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https://www.readbyqxmd.com/read/29453752/satisfied-patients-after-shoulder-arthrodesis-for-brachial-plexus-lesions-even-after-20-years-of-follow-up
#1
M A J van der Lingen, S G C J de Joode, M G M Schotanus, B Grimm, F A van Nie, L A W M Speth, S K Samijo
PURPOSE: Patients with an upper brachial plexus lesion can suffer from dysfunction, joint deformities and instability of the shoulder. The goal of this study was to determine pain, shoulder function, patient satisfaction and muscle strength in shoulder arthrodesis in patients with an upper brachial plexus lesion more than 15 years after surgery. METHODS: We retrospectively studied 12 patients with a brachial plexus lesion of mean age 46 years (27-61). At a mean of 19...
February 16, 2018: European Journal of Orthopaedic Surgery & Traumatology: Orthopédie Traumatologie
https://www.readbyqxmd.com/read/29451059/-oncokompas-a-web-based-self-management-application-to-support-patient-activation-and-optimal-supportive-care-a-feasibility-study-among-breast-cancer-survivors
#2
Heleen C Melissant, Irma M Verdonck-de Leeuw, Birgit I Lissenberg-Witte, Inge R Konings, Pim Cuijpers, Cornelia F Van Uden-Kraan
BACKGROUND: Cancer survivors have to deal with symptoms related to cancer and its treatment. In Oncokompas, cancer survivors monitor their quality of life by completing patient reported outcome measures (PROMs), followed by personalized feedback, self-care advice, and supportive care options to stimulate patient activation. The aim of this study was to investigate feasibility and pretest-posttest differences of Oncokompas including a newly developed breast cancer (BC) module among BC survivors...
February 16, 2018: Acta Oncologica
https://www.readbyqxmd.com/read/29445511/management-of-group-b-streptococcus-positive-pregnant-women-at-maternity-homes-in-japan-a-questionnaire-survey-of-compliance-among-midwives
#3
Kotomi Yamaguchi, Kazutomo Ohashi
Background: Per the 2014 Japanese Midwives Association (JMA) guidelines, midwives were allowed to manage the deliveries for group B streptococcus (GBS)-positive pregnant women in labour at maternity homes without the supervision of a medical doctor if they complied with the guidelines of the Japan Society of Obstetrics and Gynecology (JSOG), wherein midwives working for maternity homes are expected to cooperate with commissioned obstetricians and paediatricians in cooperative medical facilities...
2018: Maternal Health, Neonatology and Perinatology
https://www.readbyqxmd.com/read/29444109/population-structure-of-the-npgs-senegalese-sorghum-collection-and-its-evaluation-to-identify-new-disease-resistant-genes
#4
Hugo E Cuevas, Louis K Prom, Giseiry Rosa-Valentin
Sorghum germplasm from West and Central Africa is cultivated in rainy and high humidity regions and is an important source of resistance genes to fungal diseases. Mold and anthracnose are two important biotic constraints to sorghum production in wet areas worldwide. Here, 158 National Plant Germplasm System (NPGS) accessions from Senegal were evaluated for agronomic traits, anthracnose, and grain mold resistance at two locations, and genetically characterized according to 20 simple sequence repeat markers. A total of 221 alleles were amplified with an average of 11 alleles per locus...
2018: PloS One
https://www.readbyqxmd.com/read/29435801/cosmin-guideline-for-systematic-reviews-of-patient-reported-outcome-measures
#5
C A C Prinsen, L B Mokkink, L M Bouter, J Alonso, D L Patrick, H C W de Vet, C B Terwee
PURPOSE: Systematic reviews of patient-reported outcome measures (PROMs) differ from reviews of interventions and diagnostic test accuracy studies and are complex. In fact, conducting a review of one or more PROMs comprises of multiple reviews (i.e., one review for each measurement property of each PROM). In the absence of guidance specifically designed for reviews on measurement properties, our aim was to develop a guideline for conducting systematic reviews of PROMs. METHODS: Based on literature reviews and expert opinions, and in concordance with existing guidelines, the COnsensus-based Standards for the selection of health Measurement INstruments (COSMIN) steering committee developed a guideline for systematic reviews of PROMs...
