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Caregiver strain

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https://www.readbyqxmd.com/read/29781459/family-caregivers-a-qualitative-study-to-better-understand-the-quality-of-life-concerns-and-needs-of-this-population
#1
Betty R Ferrell, Kate Kravitz, Tami Borneman, Ellen Taratoot Friedmann
BACKGROUND: While providing physical, psychological, and spiritual care to their loved ones with cancer, family caregivers (FCGs) are physically and emotionally vulnerable to the tolls of caregiving. Patients and FCGs experience the uncertainty that comes with illness and treatment, its side effects, the lack of control, the emotional upheaval, the spiritual doubt, and the helplessness of advancing disease. OBJECTIVES: This study was conducted to better understand the quality-of-life needs of the FCG population, particularly those who encounter financial strain related to patients' cancer and treatment...
June 1, 2018: Clinical Journal of Oncology Nursing
https://www.readbyqxmd.com/read/29775139/burden-and-strain-among-familial-caregivers-of-patients-with-dementia-in-china
#2
Min Zhang, Yu-Ping Chang, Yu Jin Liu, Ling Gao, Davina Porock
BACKGROUND: Alzheimer's disease is one of a variety of progressive and ultimately fatal neurodegenerative diseases that are characterized by a number of nervous and mental symptoms and behavior disorders. These problems are likely to cause burden and strain on caregivers. In this study, we demonstrated the level and relationship of burden and strain among caregivers of dementia patients in China. METHODS: A total of 212 caregivers of family members with dementia responded to the survey...
May 2018: Issues in Mental Health Nursing
https://www.readbyqxmd.com/read/29729228/the-impact-of-stigma-on-community-reintegration-of-veterans-with-traumatic-brain-injury-and-the-well-being-of-their-caregivers
#3
Sean M Phelan, Lauren R Bangerter, Greta Friedemann-Sanchez, Kandace A Lackore, Megan A Morris, Courtney H Van Houtven, Kathleen F Carlson, Michelle van Ryn, Kristin J Harden, Joan M Griffin
OBJECTIVE: To assess the association between perceived stigma and discrimination and caregiver strain, caregiver well-being, and patient community reintegration. DESIGN: A cross-sectional survey study of 564 informal caregivers of Veterans of US wars in Iraq and Afghanistan who experienced traumatic brain injuries or polytrauma (TBI/PT). SETTING: Care settings of community dwelling former inpatients of any US Veterans Polytrauma Rehabilitation Center...
May 2, 2018: Archives of Physical Medicine and Rehabilitation
https://www.readbyqxmd.com/read/29725166/caregiver-burden-among-caregivers-of-mentally-ill-individuals-and-their-coping-mechanisms
#4
Sujata Chodankar Walke, Varalakshmi Chandrasekaran, Shreemathi S Mayya
Background: During a given year, almost 30% of the people around the world are affected by mentally ill health. In India, it accounts for about 20%. Caregivers face a lot of strain, ill health, and disrupted family life, with literature suggesting an increasing concern about their ability to cope up. The needs of caregivers of the mentally ill are given low priority in the current health-care setting in India. Aim: The aim of the study was to assess the burden of caregivers of mentally ill individuals and their coping mechanisms...
April 2018: Journal of Neurosciences in Rural Practice
https://www.readbyqxmd.com/read/29700476/quality-of-life-burden-and-satisfaction-with-care-in-caregivers-of-patients-with-a-spinal-cord-injury-during-and-after-rehabilitation
#5
Annemiek Petronella Maria Backx, Annemie Irene Frans Spooren, Helena Maria Henrika Bongers-Janssen, Hanneke Bouwsema
STUDY DESIGN: Longitudinal, prospective cohort study. OBJECTIVES: To examine the course that burden, quality of life (QoL) and satisfaction with care taken in Dutch caregivers of patients with a SCI. SETTING: Adelante Rehabilitation Centre and Dutch community, the Netherlands METHODS: Caregiver Strain index (CSI), Short Form36 (SF-36) and Caregivers' Satisfaction with (Stroke) Care Questionnaire (C-SASC) were administered to caregivers (n = 37) of patients with a recently acquired SCI at the start of rehabilitation (T1), discharge from rehabilitation (T2) and at 8 weeks (T3), 6 months (T4) and 18 months after discharge (T5)...
