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https://www.readbyqxmd.com/read/29785681/diabetes-symptoms-predictors-of-health-related-quality-of-life-in-adolescents-and-young-adults-with-type-1-or-type-2-diabetes
#1
James W Varni, Alan M Delamater, Korey K Hood, Jennifer K Raymond, Kimberly A Driscoll, Jenise C Wong, Saleh Adi, Joyce P Yi-Frazier, Ellen K Grishman, Melissa A Faith, Sarah D Corathers, Jessica C Kichler, Jennifer L Miller, Elena M Doskey, Vincent P Aguirre, Robert W Heffer, Don P Wilson
OBJECTIVES: The objective was to investigate the patient-reported diabetes symptoms predictors of generic health-related quality of life (HRQOL) in adolescents and young adults (AYA) with type 1 or type 2 diabetes. METHODS: The 15-item PedsQL™ 3.2 Diabetes Module Diabetes Symptoms Summary Score and PedsQL™ 4.0 Generic Core Scales were completed in a 10-site national field test study by 513 AYA ages 13-25 years with type 1 (n = 424) or type 2 (n = 89) diabetes...
May 21, 2018: Quality of Life Research
https://www.readbyqxmd.com/read/29783065/participation-in-daily-life-influence-on-quality-of-life-in-ambulatory-children-with-cerebral-palsy
#2
Jaclyn Omura, Molly Fuentes, Kristie Bjornson
BACKGROUND: Cerebral palsy is a chronic condition which affects children and has an impact on social and physical activity, as well as participation in daily life. Participation and quality of life are two important measures of successful rehabilitation that have not been well studied in children with cerebral palsy. OBJECTIVE: To report levels of participation and examine the relationship of participation to quality of life (QOL) in ambulatory children with cerebral palsy (CP) DESIGN: Secondary analysis, cross-sectional cohort study SETTING: Regional pediatric specialty care center PARTICIPANTS: A cohort of 128 ambulatory children with CP, Gross Motor Function Classification System (GMFCS) levels I-III, age 2-9 years INTERVENTIONS: Not Applicable MAIN OUTCOME MEASURES: Pediatric Quality of Life Inventory (PedsQL); Assessment of Life Habits (LIFE-H); Children's Assessment of Participation and Enjoyment and Assessment of Preschool Children's Participation (CAPE/APCP)...
May 18, 2018: PM & R: the Journal of Injury, Function, and Rehabilitation
https://www.readbyqxmd.com/read/29779266/associations-of-mental-health-with-cardiovascular-risk-phenotypes-and-adiposity-in-adolescence-a-cross-sectional-community-based-study
#3
Kate Lycett, Clare McNamara, Fiona K Mensah, David Burgner, Jessica A Kerr, Josh Muller, Melissa Wake
AIM: Cardiovascular disease and mental illness commonly co-occur in later life, but it is unknown how early these associations arise. We aimed to determine the extent to which: (i) childhood mental health is associated with functional and structural cardiovascular risk phenotypes and adiposity in late childhood/adolescence, and (ii) associations between mental health and cardiovascular phenotypes may be explained by differential body mass index. METHODS: This cross-sectional study drew on three longitudinal community-based cohort studies (two enriched for overweight/obesity) in metropolitan Melbourne, Australia, with harmonized follow-up in 2014...
May 20, 2018: Journal of Paediatrics and Child Health
https://www.readbyqxmd.com/read/29776482/does-pain-intensity-matter-the-relation-between-coping-and-quality-of-life-in-pediatric-patients-with-chronic-pain
#4
Alexis K Yetwin, Nicole E Mahrer, Cindy John, Jeffrey I Gold
PURPOSE: Chronic pain is a complex and debilitating chronic health condition that negatively impacts a child's daily function. Previous investigations of coping behaviors in youth with chronic illness have suggested that secondary control/accommodative coping may be more adaptive than primary control/active coping or disengagement/passive coping. However, studies have not considered how pain intensity may change the effect of various coping strategies on functioning in this pediatric population...
May 2018: Journal of Pediatric Nursing
https://www.readbyqxmd.com/read/29773954/pain-catastrophizing-is-associated-with-poorer-health-related-quality-of-life-in-pediatric-patients-with-sickle-cell-disease
#5
Nitya Bakshi, Ines Lukombo, Inna Belfer, Lakshmanan Krishnamurti
Background: Sickle cell disease (SCD) is an inherited disorder of the red blood cells and is associated with chronic multisystem involvement. While SCD has been associated with poorer health-related quality of life (HRQoL), there is a paucity of data on the relationship of psychological covariates other than anxiety and depression and quality of life (QoL) in children with SCD. Materials and methods: We performed a cross-sectional study of psychological factors, HRQoL, and pain-related outcomes in participants with SCD and race-matched controls as part of a larger study of experimental pain phenotyping...
