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https://www.readbyqxmd.com/read/28929898/five-opportunities-for-healthcare-leaders-to-better-support-person-and-family-centred-care-in-long-term-care-settings
#1
Danielle Bender, Kai Yan Grace Lui, Paul Holyoke
The benefits of Person- and Family-Centred Care (PFCC) are well documented, and many healthcare organizations have expressed their commitment to take this approach. Yet, it can be a difficult endeavour, with common barriers identified at the point-of-care, organizational and system levels. We implemented a PFCC education program with healthcare leaders, providers, and support staff working in home, community, and long-term care organizations across Canada. Focus groups were then conducted with almost 200 workshop participants and 20 long-term care home residents and family members...
January 2017: Healthcare Management Forum
https://www.readbyqxmd.com/read/28929855/the-patients-as-partners-movement-and-the-emerging-health-leader
#2
Melinda Young
Over the past decade, the Patients as Partners Movement has spread throughout healthcare systems across Canada. This movement aims to overcome the paternalistic approach, where the system and its providers act for or deliver services to the patient. Instead, decision-making at all levels is to be shared with the patient. Delivering patient- and family-centred care is the goal of the Patients as Partners Movement and authentic engagement is at its core. This article aims to explore the link between the Patients as Partners Movement and authentic engagement...
May 2017: Healthcare Management Forum
https://www.readbyqxmd.com/read/28922022/implementing-a-collaborative-coaching-intervention-for-professionals-providing-care-to-children-and-their-families-an-exploratory-study
#3
Sandy K Tatla, Dori Howard, Alda Antunes Silvestre, Stacey Burnes, Meghan Husson, Tal Jarus
The growing complexity of healthcare requires family and interprofessional partnerships to deliver effective care. Interprofessional coaching can enhance family-centred practice and collaboration. The purpose of this study was to explore the acceptability and feasibility of collaborative coaching training to improve family centredness within acute paediatric rehabilitation. Using a participatory action design, service providers (SPs; n = 36) underwent a 6-month coaching programme involving coaching workshops, learning triads, and tailored sessions with a licensed coach...
September 18, 2017: Journal of Interprofessional Care
https://www.readbyqxmd.com/read/28913848/effect-of-the-duration-of-hospice-and-palliative-care-on-the-quality-of-dying-and-death-in-patients-with-terminal-cancer-a-nationwide-multicentre-study
#4
J Y Choi, K A Kong, Y J Chang, H J Jho, E M Ahn, S K Choi, S Park, M K Lee
Early referral to hospice and palliative care (HPC) has significant benefits, but little is known about the appropriate time for referral. The purpose of this study of terminal cancer patients was to identify the most appropriate time for referral to HPC. Cross-sectional correlation study design was used. Participants were the bereaved relatives, who were the adult primary caregivers of the 1,829 terminal cancer patients who died 2-6 months previously in nationwide centres that provide HPC in Korea. A post-bereavement survey (Good Death Inventory, GDI) of family caregivers was used to assess patients' quality of dying and death...
September 15, 2017: European Journal of Cancer Care
https://www.readbyqxmd.com/read/28910247/pediatric-ambulatory-care-sensitive-conditions-birth-cohorts-and-the-socio-economic-gradient
#5
Leslie L Roos, Roxana Dragan, Robert J Schroth
OBJECTIVES: This study examines the socio-economic gradient in utilization and the risk factors associated with hospitalization for four pediatric ambulatory care sensitive conditions (dental conditions, asthma, gastroenteritis, and bacterial pneumonia). Dental conditions, where much care is provided by dentists and insurance coverage varies among different population segments, present special issues. METHODS: A population registry, provider registry, physician ambulatory claims, and hospital discharge abstracts from 28 398 children born in 2003-2006 in urban centres in Manitoba, Canada were the main data sources...
September 14, 2017: Canadian Journal of Public Health. Revue Canadienne de Santé Publique
https://www.readbyqxmd.com/read/28899225/international-teleconsultation-on-conjoined-twins-leading-to-a-successful-separation-a-case-report
#6
Mario V Fusaro, Christian Becker, Samir Pandya, Whitney Mcbride, Kaveh Alizadeh, Vicki Iannotti, Paul Zelkovic, Samuel Barst, Michael E Tobias, Avinash Mohan, Jeffrey Freda, Michael Gewitz, Corey Scurlock
Conjoined twins are identical twins that have incompletely separated in utero. The prognosis for conjoined twins is poor and management in a skilled tertiary care centre is paramount for definitive care. We describe our experience with a telemedical consultation on conjoined twins in The Dominican Republic from our eHealth centre in Valhalla, NY. The patients were two month old, female, pygopagus conjoined twins. A multidisciplinary teleconference was initiated with the patients, their family, the referring paediatrician and our team...
