Laura Elisabeth Gressler, Terrie Cowley, Marti Velezis, Suvekshya Aryal, Deanne Clare, John W Kusiak, Allen W Cowley, Art Sedrakyan, Danica Marinac-Dabic, Michelle Reardon, Lisa Schmidt, Jennifer Ginsburg Feldman, Vincent DiFabio, Suzie Bergman, Vahan Simonyan, Yelena Yesha, Ingrid Vasiliu-Feltes, Justin Durham, Andrew I Steen, Phillip Woods, Flavia P Kapos, Nilsa Loyo-Berrios
BACKGROUND: Conflicting reports from varying stakeholders related to prognosis and outcomes following placement of temporomandibular joint (TMJ) implants gave rise to the development of the TMJ Patient-Led RoundTable initiative. Following an assessment of the current availability of data, the RoundTable concluded that a strategically Coordinated Registry Network (CRN) is needed to collect and generate accessible data on temporomandibular disorder (TMD) and its care. The aim of this study was therefore to advance the clinical understanding, usage, and adoption of a core minimum dataset for TMD patients as the first foundational step toward building the CRN...
2023: Frontiers in digital health