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Children health services research

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https://www.readbyqxmd.com/read/28629443/parents-and-guardians-perceptions-on-availability-and-pricing-of-medicines-and-healthcare-for-children-in-ethekwini-south-africa-a-qualitative-study
#1
Velisha Ann Perumal-Pillay, Fatima Suleman
BACKGROUND: Inadequate access to affordable essential medicines poses a challenge to achieving Universal Health Coverage. Access to essential medicines for children has been in the spotlight in recent research. However, information from the end users of medicines, i.e. patients is scarce. Obtaining information at a household level is integral to understanding how people access, obtain and use medicines. This study aimed to gather opinions and perceptions from parents/guardians on availability, affordability and quality of medicines and healthcare for children in SA...
June 19, 2017: BMC Health Services Research
https://www.readbyqxmd.com/read/28627356/aquatic-therapy-for-children-with-duchenne-muscular-dystrophy-a-pilot-feasibility-randomised-controlled-trial-and-mixed-methods-process-evaluation
#2
Daniel Hind, James Parkin, Victoria Whitworth, Saleema Rex, Tracey Young, Lisa Hampson, Jennie Sheehan, Chin Maguire, Hannah Cantrill, Elaine Scott, Heather Epps, Marion Main, Michelle Geary, Heather McMurchie, Lindsey Pallant, Daniel Woods, Jennifer Freeman, Ellen Lee, Michelle Eagle, Tracey Willis, Francesco Muntoni, Peter Baxter
BACKGROUND: Duchenne muscular dystrophy (DMD) is a rare disease that causes the progressive loss of motor abilities such as walking. Standard treatment includes physiotherapy. No trial has evaluated whether or not adding aquatic therapy (AT) to land-based therapy (LBT) exercises helps to keep muscles strong and children independent. OBJECTIVES: To assess the feasibility of recruiting boys with DMD to a randomised trial evaluating AT (primary objective) and to collect data from them; to assess how, and how well, the intervention and trial procedures work...
May 2017: Health Technology Assessment: HTA
https://www.readbyqxmd.com/read/28623181/allele-level-hla-matching-for-umbilical-cord-blood-transplantation-for-non-malignant-diseases-in-children-a-retrospective-analysis
#3
Mary Eapen, Tao Wang, Paul A Veys, Jaap J Boelens, Andrew St Martin, Stephen Spellman, Carmem Sales Bonfim, Colleen Brady, Andrew J Cant, Jean-Hugues Dalle, Stella M Davies, John Freeman, Katherine C Hsu, Katharina Fleischhauer, Chantal Kenzey, Joanne Kurtzberg, Gerard Michel, Paul J Orchard, Annalisa Paviglianiti, Vanderson Rocha, Michael R Veneris, Fernanda Volt, Robert Wynn, Stephanie J Lee, Mary M Horowitz, Eliane Gluckman, Annalisa Ruggeri
BACKGROUND: The standard for selecting unrelated umbilical cord blood units for transplantation for non-malignant diseases relies on antigen-level (lower resolution) HLA typing for HLA-A and HLA-B, and allele-level for HLA-DRB1. We aimed to study the effects of allele-level matching at a higher resolution-HLA-A, HLA-B, HLA-C, and HLA-DRB1, which is the standard used for adult unrelated volunteer donor transplantation for non-malignant diseases-for umbilical cord blood transplantation...
June 13, 2017: Lancet Haematology
https://www.readbyqxmd.com/read/28617735/evaluating-the-effectiveness-of-using-a-progressive-muscle-relaxation-technique-on-the-self-efficacy-of-breastfeeding-in-mothers-with-preterm-infants
#4
Soheila Karbandi, Seyedeh Maryam Hosseini, Seyedeh Asieh Hosseini, Farshad Sadeghi, Maryam Hesari, Reza Masoudi
BACKGROUND: Breast milk is a God-given gift that conveys a mother's love and compassion and that is made according to the needs and age of the child. Mothers who are interested in the welfare of their newborns tend to breastfeed their children. Training programs have been shown to improve breastfeeding self-efficacy in terms of both duration and amount. PURPOSE: The aim of this study was to evaluate the effect of using the progressive muscle relaxation (PMR) technique on the self-efficacy of breastfeeding in mothers with preterm infants...
