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https://www.readbyqxmd.com/read/28813930/bemobil-developing-a-user-friendly-and-motivating-telerehabilitation-system-for-motor-relearning-after-stroke
#1
Michael Minge, Ekaterina Ivanova, Katharina Lorenz, Gesche Joost, Manfred Thuring, Jorg Kruger
Motor relearning after stroke is a lengthy process which should be continued after patients get discharged from the clinic. This project aims at developing a system for telerehabilitation which enables stroke patients to exercise at home autonomously or under supervision of a therapist. The system includes haptic therapy devices which are more promising and beneficial for stroke rehabilitation than non-haptic approaches. In this paper, we present the results of two initial studies investigating specific design solutions for the patient's user interface...
July 2017: IEEE ... International Conference on Rehabilitation Robotics: [proceedings]
https://www.readbyqxmd.com/read/28812949/-i-m-sure-we-made-it-a-better-study%C3%A2-experiences-of-adults-with-intellectual-disabilities-and-parent-carers-of-patient-and-public-involvement-in-a-health-research-study
#2
Carole Beighton, Christina Victor, Iain M Carey, Fay Hosking, Steve DeWilde, Derek G Cook, Paula Manners, Tess Harris
Patient and public involvement is considered integral to health research in the United Kingdom; however, studies documenting the involvement of adults with intellectual disabilities and parent carers in health research studies are scarce. Through group interviews, this study explored the perspectives and experiences of a group of adults with intellectual disabilities and a group of parent carers about their collaborative/participatory involvement in a 3-year study which explored the effectiveness of annual health checks for adults with intellectual disabilities...
January 1, 2017: Journal of Intellectual Disabilities: JOID
https://www.readbyqxmd.com/read/28810418/preventing-cardiovascular-disease-participant-perspectives-of-the-faith-program
#3
LaPrincess C Brewer, Eleshia J Morrison, Joyce E Balls-Berry, Patrick Dean, Kandace Lackore, Sarah Jenkins, Consuelo Cohen, Jacqueline Johnson, Frances Ellis, D C Mangum, Sharonne N Hayes, Christi Patten
Striking cardiovascular health disparities exist among African-Americans in Minnesota compared to Whites; however, community-based interventions to address cardiovascular disease risk are lacking. This study explored participant perceptions of a culturally tailored, cardiovascular disease prevention program developed using a community-based participatory research process. Research participation perceptions, program benefits, and program satisfaction/acceptability were analyzed using a mixed-methods approach...
February 1, 2017: Journal of Health Psychology
https://www.readbyqxmd.com/read/28810390/shared-decision-making-rhetoric-and-reality-women-s-experiences-and-perceptions-of-adjuvant-treatment-decision-making-for-breast-cancer
#4
Neda Mahmoodi, Sally Sargeant
This interview-based study uses phenomenology as a theoretical framework and thematic analysis to challenge existing explanatory frameworks of shared decision-making, in an exploration of women's experiences and perceptions of shared decision-making for adjuvant treatment in breast cancer. Three themes emerged are as follows: (1) women's desire to participate in shared decision-making, (2) the degree to which shared decision-making is perceived to be shared and (3) to what extent are women empowered within shared decision-making...
January 1, 2017: Journal of Health Psychology
https://www.readbyqxmd.com/read/28809187/ict-design-for-collaborative-and-community-driven-disaster-management
#5
Craig E Kuziemsky
Information and communication technologies (ICT) have the potential to greatly enhance our ability to develop community reliance and sustainability to support disaster management. However, developing community resilience requires the sharing of numerous resources and the development of collaborative capacity, both of which make ICT design a challenge. This paper presents a framework that integrates community based participatory research (CBPR) and participatory design (PD). We discuss how the framework provides bounding to support community driven ICT design and evaluation...
2017: Studies in Health Technology and Informatics
https://www.readbyqxmd.com/read/28807890/vulnerable-youth-as-prosumers-in-hiv-prevention-studies-using-participatory-action-research
#6
Cath Conn, Shoba Nayar, Dinar Lubis, Carol Maibvisira, Kristel Modderman
BACKGROUND: Stigma, voicelessness, and legislative and rights barriers, coupled with top-down decision making, are the common experiences of vulnerable youth populations that limit their opportunities to participate in vital health promotion efforts such as HIV prevention. OBJECTIVE: To consider new opportunities arising from a digital society for youth to creatively shape HIV prevention. METHODS: Drawing on research with vulnerable youth in Busoga, Uganda; Bulawayo, Zimbabwe; Bangkok, Thailand; and Bali, Indonesia, we explore current youth participation, in theory and practice, while considering new opportunities arising from a digital society for youth to creatively shape HIV prevention...
