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patient communication

Angela L Todd, Don Nutbeam
OBJECTIVES: To ensure that the contribution of patients and consumers in health research is better understood, respected and fully utilised. Type of program or service: Consumer representative networks that form part of a broader quality improvement program in local health services. METHODS: Consultations were held with members of health consumer networks in Sydney, Northern Sydney and Western Sydney Local Health Districts, and the Sydney Children's Hospitals Network (at Westmead) about how to better involve consumers in health research...
June 14, 2018: Public Health Research & Practice
Jane Lloyd, Louise Thomas, Gawaine Powell-Davies, Regina Osten, Mark Harris
Definitions of health literacy have tended to focus on the abilities of patients and communities, rather than on the ability of the health system and its services to respond to patients' different levels of health literacy. However, health literacy is increasingly being recognised as part of a dynamic, two-way relationship, affected by both organisational factors (e.g. tailoring of communication and care to patients' needs) and community factors (e.g. individuals' ability to perceive and seek care). Developing a more comprehensive understanding of health literacy is an important step towards improving health literacy...
June 14, 2018: Public Health Research & Practice
Eric S Kilpatrick, Sverre Sandberg
The European Federation of Clinical Chemistry and Laboratory Medicine (EFLM) has initiated many harmonization activities in all phases of the examination process. The EFLM is dealing with both the scientific and the educational aspects of harmonization, with the intention of disseminating best practice in laboratory medicine throughout Europe. Priorities have been given (1) to establish a standard for conducting and assessing biological variation studies and to construct an evidence based EFLM webpage on biological variation data, (2) to harmonize preanalytical procedures by producing European guidelines, (3) to improve test ordering and interpretation, (4) to produce other common European guidelines for laboratory medicine and play an active part in development of clinical guidelines, (5) to establish a common basis for communicating laboratory results to patients, (6) to harmonize units of measurement throughout Europe, (7) to harmonize preanalytical procedures in molecular diagnostics and (8) to harmonize and optimize test evaluation procedures...
June 20, 2018: Clinical Chemistry and Laboratory Medicine: CCLM
Erin M Mobley, Kristin J Foster, William W Terry
PURPOSE: In an effort to counteract the differences in improvement in survival rates of adolescents and young adults (AYA), compared to other age groups with cancer, the University of Iowa Hospitals and Clinics established an AYA cancer program. This study was conducted to gather feedback from AYAs in an effort to generate actionable data for program development. METHODS: The target population included patients aged 13-31 treated for malignancy in one of the following disease sites: central nervous system, leukemia, lymphoma, neuroendocrine, sarcoma, and thyroid...
June 20, 2018: Journal of Adolescent and Young Adult Oncology
Rebeca de Oliveira Chappaz, Simone Dos Santos Barreto, Karin Zazo Ortiz
BACKGROUND: Pneumo-phono-articulatory coordination is often impaired in dysarthric patients. Because all speech is produced upon exhalation, adequate respiratory support and coordination are essential for communication. Nevertheless, studies investigating respiratory parameters for speech are scarce. The objectives of the present study were to analyze and compare the numbers of words and syllables (universal measurement) per exhalation among healthy and dysarthric speakers, in different speech tasks...
June 18, 2018: São Paulo Medical Journal, Revista Paulista de Medicina
J Peter Cegielski
Multidrug-resistant (MDR) tuberculosis (TB) emerged shortly after introduction of rifamycins in the 1960s; isoniazid resistance had already emerged by the mid-1950s. Without these two drugs, tuberculosis is very difficult and costly to treat, with unacceptably high rates of treatment failure, death, loss to follow-up, and no known preventive treatment. Global attention first focused on MDR TB in the early 1990s when nosocomial outbreaks with high case fatality rates were reported in many countries. Prevalence data for MDR TB on a global scale first became available in 1997...
January 2018: Revista Peruana de Medicina Experimental y Salud Pública
Jong-Lim Kim, Jin Yong Shin, Si-Gyun Roh, Suk Choo Chang, Nae-Ho Lee
INTRODUCTION: Liposuction is one of the most widely performed aesthetic surgeries. It is mainly used for the correction of deep and superficial fat accumulations and remodeling of the body contour. CASE PRESENTATION: We present a rare case of unusual rubber foreign body found within the periumbilical area during the reconstruction of buried umbilicus after liposuction.A 61-year-old female had undergone a liposuction surgery 10 years ago. Last year, she experienced signs of inflammation around the periumbilical area...
