Annette J Braunack-Mayer, Carolyn Adams, Alberto Nettel-Aguirre, Belinda Fabrianesi, Lucy Carolan, Justin Beilby, Felicity Flack
INTRODUCTION: General practice data, particularly when combined with hospital and other health service data through data linkage, are increasingly being used for quality assurance, evaluation, health service planning and research. In this study, we explored community views on sharing general practice data for secondary purposes, including research, to establish what concerns and conditions need to be addressed in the process of developing a social licence to support such use. METHODS: We used a mixed-methods approach with focus groups (November-December 2021), followed by a cross-sectional survey (March-April 2022)...
February 2024: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy