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Caregiver strain and dementia

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https://www.readbyqxmd.com/read/29115922/the-prevalence-of-dementia-in-a-portuguese-community-sample-a-10-66-dementia-research-group-study
#1
Manuel Gonçalves-Pereira, Ana Cardoso, Ana Verdelho, Joaquim Alves da Silva, Manuel Caldas de Almeida, Alexandra Fernandes, Cátia Raminhos, Cleusa P Ferri, A Matthew Prina, Martin Prince, Miguel Xavier
BACKGROUND: Dementia imposes a high burden of disease worldwide. Recent epidemiological studies in European community samples are scarce. In Portugal, community prevalence data is very limited. The 10/66 Dementia Research Group (DRG) population-based research programmes are focused in low and middle income countries, where the assessments proved to be culture and education fair. We applied the 10/66 DRG prevalence survey methodology in Portugal, where levels of illiteracy in older populations are still high...
November 7, 2017: BMC Geriatrics
https://www.readbyqxmd.com/read/28990875/stress-buffering-effect-of-coping-strategies-on-interrole-conflict-among-family-caregivers-of-people-with-dementia
#2
Hiroshi Morimoto, Nobuo Furuta, Mitsue Kono, Mayumi Kabeya
OBJECTIVES: To examine the stress-buffering effect of coping strategies on the adverse effects of interrole conflict on the mental health of employed family caregivers, and clarify the moderating role of attentional control on this stress-buffering effect. METHODS: Data were drawn from a two-wave longitudinal online survey of employed Japanese family caregivers of people with dementia (263 males, 116 females; age 51.54 ± 9.07 years). We assessed interrole conflict, coping strategies, attentional control, mental health variables (psychological strain and quality of life), and confounding factors...
August 23, 2017: Clinical Gerontologist
https://www.readbyqxmd.com/read/28957688/pre-admission-functional-decline-in-hospitalized-persons-with-dementia-the-influence-of-family-caregiver-factors
#3
Marie Boltz, Kyung Hee Lee, Tracy Chippendale, Rebecca L Trotta
Older adults with dementia are more likely than those who do not have dementia to be hospitalized. Admission functional (ADL) performance is a salient factor predicting functional performance in older adults at discharge. The days preceding hospitalization are often associated with functional loss related to the acute illness. An understanding of functional changes during this transition will inform interventions to prevent functional decline. This secondary analysis examined data from a study that evaluated a family educational empowerment model and included 136 dyads (persons with dementia and their family caregiver)...
September 21, 2017: Archives of Gerontology and Geriatrics
https://www.readbyqxmd.com/read/28816364/balancing-competing-needs-mediates-the-association-of-caregiving-demand-with-caregiver-role-strain-and-depressive-symptoms-of-dementia-caregivers-a-cross-sectional-study
#4
Hsin-Yun Liu, Ching-Tzu Yang, Yu-Nu Wang, Wen-Chuin Hsu, Tzu-Hsin Huang, Yueh-E Lin, Chin-Yi Liu, Yea-Ing L Shyu
AIMS: To examine the role of balancing competing needs in the relationship between caregiving demand and caregiving outcomes (caregivers' role strain and depressive symptoms). BACKGROUND: Caregivers who do not balance competing needs are more likely to experience negative caregiving outcomes, suggesting that balance mediates between caregiving demand and caregiving outcomes. Identifying a mediator of negative caregiving effects may help in developing tailored interventions for family caregivers of persons with dementia...
August 17, 2017: Journal of Advanced Nursing
https://www.readbyqxmd.com/read/28759966/trajectories-of-multidimensional-caregiver-burden-in-chinese-informal-caregivers-for-dementia-evidence-from-exploratory-and-confirmatory-factor-analysis-of-the-zarit-burden-interview
#5
Dan Li, Nan Hu, Yueyi Yu, Aihong Zhou, Fangyu Li, Jianping Jia
BACKGROUND: Despite its popularity, the latent structure of 22-item Zarit Burden Interview (ZBI) remains unclear. There has been no study exploring how caregiver multidimensional burden changed. OBJECTIVE: The aim of the work was to validate the latent structure of ZBI and to investigate how multidimensional burden evolves with increasing global burden. METHODS: We studied 1,132 dyads of dementia patients and their informal caregivers. The caregivers completed the ZBI and a questionnaire regarding caregiving...
