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https://www.readbyqxmd.com/read/28929208/proms-in-paediatric-knee-ligament-injury-use-the-pedi-ikdc-and-avoid-using-adult-proms
#1
REVIEW
M Dietvorst, M Reijman, B van Groningen, M C van der Steen, R P A Janssen
PURPOSE: The aim of this systematic review was to present an evidence-based overview of psychometric properties of patient-reported outcome measures (PROMs) for children with knee ligament injury. METHODS: A systematic search of literature was performed in PubMed, EMBASE and Cochrane databases. The inclusion criteria were diagnostic studies evaluating psychometric properties (validity, reliability, responsiveness) and comprehensibility of PROMs as well as studies including children (age < 18 years) with knee ligament injury...
September 19, 2017: Knee Surgery, Sports Traumatology, Arthroscopy: Official Journal of the ESSKA
https://www.readbyqxmd.com/read/28926299/evidence-based-medicine-in-otolaryngology-part-6-patient-reported-outcomes-in-clinical-practice
#2
Thomas L Carroll, Stella E Lee, Robin Lindsay, Drew Locandro, Gregory W Randolph, Jennifer J Shin
The assessment of patient-reported outcome measures (PROMs) in the outpatient setting is gaining momentum in clinical and research venues. Implementing this data capture into one's practice, however, is not a one-size-fits-all venture, and it is critical to determine when, how, and where to include these patient-centered assessments. This installment of the "Evidence-Based Medicine in Otolaryngology" series provides insight into the implementation process and experiences with successful incorporation of PROMs into clinical practice...
September 1, 2017: Otolaryngology—Head and Neck Surgery
https://www.readbyqxmd.com/read/28921017/the-german-arthroscopy-registry-dart
#3
Ralf Mueller-Rath, Oliver Miltner, Alfred Hochrein, Philipp Niemeyer
In Germany, more than 400,000 arthroscopic procedures are performed each year. The DART registry is designed to study the outcome of arthroscopic procedures of the shoulder, hip, knee and ankle joint under everyday clinical circumstances using patient-reported outcome measures (PROMs). DART aims at identifying patient-specific factors correlated with therapy-associated complications and treatment failure and will help study the influence of concurrent joint diseases and procedures. To achieve these tasks, a Web-based remote data entry system will be applied and adapted to the needs of DART...
September 18, 2017: Knee Surgery, Sports Traumatology, Arthroscopy: Official Journal of the ESSKA
https://www.readbyqxmd.com/read/28920448/assessing-the-impact-of-headaches-and-the-outcomes-of-treatment-a-systematic-review-of-patient-reported-outcome-measures-proms
#4
Kirstie L Haywood, Tom S Mars, Rachel Potter, Shilpa Patel, Manjit Matharu, Martin Underwood
Aims To critically appraise, compare and synthesise the quality and acceptability of multi-item patient reported outcome measures for adults with chronic or episodic headache. Methods Systematic literature searches of major databases (1980-2016) to identify published evidence of PROM measurement and practical properties. Data on study quality (COSMIN), measurement and practical properties per measure were extracted and assessed against accepted standards to inform an evidence synthesis. Results From 10,903 reviewed abstracts, 103 articles were assessed in full; 46 provided evidence for 23 PROMs: Eleven specific to the health-related impact of migraine (n = 5) or headache (n = 6); six assessed migraine-specific treatment response/satisfaction; six were generic measures...
January 1, 2017: Cephalalgia: An International Journal of Headache
https://www.readbyqxmd.com/read/28903602/role-of-maternal-serum-ferritin-in-prediction-of-preterm-labour
#5
Khaled Abdel-Malek, Mohamed Ahmed El-Halwagi, Bahaa Eldin Hammad, Osama Azmy, Omneya Helal, Marwa Eid, Mazen Abdel-Rasheed
The aim of this study was to evaluate the value of measurement of serum ferritin level in pregnant women to predict preterm labour. The study included 236 women whose haemoglobin (Hb) levels were ≥10.5 gm/dl and gestational age (GA) was less than 30 weeks. Serum ferritin levels were measured at 30 weeks of gestational age. At the end of the study, 23 women delivered with preterm premature rupture of membrane (PPROM) and 17 women delivered before 37 weeks but without PROM (study group). The rest of the pregnant women (196 women) delivered between 37 and 40 weeks (control group)...