April 27, 2018: Spinal Cord
https://www.readbyqxmd.com/read/29699521/mediating-effects-of-burden-on-quality-of-life-for-caregivers-of-first-time-stroke-patients-discharged-from-the-hospital-within-one-year
#6
Yu-Hsia Tsai, Meei-Fang Lou, Tsui-Hsia Feng, Tsung-Lan Chu, Ying-Jen Chen, Hsueh-Erh Liu
BACKGROUND: Caregiver burden may be either a predictor or an outcome of caregiver quality of life (QoL). Patient or caregiver factors that directly affect caregiver QoL, predictors that are simultaneously shared with caregiver burden and QoL, and factors that affect caregiver QoL through caregiver burden are not well understood. This study explored predictors of caregiver QoL and identified whether caregiver burden is a mediator for caregivers of first-time stroke patients. METHODS: This is a cross-sectional study...
April 25, 2018: BMC Neurology
https://www.readbyqxmd.com/read/29652896/a-cohort-study-of-the-effects-of-older-adult-care-dependence-upon-household-economic-functioning-in-peru-mexico-and-china
#7
Maëlenn M Guerchet, Mariella Guerra, Yueqin Huang, Peter Lloyd-Sherlock, Ana Luisa Sosa, Richard Uwakwe, Isaac Acosta, Peter Ezeah, Sara Gallardo, Zhaorui Liu, Rosie Mayston, Veronica Montes de Oca, Hong Wang, Martin J Prince
BACKGROUND: While links between disability and poverty are well established, there have been few longitudinal studies to clarify direction of causality, particularly among older adults in low and middle income countries. We aimed to study the effect of care dependence among older adult residents on the economic functioning of their households, in catchment area survey sites in Peru, Mexico and China. METHODS: Households were classified from the evolution of the needs for care of older residents, over two previous community surveys, as 'incident care', 'chronic care' or 'no care', and followed up three years later to ascertain economic outcomes (household income, consumption, economic strain, satisfaction with economic circumstances, healthcare expenditure and residents giving up work or education to care)...
2018: PloS One
https://www.readbyqxmd.com/read/29649892/a-pilot-comparison-between-caregiver-s-and-patient-s-perceived-quality-of-life-in-chronic-rhinosinusitis
#8
Katherine N Adams, Douglas Farquhar, Brent A Senior, Brian D Thorp, Adam M Zanation, Charles S Ebert
Introduction Chronic rhinosinusitis negatively impacts a patient's quality of life, but current studies only address the patient's perception of their disease. Caregivers living with the patient may have an alternative perception of the severity of the quality of life disturbance that patient's experience with chronic rhinosinusitis. Methods This was a prospective cohort study that enrolled patients with a confirmed chronic rhinosinusitis diagnosis who presented to clinic with a caregiver. At the initial visit, patients completed a Rhinosinusitis Disability Index...
January 1, 2018: American Journal of Rhinology & Allergy
https://www.readbyqxmd.com/read/29644908/life-course-stage-and-social-support-mobilization-for-end-of-life-caregivers
#9
Susan A LaValley, Elizabeth A Gage-Bouchard
Caregivers of terminally ill patients are at risk for anxiety, depression, and social isolation. Social support from friends, family members, neighbors, and health care professionals can potentially prevent or mitigate caregiver strain. While previous research documents the importance of social support in helping end-of-life caregivers cope with caregiving demands, little is known about differences in social support experiences among caregivers at different life course stages. Using life course theory, this study analyzes data from in-depth interviews with 50 caregivers of patients enrolled in hospice services to compare barriers to mobilizing social support among caregivers at two life course stages: midlife caregivers caring for parents and older adult caregivers caring for spouses/partners...
April 1, 2018: Journal of Applied Gerontology: the Official Journal of the Southern Gerontological Society
https://www.readbyqxmd.com/read/29623277/worry-about-caregiving-performance-a-confirmatory-factor-analysis
#10
Ruijie Li, Mei Sian Chong, Peng Chew Mark Chan, Bee Gek Laura Tay, Noorhazlina Binte Ali, Wee Shiong Lim
Recent studies on the Zarit Burden Interview (ZBI) support the existence of a unique factor, worry about caregiving performance (WaP), beyond role and personal strain. Our current study aims to confirm the existence of WaP within the multidimensionality of ZBI and to determine if predictors of WaP differ from the role and personal strain. We performed confirmatory factor analysis (CFA) on 466 caregiver-patient dyads to compare between one-factor (total score), two-factor (role/personal strain), three-factor (role/personal strain and WaP), and four-factor models (role strain split into two factors)...
