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https://www.readbyqxmd.com/read/28932296/genetic-diagnosis-of-chromosomal-congenital-anomalies-in-albanian-pediatric-patients-by-array-cgh
#1
Anila Babameto-Laku, Dorina Roko, Gentian Vyshka
AIM: The aim of our study was to identify chromosomal imbalances by whole-genome microarray-based comparative genomic hybridization (array CGH) in DNA samples of children in which karyotype results cannot be obtained. The present paper describes the first Albanian experience of an array CGH application. MATERIAL AND METHODS: The cohort included seven children with developmental delay or intellectual disability, facial dysmorphism and congenital anomalies according to clinical criteria, suggestive of chromosomal anomalies...
August 15, 2017: Open Access Macedonian Journal of Medical Sciences
https://www.readbyqxmd.com/read/28931434/long-term-outcome-of-autistic-spectrum-disorder-a-retrospective-case-study-in-a-southern-italian-region
#2
Francesca Felicia Operto, Federica Martino, Annalisa Rinaldi, Angelo Cerracchio, Giovanni Salvati, Mariano Orza, Claudia Lembo, Gianvito Panzarino, Claudia Di Paolantonio, Alberto Verrotti, Giovanni Farello, Giangennaro Coppola
BACKGROUND: Autism Spectrum Disorder (ASD) is a complex neurodevelopmental disorder, characterized by impaired social communication and restricted and repetitive behaviours, as well as associated features including intellectual disability and impaired sensorimotor function. Despite a growing interest in this devastating disorder for families and young parents, there are no certainties as regards its aetiology, although a significant genetic background is considered to be important. Since there is little information about the social adaptation and quality of life of patients with Autism Spectrum Disorder, we decided to study and evaluate the long-term outcome and quality of life in a sample of children, adolescent and young adults...
September 20, 2017: Italian Journal of Pediatrics
https://www.readbyqxmd.com/read/28929830/effects-of-a-collaborative-intervention-process-on-parent-empowerment-and-child-performance-a-randomized-controlled-trial
#3
Mihee An, Robert J Palisano, Chung-Hwi Yi, Lisa A Chiarello, Carl J Dunst, Edward J Gracely
AIMS: To examine the effects of a four-step collaborative intervention process on parent and child outcomes and describe parents' and therapists' experiences. METHODS: Eighteen children with physical disabilities, their mothers, and 16 physical therapists participated. Therapists randomized to the experimental group were instructed in the collaborative intervention process. All family-therapist dyads participated in six weekly sessions. Outcomes included the adapted Family Empowerment Scale (FES) and Canadian Occupational Performance Measure (COPM)...
September 20, 2017: Physical & Occupational Therapy in Pediatrics
https://www.readbyqxmd.com/read/28929296/foster-care-involvement-among-medicaid-enrolled-children-with-autism
#4
Zuleyha Cidav, Ming Xie, David S Mandell
The prevalence and risk of foster care involvement among children with autism spectrum disorder (ASD) relative to children with intellectual disability (ID), children with ASD and ID, and typically developing children were examined using 2001-2007 Medicaid data. Children were followed up to the first foster care placement or until the end of 2007; a discrete time logistic regression analysis was conducted. Both the prevalence and risk of foster care involvement were greatest for children with ASD, and the prevalence increased substantially over the study period among children with ASD...
September 19, 2017: Journal of Autism and Developmental Disorders
https://www.readbyqxmd.com/read/28927322/-it-s-important-that-we-learn-too-empowering-parents-to-facilitate-participation-in-physical-activity-for-children-and-youth-with-disabilities
#5
Claire E Willis, Siobhan Reid, Catherine Elliott, Astrid Nyquist, Reidun Jahnsen, Michael Rosenberg, Sonya Girdler
AIM: The actions and behaviors of parents have been identified as key factors that influence a child's participation in physical activity. However, there is limited knowledge of how parents can be supported to embody facilitative roles. This study aimed to explore how an ecological intervention encourages parents of children with disabilities to develop as facilitators, to enable ongoing physical activity participation in a child's local environment. METHODS: A qualitative design using grounded theory was employed...
September 20, 2017: Scandinavian Journal of Occupational Therapy
https://www.readbyqxmd.com/read/28927310/psychometric-evaluation-of-the-scandinavian-version-of-the-caregiver-priorities-and-child-health-index-of-life-with-disabilities
#6
Katina Pettersson, Kari Marte Bjerke, Reidun Jahnsen, John Öhrvik, Elisabet Rodby-Bousquet
PURPOSE: To examine test-retest reliability and construct validity of the Scandinavian version of the caregiver priorities and child health index of life with disabilities (CPCHILD) questionnaire for children with cerebral palsy (CP). METHODS: Families were recruited in Sweden and Norway and stratified according to the gross motor function classification system levels I-V for children born 2000-2011, mean age 7.9 (SD 3.2). Construct validity based on the first questionnaire (n = 106) was evaluated for known groups, using linear regression analysis...
