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https://www.readbyqxmd.com/read/29033060/a-review-of-international-coverage-and-pricing-strategies-for-personalized-medicine-and-orphan-drugs
#1
REVIEW
Irina Degtiar
BACKGROUND: Personalized medicine and orphan drugs share many characteristics-both target small patient populations, have uncertainties regarding efficacy and safety at payer submission, and frequently have high prices. Given personalized medicine's rising importance, this review summarizes international coverage and pricing strategies for personalized medicine and orphan drugs as well as their impact on therapy development incentives, payer budgets, and therapy access and utilization...
September 29, 2017: Health Policy
https://www.readbyqxmd.com/read/29022368/the-impact-of-environmental-design-on-teamwork-and-communication-in-healthcare-facilities-a-systematic-literature-review
#2
Arsalan Gharaveis, D Kirk Hamilton, Debajyoti Pati
The purpose of this systematic review is to investigate the current knowledge about the impact of healthcare facility design on teamwork and communication by exploring the relevant literature. Teamwork and communication are behavioral factors that are impacted by physical design. However, the effects of environmental factors on teamwork and communication have not been investigated extensively in healthcare design literature. There are no published systematic reviews on the current topic. Searches were conducted in PubMed and Google Scholar databases in addition to targeted design journals including Health Environmental Research & Design, Environment and Behavior, Environmental Psychology, and Applied Ergonomics...
January 1, 2017: HERD
https://www.readbyqxmd.com/read/29017361/haptic-assistive-technologies-for-audition-and-vision-sensory-disabilities
#3
Francesca Sorgini, Renato Caliò, Maria Chiara Carrozza, Calogero Maria Oddo
PURPOSE: The aim of this review is to analyze haptic sensory substitution technologies for deaf, blind and deaf-blind individuals. METHOD: The literature search has been performed in Scopus, PubMed and Google Scholar databases using selected keywords, analyzing studies from 1960s to present. Search on databases for scientific publications has been accompanied by web search for commercial devices. Results have been classified by sensory disability and functionality, and analyzed by assistive technology...
October 10, 2017: Disability and Rehabilitation. Assistive Technology
https://www.readbyqxmd.com/read/28989165/the-role-of-doctors-in-hunger-strikes
#4
Yechiel Michael Barilan
In its Malta Declaration, The World Medical Association prohibits force-feeding of hunger strikers as "degrading and inhuman," even when this is the only way to save their lives. The European Court of Human Rights ruled that lifesaving force-feeding is compatible with the state's duty to protect the lives of prisoners. To understand how such extreme divergence of opinions has become possible, this paper offers a critical examination of the social history of prisoners' hunger strikes, the philosophy of nonviolence, and the debate on its medicalization...
2017: Kennedy Institute of Ethics Journal
https://www.readbyqxmd.com/read/28988327/the-ethics-of-biomedical-big-data-brent-daniel-mittelstadt-and-luciano-floridi-eds-2016-springer-international-publishing-cham-switzerland-978-3-319-33523-0-480-pp
#5
Paul H Mason
The availability of diverse sources of data related to health and illness from various types of modern communication technology presents the possibility of augmenting medical knowledge, clinical care, and the patient experience. New forms of data collection and analysis will undoubtedly transform epidemiology, public health, and clinical practice, but what ethical considerations come in to play? With a view to analysing the ethical and regulatory dimensions of burgeoning forms of biomedical big data, Brent Daniel Mittelstadt and Luciano Floridi have brought together thirty scholars in an edited volume that forms part of Springer's Law, Governance and Technology book series in a collection titled The Ethics of Biomedical Big Data...