June 14, 2017: Journal of Nursing Research: JNR
https://www.readbyqxmd.com/read/28617212/leveraging-technology-to-address-the-quality-chasm-in-children-s-evidence-based-psychotherapy
#5
Kenneth J Ruggiero, Benjamin E Saunders, Tatiana M Davidson, Danna Lewsky Cook, Rochelle Hanson
The quality of psychosocial treatment delivery is highly variable in community practice settings, even among well-trained providers. This column discusses the potential to improve patient outcomes by targeting two important quality-of-care indicators through technology: provider fidelity and children's engagement. A case example describes one provider's use of numerous tablet-based activities in the context of evidence-based psychotherapy. Providers and families responded favorably to this approach in a recent feasibility study funded by the National Institute of Mental Health...
June 15, 2017: Psychiatric Services: a Journal of the American Psychiatric Association
https://www.readbyqxmd.com/read/28614488/social-inequalities-in-maternal-mortality-among-the-provinces-of-ecuador
#6
Antonio Sanhueza, Jakeline Calle Roldán, Paulina Ríos-Quituizaca, Maria Cecilia Acuña, Isabel Espinosa
Objective: This study set out to describe the association between the maternal mortality ratio (MMR) estimates and a set of socioeconomic indicators and compute the MMR inequalities among the provinces of Ecuador. Methods: A cross-sectional ecological study was conducted, using data for 2014 from the country's 24 provinces. The MMR estimate was calculated for each province, as well as the association and its strength between MMR and specific socioeconomic indicators...
June 8, 2017: Revista Panamericana de Salud Pública, Pan American Journal of Public Health
https://www.readbyqxmd.com/read/28598771/barriers-to-initiating-tuberculosis-treatment-in-sub-saharan-africa-a-systematic-review-focused-on-children-and-youth
#7
Brittney J Sullivan, B Emily Esmaili, Coleen K Cunningham
BACKGROUND: Tuberculosis (TB) is the deadliest infectious disease globally, with 10.4 million people infected and more than 1.8 million deaths in 2015. TB is a preventable, treatable, and curable disease, yet there are numerous barriers to initiating treatment. These barriers to treatment are exacerbated in low-resource settings and may be compounded by factors related to childhood. OBJECTIVE: Timely initiation of tuberculosis (TB) treatment is critical to reducing disease transmission and improving patient outcomes...
2017: Global Health Action
https://www.readbyqxmd.com/read/28598462/an-experience-of-optimizing-a-community-based-micro-insurance-model-to-bridge-the-gap-between-treatment-cost-and-ability-to-pay-at-bpkihs
#8
N Kumar, S Koirala, M Varma
In the year 2001 the leaders of BPKIHS started a micro social insurance scheme; Social Health Insurance (SHI) for prospective research. It is a method of financing and managing health care using compulsory contributions from employers, employees and may be from the government. Household members from organized groups in catchment areas enrolled voluntarily. Photographed service cards were issued entitled for free IPD/OPD consultations, investigations and bed charges excluding CT scans and specialty treatment...
January 2017: JNMA; Journal of the Nepal Medical Association
https://www.readbyqxmd.com/read/28597865/adoption-of-the-2015-world-health-organization-guidelines-on-antiretroviral-therapy-programmatic-implications-for-india
#9
Bharat Bhushan Rewari, Reshu Agarwal, Suresh Shastri, Sharath Burugina Nagaraja, Abhilakh Singh Rathore
The therapeutic and preventive benefits of early initiation of antiretroviral therapy (ART) for HIV are now well established. Reflecting new research evidence, in 2015 the World Health Organization (WHO) recommended initiation of ART for all people living with HIV (PLHIV), irrespective of their clinical staging and CD4 cell count. The National AIDS Control Programme (NACP) in India is currently following the 2010 WHO ART guidelines for adults and the 2013 guidelines for pregnant women and children. This desk study assessed the number of people living with HIV who will additionally be eligible for ART on adoption of the 2015 WHO recommendations on ART...
April 2017: WHO South-East Asia Journal of Public Health
https://www.readbyqxmd.com/read/28595690/understanding-health-talk-in-an-urban-aboriginal-and-torres-strait-islander-primary-healthcare-service-a-cross-sectional-study
#10
Prabha Lakhan, Deborah Askew, Mark F Harris, Corey Kirk, Noel Hayman
Health literacy is an important determinant of health status. This cross-sectional study aimed to describe the prevalence of adequate health literacy among Aboriginal and Torres Strait Islander patients or their carers including parents of sick children attending an urban primary healthcare clinic in Australia, and their experiences of communication with General Practitioners (GPs). A questionnaire, including questions from the Brief Health Literacy Screen (BHLS) and questions from the Consumer Assessment of Healthcare Providers and Systems (CAHPS): Communication with Provider, was administered to 427 participants...