2018: Frontiers in Medicine
https://www.readbyqxmd.com/read/29622011/informal-caregiving-burden-and-perceived-social-support-in-an-acute-stroke-care-facility
#11
Christopher Olusanjo Akosile, Tosin Olamilekan Banjo, Emmanuel Chiebuka Okoye, Peter Olanrewaju Ibikunle, Adesola Christiana Odole
BACKGROUND: Providing informal caregiving in the acute in-patient and post-hospital discharge phases places enormous burden on the caregivers who often require some form of social support. However, it appears there are few published studies about informal caregiving in the acute in-patient phase of individuals with stroke particularly in poor-resource countries. This study was designed to evaluate the prevalence of caregiving burden and its association with patient and caregiver-related variables and also level of perceived social support in a sample of informal caregivers of stroke survivors at an acute stroke-care facility in Nigeria...
April 5, 2018: Health and Quality of Life Outcomes
https://www.readbyqxmd.com/read/29609600/screening-for-caregivers-at-risk-extended-validation-of-the-short-version-of-the-burden-scale-for-family-caregivers-bsfc-s-with-a-valid-classification-system-for-caregivers-caring-for-an-older-person-at-home
#12
Anna Pendergrass, Cintia Malnis, Uta Graf, Sabine Engel, Elmar Graessel
BACKGROUND: Informal caregivers' (CGs') subjective burden is an important aspect of the care situation because it is linked to various outcomes such as health, mortality risk, institutionalization, and caregiving style. The aims of this study were a) to examine the convergent and discriminant validity of the 10-item short version of the Burden Scale for Family Caregivers (BSFC-s) and b) to develop a valid classification system for interpreting BSFC-s scores. METHODS: In this cross-sectional study, we analyzed data obtained from 386 informal CGs who applied for an initial grade or upgrade of the care level for the care recipient at the Medical Service of Compulsory Health Insurance Funds of Bavaria (Germany)...
April 2, 2018: BMC Health Services Research
https://www.readbyqxmd.com/read/29601362/roles-of-family-caregivers-and-perceived-burden-when-caring-for-hospitalized-adult-cancer-patients-perspective-from-a-low-income-country
#13
Joshua K Muliira, Irene B Kizza, Gloria Nakitende
BACKGROUND: Family caregivers (FCGs) of adult cancer patients (ACPs) are typically involved in the entire trajectory of cancer disease, from diagnosis to survivorship or end of life. In developing countries, FCGs are more intensely involved in the process of providing care to the hospitalized ACPs because of lack of adequate cancer care resources. Active performance of tasks to meet the needs of ACPs in the hospital setting is likely to elicit significant caregiver burden. OBJECTIVE: The aim of this study was to explore the tasks performed and the caregiver burden experienced by FCGs of hospitalized ACPs in a sub-Saharan country...
March 30, 2018: Cancer Nursing
https://www.readbyqxmd.com/read/29568856/approach-to-the-forgetful-patient
#14
Peng Soon Yoon, Chun How Ooi, Choon How How
Singapore has an ageing population with a projected 53,000 people aged ≥ 60 years living with dementia by 2020. Primary care doctors have the opportunity to initiate early work-up for reversible causes of cognitive dysfunction, allowing identification of comorbidities and discussion of medical therapy options. Early diagnosis confers the sick role on the patient, which allays frustration and explains events and behaviour that may have strained relationships with family and friends. The patient can be encouraged to plan for future health and personal care options with a Lasting Power of Attorney and/or Advance Care Planning...
March 2018: Singapore Medical Journal
https://www.readbyqxmd.com/read/29567463/long-term-quality-of-life-of-caregivers-of-cardiac-arrest-survivors-and-the-impact-of-witnessing-a-cardiac-event-of-a-close-relative
#15
Janine Van't Wout Hofland, Veronique Moulaert, Caroline van Heugten, Jeanine Verbunt
BACKGROUND: The incidence of cardiac arrest is high, with a poor survival rate of 8-14%. Currently, only limited evidence is available about long-term consequences of cardiac arrest on quality of life of caregivers. AIMS: First, to determine the level of daily functioning and quality of life in caregivers of cardiac arrest survivors two years after the cardiac arrest. Second, to study the long-term impact of witnessing the event of a cardiac arrest. METHODS: A longitudinal cohort study including caregivers of cardiac arrest survivors...
