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https://www.readbyqxmd.com/read/28645200/prognostic-awareness-prognostic-communication-and-cognitive-function-in-patients-with-malignant-glioma
#1
Eli L Diamond, Holly G Prigerson, Denise C Correa, Anne Reiner, Katherine Panageas, Maria Kryza-Lacombe, Justin Buthorn, Elizabeth C Neil, Alex M Miller, Lisa M DeAngelis, Allison J Applebaum
Background: Malignant glioma (MG) is a devastating neuro-oncologic disease with almost invariably poor prognosis. Prognostic awareness (PA) is the awareness of incurable disease and shortened life-expectancy (LE). Accurate PA is associated with favorable psychological outcomes at the end-of-life (EOL) for patients with cancer, however little is known about PA or prognostic communication in MG. Moreover, research has yet to evaluate the impact of cognitive impairment on PA and preferred forms of communication...
June 22, 2017: Neuro-oncology
https://www.readbyqxmd.com/read/28637450/health-care-use-and-costs-at-the-end-of-life-a-comparison-of-elderly-australian-decedents-with-and-without-a-cancer-history
#2
Rebecca Reeve, Preeyaporn Srasuebkul, Julia M Langton, Marion Haas, Rosalie Viney, Sallie-Anne Pearson
BACKGROUND: There is limited population-level research on end-of-life care in Australia that considers health care use and costs across hospital and community sectors. The aim of this study was to quantify health care use and costs in the last 6 months of life in a cohort of elderly Australian decedents and to examine the factors associated with end-of-life resource use and costs. METHODS: A retrospective cohort study using routinely collected health data from Australian Government Department of Veterans' Affairs clients...
June 21, 2017: BMC Palliative Care
https://www.readbyqxmd.com/read/28623155/care-toward-the-end-of-life-in-older-populations-and-its-implementation-facilitators-and-barriers-a-scoping-review
#3
REVIEW
Diane Erin Threapleton, Roger Y Chung, Samuel Y S Wong, Eliza L Y Wong, Nicole Kiang, Patsy Y K Chau, Jean Woo, Vincent C H Chung, Eng Kiong Yeoh
PURPOSE: To inform health system improvements for care of elderly populations approaching the end of life (EOL) by identifying important elements of care and implementation barriers and facilitators. DESIGN: A scoping review was carried out to identify key themes in EOL care. Articles were identified from MEDLINE, the Cochrane Library, organizational websites, and internet searches. Eligible publications included reviews, reports, and policy documents published between 2005 and 2016...
June 13, 2017: Journal of the American Medical Directors Association
https://www.readbyqxmd.com/read/28622379/end-of-life-care-for-people-with-dementia-the-views-of-health-professionals-social-care-service-managers-and-frontline-staff-on-key-requirements-for-good-practice
#4
Richard Philip Lee, Claire Bamford, Marie Poole, Emma McLellan, Catherine Exley, Louise Robinson
BACKGROUND: Evidence consistently shows that people with advanced dementia experience suboptimal end of life care compared to those with cancer; with increased hospitalisation, inadequate pain control and fewer palliative care interventions. Understanding the views of those service managers and frontline staff who organise and provide care is crucial in order to develop better end of life care for people with dementia. METHODS AND FINDINGS: Qualitative interviews and focus groups were conducted from 2013 to 2015 with 33 service managers and 54 staff involved in frontline care, including doctors, nurses, nursing and care home managers, service development leads, senior managers/directors, care assistants and senior care assistants/team leads...
2017: PloS One
https://www.readbyqxmd.com/read/28617622/treatment-and-communication-that-is-what-matters-an-analysis-of-complaints-regarding-end-of-life-care
#5
Jiska Cohen-Mansfield, Michal Skornick-Bouchbinder, Rinat Cohen, Shai Brill
BACKGROUND: Investigating complaints concerning end-of-life (EoL) care is a necessary step for improving the quality of life at its final stage. OBJECTIVE: We aimed to classify and quantify the aspects of EoL care that require improvement by analyzing caregivers' feedback on the care their relatives received before death. DESIGN: A survey of primary family caregivers of deceased patients. SETTING/SUBJECTS: Relatives of decedents were recruited through two geriatric medical centers and from persons contacted for other studies, who reported losing a relative...
