keyword
https://read.qxmd.com/read/38619810/development-of-patient-and-caregiver-conceptual-models-investigating-the-health-related-quality-of-life-impacts-of-malignant-pleural-mesothelioma
#1
JOURNAL ARTICLE
Adam E J Gibson, Waqas Ahmed, Louise Longworth, Bryan Bennett, Melinda Daumont, Liz Darlison
BACKGROUND: Malignant pleural mesothelioma (MPM) is a rare and usually fatal malignancy frequently linked to occupational asbestos exposures and associated with poor prognosis and considerable humanistic burden. The study aimed to develop conceptual models of the health-related quality of life (HRQoL) impact on patients with and receiving treatment for MPM, and the burden on their caregivers. METHODS: This multi-country study (Australia and United Kingdom) adopted a qualitative methodology to conduct semi-structured, independent interviews with people with MPM (n = 26), current caregivers (n = 20), and caregivers of people who had recently died because of MPM (n = 4)...
April 15, 2024: Patient
https://read.qxmd.com/read/38612277/intergenerational-transmission-of-human-parenting-styles-to-human-dog-relationships
#2
JOURNAL ARTICLE
Chih Hsin Kuo, Sharon Kessler
Parenting style and intergenerational transmission have been extensively studied in parent-child relationships. As dogs are increasingly recognized as integral members of the family system, there is a growing interest in understanding how parenting behaviors directed towards dogs can also influence a dog's behaviors. However, the reasons why people adopt certain parenting behaviors towards dogs remain relatively unknown. This study delved into the intergenerational transmission of parenting styles from one's upbringing to caregiving for dogs...
March 28, 2024: Animals: An Open Access Journal From MDPI
https://read.qxmd.com/read/38609087/storylines-of-family-medicine-v-ways-of-thinking-honing-the-therapeutic-self
#3
JOURNAL ARTICLE
William B Ventres, Leslie A Stone, Johanna F Shapiro, Cynthia Haq, Jéssica R B Leão, Donald E Nease, Liz Grant, Stewart W Mercer, John C M Gillies, Pablo González Blasco, Maria Auxiliadora C De Benedetto, Graziela Moreto, Marcelo R Levites, Jennifer E DeVoe, William R Phillips, Jane M Uygur, Thomas R Egnew, Colette S Stanley
Storylines of Family Medicine is a 12-part series of thematically linked essays with accompanying illustrations that explore the many dimensions of family medicine, as interpreted by individual family physicians and medical educators in the USA and elsewhere around the world. In 'V: ways of thinking-honing the therapeutic self', authors present the following sections: 'Reflective practice in action', 'The doctor as drug-Balint groups', 'Cultivating compassion', 'Towards a humanistic approach to doctoring', 'Intimacy in family medicine', 'The many faces of suffering', 'Transcending suffering' and 'The power of listening to stories...
April 12, 2024: Family Medicine and Community Health
https://read.qxmd.com/read/38589920/how-do-people-who-use-opioids-express-their-qualities-and-capacities-an-assessment-of-attitudes-behaviors-and-opportunities
#4
JOURNAL ARTICLE
Jerel M Ezell, Mai T Pho, Elinor Simek, Babatunde P Ajayi, Netra Shetty, Suzan M Walters
People who nonmedically use drugs (PWUD) face intricate social issues that suppress self-actualization, communal integration, and overall health and wellness. "Strengths-based" approaches, an under-used pedagogy and practice in addiction medicine, underscore the significance of identifying and recognizing the inherent and acquired skills, attributes, and capacities of PWUD. A strengths-based approach engenders client affirmation and improves their capacity to reduce drug use-related harms by leveraging existing capabilities...
April 8, 2024: Harm Reduction Journal
https://read.qxmd.com/read/38530509/health-related-quality-of-life-impacts-associated-with-transfusion-dependent-%C3%AE-thalassemia-in-the-usa-and-uk-a-qualitative-assessment
#5
JOURNAL ARTICLE
Jennifer Drahos, Adriana Boateng-Kuffour, Melanie Calvert, Laurice Levine, Neelam Dongha, Nanxin Li, Zahra Pakbaz, Farrukh Shah, Antony P Martin
BACKGROUND: Individuals living with transfusion-dependent β-thalassemia (TDT) experience reduced health-related quality of life due to fatigue and chronic pain, which cause disruptions to daily life. Currently, limited qualitative data exist that describe these impacts. OBJECTIVE: This study aimed to examine the ways in which symptoms and current treatments of TDT impact health-related quality of life, to holistically describe the humanistic burden of TDT, and to identify the unmet needs of individuals living with TDT...