February 12, 2018: Quality of Life Research
https://www.readbyqxmd.com/read/29435594/-periacetabular-osteotomy-what-influence-does-age-have-on-patient-relevant-results-a-prospective-5%C3%A2-year-investigation
#6
L Franken, F Thielemann, A Postler, S Blum, A Hartmann, K-P Günther, J Goronzy
INTRODUCTION: Periacetabular osteotomy (PAO) is an effective procedure in treatment of symptomatic hip dysplasia. To achieve a good outcome a strict patient selection has to be applied. The aim of this study was to evaluate the influence of patient age at surgery on clinical outcome. METHODS: In a prospective study 86 patients (106 hips) underwent clinical and radiographic follow-up at a mean time of 5 years (2.5-8.5 years) after PAO. Patient-related outcome measurements (PROMs: EQ-5D, WOMAC, OHS, GTO) were applied preoperatively as well as postoperatively and the deformity correction as well as development of osteoarthritis were evaluated...
February 12, 2018: Der Orthopäde
https://www.readbyqxmd.com/read/29433606/routine-outcome-measurement-recovery-quality-of-life-and-co-production
#7
Jed Boardman
Patient-reported outcome measures (PROMs) are self-rated, but may not take in other aspects of the patient's perspective, such as the inclusion of domains that reflect service-user priorities. The clinician's view still has priority, although this situation has shifted in recent years. The Recovering Quality of Life (ReQoL) offers an advance in this area. Declaration of interest None.
January 2018: British Journal of Psychiatry: the Journal of Mental Science
https://www.readbyqxmd.com/read/29427216/measuring-health-related-quality-of-life-in-patients-with-advanced-cancer-a-systematic-review-of-self-administered-measurement-instruments
#8
REVIEW
Janneke van Roij, Heidi Fransen, Lonneke van de Poll-Franse, Myrte Zijlstra, Natasja Raijmakers
PURPOSE: Patient-reported outcome measures (PROMs) are becoming increasingly important in clinical practice. The implementation of PROMS in routine practice is challenging because information regarding psychometric quality of measurement instruments is fragmented and standardization is lacking. The aim of this study is to evaluate the quality of self-administered HRQoL measurement instruments for use in patients with advanced cancer in clinical practice. METHODS: A systematic literature search was performed in PubMed, Embase, PsycINFO, and CINAHL to identify studies concerning self-administered HRQoL measurement instruments in patients with advanced cancer between January 1990 and September 2016...
February 10, 2018: Quality of Life Research
https://www.readbyqxmd.com/read/29424766/social-connectedness-and-perceived-listening-effort-in-adult-cochlear-implant-users-a-grounded-theory-to-establish-content-validity-for-a-new-patient-reported-outcome-measure
#9
Sarah E Hughes, Hayley A Hutchings, Frances L Rapport, Catherine M McMahon, Isabelle Boisvert
OBJECTIVES: Individuals with hearing loss often report a need for increased effort when listening, particularly in challenging acoustic environments. Despite audiologists' recognition of the impact of listening effort on individuals' quality of life, there are currently no standardized clinical measures of listening effort, including patient-reported outcome measures (PROMs). To generate items and content for a new PROM, this qualitative study explored the perceptions, understanding, and experiences of listening effort in adults with severe-profound sensorineural hearing loss before and after cochlear implantation...
February 8, 2018: Ear and Hearing
https://www.readbyqxmd.com/read/29423545/improved-walking-distance-and-range-of-motion-predict-patient-satisfaction-after-tka
#10
Stefaan Van Onsem, Matthias Verstraete, Sebastiaan Dhont, Bert Zwaenepoel, Catherine Van Der Straeten, Jan Victor
PURPOSES: The focus in the evaluation of total knee arthroplasty has shifted from objective measures of implant position and knee function, to patient-reported outcome measures (PROMs). The relation between these two measures was investigated and the possibility of prediction of the patient satisfaction level was evaluated by defining thresholds for improvement of (1) range of motion (ROM), (2) 6-min walk test (6MWT), (3) sit-to-stand test (STS) and (4) quadriceps force after TKA? METHODS: Fifty-seven patients were prospectively tested at preoperative and 6 months postoperative intervals...