June 15, 2017: Journal of Palliative Medicine
https://www.readbyqxmd.com/read/28602987/modification-of-oil-palm-fronds-lignin-by-incorporation-of-m-cresol-for-improving-structural-and-antioxidant-properties
#6
Nurul Atiqah Sa'don, Afidah Abdul Rahim, Mohamad Nasir Mohamad Ibrahim, Nicolas Brosse, M Hazwan Hussin
Lignin extracted from oil palm fronds (OPF) underwent chemical modification by incorporating m-cresol into the lignin matrix. This study reports on the physicochemical properties and antioxidant activity of unmodified autohydrolyzed ethanol organosolv lignin (AH EOL) and the modified autohydrolyzed ethanol organosolv lignin (AHC EOL). The lignin samples were analyzed by FTIR, (1)H and (13)C NMR spectroscopy, 2D NMR: HSQC spectroscopy, CHN analysis, molecular weight distribution analysis; GPC and thermal analysis; DSC and TGA...
June 8, 2017: International Journal of Biological Macromolecules
https://www.readbyqxmd.com/read/28595434/radiotherapy-for-brain-metastases-near-the-end-of-life-in-an-integrated-health-care-system
#7
Joan J Ryoo, Michael Batech, Chengyi Zheng, Raymond W Kim, Michael K Gould, A Robert Kagan, Winston W Lien
BACKGROUND: To examine radiotherapy (RT) patterns-of-care and utilization at the end of life (EOL) among non-small cell lung cancer (NSCLC) patients with brain metastasis (BrM) in an integrated health care system. METHODS: Central tumor registry identified 5,133 patients diagnosed with NSCLC from 2007-2011. BrM were determined by imaging. Patient and clinical characteristics were obtained by chart abstraction. In addition to abstracted variables, graded prognostic assessment (GPA) score of 0-1 was derived by collected data and tested as a predictor of death within 14 or 30 days of RT...
April 15, 2017: Annals of Palliative Medicine
https://www.readbyqxmd.com/read/28592164/what-did-latino-family-caregivers-expect-and-learn-from-education-intervention-caregivers-like-me
#8
Dulce M Cruz-Oliver, Manas Parikh, Cara L Wallace, Theodore K Malmstrom, Sandra Sanchez-Reilly
OBJECTIVE: US Latinos historically have underutilized end-of-life (EOL) resources. This study reports the views of family caregivers before and after education intervention Caregivers Like Me geared to improve knowledge and attitudes regarding EOL resources among Latino caregivers. METHODS: This is a qualitative substudy within a multicentered cross-sectional study design. Educational intervention was offered to family caregivers of Latino elders from 3 different communities, using an audiovisual presentation, including a case-based video telenovela and pre-posttest questionnaires with open-ended questions...
January 1, 2017: American Journal of Hospice & Palliative Care
https://www.readbyqxmd.com/read/28590407/family-communication-about-end-of-life-decisions-and-the-enactment-of-the-decision-maker-role
#9
April R Trees, Jennifer E Ohs, Meghan C Murray
End-of-life (EOL) decisions in families are complex and emotional sites of family interaction necessitating family members coordinate roles in the EOL decision-making process. How family members in the United States enact the decision-maker role in EOL decision situations was examined through in-depth interviews with 22 individuals who participated in EOL decision-making for a family member. A number of themes emerged from the data with regard to the enactment of the decision-maker role. Families varied in how decision makers enacted the role in relation to collective family input, with consulting, informing and collaborating as different patterns of behavior...
June 7, 2017: Behavioral Sciences
https://www.readbyqxmd.com/read/28578815/three-years-experience-with-the-first-pediatric-hospice-in-asia
#10
Kohei Ando, Makoto Nabetani, Nobuyuki Yotani, Tatsushi Rin, Hiroyuki Sano
OBJECTIVE: Pediatric hospice has been the adoption of several service provision models in highly developed countries such as UK, Germany, Australia or Canada for a few decades, yet it has seldom been the case in the Asian Continent. This study aimed to evaluate the newest challenge for the children with Life-threatening illness (LTI) and described the characteristic of pediatric palliative care at the first pediatric hospice in Japan. METHODS: A retrospective review of all patients at our pediatric hospice in these three years was conducted...