September 19, 2017: Disability and Rehabilitation
https://www.readbyqxmd.com/read/28914735/palliative-care-in-neuromuscular-diseases
#7
Marianne de Visser, David J Oliver
PURPOSE OF REVIEW: Palliative care is an approach that improves the quality of life of patients and their families facing the problem associated with life-threatening illness. Neuromuscular disorders (NMDs) are characterized by progressive muscle weakness, leading to pronounced and incapacitating physical disabilities. Most NMDs are not amenable to curative treatment and would thus qualify for palliative care. Amyotrophic lateral sclerosis is a relentlessly progressive disease, which leads to death about 2 years after onset due to respiratory muscle weakness...
September 13, 2017: Current Opinion in Neurology
https://www.readbyqxmd.com/read/28889915/-every-child-that-is-a-foster-child-is-marked-from-the-beginning-the-home-school-communication-experiences-of-foster-parents-of-children-with-disabilities
#8
Carolyn B Mires, David L Lee, David McNaughton
This study investigated the perceptions of foster parents of children with disabilities concerning their interactions with school personnel. We conducted semi-structured interviews with 7 foster parents of 6 children with disabilities (age range=5-16). A qualitative analysis of the interviews resulted in the identification of five thematic areas, including foster parent perceptions of: (a) the role of the foster parent, (b) the efficacy of the foster parent in helping the child learn, (c) invitations to involvement from the school (d) invitations to involvement from the child, and (e) foster child experiences in the school system...
September 7, 2017: Child Abuse & Neglect
https://www.readbyqxmd.com/read/28889071/linking-implementation-of-evidence-based-parenting-programs-to-outcomes-in-early-intervention
#9
Janice E Kilburn, Cheri J Shapiro, James W Hardin
In the field of early intervention, only a few studies of parenting interventions include both participant and facilitator behaviors. Fidelity and supervision (facilitator characteristics) and dosage and satisfaction (participant characteristics) were tested on the outcome of improved parenting style in a sample of 36 parents of young children with disabilities. Results indicated that the facilitator behavior of fidelity was significantly and negatively related to the program outcome of parenting style; no effect was found for the facilitator behavior of supervision...
September 7, 2017: Research in Developmental Disabilities
https://www.readbyqxmd.com/read/28887888/neurocognitive-impairment-addressing-couple-and-family-challenges
#10
John S Rolland
Conditions involving neurocognitive impairment pose enormous challenges to couples and families. However, research and practice tend to focus narrowly on immediate issues for individual caregivers and their dyadic relationship with the affected member. A broad family systems approach with attention to family processes over time is needed in training, practice, and research. In this paper, Rolland's Family Systems Illness model provides a guiding framework to consider the interaction of different psychosocial types of neurocognitive conditions and their evolution over time with individual, couple, and family life-course development...
September 9, 2017: Family Process
https://www.readbyqxmd.com/read/28881320/frequency-and-predictors-of-psychological-distress-after-a-diagnosis-of-epilepsy-a-community-based-study
#11
Ying Xu, Maree L Hackett, Nick Glozier, Armin Nikpour, Andrew Bleasel, Ernest Somerville, John Lawson, Stephen Jan, Lorne Hyde, Lisa Todd, Alexandra Martiniuk, Carol Ireland, Craig S Anderson
OBJECTIVE: The objective of the study was to determine the frequency and predictors of psychological distress after a diagnosis of epilepsy. METHODS: The Sydney Epilepsy Incidence Study to Measure Illness Consequences (SEISMIC) was a prospective, multicenter, community-based study of people of all ages with newly diagnosed epilepsy in Sydney, Australia. Analyses involved multivariate logistic regression and multinomial logit regression to identify predictors of psychological distress, assessed using the Hospital Anxiety and Depression Scale (HADS) and the Strengths and Difficulties Questionnaire (SDQ), as part of structured interviews...
September 4, 2017: Epilepsy & Behavior: E&B
https://www.readbyqxmd.com/read/28880887/the-effect-of-health-status-and-living-arrangements-on-long-term-care-models-among-older-chinese-a-cross-sectional-study
#12
Liangwen Zhang, Yanbing Zeng, Ya Fang
BACKGROUND: Currently, there are many studies focusing on the influencing factors of the elderly people's living arrangements or health status, but little is known about the relationship between living arrangements or health status and long-term care models for the old-age, especially the joint effects. OBJECTIVE: We aimed to assess the effects of health status and living arrangements on long-term care models (LTCM) among the elderly of Xiamen, China, especially their cumulative joint effects...
2017: PloS One
https://www.readbyqxmd.com/read/28877203/education-of-children-with-disabilities-in-new-delhi-when-does-exclusion-occur
#13
Parul Bakhshi, Ganesh M Babulal, Jean-Francois Trani
BACKGROUND: In the new Sustainable Development Goal 4, quality of education defined as equity and inclusion alongside traditional learning outcomes, has replaced the narrow goal of access to primary education stipulated in the Millennium Development Goal 2. Since 2000, considerable progress has been made towards improving access to school for children in India, yet questions remain regarding not just children with disabilities' access and acquisition of basic learning skills, but also completion of learning cycles...
