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https://www.readbyqxmd.com/read/29775556/let-s-talk-about-it-supporting-family-communication-during-end-of-life-care-of-pediatric-patients
#1
Meghan L Marsac, Christine Kindler, Danielle Weiss, Lindsay Ragsdale
BACKGROUND: Communication is key in optimizing medical care when a child is approaching end of life (EOL). Research is yet to establish best practices for how medical teams can guide intrafamily communication (including surviving siblings) when EOL care is underway or anticipated for a pediatric patient. While recommendations regarding how medical teams can facilitate communication between the medical team and the family exist, various barriers may prevent the implementation of these recommendations...
May 18, 2018: Journal of Palliative Medicine
https://www.readbyqxmd.com/read/29775490/monolithic-flexible-vertical-gan-light-emitting-diodes-for-a-transparent-wireless-brain-optical-stimulator
#2
Han Eol Lee, JeHyuk Choi, Seung Hyun Lee, Minju Jeong, Jung Ho Shin, Daniel J Joe, DoHyun Kim, Chang Wan Kim, Jung Hwan Park, Jae Hee Lee, Daesoo Kim, Chan-Soo Shin, Keon Jae Lee
Flexible inorganic-based micro light-emitting diodes (µLEDs) are emerging as a significant technology for flexible displays, which is an important area for bilateral visual communication in the upcoming Internet of Things era. Conventional flexible lateral µLEDs have been investigated by several researchers, but still have significant issues of power consumption, thermal stability, lifetime, and light-extraction efficiency on plastics. Here, high-performance flexible vertical GaN light-emitting diodes (LEDs) are demonstrated by silver nanowire networks and monolithic fabrication...
May 18, 2018: Advanced Materials
https://www.readbyqxmd.com/read/29768074/cancer-treatment-and-end-of-life-care
#3
Sudha Sinha, Jaskirt Kaur Matharu, Jean Jacob, Gayatri Palat, Eva Brun, Thomas Wiebe, Mikael Segerlantz
AIM: To study to what extent tumor-specific treatment (chemo- or radiotherapy) was given during the last 30 days in life and to examine how many of the patients were referred to a specialized palliative care unit (PCU), at a low-resource governmental hospital in India. PATIENTS AND METHODS: Medical records of adult cancer patients deceased between April 1 and May 31 in 2016, and pediatric cancer patients deceased between April 1 and September 30 in 2016 were collected...
May 16, 2018: Journal of Palliative Medicine
https://www.readbyqxmd.com/read/29764171/compassionate-communities-design-and-preliminary-results-of-the-experience-of-vic-barcelona-spain-caring-city
#4
Xavier Gómez-Batiste, Silvia Mateu, Susagna Serra-Jofre, Magda Molas, Sarah Mir-Roca, Jordi Amblàs, Xavier Costa, Cristina Lasmarías, Marta Serrarols, Alvar Solà-Serrabou, Candela Calle, Allan Kellehear
BACKGROUND: A program of Compassionate City or Community (CC) has been designed and developed in the City of Vic (43,964 habitants, Barcelona, Spain), based on The Compassionate City Charter and other public health literature and experiments, with the joint leadership of the City Council and the Chair of Palliative Care at the University of Vic, and as an expansion of a comprehensive and integrated system of palliative care. METHODS: The program started with an assessment of needs of the city as identified by 48 social organizations with a foundational workshop and a semi-structured survey...
April 2018: Annals of Palliative Medicine
https://www.readbyqxmd.com/read/29757869/end-of-life-care-for-patients-with-advanced-ovarian-cancer-is-aggressive-despite-hospice-intervention-a-population-based-study
#5
Jui-Kun Chiang, Chun-Shuo Hsu, Chih-Wen Lin, Yee-Hsin Kao
OBJECTIVE: To date, few studies have examined end-of-life (EOL) care and healthcare costs for patients with ovarian cancer. We evaluated the effects of hospice care on the quality of EOL care and healthcare costs for patients with ovarian cancer in the final month of life. MATERIALS AND METHODS: We conducted a population-based study and analyzed data from Taiwan's Longitudinal Health Insurance Database, which contains claims information for medical records of patients, healthcare costs, and insurance system exit dates: our proxy for death between 1997 and 2011...