January 1, 2017: Journal of Telemedicine and Telecare
https://www.readbyqxmd.com/read/28895578/challenges-in-comprehensive-management-of-spinal-cord-injury-in-india-and-in-the-asian-spinal-cord-network-region-findings-of-a-survey-of-experts-patients-and-consumers
#7
H S Chhabra, S Sharma, M Arora
STUDY DESIGN: Online survey. OBJECTIVES: To understand the prevailing scenario of the comprehensive management of spinal cord injuries (SCI) in India and in the Asian Spinal Cord Network (ASCoN) region, especially with a view to document the challenges faced and its impact. SETTING: Indian Spinal Injuries Centre. METHODS: A questionnaire was designed which covered various aspects of SCI management. Patients, consumers (spinal injured patients discharged since at least 1 year) and experts in SCI management from different parts of India and the ASCoN region were approached to complete the survey...
September 12, 2017: Spinal Cord
https://www.readbyqxmd.com/read/28894094/children-s-parents-and-health-professionals-views-on-the-management-of-childhood-asthma-a-qualitative-study
#8
Aidan Searle, Russell Jago, John Henderson, Katrina M Turner
The management of childhood asthma is often sub-optimal. Parents and other caregivers are primarily responsible for disease management and this responsibility includes communication with health professionals. The aim of this multi-perspective qualitative study was to explore the views of children, parents and health professionals to gain insight into the approach to clinical care in the management of childhood asthma. Interviews were held with nine parent-child (6-8 years) dyads, and 13 health professionals working in primary and secondary care...
September 11, 2017: NPJ Primary Care Respiratory Medicine
https://www.readbyqxmd.com/read/28889827/multidisciplinary-family-centred-psychosocial-care-for-patients-with-chd-consensus-recommendations-from-the-aepc-psychosocial-working-group
#9
Elisabeth M W J Utens, Edward Callus, Eveline M Levert, Katya De Groote, Frank Casey
Because of the enormous advances in the medical treatment of CHD, the long-term survival of patients suffering from this disease has increased significantly. Currently, about 90% of patients reach adulthood, which entails many new challenges both for patients and their families and for healthcare professionals. The main objective of family-centred psychosocial care is to strengthen the emotional resilience of chronically ill patients and their families by adopting a holistic approach. During the biannual meeting of the psychosocial working group in 2012, participants expressed the need for general European guidelines...
September 11, 2017: Cardiology in the Young
https://www.readbyqxmd.com/read/28880692/clinical-outcome-of-pregnancies-with-the-prenatal-double-bubble-sign-a-five-year-experience-from-one-single-centre-in-mainland-china
#10
Yu Yang, Ping He, Dong-Zhi Li
The aim of this study was to describe the risk of aneuploidy, associated structural anomalies and clinical outcome in pregnancies with the prenatal double bubble sign. A retrospective study on ultrasound reports and pregnancy outcomes was performed in 71 foetuses with double bubble sign, who were examined at the Guangzhou Women and Children Medical Center during a five-year period. Forty-nine patients had the regular prenatal care since first trimester; of these, 20 had the sonographic sign before 24 weeks and the remaining 29 had the sonographic diagnosis after 24 weeks...
September 7, 2017: Journal of Obstetrics and Gynaecology: the Journal of the Institute of Obstetrics and Gynaecology
https://www.readbyqxmd.com/read/28877939/daycare-attendance-and-respiratory-tract-infections-a-prospective-birth-cohort-study
#11
Linnea Schuez-Havupalo, Laura Toivonen, Sinikka Karppinen, Anne Kaljonen, Ville Peltola
OBJECTIVE: We explored the burden of respiratory tract infections (RTIs) in young children with regard to day-care initiation. DESIGN: Longitudinal prospective birth cohort study. SETTING AND METHODS: We recruited 1827 children for follow-up until the age of 24 months collecting diary data on RTIs and daycare. Children with continuous daycare type and complete data were divided into groups of centre-based daycare (n=299), family day care (FDC) (n=245) and home care (n=350)...