March 19, 2018: Resuscitation
https://www.readbyqxmd.com/read/29546327/care-values-in-dementia-patterns-of-perception-and-incongruence-among-family-care-dyads
#16
Lyndsey M Miller, Carol J Whitlatch, Christopher S Lee, Michael S Caserta
Background and Objectives: Persons with dementia (PWDs) often place greater importance on their care values (i.e., maintaining autonomy and social relations, choosing caregivers, avoiding being a burden) than family caregivers (CGs) perceive, which can detract from dementia care planning (e.g., care arrangements or surrogate decisions). Notable variability has been found across family care dyads (PWD and CG) in their perceptions of care values, suggesting that there may be multiple patterns of perception...
March 12, 2018: Gerontologist
https://www.readbyqxmd.com/read/29522440/do-technical-aids-for-patient-handling-prevent-musculoskeletal-complaints-in-health-care-workers-a-systematic-review-of-intervention-studies
#17
REVIEW
Janice Hegewald, Wera Berge, Philipp Heinrich, Ronny Staudte, Alice Freiberg, Julia Scharfe, Maria Girbig, Albert Nienhaus, Andreas Seidler
The physical load ensuing from the repositioning and moving of patients puts health care workers at risk of musculoskeletal complaints. Technical equipment developed to aid with patient handling should reduce physical strain and workload; however, the efficacy of these aids in preventing musculoskeletal disorders and complaints is still unclear. A systematic review of controlled intervention studies was conducted to examine if the risk of musculoskeletal complaints and disorders is reduced by technical patient handling equipment...
March 9, 2018: International Journal of Environmental Research and Public Health
https://www.readbyqxmd.com/read/29521939/quality-of-life-in-patients-with-pancreatic-cancer-and-their-caregivers-a-systematic-review
#18
Margaret R Bauer, Emma E Bright, James J MacDonald, Elizabeth H Cleary, O Joe Hines, Annette L Stanton
Little is known about quality of life (QOL) of patients with pancreatic cancer and their caregivers compared with adults with other cancers. This systematic review summarizes the available evidence base, identifies its limitations, and recommends directions for research and clinical application. A systematic review was conducted of research on QOL in adults with pancreatic cancer and their caregivers. Quality of life was examined in the following specific domains: psychological, physical, social, sexual, spiritual, and general...
April 2018: Pancreas
https://www.readbyqxmd.com/read/29514804/patient-and-caregiver-determinants-of-patient-quality-of-life-and-caregiver-strain-in-left-ventricular-assist-device-therapy
#19
Julie T Bidwell, Karen S Lyons, James O Mudd, Kathleen L Grady, Jill M Gelow, Shirin O Hiatt, Christopher V Chien, Christopher S Lee
BACKGROUND: Although current guidelines emphasize the importance of social support to the success of left ventricular assist device (LVAD) therapy, few studies examine the influence of the caregiver on patient outcomes or quantify the impact of LVAD caregiving on caregiver outcomes. The purpose of this analysis was to identify patient and caregiver determinants of patient quality of life (QOL) and caregiver strain in response to LVAD therapy. METHODS AND RESULTS: Data on patients receiving LVAD therapy and their caregivers (n=50 dyads) were prospectively collected pre-implantation and 1, 3, and 6 months post-implantation...
March 7, 2018: Journal of the American Heart Association
https://www.readbyqxmd.com/read/29509550/post-stroke-depression-a-long-term-problem-for-stroke-survivors
#20
H J Arwert, J J L Meesters, J Boiten, F Balk, R Wolterbeek, T P M Vliet Vlieland
OBJECTIVES: To ascertain the prevalence of depressive mood and its determinants in the chronic phase after stroke. DESIGN: 576 consecutive patients were invited to participate 2-5 years after hospitalization for a first-ever stroke. Stroke characteristics at hospitalization were collected retrospectively from medical records. Patients and their caregivers completed questionnaires on depression (Hospital Anxiety and Depression Scale; HADS), socio-demographic characteristics, healthcare usage, daily activities, Quality of Life and caregiver strain...
March 5, 2018: American Journal of Physical Medicine & Rehabilitation
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