March 26, 2024: Patient
https://read.qxmd.com/read/38423859/-ethical-stakes-of-psychosocial-rehabilitation
#6
JOURNAL ARTICLE
Sami Richa, Doris Choueifati, Nathalie Chemali, Isabelle Amado
Psychosocial rehabilitation (PSR) is a therapeutic approach which aims to improve the overall functioning of people with severe mental disorders. We detail the principles of bioethics applied to care and seek to demonstrate how PSR meets the requirements of a humanistic psychiatry. The four fundamental principles of the ethics of care - autonomy, beneficence, non-maleficence and justice - are found in the practice of PSR. The practice and implementation of PSR is strongly encouraged in universal codes of ethics...
February 28, 2024: L'Encéphale
https://read.qxmd.com/read/38405184/-so-far-away-how-doctors-can-contribute-to-making-endometriosis-hell-on-earth-a-call-for-humanistic-medicine-and-empathetic-practice-for-genuine-person-centered-care-a-narrative-review
#7
REVIEW
Giulia Emily Cetera, Federica Facchin, Paola Viganò, Camilla Erminia Maria Merli, Annalisa Frassineti, Jessica Fiorini, Edgardo Somigliana, Paolo Vercellini
UNLABELLED: "SO FAR AWAY" * How Doctors Can Contribute to Making Endometriosis Hell on Earth [* by Knopfler M. In Dire Straits. Brothers in Arms. Vertigo Records, U.K., 1985]. ABSTRACT: The distance physicians may create within the relationship with their patients by not having a humanistic approach to their practice may strongly influence clinical outcomes. The purpose of this paper is to convey the well-known narrative of patient dissatisfaction into pro-action by discussing the aspects of dehumanization, which may occur in the relationship between physicians and women with endometriosis...
2024: International Journal of Women's Health
https://read.qxmd.com/read/38382155/learning-to-provide-humanistic-care-and-support-in-the-context-of-chronic-illness-insights-from-the-narratives-of-healthcare-professionals-in-hemato-oncology
#8
JOURNAL ARTICLE
Karine Bilodeau, Cynthia Henriksen, Camila Aloisio Alves, Lynda Piché, Jacinthe Pepin, Virginia Lee, Marie-France Vachon, Nathalie Folch, Marie-Pascale Pomey, Nicolas Fernandez
PURPOSE: To document the process by which healthcare professionals (HCPs) support people living with and beyond hematological cancer and detail how they learned from their personal and clinical experience. METHOD: Using a narrative approach, we conducted nine semi-structured interviews with HCPs, including nurses, from a specialized care centre who support patients with hematological cancer. Interviews aimed to capture experiential learning gained from their practice...
February 1, 2024: European Journal of Oncology Nursing: the Official Journal of European Oncology Nursing Society
https://read.qxmd.com/read/38379347/what-next-for-counseling-in-genetic-counseling-training-a-co-production-workshop-exploring-how-cbt-and-act-approaches-can-contribute-to-the-genetic-counseling-toolkit
#9
JOURNAL ARTICLE
Rachel Davies, Rachel Price Tate, Nicola V Taverner
Counseling techniques are an important part of genetic counseling, and teaching of the humanistic person-centered philosophy has been central to genetic counselor (GC) training. However, other psychotherapeutic approaches, especially cognitive approaches, may also be beneficial for the GC to have in their toolkit. This paper reports on a co-production workshop with newly qualified GCs where the potential for adopting more cognitive approaches informed by cognitive behavioral therapy (CBT) and acceptance and commitment therapy (ACT) was explored...
February 20, 2024: Journal of Genetic Counseling
https://read.qxmd.com/read/38306079/an-integrated-model-of-workplace-spirituality-the-past-present-and-future-a-systematic-literature-review
#10
REVIEW
Budiman Al Iman, Heru Kurnianto Tjahjono, Ika Nurul Qamari
BACKGROUND: Because of the continually changing nature of work, workplace spirituality (WPS) has drawn more attention in recent years from studies, organizations, and both public and private sectors. Organizations strive to enhance employee well-being and general job satisfaction while developing a feeling of community inside the workplace through fostering WPS. OBJECTIVE: The study aims to assess the literature on WPS in an attempt to provide a broader perspective on the impact of spirituality in the workplace to strengthen and comprehend how an individual or collective spirituality is integrated and manifested in the workplace...