2018: Journal of Pain Research
https://www.readbyqxmd.com/read/29772082/child-symptoms-parent-behaviors-and-family-strain-in-long-term-survivors-of-childhood-acute-lymphoblastic-leukemia
#6
I-Chan Huang, Tara M Brinkman, Larry Mullins, Ching-Hon Pui, Leslie L Robison, Melissa M Hudson, Kevin R Krull
BACKGROUND: How family environment and parental factors affect health status and symptoms in childhood cancer survivors is understudied. We examined the influence of family cohesion, parent distress, and overprotection on child symptom burden and health-related quality of life (HRQOL) and family strain in survivors of childhood acute lymphoblastic leukemia (ALL). METHODS: Parents of 213 children treated with chemotherapy-only completed a survey when survivors were at least five-years post-diagnosis...
May 17, 2018: Psycho-oncology
https://www.readbyqxmd.com/read/29752583/quality-of-life-qol-and-the-factors-affecting-it-in-transfusion-dependent-thalassemic-children
#7
Kapil Chordiya, Vikash Katewa, Pramod Sharma, Bindu Deopa, Suman Katewa
OBJECTIVES: To evaluate the Quality of life (QoL) and the factors affecting it in transfusion-dependent thalassemic children. METHODS: Current study was conducted at Department of Pediatrics, Dr. SNMC, Jodhpur. Ninety-three transfusion-dependent thalassemic children aged between 8 and 18 y were enrolled. Quality of life was assessed using Pediatric Quality of Life (PedsQL) measurement model in thalassemic children. RESULTS: Mean age of children was 11...
May 12, 2018: Indian Journal of Pediatrics
https://www.readbyqxmd.com/read/29738345/the-esophageal-atresia-quality-of-life-questionnaires-feasibility-validity-and-reliability-in-sweden-and-germany
#8
Michaela Dellenmark-Blom, Jens Dingemann, Stefanie Witt, Julia H Quitmann, Linus Jönsson, Vladimir Gatzinsky, John E Chaplin, Monika Bullinger, Sofie Flieder, Benno M Ure, Carmen Dingemann, Kate Abrahamsson
OBJECTIVES: Esophageal atresia (EA) is a rare malformation characterized of discontinuity of the esophagus, concurrent with or without a tracheoesophageal fistula (TEF). We report the validity and reliability of a condition-specific quality of life (QOL) tool for EA/TEF children, the age-adapted EA-QOL-questionnaires, when used in Sweden and Germany. METHODS: 124 families of children with EA/TEF participated in the study; 53 parents completed the EA-QOL-questionnaire for children aged 2-7 years; 62 children/71 parents the EA-QOL-questionnaire for children 8-17 years...
May 5, 2018: Journal of Pediatric Gastroenterology and Nutrition
https://www.readbyqxmd.com/read/29734976/characterizing-decisional-conflict-for-caregivers-of-children-with-obstructive-sleep-apnea-without-tonsillar-hypertrophy
#9
Amy M Manning, Angela L Duggins, Karin A Tiemeyer, Lisa A Mullen, Joseph A Crisalli, Aliza P Cohen, Stacey L Ishman
STUDY OBJECTIVES: The goals of this study were to (1) evaluate the degree of decisional conflict (DC) experienced by caregivers of children with obstructive sleep apnea (OSA) without tonsillar hypertrophy; and (2) describe the association between DC, quality of life (QOL), and OSA severity. METHODS: This study comprised children evaluated in the multidisciplinary upper airway center at the Cincinnati Children's Hospital Medical Center from December 2014 to May 2016...
April 30, 2018: Journal of Clinical Sleep Medicine: JCSM: Official Publication of the American Academy of Sleep Medicine
https://www.readbyqxmd.com/read/29730851/psychometric-evaluation-of-the-chinese-version-of-the-child-health-utility-9d-chu9d-chn-a-school-based-study-in-china
#10
Peirong Yang, Gang Chen, Peng Wang, Kejian Zhang, Feng Deng, Haifeng Yang, Guihua Zhuang
PURPOSE: The Child Health Utility 9D (CHU9D), a new generic preference-based health-related quality of life (HRQoL) instrument, was developed specifically for the application in cost-effectiveness analyses of treatments and interventions for children and adolescents. The main objective of this study was to examine the psychometric property of the Chinese version of CHU9D (CHU9D-CHN) in a large school-based sample in China. METHODS: Data were collected using a multi-stage sampling method from third-to-ninth-grade students in Shaanxi Province, China...
