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Caregiver strain and dementia

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https://www.readbyqxmd.com/read/28526049/psychological-status-and-quality-of-life-among-primary-caregivers-of-individuals-with-mental-illness-a-hospital-based-study
#1
Anitha Jeyagurunathan, Vathsala Sagayadevan, Edimansyah Abdin, YunJue Zhang, Sherilyn Chang, Saleha Shafie, Restria Fauziana Abdul Rahman, Janhavi Ajit Vaingankar, Siow Ann Chong, Mythily Subramaniam
BACKGROUND: This study aimed to explore the psychological status and quality of life among primary caregivers of individuals suffering from various mental illnesses including early psychosis, chronic schizophrenia, depressive disorders, anxiety disorders and dementia. METHODS: A total of 350 primary caregivers with relatives seeking treatment at a tertiary psychiatric hospital were recruited for this study. Socio-demographic data was obtained and the brief version of the World Health Organisation Quality of Life instrument was used to assess caregiver's quality of life (QOL)...
May 19, 2017: Health and Quality of Life Outcomes
https://www.readbyqxmd.com/read/28488270/rest-activity-rhythm-and-sleep-characteristics-associated-with-depression-symptom-severity-in-strained-dementia-caregivers
#2
Stephen F Smagula, Robert T Krafty, Briana J Taylor, Lynn M Martire, Richard Schulz, Martica H Hall
Depression is associated with disturbances to sleep and the 24-h sleep-wake pattern (known as the rest-activity rhythm: RAR). However, there remains a need to identify the specific sleep/RAR correlates of depression symptom severity in population subgroups, such as strained dementia caregivers, who are at elevated risk for major depressive disorder. We assessed the cross-sectional associations of sleep/RARs with non-sleep depression symptom severity among 57 (mean age: 74 years, standard deviation: 7.4) strained dementia caregivers who were currently without clinical depression...
May 10, 2017: Journal of Sleep Research
https://www.readbyqxmd.com/read/28459351/psychometric-evaluation-of-kingston-caregiver-stress-scale
#3
Tatiana Sadak, Anna Korpak, Jacob D Wright, Mee Kyung Lee, Margaret Noel, Kathleen Buckwalter, Soo Borson
OBJECTIVES: Standardized measurement of caregiver stress is a component of Medicare's new health care benefit supporting care planning for people with dementia. In this article we identify existing measures of caregiver stress, strain and burden and propose specific criteria for choosing tools that may be suitable for wide use in primary care settings. We reviewed 22 measures and identified one, the Kingston Caregiver Stress Scale (KCSS), which met all the proposed criteria but had not been studied in a U...
April 5, 2017: Clinical Gerontologist
https://www.readbyqxmd.com/read/28381222/assessment-of-the-consequences-of-caregiving-in-psychosis-a-psychometric-comparison-of-the-zarit-burden-interview-zbi-and-the-involvement-evaluation-questionnaire-ieq
#4
Manuel Gonçalves-Pereira, Eduardo González-Fraile, Borja Santos-Zorrozúa, Manuel Martín-Carrasco, Paola Fernández-Catalina, Ana I Domínguez-Panchón, Paula Muñoz-Hermoso, Javier Ballesteros
BACKGROUND: The Zarit Burden Interview (ZBI) was originally developed to assess the level of subjective burden in caregivers of people with dementia. The Involvement Evaluation Questionnaire (IEQ) is amongst the leading scales to assess caregiving consequences in severe mental illness. We aimed to compare the psychometric properties of the ZBI, a generic tool, and of the IEQ, a more specific tool to assess the consequences of caregiving in schizophrenia and related disorders. METHODS: Secondary analyses of a 16-week, randomized controlled trial of a psychoeducational intervention in 223 primary caregivers of patients with schizophrenia or schizoaffective disorder...
April 5, 2017: Health and Quality of Life Outcomes
https://www.readbyqxmd.com/read/28379352/involvement-of-hospitalized-persons-with-dementia-in-everyday-decisions-a-dyadic-study
#5
Lyndsey M Miller, Christopher S Lee, Carol J Whitlatch, Karen S Lyons
Background and Objectives: To examine the involvement of persons with dementia (PWDs) in everyday decision making from the perspectives of hospitalized PWDs and their family caregivers, and to identify determinants thereof. Research Design and Methods: Using multilevel modeling, we examined cross-sectional data collected prospectively from 42 family care dyads regarding the care values of the PWD. Results: Both members of the dyad rated the PWD, on average, as being "somewhat involved"...
