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https://www.readbyqxmd.com/read/29166125/rural-urban-differences-in-unpaid-caregivers-of-adults
#1
Elizabeth Crouch, Janice Probst, Kevin Bennett
INTRODUCTION:   Rural–urban differences in the characteristics of unpaid caregivers of adults in the USA were explored. METHODS:   Using 'Caregiving in the U.S. 2015', a survey fielded by the National Alliance for Caregiving and AARP, a national examination of rural caregivers (n=1352) is presented. RESULTS:   Rural caregivers reported lower socioeconomic status than urban caregivers (measured by income, education, and employment), suggesting greater likelihood of caregiver strain...
November 2017: Rural and Remote Health
https://www.readbyqxmd.com/read/29165000/building-better-caregivers-a-pragmatic-12-month-trial-of-a-community-based-workshop-for-caregivers-of-cognitively-impaired-adults
#2
Kate Lorig, Philip L Ritter, Diana D Laurent, Veronica Yank
Building Better Caregivers (BBC), a community 6-week, peer-led intervention, targets family caregivers of those with cognitive impairments. BBC was implemented in four geographically scattered areas. Self-report data were collected at baseline, 6 months, and 1 year. Primary outcome were caregiver strain and depression. Secondary outcomes included caregiver burden, stress, fatigue, pain, sleep, self-rated health, exercise, self-efficacy, and caregiver and care partner health care utilization. Paired t tests examined 6 month and 1-year improvements...
November 1, 2017: Journal of Applied Gerontology: the Official Journal of the Southern Gerontological Society
https://www.readbyqxmd.com/read/29138193/stoic-beliefs-and-health-development-and-preliminary-validation-of-the-pathak-wieten-stoicism-ideology-scale
#3
Elizabeth B Pathak, Sarah E Wieten, Christopher W Wheldon
INTRODUCTION: We developed and validated a new parsimonious scale to measure stoic beliefs. Key domains of stoicism are imperviousness to strong emotions, indifference to death, taciturnity and self-sufficiency. In the context of illness and disease, a personal ideology of stoicism may create an internal resistance to objective needs, which can lead to negative consequences. Stoicism has been linked to help-seeking delays, inadequate pain treatment, caregiver strain and suicide after economic stress...
November 14, 2017: BMJ Open
https://www.readbyqxmd.com/read/29125784/identifying-the-population-with-serious-illness-the-denominator-challenge
#4
Amy S Kelley, Evan Bollens-Lund
BACKGROUND: To ensure seriously ill people and their families receive high-quality primary and specialty palliative care services, rigorous methods are needed to prospectively identify this population. OBJECTIVE: To define and operationalize a definition of serious illness for the purpose of identifying patients and caregivers who need primary or specialty palliative care services. DESIGN/SETTING: Two stages of work included (1) building expert consensus around a conceptual definition of serious illness and (2) using the National Health and Aging Trends Study linked to Medicare claims data to test a range of operational definitions composed of diagnoses, utilization, and markers of care needs...
November 10, 2017: Journal of Palliative Medicine
https://www.readbyqxmd.com/read/29125677/a-dyadic-analysis-of-stress-processes-in-latinas-with-breast-cancer-and-their-family-caregivers
#5
Chris Segrin, Terry A Badger, Alla Sikorskii, Tracy E Crane, Thaddeus W W Pace
OBJECTIVE: Breast cancer diagnosis and treatment negatively affect quality of life for survivors and their family caregivers. The stress process model has been useful for describing the cascade of social and psychological experiences that culminate in degraded quality of life for both survivors and their family caregivers. This study is designed to test theoretically specified predictors of negative psychosocial outcomes in a dyadic context. METHOD: Participants were 230 dyads comprised of Latinas recently diagnosed with breast cancer and their primary family caregiver, who completed measures of socioeconomic status, stress, family conflict, depression, and anxiety...
