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Caregiver strain

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https://www.readbyqxmd.com/read/28816364/balancing-competing-needs-mediates-the-association-of-caregiving-demand-with-caregiver-role-strain-and-depressive-symptoms-of-dementia-caregivers-a-cross-sectional-study
#1
Hsin-Yun Liu, Ching-Tzu Yang, Yu-Nu Wang, Wen-Chuin Hsu, Tzu-Hsin Huang, Yueh-E Lin, Chin-Yi Liu, Yea-Ing L Shyu
AIMS: To examine the role of balancing competing needs in the relationship between caregiving demand and caregiving outcomes (caregivers' role strain and depressive symptoms). BACKGROUND: Caregivers who do not balance competing needs are more likely to experience negative caregiving outcomes, suggesting that balance mediates between caregiving demand and caregiving outcomes. Identifying a mediator of negative caregiving effects may help in developing tailored interventions for family caregivers of persons with dementia...
August 17, 2017: Journal of Advanced Nursing
https://www.readbyqxmd.com/read/28808093/are-disagreements-in-caregiver-and-patient-assessment-of-patient-health-associated-with-increased-caregiver-burden-in-caregivers-of-older-adults-with-cancer
#2
Tina Hsu, Matthew Loscalzo, Rupal Ramani, Stephen Forman, Leslie Popplewell, Karen Clark, Vani Katheria, Rex Strowbridge, Redmond Rinehart, Dan Smith, Keith Matthews, Jeff Dillehunt, Tao Feng, David Smith, Canlan Sun, Arti Hurria
BACKGROUND: As patients age, caregivers increasingly provide essential support and patient information. We sought to determine if patient-caregiver assessments of patient health differ and if differences contribute to burden in caregivers of older adults with cancer. MATERIALS AND METHODS: One hundred patients, aged ≥65, and their caregivers independently assessed patient function, comorbidity, nutrition, social activity, social support, and mental health. Caregivers completed the Caregiver Strain Index (CSI)...
August 14, 2017: Oncologist
https://www.readbyqxmd.com/read/28803827/caring-for-the-caregiver-supporting-families-of-youth-with-special-health-care-needs
#3
Mariecel Pilapil, Daniel J Coletti, Cindy Rabey, David DeLaet
Caregivers of youth with special health care needs (YSHCN) are a critical part of the health care team. It is important for pediatric providers to be cognizant of the burden and strain caregiving can create. This article will discuss the health, psychological, social, and financial effects of caregiving, as well as strategies to screen for caregiver strain among families of YSHCN. Caregivers of YSHCN, for example, are more likely to report poor health status and demonstrate higher rates of depression and anxiety...
August 10, 2017: Current Problems in Pediatric and Adolescent Health Care
https://www.readbyqxmd.com/read/28802938/impulse-control-and-related-disorders-in-parkinson-s-disease
#4
Daniel Weintraub, Daniel O Claassen
Impulse control disorders (ICDs), such as compulsive gambling, buying, sexual, and eating behaviors, are a serious and increasingly recognized complication in Parkinson's disease (PD), occurring in up to 20% of PD patients over the course of their illness. Related behaviors include punding (stereotyped, repetitive, purposeless behaviors), dopamine dysregulation syndrome (DDS) (compulsive medication overuse), and hobbyism (e.g., compulsive internet use, artistic endeavors, and writing). These disorders have a significant impact on quality of life and function, strain interpersonal relationships, and worsen caregiver burden, and are associated with significant psychiatric comorbidity...
2017: International Review of Neurobiology
https://www.readbyqxmd.com/read/28795855/the-relationship-between-mutuality-and-health-related-quality-of-life-in-adult-child-caregivers-in-china
#5
Yuqin Pan, Patricia S Jones, Patricia Pothier
The strain inherent in caregiving relationships between adult children and aging parents is a prominent issue in contemporary China due to a combination of demographic and socioeconomic changes. The purpose of this study was to explore how mutuality, a positive quality of caregiving relationships, contributes to the physical health and mental health (health-related quality of life [HRQoL]) of adult child caregivers [ACCs] of parent stroke survivors. A cross-sectional correlational study was conducted on a nonproportional quota sample of 126 ACCs, using questionnaires of demographics, the 15-item Mutuality Scale, and the Second Version of the Standard 12-Item Health Survey (SF-12v2)...