April 3, 2017: Gerontologist
https://www.readbyqxmd.com/read/28372581/perseverance-time-of-informal-caregivers-for-people-with-dementia-construct-validity-responsiveness-and-predictive-validity
#6
Anke Richters, René J F Melis, N Job van Exel, Marcel G M Olde Rikkert, Marjolein A van der Marck
BACKGROUND: Informal care is essential for many people with dementia (PwD), but it often results in a considerable burden for the caregiver. The perseverance time instrument integrates the aspect of perceived burden with the caregiver's capacity to cope with the burden, in contrast to most available instruments, which measure solely the burden of caregiving. The aim of this study was to extend insight into psychometric properties of the perseverance time instrument, specifically the construct validity, responsiveness, and predictive validity, within the population of informal caregivers for PwD...
April 4, 2017: Alzheimer's Research & Therapy
https://www.readbyqxmd.com/read/28260539/background-characteristics-and-treatment-related-factors-associated-with-treatment-success-or-failure-in-a-non-pharmacological-intervention-for-dementia-caregivers
#7
Karen C Rose, Laura N Gitlin
BACKGROUND: Non-pharmacological interventions for persons with dementia often rely on family caregivers for implementation. However, caregivers differ in their readiness to use strategies. This study examines dyadic characteristics and treatment-related mechanisms associated with treatment success (high readiness to use strategies) and failure (low readiness to use strategies) at the conclusion of the Advancing Caregiver Training (ACT) intervention. METHODS: Caregiver and person with dementia characteristics and treatment-related variables (treatment participation, number and type of strategies introduced and enacted) were examined in 110 caregivers in intervention...
June 2017: International Psychogeriatrics
https://www.readbyqxmd.com/read/28186825/balancing-safety-and-harm-for-older-adults-with-dementia-in-rural-emergency-departments-healthcare-professionals-perspectives
#8
Kathleen F Hunter, Belinda Parke, Maureen Babb, Dorothy Forbes, Laurel Strain
INTRODUCTION: The emergency department (ED) is a potentially harmful environment for older adults with dementia, and rural EDs face unique challenges in providing care to this population. The purpose of this study was to understand safety and harm in rural ED transitional care for community dwelling older adults with dementia from the perspective of healthcare professionals (HCPs). METHODS: An interpretive, descriptive exploratory design from a social ecological perspective was used...
January 2017: Rural and Remote Health
https://www.readbyqxmd.com/read/28128641/incongruent-perceptions-of-the-care-values-of-hospitalized-persons-with-dementia-a-pilot-study-of-patient-family-caregiver-dyads
#9
Lyndsey M Miller, Carol J Whitlatch, Christopher S Lee, Karen S Lyons
OBJECTIVE: Many difficult decisions are made in the inpatient hospital setting regarding the daily care of persons with dementia (PWDs). Incongruent perceptions of the PWD's care values limit the family caregiver's ability to make surrogate decisions. The objectives of this pilot study were to describe and identify determinants of incongruent perceptions in the hospital setting. METHODS: Using multilevel modeling (MLM), we examined cross-sectional data collected from 42 PWD-family caregiver dyads...
January 27, 2017: Aging & Mental Health
https://www.readbyqxmd.com/read/28077452/does-it-matter-if-we-disagree-the-impact-of-incongruent-care-preferences-on-persons-with-dementia-and-their-care-partners
#10
Evan G Shelton, Silvia Orsulic-Jeras, Carol J Whitlatch, Sarah M Szabo
PURPOSE: To gain a better understanding of how actual and perceived incongruence of care preferences affects the psychosocial well-being of persons with dementia and their family caregiver. DESIGN AND METHODS: In-depth interviews were conducted with 128 dyads each consisting of a person with dementia and a family caregiver. Baseline data from an intervention study were used to examine the relationship between the caregiver's care-related preferences, the person with dementia's care-related preferences, and the caregiver's perception of the person with dementia's preferences...
