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Caregiver strain

Lyndsey M Miller, Carol J Whitlatch, Christopher S Lee, Michael S Caserta
Background and Objectives: Persons with dementia (PWDs) often place greater importance on their care values (i.e., maintaining autonomy and social relations, choosing caregivers, avoiding being a burden) than family caregivers (CGs) perceive, which can detract from dementia care planning (e.g., care arrangements or surrogate decisions). Notable variability has been found across family care dyads (PWD and CG) in their perceptions of care values, suggesting that there may be multiple patterns of perception...
March 12, 2018: Gerontologist
Janice Hegewald, Wera Berge, Philipp Heinrich, Ronny Staudte, Alice Freiberg, Julia Scharfe, Maria Girbig, Albert Nienhaus, Andreas Seidler
The physical load ensuing from the repositioning and moving of patients puts health care workers at risk of musculoskeletal complaints. Technical equipment developed to aid with patient handling should reduce physical strain and workload; however, the efficacy of these aids in preventing musculoskeletal disorders and complaints is still unclear. A systematic review of controlled intervention studies was conducted to examine if the risk of musculoskeletal complaints and disorders is reduced by technical patient handling equipment...
March 9, 2018: International Journal of Environmental Research and Public Health
Margaret R Bauer, Emma E Bright, James J MacDonald, Elizabeth H Cleary, O Joe Hines, Annette L Stanton
Little is known about quality of life (QOL) of patients with pancreatic cancer and their caregivers compared with adults with other cancers. This systematic review summarizes the available evidence base, identifies its limitations, and recommends directions for research and clinical application. A systematic review was conducted of research on QOL in adults with pancreatic cancer and their caregivers. Quality of life was examined in the following specific domains: psychological, physical, social, sexual, spiritual, and general...
April 2018: Pancreas
Julie T Bidwell, Karen S Lyons, James O Mudd, Kathleen L Grady, Jill M Gelow, Shirin O Hiatt, Christopher V Chien, Christopher S Lee
BACKGROUND: Although current guidelines emphasize the importance of social support to the success of left ventricular assist device (LVAD) therapy, few studies examine the influence of the caregiver on patient outcomes or quantify the impact of LVAD caregiving on caregiver outcomes. The purpose of this analysis was to identify patient and caregiver determinants of patient quality of life (QOL) and caregiver strain in response to LVAD therapy. METHODS AND RESULTS: Data on patients receiving LVAD therapy and their caregivers (n=50 dyads) were prospectively collected pre-implantation and 1, 3, and 6 months post-implantation...
March 7, 2018: Journal of the American Heart Association
H J Arwert, J J L Meesters, J Boiten, F Balk, R Wolterbeek, T P M Vliet Vlieland
OBJECTIVES: To ascertain the prevalence of depressive mood and its determinants in the chronic phase after stroke. DESIGN: 576 consecutive patients were invited to participate 2-5 years after hospitalization for a first-ever stroke. Stroke characteristics at hospitalization were collected retrospectively from medical records. Patients and their caregivers completed questionnaires on depression (Hospital Anxiety and Depression Scale; HADS), socio-demographic characteristics, healthcare usage, daily activities, Quality of Life and caregiver strain...
March 5, 2018: American Journal of Physical Medicine & Rehabilitation
Marilyn Kendall, Eileen Cowey, Gillian Mead, Mark Barber, Christine McAlpine, David J Stott, Kirsty Boyd, Scott A Murray
BACKGROUND: Case fatality after total anterior circulation stroke is high. Our objective was to describe the experiences and needs of patients and caregivers, and to explore whether, and how, palliative care should be integrated into stroke care. METHODS: From 3 stroke services in Scotland, we recruited a purposive sample of people with total anterior circulation stroke, and conducted serial, qualitative interviews with them and their informal and professional caregivers at 6 weeks, 6 months and 1 year...
March 5, 2018: CMAJ: Canadian Medical Association Journal, Journal de L'Association Medicale Canadienne
Agnes Black, Kimberly Strain, Christine Wallsworth, Sara-Grey Charlton, Wilma Chang, Kate McNamee, Clayon Hamilton
Objective There is growing emphasis on health care organizations to ensure that lay people are meaningfully engaged as partners on research teams. Our aim was to explore the perspectives of patients, family members and informal caregivers who have been involved on health care research teams in Canada and elicit their recommendations for meaningful engagement. Methods We conducted a qualitative study guided by thematic analysis of transcripts of focus groups and interviews of 19 experienced patient research partners in Canada...
