Palliativ

The WHO definition of paediatric palliative care (PPC) emphasises the role of active multidimensional care, carried out with interdisciplinary competence, and providing support to the entire family. The aim of the current national study was to investigate whether parents perceived that their child received palliative care (PC) before the child died of cancer and the parent's view of the care during the child's last month of life. In 2016, parents (n=226) completed a study-specific survey, and a majority reported that their child had received PC with good professional competence...

During the care of brain tumor patients, supportive care and palliation are carried out in an individualized manner, accompanied by adequate communication, in a multidisciplinary professional environment. In the case of brain tumor patients, the burden of symptoms resulting from the progression of the disease and the complications of treatments occur in a particularly high proportion. The supportive care of patients in a modern approach covers the targeted treatment of physical and psychosocial problems and also includes integrated palliation...

BACKGROUND: Structures of palliative care, cross-sectoral transitions and care pathways of patients with palliative care needs were investigated at two sites. The systematic comparison of similarities and differences using the topic of 'pain' as an example is intended to provide information on the extent to which these are related to site-specific palliative care concepts (integrated and cooperative). METHODS: The study follows a mixed-methods design. In addition to a document analysis of anonymised patient records (n = 774), expert interviews (n = 20), as well as interviews with patients, relatives (n = 60) and focus groups (n = 12), were conducted...

Hyponatremia is a very common abnormality in palliative care which can cause a sudden decline in the patient's general condition. The diagnostic and therapeutic procedures are based on the patient's symptoms and life-expectancy. The inadequate diagnostic and therapeutic interventions result in an unnecessary burden, while the adequate treatment could improve the quality of life. In palliative care, acute hyponatremia is very rare, the chronic form without any symptoms or mild complaints is more common. Asymptomatic patients should be observed...

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INTRODUCTION: Between 1984 and 2019, 1005 rigid prostheses and 423 self-expanding stents were inserted for palliation of malignant esophageal stenosis. OBJECTIVE: The aim of this study was the comparison of the treatment results using the two types of prosthesis. METHOD: Retrospective analysis has been performed comparing the characteristics and treatment results of the two patients groups referring to the technical success of the procedures, procedure-related complications, change in the quality of life, and survival time...

INTRODUCTION: Hospice movement began in Hungary in 1991, today home care and impatient care is accessable nationwide. However, despite the growing number of patients receving palliative care, according to the survey of the Hungarian Hospice Palliative Association, the average time they have spent receiving home hospice care was only 26,7 days in 2020, when the ideal would be 8,5 months. It has been proven by studies, that involving hospice-palliative care early on in the treatment of oncology patients has benefits for both the quality of life and treatment and cost-effectiveness...

INTRODUCTION: The prevalence of diabetes mellitus is increasing worldwide. According to Hungarian data from 2014, it affects 7,3% of the population. At the time of their cancer diagnosis, 8-18% of all patients have preexisting diabetes mellitus. Some studies have identified a diabetes prevalence up to 30% of cancer patients. The treatment of diabetic patients in palliative care differs from the curative methods and this is very important to be communicated with the patient, the family members and health-care providers...

BACKGROUND: Palliative and hospice care facilities face different challenges emerging from the COVID-19 pandemic. In particular, this results from the high age and pre-existing diseases of patients as well as the physically close contact between staff and patients. OBJECTIVE: The aim of this study was to identify existing strategies, guidelines and recommendations in Germany and other countries with respect to addressing the challenges of the COVID-19 pandemic in palliative and hospice care...

Palliative Radiotherapy - An Important Tool in the Event Of Painful Bone Metastases Abstract. Many cancer patients suffer from metastases at an advanced stage, especially bone metastases, which are the third most frequent site of metastases and often occur in prostate, breast and lung carcinomas. Potential consequences are pain, pathological fractures and myelon compression with loss of function. Often there is a rapid reduction in the quality of life of the already burdened patients. Treatment is performed in an interdisciplinary setting with oncologists, radiation oncologists, palliative care and pain physicians as well as surgeons...

Összefoglaló. A palliatív ellátások korai bevonása az onkológiai betegek ellátásába előnnyel jár mind a beteg életminősége, mind a kezelés színvonala, mind a költséghatékonyság szempontjából. Szükség van egy olyan modellre, mely alapján a megfelelő időben, a megfelelő beteg a megfelelő minőségű palliatív ellátásban részesül. Ebben a közleményben a palliatív ellátás korai integrációjának előnyei, szintjei és a speciális palliatív ellátás fogalmának ismertetése után a leginkább elterjedt beutalási modellek előnyeit és hátrányait mutatjuk be a nemzetközi szakirodalom alapján...

