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Caregiver strain

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https://www.readbyqxmd.com/read/28223810/factors-associated-with-caregiver-burden-among-pharmacotherapy-treated-children-adolescents-with-adhd-in-the-caregiver-perspective-on-pediatric-adhd-survey-in-europe
#1
Moshe Fridman, Tobias Banaschewski, Vanja Sikirica, Javier Quintero, M Haim Erder, Kristina S Chen
BACKGROUND: Burden on caregivers of children/adolescents with attention-deficit/hyperactivity disorder (ADHD) is multidimensional, but incompletely understood. OBJECTIVE: To analyze caregiver burden across the concepts of work, social/family life, and parental worry/stress, in relation to selected contributing factors. METHODS: The online Caregiver Perspective on Pediatric ADHD survey was fielded in ten European countries. Analysis included children/adolescents (6-17 years) who were receiving/had received ADHD pharmacotherapy in the previous 6 months...
2017: Neuropsychiatric Disease and Treatment
https://www.readbyqxmd.com/read/28209122/effects-and-meanings-of-a-person-centred-and-health-promoting-intervention-in-home-care-services-a-study-protocol-of-a-non-randomised-controlled-trial
#2
Karin Bölenius, Kristina Lämås, Per-Olof Sandman, David Edvardsson
BACKGROUND: The literature indicates that current home care service are largely task oriented with limited focus on the involvement of the older people themselves, and studies show that lack of involvement might reduce older people's quality of life. Person-centred care has been shown to improve the satisfaction with care and quality of life in older people cared for in hospitals and nursing homes, with limited published evidence about the effects and meanings of person-centred interventions in home care services for older people...
February 16, 2017: BMC Geriatrics
https://www.readbyqxmd.com/read/28208939/the-effects-of-spiritual-self-care-training-on-caregiving-strain-in-mothers-of-mentally-retarded-children
#3
Mitra Dindar, Mozhgan Rahnama, Mehdi Afshari, Mahdieh Poodineh Moghadam
INTRODUCTION: Care for a mentally retarded child induces a lot of problems for the mother and leads her to care giving strain and ignorning her self-care. Spiritual health will co-ordinate all aspects of human life and is necessary for coping with diseases in mother of mentally retarded children. AIM: To evaluate the effects of spiritual self-care training on care giving strain in mothers of mentally retarded children. MATERIALS AND METHODS: The present study, is a before and after type quasi-experimental research based on which 60 mothers of mentally retarded children who were hospitalized in Elahi Rehabilitation Center in Quchan City, were selected using convenience sampling and were randomly assigned to intervention and control groups...
December 2016: Journal of Clinical and Diagnostic Research: JCDR
https://www.readbyqxmd.com/read/28203067/silent-strain-of-caregiving-exploring-the-best-predictors-of-distress-in-family-carers-of-geriatric-patients
#4
Katarzyna Bień-Barkowska, Halina Doroszkiewicz, Barbara Bień
OBJECTIVES: The aim of this article was to identify the best predictors of distress suffered by family carers (FCs) of geriatric patients. METHODS: A cross-sectional study of 100 FC-geriatric patient dyads was conducted. The negative impact of care (NIoC) subscale of the COPE index was dichotomized to identify lower stress (score of ≤15 on the scale) and higher stress (score of ≥16 on the scale) exerted on FCs by the process of providing care. The set of explanatory variables comprised a wide range of sociodemographic and care-related attributes, including patient-related results from comprehensive geriatric assessments and disease profiles...
2017: Clinical Interventions in Aging
https://www.readbyqxmd.com/read/28202879/two-strains-of-roof-rats-as-effective-models-for-assessing-new-object-reaction
#5
Yasushi Kiyokawa, Kazuyuki D Tanaka, Akiko Ishii, Kaori Mikami, Masatoshi Katayama, Ryoko Koizumi, Syota Minami, Tsutomu Tanikawa, Yukari Takeuchi
Wild animals generally avoid even small and harmless novel objects and/or familiar objects moved to a novel position, which is termed "new-object reaction." Although new-object reaction appears to be a biologically important characteristic for animals, little progress has been made in understanding the neural mechanisms underlying new-object reaction. One reason might be the lack of effective experimental animals. Two strains of roof rats (Sj and Og strains) were established from wild roof rats caught in Shinjuku, Tokyo, and one of the Ogasawara Islands, respectively, by a Japanese pest control company...
