Indrani Das
BACKGROUND: Schizophrenia is a mental disease that can drastically affect oral health. Hence, this remains a significant factor that affects oral health-related quality of life (OHRQoL). Assessing the OHRQoLin schizophrenic patients is one of the primary needs. The oral health impact profile is an impressive range of instruments that assesses the impact of oral conditions on well-being and quality of life. MATERIALS AND METHODS: A 100 schizophrenic individuals were randomly selected from the Psychiatry Department of Government Hospital, Patna, Bihar, India, and grouped into two groups: (a) Group I with...
2024: Journal of Education and Health Promotion
https://read.qxmd.com/read/38532901/a-6-year-old-with-childhood-absence-epilepsy-and-motor-hyperactivity
#26
JOURNAL ARTICLE
Stéphane Auvin
A case study of a child with childhood absence epilepsy and hyperactivity introduces the discussion around the psychiatric diagnosis, differential considerations, and pharmacologic treatment options for ADHD/hyperactivity in children with epilepsy. Most of the time, ADHD in children with epilepsy is an inattentive form. The assessment emphasizes the need to differentiate ADHD symptoms from other psychiatric comorbidities. This is also crucial to evaluate when symptoms emerged, their impact on daily life, and if it could be a potential medication side effect...
2024: Epilepsy & behavior reports
https://read.qxmd.com/read/38532502/caregiver-perspectives-on-patient-focused-drug-development-for-phelan-mcdermid-syndrome
#27
JOURNAL ARTICLE
Luciana Gizzo, Geraldine Bliss, Chrystal Palaty, Alexander Kolevzon
BACKGROUND: Phelan-McDermid syndrome (PMS) is a neurodevelopmental disorder caused by SHANK3 haploinsufficiency with clinical manifestations that can be devastating and profoundly affect quality of life. RESULTS: The Externally Led Patient-Focused Drug Development (EL-PFDD) meeting was an opportunity for families affected by PMS to share with the Food and Drug Administration (FDA) how symptoms impact their lives and how treatments could be most meaningful. The Voice of the Patient report serves as a summary of this meeting to influence upcoming drug development and clinical trials...
March 26, 2024: Orphanet Journal of Rare Diseases
https://read.qxmd.com/read/38532418/cross-country-variations-in-the-caregiver-role-evidence-from-the-entwine-icohort-study
#28
JOURNAL ARTICLE
Mikołaj Zarzycki, Noa Vilchinsky, Eva Bei, Giulia Ferraris, Diane Seddon, Val Morrison
BACKGROUND: Globally, economically developed countries face similar ageing demographics and the challenge of a 'care gap', yet they vary due to different care and formal support systems, and different cultural and societal norms around illness and care. The aim of this exploratory study was to examine cross-country variations in caregiver motivations, willingness, values, meaning in life, illness beliefs, and experiences of wellbeing, gain, health-related quality of life, burden and depression, across 6 European countries and Israel...
March 26, 2024: BMC Public Health
https://read.qxmd.com/read/38532400/knowledge-attitudes-and-practices-towards-kawasaki-disease-from-caregivers-of-children-with-kawasaki-disease-a-cross-sectional-study
#29
JOURNAL ARTICLE
Miaomiao Zhao, Jiaxin Ye, Luping Chen, Yitong Yang, Meng Zhao, Mingzhu Yang, Zhaoling Shi
PURPOSE: To examine the knowledge, attitudes, and practices (KAP) of caregivers of children with Kawasaki disease toward Kawasaki disease. METHODS: This cross-sectional study was conducted at four hospitals in China from March 2023 to June 2023. The KAP scores were evaluated using a self-designed questionnaire (Cronbach's α = 0.840; KMO = 0.7381). Correlations between dimension scores were evaluated by Pearson correlation analysis...
March 26, 2024: BMC Public Health
https://read.qxmd.com/read/38532365/study-protocol-randomized-controlled-trial-of-an-individualized-music-intervention-for-people-with-dementia-in-the-home-care-setting
#30
JOURNAL ARTICLE
Elisabeth Jakob, Juliane Meininger, Mareike Hillebrand, Lisette Weise, Gabriele Wilz
BACKGROUND: Studies suggest that individualized music listening is an effective, non-pharmacological intervention for improving the quality of life of people with dementia in the institutional care setting. Noting that most people with dementia live at home, we conduct a randomized controlled trial to assess the feasibility and effectiveness of an app-based individualized music listening intervention for people with dementia in the home care setting. The intervention is delivered by family caregivers...