May 31, 2017: Brain & Development
https://www.readbyqxmd.com/read/28571496/occupational-variation-in-end-of-life-care-intensity
#11
Joseph A Hyder, R Sterling Haring, Daniel Sturgeon, Priscilla K Gazarian, Wei Jiang, Zara Cooper, Stuart R Lipsitz, Holly G Prigerson, Joel S Weissman
BACKGROUND: End-of-life (EOL) care intensity is known to vary by secular and geographic patterns. US physicians receive less aggressive EOL care than the general population, presumably the result of preferences shaped by work-place experience with EOL care. OBJECTIVE: We investigated occupation as a source of variation in EOL care intensity. METHODS: Across 4 states, we identified 660 599, nonhealth maintenance organization Medicare beneficiaries aged ≥66 years who died between 2004 and 2011...
January 1, 2017: American Journal of Hospice & Palliative Care
https://www.readbyqxmd.com/read/28570382/critical-care-nurses-suggestions-to-improve-end-of-life-care-obstacles-minimal-change-over-17-years
#12
Renea L Beckstrand, Kacie Hart Hadley, Karlen E Luthy, Janelle L B Macintosh
BACKGROUND: Critical-care nurses (CCNs) provide end-of-life (EOL) care on a daily basis as 1 in 5 patients dies while in intensive care units. Critical-care nurses overcome many obstacles to perform quality EOL care for dying patients. OBJECTIVES: The purposes of this study were to collect CCNs' current suggestions for improving EOL care and determine if EOL care obstacles have changed by comparing results to data gathered in 1998. METHODS: A 72-item questionnaire regarding EOL care perceptions was mailed to a national, geographically dispersed, random sample of 2000 members of the American Association of Critical-Care Nurses...
July 2017: Dimensions of Critical Care Nursing: DCCN
https://www.readbyqxmd.com/read/28568843/is-there-additional-value-attached-to-health-gains-at-the-end-of-life-a-revisit
#13
Dorte Gyrd-Hansen
Researchers have in recent years sought to establish whether the general public value treatment at the end of life (EOL) more highly than other treatments. Results are mixed, with social preferences most often exhibiting lack of preferences for EOL treatments. This null result may be driven by the often applied study design, where respondents are to choose between treatments targeting patients with varying fixed life expectancies. When remaining life is certain and salient, a rule-of-rescue sentiment may drive preferences across all scenarios...
June 1, 2017: Health Economics
https://www.readbyqxmd.com/read/28562152/end-of-life-chemotherapy-use-at-a-finnish-university-hospital-a-retrospective-cohort-study
#14
Liisa K Rautakorpi, Fatemeh Seyednasrollah, Johanna M Mäkelä, Outi M Hirvonen, Tarja Laitinen, Laura L Elo, Sirkku M Jyrkkiö
BACKGROUND: Recent trends in the end-of-life (EOL) cancer care have suggested that the levels of treatment are becoming more aggressive. The aim of this single-center study was to evaluate the time from the last intravenous (IV) chemotherapy treatment to death and identify factors correlating with treatment closer to death. MATERIAL AND METHODS: The study included all patients diagnosed with cancer at Turku University Central Hospital between the years 2005 and 2013 (N = 38,982) who received IV chemotherapy during the last year of life (N = 3285)...
May 31, 2017: Acta Oncologica
https://www.readbyqxmd.com/read/28560783/end-of-life-care-planning-in-accountable-care-organizations-associations-with-organizational-characteristics-and-capabilities
#15
Sangeeta C Ahluwalia, Benjamin J Harris, Valerie A Lewis, Carrie H Colla
OBJECTIVE: To measure the extent to which accountable care organizations (ACOs) have adopted end-of-life (EOL) care planning processes and characterize those ACOs that have established processes related to EOL. DATA SOURCES: This study uses data from three waves (2012-2015) of the National Survey of ACOs. Respondents were 397 ACOs participating in Medicare, Medicaid, and commercial ACO contracts. STUDY DESIGN: This is a cross-sectional survey study using multivariate ordered logit regression models...
