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Caregiver strain

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https://www.readbyqxmd.com/read/29336704/intent-to-use-a-web-based-psychological-intervention-for-partners-of-cancer-patients-associated-factors-and-preferences
#1
Nadine Köhle, Constance H C Drossaert, Cornelia F Van Uden-Kraan, Karlein M G Schreurs, Mariët Hagedoorn, Irma M Verdonck-de Leeuw, Ernst T Bohlmeijer
This study examined partners of cancer patients intention to use a web-based psychological intervention, their preferences regarding its preconditions, functionalities and topics, and factors related to their intention. One hundred and sixty-eight partners completed a questionnaire about these aspects. Forty-eight percent of the partners would (maybe) make use of a web-based intervention. Partners who intended to participate were significantly younger, used the Internet more often, and perceived more caregiver strain...
January 16, 2018: Journal of Psychosocial Oncology
https://www.readbyqxmd.com/read/29335472/provided-support-caregiver-burden-and-well-being-in-partners-of-persons-with-spinal-cord-injury-5-years-after-discharge-from-first-inpatient-rehabilitation
#2
Eline W M Scholten, Anneroos Kieftenbelt, Chantal F Hillebregt, Sonja de Groot, Marjolijn Ketelaar, Johanna M A Visser-Meily, Marcel W M Post
STUDY DESIGN: Cross-sectional study. OBJECTIVES: To describe type and regularity of support given by partners for individuals with paraplegia versus tetraplegia 5 years after discharge from first inpatient rehabilitation; to describe perceived caregiver burden, mental health and life satisfaction among partners; and to analyse determinants of perceived burden and the partner's mental health and life satisfaction. SETTING: The Netherlands. METHODS: Participants were partners of persons with spinal cord injury (SCI) 5 years after discharge from first inpatient rehabilitation (N = 67)...
January 16, 2018: Spinal Cord
https://www.readbyqxmd.com/read/29325105/predictors-of-secondary-role-strains-among-spousal-caregivers-of-older-adults-with-functional-disability
#3
Courtney A Polenick, Nicole DePasquale
Background and Objectives: Aging spouses commonly care for a partner with functional disability, but little is known about how spousal caregiving may impact different life domains. This study evaluated how caregiving characteristics are associated with secondary role strains among spousal caregivers. Research Design and Methods: This cross-sectional study examined 367 spousal caregivers and their partners from the 2011 National Health and Aging Trends Study and National Study of Caregiving...
January 8, 2018: Gerontologist
https://www.readbyqxmd.com/read/29308714/complexities-and-challenges-of-singapore-nurses-providing-postacute-home-care-in-multicultural-communities-a-grounded-theory-study
#4
Alfred Ka-Shing Wong, Shu Fen Ong, David Bruce Matchar, Desiree Lie, Reuben Ng, Kirsten Eom Yoon, Chek Hooi Wong
INTRODUCTION: Studies are needed to inform the preparation of community nurses to address patient behavioral and social factors contributing to unnecessary readmissions to hospital. This study uses nurses' input to understand challenges faced during home care, to derive a framework to address the challenges. METHODS: Semistructured interviews were conducted to saturation with 16 community nurses in Singapore. Interviews were transcribed verbatim and transcripts independently coded for emergent themes...
October 1, 2017: Journal of Transcultural Nursing: Official Journal of the Transcultural Nursing Society
https://www.readbyqxmd.com/read/29301414/helping-dementia-caregivers-manage-medical-problems-benefits-of-an-educational-resource
#5
Sheryl Zimmerman, Philip D Sloane, Kimberly Ward, Anna Beeber, David Reed, Christine Lathren, Bobbi Matchar, Lisa Gwyther
BACKGROUND/RATIONALE: Family caregivers of people with dementia must attend to medical care needs of their relative, yet few available resources address comorbidities in dementia. Consequently, caregivers feel ill-equipped when medical concerns arise. In response, an educational resource-Alzheimer's Medical Advisor ( AlzMed)-was developed in 2 forms (website and book) and evaluated. METHODS: Family caregivers (143 website and 51 book) used an educational resource that provides information on medical problems, vital signs, pain, dehydration, and the healthcare system...