October 7, 2017: Journal of Bioethical Inquiry
https://www.readbyqxmd.com/read/28982021/a-data-driven-synthesis-of-research-evidence-for-domains-of-hearing-loss-as-reported-by-adults-with-hearing-loss-and-their-communication-partners
#6
Venessa Vas, Michael A Akeroyd, Deborah A Hall
A number of assessment tools exist to evaluate the impact of hearing loss, with little consensus among researchers as to either preference or psychometric adequacy. The item content of hearing loss assessment tools should seek to capture the impact of hearing loss on everyday life, but to date no one has synthesized the range of hearing loss complaints from the perspectives of the person with hearing loss and their communication partner. The current review aims to synthesize the evidence on person with hearing loss- and communication partner-reported complaints of hearing loss...
January 2017: Trends in Hearing
https://www.readbyqxmd.com/read/28980881/the-perspective-of-healthcare-providers-and-patients-on-health-literacy-a-systematic-review-of-the-quantitative-and-qualitative-studies
#7
Retha Rajah, Mohamed Azmi Ahmad Hassali, Lim Ching Jou, Muthu Kumar Murugiah
AIM: Health literacy (HL) is a multifaceted concept, thus understanding the perspective of healthcare providers, patients, and the system is vital. This systematic review examines and synthesises the available studies on HL-related knowledge, attitude, practice, and perceived barriers. METHODS: CINAHL and Medline (via EBSCOhost), Google Scholar, PubMed, ProQuest, Sage Journals, and Science Direct were searched. Both quantitative and/or qualitative studies in the English language were included...
October 1, 2017: Perspectives in Public Health
https://www.readbyqxmd.com/read/28969680/non-communicable-diseases-mapping-research-funding-organisations-funding-mechanisms-and-research-practices-in-italy-and-germany
#8
Victor Stephani, Silvia Sommariva, Anne Spranger, Oriana Ciani
BACKGROUND: Evidence shows that territorial borders continue to have an impact on research collaboration in Europe. Knowledge of national research structural contexts is therefore crucial to the promotion of Europe-wide policies for research funding. Nevertheless, studies assessing and comparing research systems remain scarce. This paper aims to further the knowledge on national research landscapes in Europe, focusing on non-communicable disease (NCD) research in Italy and Germany. METHODS: To capture the architecture of country-specific research funding systems, a three-fold strategy was adopted...
October 2, 2017: Health Research Policy and Systems
https://www.readbyqxmd.com/read/28963305/what-does-my-neighbourhood-have-to-do-with-my-weight-a-protocol-for-systematic-review-and-meta-analysis-of-the-association-between-neighbourhood-socioeconomic-status-and-body-weight
#9
Shimels Hussien Mohammed, Mulugeta Molla Birhanu, Tesfamichael Awoke Sissay, Tesfa Dejenie Habtewold, Balewgizie Sileshi Tegegn, Ahmad Esmaillzadeh
INTRODUCTION: Individuals living in poor neighbourhoods are at a higher risk of overweight/obesity. There is no systematic review and meta-analysis study on the association of neighbourhood socioeconomic status (NSES) with overweight/obesity. We aimed to systematically review and meta-analyse the existing evidence on the association of NSES with overweight/obesity. METHODS AND ANALYSIS: Cross-sectional, case-control and cohort studies published in English from inception to 15 May 2017 will be systematically searched using the following databases: PubMed, EMBASE, Web of Sciences and Google Scholar...
September 27, 2017: BMJ Open
https://www.readbyqxmd.com/read/28961870/cued-speech-and-the-development-of-reading-in-english-examining-the-evidence
#10
Beverly J Trezek
Even though Cued Speech has been a communication option for 50 years, it has not been widely adopted among users of English or in the country where it was created (i.e., the United States). This situation has led scholars and practitioners in the field of deafness to question whether the original intent of creating this system has been realized and if there is an adequate research base to support the use of Cued Speech in developing English reading abilities. The purpose of this review was to examine the available research to determine whether there is evidence available to address the persistent questions about Cued Speech and English...