September 5, 2017: BMJ Open
https://www.readbyqxmd.com/read/28875719/the-2016-ranzcp-guidelines-for-the-management-of-schizophrenia-and-related-disorders-what-s-next
#12
Assen Jablensky, David J Castle, Frances Dark, Verity Humberstone, Eoin Killackey, Jayashri Kulkarni, Patrick McGorry, Vera A Morgan, Olav Nielssen, Nga Tran, Cherrie Galletly
OBJECTIVES: The recently published RANZCP guidelines for schizophrenia and related disorders reviewed recent scientific evidence, and, where lacking, referred to clinical expertise to supply a template for raising the standard of care. This paper builds on the guidelines and recommends how they might be used to improve outcomes. METHODS: The guidelines call for evidence-based mental health policies, inclusive of mobilising affected families, communities and the public in support of policies that ensure better care and protect the wellbeing of people with severe mental disorders...
September 1, 2017: Australasian Psychiatry: Bulletin of Royal Australian and New Zealand College of Psychiatrists
https://www.readbyqxmd.com/read/28873279/differences-in-bleeding-phenotype-and-provider-interventions-in-postmenarchal-adolescents-when-compared-to-adult-women-with-bleeding-disorders-and-heavy-menstrual-bleeding
#13
L V Srivaths, Q C Zhang, V R Byams, J E Dietrich, A H James, P A Kouides, R Kulkarni
INTRODUCTION: Due to lack of patient/health care provider awareness causing delayed diagnosis, the bleeding phenotype and provider interventions in adolescents with heavy menstrual bleeding (HMB) and bleeding disorders (BD) may be different when compared to adults. AIM: The aim of this study was to compare/characterize bleeding phenotype and provider interventions in postmenarchal adolescents < 18 years and premenopausal adults ≥ 18 years with HMB and BD...
September 5, 2017: Haemophilia: the Official Journal of the World Federation of Hemophilia
https://www.readbyqxmd.com/read/28871025/the-economic-impact-of-childhood-acute-gastroenteritis-on-malawian-families-and-the-healthcare-system
#14
Nathaniel Hendrix, Naor Bar-Zeev, Deborah Atherly, Jean Chikafa, Hazzie Mvula, Richard Wachepa, Amelia C Crampin, Themba Mhango, Charles Mwansambo, Robert S Heyderman, Neil French, Nigel A Cunliffe, Clint Pecenka
OBJECTIVES: This prospective cohort study sought to estimate health system and household costs for episodes of diarrhoeal illness in Malawi. SETTING: Data were collected in two Malawian settings: a rural health centre in Chilumba and an urban tertiary care hospital in Blantyre. PARTICIPANTS: Children under 5 years of age presenting with diarrhoeal disease between 1 January 2013 and 21 November 2014 were eligible for inclusion. Illnesses attributed to other underlying causes were excluded, as were illnesses commencing more than 2 weeks prior to presentation...
September 3, 2017: BMJ Open
https://www.readbyqxmd.com/read/28871024/telemedicine-guided-education-on-secondary-stroke-and-fall-prevention-following-inpatient-rehabilitation-for-texas-patients-with-stroke-and-their-caregivers-a-feasibility-pilot-study
#15
Mansi M Jhaveri, Ruby Benjamin-Garner, Nahid Rianon, Mark Sherer, Gerard Francisco, Farhaan Vahidy, Kayta Kobayashi, Mary Gaber, Paige Shoemake, Kim Vu, Alyssa Trevino, James Grotta, Sean Savitz
INTRODUCTION: The aftermath of stroke leaves many consequences including cognitive deficits and falls due to imbalance. Stroke survivors and families struggle to navigate the complex healthcare system with little assistance posthospital discharge, often leading to early hospital readmission and worse stroke outcomes. Telemedicine Guided Education on Secondary Stroke and Fall Prevention Following Inpatient Rehabilitation feasibility study examines whether stroke survivors and their caregivers find value in telerehabilitation (TR) home visits that provide individualised care and education by a multidisciplinary team after discharge from inpatient rehabilitation...
September 3, 2017: BMJ Open
https://www.readbyqxmd.com/read/28869658/understanding-life-experiences-of-people-affected-by-crohn-s-disease-in-spain-a-phenomenological-approach
#16
Sofía García-Sanjuán, Manuel Lillo-Crespo, Miguel Richart-Martínez, Ángela Sanjuán Quiles
BACKGROUND AND OBJECTIVES: People affected by Crohn's disease must adapt their lives to their new chronic condition, and therefore, understanding such experience can be helpful in planning effective interventions for the affected ones. The aim of this study was to gain an insight into such experience and how they adapted in different areas of their lives, particularly in a family-centred culture such as the Spanish one. METHOD: A descriptive phenomenological study was conducted through in-depth interviews to 19 people diagnosed of Crohn's disease in the province of Alicante (Spain)...
