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Caregiver strain and dementia

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https://www.readbyqxmd.com/read/28186825/balancing-safety-and-harm-for-older-adults-with-dementia-in-rural-emergency-departments-healthcare-professionals-perspectives
#1
Kathleen F Hunter, Belinda Parke, Maureen Babb, Dorothy Forbes, Laurel Strain
INTRODUCTION: The emergency department (ED) is a potentially harmful environment for older adults with dementia, and rural EDs face unique challenges in providing care to this population. The purpose of this study was to understand safety and harm in rural ED transitional care for community dwelling older adults with dementia from the perspective of healthcare professionals (HCPs). METHODS: An interpretive, descriptive exploratory design from a social ecological perspective was used...
January 2017: Rural and Remote Health
https://www.readbyqxmd.com/read/28128641/incongruent-perceptions-of-the-care-values-of-hospitalized-persons-with-dementia-a-pilot-study-of-patient-family-caregiver-dyads
#2
Lyndsey M Miller, Carol J Whitlatch, Christopher S Lee, Karen S Lyons
OBJECTIVE: Many difficult decisions are made in the inpatient hospital setting regarding the daily care of persons with dementia (PWDs). Incongruent perceptions of the PWD's care values limit the family caregiver's ability to make surrogate decisions. The objectives of this pilot study were to describe and identify determinants of incongruent perceptions in the hospital setting. METHODS: Using multilevel modeling (MLM), we examined cross-sectional data collected from 42 PWD-family caregiver dyads...
January 27, 2017: Aging & Mental Health
https://www.readbyqxmd.com/read/28077452/does-it-matter-if-we-disagree-the-impact-of-incongruent-care-preferences-on-persons-with-dementia-and-their-care-partners
#3
Evan G Shelton, Silvia Orsulic-Jeras, Carol J Whitlatch, Sarah M Szabo
PURPOSE: To gain a better understanding of how actual and perceived incongruence of care preferences affects the psychosocial well-being of persons with dementia and their family caregiver. DESIGN AND METHODS: In-depth interviews were conducted with 128 dyads each consisting of a person with dementia and a family caregiver. Baseline data from an intervention study were used to examine the relationship between the caregiver's care-related preferences, the person with dementia's care-related preferences, and the caregiver's perception of the person with dementia's preferences...
January 10, 2017: Gerontologist
https://www.readbyqxmd.com/read/27912740/effectiveness-and-cost-effectiveness-of-an-in-home-respite-care-program-in-supporting-informal-caregivers-of-people-with-dementia-design-of-a-comparative-study
#4
Sophie Vandepitte, Nele Van Den Noortgate, Koen Putman, Sofie Verhaeghe, Lieven Annemans
BACKGROUND: Frequent hospitalization and permanent nursing home placement not only affect the well-being of persons with dementia, but also place great financial strain on society. Therefore, it is important to create effective strategies to support informal caregivers so that they can continue to perform their demanding role. Preliminary qualitative evidence suggests that community-based respite services can actually be important for caregivers, and that the level of evidence should be further established in terms of effectiveness...
December 2, 2016: BMC Geriatrics
https://www.readbyqxmd.com/read/27869480/caregiver-profiles-in-dementia-related-to-quality-of-life-depression-and-perseverance-time-in-the-european-actifcare-study-the-importance-of-social-health
#5
Eveline P C J Janssen, Marjolein de Vugt, Sebastian Köhler, Claire Wolfs, Liselot Kerpershoek, Ron L H Handels, Martin Orrell, Bob Woods, Hannah Jelley, Astrid Stephan, Anja Bieber, Gabriele Meyer, Knut Engedal, Geir Selbaek, Anders Wimo, Kate Irving, Louise Hopper, Manuel Gonçalves-Pereira, Elisa Portolani, Orazio Zanetti, Frans R Verhey
OBJECTIVES: To identify caregiver profiles of persons with mild to moderate dementia and to investigate differences between identified caregiver profiles, using baseline data of the international prospective cohort study Actifcare. METHODS: A latent class analysis was used to discover different caregiver profiles based on disease related characteristics of 453 persons with dementia and their 453 informal caregivers. These profiles were compared with regard to quality of life (CarerQoL score), depressive symptoms (HADS-D score) and perseverance time...