May 5, 2018: Quality of Life Research
https://www.readbyqxmd.com/read/29730053/functional-vision-and-quality-of-life-in-children-with-microphthalmia-anophthalmia-coloboma-a-cross-sectional-study
#11
Annegret Dahlmann-Noor, Vijay Tailor, Yassir Abou-Rayyah, Gillian Adams, John Brookes, Sir Peng T Khaw, Catey Bunce, Maria Papadopoulos
PURPOSE: To determine the child's and parental perception of functional visual ability (FVA), vision-related and health-related quality of life (VR-QoL, HR-QoL) in children with microphthalmia/anophthalmia/coloboma (MAC). METHODS: Between June 25, 2014, and June 3, 2015, we carried out a cross-sectional observational study at Moorfields Eye Hospital, London, UK, enrolling 45 children 2-16 years of age with MAC attending our clinics, and their parents. To assess FVA, VR-QoL, and HR-QoL we asked participants to complete three validated tools, the Cardiff Visual Ability Questionnaire for Children (CVAQC), the Impact of Vision Impairment for Children (IVI-C) instrument, and the PedsQL V 4...
May 3, 2018: Journal of AAPOS: the Official Publication of the American Association for Pediatric Ophthalmology and Strabismus
https://www.readbyqxmd.com/read/29697487/family-health-related-quality-of-life-in-pediatric-cyclic-vomiting-syndrome
#12
Jennifer Wang-Hall, B U K Li, Sally E Tarbell
OBJECTIVE: The aim of the study was to evaluate the relationship of disease characteristics and child anxiety symptoms to family health-related quality of life (FHRQoL) in youth with cyclic vomiting syndrome (CVS). METHODS: Forty-two parents of youth ages 8 to 18 years diagnosed with CVS completed the Family Impact Module of the PedsQL, a measure of the impact of the child's illness on the family. We evaluated the relationship of disease characteristics and child and parent proxy reports of anxiety symptoms on the Screen for Childhood Anxiety and Related Emotional Disorders to FHRQoL...
May 2018: Journal of Pediatric Gastroenterology and Nutrition
https://www.readbyqxmd.com/read/29695937/effect-of-mindfulness-and-yoga-on-quality-of-life-for-elementary-school-students-and-teachers-results-of-a-randomized-controlled-school-based-study
#13
Alessandra N Bazzano, Christopher E Anderson, Chelsea Hylton, Jeanette Gustat
Objective: To assess the impact of a yoga curriculum in an elementary school on student quality of life, and to assess teacher and staff perception of potential barriers to, and benefits of, introducing yoga and mindfulness into the classroom. Methods: A randomized controlled trial was utilized to assess the impact of a brief intervention on third-grade students who screened positive for symptoms of anxiety. Students were randomized to an intervention group of 20 students receiving small-group yoga/mindfulness activities for 8 weeks between October 2016 and February 2017, and a control group of 32 students receiving care as usual...
2018: Psychology Research and Behavior Management
https://www.readbyqxmd.com/read/29692454/evaluation-of-adolescents-diagnosed-with-acne-vulgaris-for-quality-of-life-and-psychosocial-challenges
#14
Murat Eyüboglu, Incilay Kalay, Damla Eyüboglu
Background: Acne vulgaris is a common skin condition which affects most adolescents. It has a major impact on quality of life and psychosocial well-being. Aims: The aims of the study were to examine the psychosocial effects of acne on adolescents and changes in quality of life, and to reveal any difference in the possible effect between genders. In addition, an investigation of the association between acne severity and quality of life as well as psychosocial stress was conducted...
March 2018: Indian Journal of Dermatology
https://www.readbyqxmd.com/read/29687642/development-and-validation-of-a-health-related-quality-of-life-questionnaire-for-pediatric-patients-with-interstitial-lung-disease
#15
Mandy Niemitz, Nicolaus Schwerk, Lutz Goldbeck, Matthias Griese
PURPOSE: Children's interstitial lung disease (chILD) is often associated with multiple burdens and chronic impairment of health-related quality of life. Patient reported outcomes describe the patients' perspective on medical conditions and their treatments. We aimed to develop and evaluate the psychometric properties of a chILD-specific PRO (chILD-QoL) as an instrument for monitoring the patients' health status. METHODS: Items were generated through focus groups with parents, patients, and interviews with pediatric pulmonologists...
April 23, 2018: Pediatric Pulmonology
https://www.readbyqxmd.com/read/29659914/cognitive-abilities-moderate-the-effect-of-disease-severity-on-health-related-quality-of-life-in-pediatric-sickle-cell-disease
#16
Steven J Hardy, Sarah E Bills, Shane M Wise, Kristina K Hardy
Objective: Complications that can arise from sickle cell disease (SCD) have the potential to negatively affect health-related quality of life (HRQL). SCD manifests in varying degrees of severity, but effects on HRQL are not uniform. Cognitive abilities influence HRQL in other pediatric groups, potentially through variability in treatment adherence and psychological coping. This study examined the effect of SCD severity on HRQL and explored cognitive abilities as a moderator of this relationship...