May 11, 2018: International Journal of Gynecological Cancer
https://www.readbyqxmd.com/read/29752324/dances-with-denial-have-medical-oncology-outpatients-conveyed-their-end-of-life-wishes-and-do-they-want-to
#6
Amy Waller, Charles Douglas, Rob Sanson-Fisher, Nicholas Zdenkowski, Angela Pearce, Tiffany Evans, Justin Walsh
Objectives: This study surveyed a sample of medical oncology outpatients to determine (1) the proportion who have already discussed and documented their end-of-life (EOL) wishes; (2) when and with whom they would prefer to convey their EOL wishes; (3) the EOL issues they would want to discuss; and (4) the association between perceived cancer status and advance care planning (ACP) participation. Methods: Adult medical oncology outpatients were approached in the waiting room of an Australian tertiary treatment center...
May 2018: Journal of the National Comprehensive Cancer Network: JNCCN
https://www.readbyqxmd.com/read/29744765/adaptation-acceptance-and-adaptive-preferences-in-health-and-capability-well-being-measurement-amongst-those-approaching-end-of-life
#7
Joanna Coast, Cara Bailey, Rosanna Orlando, Kathy Armour, Rachel Perry, Louise Jones, Philip Kinghorn
BACKGROUND AND OBJECTIVES: Adaptive preferences occur when people subconsciously alter their views to account for the possibilities available to them. Adaptive preferences may be problematic where these views are used in resource allocation decisions because they may lead to underestimation of the true benefits of providing services. This research explored the nature and extent of both adaptation (changing to better suit the context) and adaptive preferences (altering preferences in response to restricted options) in individuals approaching the end of life (EoL)...
May 9, 2018: Patient
https://www.readbyqxmd.com/read/29725803/quality-versus-quantity-in-end-of-life-choices-of-cancer-patients-and-support-persons-a-discrete-choice-experiment
#8
Amy Waller, Rob Sanson-Fisher, Scott D Brown, Laura Wall, Justin Walsh
OBJECTIVES: To explore in a sample of medical oncology outpatients and their nominated support persons (SPs): (1) the relative influence of pain, consciousness and life extension on end-of-life choices using a discrete choice experiment (DCE); (2) the extent to which SPs can predict the choices of index patients and (3) whether having a previous end-of-life discussion was associated with dyad agreement. METHODS: Adult medical oncology patients and their SPs were approached for consent to complete a survey containing a DCE...
May 3, 2018: Supportive Care in Cancer: Official Journal of the Multinational Association of Supportive Care in Cancer
https://www.readbyqxmd.com/read/29723565/using-social-network-analysis-to-investigate-positive-eol-communication
#9
Jiayun Xu, Rumei Yang, Andrew Wilson, Maija Reblin, Margaret F Clayton, Lee Ellington
CONTEXT: End of life (EOL) communication is a complex process involving the whole family and multiple care providers. Applications of analysis techniques that account for communication beyond the patient and patient/provider, will improve clinical understanding of EOL communication. OBJECTIVES: To introduce the use of social network analysis to EOL communication data, and to provide an example of applying social network analysis to home hospice interactions. METHODS: We provide a description of social network analysis using social network analysis to model communication patterns during home hospice nursing visits...
April 30, 2018: Journal of Pain and Symptom Management
https://www.readbyqxmd.com/read/29703204/exploring-end-of-life-interaction-in-dyads-of-parents-and-adult-children-a-protocol-for-a-mixed-methods-study
#10
Stephanie Stiel, Eva-Maria Stelzer, Nils Schneider, Franziska A Herbst
BACKGROUND: A considerable number of terminally-ill adult children are outlived by at least one parent and receive palliative care prior to their death. At the same time, adult children continue to be confronted with their parents' terminal illnesses and end-of-life situations. The current study explores the specifics of dyadic interaction at the end of life between a) adult children suffering from a life-threatening disease and their parents, and b) terminally ill parents and their adult children...