January 1, 2018: American Journal of Alzheimer's Disease and Other Dementias
https://www.readbyqxmd.com/read/29289452/empathic-accuracy-deficits-in-patients-with-neurodegenerative-disease-association-with-caregiver-depression
#6
Casey L Brown, Sandy J Lwi, Madeleine S Goodkind, Katherine P Rankin, Jennifer Merrilees, Bruce L Miller, Robert W Levenson
OBJECTIVES: To investigate whether deficits in empathic accuracy (i.e., ability to recognize emotion in others) in patients with neurodegenerative disease are associated with greater depression in their caregivers. DESIGN: Two cross-sectional studies. SETTING: Academic medical center and research university. PARTICIPANTS: Two independent samples (N = 172, N = 63) of patients with a variety of neurodegenerative diseases and their caregivers; comparison group of healthy couples...
December 27, 2017: American Journal of Geriatric Psychiatry
https://www.readbyqxmd.com/read/29277396/botulism-in-the-icu-nursing-care-plan
#7
G Zariquiey-Esteva, D Galeote-Cózar, P Santa-Candela, A Castanera-Duro
INTRODUCTION AND CASE EVALUATION: Botulism is a rare disease in Europe, caused by the bacterium Clostridium botulinum, notifiable, non-transmissible person-to-person and potentially fatal (between 5 and 10%) if not treated quickly. The favourable opinion of the Clinical Research Ethics Committee was obtained. We present the nursing care plan of a 49-year-old man with a diagnosis of bacterial intoxication caused by Clostridium botulinum, secondary to ingestion of beans in poor condition, who was admitted to the ICU for a total of 35 days...
December 22, 2017: Enfermería Intensiva
https://www.readbyqxmd.com/read/29249514/effect-of-epilepsy-on-families-communities-and-society
#8
Adam P Ostendorf, Satyanarayana Gedela
The effect of epilepsy extends beyond those with the diagnosis and impacts families, communities and society. Caregiver and sibling quality of life is often negatively affected by frequent seizures, comorbid behavioral and sleep disorders and stigma surrounding the diagnosis. Furthermore, the negative effects can be magnified by individual coping styles and resources available to families of those with epilepsy. Beyond the family and immediate caregivers, epilepsy affects local communities by drawing additional resources from education systems...
November 2017: Seminars in Pediatric Neurology
https://www.readbyqxmd.com/read/29248967/species-a-rotaviruses-isolated-from-hospitalized-patients-over-5%C3%A2-years-of-age-in-kolkata-india-in-2012-13
#9
Mukti Kant Nayak, Papiya De, Byomkesh Manna, Shanta Dutta, Uchhal Kumar Bhadra, Mamta Chawla-Sarkar
In hospital-based diarrhoeal disease surveillance at Infectious Diseases & Beliaghata-General Hospital (May-2012 to April-2013), Kolkata, India, stool samples were collected from patients < 5 years (n = 830) and > 5 years of age (n = 728) hospitalized with diarrhea. Group-A rotavirus (GARV) was identified by ELISA followed by multiplex RT-PCR. In children < 5 years of age, 53.4% of the samples were positive for GARV. In patients > 5 years to 90 years old, only 6.04% (n = 44) tested positive for GARV...
December 16, 2017: Archives of Virology
https://www.readbyqxmd.com/read/29240304/weight-status-diet-quality-perceived-stress-and-functional-health-of-caregivers-of-children-with-autism-spectrum-disorder
#10
Xiaoyin Sara Li, Jennifer A Pinto-Martin, Aleda Thompson, Jesse Chittams, Tanja V E Kral
PURPOSE: Caring for children with autism spectrum disorder (ASD) can be highly demanding and can put significant strain on caregivers. To date, little is known about the extent to which caregivers of children with ASD experience increased levels of stress which may adversely affect health outcomes. The purpose of this secondary analysis was to compare caregivers of children with ASD and caregivers of typically developing children (TDC) in weight status, diet quality, perceived stress related to the parenting role, and functional health and well-being...