July 1, 2017: Journal of Family Nursing
https://www.readbyqxmd.com/read/28759966/trajectories-of-multidimensional-caregiver-burden-in-chinese-informal-caregivers-for-dementia-evidence-from-exploratory-and-confirmatory-factor-analysis-of-the-zarit-burden-interview
#6
Dan Li, Nan Hu, Yueyi Yu, Aihong Zhou, Fangyu Li, Jianping Jia
BACKGROUND: Despite its popularity, the latent structure of 22-item Zarit Burden Interview (ZBI) remains unclear. There has been no study exploring how caregiver multidimensional burden changed. OBJECTIVE: The aim of the work was to validate the latent structure of ZBI and to investigate how multidimensional burden evolves with increasing global burden. METHODS: We studied 1,132 dyads of dementia patients with informal caregivers. The caregivers completed the ZBI and a questionnaire regarding caregiving...
July 25, 2017: Journal of Alzheimer's Disease: JAD
https://www.readbyqxmd.com/read/28747135/high-burden-and-depression-among-late-stage-idiopathic-parkinson-disease-and-progressive-supranuclear-palsy-caregivers
#7
Christian Schmotz, Carmen Richinger, Stefan Lorenzl
OBJECTIVES: Caregivers of patients with late-stage idiopathic Parkinson disease (IPD) and late-stage progressive supranuclear palsy (PSP) often suffer from severe psychological strain themselves. This study investigates the influence of the different kind of symptoms in IPD and PSP on the psychological burden of the caregivers. METHODS: Twenty patients with late-stage IPD and 20 patients with late-stage PSP and their caregivers were investigated. To measure the degree of motor, cognitive, and affective impairment of the patients, the instruments Subscale III of the Unified Rating Scale for Parkinsonism (UPDRS-III), a shortened 24-item version of the Mini-Mental State Examination, and the Geriatric Depression Scale (GDS-30) were used...
January 1, 2017: Journal of Geriatric Psychiatry and Neurology
https://www.readbyqxmd.com/read/28735161/types-of-strain-among-family-members-of-individuals-with-autism-spectrum-disorder-across-the-lifespan
#8
Carolyn M Shivers, Katarina Krizova, Gloria K Lee
BACKGROUND: Although increased caregiver strain is often found among family caregivers of individuals with autism spectrum disorder, it is still unclear as to how different types of strain relate to amount and types of caregiving across the lifespan. AIMS: The present study examined different types of strain (i.e. subjective internalized strain, subjective externalized strain, and objective strain) and how such strain relates to the amount of caregiving responsibilities...
September 2017: Research in Developmental Disabilities
https://www.readbyqxmd.com/read/28730068/stroke-survivors-levels-of-community-reintegration-quality-of-life-satisfaction-with-the-physiotherapy-services-and-the-level-of-caregiver-strain-at-community-health-centres-within-the-johannesburg-area
#9
Adrian Kusambiza-Kiingi, Douglas Maleka, Veronica Ntsiea
BACKGROUND: Stroke survivors are discharged home before they are functionally independent and return home with activity limitations that would not be manageable without a caregiver. AIM: To determine stroke survivors' levels of community reintegration, quality of life (QOL), satisfaction with the physiotherapy services and the level of caregiver strain at community health centres within the Johannesburg area. METHOD: This was a cross-sectional study using the following outcome measures: Maleka Stroke Community Reintegration Measure, Stroke-specific quality of life scale, Caregiver strain index and Physical therapy patient satisfaction questionnaire...
2017: Afr J Disabil
https://www.readbyqxmd.com/read/28716130/psychometric-properties-and-relations-with-coping-and-family-strain-of-the-health-services-and-caregiver-experience-questionnaire-hsce-an-outcome-measure-of-informal-caregivers-experience-for-inpatient-care-in-italy
#10
Anna Coluccia, Fabio Ferretti, Andrea Fagiolini, Andrea Pozza
BACKGROUND: In the last decade, the number of patients supported by informal caregivers has substantially increased. In the Italian healthcare context, informal caregivers' experience of care is a new under-recognized construct, and no assessment tool is available. Measuring caregivers' experience is important since in Italy the relationship between doctors and patients/relatives is still considered asymmetrical. The current study presented development and initial psychometric properties of the Health Services and Caregiver Experience questionnaire (HSCE), a self-report tool of caregivers' global experience for inpatient clinical care, including factor structure, reliability and its relations with measures of coping strategies and family strain...