2017: Journal of Alzheimer's Disease: JAD
https://www.readbyqxmd.com/read/28605997/predictors-of-desire-to-institutionalization-in-dementia-caregivers-from-a-developing-country
#6
Preeti Sinha, Sherin Yohannan, A Thirumoorthy, Palanimuthu Thangaraju Sivakumar
Older adults with dementia have higher rates of institutionalization than those without dementia. Desire to institutionalization (DTI) is an important factor influencing the actual institutionalization but is less well studied. This cross-sectional study examines the DTI with the scale of same name developed by Morycz, in 1985, in a sample of 50 caregivers of patients with dementia in a tertiary clinical care setting in a developing country. Caregiver burden associated with personal strain (by factor analyzed Zarit Burden Interview scale), and stress perceived out of caregiving (by Perceived Stress Scale) predicted higher DTI...
January 1, 2017: American Journal of Alzheimer's Disease and Other Dementias
https://www.readbyqxmd.com/read/28575234/assessing-grief-of-family-caregivers-of-people-with-dementia-validation-of-the-chinese-version-of-the-marwit-meuser-caregiver-grief-inventory
#7
Wallace Chi Ho Chan, Bel Wong, Timothy Kwok, Florence Ho
Grief in dementia caregiving is underexplored in research studies in the Chinese context, yet social workers often work with caregivers of people with dementia (PWD) and who experience grief. Having a valid assessment tool can help social workers better identify the grief of caregivers and facilitate caregivers' articulation of grief. This article describes a study aimed to validate the Marwit-Meuser Caregiver Grief Inventory-Short Form (C-MM-CGI-SF) among Hong Kong Chinese caregivers of PWD. One hundred and twenty caregivers participated in this study...
August 1, 2017: Health & Social Work
https://www.readbyqxmd.com/read/28569073/can-self-efficacy-ameliorate-interrole-conflict-among-employed-family-caregivers-a-moderated-mediation-approach
#8
Hiroshi Morimoto, Nobuo Furuta, Mitsue Kono, Mayumi Kabeya
OBJECTIVES: This study examined the moderation effect of different dimensions of self-efficacy on the way in which various types of interrole conflict mediate between caregiving demands and the mental health of employed family caregivers. METHOD: Using a moderated mediation approach, we examined the moderation effect of self-efficacy on interrole conflict's mediation between caregiving demands and mental health (psychological strain and quality of life) in a sample of Japanese employed family caregivers who regularly provide care at home (263 males aged 53...
June 1, 2017: Aging & Mental Health
https://www.readbyqxmd.com/read/28558474/development-and-testing-of-a-measure-of-caregiver-confidence-in-medical-sign-symptom-management
#9
Cleveland A Piggott, Sheryl Zimmerman, David Reed, Philip D Sloane
Evaluation of efforts to support family caregivers of people with dementia in their daily medical management responsibilities requires a measure of caregiver self-efficacy (confidence). This article describes the development and psychometric properties of the Caregiver Confidence in Sign/Symptom Management (CCSM) scale, the only available instrument in this area. Measurement development included literature and expert panel review, cognitive testing, and field testing. The CCSM is a 25-item measure (α = .92) composed of confidence in relation to 4 subscales: knowledge of signs/symptoms (α = ...
November 2017: American Journal of Alzheimer's Disease and Other Dementias
https://www.readbyqxmd.com/read/28526049/psychological-status-and-quality-of-life-among-primary-caregivers-of-individuals-with-mental-illness-a-hospital-based-study
#10
Anitha Jeyagurunathan, Vathsala Sagayadevan, Edimansyah Abdin, YunJue Zhang, Sherilyn Chang, Saleha Shafie, Restria Fauziana Abdul Rahman, Janhavi Ajit Vaingankar, Siow Ann Chong, Mythily Subramaniam
BACKGROUND: This study aimed to explore the psychological status and quality of life among primary caregivers of individuals suffering from various mental illnesses including early psychosis, chronic schizophrenia, depressive disorders, anxiety disorders and dementia. METHODS: A total of 350 primary caregivers with relatives seeking treatment at a tertiary psychiatric hospital were recruited for this study. Socio-demographic data was obtained and the brief version of the World Health Organisation Quality of Life instrument was used to assess caregiver's quality of life (QOL)...