December 14, 2017: Journal for Specialists in Pediatric Nursing: JSPN
https://www.readbyqxmd.com/read/29238216/improved-health-related-quality-of-life-participation-and-autonomy-in-patients-with-treatment-resistant-chronic-pain-after-an-intensive-social-cognitive-intervention-with-the-participation-of-support-partners
#11
Peter Joseph Jongen, Rob P Ruimschotel, Y M Museler-Kreijns, Tmc Dragstra, L Duyverman, J Valkenburg-Vissers, J Cornelissen, R Lagrand, Rogier Donders, A Hartog
Despite the availability of various specific treatments, most patients with chronic pain (CP) consider their pain problem as undertreated. Recently, multiple sclerosis (MS) patients who were given an intensive 3-day social cognitive treatment with the participation of support partners experienced lasting improvements in health-related quality of life (HRQoL) and self-efficacy. In this study, a similar intervention was given to treatment-resistant CP patients with stressors, relational problems with support partner, and distress, anxiety or depression...
2017: Journal of Pain Research
https://www.readbyqxmd.com/read/29236217/the-association-between-medical-diagnosis-and-caregiver-burden-a-cross-sectional-study-of-recipients-of-informal-support-and-caregivers-from-the-general-population-study-good-aging-in-sk%C3%A3-ne-sweden
#12
Sölve Elmståhl, Beth Dahlrup, Henrik Ekström, Eva Nordell
BACKGROUND: Different kinds of chronic diseases might imply different dimensions of caregiver burden, not previously described among the caregivers to recipients from the general elder population. AIM: The main objective was to examine differences in burden between the 343 caregivers to persons with different diagnoses. METHODS: A group of elderly recipients of informal care (n = 343) from the general population study 'Good Aging in Skåne' (GÅS) Sweden, were divided into five diagnostic groups: dementia (n = 90), heart and lung diseases (n = 48), stroke (n = 62), fractures (n = 66), depression (n = 40) and the group "other", consisting of different diagnoses (n = 37) according to ICD-10...
December 13, 2017: Aging Clinical and Experimental Research
https://www.readbyqxmd.com/read/29222741/exploratory-study-of-barriers-to-successful-office-contacts-for-attention-deficit-hyperactivity-disorder
#13
Jayde T Hooven, Benjamin N Fogel, James G Waxmonsky, Deepa L Sekhar
The American Academy of Pediatrics published attention deficit hyperactivity disorder (ADHD) guidelines, but significant variability exists in care. This exploratory study aimed to understand barriers to compliance with primary care office contacts for ADHD medication management. The study was conducted at a single academic medical center via retrospective chart review between 6/1/15 and 5/31/16 in combination with telephone interviews. Participants included 306 children 6-12 years old with an ADHD-related ICD-9/ICD-10 diagnosis...
December 8, 2017: Attention Deficit and Hyperactivity Disorders
https://www.readbyqxmd.com/read/29221493/caring-for-a-cerebral-palsy-child-a-caregivers-perspective-at-the-university-teaching-hospital-zambia
#14
Brian Chanda Chiluba, Geoffrey Moyo
BACKGROUND: Cerebral palsy is a major cause of disability and most survivors are left with residual disability and are dependent on parents/caregivers for essential care. This study aimed to determine the experiences of parents/caregivers of cerebral palsy children receiving out-patient physiotherapy. A concurrent mixed methods was used to collect data in the present study. The modified caregiver strain index (MCSI-13) was used to detect Disturbed sleep, Inconvenient/Tiresome, Physical strain, Confining, Family changes, Changes in personal plan, Other demands, Emotional adjustments, Upsetting behavior, Patient has changed, Work adjustments, Financial Strain and Feeling Overwhelmed (strain morbidity) in 25 parents/caregivers of CP children...
December 8, 2017: BMC Research Notes
https://www.readbyqxmd.com/read/29204426/burden-among-family-caregivers-of-dementia-in-the-oldest-old-an-exploratory-study
#15
Khin Khin Win, Mei Sian Chong, Noorhazlina Ali, Mark Chan, Wee Shiong Lim
Background: With >85 years, the fastest growing age segment in developed countries, dementia in the oldest-old is projected to increase exponentially. Being older, caregivers of dementia in oldest-old (CDOO) may experience unique challenges compared with younger-age groups. Thus, we aim to explore demographic characteristics and burden pattern among CDOO. Methods: We studied 458 family caregiver-patient dyads attending an outpatient memory clinic. We classified patients into three age-groups: <75, 75-84, and ≥85 years...