February 16, 2017: Journal of Veterinary Medical Science
https://www.readbyqxmd.com/read/28186825/balancing-safety-and-harm-for-older-adults-with-dementia-in-rural-emergency-departments-healthcare-professionals-perspectives
#6
Kathleen F Hunter, Belinda Parke, Maureen Babb, Dorothy Forbes, Laurel Strain
INTRODUCTION: The emergency department (ED) is a potentially harmful environment for older adults with dementia, and rural EDs face unique challenges in providing care to this population. The purpose of this study was to understand safety and harm in rural ED transitional care for community dwelling older adults with dementia from the perspective of healthcare professionals (HCPs). METHODS: An interpretive, descriptive exploratory design from a social ecological perspective was used...
January 2017: Rural and Remote Health
https://www.readbyqxmd.com/read/28168677/examining-the-efficacy-of-a-family-peer-advocate-model-for-black-and-hispanic-caregivers-of-children-with-autism-spectrum-disorder
#7
J M Jamison, E Fourie, P M Siper, M P Trelles, Julia George-Jones, A Buxbaum Grice, J Krata, E Holl, J Shaoul, B Hernandez, L Mitchell, M M McKay, J D Buxbaum, Alexander Kolevzon
Autism spectrum disorder (ASD) affects individuals across all racial and ethnic groups, yet rates of diagnosis are disproportionately higher for Black and Hispanic children. Caregivers of children with ASD experience significant stressors, which have been associated with parental strain, inadequate utilization of mental health services and lower quality of life. The family peer advocate (FPA) model has been utilized across service delivery systems to provide family-to-family support, facilitate engagement, and increase access to care...
February 6, 2017: Journal of Autism and Developmental Disorders
https://www.readbyqxmd.com/read/28165262/family-caregiver-adjustment-and-stroke-survivor-impairment-a-path-analytic-model
#8
Anna Pendergrass, Martin Hautzinger, Timothy R Elliott, Oliver Schilling, Clemens Becker, Klaus Pfeiffer
OBJECTIVE: Depressive symptoms are a common problem among family caregivers of stroke survivors. The purpose of this study was to examine the association between care recipient's impairment and caregiver depression, and determine the possible mediating effects of caregiver negative problem-orientation, mastery, and leisure time satisfaction. The evaluated model was derived from Pearlin's stress process model of caregiver adjustment. METHOD: We analyzed baseline data from 122 strained family members who were assisting stroke survivors in Germany for a minimum of 6 months and who consented to participate in a randomized clinical trial...
February 6, 2017: Rehabilitation Psychology
https://www.readbyqxmd.com/read/28128641/incongruent-perceptions-of-the-care-values-of-hospitalized-persons-with-dementia-a-pilot-study-of-patient-family-caregiver-dyads
#9
Lyndsey M Miller, Carol J Whitlatch, Christopher S Lee, Karen S Lyons
OBJECTIVE: Many difficult decisions are made in the inpatient hospital setting regarding the daily care of persons with dementia (PWDs). Incongruent perceptions of the PWD's care values limit the family caregiver's ability to make surrogate decisions. The objectives of this pilot study were to describe and identify determinants of incongruent perceptions in the hospital setting. METHODS: Using multilevel modeling (MLM), we examined cross-sectional data collected from 42 PWD-family caregiver dyads...
January 27, 2017: Aging & Mental Health
https://www.readbyqxmd.com/read/28106569/cerebellar-volume-and-executive-function-in-parkinson-disease-with-and-without-freezing-of-gait
#10
Peter S Myers, Marie E McNeely, Jonathan M Koller, Gammon M Earhart, Meghan C Campbell
BACKGROUND: Freezing of gait (FOG) affects approximately 50% of people with Parkinson Disease (PD), impacting quality of life and placing financial and emotional strain on the individual and caregivers. People with PD and FOG have similar deficits in motor adaptation and cognition as individuals with cerebellar lesions, indicating the cerebellum may play a role in FOG. OBJECTIVE: To examine potential differences in cerebellar volumes and their relationships with cognition between PD with (FOG+) and without FOG (FOG-)...