July 17, 2017: BMC Health Services Research
https://www.readbyqxmd.com/read/28716014/the-comprehensive-post-acute-stroke-services-compass-study-design-and-methods-for-a-cluster-randomized-pragmatic-trial
#11
Pamela W Duncan, Cheryl D Bushnell, Wayne D Rosamond, Sara B Jones Berkeley, Sabina B Gesell, Ralph B D'Agostino, Walter T Ambrosius, Blair Barton-Percival, Janet Prvu Bettger, Sylvia W Coleman, Doyle M Cummings, Janet K Freburger, Jacqueline Halladay, Anna M Johnson, Anna M Kucharska-Newton, Gladys Lundy-Lamm, Barbara J Lutz, Laurie H Mettam, Amy M Pastva, Mysha E Sissine, Betsy Vetter
BACKGROUND: Patients discharged home after stroke face significant challenges managing residual neurological deficits, secondary prevention, and pre-existing chronic conditions. Post-discharge care is often fragmented leading to increased healthcare costs, readmissions, and sub-optimal utilization of rehabilitation and community services. The COMprehensive Post-Acute Stroke Services (COMPASS) Study is an ongoing cluster-randomized pragmatic trial to assess the effectiveness of a comprehensive, evidence-based, post-acute care model on patient-centered outcomes...
July 17, 2017: BMC Neurology
https://www.readbyqxmd.com/read/28699777/caring-for-an-individual-with-mild-cognitive-impairment-a-qualitative-perspective-of-health-related-quality-of-life-from-caregivers
#12
Noelle E Carlozzi, Carey W Sherman, Kaley Angers, Mitchell P Belanger, Amy M Austin, Kelly A Ryan
OBJECTIVES: Little is known regarding the effect that caring for an individual with Mild Cognitive Impairment (MCI) has on health-related quality of life (HRQOL). We sought to identify the most important aspects of HRQOL related to caring for an individual with MCI. METHODS: Six focus groups were conducted with caregivers of individuals with MCI (n = 32). Qualitative frequency analysis was used to analyze the data. RESULTS: Findings indicated that caregivers most frequently discussed social health, including changes in social roles and an increased need for social support (51...
July 12, 2017: Aging & Mental Health
https://www.readbyqxmd.com/read/28694554/the-psychosocial-implications-of-managing-work-and-family-caregiving-roles-gender-differences-among-information-technology-professionals
#13
Nicole DePasquale, Courtney A Polenick, Kelly D Davis, Phyllis Moen, Leslie B Hammer, David M Almeida
An increasing number of adults, both men and women, are simultaneously managing work and family caregiving roles. Guided by the stress process model, we investigate whether 823 employees occupying diverse family caregiving roles (child caregiving only, elder caregiving only, and both child caregiving and elder caregiving, or "sandwiched" caregiving) and their noncaregiving counterparts in the information technology division of a white-collar organization differ on several indicators of psychosocial stress along with gender differences in stress exposure...
August 2017: Journal of Family Issues
https://www.readbyqxmd.com/read/28683150/hospitalization-and-rehospitalization-in-parkinson-disease-patients-data-from-the-national-parkinson-foundation-centers-of-excellence
#14
Leili Shahgholi, Sol De Jesus, Samuel S Wu, Qinglin Pei, Anhar Hassan, Melissa J Armstrong, Daniel Martinez-Ramirez, Peter Schmidt, Michael S Okun
BACKGROUND: Patients with Parkinson disease (PD) are at high risk of hospital encounters with increasing morbidity and mortality. This study aimed to determine the rate of hospital encounters in a cohort followed over 5 years and to identify associated factors. METHODS: We queried the data from the International Multicenter National Parkinson Foundation Quality Improvement study. Multivariate logistic regression with backward selection was performed to identify factors associated with hospital encounter prior to baseline visit...
2017: PloS One
https://www.readbyqxmd.com/read/28658025/determinants-of-receiving-palliative-care-and-ventilator-withdrawal-among-patients-with-prolonged-mechanical-ventilation
#15
Yang-Ching Chen, Hsien-Yu Fan, J Randall Curtis, Oscar Kuang-Sheng Lee, Chih-Kuang Liu, Sheng-Jean Huang
OBJECTIVES: Increasing numbers of patients with prolonged mechanical ventilation generates a tremendous strain on healthcare systems. Patients with prolonged mechanical ventilation suffer from long-term poor quality of life. However, no study has ever explored the willingness to receive palliative care or terminal withdrawal and the factors influencing willingness. DESIGN: Cross-sectional study. SETTING: Five different hospitals of Taipei City Hospital system...