November 10, 2017: Psycho-oncology
https://www.readbyqxmd.com/read/29115922/the-prevalence-of-dementia-in-a-portuguese-community-sample-a-10-66-dementia-research-group-study
#6
Manuel Gonçalves-Pereira, Ana Cardoso, Ana Verdelho, Joaquim Alves da Silva, Manuel Caldas de Almeida, Alexandra Fernandes, Cátia Raminhos, Cleusa P Ferri, A Matthew Prina, Martin Prince, Miguel Xavier
BACKGROUND: Dementia imposes a high burden of disease worldwide. Recent epidemiological studies in European community samples are scarce. In Portugal, community prevalence data is very limited. The 10/66 Dementia Research Group (DRG) population-based research programmes are focused in low and middle income countries, where the assessments proved to be culture and education fair. We applied the 10/66 DRG prevalence survey methodology in Portugal, where levels of illiteracy in older populations are still high...
November 7, 2017: BMC Geriatrics
https://www.readbyqxmd.com/read/29076036/caregiver-burden-varies-by-sensory-subtypes-and-sensory-dimension-scores-of-children-with-autism
#7
Brittany N Hand, Alison E Lane, Paul De Boeck, D Michele Basso, Deborah S Nichols-Larsen, Amy R Darragh
Understanding characteristics associated with burden in caregivers of children with autism spectrum disorder (ASD) is critical due to negative health consequences. We explored the association between child sensory subtype, sensory dimension scores, and caregiver burden. A national survey of caregivers of children with ASD aged 5-13 years was conducted (n = 367). The relationship between variables of interest and indicators of caregiver burden, including health-related quality of life (HRQOL) and caregiver strain, was examined with canonical correlation analyses...
October 26, 2017: Journal of Autism and Developmental Disorders
https://www.readbyqxmd.com/read/29061630/biopsychosocial-intervention-for-stroke-carers-bisc-protocol-for-a-feasibility-randomised-controlled-trial-rct
#8
Marion F Walker, Shirley A Thomas, Phillip J Whitehead, Laura Condon, Rebecca J Fisher, Eirini Kontou, Penny Benford, Christine Cobley
INTRODUCTION: Reducing length of hospital stay for stroke survivors often creates a shift in the responsibility of care towards informal carers. Adjustment to the caregiving process is experienced by many carers as overwhelming, complex and demanding and can have a detrimental impact on mental and physical health and well-being. National policy guidelines recommend that carers' needs are considered and addressed; despite this, few interventions have been developed and empirically evaluated...
October 22, 2017: BMJ Open
https://www.readbyqxmd.com/read/29061421/examining-the-psychometric-properties-of-the-hindi-version-of-family-accommodation-scale-self-report-fas-sr
#9
Ananya Mahapatra, Rishi Gupta, Kuppili Pooja Patnaik, Raman Deep Pattanaik, Sudhir Kumar Khandelwal
CONTEXT: Family accommodation (FA) is the phenomenon whereby caregivers assist or facilitate rituals or behaviours related to obsessive compulsive disorder (OCD). There is a need for a self-rated instrument to assess this construct in resource-strained clinical settings of India. AIM: To explore the factor structure of Hindi version of Family Accommodation Scale-Self Rated version (FAS-SR) and compare its validity with the gold standard Family Accommodation Scale-Interviewer Rated (FAS-IR) scale...
October 2017: Asian Journal of Psychiatry
https://www.readbyqxmd.com/read/29048234/parent-education-for-young-children-with-autism-and-disruptive-behavior-response-to-active-control-treatment
#10
Jessica Bradshaw, Karen Bearss, Courtney McCracken, Tristram Smith, Cynthia Johnson, Luc Lecavalier, Naomi Swiezy, Lawrence Scahill
This study examines parent and child characteristics in young children with autism spectrum disorder and disruptive behavior who showed a positive response to a parent education program in a randomized clinical trial of parent training. Children with autism spectrum disorder (N = 180) were randomized to parent training (PT) or parent education program (PEP) for 6 months. Using the Clinical Global Impression-Improvement scale, masked independent evaluators rated positive response in 68.5% of children in PT compared to 39...