April 6, 2018: Journal of Pediatric Psychology
https://www.readbyqxmd.com/read/29652213/ovarian-reserve-in-young-juvenile-idiopathic-arthritis-patients
#17
Gabriela R V Ferreira, Renato B Tomioka, Nadia E Aikawa, Elaine P Leon, Gustavo A R Maciel, Paulo C Serafini, Edmund C Baracat, Claudia Goldenstein-Schainberg, Rosa M R Pereira, Eloisa Bonfá, Clovis A Silva
OBJECTIVES: Juvenile idiopathic arthritis (JIA) occurs during reproductive age, however, there are not systematic data regarding ovarian function in this disease. METHODS: Twenty-eight post-pubertal JIA patients and age-matched 28 healthy controls were studied. Complete ovarian function was assessed during the early follicular phase of the menstrual cycle including anti-Müllerian hormone (AMH), estradiol, luteinizing hormone (LH), follicle stimulating hormone (FSH) and antral follicle count (AFC) by ovarian ultrasound, and anti-corpus lutheum antibodies (anti-CoL)...
April 13, 2018: Modern Rheumatology
https://www.readbyqxmd.com/read/29649000/review-and-evaluation-of-patient-centered-psychosocial-assessments-for-children-with-central-precocious-puberty-or-early-puberty
#18
REVIEW
Valerie S L Williams, Ahmed M Soliman, Amy M Barrett, Karen O Klein
The objective of this study was to assess the current use of patient-centered psychosocial assessments for the evaluation of children with central precocious puberty (CPP). Studies evaluating the psychosocial impact of CPP were identified through searches of the PubMed and Cochrane Library databases, ClinicalTrials.gov, a drug prescribing information database, and regulatory websites. Studies were screened using prespecified inclusion and exclusion criteria. Potentially relevant patient-centered outcome assessments (including patient-, parent- or observer-reported measures) used in the identified studies were evaluated in detail for their relevance in CPP...
April 12, 2018: Journal of Pediatric Endocrinology & Metabolism: JPEM
https://www.readbyqxmd.com/read/29644471/assessment-of-psychological-distress-among-asian-adolescents-and-young-adults-aya-cancer-patients-using-the-distress-thermometer-a-prospective-longitudinal-study
#19
Alexandre Chan, Eileen Poon, Wei Lin Goh, Yanxiang Gan, Chia Jie Tan, Kelvin Yeo, Annabelle Chua, Magdalene Chee, Yi Chye Law, Nagavalli Somasundaram, Ravindran Kanesvaran, Quan Sing Ng, Chee Kian Tham, Chee Keong Toh, Soon Thye Lim, Miriam Tao, Tiffany Tang, Richard Quek, Mohamad Farid
PURPOSE: Since few studies have investigated whether the Distress Thermometer (DT) in Asian adolescent and young adult (AYA) cancer patients (between 15 and 39 years), we investigated the appropriateness of the DT as a screening tool for psychological symptom burden in these AYA patients and to evaluate AYA patients' distress across a trajectory of three time points longitudinally over a 6-month period. METHODS: This was a prospective, longitudinal study. Recruited Asian AYA patients were diagnosed with lymphomas, sarcomas, primary brain malignancies, or germ cell tumors...
April 11, 2018: Supportive Care in Cancer: Official Journal of the Multinational Association of Supportive Care in Cancer
https://www.readbyqxmd.com/read/29617470/applicability-of-a-generic-questionnaire-for-quality-of-life-assessment-for-asthmatic-children
#20
Ana Aline Marcelino da Silva, Álvaro Campos Cavalcanti Maciel, Priscilla Rique Furtado, Renata Ramos Tomaz, Thalita Medeiros Fernandes de Macêdo, Karla Morganna Pereira Pinto de Mendonça
OBJECTIVE: To determine the applicability of the generic instrument Pediatric Quality of Life Inventory (PedsQL 4.0) to assess health-related quality of life of asthmatic children compared to the specific instrument Pediatric Asthma Quality of Life Questionnaire (PAQLQ). METHODS: This research involved the evaluation of 30 children aged seven to eleven years, who had been diagnosed with asthma for at least six months prior to research. Both quality of life questionnaires were applied to children by an interviewer over the period of one day...
March 29, 2018: Revista Paulista de Pediatria: Orgão Oficial da Sociedade de Pediatria de São Paulo
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