January 2017: Aging & Mental Health
https://www.readbyqxmd.com/read/27710130/examining-live-in-foreign-domestic-helpers-as-a-coping-resource-for-family-caregivers-of-people-with-dementia-in-singapore
#6
Iccha Basnyat, Leanne Chang
In Singapore, the responsibility of caring for persons with dementia falls on family members who cope with a long-term caregiver burden, depending on available support resources. Hiring foreign domestic workers to alleviate caregiver burden becomes a prevalent coping strategy that caregivers adopt. This strategy allows caregivers to provide home care as part of fulfilling family obligations while managing the caregiver burden. This study aimed to investigate primary caregivers' relationship with hired support and its impact on coping with caregiver burden...
October 6, 2016: Health Communication
https://www.readbyqxmd.com/read/27660047/robots-to-assist-daily-activities-views-of-older-adults-with-alzheimer-s-disease-and-their-caregivers
#7
Rosalie H Wang, Aishwarya Sudhama, Momotaz Begum, Rajibul Huq, Alex Mihailidis
BACKGROUND: Robots have the potential to both enable older adults with dementia to perform daily activities with greater independence, and provide support to caregivers. This study explored perspectives of older adults with Alzheimer's disease (AD) and their caregivers on robots that provide stepwise prompting to complete activities in the home. METHODS: Ten dyads participated: Older adults with mild-to-moderate AD and difficulty completing activity steps, and their family caregivers...
January 2017: International Psychogeriatrics
https://www.readbyqxmd.com/read/27385475/negative-consequences-of-family-caregiving-for-veterans-with-ptsd-and-dementia
#8
Caitlin M Pinciotti, David M Bass, Catherine A McCarthy, Katherine S Judge, Nancy L Wilson, Robert O Morgan, A Lynn Snow, Mark E Kunik
Recent research shows veterans with posttraumatic stress disorder (PTSD) are twice as likely as other veterans to develop dementia. However, no studies to date have examined the impact of co-existing PTSD and dementia on family caregivers, who provide the majority of care to these veterans. Using the Stress Process Model, the current investigation explored the similarities and differences in psychosocial, health, and service use outcomes among caregivers assisting veterans with PTSD and dementia compared with caregivers assisting veterans with dementia only...
February 2017: Journal of Nervous and Mental Disease
https://www.readbyqxmd.com/read/27330886/the-voices-of-family-caregivers-of-seniors-with-chronic-conditions-a-window-into-their-experience-using-a-qualitative-design
#9
Suzette Brémault-Phillips, Jasneet Parmar, Melissa Johnson, Arlene Huhn, Anna Mann, Victoria Tian, Lori-Ann R Sacrey
BACKGROUND: Family caregivers are the backbone of the healthcare system. Over time, caregiving takes a tremendous toll on the caregiver. This is particularly true for caregivers who (1) provide >21 h of care/week, and/or (2) support those experiencing depression, cognitive decline, aggressive behaviours, and life-limiting conditions requiring complex care. Many caregivers face deteriorating physical and mental health, social isolation, family conflict, and job loss. Caregivers often have little energy or time to access resources and their experiences with the healthcare system, healthcare professionals and service agencies can either buoy them through challenging times, or contribute further to their distress...
2016: SpringerPlus
https://www.readbyqxmd.com/read/27130624/social-function-and-cognitive-status-results-from-a-us-nationally-representative-survey-of-older-adults
#10
Ashwin A Kotwal, Juyeon Kim, Linda Waite, William Dale
BACKGROUND: An early sign of cognitive decline in older adults is often a disruption in social function, but our understanding of this association is limited. OBJECTIVE: We aimed to determine whether those screening positive for early stages of cognitive impairment have differences across multiple dimensions of social function and whether associations differ by gender. DESIGN: United States nationally representative cohort (2010), the National Social life, Health, and Aging Project (NSHAP)...