May 19, 2017: Health and Quality of Life Outcomes
https://www.readbyqxmd.com/read/28488270/rest-activity-rhythm-and-sleep-characteristics-associated-with-depression-symptom-severity-in-strained-dementia-caregivers
#11
Stephen F Smagula, Robert T Krafty, Briana J Taylor, Lynn M Martire, Richard Schulz, Martica H Hall
Depression is associated with disturbances to sleep and the 24-h sleep-wake pattern (known as the rest-activity rhythm: RAR). However, there remains a need to identify the specific sleep/RAR correlates of depression symptom severity in population subgroups, such as strained dementia caregivers, who are at elevated risk for major depressive disorder. We assessed the cross-sectional associations of sleep/RARs with non-sleep depression symptom severity among 57 (mean age: 74 years, standard deviation: 7.4) strained dementia caregivers who were currently without clinical depression...
May 10, 2017: Journal of Sleep Research
https://www.readbyqxmd.com/read/28459351/psychometric-evaluation-of-kingston-caregiver-stress-scale
#12
Tatiana Sadak, Anna Korpak, Jacob D Wright, Mee Kyung Lee, Margaret Noel, Kathleen Buckwalter, Soo Borson
OBJECTIVES: Standardized measurement of caregiver stress is a component of Medicare's new health care benefit supporting care planning for people with dementia. In this article we identify existing measures of caregiver stress, strain and burden and propose specific criteria for choosing tools that may be suitable for wide use in primary care settings. We reviewed 22 measures and identified one, the Kingston Caregiver Stress Scale (KCSS), which met all the proposed criteria but had not been studied in a U...
July 2017: Clinical Gerontologist
https://www.readbyqxmd.com/read/28381222/assessment-of-the-consequences-of-caregiving-in-psychosis-a-psychometric-comparison-of-the-zarit-burden-interview-zbi-and-the-involvement-evaluation-questionnaire-ieq
#13
Manuel Gonçalves-Pereira, Eduardo González-Fraile, Borja Santos-Zorrozúa, Manuel Martín-Carrasco, Paola Fernández-Catalina, Ana I Domínguez-Panchón, Paula Muñoz-Hermoso, Javier Ballesteros
BACKGROUND: The Zarit Burden Interview (ZBI) was originally developed to assess the level of subjective burden in caregivers of people with dementia. The Involvement Evaluation Questionnaire (IEQ) is amongst the leading scales to assess caregiving consequences in severe mental illness. We aimed to compare the psychometric properties of the ZBI, a generic tool, and of the IEQ, a more specific tool to assess the consequences of caregiving in schizophrenia and related disorders. METHODS: Secondary analyses of a 16-week, randomized controlled trial of a psychoeducational intervention in 223 primary caregivers of patients with schizophrenia or schizoaffective disorder...
April 5, 2017: Health and Quality of Life Outcomes
https://www.readbyqxmd.com/read/28379352/involvement-of-hospitalized-persons-with-dementia-in-everyday-decisions-a-dyadic-study
#14
Lyndsey M Miller, Christopher S Lee, Carol J Whitlatch, Karen S Lyons
Background and Objectives: To examine the involvement of persons with dementia (PWDs) in everyday decision making from the perspectives of hospitalized PWDs and their family caregivers, and to identify determinants thereof. Research Design and Methods: Using multilevel modeling, we examined cross-sectional data collected prospectively from 42 family care dyads regarding the care values of the PWD. Results: Both members of the dyad rated the PWD, on average, as being "somewhat involved"...
April 3, 2017: Gerontologist
https://www.readbyqxmd.com/read/28372581/perseverance-time-of-informal-caregivers-for-people-with-dementia-construct-validity-responsiveness-and-predictive-validity
#15
Anke Richters, René J F Melis, N Job van Exel, Marcel G M Olde Rikkert, Marjolein A van der Marck
BACKGROUND: Informal care is essential for many people with dementia (PwD), but it often results in a considerable burden for the caregiver. The perseverance time instrument integrates the aspect of perceived burden with the caregiver's capacity to cope with the burden, in contrast to most available instruments, which measure solely the burden of caregiving. The aim of this study was to extend insight into psychometric properties of the perseverance time instrument, specifically the construct validity, responsiveness, and predictive validity, within the population of informal caregivers for PwD...
