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https://www.readbyqxmd.com/read/28917611/end-of-life-practice-patterns-at-u-s-adult-cystic-fibrosis-care-centers-a-national-retrospective-chart-review
#1
Elaine Chen, Karen Homa, Jessica Goggin, Kathryn A Sabadosa, Sarah Hempstead, Bruce C Marshall, Albert Faro, Elisabeth P Dellon
BACKGROUND: There are many challenges to providing end-of-life care (EOLC) to people with cystic fibrosis (CF). METHODS: Chart abstraction was used to examine EOLC in adults with CF who died between 2011 and 2013. RESULTS: We reviewed 248 deaths from 71 CF care centers. Median age at death was 29years (range 18-73). While median FEV1 was in the severe lung disease category (FEV1<40%), 38% had mild or moderate lung disease in the year preceding death...
September 13, 2017: Journal of Cystic Fibrosis: Official Journal of the European Cystic Fibrosis Society
https://www.readbyqxmd.com/read/28915078/pediatric-specific-end-of-life-care-quality-measures-an-unmet-need-of-a-vulnerable-population
#2
Emily E Johnston, Abby R Rosenberg, Arif H Kamal
We must ensure that the 20,000 US children (age 0 to 19 years) who die as a result of serious illness annually receive high-quality end-of-life care. Ensuring high-quality end-of-life care requires recognition that pediatric end-of-life care is conceptually and operationally different than that for adults. For example, in-hospital adult death is considered an outcome to be avoided, whereas many pediatric families may prefer hospital death. Because pediatric deaths are comparatively rare, not all centers offer pediatric-focused palliative care and hospice services...
September 15, 2017: Journal of Oncology Practice
https://www.readbyqxmd.com/read/28913848/effect-of-the-duration-of-hospice-and-palliative-care-on-the-quality-of-dying-and-death-in-patients-with-terminal-cancer-a-nationwide-multicentre-study
#3
J Y Choi, K A Kong, Y J Chang, H J Jho, E M Ahn, S K Choi, S Park, M K Lee
Early referral to hospice and palliative care (HPC) has significant benefits, but little is known about the appropriate time for referral. The purpose of this study of terminal cancer patients was to identify the most appropriate time for referral to HPC. Cross-sectional correlation study design was used. Participants were the bereaved relatives, who were the adult primary caregivers of the 1,829 terminal cancer patients who died 2-6 months previously in nationwide centres that provide HPC in Korea. A post-bereavement survey (Good Death Inventory, GDI) of family caregivers was used to assess patients' quality of dying and death...
September 15, 2017: European Journal of Cancer Care
https://www.readbyqxmd.com/read/28905647/the-challenge-pathway-a-mixed-methods-evaluation-of-an-innovative-care-model-for-the-palliative-and-end-of-life-care-of-people-with-dementia-innovative-practice
#4
Emily Harrop, Annmarie Nelson, Helen Rees, Dylan Harris, Simon Noble
An innovative service for the palliative and end-of-life care of people with dementia was introduced at a UK hospice. This evaluation involved analysis of audit data, semi-structured interviews with project staff (n=3) and surveys of family carers (n=15) and professionals (n=20). The service has increased access to palliative, end-of-life care and other services. Improvements were reported in the knowledge, confidence and care skills of family carers and professionals. Carers felt better supported and it was perceived that the service enabled more patients to be cared for at home or in their usual place of care...
January 1, 2017: Dementia
https://www.readbyqxmd.com/read/28904011/continuation-of-non-essential-medications-in-actively-dying-hospitalised-patients
#5
Beverly Rosa Williams, F Amos Bailey, Elizabeth Kvale, Neal Steil, Patricia S Goode, Richard E Kennedy, Kathryn L Burgio
OBJECTIVE: The objective of this analysis was to examine the use of 11 non-essential medications in actively dying patients. METHODS: This was a planned secondary analysis of data from the Best Practices for End-of-Life Care for Our Nation's Veterans trial, a multicentre implementation trial of an intervention to improve processes of end-of-life care in inpatient settings. Supported with an electronic comfort care decision support tool, intervention included training hospital staff to identify actively dying patients, communicate the prognosis to patients/families and implement best practices of traditionally home-based hospice care...
September 13, 2017: BMJ Supportive & Palliative Care
https://www.readbyqxmd.com/read/28901973/identifying-palliative-care-needs-in-people-with-dementia
#6
Mari Lloyd-Williams, Caroline Mogan, Karen Harrison Dening
PURPOSE OF REVIEW: Dementia is now recognized as a progressive life-limiting illness where many patients can benefit from access to palliative care. RECENT FINDINGS: The present review has focused on three areas namely, advanced care planning in supporting palliative care for dementia, hospice provision for people with dementia and provision of care within family home. In advanced care planning, there is little research on systematically developed and implemented advance care planning interventions or whether they achieve desired outcomes for end-of-life care...