June 9, 2017: Australian Journal of Primary Health
https://www.readbyqxmd.com/read/28595025/the-validity-of-using-health-administrative-data-to-identify-the-involvement-of-specialized-pediatric-palliative-care-teams-in-children-with-cancer-in-ontario-canada
#11
Kimberley Widger, Christina Vadeboncoeur, Shayna Zelcer, Ying Liu, Alisha Kassam, Rinku Sutradhar, Adam Rapoport, Katherine Nelson, Joanne Wolfe, Craig Earle, Jason D Pole, Sumit Gupta
BACKGROUND: Population-based research to identify underserviced populations and the impact of palliative care (PC) is limited as the validity of such data to identify PC services is largely unknown. OBJECTIVE: To determine the validity of using such data to identify the involvement of specialized pediatric PC teams among children with cancer. DESIGN: Retrospective cohort. SUBJECTS: Ontario children with cancer who died between 2000 and 2012, received care through a pediatric institution with a specialized PC team and a clinical PC database...
June 8, 2017: Journal of Palliative Medicine
https://www.readbyqxmd.com/read/28592976/healthcare-access-challenges-facing-six-african-refugee-mothers-in-south-korea-a-qualitative-multiple-case-study
#12
Min Sun Kim, In Gyu Song, Ah Reum An, Kyae Hyung Kim, Ji Hoon Sohn, Sei Won Yang
PURPOSE: Following legal reform in 2013, the annual number of asylum seekers entering South Korea has increased from 1,143 in 2012 to 5,711 in 2015. We interviewed six African refugee mothers of young children regarding their health needs and barriers to access maternal child health services. METHODS: We recruited mothers who had visited a clinic for immigrants between July 2013 and August 2015. Participants were African refugee women, aged over 18 years, who had given birth in Korea within the previous 5 years and had come to Korea over a year before recruitment...
May 2017: Korean Journal of Pediatrics
https://www.readbyqxmd.com/read/28592244/optimising-child-outcomes-from-parenting-interventions-fathers-experiences-preferences-and-barriers-to-participation
#13
Lucy A Tully, Patrycja J Piotrowska, Daniel A J Collins, Kathleen S Mairet, Nicola Black, Eva R Kimonis, David J Hawes, Caroline Moul, Rhoshel K Lenroot, Paul J Frick, Vicki Anderson, Mark R Dadds
BACKGROUND: Early childhood interventions can have both immediate and long-term positive effects on cognitive, behavioural, health and education outcomes. Fathers are underrepresented in interventions focusing on the well-being of children. However, father participation may be critical for intervention effectiveness, especially for parenting interventions for child externalising problems. To date, there has been very little research conducted to understand the low rates of father participation and to facilitate the development of interventions to meet the needs of fathers...
June 7, 2017: BMC Public Health
https://www.readbyqxmd.com/read/28591297/organization-of-professional-practices-against-intrafamily-violence-against-children-and-adolescents-in-the-institutional-context
#14
Gabriele Schek, Mara Regina Santos da Silva, Carl Lacharité, Maria Emília Nunes Bueno
Objective: to analyze based on the practitioners' discourse, the way they organize their practices confronting situations of intra-family violence against children and adolescents. Method: qualitative research carried out with 15 professionals who work in social and health services located in the southernmost of Brazil. Data were collected through semi-structured interviews, performed at the participants' workplace. We used a theoretical matrix to analyze the data, based on Institutional Ethnography and the technique of discursive textual analysis...
June 5, 2017: Revista Latino-americana de Enfermagem
https://www.readbyqxmd.com/read/28587693/content-analysis-of-targeted-food-and-beverage-advertisements-in-a-chinese-american-neighbourhood
#15
Marie A Bragg, Yrvane K Pageot, Olivia Hernández-Villarreal, Sue A Kaplan, Simona C Kwon
OBJECTIVES: The current descriptive study aimed to: (i) quantify the number and type of advertisements (ads) located in a Chinese-American neighbourhood in a large, urban city; and (ii) catalogue the targeted marketing themes used in the food/beverage ads. DESIGN: Ten pairs of trained research assistants photographed all outdoor ads in a 0·6 mile2 (1·6 km2) area where more than 60·0 % of residents identify as Chinese American. We used content analysis to assess the marketing themes of ads, including references to: Asian cultures; health; various languages; children; food or beverage type (e...