October 1, 2017: Journal of Deaf Studies and Deaf Education
https://www.readbyqxmd.com/read/28960794/models-for-truth-telling-in-physician-patient-encounters-what-can-we-learn-from-yoruba-concept-of-ooto
#11
Cornelius Ewuoso
Empirical studies have now established that many patients make clinical decisions based on models other than Anglo American model of truth-telling and patient autonomy. Some scholars also add that current medical ethics frameworks and recent proposals for enhancing communication in health professional-patient relationship have not adequately accommodated these models. In certain clinical contexts where health professional and patients are motivated by significant cultural and religious values, these current frameworks cannot prevent communication breakdown, which can, in turn, jeopardize patient care, cause undue distress to a patient in certain clinical contexts or negatively impact his/her relationship with the community...
September 29, 2017: Developing World Bioethics
https://www.readbyqxmd.com/read/28956728/a-research-agenda-for-communication-scholars-in-the-precision-medicine-era
#12
Courtney L Scherr, Marleah Dean, Margaret F Clayton, Bradford W Hesse, Kami Silk, Richard L Street, Janice Krieger
The 2015 announcement of the Precision Medicine Initiative (PMI) galvanized and energized efforts to reconsider medical practice through tailoring of prevention and treatment recommendations based on genetics, environment, and lifestyle. Numerous disciplines contributed white papers identifying challenges associated with PMI and calling for discipline-specific research that might provide solutions to such challenges. Throughout these white papers, the prominence of communication in achieving the PMI's goals is obviously apparent...
September 28, 2017: Journal of Health Communication
https://www.readbyqxmd.com/read/28953114/systematic-review-of-international-colposcopy-quality-improvement-guidelines
#13
Edward J Mayeaux, Akiva P Novetsky, David Chelmow, Kim Choma, Francisco Garcia, Angela H Liu, Theognosia Papasozomenos, Mark H Einstein
OBJECTIVES: The American Society for Colposcopy and Cervical Pathology Colposcopy Standards Committee organized multiple working groups to draft colposcopy standards for the United States. As part of this project, international quality assurance and improvement measures were examined. MATERIALS AND METHODS: The quality improvement working group performed a systematic review of the literature to collate international guidelines related to quality improvement. Source guidelines were collected using searches in Medline, Google Scholar, the International Federation of Cervical Pathology and Colposcopy Web site, other regional colposcopy group's Web sites, and communications with International Federation of Cervical Pathology and Colposcopy board of directors' members and other expert members of various national groups...
October 2017: Journal of Lower Genital Tract Disease
https://www.readbyqxmd.com/read/28945182/the-role-of-the-therapeutic-relationship-in-psychopharmacological-treatment-outcomes-a-meta-analytic-review
#14
Christine M Wienke Totura, Sherecce A Fields, Marc S Karver
OBJECTIVE: Patient nonadherence to psychopharmacological treatment is a significant barrier to effective treatment. The therapeutic relationship is known to be a critical component of effective psychological treatment, but it has received limited study. A meta-analysis was conducted to examine the role of the therapeutic relationship in the delivery of effective psychopharmacological treatment. METHODS: PubMed, PsycINFO, CINAHL, Google Scholar, Ingenta, and the Web of Science-Science Citation Index were searched, including reference lists of found articles...
September 15, 2017: Psychiatric Services: a Journal of the American Psychiatric Association
https://www.readbyqxmd.com/read/28928262/the-use-of-speaking-valves-in-children-with-tracheostomy-tubes-what-is-the-scope-of-the-literature
#15
Weeda Zabih, Theresa Holler, Faiza Syed, Laurie Russell, Jennifer Allegro, Reshma Amin
One-way speaking valves have been successfully used to restore audible meaningful speech in adult patients after tracheostomy tube placement. One-way speaking valves have also been used in pediatric patients after tracheostomy tube placement with promising results. We conducted a scoping review to synthesize and summarize the current evidence on the use of one-way tracheostomy tube speaking valves in the pediatric population to identify knowledge gaps that could inform future research programs and facilitate evidence-based clinical decision making...