March 26, 2024: BMC Psychiatry
https://read.qxmd.com/read/38531858/a-shifting-paradigm-toward-family-centered-care-in-neuro-oncology-a-longitudinal-quasi-experimental-mixed-methods-feasibility-study
#31
JOURNAL ARTICLE
Karin Piil, Giulia Locatelli, Stine Laegaard Skovhus, Anders Tolver, Mary Jarden
Family-centered intervention can help families facing illness-related issues. We investigated the feasibility of Family and Network Conversations (FNCs) in high-grade glioma patients and their families. Quasi-experimental feasibility study with longitudinal mixed-methods design. Patients and families were invited to three FNCs over 1 year. They completed questionnaires at four time points and expressed their perspectives on the intervention through telephone interviews. Nurses' perspectives were collected in a focus group...
March 26, 2024: Journal of Family Nursing
https://read.qxmd.com/read/38531571/educommunication-in-nutrition-and-neurodegenerative-diseases-a-scoping-review-protocol
#32
JOURNAL ARTICLE
Karla Monica Dantas Coutinho, Sancha Helena de Lima Vale, Manaces Santos Bezerril, Monica Karina Santos Reis, Lucia Leite-Lais, Kenio Costa Lima
INTRODUCTION: Neurodegenerative diseases affect the nervous system and are characterised by the deterioration and/or death of neurons. Nutrition care is essential for maintaining an adequate nutritional status, which influences the prognosis and survival of patients with neurological diseases. Caregivers participate assiduously in the care of these patients and must be integrated into the multidisciplinary team. They often need specific training or knowledge regarding food and nutrition to perform their roles with patients...
March 25, 2024: BMJ Open
https://read.qxmd.com/read/38531494/association-of-spouse-s-vision-impairment-with-depressive-symptoms-and-cognitive-decline-in-partner-a-nationally-representative-study-in-china
#33
JOURNAL ARTICLE
Kun Xiong, Qi'ao Zhang, Huiyan Mao, Wenzhe Zhou, Qiangjie Huang, Yuanbo Liang
BACKGROUND: Although several previous studies have reported on the relationship between vision impairment and caregiver mental health, mixed results were obtained, and only one study reported the association between spousal vision impairment and partner depression. Therefore, our study aimed to examine the association between spousal vision impairment and the partner's depressive symptoms and cognitive decline. METHODS: This cross-sectional study gathered baseline data from the China Health and Retirement Longitudinal Study (CHARLS) in 2011...
March 24, 2024: Journal of Affective Disorders
https://read.qxmd.com/read/38531386/complications-and-psychological-impact-of-pressure-ulcers-on-patients-and-caregivers
#34
JOURNAL ARTICLE
Li Qian, Song Yan, Shen Ting Ting, Zhang Meng Han, Tian Qi
Pressure ulcers are persistent skin lesions that have substantial detrimental effects on the physical well-being of patients. Moreover, their psychological ramifications for both patients and their caregivers are becoming more widely acknowledged. This research was conducted to examine the psychological ramifications of pressure ulcers and ascertain efficacious approaches to mitigate these effects and improve overall well-being. A cross-sectional study was conducted from March 2022 to December 2023 across tertiary care centres located in Beijing...
April 2024: International Wound Journal
https://read.qxmd.com/read/38531347/proportion-and-correlates-of-children-in-the-us-affiliated-pacific-region-meeting-sleep-screen-time-and-physical-activity-guidelines
#35
JOURNAL ARTICLE
Sarah T Ryan, Anthony D Okely, Kar Hau Chong, Rebecca M Stanley, Melanie Randle, Gade Waqa, Ashley B Yamanaka, Rachael Leon Guerrero, Patricia Coleman, Leslie Shallcross, Lynne R Wilkens, Jonathan L Deenik, Rachel Novotny
INTRODUCTION: Limited data on 24-hour movement behaviors of children aged 5-8 years exist globally. We describe the prevalence and sociodemographic associations of meeting physical activity (PA), sedentary recreational screen time (ST), and sleep guidelines among children from 11 jurisdictions in the US-Affiliated Pacific region. METHODS: Cross-sectional representative data from 1192 children aged 5-8 years living in the US-Affiliated Pacific region were drawn from the baseline 2012-2014 Children's Healthy Living Program...