AIM: The aim of this study was to investigate the impact of 18 F-FDG-PET/CT on treatment decision making in metastatic gastrointestinal stromal tumor (GIST) patients. METHODS: This study retrospectively evaluated 18 F-FDG-PET/CT scans to monitor response of metastatic GIST patients treated with palliative intent. Data from the Dutch GIST Registry was used. Early scans (<10 weeks after start of treatment) and late scans (>10 weeks after start of treatment) were scored on the impact in change of treatment...

BACKGROUND: During the current pandemic situation, the public health care system must ensure the ongoing provision of regular medical care as well as the treatment of severe acute respiratory syndrome coronavirus type 2 (SARS-CoV-2) infected patients. Resident oncologists and their practices are equally affected. OBJECTIVES: The study examines resident oncologists' challenges, experiences and approaches in the delivery of care for oncological patients receiving palliative treatment and their relatives during the pandemic...

Huntington Disease is a chronically progressive and neurodegenerative disease, which leads to death after 10 to 30 years of suffering and worsening. When suffering Huntington Disease the patient will experience physical, cognitive and psychological issues, so that the patient won't be able to communicate or express his will in the end-of-life-phase of his disease. The problem is, after suffering a while the patient often won't be able to eat by himself, so a feeding tube must be implanted. In some cases a tracheostomy tube is needed because of the respiratory insufficiency...

Összefoglaló. Bevezetés: A tumorsebészetben a malnutritio független rizikófaktor. A kockázatcsökkentés egyik fontos eleme a perioperatív tápláltsági állapot felmérésén alapuló klinikai táplálás. Az irodalomban jól dokumentált az időben végzett rizikószűrés fontossága, de ennek módja, különösen hazai környezetben, kidolgozatlanabb. Célkitűzés: A malnutritio szempontjából esendőbb csoportot alkotó onkológiai sebészeti betegek azonosíthatóságának igazolása, a szűrési metódus vizsgálata...

BACKGROUND: Patient and public participation in health research is of increasing social importance. The participation of citizens (patients, their next or interested parties) is not yet structurally anchored in Germany. This manuscript aims to present and to discuss first experiences with patient and public involvement in two palliative care centers. METHODS: In two centers, a general patient and public involvement committee (Erlangen) and a project-associated patient and public involvement group (Munich) were founded...

BACKGROUND: The aim of palliative care is to help people with a progressive, probably fatal disease to achieve the highest possible quality of life. Any treatment is radically oriented towards the needs of the affected persons and their relatives. Although nursing institutions for seniors are the second most frequent place of death in Germany, residents in nursing homes do not yet reliably experience the hospice accompaniment and palliative care, which they need. OBJECTIVE: In a research project the cooperation between a nursing home for seniors and an outpatient hospice service was investigated...

Palliative care was initially developed for patients with a cancer diagnosis and severe symptoms. Despite the ambition to broaden the palliative care approach to include other groups, patients with cancer are still a majority in specialised palliative care. The broader view and development of palliative care has led to an intense debate on existing definitions. Following a request from The Lancet Commission on global palliative care, the International Association of Hospice and Palliative Care (IAHPC) has presented a new definition...

The concepts and background of palliative medicine, the patient-health team relationship and the right of the patients to receive palliative care, its application in surgery, the criterion defining the terminally ill, proportionate and disproportionate measures, where it is applied and what this consists of, drugs and procedures used, who should administrate them and for how long, the requirements for advanc directives and avoidance of therapeutic obstinacy, were reviewed. It describes and reflects their ethical and legal bases...

Systematic improvement of quality of care at the end of life is still scarce. The regional palliative care service in Skåne, which has eight units covering a population of almost 1.3 million inhabitants, has systematically used the Swedish Register of Palliative Care (SRPC, https://www.palliativ.se/ ) for care development. 9 out of 12 of the indicators improved significantly in 2014 compared to 2013. Through transparency of registered data and regular feedback to the department's units we have been able to encourage the exchange of experiences between the units, provide opportunities for internal and external benchmarking and also prioritize topics for teaching and training...