September 8, 2017: Current Opinion in Supportive and Palliative Care
https://www.readbyqxmd.com/read/28901835/book-review-of-lgbtq-inclusive-hospice-and-palliative-care-a-practical-guide-to-transforming-professional-practice
#7
Jennifer Currin-McCulloch, Jelena Todic
No abstract text is available yet for this article.
September 13, 2017: Journal of Psychosocial Oncology
https://www.readbyqxmd.com/read/28895471/the-indirect-costs-of-palliative-care-in-end-stage-cancer-a-real-life-longitudinal-register-and-questionnaire-based-study
#8
Olli Haltia, Niilo Färkkilä, Risto Paavo Roine, Harri Sintonen, Kimmo Taari, Juha Hänninen, Juho Tuomas Lehto, Tiina Saarto
BACKGROUND: Palliative care needs are increasing as more people are dying from incurable diseases. Healthcare costs have been reported to be highest during the last year of life, but studies on the actual costs of palliative care are scarce. AIM: To explore the resource use and costs of palliative care among end-stage breast, colorectal and prostate cancer patients after termination of life-prolonging oncological treatments, that is, during the palliative care period...
September 1, 2017: Palliative Medicine
https://www.readbyqxmd.com/read/28892432/patient-clinician-communication-american-society-of-clinical-oncology-consensus-guideline
#9
Timothy Gilligan, Nessa Coyle, Richard M Frankel, Donna L Berry, Kari Bohlke, Ronald M Epstein, Esme Finlay, Vicki A Jackson, Christopher S Lathan, Charles L Loprinzi, Lynne H Nguyen, Carole Seigel, Walter F Baile
Purpose To provide guidance to oncology clinicians on how to use effective communication to optimize the patient-clinician relationship, patient and clinician well-being, and family well-being. Methods ASCO convened a multidisciplinary panel of medical oncology, psychiatry, nursing, hospice and palliative medicine, communication skills, health disparities, and advocacy experts to produce recommendations. Guideline development involved a systematic review of the literature and a formal consensus process. The systematic review focused on guidelines, systematic reviews and meta-analyses, and randomized controlled trials published from 2006 through October 1, 2016...
September 11, 2017: Journal of Clinical Oncology: Official Journal of the American Society of Clinical Oncology
https://www.readbyqxmd.com/read/28885091/no-occultation-in-the-international-association-for-hospice-and-palliative-care-position-statement-on-palliative-care-and-assisted-suicide
#10
Liliana De Lima, Roberto Wenk, Katherine Pettus, Lukas Radbruch
No abstract text is available yet for this article.
September 8, 2017: Journal of Palliative Medicine
https://www.readbyqxmd.com/read/28866894/more-chemo-or-home-hospice-narrative-results-from-an-n-of-1-trial
#11
Keith M Swetz
Words matter. They have tremendous power to heal or hurt. And although the patients we care for in oncology and palliative medicine often die from, or despite, their neoplastic illness; caregivers and loved ones often hold onto the words that clinicians share with them during their times of struggle and grief. In this narrative, the author (as first person) reflects on some systemic challenges he faced in dealing with illness and loss when his father battled two distinct neoplastic processes. He explores the commonalities and differences that he experienced as a palliative care physician, and how that has guided his medical practice moving forward...
June 23, 2017: Annals of Palliative Medicine
https://www.readbyqxmd.com/read/28854923/validation-of-a-modified-voices-survey-to-measure-end-of-life-care-quality-the-caregivervoice-survey
#12
Hsien Seow, Daryl Bainbridge, Melissa Brouwers, Gregory Pond, John Cairney
BACKGROUND: Measuring the care experience at end-of-life (EOL) to inform quality improvement is a priority in many countries. We validated the CaregiverVoice survey, a modified version of the VOICES questionnaire, completed by bereaved caregivers to capture perceptions of care received in the last three months of a patient's life. METHODS: We conducted a retrospective survey of bereaved caregivers representing palliative care patients who died in a residential hospice and/or received palliative homecare in Ontario, Canada...
August 30, 2017: BMC Palliative Care
https://www.readbyqxmd.com/read/28854054/e-health-in-palliative-care-review-of-literature-google-play-and-app-store
#13
Sara Pinto, Sílvia Caldeira, José Carlos Martins
AIM: To analyse the use of e-Health technologies and mobile apps in palliative care (PC). METHODS: Search on PubMed, using 'telemedicine', 'ehealth', 'mobile health', 'telecare', 'health information systems' and 'palliative care'. Original Portuguese, Spanish, French and English papers were included. Google Play and App Store (iOS) were searched for mobile apps using 'palliative care', 'medical apps' and 'symptom management'. RESULTS: Twenty-five papers and forty mobile apps were analysed...