March 26, 2024: Journal of Physical Activity & Health
https://read.qxmd.com/read/38531337/informal-care-time-and-costs-of-dementia-care-in-benin-west-africa
#36
JOURNAL ARTICLE
Angeladine Kenne Malaha, Clémence Thébaut, Dismand Stephan Houinato, Grégoire Magloire Gansou, Dieu Donné Gnonlonfoun, Thierry Adoukonou, Pierre-Marie Preux, Maëlenn Guerchet
BACKGROUND: Dementia is a growing global health challenge, with significant socioeconomic implications. This study examined the informal care duration and related costs along with the total cost of care for older individuals with dementia in Benin, West Africa, providing insights into a region with limited dementia research. METHODS: We conducted a cost-of-illness study in Benin. Both hospital and community recruitments were used to enroll adults aged ≥ 60 years and their primary caregivers...
March 26, 2024: Neuroepidemiology
https://read.qxmd.com/read/38531175/current-state-of-home-health-in-children-with-medical-complexity
#37
JOURNAL ARTICLE
Teresa Kodiak, Megan Quinn, Linda Zekas
BACKGROUND: Home health services are a right for children in the US, but higher survival rates of extremely preterm infants have led to an increase in children with medical complexity (CMC) and therefore an increased demand for home health services. Unfortunately, an adequately trained and compensated workforce to support medially complex children at home does not exist. METHODS: After identifying the existing research, common themes were identified. This article was written to give an overview of these themes and highlight specific supporting data...
March 25, 2024: Journal of Pediatric Nursing
https://read.qxmd.com/read/38531166/perceived-childhood-neighborhood-safety-and-sleep-health-during-childhood-and-adulthood-among-a-cohort-of-african-american-women
#38
JOURNAL ARTICLE
Symielle A Gaston, Dana M Alhasan, Dayna A Johnson, Lauren Hale, Quaker E Harmon, Donna D Baird, Chandra L Jackson
OBJECTIVE: To investigate associations between perceived childhood neighborhood safety and sleep over the life course. METHODS: Among a cohort of 1693 Black/African American women aged 23-35 years at enrollment (2010-2012), participants recalled neighborhood safety (safe vs. unsafe) when they were 5, 10, and 15 years old. Participants' mothers/caregivers and participants reported sleep-related health behaviors at age 5. We used ordinal logistic regression to estimate odds ratios (ORs) and 95% confidence intervals (CIs) for sleep-related health behaviors (i...
March 6, 2024: Sleep Medicine
https://read.qxmd.com/read/38531117/guess-who-s-coming-to-clinic-companions-in-a-pediatric-urology-clinic
#39
JOURNAL ARTICLE
Meridiana Mendez, Kurt Panganiban, Kathleen Kieran
INTRODUCTION: Understanding who accompanies children to clinic visits is necessary to engage stakeholders and tailor communication and educational materials. We undertook this study to describe the clinical companions for new patients in a general pediatric urology clinic. METHODS: This retrospective cross-sectional study included all new urology patients aged less than 18 y at a single freestanding quaternary care children's hospital in selected months of 2019 and 2022...
March 25, 2024: Journal of Surgical Research
https://read.qxmd.com/read/38531017/clinical-characteristics-developmental-trajectory-and-caregiver-burden-of-patients-with-creatine-transporter-deficiency-slc6a8
#40
JOURNAL ARTICLE
Aurore Curie, Laurence Lion-François, Vassili Valayannopoulos, Nathalie Perreton, Marie Gavanon, Nathalie Touil, Amandine Brun-Laurisse, Fahra Gheurbi, Marion Buchy, Hulya Halep, David Cheillan, Catherine Mercier, Anaïs Brassier, Béatrice Desnous, Behrouz Kassai, Pascale De Lonlay, Vincent Des Portes
BACKGROUND AND OBJECTIVES: Creatine transporter deficiency (CTD) is a rare X-linked genetic disorder characterized by intellectual disability (ID). We evaluated the clinical characteristics and trajectory of patients with CTD and the impact of the disease on caregivers to identify relevant endpoints for future therapeutic trials. METHODS: As part of a French National Research Program, patients with CTD were included based on (1) a pathogenic SLC6A8 variant and (2) ID and/or autism spectrum disorder...
April 23, 2024: Neurology
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