April 27, 2018: BMC Palliative Care
https://www.readbyqxmd.com/read/29703112/family-members-experiences-of-care-of-the-dying-in-residential-care-homes-where-the-liverpool-care-pathway-was-used
#11
Sofia Andersson, Olav Lindqvist, Carl-Johan Fürst, Margareta Brännström
BACKGROUND: Residential care homes (RCHs) are increasingly becoming a common place of death for older people. AIM: The aim of this study was to describe family members' experiences of care of the dying in RCHs where the Liverpool care pathway for the dying patient was used. METHODS: This study had a descriptive qualitative study design. Fifteen (n=15) individual interviews were analysed using qualitative content analysis. RESULTS: The analysis resulted in three themes: being confident in a familiar and warm atmosphere, being involved vs not being involved in end-of-life (EoL) care, and being consoled by witnessing the health professional's endeavour to relieve suffering...
April 2, 2018: International Journal of Palliative Nursing
https://www.readbyqxmd.com/read/29677380/end-of-life-education-and-discussions-with-assisted-living-certified-nursing-assistants
#12
Wendy L Mohlman, Kara Dassel, Katherine P Supiano, Michael Caserta
In previous work, the current researchers examined attitudes and experiences of certified nursing assistants (CNAs) providing end-of-life (EOL) care in an assisted living facility (ALF). Results showed that 70% of participating CNAs felt unprepared to provide EOL care, largely due to not having received prior EOL care education within their schools or workplaces. Therefore, the goal of the current study was to implement and evaluate EOL and postmortem education to ALF CNAs. A focus group of 14 CNAs within an ALF was provided EOL education pertaining to the physiological and psychological changes observed in patients nearing EOL and postmortem care...
April 19, 2018: Journal of Gerontological Nursing
https://www.readbyqxmd.com/read/29670184/wogonin-attenuates-nasal-polyp-formation-by-inducing-eosinophil-apoptosis-through-hif-1%C3%AE-and-survivin-suppression
#13
Roza Khalmuratova, Mingyu Lee, Ji-Hun Mo, YunJae Jung, Jong-Wan Park, Hyun-Woo Shin
Chronic rhinosinusitis (CRS) with nasal polyps (CRSwNP) is an inflammatory sinonasal disorder characterized by eosinophilic inflammation and T-helper 2 skewing. Eosinophil accumulation in sinonasal mucosa comprises a major feature of CRSwNP. The study aimed to investigate the effect of the flavone wogonin in nasal polyposis by assessing its ability to induce eosinophil apoptosis in vitro and attenuate eosinophilic CRSwNP in mice. Double immunofluorescence, immunohistochemistry, flow cytometry, and immunoblotting were performed to evaluate hypoxia-inducible factor (HIF)-1α, survivin, and apoptotic markers in the human eosinophilic EoL-1 cell line or sinonasal tissues from patients with CRS with or without NPs...
April 18, 2018: Scientific Reports
https://www.readbyqxmd.com/read/29669147/impact-and-reception-of-a-required-4-week-palliative-medicine-rotation
#14
B Brent Simmons, Alison Petrie, Edward Gracely
BACKGROUND AND OBJECTIVES: Hospice and palliative medicine (HPM) is one of three Accreditation Council for Graduate Medical Education accredited clinical subspecialties available to family medicine graduates for fellowship training. Despite this, training is not currently a curriculum requirement. We have pioneered a required 4-week palliative medicine rotation into the curriculum. METHODS: Twenty-eight residents who completed the palliative medicine rotation across four classes were surveyed to assess how the rotation improved their level of comfort with providing end-of-life (EOL) care and to demonstrate the need of formal palliative medicine training...
April 2018: Family Medicine
https://www.readbyqxmd.com/read/29649031/low-level-of-vegetative-state-after-traumatic-brain-injury-in-a-swiss-academic-hospital
#15
Federica Stretti, Stephanie Klinzing, Ulrike Ehlers, Peter Steiger, Reto Schuepbach, Tanja Krones, Giovanna Brandi
BACKGROUND: No standards exist regarding decision making for comatose patients, especially concerning life-saving treatments. The aim of this retrospective, single-center study was to analyze outcomes and the decision-making process at the end of life (EOL) in patients with traumatic brain injury (TBI) in a Swiss academic tertiary care hospital. METHODS: Consecutive admissions to the surgical intensive care unit (ICU) with stays of at least 48 hours between January 1, 2012 and June 30, 2015 in patients with moderate to severe TBI and with fatality within 6 months after trauma were included...