August 14, 2017: JMIR Public Health and Surveillance
https://www.readbyqxmd.com/read/28807739/community-based-participatory-research-to-design-a-faith-enhanced-diabetes-prevention-program-the-better-me-within-randomized-trial
#7
Heather Kitzman, Leilani Dodgen, Abdullah Mamun, J Lee Slater, George King, Donna Slater, Alene King, Surendra Mandapati, Mark DeHaven
Reducing obesity positively impacts diabetes and cardiovascular risk; however, evidence-based lifestyle programs, such as the diabetes prevention program (DPP), show reduced effectiveness in African American (AA) women. In addition to an attenuated response to lifestyle programs, AA women also demonstrate high rates of obesity, diabetes, and cardiovascular disease. To address these disparities, enhancements to evidence-based lifestyle programs for AA women need to be developed and evaluated with culturally relevant and rigorous study designs...
August 11, 2017: Contemporary Clinical Trials
https://www.readbyqxmd.com/read/28805797/human-genomics-projects-and-precision-medicine
#8
REVIEW
F Carrasco-Ramiro, R Peiró-Pastor, B Aguado
The completion of the Human Genome Project (HGP) in 2001 opened the floodgates to a deeper understanding of medicine. There are dozens of HGP-like projects which involve from a few tens to several million genomes currently in progress, which vary from having specialised goals or a more general approach. However, data generation, storage, management and analysis in public and private cloud computing platforms have raised concerns about privacy and security. The knowledge gained from further research has changed the field of genomics and is now slowly permeating into clinical medicine...
August 14, 2017: Gene Therapy
https://www.readbyqxmd.com/read/28803597/somali-latino-and-hmong-parents-perceptions-and-approaches-about-raising-healthy-weight-children-a-community-based-participatory-research-study
#9
Chrisa Arcan, Kathleen A Culhane-Pera, Shannon Pergament, Maira Rosas-Lee, Mai Bao Xiong
OBJECTIVE: Immigrants in the USA are confronted with health disparities, including childhood obesity and obesity-related chronic diseases. We aimed to identify perceptions of childhood body weight, approaches to raising healthy children and desires for supportive programmes of Somali, Latino and Hmong (SLM) parents in the Twin Cities, Minnesota, USA. DESIGN: Using community-based participatory research, ten focus groups (FG) were conducted with sixty-seven parents (n 28 Somali, three FG; n 19 Latino, four FG; n 20 Hmong, three FG) of 3-12-year-old children in their native language...
August 14, 2017: Public Health Nutrition
https://www.readbyqxmd.com/read/28803081/building-an-outpatient-kidney-palliative-care-clinical-program
#10
Jennifer S Scherer, Rebecca Wright, Caroline S Blaum, Stephen P Wall
CONTEXT: A diagnosis of advanced chronic kidney disease (CKD), or end stage renal disease (ESRD) represents a significant life change for patients and families. Individuals often experience high symptom burden, decreased quality of life, increased health care utilization, and end-of-life care discordant with their preferences. Early integration of palliative care with standard nephrology practice in the outpatient setting has the potential to improve quality of life through provision of expert symptom management, emotional support, and facilitation of advance care planning that honors the individual's values and goals...
August 9, 2017: Journal of Pain and Symptom Management
https://www.readbyqxmd.com/read/28799688/developing-a-program-for-enhancing-youth-hiv-treatment-adherence-and-risk-reduction
#11
Warunee Fongkaew, Warawan Udomkhamsuk, Nongkran Viseskul, Marisa Guptaruk
Youth living with HIV face difficult and challenging situations that decrease their adherence to antiretroviral medications. In this study, we developed a pilot program to enhance HIV treatment adherence and risk reduction among youth living with HIV based on collaboration with a community hospital involving a multi-disciplinary healthcare team. Participants were 25 youth living with HIV/AIDS, 18 caregivers, and 12 healthcare providers. The action research process comprised a preliminary stage and four phases of assessment, planning, implementation, and evaluation...
August 11, 2017: Nursing & Health Sciences
https://www.readbyqxmd.com/read/28799479/mothers-decisions-to-disclose-or-conceal-their-child-s-mental-health-disorder
#12
Kim Eaton, Jeneva L Ohan, Werner G K Stritzke, Hannah M Courtauld, Patrick W Corrigan
Parents of children with mental health disorders are often faced with the dilemma of disclosing or concealing their child's disorder. These decisions have important implications for both child and parent. Our aim is to describe mothers' experiences with the disclosure dilemma; specifically, we describe what is disclosed (or concealed), how, and why, as well as the consequences of these decisions. Data from interviews with 11 mothers of children (aged 5-13 years) with mental health disorders, and a participatory action research group (four mothers) were thematically analyzed...
September 2017: Qualitative Health Research
https://www.readbyqxmd.com/read/28799474/-caught-between-a-rock-and-a-hard-place-between-discourses-of-empowerment-and-solicitude-danish-public-sector-service-professionals-discourses-of-nonattendance
#13
Michaela Hoej, Katrine Schepelern Johansen, Birgitte Ravn Olesen, Sidse Marie Arnfred
Nonattendance constitutes a profound challenge in public sector services targeting young adults with mental health difficulties. Therefore, researchers and practitioners are occupied with trying to resolve this. For clinicians to be aware of their own naturalized and perhaps inappropriate communicative practices, we investigated the established normative organizational logics behind explanations and strategies related to nonattendance. We performed a critical discourse analysis on material collected through participatory research throughout 2015...