September 14, 2017: Journal of Obstetrics and Gynaecology: the Journal of the Institute of Obstetrics and Gynaecology
https://www.readbyqxmd.com/read/28899888/protocol-for-a-systematic-review-of-instruments-for-the-assessment-of-quality-of-life-and-well-being-in-children-and-adolescents-with-cerebral-palsy
#6
Christine Mpundu-Kaambwa, Gang Chen, Elisabeth Huynh, Remo Russo, Julie Ratcliffe
INTRODUCTION: Cerebral palsy is the most common cause of physical disability in children and adolescents and is associated with impairments that may reduce the quality of life (QOL) of this population. Patient-reported outcome measures (PROMs) can facilitate the assessment of the effect of disease and treatment on QOL, from a patient viewpoint. The purpose of this systematic review is to identify PROMs that are used to measure QOL and subjective well-being (SWB) outcomes in young people with cerebral palsy and to evaluate the suitability of these PROMs for application in economic evaluations within this population...
September 11, 2017: BMJ Open
https://www.readbyqxmd.com/read/28893693/current-status-of-worldwide-use-of-patient-reported-outcome-measures-proms-in-spine-care
#7
Asdrubal Falavigna, Diego Cassol Dozza, Alisson R Teles, Chung Chek Wong, Giuseppe Barbagallo, Darrel Brodke, Abdulaziz Al-Mutair, Zoher Ghogawala, K Daniel Riew
OBJECTIVES: Patient-reported outcome measures PROMs are the most widely accepted means of measuring outcomes following spine procedures. We sought to determine the current status of worldwide use of PROMs in Latin America (LA), Europe (EU), Asia Pacific (AP), North America (NA), and Middle East (ME) in order to determine the barrier to its full implementation. METHODS: A questionnaire survey was sent by e-mail to members of AOSpine to evaluate their familiarity and use of PROMs instruments, and to assess the barriers to their use in spine care practice in LA, EU, AP, NA, and ME...
September 8, 2017: World Neurosurgery
https://www.readbyqxmd.com/read/28893527/management-of-premature-rupture-of-membranes-at-term-the-need-to-correct-a-recurring-mistake-in-articles-chapters-and-recommendations-of-professional-organizations
#8
Eyal Krispin
Recommendations about the management of premature rupture of membranes at term are based, in part, on a large, randomized controlled trial published in 1996: the "TERMPROM" trial. The original article contained an error in Table 1, in which "Interval from membrane rupture to delivery" was listed instead of "Interval from membrane rupture to study entry". While the authors and journal corrected this error, the mistake published in the original paper has made its way into subsequent publications and even in guidelines or practice bulletins issued by professional organizations, textbooks, and other publications around the world...
September 8, 2017: American Journal of Obstetrics and Gynecology
https://www.readbyqxmd.com/read/28892821/readability-level-of-spanish-language-patient-reported-outcome-measures-in-audiology-and-otolaryngology
#9
Laura Coco, Sonia Colina, Samuel R Atcherson, Nicole Marrone
Purpose: The purpose of this study was to examine the readability level of the Spanish versions of several audiology- and otolaryngology-related patient-reported outcome measures (PROMs) and include a readability analysis of 2 translation approaches when available-the published version and a "functionalist" version-using a team-based collaborative approach including community members. Method: Readability levels were calculated using the Fry Graph adapted for Spanish, as well as the Fernandez-Huerta and the Spaulding formulae for several commonly used audiology- and otolaryngology-related PROMs...
September 18, 2017: American Journal of Audiology
https://www.readbyqxmd.com/read/28887596/cross-cultural-adaptation-and-measurement-properties-of-generic-and-cancer-related-patient-reported-outcome-measures-proms-for-use-with-cancer-patients-in-brazil-a-systematic-review
#10
REVIEW
Carlos Augusto Albach, Richard Wagland, Katherine J Hunt
PURPOSE: This systematic review (1) identifies the current generic and cancer-related patient-reported outcome measures (PROMs) that have been cross-culturally adapted to Brazilian Portuguese and applied to cancer patients and (2) critically evaluates their cross-cultural adaptation (CCA) and measurement properties. METHODS: Seven databases were searched for articles regarding the translation and evaluation of measurement properties of generic and cancer-related PROMs cross-culturally adapted to Brazilian Portuguese that are applied in adult (≥18 years old) cancer patients...