September 19, 2017: Respiratory Care
https://www.readbyqxmd.com/read/28914429/a-systematic-review-of-patient-and-caregiver-experiences-with-a-tracheostomy
#16
REVIEW
Ivana Nakarada-Kordic, Niamh Patterson, Jill Wrapson, Stephen D Reay
BACKGROUND: A tracheostomy is a surgically created opening through the anterior neck tissues and the trachea, into which a tube is inserted. Despite its influence on basic human needs such as respiration, communication and nutrition, little is known about the impact of tracheostomy on patients and their caregivers or what could be done to enable better care and quality of life (QoL) for these individuals. OBJECTIVE: The aim of this review was to better understand the current knowledge related to the experience and QoL of adults living with a tracheostomy and their caregivers so as to be able to improve these experiences...
September 15, 2017: Patient
https://www.readbyqxmd.com/read/28910987/management-of-combined-injuries-of-the-posterior-cruciate-ligament-and-posterolateral-corner-of-the-knee-a-systematic-review
#17
Stefano Petrillo, Piero Volpi, Rocco Papalia, Nicola Maffulli, Vincenzo Denaro
Background: Approximately 60% of posterior cruciate ligament (PCL) injury are associated with a posterolateral corner (PLC) tear. Sources of data: We performed a systematic review of the literature according to the PRISMA guidelines. The following key words were searched on Medline, Cochrane, EMBASE, Google Scholar, and Ovid: 'posterior cruciate ligament' or 'PCL' with 'posterolateral corner' or 'PLC' and 'chronic'; 'injury'; 'management'; 'reconstruction'; 'outcomes'; 'complications'...
September 1, 2017: British Medical Bulletin
https://www.readbyqxmd.com/read/28884948/exploring-research-cultures-through-internationalization-at-home-for-doctoral-students-in-hong-kong-and-sweden
#18
Doris Leung, Elisabeth Carlson, Enid E Y Kwong, Ewa Idvall, Christine Kumlien
Cultural skills are fundamental to developing global academic scholars. Internationalization at home can facilitate the acquisition of these skills without students having to go abroad. However, research on the effect of internationalization of higher education is scarce, despite apparent benefits to incorporating cultural sensitivity in research. Further, little is known about the role information and communication technology plays. In this pilot study, we describe the experience of doctoral students with an internationalization-at-home program, and its impact on developing an understanding about different research cultures...
September 8, 2017: Nursing & Health Sciences
https://www.readbyqxmd.com/read/28882188/unifying-a-fragmented-effort-a-qualitative-framework-for-improving-international-surgical-teaching-collaborations
#19
Parisa Nicole Fallah, Mark Bernstein
BACKGROUND: Access to adequate surgical care is limited globally, particularly in low- and middle-income countries (LMICs). To address this issue, surgeons are becoming increasingly involved in international surgical teaching collaborations (ISTCs), which include educational partnerships between surgical teams in high-income countries and those in LMICs. The purpose of this study is to determine a framework for unifying, systematizing, and improving the quality of ISTCs so that they can better address the global surgical need...
September 7, 2017: Globalization and Health
https://www.readbyqxmd.com/read/28865472/doctoral-level-research-and-training-capacity-in-the-social-determinants-of-health-at-universities-and-higher-education-institutions-in-india-china-oman-and-vietnam-a-survey-of-needs
#20
Farhad Ali, Arun Shet, Weirong Yan, Abdullah Al-Maniri, Salla Atkins, Henry Lucas
BACKGROUND: Research capacity is scarce in low- and middle-income country (LMIC) settings. Social determinants of health research (SDH) is an area in which research capacity is lacking, particularly in Asian countries. SDH research can support health decision-makers, inform policy and thereby improve the overall health and wellbeing of the population. In order to continue building this capacity, we need to know to what extent training exists and how challenges could be addressed from the perspective of students and staff...
September 2, 2017: Health Research Policy and Systems
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