January 10, 2017: Gerontologist
https://www.readbyqxmd.com/read/27912740/effectiveness-and-cost-effectiveness-of-an-in-home-respite-care-program-in-supporting-informal-caregivers-of-people-with-dementia-design-of-a-comparative-study
#11
Sophie Vandepitte, Nele Van Den Noortgate, Koen Putman, Sofie Verhaeghe, Lieven Annemans
BACKGROUND: Frequent hospitalization and permanent nursing home placement not only affect the well-being of persons with dementia, but also place great financial strain on society. Therefore, it is important to create effective strategies to support informal caregivers so that they can continue to perform their demanding role. Preliminary qualitative evidence suggests that community-based respite services can actually be important for caregivers, and that the level of evidence should be further established in terms of effectiveness...
December 2, 2016: BMC Geriatrics
https://www.readbyqxmd.com/read/27869480/caregiver-profiles-in-dementia-related-to-quality-of-life-depression-and-perseverance-time-in-the-european-actifcare-study-the-importance-of-social-health
#12
Eveline P C J Janssen, Marjolein de Vugt, Sebastian Köhler, Claire Wolfs, Liselot Kerpershoek, Ron L H Handels, Martin Orrell, Bob Woods, Hannah Jelley, Astrid Stephan, Anja Bieber, Gabriele Meyer, Knut Engedal, Geir Selbaek, Anders Wimo, Kate Irving, Louise Hopper, Manuel Gonçalves-Pereira, Elisa Portolani, Orazio Zanetti, Frans R Verhey
OBJECTIVES: To identify caregiver profiles of persons with mild to moderate dementia and to investigate differences between identified caregiver profiles, using baseline data of the international prospective cohort study Actifcare. METHODS: A latent class analysis was used to discover different caregiver profiles based on disease related characteristics of 453 persons with dementia and their 453 informal caregivers. These profiles were compared with regard to quality of life (CarerQoL score), depressive symptoms (HADS-D score) and perseverance time...
January 2017: Aging & Mental Health
https://www.readbyqxmd.com/read/27710130/examining-live-in-foreign-domestic-helpers-as-a-coping-resource-for-family-caregivers-of-people-with-dementia-in-singapore
#13
Iccha Basnyat, Leanne Chang
In Singapore, the responsibility of caring for persons with dementia falls on family members who cope with a long-term caregiver burden, depending on available support resources. Hiring foreign domestic workers to alleviate caregiver burden becomes a prevalent coping strategy that caregivers adopt. This strategy allows caregivers to provide home care as part of fulfilling family obligations while managing the caregiver burden. This study aimed to investigate primary caregivers' relationship with hired support and its impact on coping with caregiver burden...
October 6, 2016: Health Communication
https://www.readbyqxmd.com/read/27660047/robots-to-assist-daily-activities-views-of-older-adults-with-alzheimer-s-disease-and-their-caregivers
#14
Rosalie H Wang, Aishwarya Sudhama, Momotaz Begum, Rajibul Huq, Alex Mihailidis
BACKGROUND: Robots have the potential to both enable older adults with dementia to perform daily activities with greater independence, and provide support to caregivers. This study explored perspectives of older adults with Alzheimer's disease (AD) and their caregivers on robots that provide stepwise prompting to complete activities in the home. METHODS: Ten dyads participated: Older adults with mild-to-moderate AD and difficulty completing activity steps, and their family caregivers...
January 2017: International Psychogeriatrics
https://www.readbyqxmd.com/read/27385475/negative-consequences-of-family-caregiving-for-veterans-with-ptsd-and-dementia
#15
Caitlin M Pinciotti, David M Bass, Catherine A McCarthy, Katherine S Judge, Nancy L Wilson, Robert O Morgan, A Lynn Snow, Mark E Kunik
Recent research shows veterans with posttraumatic stress disorder (PTSD) are twice as likely as other veterans to develop dementia. However, no studies to date have examined the impact of co-existing PTSD and dementia on family caregivers, who provide the majority of care to these veterans. Using the Stress Process Model, the current investigation explored the similarities and differences in psychosocial, health, and service use outcomes among caregivers assisting veterans with PTSD and dementia compared with caregivers assisting veterans with dementia only...