August 2, 2017: International Journal of Palliative Nursing
https://www.readbyqxmd.com/read/28854053/independent-non-medical-prescribing-in-children-s-hospices-in-the-uk-a-practice-snapshot
#14
Michael J Tatterton
BACKGROUND: Non-medical prescribing is well established within the British health service, with increasing numbers of nurses practicing within children's hospices. AIM: To identify the context of non-medical prescribing in children's hospices in the UK, focusing on the perceived benefits and challenges. METHOD: Internet-based questionnaires were sent to 55 UK children's hospices, exploring the practice and context of prescribing. RESULTS: Of the 55 invited, 20 children's hospices responded to the questionnaire, 14 of which employed a total of 39 non-medical prescribers (NMPs)...
August 2, 2017: International Journal of Palliative Nursing
https://www.readbyqxmd.com/read/28853662/-courage-of-conviction-with-compassion
#15
Layla Haidrani
What is your job? I am chief executive officer (CEO) of Woking and Sam Beare Hospices, Surrey. The charity delivers specialist palliative care services to more than 1,400 patients and their families across six boroughs, and has recently moved into a brand new state-of-the-art hospice. My role includes the financial and business running of the hospice, along with fundraising, retail, governance and clinical services.
August 30, 2017: Nursing Management (Harrow)
https://www.readbyqxmd.com/read/28853526/-do-we-have-medical-measures-that-attest-to-the-effect-of-spiritual-care-in-time-of-illness
#16
REVIEW
Gil Bar Sela, Netta Bentur, Ziv Rei Koren, Michael Schultz
Everyone has spiritual resources that generally serve them well, and in times of struggle, part of people's suffering is spiritual. Tending to patients' "whole pain" must include their spiritual pain. Studies from Israel and worldwide found that approximately one-third of advanced cancer patients suffer spiritual distress. In addition, over half of cancer patients attach great importance to feeling hopeful, coping peacefully, and finding meaning in times of illness. Studies found a significant predictive correlation among advanced cancer patients between spiritual wellbeing and despair, desire to die, and suicidal ideation, and a longitudinal connection among patients with heart disease between survival rates and spiritual wellbeing...
August 2017: Harefuah
https://www.readbyqxmd.com/read/28853208/clinical-outcomes-and-toxicity-following-palliative-radiotherapy-for-childhood-cancers
#17
Kimberley S Mak, Stephanie W Lee, Tracy A Balboni, Karen J Marcus
BACKGROUND: Few reports of palliative radiotherapy (RT) for pedialltric malignancies have been published. We described clinical indications, outcomes, and toxicities for children who received palliative RT. PROCEDURE: Pediatric patients (age ≤18 years) treated with palliative RT for incurable cancer from January 1 2008 to February 26, 2014 were included. Diagnosis, details of RT, treatment response, toxicity, and survival were retrospectively reviewed. RESULTS: Forty-six patients received 76 RT courses...
August 29, 2017: Pediatric Blood & Cancer
https://www.readbyqxmd.com/read/28852478/an-end-of-life-practice-survey-among-clinical-nephrologists-associated-with-a-single-nephrology-fellowship-training-program
#18
Kevin A Ceckowski, Dustin J Little, Joseph R Merighi, Teri Browne, Christina M Yuan
BACKGROUND: Our nephrology fellowship requires specific training in recognition and referral of end-stage renal disease patients likely to benefit from palliative and hospice care. METHODS: To identify end-of-life (EOL) referral barriers that require greater training emphasis, we performed a cross-sectional, 17-item anonymous online survey (August-October 2015) of 93 nephrologists associated with the program since 1987. RESULTS: There was a 61% response rate (57/93 surveys)...
August 2017: Clinical Kidney Journal
https://www.readbyqxmd.com/read/28837496/palliative-care-in-the-acute-care-setting
#19
Jennifer L Goldsborough, Marianne Matzo
This series on palliative care is developed in collaboration with the Hospice and Palliative Nurses Association (HPNA; http://hpna.advancingexpertcare.org). The HPNA aims to guide nurses in preventing and relieving suffering and in giving the best possible care to patients and families, regardless of the stage of disease or the need for other therapies. The HPNA offers education, certification, advocacy, leadership, and research.
September 2017: American Journal of Nursing
https://www.readbyqxmd.com/read/28837009/public-and-professional-insights-on-end-of-life-care-results-of-the-2016-health-care-in-canada-survey
#20
Terrence Montague, Joanna Nemis-White, John Aylen, Sara Ahmed, Sharon Baxter, Lesli Martin, Owen Adams, Amédé Gogovor
A new dimension has been added to Canadian Medicare ߝ exemption from prosecution for physicians, nurse practitioners and assistants providing medical assistance in dying for competent and informed adult patients with a grievous and irremediable medical condition causing intolerable physical or psychological suffering, irreversible decline in capabilities and reasonably foreseeable natural death. To define stakeholders' perceptions on all contemporary end-of-life care options, we analyzed data from the 2016 Health Care in Canada Survey comprising representative samples of the adult public (n = 1,500), physicians (n = 102), nurses (n = 102), pharmacists (n = 100), administrators (n = 100) and allied health professionals (n = 100)...
2017: Healthcare Quarterly
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