2017: Journal of Parkinson's Disease
https://www.readbyqxmd.com/read/28077452/does-it-matter-if-we-disagree-the-impact-of-incongruent-care-preferences-on-persons-with-dementia-and-their-care-partners
#11
Evan G Shelton, Silvia Orsulic-Jeras, Carol J Whitlatch, Sarah M Szabo
PURPOSE: To gain a better understanding of how actual and perceived incongruence of care preferences affects the psychosocial well-being of persons with dementia and their family caregiver. DESIGN AND METHODS: In-depth interviews were conducted with 128 dyads each consisting of a person with dementia and a family caregiver. Baseline data from an intervention study were used to examine the relationship between the caregiver's care-related preferences, the person with dementia's care-related preferences, and the caregiver's perception of the person with dementia's preferences...
January 10, 2017: Gerontologist
https://www.readbyqxmd.com/read/28074001/the-family-time-squeeze-perceived-family-time-adequacy-buffers-work-strain-in-certified-nursing-assistants-with-multiple-caregiving-roles
#12
Nicole DePasquale, Jacqueline Mogle, Steven H Zarit, Cassandra Okechukwu, Ellen Ernst Kossek, David M Almeida
PURPOSE OF THE STUDY: This study examined how certified nursing assistants (CNAs) with unpaid family caregiving roles for children ("double-duty-child caregivers"), older adults ("double-duty-elder caregivers"), and both children and older adults ("triple-duty caregivers") differed from their nonfamily caregiving counterparts ("workplace-only caregivers") on four work strain indicators (emotional exhaustion, job satisfaction, turnover intentions, and work climate for family sacrifices)...
January 10, 2017: Gerontologist
https://www.readbyqxmd.com/read/28068794/the-impact-of-cardiac-arrest-on-the-long-term-wellbeing-and-caregiver-burden-of-family-caregivers-a-prospective-cohort-study
#13
Helena Gfm van Wijnen, Sascha Mc Rasquin, Caroline M van Heugten, Jeanine A Verbunt, Véronique Rm Moulaert
OBJECTIVE: The purpose was to gain insight in the functioning of caregivers of cardiac arrest survivors at 12 months after a cardiac arrest. Secondly, the course of the wellbeing of the caregivers during the first year was studied. Finally, factors that are associated with a higher care burden at 12 months after the cardiac arrest were investigated. SUBJECTS: A total of 195 family caregivers of cardiac arrest survivors were included. MAIN MEASURES: Quality of life (SF-36, EuroQol-VAS), caregiver strain (CSI) and emotional functioning (HADS, IES) were measured at two weeks, three months and one year after the cardiac arrest...
January 1, 2017: Clinical Rehabilitation
https://www.readbyqxmd.com/read/28004448/social-networks-social-support-and-social-negativity-a-qualitative-study-of-head-and-neck-cancer-caregivers-experiences
#14
M Balfe, K Keohane, K O'Brien, L Sharp
Head and neck cancer is a serious form of cancer that can generate substantial physical and psychosocial morbidity. Informal caregivers can help patients to manage head and neck cancer and its emotional impacts, both during and after treatment. Caregivers, however, can experience considerable stress as a result of their caring activities. Supportive relationships can protect caregivers from psychosocial strain. Thirty-one head and neck cancer caregivers were interviewed about their experiences of accessing social support from their social networks; difficulties that they experienced accessing this support; and strategies that they used to address these difficulties...
December 22, 2016: European Journal of Cancer Care
https://www.readbyqxmd.com/read/27969034/the-effect-of-the-support-program-on-the-resilience-of-female-family-caregivers-of-stroke-patients-randomized-controlled-trial
#15
Fadime Hatice İnci, Ayla Bayik Temel
AIM: The purpose of the study was to determine the effect of a support program on the resilience of female family caregivers of stroke patients. METHODS: This is a randomized controlled trial. The sample consisted 70 female family caregivers (34 experimental, 36 control group). Data were collected three times (pretest-posttest, follow-up test). Data were collected using the demographical data form, the Family Index of Regenerativity and Adaptation-General. RESULTS: A significant difference was determined between the experimental and control group's follow-up test scores for relative and friend support, social support and family-coping coherence...
November 2016: Applied Nursing Research: ANR
https://www.readbyqxmd.com/read/27912740/effectiveness-and-cost-effectiveness-of-an-in-home-respite-care-program-in-supporting-informal-caregivers-of-people-with-dementia-design-of-a-comparative-study
#16
Sophie Vandepitte, Nele Van Den Noortgate, Koen Putman, Sofie Verhaeghe, Lieven Annemans
BACKGROUND: Frequent hospitalization and permanent nursing home placement not only affect the well-being of persons with dementia, but also place great financial strain on society. Therefore, it is important to create effective strategies to support informal caregivers so that they can continue to perform their demanding role. Preliminary qualitative evidence suggests that community-based respite services can actually be important for caregivers, and that the level of evidence should be further established in terms of effectiveness...