May 30, 2017: Health Services Research
https://www.readbyqxmd.com/read/28557586/qualitative-study-of-patients-and-caregivers-perceptions-and-information-preferences-about-hospice
#16
Areej El-Jawahri, Lara Traeger, Jennifer A Shin, Helen Knight, Kristina Mirabeau-Beale, Joel Fishbein, Harry H Vandusen, Vicki A Jackson, Angelo E Volandes, Jennifer S Temel
OBJECTIVE: The goal of this study is to assess perceptions about hospice among patients with metastatic cancer and their caregivers (i.e., family and/or friends). DESIGN AND SETTING: We conducted semi-structured interviews with 16 adult patients with a prognosis ≤12 months and 7 of their caregivers. The interviews focused on perceptions, knowledge, and information preferences about hospice. Two raters coded interviews independently (κ > 0.85). We used a framework approach for data analysis...
May 30, 2017: Journal of Palliative Medicine
https://www.readbyqxmd.com/read/28549702/iagg-iagg-garn-international-survey-of-end-of-life-care-in-nursing-homes
#17
Cara L Wallace, Daniel Swagerty, Mario Barbagallo, Bruno Vellas, Heung Bong Cha, Iva Holmerova, Birong Dong, Raymond Koopmans, Alfonso J Cruz-Jentoft, Luis Miguel Gutierrez Robledo, Juan Cuadros Moreno, Ramzi Hajjar, Jean Woo, Hidenori Arai, Jiro Okochi, Renuka Visvanathan, Samia A Abdul-Rahman, Ashish Goel, Andrea Moser, Yves Rolland, Angela M Abbatecola, Marcello Russo, John E Morley
This article reports the findings of a survey on end-of-life (EOL) care in nursing homes of 18 long-term care experts across 15 countries. The experts were chosen as a convenience-based sample of known experts in each country. The survey was administered in 2016 and included both open-ended responses for defining hospice care, palliative care, and "end of life," and a series of questions related to the following areas-attitudes toward EOL care, current practice and EOL interventions, structure of care, and routine barriers...
June 1, 2017: Journal of the American Medical Directors Association
https://www.readbyqxmd.com/read/28549303/end-of-life-eol-mobile-phone-management-in-hong-kong-households
#18
Wen-Jing Deng, John P Giesy, C S So, Hai-Long Zheng
A questionnaire survey and interviews were conducted in households and end-of-life (EoL) mobile phone business centres in Hong Kong. Widespread Internet use, combined with the rapid evolution of modern social networks, has resulted in the more rapid obsolescence of mobile phones, and thus a tremendous increase in the number of obsolete phones. In 2013, the volume of EoL mobile phones generated in Hong Kong totalled at least 330 tonnes, and the amount is rising. Approximately 80% of electronic waste is exported to Africa and developing countries such as mainland China or Pakistan for recycling...
May 23, 2017: Journal of Environmental Management
https://www.readbyqxmd.com/read/28548914/quality-of-paediatric-hospice-care-for-children-with-and-without-multiple-complex-chronic-conditions
#19
Lisa C Lindley, Jessica Keim-Malpass
BACKGROUND: Hospice care for children with multiple complex chronic conditions (MCCC) is complicated given their unique health at the end of life (EOL). Little is known about the quality of the hospice care MCCC children receive and how that might differ from children without MCCC. OBJECTIVE: To compare the quality of hospice care (i.e., structures, processes, outcomes) between children with and without MCCC. METHODS: This retrospective, comparative study used data from the National Home and Hospice Care Survey, which included a nationally representative sample of paediatric hospice patients...
May 2, 2017: International Journal of Palliative Nursing
https://www.readbyqxmd.com/read/28506145/areas-of-control-desired-by-patients-and-families-referred-to-hospice-care-perspectives-of-hospice-admissions-staff
#20
Hyunjin Noh
Sense of control in end-of-life (EOL) care plays a critical role in the patient's well-being. However, little is known about the areas of control essential to patients and families at a specific time point in the illness trajectory: when patients stop curative treatments and are referred to hospice. This study qualitatively explored such areas. Sixteen admissions staff members from four hospice agencies were interviewed about their perceptions of areas in which patients and families worried about losing control by accepting hospice...
May 1, 2017: Journal of Applied Gerontology: the Official Journal of the Southern Gerontological Society
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