February 8, 2018: Knee Surgery, Sports Traumatology, Arthroscopy: Official Journal of the ESSKA
https://www.readbyqxmd.com/read/29420364/assessing-patient-reported-quality-of-life-outcomes-in-vulva-cancer-patients-a-systematic-literature-review
#11
Ligita Paskeviciute Froeding, Elfriede Greimel, Anne Lanceley, Anne Oberguggenberger, Claudia Schmalz, Vesna Bjelic Radisic, Andy Nordin, Razvan Galalaei, Karin Kuljanic, Ingvild Vistad, Tine Henrichsen Schnack, Pernille Tine Jensen
OBJECTIVES: Vulva cancer (VC) treatment carries a high risk of severe late effects that may have a negative impact on quality of life (QoL). Patient-reported outcome measures (PROMs) are increasingly used when evaluating disease- and treatment-specific effects. However, the adequacy of measures used to assess sequelae and QoL in VC remains unclear. The aims of the present study were to evaluate disease- and treatment-related effects as measured by PROMs in VC patients and to identify available VC-specific PROMs...
February 8, 2018: International Journal of Gynecological Cancer
https://www.readbyqxmd.com/read/29419681/shear-wave-sonoelastography-in-infants-with-congenital-muscular-torticollis
#12
Gi Young Park, Dong Rak Kwon, Dae Gil Kwon
Congenital muscular torticollis (CMT) is characterized by shortening or excessive contraction of the sternocleidomastoid muscle (SCM). The main purpose of this study was to evaluate the feasibility of quantifying SCM stiffness using acoustic radiation force impulse (ARFI) sonoelastography in infants with CMT. Twenty infants with an SCM thickness greater than 10 mm with or without involvement of the entire SCM length (limitation of neck rotation passive range of motion [PROM]: group 1S >30°, group 1M = 15°-30°) and 12 infants with an SCM thickness smaller than 10 mm with or without involvement of any part of SCM (group 2) were included...
February 2018: Medicine (Baltimore)
https://www.readbyqxmd.com/read/29415808/procedural-outcome-and-midterm-survival-of-lower-risk-transfemoral-transcatheter-aortic-valve-implantation-patients-treated-with-the-sapien-xt-or-sapien-3-device
#13
Jeroen Vendrik, Floortje van Kesteren, Martijn S van Mourik, Jan J Piek, Jan G Tijssen, Jose P S Henriques, Joanna J Wykrzykowska, Rob J de Winter, Antoine H G Driessen, Abdullah Kaya, M Marije Vis, Karel T Koch, Jan Baan
Over the years increasing experience and technical device improvements in transcatheter aortic valve implantation (TAVI) have led to treatment of patients with lower surgical risks. Specifically for this population, device performance and longer term outcome are of great importance. In this single center, we performed a retrospective analysis of 515 consecutive patients with low- to intermediate surgical risk (STS-PROM ≤8), who underwent transfemoral TAVI between January 2009 and February 2017 with the SXT and ES3 prostheses, and we assessed procedural outcome and procedural and 3-year survival...
January 11, 2018: American Journal of Cardiology
https://www.readbyqxmd.com/read/29415714/improving-quality-of-care-through-patient-reported-outcome-measures-proms-expert-interviews-using-the-nhs-proms-programme-and-the-swedish-quality-registers-for-knee-and-hip-arthroplasty-as-examples
#14
Birgit Prodinger, Paul Taylor
BACKGROUND: Patient reported outcome measures (PROMs) have been integrated in national quality registries or specific national monitoring initiatives to inform the improvement of quality of care on a national scale. However there are many unanswered questions, such as: how these systems are set up, whether they lead to improved quality of care, which stakeholders use the information once it is available. The aim of this study was to examine supporting and hindering factors relevant to integrating patient-reported outcome measures (PROMs) in selected health information systems (HIS) tailored toward improving quality of care across the entire health system...
February 7, 2018: BMC Health Services Research
https://www.readbyqxmd.com/read/29414263/measuring-patient-reported-outcomes-key-metrics-in-reconstructive-surgery
#15
Sophocles H Voineskos, Jonas A Nelson, Anne F Klassen, Andrea L Pusic
Satisfaction and improved quality of life are among the most important outcomes for patients undergoing plastic and reconstructive surgery for a variety of diseases and conditions. Patient-reported outcome measures (PROMs) are essential tools for evaluating the benefits of newly developed surgical techniques. Modern PROMs are being developed with new psychometric approaches, such as Rasch Measurement Theory, and their measurement properties (validity, reliability, responsiveness) are rigorously tested. These advances have resulted in the availability of PROMs that provide clinically meaningful data and effectively measure functional as well as psychosocial outcomes...