January 1, 2018: Journal of Health Services Research & Policy
Elizabeth Lin, Janet Durbin, Denise Guerriere, Tiziana Volpe, Avra Selick, Julia Kennedy, Wendy J Ungar, Donna S Lero
As mental health (MH) care has shifted from institutional settings to the community, families and friends are responsible for providing the majority of the care at home. The substantial literature on the adverse effects experienced by caregivers has focused mainly on psychological morbidity. Less attention has been paid to how caregivers for persons with MH disorders interact with larger social systems and the impacts of factors such as financial strain, lost time from leisure activities, and the availability of health and social services...
March 1, 2018: Health & Social Care in the Community
Yee Wei Lim, Joanna Ling, Zoe Lim, Audrey Chia
Background: Singapore's health care system is strained by the health care needs of a rapidly aging population. The unprecedented collaboration between a public hospital and a private family practice to set up the Family Medicine Clinic (FMC) to co-manage patients with chronic disease is an example of efforts to shift care to the community. Objective: To explore patients' initial experience of shared chronic disease care in a private family practice setting. Methods: In this exploratory case study, we surveyed 330 patients with stable chronic diseases and interviewed 10 complex care patients and their caregivers...
February 17, 2018: Family Practice
Margaret M Irwin, William Dudley, Laurel Northouse, Donna L Berry, Gail A Mallory
OBJECTIVES: To describe nurses' practices, confidence, and knowledge of evidence-based interventions for cancer caregiver strain and burden and to identify factors that contribute to these aspects. 
. SAMPLE & SETTING: 2,055 Oncology Nursing Society members completed an emailed survey.
. METHODS & VARIABLES: Pooled analysis of survey results. Variables included the baseline nursing assessment, intervention, confidence, knowledge, strategies used, and barriers encountered...
March 1, 2018: Oncology Nursing Forum
Vincent Cm Cox, Vera Pm Schepers, Marjolijn Ketelaar, Caroline M van Heugten, Johanna Ma Visser-Meily
BACKGROUND: Support programs for partners of patients with acquired brain injury are necessary since these partners experience several unfavorable consequences of caregiving, such as a high burden, emotional distress, and poor quality of life. Evidence-based support strategies that can be included in these support programs are psychoeducation, skill building, problem solving, and improving feelings of mastery. A promising approach would seem to be to combine web-based support with face-to-face consultations, creating a blended care intervention...
February 16, 2018: JMIR Research Protocols
Iris Lavi, Kaitlyn Fladeboe, Kevin King, Joy Kawamura, Debra Friedman, Bruce Compas, David Breiger, Kyrill Gurtovenko, Liliana Lengua, Lynn Fainsilber Katz
OBJECTIVE: Pediatric cancer is highly stressful for parents. The current prospective study examines the impact of several stressors (financial strain, life threat, treatment intensity, treatment-related events and negative life events) on the trajectory of marital adjustment across the first year following diagnosis. We examined whether average level of stressors across the year was related to (1) levels of marital adjustment at the end of the first year of treatment and (2) the rate of change in marital adjustment...
February 6, 2018: Psycho-oncology
Despina Laparidou, Jo Middlemass, Terence Karran, A Niroshan Siriwardena
Background There are an estimated 46.8 million people worldwide living with dementia in 2015, being cared for usually by family members or friends (informal caregivers). The challenges faced by informal caregivers often lead to increased levels of stress, burden and risk of care-recipient institutionalisation. Aim The overarching aim of this study was to explore the experiences and perceptions of informal caregivers of people with dementia when interacting with the health care system, and whether the support received acted as a mediator of caregiver stress...