June 7, 2017: Public Health Nutrition
https://www.readbyqxmd.com/read/28587492/digits-and-narratives-of-the-experience-of-italian-families-facing-premature-births
#16
Maria Giulia Marini, Paola Chesi, Martina Bruscagnin, Monica Ceccatelli, Elisabetta Ruzzon
The objective of the research was to understand the experience of families living a premature birth and to outline the current care plan in Italy. The survey was addressed to 150 parents of children born under the 34th week of pregnancy. Topics of the investigation were the implications on their family, social and working contexts, determined through a questionnaire enriched by a collection of narratives. Written testimonies were clustered through a Narrative Medicine method and matched with quantitative information...
June 7, 2017: Journal of Maternal-fetal & Neonatal Medicine
https://www.readbyqxmd.com/read/28585474/family-experience-with-osteogenesis-imperfecta-type-1-the-most-distressing-situations
#17
Margarida Custódio Dos Santos, Ana Filipa Pires, Kelly Soares, Luísa Barros
BACKGROUND: Osteogenesis imperfecta (OI) is a rare genetic disorder characterized by decreased bone mass and increased bone fragility. Despite increasing research on the biomedical aspects of the disease, only a few studies focus on the psychosocial implications of living with OI. This study aimed to explore the situations that are perceived by OI type-1 children, their parents and siblings, as being the most distressing and stressful in their experience with the disease. METHODS: Seven families of children diagnosed with OI type 1 for longer than four years participated...
June 6, 2017: Disability and Rehabilitation
https://www.readbyqxmd.com/read/28584498/understanding-barriers-to-initial-treatment-engagement-among-underserved-families-seeking-mental-health-services
#18
Mirian E Ofonedu, Harolyn M E Belcher, Chakra Budhathoki, Deborah A Gross
This mixed method study examined factors associated with parents not attending their child's mental health treatment after initially seeking help for their 2-5 year old child. It was part of a larger study comparing two evidence-based treatments among low-income racial/ethnic minority families seeking child mental health services. Of 123 parents who initiated mental health treatment (71% African American or multi-racial; 97.6% low-income), 36 (29.3%) never attended their child's first treatment session. Socio-demographic characteristics, parenting stress, depression, severity of child behavior problems, and length of treatment delay from intake to first scheduled treatment session were compared for families who did and did not attend their first treatment session...
March 2017: Journal of Child and Family Studies
https://www.readbyqxmd.com/read/28582991/insights-into-health-care-seeking-behaviour-for-children-in-communities-in-kwazulu-natal-south-africa
#19
Lyn Haskins, Merridy Grant, Sifiso Phakathi, Aurene Wilford, Ngcwalisa Jama, Christiane Horwood
BACKGROUND: South African infant and child mortality remains high, with many deaths occurring outside the formal health services. Delayed health care seeking represents a large proportion of these deaths. AIM: To generate knowledge about the role of, and influences on, caregivers with regard to decision-making about when and where to seek care for sick children. SETTING: Two communities in KwaZulu-Natal. METHODS: A qualitative, exploratory design employing participatory research techniques was used to undertake focus group discussions with community members...
May 29, 2017: African Journal of Primary Health Care & Family Medicine
https://www.readbyqxmd.com/read/28580676/educational-outcomes-associated-with-school-behavioral-health-interventions-a-review-of-the-literature
#20
Courtney Kase, Sharon Hoover, Gina Boyd, Kristina D West, Joel Dubenitz, Pamala A Trivedi, Hilary J Peterson, Bradley D Stein
BACKGROUND: There is an unmet need for behavioral health support and services among children and adolescents, which school behavioral health has the potential to address. Existing reviews and meta-analyses document the behavioral health benefits of school behavioral health programs and frameworks, but few summaries of the academic benefits of such programs exist. We provide exemplars of the academic benefits of school behavioral health programs and frameworks. METHODS: A literature review identified school behavioral health-related articles and reports...
July 2017: Journal of School Health
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