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carer strain in dementia

Catharine Jenkins, Gerald Feldman
AIMS AND OBJECTIVES: The aim of the study was to identify pre-clinical signs of dementia by exploring the experiences of family care-givers and professional care assistants. BACKGROUND: Dementia results in disability, emotional strain and financial loss for people with dementia, family members and nations. Informal identification of social and behavioural risk signifiers could facilitate timely interventions with potential to delay onset of serious disability. DESIGN: A retrospective qualitative approach using a naturalistic interpretive design was used...
March 1, 2018: Journal of Clinical Nursing
Despina Laparidou, Jo Middlemass, Terence Karran, A Niroshan Siriwardena
Background There are an estimated 46.8 million people worldwide living with dementia in 2015, being cared for usually by family members or friends (informal caregivers). The challenges faced by informal caregivers often lead to increased levels of stress, burden and risk of care-recipient institutionalisation. Aim The overarching aim of this study was to explore the experiences and perceptions of informal caregivers of people with dementia when interacting with the health care system, and whether the support received acted as a mediator of caregiver stress...
January 1, 2018: Dementia
Carole Mockford, Kate Seers, Matt Murray, Jan Oyebode, Rosemary Clarke, Sophie Staniszewska, Rashida Suleman, Sue Boex, Yvonne Diment, Richard Grant, Jim Leach, Uma Sharma
BACKGROUND: Health and social care services are under strain providing care in the community particularly at hospital discharge. Patient and carer experiences can inform and shape services. OBJECTIVE: To develop service user-led recommendations enabling smooth transition for people living with memory loss from acute hospital to community. DESIGN: Lead and co-researchers conducted semi-structured interviews with 15 pairs of carers and patients with memory loss at discharge, 6 and 12 weeks post-discharge and one semi-structured interview with health and social care professionals and Admiral Nurses...
June 2017: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
Goiz-Eder Aspe Juaristi, Karen Harrison Dening
Dementia is a neurodegenerative disorder that can have a severe effect on the quality of life of individuals with the condition, and can place considerable strain on informal carers and healthcare systems. Research is required to identify ways to prevent or delay the onset of dementia. The government is committed to dementia research, yet funding for dementia research is eclipsed by funding for research into other conditions. Moreover, dementia research can only progress if individuals with the condition participate in research studies...
May 25, 2016: Nursing Standard
Christine Baker, Peter Huxley, Michael Dennis, Saiful Islam, Ian Russell
BACKGROUND: There has been continuing change in the nature of care homes in the UK with 80 % of residents now living with some form of dementia or memory problem. Caring in this environment can be complex, challenging and stressful for staff; this can affect the quality of care provided to residents, lead to staff strain and burnout, and increase sickness, absence and turnover rates. It is therefore important to find interventions to increase the wellbeing of staff that will not only benefit staff themselves but also residents and care providers...
2015: BMC Psychiatry
Vasiliki Orgeta, Martin Orrell, Rhiannon Tudor Edwards, Barry Hounsome, Bob Woods
CONTEXT: Although pain is frequent in people with dementia (PwD), evidence on the prevalence and factors influencing ratings of pain in dementia is limited. Carer variables are often associated with bias in proxy ratings of pain, but few studies have examined the role of caregiver pain in influencing these ratings. OBJECTIVES: This study explored the prevalence of pain in PwD in a large U.K. SAMPLE: A secondary aim was to identify factors influencing ratings of pain in people with mild to moderate dementia and whether carer pain systematically influences proxy ratings...
June 2015: Journal of Pain and Symptom Management
C L Dotchin, S-M Paddick, A R Longdon, A Kisoli, W K Gray, F Dewhurst, P Chaote, M Dewhurst, R W Walker
BACKGROUND: Caregiver burden includes the many physical, mental and socio-economic problems arising from caring for individuals with chronic and disabling diseases. Being a carer in sub-Saharan Africa (SSA), where little is known about chronic neurological conditions, may be extremely demanding. Conversely, multigenerational living may allow sharing of care among many caregivers. We wished to determine the relative burden of caring for two chronic neurodegenerative conditions (Parkinson's disease (PD) and dementia) in rural Tanzania...