April 11, 2018: Anesthesia and Analgesia
https://www.readbyqxmd.com/read/29642710/teaching-residents-how-to-talk-about-death-and-dying-a-mixed-methods-analysis-of-barriers-and-randomized-educational-intervention
#16
David C Miller, Amy M Sullivan, Morgan Soffler, Brett Armstrong, Asha Anandaiah, Laura Rock, Jakob I McSparron, Richard M Schwartzstein, Margaret M Hayes
OBJECTIVES: We present a pilot study exploring the effects of a brief, 30-minute educational intervention targeting resident communication surrounding dying in the intensive care unit (ICU). We sought to determine whether simulation or didactic educational interventions improved resident-reported comfort, preparation, and skill acquisition. We also sought to identify resident barriers to using the word "dying." METHODS: In this mixed-methods prospective study, second- and third-year medical residents were randomized to participate in a simulation-based communication training or a didactic session...
January 1, 2018: American Journal of Hospice & Palliative Care
https://www.readbyqxmd.com/read/29620949/associations-between-race-and-dementia-status-and-the-quality-of-end-of-life-care
#17
Elizabeth A Luth, Holly G Prigerson
BACKGROUND: Non-Hispanic black and dementia patients receive more invasive and futile treatment at end of life (EOL) relative to others. Little is known about the relationship between race/ethnicity, dementia, and EOL care quality. OBJECTIVE: Identify the relationship between race/ethnicity, dementia, and proxy reporters' evaluation of EOL care quality in older adults. DESIGN: Latent class analysis (LCA) of national survey data. SETTING: 1588 deceased Medicare beneficiaries age 65 and older from the National Health and Aging Trends Study (2011-2016)...
April 5, 2018: Journal of Palliative Medicine
https://www.readbyqxmd.com/read/29620556/parent-perspectives-of-receiving-early-information-about-palliative-and-end-of-life-care-options-from-their-child-s-pediatric-providers
#18
Verna L Hendricks-Ferguson, Joan E Haase
BACKGROUND: Parents of children diagnosed with cancer may experience decision regret about cancer treatment decisions and dissatisfaction with the perceived clarity in information received from their child's providers. OBJECTIVE: The aim of this study was to describe parental perspectives about receiving an early palliative care and end-of-life (PC/EOL) communication intervention titled "Communication Plan: Early through End of Life Intervention" (COMPLETE) from an interprofessional team of physician and registered nurse providers...
April 3, 2018: Cancer Nursing
https://www.readbyqxmd.com/read/29608384/asking-terminally-ill-patients-about-their-preferences-concerning-place-of-care-and-death
#19
Mette Asbjoern Neergaard, Trine Brogaard, Peter Vedsted, Anders Bonde Jensen
BACKGROUND: Asking patients with palliative care needs about their end-of-life (EoL) preferences is widely acknowledged as an important aspect of EoL care. However, the issue of how to ask patients these questions has not been fully explored. Most prior studies in this area do not differentiate between patients' pragmatic preferences and ideal preferences, and between preferences concerning place of care (PoC) and place of death (PoD). AIM: The aim of this study was to examine possible differences between pragmatic and ideal preferences of terminally ill patients, as well as differences between asking patients about preferences concerning PoC and PoD...
March 2, 2018: International Journal of Palliative Nursing
https://www.readbyqxmd.com/read/29580867/eosinophils-accelerate-pathogenesis-of-psoriasis-by-supporting-inflammatory-milieu-that-promotes-neutrophil-infiltration
#20
Hee Joo Kim, Joo Young Roh, YunJae Jung
Eosinophils are proinflammatory granulocytes that are involved in the pathogenesis of various inflammatory reactions. However, their roles in psoriasis remain largely unknown. In this study, by examining the inflammatory features of the eosinophilic cell line EoL-1 and an imiquimod (IMQ)-induced murine model of psoriasis, we showed that eosinophils provide inflammatory signals that accelerate the pathogenesis of psoriasis. EoL-1 cells constitutively expressed TLR7, which mediates acute and rapidly developing psoriatic inflammation...
March 23, 2018: Journal of Investigative Dermatology
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