October 19, 2017: Journal of Clinical Child and Adolescent Psychology
https://www.readbyqxmd.com/read/29038725/caregiving-burden-of-children-with-chronic-diseases
#11
Pegah Piran, Zahra Khademi, Narges Tayari, Nafise Mansouri
BACKGROUND: The care demands of children with chronic diseases can affect caregivers' health by imposing caregiving burden to them. The health status of caregivers plays a vital role in the quality of care provided to such children and in their quality of life. OBJECTIVE: To determine caregiving burden in caregivers and to identify relevant influential factors. METHODS: In this cross-sectional study, a total number of 249 caregivers of children with chronic diseases who referred to hospitalization and ambulatory departments of Bandar Abbas, Iran in 2016 were selected using convenience sampling method...
September 2017: Electronic Physician
https://www.readbyqxmd.com/read/29037271/trajectories-of-caregiver-burden-in-families-of-adult-cystic-fibrosis-patients
#12
Ann Wojtaszczyk, Myra Glajchen, Russell K Portenoy, Maria Berdella, Patricia Walker, Malcolm Barrett, Jack Chen, Amy Plachta, Julie Balzano, Ashley Fresenius, Kenya Wilder, Elinor Langfelder-Schwind, Lara Dhingra
OBJECTIVES: Little is known about the experience of family caregivers of adults with cystic fibrosis (CF). This information is important for the identification of caregivers at risk for burden. METHODS: This was a longitudinal analysis of survey data obtained from caregivers of adult CF patients participating in an early intervention palliative care trial. Caregivers completed the validated Brief Assessment Scale for Caregivers (BASC) repeatedly over a 28-month period...
October 17, 2017: Palliative & Supportive Care
https://www.readbyqxmd.com/read/29037072/high-perceived-caregiver-burden-for-relatives-of-patients-following-hip-fracture-surgery
#13
Patrocinio Ariza-Vega, Mariana Ortiz-Piña, Morten Tange Kristensen, Yolanda Castellote-Caballero, José Juan Jiménez-Moleón
PURPOSE: To determine the profile of the main informal caregivers, the evolution of the caregiver burden, and the influencing factors of caregiver burden at 1-year after hip fracture surgery. METHODS: In this prospective cohort study, a total of 172 informal caregivers of patients were interviewed at four points during 1 year following hip fracture surgery in a regional hospital in southern Spain. The perceived caregiver burden was assessed using the Caregiver Strain Index (0-13 points)...
October 16, 2017: Disability and Rehabilitation
https://www.readbyqxmd.com/read/29036228/factors-associated-to-acceptable-treatment-adherence-among-children-with-chronic-kidney-disease-in-guatemala
#14
Brooke M Ramay, Alejandro Cerón, Luis Pablo Méndez-Alburez, Randall Lou-Meda
Pediatric patients with Chronic Kidney Disease face several barriers to medication adherence that, if addressed, may improve clinical care outcomes. A cross sectional questionnaire was administered in the Foundation for Children with Kidney Disease (FUNDANIER, Guatemala City) from September of 2015 to April of 2016 to identify the predisposing factors, enabling factors and need factors related to medication adherence. Sample size was calculated using simple random sampling with a confidence level of 95%, confidence interval of 0...
2017: PloS One
https://www.readbyqxmd.com/read/29025365/patient-reported-outcomes-of-hand-function-three-years-after-stroke
#15
Henk Arwert, Selma Schut, Jelis Boiten, Thea Vliet Vlieland, Jorit Meesters
OBJECTIVE: To comprehensively describe hand function and associated factors among stroke survivors by means of the Michigan Hand Outcomes Questionnaire (MHQ; 6 domains; score 0-100, worst-best). METHODS: In this cross-sectional study, stroke patients were invited to complete a set of questionnaires on hand function, socio-demographic characteristics, mental functioning, daily activities, quality of life, and caregiver strain. Stroke characteristics were collected retrospectively from medical records...