April 2014: International Psychogeriatrics
Mary Chiu, Virginia Wesson, Joel Sadavoy
AIM: To study the effectiveness of Reitman Centre "Coaching, Advocacy, Respite, Education, Relationship, and Simulation" (CARERS) program, which uses problem-solving techniques and simulation to train informal dementia carers. METHODS: Seventy-three carers for family members with dementia were included in the pilot study. Pre- and post-intervention data were collected from carers using validated measures of depression, mastery, role captivity and overload, caregiving competence and burden, and coping styles...
September 22, 2013: World Journal of Psychiatry
Rosie Harding, Elizabeth Peel
This paper explores the legal position of the off-label prescription of antipsychotic medications to people with dementia who experience behavioural and psychological symptoms of dementia (BPSD). Dementia is a challenging illness, and BPSD can be very difficult for carers to manage, with evidence that this contributes to carer strain and can result in the early institutionalisation of people with dementia. As a result, the prescription of antipsychotic and other neuroleptic medications to treat BPSD has become commonplace, in spite of these drugs being untested and unlicensed for use to treat older people with dementia...
March 2013: Medical Law Review
Veslemøy Egede-Nissen, Rita Jakobsen, Gerd S Sellevold, Venke Sørlie
The purpose of this study was to explore situations experienced by 12 health-care providers working in two nursing homes. Individual interviews, using a narrative approach, were conducted. A phenomenological-hermeneutical method, developed for researching life experiences, was applied in the analysis. The findings showed that good care situations are experienced when the time culture is flexible, the carers act in a sovereign time rhythm, not mentioning clock time or time as a stress factor. The results are discussed in terms of anthropological and sociological theory: time as event and action and flexible time cultures...
February 2013: Nursing Ethics
Martin Prince, Henry Brodaty, Richard Uwakwe, Daisy Acosta, Cleusa P Ferri, Mariella Guerra, Yueqin Huang, K S Jacob, Juan J Llibre Rodriguez, Aquiles Salas, Ana Luisa Sosa, Joseph D Williams, A T Jotheeswaran, Zhaorui Liu
OBJECTIVES: In a multi-site population-based study in several middle-income countries, we aimed to investigate relative contributions of care arrangements and characteristics of carers and care recipients to strain among carers of people with dementia. Based on previous research, hypotheses focused on carer sex, care inputs, behavioural and psychological symptoms (BPSD) and socioeconomic status, together with potential buffering effects of informal support and employing paid carers. METHODS: In population-based catchment area surveys in 11 sites in Latin America, India and China, we analysed data collected from people with dementia and care needs, and their carers...
July 2012: International Journal of Geriatric Psychiatry
W C Chan, C Ng, C C M Mok, F L F Wong, S L Pang, H F K Chiu
OBJECTIVES: To report the lived experience of caregivers of persons with dementia in Hong Kong, and to explore their service needs. METHODS: This was a qualitative study of caregivers of persons with dementia. Four focus group interviews, each group comprising 6 to 7 informal caregivers, were conducted. A total of 27 participants were recruited. With the participants' consent, interviews were audiotaped and transcribed verbatim. Colaizzi's methods for phenomenological analysis were used...
December 2010: East Asian Archives of Psychiatry: Official Journal of the Hong Kong College of Psychiatrists
Rowan H Harwood, Sarah E Goldberg, Kathy H Whittamore, Catherine Russell, John Rf Gladman, Rob G Jones, Davina Porock, Sarah A Lewis, Lucy E Bradshaw, Rachel A Elliot
BACKGROUND: Patients with delirium and dementia admitted to general hospitals have poor outcomes, and their carers report poor experiences. We developed an acute geriatric medical ward into a specialist Medical and Mental Health Unit over an eighteen month period. Additional specialist mental health staff were employed, other staff were trained in the 'person-centred' dementia care approach, a programme of meaningful activity was devised, the environment adapted to the needs of people with cognitive impairment, and attention given to communication with family carers...
May 13, 2011: Trials
Martin J Prince
Well-designed epidemiological research is relatively lacking in low and middle income countries where two-thirds of the world's estimated 24 million people with dementia live. The 10/66 Dementia Research Group has sought since 1998 to redress this imbalance. Pilot studies to develop and validate dementia diagnostic measures and study care arrangements in 26 centers worldwide were followed by one phase cross-sectional catchment area surveys in eight Latin American countries, China, India, Nigeria and South Africa...