June 2018: Medicine (Baltimore)
Shannon K Martin, Keme Carter, Noah Hellermann, Laura R Glick, Samantha Ngooi, Marika Kachman, Jeanne M Farnan, Vineet M Arora
PROBLEM: Formal education in requesting consultations is inconsistent in medical education. To address this gap, the authors developed the Consultation Observed Simulated Clinical Experience (COSCE), a simulation-based curriculum for interns using Kessler et al's 5Cs of Consultation model to teach and assess consultation communication skills. APPROACH: In June 2016, 127 interns entering 12 University of Chicago Medicine residency programs participated in the COSCE pilot...
June 19, 2018: Academic Medicine: Journal of the Association of American Medical Colleges
Sara L Ackerman, Nathaniel Gleason
Growing demand for specialty care has resulted in longer wait times for appointments, particularly at US academic referral centers. A proportion of specialty visits are for routine follow-up care of stable problems, and there is evidence that primary care providers are willing and able to take responsibility for a significant proportion of these patients. However, little is known about how to transition care back to a referring primary care clinician in a manner that is acceptable to everyone involved. In this article, we describe social, legal, and financial barriers to effective care transition and propose communication strategies to overcome them...
June 19, 2018: Journal of Ambulatory Care Management
O Fernandez, M Tintore, A Saiz, M C Calles-Hernandez, M Comabella, Ll Ramio-Torrenta, A Oterino, G Izquierdo, N Tellez, J A Garcia-Merino, Ll Brieva, C Arnal-Garcia, Y Aladro, M M Mendibe-Bilbao, J E Meca-Lallana, L Romero-Pinel, R Ginestal, M L Martinez-Gines, R Arroyo, A Rodriguez-Antiguedad
The Post-ECTRIMS Meeting is an emblematic event in the field of multiple sclerosis in Spain. Its chief aim is bring together the country's leading specialist neurologists to analyse the main advances made in multiple sclerosis and to review the most important topics addressed at the ECTRIMS Congress. The tenth Post-ECTRIMS Meeting was held in November 2017. Over the years this event has firmly established itself as an important meeting point where experts from all over the country get together to foster communication, establish synergies and promote and enhance research ultimately aimed at improving the prognosis and quality of life of patients with multiple sclerosis...
July 1, 2018: Revista de Neurologia
Anu Mohandas, S K Bhasin, Madhu Upadhyay, S V Madhu
Background: Self-care activities are the cornerstone of diabetes care that ensures patients participation to achieve optimal glycemic control and to prevent complications. Objective: The aim of this study is to find the level of self-care activities among diabetics aged ≥20 years residing in a resettlement colony in East Delhi and its association with sociodemographic factors, disease, and treatment profile. Methods: Using cross-sectional survey, 168 known diabetic patients were selected from Nand Nagri, a resettlement colony in East Delhi...
April 2018: Indian Journal of Public Health
Felicitas J Detmer, Bong Jae Chung, Fernando Mut, Michael Pritz, Martin Slawski, Farid Hamzei-Sichani, David Kallmes, Christopher Putman, Carlos Jimenez, Juan R Cebral
BACKGROUND: Intracranial aneurysms at the posterior communicating artery (PCOM) are known to have high rupture rates compared to other locations. We developed and internally validated a statistical model discriminating between ruptured and unruptured PCOM aneurysms based on hemodynamic and geometric parameters, angio-architectures, and patient age with the objective of its future use for aneurysm risk assessment. METHODS: A total of 289 PCOM aneurysms in 272 patients modeled with image-based computational fluid dynamics (CFD) were used to construct statistical models using logistic group lasso regression...
June 20, 2018: Acta Neurochirurgica
Xiao Luo, Kaicheng Li, Qingze Zeng, Peiyu Huang, Yeerfan Jiaerken, Tiantian Qiu, Xiaojun Xu, Jiong Zhou, Jingjing Xu, Minming Zhang
Background: Amnestic mild cognitive impairment (aMCI) is a heterogeneous condition. Based on clinical symptoms, aMCI could be categorized into single-domain aMCI (SD-aMCI, only memory deficit) and multi-domain aMCI (MD-aMCI, one or more cognitive domain deficit). As core intrinsic functional architecture, inter-hemispheric connectivity maintains many cognitive abilities. However, few studies investigated whether SD-aMCI and MD-aMCI have different inter-hemispheric connectivity pattern. Methods: We evaluated inter-hemispheric connection pattern using fluorine-18 positron emission tomography - fluorodeoxyglucose (18 F PET-FDG), resting-state functional MRI and structural T1 in 49 controls, 32 SD-aMCI, and 32 MD-aMCI patients...