August 2016: Journal of General Internal Medicine
https://www.readbyqxmd.com/read/27079704/effectiveness-of-supporting-informal-caregivers-of-people-with-dementia-a-systematic-review-of-randomized-and-non-randomized-controlled-trials
#11
Sophie Vandepitte, Nele Van Den Noortgate, Koen Putman, Sofie Verhaeghe, Kristof Faes, Lieven Annemans
BACKGROUND: Dementia is known as a major public health problem affecting both patients and caregivers, and placing a high financial strain upon society. In community-dwelling patients, it is important to support informal caregivers in order to help them sustain their demanding role. Previous reviews about effectiveness of such supporting strategies often included a small number of studies, focused only on particular supportive types, particular outcomes, or solely on caregivers. OBJECTIVE: A general systematic review was conducted investigating effectiveness of different supportive strategies on at least the well-being of the caregiver or the care-recipient...
April 8, 2016: Journal of Alzheimer's Disease: JAD
https://www.readbyqxmd.com/read/27014594/gender-differences-in-caregiving-among-family-caregivers-of-people-with-mental-illnesses
#12
Nidhi Sharma, Subho Chakrabarti, Sandeep Grover
All over the world women are the predominant providers of informal care for family members with chronic medical conditions or disabilities, including the elderly and adults with mental illnesses. It has been suggested that there are several societal and cultural demands on women to adopt the role of a family-caregiver. Stress-coping theories propose that women are more likely to be exposed to caregiving stressors, and are likely to perceive, report and cope with these stressors differently from men. Many studies, which have examined gender differences among family-caregivers of people with mental illnesses, have concluded that women spend more time in providing care and carry out personal-care tasks more often than men...
March 22, 2016: World Journal of Psychiatry
https://www.readbyqxmd.com/read/26880242/episodic-memories-of-relationship-quality-procedural-knowledge-of-attachment-scripts-and-the-experience-of-daughters-caring-for-a-parent-with-dementia
#13
Cory K Chen, Robert W Bailey
A caregiver's attachment history with their parents may affect the thoughts, feelings, and behavior they now have as they care for a parent with dementia. Participants were 77 daughters of a parent with dementia. The nature of participant conscious episodic memories of their parental figures and unconscious procedural knowledge of caregiving processes (secure base script knowledge) were identified as two aspects of the caregiver's relationship history that may impact their involvement in care, relationship conflict, critical attitudes, and strain...
February 15, 2016: Dementia
https://www.readbyqxmd.com/read/26821868/evaluating-the-message-communication-strategies-in-dementia-training-for-use-with-community-based-aged-care-staff-working-with-people-with-dementia-a-controlled-pretest-post-test-study
#14
RANDOMIZED CONTROLLED TRIAL
Erin R Conway, Helen J Chenery
AIMS AND OBJECTIVES: The study aims to evaluate the effects of a communication skills training programme on community aged care staff's knowledge of communication support in dementia and on staff's care experience. BACKGROUND: Dementia can lead to impairments in communication. Therefore, quality community-based dementia care requires that staff be skilled communicators, equipped to facilitate interactions with people with dementia. The current investigation evaluated the effectiveness of the MESSAGE Communication Strategies in Dementia for Care Staff training programme with respect to knowledge of communication support and the staff/caregiver experience...
April 2016: Journal of Clinical Nursing
https://www.readbyqxmd.com/read/26543358/outcomes-of-a-multimodal-cognitive-and-physical-rehabilitation-program-for-persons-with-mild-dementia-and-their-caregivers-a-goal-oriented-approach
#15
Justin Chew, Mei-Sian Chong, Yoke-Leng Fong, Laura Tay
BACKGROUND: Nonpharmacological interventions such as exercise and cognitive rehabilitation programs have shown promise in reducing the impact of dementia on the individual and the caregiver. In this study, we examine the effect of a multimodal cognitive and physical rehabilitation program for persons with mild dementia and their caregivers using conventional measures of cognition, behavior, quality of life (QoL), and caregiver burden together with goal attainment scaling (GAS), an individualized outcome measure...