June 27, 2017: Critical Care Medicine
https://www.readbyqxmd.com/read/28649454/methods-guiding-stakeholder-engagement-in-planning-a-pragmatic-study-on-changing-stroke-systems-of-care
#16
Sabina B Gesell, Karen Potvin Klein, Jacqueline Halladay, Janet Prvu Bettger, Janet Freburger, Doyle M Cummings, Barbara J Lutz, Sylvia Coleman, Cheryl Bushnell, Wayne Rosamond, Pamela W Duncan
BACKGROUND: The Comprehensive Post-Acute Stroke Services (COMPASS) Study is one of the first large pragmatic randomized-controlled clinical trials using comparative effectiveness research methods, funded by the Patient-Centered Outcomes Research Institute. In the COMPASS Study, we compare the effectiveness of a patient-centered, transitional care intervention versus usual care for stroke patients discharged home from acute care. Outcomes include stroke patient post-discharge functional status and caregiver strain 90 days after discharge, and hospital readmissions...
April 2017: Journal of clinical and translational science
https://www.readbyqxmd.com/read/28631850/a-parent-infant-music-therapy-intervention-improved-neurodevelopment-after-neonatal-intensive-care
#17
Ellyn L Hamm, Olena D Chorna, Alicia Flanery, Nathalie L Maitre
Parental involvement is often essential to ensure that early intervention strategies that aim to improve the outcomes of former neonatal intensive care (NICU) patients are successful. However, hospitalisation can strain the caregiver-infant bond (1) and perception of the child's development. Structured music therapy programmes that focus on the progressive development of infant and caregiver dyads after hospital discharge have been associated with improvements in infants' social skills and positive parenting behaviours (2)...
June 20, 2017: Acta Paediatrica
https://www.readbyqxmd.com/read/28612245/correlates-of-police-involvement-among-adolescents-and-adults-with-autism-spectrum-disorder
#18
Ami Tint, Anna M Palucka, Elspeth Bradley, Jonathan A Weiss, Yona Lunsky
This study aimed to describe police interactions, satisfaction with police engagement, as well as examine correlates of police involvement among 284 adolescents and adults with autism spectrum disorder (ASD) followed over a 12- to 18-month period. Approximately 16% of individuals were reported to have some form of police involvement during the study period. Aggressive behaviors were the primary concern necessitating police involvement. Individuals with police involvement were more likely to be older, have a history of aggression, live outside the family home, and have parents with higher rates of caregiver strain and financial difficulty at baseline...
June 13, 2017: Journal of Autism and Developmental Disorders
https://www.readbyqxmd.com/read/28605997/predictors-of-desire-to-institutionalization-in-dementia-caregivers-from-a-developing-country
#19
Preeti Sinha, Sherin Yohannan, A Thirumoorthy, Palanimuthu Thangaraju Sivakumar
Older adults with dementia have higher rates of institutionalization than those without dementia. Desire to institutionalization (DTI) is an important factor influencing the actual institutionalization but is less well studied. This cross-sectional study examines the DTI with the scale of same name developed by Morycz, in 1985, in a sample of 50 caregivers of patients with dementia in a tertiary clinical care setting in a developing country. Caregiver burden associated with personal strain (by factor analyzed Zarit Burden Interview scale), and stress perceived out of caregiving (by Perceived Stress Scale) predicted higher DTI...
January 1, 2017: American Journal of Alzheimer's Disease and Other Dementias
https://www.readbyqxmd.com/read/28576903/the-taking-charge-after-stroke-tacas-study-protocol-a-multicentre-investigator-blinded-randomised-controlled-trial-comparing-the-effect-of-a-single-take-charge-session-two-take-charge-sessions-and-control-intervention-on-health-related-quality-of-life-12-months
#20
Vivian Wai Yin Fu, Mark Weatherall, Harry McNaughton
INTRODUCTION: Stroke is one of the leading causes of disability worldwide. Recent data support the possibility that person-centred, self-management interventions can reduce dependence after stroke. However, there is limited information on the generalisability and optimum dose of these interventions. METHODS: The Taking Charge After Stroke (TaCAS) study is a multicentre, investigator-blinded, randomised controlled trial recruiting 400 participants following acute stroke from seven hospitals in New Zealand...
June 1, 2017: BMJ Open
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