February 1, 2024: Work: a Journal of Prevention, Assessment, and Rehabilitation
https://read.qxmd.com/read/38299426/a-comparison-of-student-perspectives-on-body-donation-across-healthcare-professional-programs-from-prosection-to-dissection-based-curricula
#11
JOURNAL ARTICLE
Alexandra Claveria, Dona Bachour, Joy Y Balta, Rosetta Antonacci, Nicole M Ventura, Geoffroy P J C Noel
Donor-centered education offers students the opportunity to not only acquire visual and tactile experiences for applying anatomical knowledge but also a chance for students to reflect upon fundamental humanistic principles. The exploration of differences in students' viewpoints on body donation and the utilization of body donors in their education remains unexplored across various healthcare professional programs, which has an impact on student learning and experience. This study aimed to qualitatively examine the similarities and differences in student perspectives regarding body donation across three healthcare professional programs...
February 1, 2024: Anatomical Sciences Education
https://read.qxmd.com/read/38235852/-it-was-a-reflection-of-myself-that-i-was-weak-the-impact-of-depression-on-the-sense-of-self-an-interpretive-phenomenological-analysis
#12
JOURNAL ARTICLE
James O'Mahony, Brenda Happell, Rhona O'Connell
The World Health Organisation states that more than 350 million people experience depression globally. The phenomenological changes in individuals experiencing depression are profound Phenomenological research can further researchers' and clinicians' understanding of this experience. This study aimed to gain a phenomenological understanding of how individuals with depression understood and made sense of their experiences. A methodology of interpretative phenomenological analysis was adopted. In-depth semi-structured interviews explored the lived experience of depression for eight individuals...
January 18, 2024: International Journal of Mental Health Nursing
https://read.qxmd.com/read/38234293/examining-nurses-humanistic-behaviour-ability-and-empathy-levels-in-clinical-practice-a-descriptive-and-exploratory-study
#13
JOURNAL ARTICLE
Cevriye Ozdemir, Ali Kaplan
BACKGROUND: It is critical for nurses to provide healthcare services to healthy/sick individuals with a humanistic approach and with empathy. AIMS: This research aimed to determine nurses' humanistic behaviour ability, empathy levels and related factors in clinical practice. DESIGN: A descriptive cross-sectional and exploratory study. METHODS: Probability sampling method was used, and 337 nurses working in two public hospitals were included in the study...
January 18, 2024: Journal of Clinical Nursing
https://read.qxmd.com/read/38225638/a-qualitative-study-on-patients-and-health-care-professionals-perspectives-regarding-care-delivered-during-cied-operation
#14
JOURNAL ARTICLE
Min Zhou, Huilin Zhou, Xiong Zhang, Xiaorong Jin, Xu Su, Yangjuan Bai, Wei Wei, Yimei Zhang, Fang Ma
BACKGROUND: Cardiac implantable electronic devices (CIEDs) has proven to be an invaluable tool in the practice of cardiology. Patients who have undergone CIED surgery with local anesthesia may result in fear, insecurity and suffering. Some studies have put efforts on ways to improve intraoperative experience of patients with local anesthesia, but researches concerning experiences of CIED patients during surgery is in its infancy. METHODS: Based on semi-structured and in-depth interviews, a qualitative design was conducted in a tertiary general hospital in China from May 2022 to July 2023...
January 15, 2024: BMC Health Services Research
https://read.qxmd.com/read/38214848/a-review-of-current-approaches-to-evaluating-and-reimbursing-new-medicines-in-a-subset-of-oecd-countries
#15
REVIEW
Néboa Zozaya, Javier Villaseca, Irene Fernández, Fernando Abdalla, Benito Cadenas-Noreña, Miguel Ángel Calleja, Pedro Gómez-Pajuelo, Jorge Mestre-Ferrándiz, Juan Oliva-Moreno, José Luis Trillo, Álvaro Hidalgo-Vega
OBJECTIVES: The aim of this study was to review the current evaluation and funding processes for new drugs in different developed countries, to provide a comparative framework with detailed, homogeneous, and up-to-date information. METHODS: Scientific publications, reports and websites were reviewed between July and December 2021 using PubMed, Google Scholar, and grey literature sources. The main items searched were actors and processes, including timelines, characteristics of clinical and economic evaluations, participation of stakeholders, elements of price and reimbursement decisions, cost-effectiveness thresholds and specific funds...