2015: Clinical Interventions in Aging
https://www.readbyqxmd.com/read/26310864/young-adults-experiences-of-their-parents-caring-for-a-relative-with-dementia
#16
Pik Yi Hou, Claudia Kam Yuk Lai, Ching Sum Chung, Amy Kin Kwan Sham, Ching Lai Yeung
AIM: The aim of the present study was to explore the experiences and perceptions young adults had of family members who are caring for a relative with dementia. METHODS: An exploratory qualitative study with semi-structured interviews was carried out and data were collected from 24 young adults recruited through purposive sampling. The participants had to have a close relative who was caring for an elderly family member with dementia. A content analysis approach was used for the verbatim transcription...
July 2016: Geriatrics & Gerontology International
https://www.readbyqxmd.com/read/26302667/neuropsychiatric-symptoms-caregiver-burden-and-distress-in-behavioral-variant-frontotemporal-dementia-and-alzheimer-s-disease
#17
COMPARATIVE STUDY
Thais Bento Lima-Silva, Valéria Santoro Bahia, Viviane Amaral Carvalho, Henrique Cerqueira Guimarães, Paulo Caramelli, Márcio Luiz Balthazar, Benito Damasceno, Cássio Machado Bottino, Sônia Maria Brucki, Ricardo Nitrini, Mônica Sanches Yassuda
BACKGROUND/AIMS: We aimed to compare caregiver burden and distress in behavioral-variant frontotemporal dementia (bvFTD) and Alzheimer's disease (AD) and to investigate which factors contribute to caregivers' burden and distress. METHODS: Fifty patients and their caregivers were invited to participate. Among the patients, 20 had a diagnosis of bvFTD and 30 had AD. Caregivers and patients were statistically equivalent for age, sex, education and dementia severity according to Clinical Dementia Rating...
2015: Dementia and Geriatric Cognitive Disorders
https://www.readbyqxmd.com/read/26273229/effect-of-home-based-light-treatment-on-persons-with-dementia-and-their-caregivers
#18
P D Sloane, M Figueiro, S Garg, L W Cohen, D Reed, C S Williams, J Preisser, S Zimmerman
Sleep disorders are problematic for persons with dementia and their family caregivers. This randomized controlled trial with crossover evaluated the effects of an innovative blue-white light therapy on 17 pairs of home-dwelling persons with dementia and their caregivers. Subjects with dementia received blue-white light and control ('red-yellow' light) for six weeks separated by a four-week washout. Neither actigraphic nor most self-reported sleep measures significantly differed for subjects with dementia. For caregivers, both sleep and role strain improved...
April 2015: Light Research & Technology
https://www.readbyqxmd.com/read/26241570/dementia-and-caregiver-stress-an-application-of-the-reconceptualized-uncertainty-in-illness-theory
#19
Christine Unson, Deborah Flynn, Mary Ann Glendon, Elayne Haymes, Diane Sancho
The Reconceptualized Uncertainty in Illness Theory (RUIT) was used to investigate antecedents to, appraisals of, and ways of coping with stressful caregiving. Four focus groups with caregivers (8 males and 16 females) of relatives with dementia were conducted; 15 cared for their parents and the remainder cared for their spouses. They were recruited from an adult care center and other community settings in a metropolitan area in New England. The discussions were audiotaped and transcribed verbatim. Two researchers independently coded the transcripts...
June 2015: Issues in Mental Health Nursing
https://www.readbyqxmd.com/read/26107319/testing-family-centered-function-focused-care-in-hospitalized-persons-with-dementia
#20
COMPARATIVE STUDY
Marie Boltz, Tracy Chippendale, Barbara Resnick, James E Galvin
AIM: Hospital-acquired disability causes decreased quality of life for patients with dementia and family caregivers, and increased societal costs. MATERIALS & METHODS: A comparative, repeated measures study tested the feasibility and preliminary efficacy of the family-centered, function-focused care intervention (Fam-FFC) in dyads of hospitalized, medical patients with dementia and family caregivers (FCGs). RESULTS: The intervention group demonstrated better activities of daily living and walking performance, and less severity/duration of delirium and hospital readmissions, but no significant differences in gait/balance...
2015: Neurodegenerative Disease Management
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