October 12, 2017: Topics in Stroke Rehabilitation
https://www.readbyqxmd.com/read/29017453/positive-and-negative-outcomes-of-informal-caregiving-at-home-and-in-institutionalised-long-term-care-a-cross-sectional-study
#16
Silke F Metzelthin, Ellen Verbakel, Marja Y Veenstra, Job van Exel, Antonius W Ambergen, Gertrudis I J M Kempen
BACKGROUND: Our ageing society is putting tremendous strain on public health and welfare programs to meet the needs of ageing individuals. Promoting informal caregiving is one way for policymakers to reduce this burden. However, caregiving may be experienced as stressful and is associated with adverse health consequences. While quite a lot of research focuses on caregiving for community-dwelling older adults, little is known about informal care in institutionalised long-term care (ILTC)...
October 10, 2017: BMC Geriatrics
https://www.readbyqxmd.com/read/29016420/prevention-strategies-in-post-tbi-depression-in-older-adults-a-case-study
#17
Esther Bay, Anne Marie Garbinski, Susan E Maycock
PURPOSE: The purpose of this study was to describe a theoretically focused intervention aimed toward chronic stress and depressive symptom management that is coordinated by a case manager and delivered within a home environment by the caregiver. PRIMARY PRACTICE SETTING: Home care, community setting. METHODS: A case study of an older adult with traumatic brain injury (TBI) secondary to a fall who had significant allostatic load at the time of his injury...
November 2017: Professional Case Management
https://www.readbyqxmd.com/read/28990875/stress-buffering-effect-of-coping-strategies-on-interrole-conflict-among-family-caregivers-of-people-with-dementia
#18
Hiroshi Morimoto, Nobuo Furuta, Mitsue Kono, Mayumi Kabeya
OBJECTIVES: To examine the stress-buffering effect of coping strategies on the adverse effects of interrole conflict on the mental health of employed family caregivers, and clarify the moderating role of attentional control on this stress-buffering effect. METHODS: Data were drawn from a two-wave longitudinal online survey of employed Japanese family caregivers of people with dementia (263 males, 116 females; age 51.54 ± 9.07 years). We assessed interrole conflict, coping strategies, attentional control, mental health variables (psychological strain and quality of life), and confounding factors...
August 23, 2017: Clinical Gerontologist
https://www.readbyqxmd.com/read/28989982/an-exploration-into-caring-for-a-stroke-survivor-in-lima-peru-emotional-impact-stress-factors-coping-mechanisms-and-unmet-needs-of-informal-caregivers
#19
M Amalia Pesantes, Lena R Brandt, Alessandra Ipince, J Jaime Miranda, Francisco Diez-Canseco
INTRODUCTION: Understanding local complexities and challenges of stroke-related caregiving are essential to develop appropriate interventions. Our study aimed to characterize the impact of post-stroke care among caregivers in a setting of transitioning economy. MATERIALS AND METHODS: Qualitative study based on in-depth interviews with primary caregivers of stroke survivors in Lima, Peru. Transcribed data was organized into the emotional impact of caregiving, main stress factors and coping mechanisms to deal with the caregiving role, as well as the unmet needs of caregivers...
March 2017: ENeurologicalSci
https://www.readbyqxmd.com/read/28988339/teaching-parents-behavioral-strategies-for-autism-spectrum-disorder-asd-effects-on-stress-strain-and-competence
#20
Suzannah Iadarola, Lynne Levato, Bryan Harrison, Tristram Smith, Luc Lecavalier, Cynthia Johnson, Naomi Swiezy, Karen Bearss, Lawrence Scahill
We report on parent outcomes from a randomized clinical trial of parent training (PT) versus psychoeducation (PEP) in 180 children with autism spectrum disorder (ASD) and disruptive behavior. We compare the impact of PT and PEP on parent outcomes: Parenting Stress Index (PSI), Parent Sense of Competence (PSOC), and Caregiver Strain Questionnaire (CGSQ). Mixed-effects linear models evaluated differences at weeks 12 and 24, controlling for baseline scores. Parents in PT reported greater improvement than PEP on the PSOC (ES = 0...
October 7, 2017: Journal of Autism and Developmental Disorders
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