April 4, 2017: Alzheimer's Research & Therapy
https://www.readbyqxmd.com/read/28260539/background-characteristics-and-treatment-related-factors-associated-with-treatment-success-or-failure-in-a-non-pharmacological-intervention-for-dementia-caregivers
#16
Karen C Rose, Laura N Gitlin
BACKGROUND: Non-pharmacological interventions for persons with dementia often rely on family caregivers for implementation. However, caregivers differ in their readiness to use strategies. This study examines dyadic characteristics and treatment-related mechanisms associated with treatment success (high readiness to use strategies) and failure (low readiness to use strategies) at the conclusion of the Advancing Caregiver Training (ACT) intervention. METHODS: Caregiver and person with dementia characteristics and treatment-related variables (treatment participation, number and type of strategies introduced and enacted) were examined in 110 caregivers in intervention...
June 2017: International Psychogeriatrics
https://www.readbyqxmd.com/read/28186825/balancing-safety-and-harm-for-older-adults-with-dementia-in-rural-emergency-departments-healthcare-professionals-perspectives
#17
Kathleen F Hunter, Belinda Parke, Maureen Babb, Dorothy Forbes, Laurel Strain
INTRODUCTION: The emergency department (ED) is a potentially harmful environment for older adults with dementia, and rural EDs face unique challenges in providing care to this population. The purpose of this study was to understand safety and harm in rural ED transitional care for community dwelling older adults with dementia from the perspective of healthcare professionals (HCPs). METHODS: An interpretive, descriptive exploratory design from a social ecological perspective was used...
January 2017: Rural and Remote Health
https://www.readbyqxmd.com/read/28128641/incongruent-perceptions-of-the-care-values-of-hospitalized-persons-with-dementia-a-pilot-study-of-patient-family-caregiver-dyads
#18
Lyndsey M Miller, Carol J Whitlatch, Christopher S Lee, Karen S Lyons
OBJECTIVE: Many difficult decisions are made in the inpatient hospital setting regarding the daily care of persons with dementia (PWDs). Incongruent perceptions of the PWD's care values limit the family caregiver's ability to make surrogate decisions. The objectives of this pilot study were to describe and identify determinants of incongruent perceptions in the hospital setting. METHODS: Using multilevel modeling (MLM), we examined cross-sectional data collected from 42 PWD-family caregiver dyads...
January 27, 2017: Aging & Mental Health
https://www.readbyqxmd.com/read/28077452/does-it-matter-if-we-disagree-the-impact-of-incongruent-care-preferences-on-persons-with-dementia-and-their-care-partners
#19
Evan G Shelton, Silvia Orsulic-Jeras, Carol J Whitlatch, Sarah M Szabo
PURPOSE: To gain a better understanding of how actual and perceived incongruence of care preferences affects the psychosocial well-being of persons with dementia and their family caregiver. DESIGN AND METHODS: In-depth interviews were conducted with 128 dyads each consisting of a person with dementia and a family caregiver. Baseline data from an intervention study were used to examine the relationship between the caregiver's care-related preferences, the person with dementia's care-related preferences, and the caregiver's perception of the person with dementia's preferences...
January 10, 2017: Gerontologist
https://www.readbyqxmd.com/read/27912740/effectiveness-and-cost-effectiveness-of-an-in-home-respite-care-program-in-supporting-informal-caregivers-of-people-with-dementia-design-of-a-comparative-study
#20
COMPARATIVE STUDY
Sophie Vandepitte, Nele Van Den Noortgate, Koen Putman, Sofie Verhaeghe, Lieven Annemans
BACKGROUND: Frequent hospitalization and permanent nursing home placement not only affect the well-being of persons with dementia, but also place great financial strain on society. Therefore, it is important to create effective strategies to support informal caregivers so that they can continue to perform their demanding role. Preliminary qualitative evidence suggests that community-based respite services can actually be important for caregivers, and that the level of evidence should be further established in terms of effectiveness...
December 2, 2016: BMC Geriatrics
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