January 12, 2024: Applied Health Economics and Health Policy
https://read.qxmd.com/read/38188969/contributions-of-eudaimonic-well-being-to-mental-health-practice
#16
JOURNAL ARTICLE
Carol D Ryff
PURPOSE: Synergies between a eudaimonic model of psychological well-being (Ryff, 1989) and mental health practice are examined. The model grew out of clinical, developmental, existential, and humanistic perspectives that emphasized psychological strengths and capacities, in contrast to the focus on emotional distress and dysfunction in clinical psychology. DESIGN/APPROACH: Conceptual foundations of the eudaimonic approach are described, along with the six components positive functioning that are used to measure well-being...
December 2023: Mental health and social inclusion
https://read.qxmd.com/read/38169748/research-on-immersive-interaction-design-based-on-visual-and-tactile-feature-analysis-of-visually-impaired-children
#17
JOURNAL ARTICLE
Tiejun Zhu, Yujin Yang
UNLABELLED: To propose improved and innovative visual-tactile interaction design for visually impaired children, multi-modal combination approaches have been applied, such as voice interaction, touch interaction, and multi-modal systems, what's more, aided cognitive approaches help them deepen their understanding of objects, improve their cognitive level, and increase their interest. METHODS: To improve the amount of information in the visual-haptic interface by integrating multiple sensory information, based on the cognitive patterns of visually impaired children, a questionnaire was used to design a tactile-visual UI for the main content objects of visually impaired children when using the Internet, from which difficulties and problems in the design of visual-haptic for visually impaired children were found, and design improvements were proposed based on the principles and methods of accessible design...
January 15, 2024: Heliyon
https://read.qxmd.com/read/38149755/nursing-educational-framework-a-new-nurse-driven-conceptually-guided-approach
#18
JOURNAL ARTICLE
Ana Choperena, Virginia La Rosa-Salas, Nuria Esandi-Larramendi, Mercedes P Diez-Del-Corral, Dorothy Jones
PURPOSE: The aim of this article is to present the Nursing Educational Framework (NEF) as an opportunity to integrate core elements of a humanistic person/family-centered view and as guidance in structuring a relationship-based curriculum. DATA SOURCES: Empirical and theoretical literature studies were reviewed to define the framework rationale and its components. DATA SYNTHESIS: A deductive/inductive collaborative expert-informed approach was undertaken to develop this evidence-based codesigned framework...
December 27, 2023: International Journal of Nursing Knowledge
https://read.qxmd.com/read/38148518/therapeutic-frameworks-in-integration-sessions-in-substance-assisted-psychotherapy-a-systematised-review
#19
REVIEW
Sascha B Thal, Paris Baker, Jonathon Marinis, Michelle Wieberneit, Jason M Sharbanee, Raimundo Bruno, Petra M Skeffington, Stephen J Bright
Serotonergic psychedelics and related substances have been explored as potential adjuncts in substance-assisted psychotherapy (SAPT) for treating various disorders. SAPT can be divided into three phases: preparation, administration and integration. Integration is commonly defined as the comprehension and effective application of insights from psychedelic experiences into everyday life. However, there is limited research regarding the most appropriate therapeutic approach during SAPT. In this article, we discuss the current evidence for different therapeutic frameworks for integration sessions when serotonergic psychedelics and entactogens are used as adjuncts to psychotherapy...
December 26, 2023: Clinical Psychology & Psychotherapy
https://read.qxmd.com/read/38131812/assessment-of-parental-needs-and-quality-of-life-in-children-with-a-rare-neuromuscular-disease-pompe-disease-a-quantitative-qualitative-study
#20
JOURNAL ARTICLE
Loredana Benedetto, Olimpia Musumeci, Annunziata Giordano, Mattia Porcino, Massimo Ingrassia
Pompe disease (PD) is a rare metabolic disorder with progressive neuromuscular consequences that negatively impact a child's development and quality of life (QoL). Despite an improved prognosis with treatment, the risk for early death due cardiorespiratory crisis remains. Parents not only face physical fatigue and family distress in coping with the child's special needs but also experience emotions, worries, and unexpressed needs (a "humanistic burden") that require supportive interventions. Fourteen parents of children with PD completed an online self-report questionnaire assessing their child's QoL, their own parental burden of care, and disease-related issues...
November 21, 2023: Behavioral Sciences
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