September 4, 2017: Scandinavian Journal of Caring Sciences
https://www.readbyqxmd.com/read/28867267/testing-and-linkage-to-hiv-care-in-china-a-cluster-randomised-trial
#17
Zunyou Wu, Zhenzhu Tang, Yurong Mao, Paul Van Veldhuisen, Walter Ling, David Liu, Zhiyong Shen, Roger Detels, Guanghua Lan, Lynda Erinoff, Robert Lindblad, Diane Gu, Houlin Tang, Lian Hu, Qiuying Zhu, Li Lu, Neal Oden, Albert L Hasson, Yan Zhao, Jennifer M McGoogan, Xianmin Ge, Nanci Zhang, Keming Rou, Jinhui Zhu, Hui Wei, Cynthia X Shi, Xia Jin, Jian Li, Julio S G Montaner
BACKGROUND: Multistage, stepwise HIV testing and treatment procedures can result in lost opportunities to provide timely antiretroviral therapy (ART). Incomplete engagement of patients along the care cascade translates into high preventable mortality. We aimed to identify whether a structural intervention to streamline testing and linkage to HIV health care would improve testing completeness, ART initiation, and viral suppression and reduce mortality. METHODS: We did a cluster-randomised, controlled trial in 12 hospitals in Guangxi, China...
August 31, 2017: Lancet HIV
https://www.readbyqxmd.com/read/28867005/review-and-analysis-of-the-mental-health-nurse-incentive-program
#18
Brenda Happell, Chris Platania-Phung
Objective The aim of the present study was to review and synthesise research on the Mental Health Nurse Incentive Program (MHNIP) to ascertain the benefits and limitations of this initiative for people with mental illness, general practitioners, mental health nurses and the wider community.Methods An electronic and manual search was made of the research literature for MHNIP in May 2017. Features of studies, including cohorts and findings, were tabulated and cross-study patterns in program processes and outcomes were closely compared...
September 4, 2017: Australian Health Review: a Publication of the Australian Hospital Association
https://www.readbyqxmd.com/read/28862129/duration-of-intravenous-antibiotic-therapy-for-children-with-acute-osteomyelitis-or-septic-arthritis-a-feasibility-study
#19
Hans de Graaf, Priya Sukhtankar, Barbara Arch, Nusreen Ahmad, Amanda Lees, Abigail Bennett, Catherine Spowart, Helen Hickey, Annmarie Jeanes, Kate Armon, Andrew Riordan, Jethro Herberg, Scott Hackett, Carrol Gamble, Delane Shingadia, Ann Pallett, Stuart C Clarke, Philip Henman, Marieke Emonts, Mike Sharland, Adam Finn, Andrew J Pollard, Colin Powell, Peter Marsh, Claire Ballinger, Paula R Williamson, Nicholas Mp Clarke, Saul N Faust
BACKGROUND: There is little current consensus regarding the route or duration of antibiotic treatment for acute osteomyelitis (OM) and septic arthritis (SA) in children. OBJECTIVE: To assess the overall feasibility and inform the design of a future randomised controlled trial (RCT) to reduce the duration of intravenous (i.v.) antibiotic use in paediatric OM and SA. DESIGN: (1) A prospective service evaluation (cohort study) to determine the current disease spectrum and UK clinical practice in paediatric OM/SA; (2) a prospective cohort substudy to assess the use of targeted polymerase chain reaction (PCR) in diagnosing paediatric OM/SA; (3) a qualitative study to explore families' views and experiences of OM/SA; and (4) the development of a core outcome set via a systematic review of literature, Delphi clinician survey and stakeholder consensus meeting...
September 2017: Health Technology Assessment: HTA
https://www.readbyqxmd.com/read/28860432/-maggie-s-tokyo-s-human-support-the-meaning-of-where-now-and-cancer-journey
#20
Yoshie Takada
The landscape architect Maggie Jencks felt that she wanted a place to "get herself back" when her breast cancer recurred and was told that she only had a few months remaining. Mr. Charles Jencks, her husband who fulfilled her wishes, opened the first "Maggie's Cancer Caring Centre" in Edinburgh in 1996. Masako Akiyama, the chief of Maggie's Tokyo found out about Maggie's Centre when she listened to a presentation from Andrew Anderson, the director of Maggie's Edinburgh, at an International Nursing Seminar in 2008...
August 2017: Gan to Kagaku Ryoho. Cancer & Chemotherapy
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