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DDS survey dysphagia

Katherine A Benfer, Kelly A Weir, Kristie L Bell, Baitun Nahar, Robert S Ware, Peter S W Davies, Roslyn N Boyd
PURPOSE: There is paucity of research investigating oropharyngeal dysphagia (OPD) in young children with cerebral palsy (CP), and most studies explore OPD in high-resource countries. This study aimed at determining the proportion and severity of OPD in preschool children with CP in Bangladesh, compared to Australia. METHOD: Cross-sectional, comparison of two cohorts. Two hundred and eleven children with CP aged 18-36 months, 81 in Bangladesh (mean = 27.6 months, 61...
September 26, 2016: Disability and Rehabilitation
Cagla Kantarcigil, Justine Joan Sheppard, Andrew M Gordon, Kathleen M Friel, Georgia A Malandraki
BACKGROUND: Accurate and timely evaluation of dysphagia in children with cerebral palsy (CP) is critical. For children with limited access to quality healthcare, telehealth is an option; however, its reliability needs to be investigated. AIM: To test the reliability of an asynchronous telehealth model for evaluating dysphagia in children with CP using a standardized clinical assessment. METHODS AND PROCEDURES: Nineteen children (age range 6...
August 2016: Research in Developmental Disabilities
Katherine A Benfer, Kelly A Weir, Kristie L Bell, Robert S Ware, Peter S Davies, Roslyn N Boyd
OBJECTIVES: To determine changes in prevalence and severity of oropharyngeal dysphagia (OPD) in children with cerebral palsy (CP) and the relationship to health outcomes. DESIGN: Longitudinal cohort study. SETTING: Community and tertiary institutions. PARTICIPANTS: Children (N=53, 33 boys) with a confirmed diagnosis of CP assessed first at 18 to 24 months (Assessment 1: mean age ± SD, 22.9±2.9 mo corrected age; Gross Motor Function Classification System [GMFCS]: I, n=22; II, n=7; III, n=11; IV, n=5; V, n=8) and at 36 months (Assessment 2)...
April 2016: Archives of Physical Medicine and Rehabilitation
Katherine A Benfer, Kelly A Weir, Kristie L Bell, Robert S Ware, Peter S W Davies, Roslyn N Boyd
AIM: The aim of the study was to determine the best measure to discriminate between those with oropharyngeal dysphagia (OPD) and those without OPD, among young children with cerebral palsy (CP). METHOD: We carried out a cross-sectional population-based study involving 130 children with CP aged between 18 months and 36 months (mean 27.4mo; 81 males, 49 females) classified according to the Gross Motor Function Classification Scale (GMFCS) as level I (n=57), II (n=15), III (n=23), IV (n=12), or V (n=23)...
April 2015: Developmental Medicine and Child Neurology
Justine Joan Sheppard, Roberta Hochman, Carolynn Baer
Swallowing and feeding disorder (dysphagia) have high incidence and prevalence in children and adults with developmental disability. Standardized screening and clinical assessments are needed to identify and describe the disorder. The aim of this study was to describe the psychometric properties of the Dysphagia Disorder Survey (DDS), a screening and clinical assessment of swallowing and feeding function for eating and drinking developed specifically for this population. The statistical analysis was performed on a sample of 654 individuals (age range 8-82) with intellectual and developmental disability living in two residential settings in the United States that served somewhat different populations...
May 2014: Research in Developmental Disabilities
Elsbeth Ac Calis, Rebekka Veugelers, Justine J Sheppard, Dick Tibboel, Heleen M Evenhuis, Corine Penning
This study assessed the clinical indicators and severity of dysphagia in a representative sample of children with severe generalized cerebral palsy and intellectual disability. A total of 166 children (85 males, 81 females) with Gross Motor Function Classification System Level IV or V and IQ<55 were recruited from 54 daycare centres. Mean age was 9 years 4 months (range 2 y 1 mo-19 y 1 mo). Clinically apparent presence and severity of dysphagia were assessed with a standardized mealtime observation, the Dysphagia Disorders Survey (DDS), and a dysphagia severity scale...
August 2008: Developmental Medicine and Child Neurology
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