February 2017: Journal of Nervous and Mental Disease
https://www.readbyqxmd.com/read/27330886/the-voices-of-family-caregivers-of-seniors-with-chronic-conditions-a-window-into-their-experience-using-a-qualitative-design
#16
Suzette Brémault-Phillips, Jasneet Parmar, Melissa Johnson, Arlene Huhn, Anna Mann, Victoria Tian, Lori-Ann R Sacrey
BACKGROUND: Family caregivers are the backbone of the healthcare system. Over time, caregiving takes a tremendous toll on the caregiver. This is particularly true for caregivers who (1) provide >21 h of care/week, and/or (2) support those experiencing depression, cognitive decline, aggressive behaviours, and life-limiting conditions requiring complex care. Many caregivers face deteriorating physical and mental health, social isolation, family conflict, and job loss. Caregivers often have little energy or time to access resources and their experiences with the healthcare system, healthcare professionals and service agencies can either buoy them through challenging times, or contribute further to their distress...
2016: SpringerPlus
https://www.readbyqxmd.com/read/27130624/social-function-and-cognitive-status-results-from-a-us-nationally-representative-survey-of-older-adults
#17
Ashwin A Kotwal, Juyeon Kim, Linda Waite, William Dale
BACKGROUND: An early sign of cognitive decline in older adults is often a disruption in social function, but our understanding of this association is limited. OBJECTIVE: We aimed to determine whether those screening positive for early stages of cognitive impairment have differences across multiple dimensions of social function and whether associations differ by gender. DESIGN: United States nationally representative cohort (2010), the National Social life, Health, and Aging Project (NSHAP)...
August 2016: Journal of General Internal Medicine
https://www.readbyqxmd.com/read/27079704/effectiveness-of-supporting-informal-caregivers-of-people-with-dementia-a-systematic-review-of-randomized-and-non-randomized-controlled-trials
#18
Sophie Vandepitte, Nele Van Den Noortgate, Koen Putman, Sofie Verhaeghe, Kristof Faes, Lieven Annemans
BACKGROUND: Dementia is known as a major public health problem affecting both patients and caregivers, and placing a high financial strain upon society. In community-dwelling patients, it is important to support informal caregivers in order to help them sustain their demanding role. Previous reviews about effectiveness of such supporting strategies often included a small number of studies, focused only on particular supportive types, particular outcomes, or solely on caregivers. OBJECTIVE: A general systematic review was conducted investigating effectiveness of different supportive strategies on at least the well-being of the caregiver or the care-recipient...
April 8, 2016: Journal of Alzheimer's Disease: JAD
https://www.readbyqxmd.com/read/27014594/gender-differences-in-caregiving-among-family-caregivers-of-people-with-mental-illnesses
#19
Nidhi Sharma, Subho Chakrabarti, Sandeep Grover
All over the world women are the predominant providers of informal care for family members with chronic medical conditions or disabilities, including the elderly and adults with mental illnesses. It has been suggested that there are several societal and cultural demands on women to adopt the role of a family-caregiver. Stress-coping theories propose that women are more likely to be exposed to caregiving stressors, and are likely to perceive, report and cope with these stressors differently from men. Many studies, which have examined gender differences among family-caregivers of people with mental illnesses, have concluded that women spend more time in providing care and carry out personal-care tasks more often than men...
March 22, 2016: World Journal of Psychiatry
https://www.readbyqxmd.com/read/26880242/episodic-memories-of-relationship-quality-procedural-knowledge-of-attachment-scripts-and-the-experience-of-daughters-caring-for-a-parent-with-dementia
#20
Cory K Chen, Robert W Bailey
A caregiver's attachment history with their parents may affect the thoughts, feelings, and behavior they now have as they care for a parent with dementia. Participants were 77 daughters of a parent with dementia. The nature of participant conscious episodic memories of their parental figures and unconscious procedural knowledge of caregiving processes (secure base script knowledge) were identified as two aspects of the caregiver's relationship history that may impact their involvement in care, relationship conflict, critical attitudes, and strain...
February 15, 2016: Dementia
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