2017: PloS One
https://www.readbyqxmd.com/read/28873937/participation-through-gaze-controlled-computer-for-children-with-severe-multiple-disabilities
#14
Eva Holmqvist, Sandra Derbring, Sofia Wallin
This paper presents work on developing methodology material for use of gaze controlled computers. The target group is families and professionals around children with severe multiple disabilities. The material includes software grids for children at various levels, aimed for communication, leisure and learning and will be available for download.
2017: Studies in Health Technology and Informatics
https://www.readbyqxmd.com/read/28873936/parent-perception-of-two-eye-gaze-control-technology-systems-in-young-children-with-cerebral-palsy-pilot-study
#15
Petra Karlsson, Margaret Wallen
Eye-gaze control technology enables people with significant physical disability to access computers for communication, play, learning and environmental control. This pilot study used a multiple case study design with repeated baseline assessment and parents' evaluations to compare two eye-gaze control technology systems to identify any differences in factors such as ease of use and impact of the systems for their young children. Five children, aged 3 to 5 years, with dyskinetic cerebral palsy, and their families participated...
2017: Studies in Health Technology and Informatics
https://www.readbyqxmd.com/read/28872939/psychometric-evaluation-of-the-young-children-s-participation-and-environment-measure-yc-pem-for-use-in-singapore
#16
Chun Yi Lim, Mary Law, Mary Khetani, Peter Rosenbaum, Nancy Pollock
AIMS: To estimate the psychometric properties of a culturally adapted version of the Young Children's Participation and Environment Measure (YC-PEM) for use among Singaporean families. METHODS: This is a prospective cohort study. Caregivers of 151 Singaporean children with (n = 83) and without (n = 68) developmental disabilities, between 0 and 7 years, completed the YC-PEM (Singapore) questionnaire with 3 participation scales (frequency, involvement, and change desired) and 1 environment scale for three settings: home, childcare/preschool, and community...
September 5, 2017: Physical & Occupational Therapy in Pediatrics
https://www.readbyqxmd.com/read/28872931/factors-perceived-by-rehabilitation-professionals-to-influence-the-provision-of-assistive-technology-to-children-a-systematic-review
#17
Karin van Niekerk, Shakila Dada, Kerstin Tönsing, Kobie Boshoff
BACKGROUND: The use of Assistive Technology (AT) by children with disabilities has been associated with significant development and improvement in outcomes within all spheres of life. However, AT is often underutilized. Appropriate selection of AT by rehabilitation professionals could improve the satisfaction of the user and their family with their AT. DATA SOURCES: A systematic search identified six studies that investigate the factors that occupational therapists, physiotherapists, as well as speech and language pathologists perceive to influence their provision of AT to children...
September 5, 2017: Physical & Occupational Therapy in Pediatrics
https://www.readbyqxmd.com/read/28869033/life-course-of-children-with-parental-multiple-sclerosis
#18
Julie Yoon Moberg
BACKGROUND: The majority of persons with multiple sclerosis (MS) experience onset of MS between the ages of 20 and 40. Since two-thirds of the persons with MS are young women of childbearing age, parenthood is an essential issue during this period of life. The potential influence of parental MS on children arises from the varied symptoms of the chronic illness, which affect physical and cognitive abilities. MS disabilities and fatigue can restrict daily life and result in less energy for activities or job loss and thus worse conditions for the family...
August 2017: Danish Medical Journal
https://www.readbyqxmd.com/read/28868634/effects-of-video-feedback-intervention-on-harmonious-parent-child-interaction-and-sensitive-discipline-of-parents-with-intellectual-disabilities-a-randomized-controlled-trial
#19
M W Hodes, M Meppelder, M de Moor, S Kef, C Schuengel
BACKGROUND: This study tested whether video-feedback intervention based on attachment and coercion theory increased harmonious parent-child interaction and sensitive discipline of parents with mild intellectual disabilities or borderline intellectual functioning. METHODS: Observer ratings of video-recorded structured interaction tasks at home formed pretest, post-test, and 3-month follow-up outcome data in a randomized controlled trial with 85 families. Repeated measures analyses of variance and covariance were conducted to test for the intervention effect and possible moderation by IQ and adaptive functioning...
September 3, 2017: Child: Care, Health and Development
https://www.readbyqxmd.com/read/28867152/cognitive-and-affective-empathy-among-adolescent-siblings-of-children-with-a-physical-disability
#20
Lidia Perenc, Ryszard Pęczkowski
BACKGROUND: This study is a continuation of research on possible psychosocial benefits resulting from exposure to sibling with disability present in the family system. The issue seems to be especially important in Poland because of growing number of children with a disability and inconsistent results of previously performed studies. OBJECTIVE: The main aim of this study was to examine the differences in the intensity of cognitive and affective empathy in adolescents who either have or do not have siblings with physical disability...
August 31, 2017: Disability and Health Journal
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