2018: Frontiers in Aging Neuroscience
Hiroteru Kamimura, Toru Setsu, Naruhiro Kimura, Takeshi Yokoo, Akira Sakamaki, Kenya Kamimura, Atsunori Tsuchiya, Masaaki Takamura, Satoshi Yamagiwa, Shuji Terai
The liver plays a key role in the metabolism of proteins. Liver dysfunction affects many organs because it communicates with the spleen and all digestive organs through the portal vein. Additionally, the kidney is an organ that is closely related to the liver and is involved in liver diseases. Glomerulonephritis is an important extrahepatic manifestation of chronic hepatitis B virus (HBV) infection. Nucleos(t)ide analog (NA) therapy effectively suppresses HBV replication by inhibiting HBV polymerase, thus decreasing the levels of serum HBV-DNA and delaying the progression of cirrhosis...
June 19, 2018: Diseases (Basel)
Susie Donnelly, Brenda Reginatto, Oisin Kearns, Marie Mc Carthy, Bill Byrom, Willie Muehlhausen, Brian Caulfield
BACKGROUND: Despite an aging population, older adults are typically underrecruited in clinical trials, often because of the perceived burden associated with participation, particularly travel associated with clinic visits. Conducting a clinical trial remotely presents an opportunity to leverage mobile and wearable technologies to bring the research to the patient. However, the burden associated with shifting clinical research to a remote site requires exploration. While a remote trial may reduce patient burden, the extent to which this shifts burden on the other stakeholders needs to be investigated...
June 19, 2018: Journal of Medical Internet Research
Gary Finnegan, Daphne Holt, Peter M English, Steffen Glismann, Angus Thomson, David M Salisbury, Hugues Bogaerts, Paolo Bonanni
Most members of the general public use the internet to research health topics. However, the quality of vaccine-related material available online is mixed and internet search engines often bring web users to low-quality anti-vaccine websites. We present a case study of a pro-vaccine information hub launched in 2011. Vaccines Today provides high-quality information about vaccines and diseases, expert interviews, answers to frequently asked questions, parent/patient stories and videos/infographics. Twitter, Facebook, YouTube and Instagram are used to share this content and to engage with various online audiences...
June 16, 2018: Vaccine
Damien Driot, Lucile Figuet, Jordan Birebent, Sandra Coste, Geneviève Durrieu, Julien Jacquot, Michel Bismuth
OBJECTIVE: General practitioners (GPs) report little adverse drug reactions (ADR), although it is mandatory in France. The objective was to evaluate the satisfaction of the GPs who participated to a pharmacovigilance ADR declaration support network via a clinical research assistant (CRA) moving to their GP office in the French South-West region of Midi-Pyrénées. STUDY DESIGN: A satisfaction questionnaire was sent to the 59 active GPs of this network in November 2016...
April 28, 2018: Thérapie
Kevin F Erickson, Samaya Qureshi, Wolfgang C Winkelmayer
Rapid growth in electronic communications and digitalization, combined with advances in data management, analysis, and storage, have led to an era of "Big Data." The Social Security Amendments of 1972 turned end-stage renal disease (ESRD) care into a single-payer system for most patients requiring dialysis in the United States. As a result, there are few areas of medicine that have been as influenced by Big Data as dialysis care, for which Medicare's large administrative data sets have had a central role in the evaluation and development of public policy for several decades...
June 16, 2018: American Journal of Kidney Diseases: the Official Journal of the National Kidney Foundation
Qian Cai, Anding Zhu, Li Gong
Exosomes are now considered to be involved in mediating cell-to-cell communication to promote or inhibit tumor progression. However, the role and molecular mechanism of exosomes in promoting glioblastoma (GBM) metastasis remains elusive. Here, we found that circulating exosomal miR-148a levels were significantly higher in serum from GBM patients compared with serum from healthy volunteers. In T98G cells, inhibition of miR-148a suppressed cell proliferation and metastasis. In addition, we identified Cell adhesion molecule 1 (CADM1) as a target gene of miR-148a using luciferase reporter assay...
June 16, 2018: Bulletin du Cancer
Coral Hanevold, Susan Halbach, Jin Mou, Karyn Yonekawa
BACKGROUND: We have noted a large number of referrals for abnormal kidney imaging and laboratory tests and postulated that such referrals have increased significantly over time. Understanding changes in referral patterns is helpful in tailoring education and communication between specialists and primary providers. METHODS: We performed a retrospective chart review of new patient referrals to Mary Bridge Children's Nephrology clinic for early (2002 to 2004) and late (2011 to 2013) cohorts...
June 19, 2018: BMC Pediatrics
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