January 2009: Indian Journal of Psychiatry
Ann-Marie Rydholm Hedman, Lars Strömberg, Margareta Grafström, Kristiina Heikkilä
BACKGROUND: Many patients with hip fractures suffer from dementia disease, which has shown to affect the outcome of recovery strongly, as well as care and treatment. As most hip fracture patients are discharged home early after surgery, caregiving often falls on family members - spouses, daughters, sons, or even neighbours become informal carers. AIM: To explore how hip fracture patients' cognitive state affect family members' experiences during the recovery period...
September 2011: Scandinavian Journal of Caring Sciences
Linda Clare, David E J Linden, Robert T Woods, Rhiannon Whitaker, Suzannah J Evans, Caroline H Parkinson, Jorien van Paasschen, Sharon M Nelis, Zoe Hoare, Kenneth S L Yuen, Michael D Rugg
OBJECTIVES: To provide evidence regarding the clinical efficacy of cognitive rehabilitation (CR) in early-stage Alzheimer disease (AD). DESIGN: Single-blind randomized controlled trial comparing CR with relaxation therapy and no treatment. SETTING: Outpatient, community-based setting. PARTICIPANTS: Sixty-nine individuals (41 women, 28 men; mean age 77.78 years, standard deviation 6.32, range = 56-89) with a diagnosis of AD or mixed AD and vascular dementia and a Mini-Mental State Examination score of 18 or above, and receiving a stable dose of acetylcholinesterase-inhibiting medication...
October 2010: American Journal of Geriatric Psychiatry
Mariella Guerra, Cleusa P Ferri, Magaly Fonseca, Sube Banerjee, Martin Prince
OBJECTIVE: There is a need, in the absence of formal services, to design interventions aimed at improving the lives of people with dementia and their families. This study tested the effectiveness of the 10/66 caregiver intervention among people with dementia and their caregivers in Lima, Peru. METHOD: HASH(0x4864f28) DESIGN/PARTICIPANTS: a randomized controlled trial was performed involving 58 caregivers of people with dementia that received the intervention in the beginning of the trial (n = 29) or six months later (n = 29)...
March 2011: Revista Brasileira de Psiquiatria
Kevin L Baker, Noelle Robertson, David Connelly
Over the last three decades, demographic changes in the developed world have meant more older men find themselves in caregiving roles. Little research has been undertaken with male caregivers in dementia care. Although there is general consensus that men construe care differently to women, gender has seldom been treated as an independent variable that can inform supportive interventions. This study, underpinned by an assumption of the benefits of men's differential response to managing illness, sought to explore how facets of masculinity might relate to male caregivers' appraisals of strain and gain in dementia care...
April 2010: Aging & Mental Health
Steve Iliffe, Jane Wilcock, Mark Griffin, Priya Jain, Ingela Thuné-Boyle, Tamar Koch, Frances Lefford
BACKGROUND: The National Dementia Strategy seeks to enhance general practitioners' diagnostic and management skills in dementia. Early diagnosis in dementia within primary care is important as this allows those with dementia and their family care networks to engage with support services and plan for the future. There is, however, evidence that dementia remains under-detected and sub-optimally managed in general practice. An earlier unblinded, cluster randomised controlled study tested the effectiveness of educational interventions in improving detection rates and management of dementia in primary care...
February 10, 2010: Trials
Wendy E Ward, Kunle A Ashaye
Alzheimer's dementia is one of the most commost mental health disorders associated with aging. In its earlier stages sufferers live independently but gradually rely increasingly on loved ones or formal carers for support as the illness progresses. Its treatment involves both medical and social care. This study assesses the impact of outpatients' care and cholinesterase inhibitors in patients being treated for Alzheimer's dementia. The needs and quality of life of patients attending an outpatients dementia care service were assessed using the Camberwell Assessment of Need for the Elderly (CANE) and Quality of Life in Alzheimer's Disease: Patient and Caregiver report...
July 2008: Current Aging Science
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