January 1, 2018: Dementia
Margaret L Longacre, Allison J Applebaum, Joanne S Buzaglo, Melissa F Miller, Mitch Golant, Julia H Rowland, Barbara Given, Bonnie Dockham, Laurel Northouse
Caring for people with cancer can be a burdensome and emotionally straining experience. Without adequate psychosocial support, distressed caregivers are at risk for psychiatric and medical morbidity, which can adversely affect patient outcomes. Although there is a tremendous need to provide effective and timely supportive care services for cancer caregivers, few community or clinically based services exist and the needs of these essential caregivers are profoundly underserved. This article describes three existing evidence-based programs and tools that address the needs of family caregivers of cancer patients: (a) the FOCUS Program, tested for efficacy in prior randomized clinical trials and implemented in community settings by agency staff; (b) the Program for the Study of Cancer Caregivers at Memorial Sloan Kettering Cancer Center (MSKCC), which addresses the needs of caregivers in a large health care system; and (c) CancerSupportSource®-Caregiver, an online platform for distress screening and referral developed by the Cancer Support Community to assess and address caregivers' needs...
January 27, 2018: Translational Behavioral Medicine
Anna M Johnson, Sara B Jones, Pamela W Duncan, Cheryl D Bushnell, Sylvia W Coleman, Laurie H Mettam, Anna M Kucharska-Newton, Mysha E Sissine, Wayne D Rosamond
BACKGROUND: Pragmatic randomized clinical trials are essential to determine the effectiveness of interventions in "real-world" clinical practice. These trials frequently use a cluster-randomized methodology, with randomization at the site level. Despite policymakers' increased interest in supporting pragmatic randomized clinical trials, no studies to date have reported on the unique recruitment challenges faced by cluster-randomized pragmatic trials. We investigated key challenges and successful strategies for hospital recruitment in the Comprehensive Post-Acute Stroke Services (COMPASS) study...
January 26, 2018: Trials
Amanda N Leggett, Courtney A Polenick, Donovan T Maust, Helen C Kales
Background and Objectives: Falls and hospitalizations are adverse health events commonly experienced by persons with dementia (PWDs). These events often require urgent care from a family caregiver and may increase caregiver stress. We examine falls and hospitalizations among PWDs as predictors of caregivers' reported care-related emotional difficulty, in addition to care-related stressors. Research Design and Methods: Cross-sectional telephone survey of 652 informal caregivers for PWDs...
January 20, 2018: Gerontologist
Ulrike Boehmer, Melissa A Clark, Timothy C Heeren, Elizabeth Ann Showalter, Lisa Fredman
PURPOSE: The purpose of this study was to determine whether caregiving experiences and their health-related outcomes differ by sexual orientation and gender identity in a representative U.S. caregiver sample. METHODS: A secondary data analysis was performed of the cross-sectional, nationally representative National Alliance for Caregiving online survey that was conducted in 2014. To account for the study design, we used sampling weights and then added propensity score weighting to account for imbalances between LGBT respondents and their heterosexual and cisgender counterparts, that is, non-LGBT caregivers...
January 24, 2018: LGBT Health
Rachana Sharma, Subhash Chandra Sharma, Sudarshan Narsingh Pradhan
BACKGROUND: Schizophrenia and bipolar affective disorder are chronic psychiatric illness that requires long term care. This study tends to measure psychological burden and factors associated with it among caregivers of these two illnesses. METHODS: This is a cross- sectional study that included participants by purposive sampling method. Self designed performa was used to collect the socio-demographic details of the caregivers. Modified caregiver strain index was used to assess the overall stress...
January 1, 2018: Journal of Nepal Health Research Council
Chrysanthi Leonidou, Zoe Giannousi
PURPOSE: Family caregivers of cancer patients often face strains within their role and report various unmet needs. The aim of this qualitative study was to examine metastatic cancer caregivers' experiences within their role. METHODS: A cross-sectional study using focus group interviews with caregivers of metastatic cancer patients (n = 17) recruited from an oncology hospital in Cyprus was conducted. Data were analysed following the content analysis approach with inductive coding for the development of themes...
February 2018: European Journal of Oncology Nursing: the Official Journal of European Oncology Nursing Society
Nadine Köhle, Constance H C Drossaert, Cornelia F Van Uden-Kraan, Karlein M G Schreurs, Mariët Hagedoorn, Irma M Verdonck-de Leeuw, Ernst T Bohlmeijer
This study examined partners of cancer patients intention to use a web-based psychological intervention, their preferences regarding its preconditions, functionalities and topics, and factors related to their intention. One hundred and sixty-eight partners completed a questionnaire about these aspects. Forty-eight percent of the partners would (maybe) make use of a web-based intervention. Partners who intended to participate were significantly younger, used the Internet more often, and perceived more caregiver strain...
January 16, 2018: Journal of Psychosocial Oncology
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