January 29, 2018: Annual Review of Medicine
https://www.readbyqxmd.com/read/29412088/gemstracker-expertise-team-rotterdam-arm-and-hand-web-based-monitoring-of-physical-social-and-emotional-functioning-in-patients-with-upper-limb-amputations
#16
Lisette Marjon Melis-Schrijver, Monique S den Hollander-Ardon, Wim Gm Janssen, Ruud van der Veen
BACKGROUND AND AIM: Patient-reported outcome measures are increasingly used to evaluate effectiveness of treatment. However, the use of 'paper and pencil' questionnaires is time-consuming for both patients and healthcare specialists. Therefore, the aim of this project was to develop a custom-built web-based monitoring system. TECHNIQUE: We incorporated reliable and valid questionnaires on all domains of human functioning as described in the World Health Organization's Classification of Functioning, Disability and Health (ICF and ICF-CY)...
February 2018: Prosthetics and Orthotics International
https://www.readbyqxmd.com/read/29409269/gait-analysis-and-functional-outcome-in-patients-after-lisfranc-injury-treatment
#17
S van Hoeve, G Stollenwerck, P Willems, M A Witlox, K Meijer, M Poeze
INTRODUCTION: Lisfranc injuries involve any bony or ligamentous disruption of the tarsometatarsal joint. Outcome results after treatment are mainly evaluated using patient-reported outcome measures (PROM), physical examination and radiographic findings. Less is known about the kinematics during gait. METHODS: Nineteen patients (19 feet) treated for Lisfranc injury were recruited. Patients with conservative treatment and surgical treatment consisting of open reduction and internal fixation (ORIF) or primary arthrodesis were included...
July 18, 2017: Foot and Ankle Surgery: Official Journal of the European Society of Foot and Ankle Surgeons
https://www.readbyqxmd.com/read/29409251/large-variation-in-use-of-patient-reported-outcome-measures-a-survey-of-188-foot-and-ankle-surgeons
#18
R Zwiers, H Weel, W H Mallee, G M M J Kerkhoffs, C N van Dijk
BACKGROUND: There is an increasing interest in the use of patient reported outcome measures (PROMs). However, there is a large variety of PROMs and a lack of consensus regarding preference for their use. Aim of this study is to determine how often PROMS are used for foot and ankle disorders, for what purpose PROMs are used, and what the preferences of the foot and ankle surgeons are, when choosing a PROM to use. METHODS: Members of the Ankleplatform Study Group-Science of Variation Collaborative were invited to participate in this survey by email...
March 9, 2017: Foot and Ankle Surgery: Official Journal of the European Society of Foot and Ankle Surgeons
https://www.readbyqxmd.com/read/29406450/feedback-to-patients-about-patient-reported-outcomes-does-not-improve-empowerment-or-satisfaction
#19
Lisette Ackermans, Michiel G Hageman, A H Bos, Daniel Haverkamp, Vanessa A B Scholtes, Rudolf W Poolman
BACKGROUND: Although patient-reported outcome measures (PROMs) are helpful to define whether an intervention has improved a patient's status in ways the patient feels are important, they may also serve an empowering educational role; specifically, sharing a patient's scores might help the patient understand his or her progress during treatment. However, whether sharing PROM scores in this way improves the sense of empowerment or satisfaction with the process of care has not been well explored...
February 2, 2018: Clinical Orthopaedics and related Research
https://www.readbyqxmd.com/read/29393041/surgical-treatment-for-urinary-incontinence-in-women-danish-nationwide-cohort-studies%C3%A2
#20
Margrethe Foss Hansen
This PhD thesis is based on three original articles. The studies were performed at the Department of Obstetrics and Gynaecology, Herlev University Hospital and at the Center for Clinical Epidemiology, Odense University Hospital. 
Urinary incontinence (UI) is a frequent disorder among women, which for the individual can have physical, psychological and social consequences. The current standard of surgical treatment is the synthetic midurethral sling (MUS), which is a minimal invasive procedure.
As the synthetic MUSs (TVT,TVT-O,TOT) were introduced in the late 1990s, there are only a few studies at the long-term follow-up based on nationwide populations; only a few have reported on the risk of reoperation and there is sparse evidence on which treatment should be used subsequently to failure of synthetic MUSs...
February 2018: Danish Medical Journal
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