December 2, 2016: BMC Geriatrics
https://www.readbyqxmd.com/read/27869480/caregiver-profiles-in-dementia-related-to-quality-of-life-depression-and-perseverance-time-in-the-european-actifcare-study-the-importance-of-social-health
#17
Eveline P C J Janssen, Marjolein de Vugt, Sebastian Köhler, Claire Wolfs, Liselot Kerpershoek, Ron L H Handels, Martin Orrell, Bob Woods, Hannah Jelley, Astrid Stephan, Anja Bieber, Gabriele Meyer, Knut Engedal, Geir Selbaek, Anders Wimo, Kate Irving, Louise Hopper, Manuel Gonçalves-Pereira, Elisa Portolani, Orazio Zanetti, Frans R Verhey
OBJECTIVES: To identify caregiver profiles of persons with mild to moderate dementia and to investigate differences between identified caregiver profiles, using baseline data of the international prospective cohort study Actifcare. METHODS: A latent class analysis was used to discover different caregiver profiles based on disease related characteristics of 453 persons with dementia and their 453 informal caregivers. These profiles were compared with regard to quality of life (CarerQoL score), depressive symptoms (HADS-D score) and perseverance time...
January 2017: Aging & Mental Health
https://www.readbyqxmd.com/read/27863032/variances-in-family-carers-quality-of-life-based-on-selected-relationship-and-caregiving-indicators-a-quantitative-secondary-analysis
#18
Rahel Naef, Hannele Hediger, Lorenz Imhof, Romy Mahrer-Imhof
AIMS AND OBJECTIVES: To determine subgroups of family carers based on family relational and caregiving variables and to explore group differences in relation to selected carer outcomes. BACKGROUND: Family caregiving in later life holds a myriad of positive and negative outcomes for family members' well-being. However, factors that constitute family carers' experience and explain variances are less well understood. DESIGN: A secondary data analysis using cross-sectional data from a controlled randomised trial with community-dwelling people 80 years or older and their families...
November 10, 2016: International Journal of Older People Nursing
https://www.readbyqxmd.com/read/27859953/the-perceived-influence-of-childhood-cancer-on-the-parents-relationship
#19
L Wiener, H Battles, S Zadeh, W Pelletier, M N F Arruda-Colli, Anna C Muriel
OBJECTIVE: When a child is diagnosed with cancer, parents are faced with many practical and emotional challenges that can significantly affect their relationship. This study explores how having a child with cancer affects the quality of the parents' relationship, categorizes time points and events during the child's treatment when the relationship becomes most stressed and/or strengthened, identifies factors that help couples remain emotionally engaged throughout their child's cancer treatment, and assesses parental interest in a counseling intervention...
November 15, 2016: Psycho-oncology
https://www.readbyqxmd.com/read/27793197/self-administered-acupressure-for-symptom-management-among-chinese-family-caregivers-with-caregiver-stress-a-randomized-wait-list-controlled-trial
#20
RANDOMIZED CONTROLLED TRIAL
Agnes Tiwari, Lixing Lao, Amy Xiao-Min Wang, Denise Shuk Ting Cheung, Mike Ka Pui So, Doris Sau Fung Yu, Terry Yat Sang Lum, Helina Yin King Yuk Fung, Jerry Wing Fai Yeung, Zhang-Jin Zhang
BACKGROUND: Caregiving can be stressful, potentially creating physical and psychological strain. Substantial evidence has shown that family caregivers suffer from significant health problems arising from the demands of caregiving. Although there are programs supporting caregivers, there is little evidence regarding their effectiveness. Acupressure is an ancient Chinese healing method designed to restore the flow of Qi (vital energy) by applying external pressure to acupoints. A randomized, wait-list controlled trial was developed to evaluate the effectiveness of a self-administered acupressure intervention on caregiver stress (primary objective) and stress-related symptoms of fatigue, insomnia, depression, and health-related quality of life (secondary objectives) in Chinese caregivers of older family members...
October 28, 2016: BMC Complementary and Alternative Medicine
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