2017: Frontiers in Medicine
https://www.readbyqxmd.com/read/29199890/application-of-magnetic-resonance-spectroscopy-in-geriatric-mood-disorders
#16
Liana K Mathias, Patrick J Monette, David G Harper, Brent P Forester
The prevalence of mood disorders in the rapidly-growing older adult population merits attention due to the likelihood of increased medical comorbidities, risk of hospitalization or institutionalization, and strains placed on caregivers and healthcare providers. Magnetic resonance spectroscopy (MRS) quantifies biochemical compounds in vivo, and has been used specifically for analyses of neural metabolism and bioenergetics in older adults with mood disorders, usually via proton or phosphorous spectroscopy. While yet to be clinically implemented, data gathered from research subjects may help indicate potential biomarkers of disease state or trait or putative drug targets...
December 4, 2017: International Review of Psychiatry
https://www.readbyqxmd.com/read/29196580/sex-disparities-in-access-to-caregiving-in-parkinson-disease
#17
Nabila Dahodwala, Krunal Shah, Ying He, Samuel S Wu, Peter Schmidt, Fernando Cubillos, Allison W Willis
OBJECTIVE: To compare access to caregiving between men and women with Parkinson disease (PD). METHODS: This was a cross-sectional and longitudinal study among participants with PD enrolled in the National Parkinson Foundation Parkinson's Outcomes Project from 2009 to 2014 at 21 international sites. The primary outcome measures were presence of a caregiver at the baseline visit, caregiver burden as measured by the Multidimensional Caregiver Strain Index (MCSI) at baseline, and time to first paid caregiver...
December 1, 2017: Neurology
https://www.readbyqxmd.com/read/29187141/experiences-and-needs-of-carers-of-aboriginal-children-with-a-disability-a-qualitative-study
#18
Michelle DiGiacomo, Anna Green, Patricia Delaney, John Delaney, Patrick Patradoon-Ho, Patricia Mary Davidson, Penelope Abbott
BACKGROUND: Australian parents/carers of a person with a disability experience higher rates of depression, more financial stress, and are twice as likely to be in poor physical health than the general population. Aboriginal and Torres Strait Islander peoples experience worse health, social and economic outcomes than other Australians, and those with a disability face 'double disadvantage'. This study aimed to better understand the experiences and needs of parents/carers/families of Aboriginal children with a disability...
November 29, 2017: BMC Family Practice
https://www.readbyqxmd.com/read/29184350/female-caregivers-and-stroke-severity-determines-caregiver-stress-in-stroke-patients
#19
Bindu Menon, P Salini, K Habeeba, Jyoti Conjeevaram, K Munisusmitha
Background: Stroke is among the major causes of short- and long-term disability. This study aimed to understand the caregivers (CGs) stress in stroke survivors. Materials and Methods: A 22-item questionnaire was administered to 201 CGs of stroke survivors. The variables tested were physical and mental health, social support, financial, and personal problems. CGs were divided into Group A (Barthel index [BI] <75) and B (BI >75) according to patient's BI, according to gender (male and female CG) and relation; spouses (wife, husband), daughters, sons, daughter-in-law, grandchildren, and rest (father, mother, brother, sister, and in-laws)...
October 2017: Annals of Indian Academy of Neurology
https://www.readbyqxmd.com/read/29174275/-sense-of-coherence-and-subjective-overload-anxiety-and-depression-in-caregivers-of-elderly-relatives
#20
Catalina López-Martínez, Antonio Frías-Osuna, Rafael Del-Pino-Casado
OBJECTIVE: To analyze the relationship between the sense of coherence and subjective overload, anxiety and depression in caregivers of dependent elderly relatives. METHOD: Cross-sectional study in an area of the province of Jaén (Andalusia, Spain) with a probabilistic sample of 132 caregivers of dependent elderly. MAIN MEASURES: sense of coherence (Life Orientation Questionnaire), subjective burden (Caregiver Strain Index), anxiety and depression (Goldberg Scale), objective burden (Dedication to Care Scale), sex and kinship...
November 23, 2017: Gaceta Sanitaria
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