September 8, 2017: Quality of Life Research
https://www.readbyqxmd.com/read/28886742/patient-involvement-in-the-development-of-patient-reported-outcome-measures-the-developers-perspective
#11
Bianca Wiering, Dolf de Boer, Diana Delnoij
BACKGROUND: Patient-reported outcome measures (PROMs) are increasingly used in health care. To capture the patient's perspective, patient involvement in PROM development is needed. As earlier research showed varying degrees of patient involvement in PROM development, this study aimed to investigate why PROM developers do or do not involve patients, how patients can be successfully involved and what the negative aspects and benefits of patient involvement are. METHODS: PROM developers who, according to an earlier scoping review, involved patients in at least two phases of PROM development or did not involve patients at all, were contacted for a telephone interview...
September 8, 2017: BMC Health Services Research
https://www.readbyqxmd.com/read/28883922/assessment-of-patient-reported-outcome-measures-in-pleural-interventions
#12
Ioannis Psallidas, Ahmed Yousuf, Ambika Talwar, Rob J Hallifax, Eleanor K Mishra, John P Corcoran, Nabeel Ali, Najib M Rahman
INTRODUCTION: There is a lack of data evaluating the clinical effect on symptoms of pleural intervention procedures. This has led to the development of patient-reported outcome measures (PROMs) to define what constitutes patient benefit. The primary aim of this paper was to prospectively assess the effect of pleural procedures on PROMs and investigate the relationship between symptom change and clinical factors. METHODS: We prospectively collected data as part of routine clinical care from 158 patients with pleural effusion requiring interventions...
2017: BMJ Open Respiratory Research
https://www.readbyqxmd.com/read/28880988/the-10-item-standardized-cosmesis-and-health-nasal-outcomes-survey-schnos-for-functional-and-cosmetic-rhinoplasty
#13
Sami P Moubayed, John P A Ioannidis, Mikhail Saltychev, Sam P Most
Importance: Rhinoplasty is a common operation in which shape and function are intimately related, whether the procedure is cosmetic, functional, or combined in nature. There is currently no properly developed and validated patient-reported outcome measure (PROM) to evaluate both functional and cosmetic components of rhinoplasty. Objective: To develop, validate, and field test the Standardized Cosmesis and Health Nasal Outcomes Survey (SCHNOS) to evaluate both functional and cosmetic outcomes of rhinoplasty...
September 7, 2017: JAMA Facial Plastic Surgery
https://www.readbyqxmd.com/read/28876467/nationwide-population-based-study-of-post-radical-prostatectomy-urinary-incontinence-correction-surgery
#14
Eugenio Ventimiglia, Yasin Folkvaljon, Stefan Carlsson, Ola Bratt, Francesco Montorsi, Daniela Volz, Olof Akre, Eva Johansson, Pär Stattin
OBJECTIVES: To assess the use of post radical prostatectomy (RP) urinary incontinence (PPI) surgery and to investigate factors related to its use. METHODS: Cohort study in Prostate Cancer database Sweden (PCBaSe) of men who underwent primary RP between 1998 and 2012. PPI correction procedures were identified in the Patient Registry. Hazard ratios (HR) and 95% confidence intervals (CIs) of PPI surgeries were estimated. RESULTS: Seven hundred eighty-two out of 26 280 (3%) men underwent PPI surgery at a median time of 3 years after RP...
September 6, 2017: Journal of Surgical Oncology
https://www.readbyqxmd.com/read/28873825/exploring-the-perspectives-of-people-who-use-alternative-and-augmentative-communication-aids-aac
#15
Katherine Broomfield, Karen Sage
This paper outlines the clinical doctoral research plan (funded by HEE/NIHR Integrated Clinical Academic Programme) to engage the wide range of people who use alternative and augmentative communication (AAC) to understand the perspectives of users in order to develop a Patient Reported Outcome Measure (PROM) to evaluate equipment and services.
2017: Studies in Health Technology and Informatics
https://www.readbyqxmd.com/read/28870379/esource-for-clinical-trials-implementation-and-evaluation-of-a-standards-based-approach-in-a-real-world-trial
#16
Jean-Francois Ethier, Vasa Curcin, Mark M McGilchrist, Sarah N Lim Choi Keung, Lei Zhao, Anna Andreasson, Piotr Bródka, Radoslaw Michalski, Theodoros N Arvanitis, Nikolaos Mastellos, Anita Burgun, Brendan C Delaney
OBJECTIVE: The Learning Health System (LHS) requires integration of research into routine practice. 'eSource' or embedding clinical trial functionalities into routine electronic health record (EHR) systems has long been put forward as a solution to the rising costs of research. We aimed to create and validate an eSource solution that would be readily extensible as part of a LHS. MATERIALS AND METHODS: The EU FP7 TRANSFoRm project's approach is based on dual modelling, using the Clinical Research Information Model (CRIM) and the Clinical Data Integration Model of meaning (CDIM) to bridge the gap between clinical and research data structures, using the CDISC Operational Data Model (ODM) standard...