September 2017: Qualitative Health Research
https://www.readbyqxmd.com/read/28796842/correction-impact-of-a-participatory-intervention-with-women-s-groups-on-psychological-distress-among-mothers-in-rural-bangladesh-secondary-analysis-of-a-cluster-randomised-controlled-trial
#14
Kelly Clarke, Kishwar Azad, Abdul Kuddus, Sanjit Shaha, Tasmin Nahar, Bedowra Haq Aumon, Mohammed Munir Hossen, James Beard, Anthony Costello, Tanja A J Houweling, Audrey Prost, Edward Fottrell
[This corrects the article DOI: 10.1371/journal.pone.0110697.].
2017: PloS One
https://www.readbyqxmd.com/read/28794638/an-analysis-of-journey-mapping-to-create-a-palliative-care-pathway-in-a-canadian-first-nations-community-implications-for-service-integration-and-policy-development
#15
Jessica Koski, Mary Lou Kelley, Shevaun Nadin, Maxine Crow, Holly Prince, Elaine C Wiersma, Christopher J Mushquash
Providing palliative care in Indigenous communities is of growing international interest. This study describes and analyzes a unique journey mapping process undertaken in a First Nations community in rural Canada. The goal of this participatory action research was to improve quality and access to palliative care at home by better integrating First Nations' health services and urban non-Indigenous health services. Four journey mapping workshops were conducted to create a care pathway which was implemented with 6 clients...
2017: Palliative Care
https://www.readbyqxmd.com/read/28793900/botanical-ethnoveterinary-therapies-used-by-agro-pastoralists-of-fafan-zone-eastern-ethiopia
#16
Teka Feyera, Endalkachew Mekonnen, Befekadu Urga Wakayo, Solomon Assefa
BACKGROUND: In Ethiopia, plant based remedies are still the most important and sometimes the only source of therapeutics in the management of livestock diseases. However, documentation of this indigenous knowledge of therapeutic system still remains at a minimum level. The aim of this study was, thus, to document the traditional knowledge of botanical ethnoveterinary therapies in the agro-pastoral communities of Fafan Zone, Eastern Ethiopia. METHODS: The study employed a cross-sectional participatory survey...
August 9, 2017: BMC Veterinary Research
https://www.readbyqxmd.com/read/28793895/the-path-from-a-volunteer-initiative-to-an-established-institution-evaluating-15%C3%A2-years-of-the-development-and-contribution-of-the-lighthouse-trust-to-the-malawian-hiv-response
#17
Sam Phiri, Florian Neuhann, Nicola Glaser, Thomas Gass, Thom Chaweza, Hannock Tweya
BACKGROUND: The HIV epidemic has triggered the development of new health institutions with a special focus on HIV care. The role of these relatively new institutions within the health systems of low-income countries like Malawi is not clearly determined. We evaluate and describe the development of one example, the Lighthouse Trust (Lighthouse), over a period of 15 years (2000-2015). METHODS: Data from multiple sources, including a document review, participatory observation and interviews were analysed, triangulated and synthesized...
August 9, 2017: BMC Health Services Research
https://www.readbyqxmd.com/read/28793832/-i-was-thinking-we-would-be-spoon-fed-community-co-researchers-perceptions-of-individual-empowerment-in-participatory-health-research-in-swaziland
#18
Michelle Brear
Empowerment is an influential concept in global public health. Current theoretical models, which were developed in resource-rich countries, conceptualise individual-level empowerment as a process (or outcome) of developing positive self-perceptions, critical thinking expertise and new behaviours. They neglect the social and structural aspects that were central to early conceptualisations of empowerment, and may be culturally biased. My aim was to elucidate lay-people in Swaziland's perspectives about individual-level empowerment...
August 10, 2017: Global Public Health
https://www.readbyqxmd.com/read/28792570/-the-global-model-of-public-mental-health-and-recovery-mentors
#19
Jean-François Pelletier, Émilie Auclair
Objectives The aim of this paper is to revisit the Global Model of Public Mental Health (GMPMH) in light of the 4th Civic Forum. Recovery mentors of the University of Recovery chaired this public event, which was held in East-end Montreal, Canada, in 2016. The University of Recovery is a concept of co-learning among its members.Methods Being able to refer to international conventions and human rights standards is a key component of a genuine global approach that is supportive of individuals and communities in their quest for recovery and full citizenship...
2017: Santé Mentale Au Québec
https://www.readbyqxmd.com/read/28780629/public-and-stakeholder-engagement-and-the-built-environment-a-review
#20
REVIEW
Kevin M Leyden, Amanda Slevin, Thomas Grey, Mike Hynes, Fanney Frisbaek, Richard Silke
PURPOSE OF REVIEW: We review 50 articles from 2015 and 2016 that focus upon public and stakeholder engagement as it pertains to the built environment. Our purpose is to understand the current state of the literature and approaches being used to better enable public and stakeholder engagement. As part of this review, we consider whether recent digital and mobile technologies have enabled advances for stakeholder and public participation. RECENT FINDINGS: The literature suggests some positive and some challenging developments...
August 5, 2017: Current Environmental Health Reports
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