October 2017: International Journal of Medical Informatics
https://www.readbyqxmd.com/read/28865585/are-current-foot-and-ankle-outcome-measures-appropriate-for-the-evaluation-of-treatment-for-osteoarthritis-of-the-ankle-evaluation-of-ceiling-effects-in-foot-and-ankle-outcome-measures
#17
Ewout S Veltman, Cheriel J Hofstad, Angelique G H Witteveen
BACKGROUND: Many PROMs used for evaluation of ankle osteoarthritis are not validated for this purpose. We hypothesize that frequently used PROMs have an early ceiling or floor effect. METHODS: We prospectively collected data from patients with ankle osteoarthritis between 2011 and 2013. At baseline visit patients completed the Foot and Ankle Outcome Score, the Ankle Osteoarthritis Score, the American Orthopaedic Foot and Ankle Society scale, a visual analogue scale for pain and quality of life...
September 2017: Foot and Ankle Surgery: Official Journal of the European Society of Foot and Ankle Surgeons
https://www.readbyqxmd.com/read/28865057/patient-reported-outcome-measures-2%C3%A2-years-after-standard-and-distal-gastric-bypass-a-double-blind-randomized-controlled-trial
#18
Marius Svanevik, Hilde Risstad, Tor-Ivar Karlsen, Jon A Kristinsson, Milada Cvancarova Småstuen, Ronette L Kolotkin, Torgeir T Søvik, Rune Sandbu, Tom Mala, Jøran Hjelmesæth
BACKGROUND: The preferred surgical procedure for treating morbid obesity is debated. Patient-reported outcome measures (PROMs) are relevant for evaluation of the optimal bariatric procedure. METHODS: A total of 113 patients with BMI from 50 to 60 were randomly assigned to standard (n = 57) or distal (n = 56) Roux-en-Y gastric bypass (RYGB). Validated PROMS questionnaires were completed at baseline and 2 years after surgery. Data were analyzed using mixed models for repeated measures and the results are expressed as estimated means and mean changes...
September 1, 2017: Obesity Surgery
https://www.readbyqxmd.com/read/28864449/feasibility-and-acceptability-of-a-patient-reported-outcome-intervention-in-chronic-heart-failure
#19
Pauline M Kane, Barbara A Daveson, Karen Ryan, Clare I Ellis-Smith, Niall G Mahon, Brendan McAdam, Regina McQuilllan, Cecelia Tracey, Christine Howley, Geraldine O'Gara, Caroline Raleigh, Irene J Higginson, Jonathan Koffman, Fliss E M Murtagh
Patients with chronic heart failure (CHF) have symptoms and concerns which are inadequately addressed. Patient-reported outcome measures (PROMs) can potentially improve the identification and management of advanced symptoms and palliative concerns. However, these have not been used in CHF. OBJECTIVES: To examine the feasibility and acceptability of using a PROM-the Integrated Palliative care Outcome Scale (IPOS)-together with heart failure nurse education and training to improve the identification and management of symptoms and concerns among patients with CHF...
September 1, 2017: BMJ Supportive & Palliative Care
https://www.readbyqxmd.com/read/28864340/clinical-and-patient-reported-outcomes-of-one-sided-anterior-urethroplasty-for-long-segment-or-panurethral-strictures
#20
Jeffrey Spencer, Stephen Blakely, Michael Daugherty, Javier C Angulo, Francisco Martins, Krishnan Venkatesan, Dmitriy Nikolavsky
OBJECTIVES: To evaluate clinical and patient-reported urinary and sexual outcomes after a long-segment stricture repair using the one-sided urethral dissection, penile invagination and dorsal BMG onlay technique described by Kulkarni. METHODS: Patients from four institutions after single-stage repairs for long-segment urethral strictures (> 8 cm) from January 2002 to April 2016 were reviewed. Technique described by Kulkarni et al was used in all cases. Clinical outcomes included uroflowmetry (Qmax), post-void residuals (PVR)...
August 29, 2017: Urology
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