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Yasmin Van Kasteren, Anthony Maeder, Patricia A Williams, Raechel Damarell
The vision for Australia's national electronic health record system included empowering consumers to become active participants in their own health care. This paper aims to critically review the literature on consumer perspectives of Australia's My Health Record (formerly PCEHR). The review is based on a subset of articles (n=12) identified in the Australian EHR Repository (N=143), a repository of metadata of Australian Research on EHR located at Flinders University. Results show low levels of awareness and concerns about sharing records and equity of access for all Australians, which in view of the change from opt in to opt out raises concerns about explicit consent...
2017: Studies in Health Technology and Informatics
Emma Torrens, Sue M Walker
BACKGROUND: Differential uptake of, or access to, personal electronic health records (PEHRs) has the potential to impact on health disparities among certain social groups. In 2012, the Australian Government introduced the Personally Controlled Electronic Health Record (PCEHR), an opt-in system operated by the then National E-Health Transition Authority (NEHTA). In July 2016, the My Health Record (MyHR), an opt-out model, operated by the Australian Digital Health Agency replaced the PCEHR, providing additional support for consumers...
September 2017: Health Information Management: Journal of the Health Information Management Association of Australia
Lisa Hanna, Stephen D Gill, Laura Newstead, Melanie Hawkins, Richard H Osborne
BACKGROUND: Personally controlled electronic health records (PCEHRs) are being implemented throughout Australia; yet few studies have investigated patients' experiences of using a PCEHR. AIM: To explore patients' experiences and perspectives of using a locally developed PCEHR implemented in an Australian health service. METHOD: Twelve patients completed individual semi-structured telephone interviews, which underwent inductive analysis. RESULTS: Participants described two main interdependent advantages of PCEHRs: improved quality of healthcare through better information sharing and enhanced patient capacity for self-management...
January 2017: Health Information Management: Journal of the Health Information Management Association of Australia
R Armani, L E Mitchell, J Allen-Graham, N R Heriot, T Kotsimbos, J W Wilson
BACKGROUND: The current health system in Australia is comprised of both electronic- and paper-based medical records. The Federal Government has approved funding for the development of an individual health identifier and a universally adopted online health repository. AIMS: To determine attitudes and beliefs of patients and healthcare workers regarding the use of stored medical information and the personally controlled electronic health record (PCEHR) in selected major hospitals in Victoria...
June 2016: Internal Medicine Journal
Hanna Schneider, Susan Hill, Ann Blandford
BACKGROUND: Self-management technologies, such as patient-controlled electronic health records (PCEHRs), have the potential to help people manage and cope with disease. OBJECTIVE: This study set out to investigate patient families' lived experiences of working with a PCEHR. METHODS: We conducted a semistructured qualitative field study with patient families and clinicians at a children's hospital in the UK that uses a PCEHR (Patients Know Best)...
2016: Journal of Medical Internet Research
E C Lehnbom, H E Douglas, M A B Makeham
The uptake of the Personally Controlled Electronic Health Record (PCEHR) has been slowly building momentum in Australia. The purpose of the PCEHR is to collect clinically important information from multiple healthcare providers to provide a secure electronic record to patients and their authorised healthcare providers that will ultimately enhance the efficiency and effectiveness of healthcare delivery. Reasons for the slow uptake of the PCEHR and future directions to improve its usefulness is discussed later...
January 2016: Internal Medicine Journal
Bronwyn Hemsley, Andrew Georgiou, Susan Balandin, Rob Carter, Sophie Hill, Isabel Higgins, Paulette Van Vliet, Shaun McCarthy
To date, there is little information in the literature to guide the provision of supports for using the Personally Controlled Electronic Health Record (PCEHR) in populations with severe communication impairments associated with a range of disabilities. In this paper we will (a) outline the rationale for use of PCEHR in these populations by providing an overview of relevant research to date, and (b) present results of three integrated pilot studies aiming to investigate the barriers to and facilitators for PCEHR use by people with severe communication impairments and their service providers...
2015: Studies in Health Technology and Informatics
Helen Almond, Elizabeth Cummings, Paul Turner
One information source for the Personally Controlled Electronic Health Record is the consumer repository. This paper reports on the use of community based participatory research, as a project method, derived from an initiative where people with complex chronic conditions and their carers attended a rural health promotion and lifestyle modification program. Through co-operative inquiry embedded in the research approach, health promotion workers and their clients were actively supported to adopt and use the PCEHR as an intervention...
2015: Studies in Health Technology and Informatics
Christopher Pearce, Jenny Bartlett, Adam Mcleod, Paula Eustace, Rod Amos, Marianne Shearer
BACKGROUND: Change management in health care is a complex and time-consuming endeavour, and no less so in implementing technological systems. In deploying a nationwide programme, the personally controlled electronic health record (PCEHR), the Australian Government employed a number of national and local change management programmes. OBJECTIVE: This article describes the processes undertaken and the experiences of introducing the PCEHR into 74 general practices across a specific area of metropolitan Melbourne...
2014: Informatics in Primary Care
Isabelle Skinner, Cathy Smith, Linda Jaffray
INTRODUCTION: Australia has invested heavily to introduce an opt-in personally controlled electronic healthcare record (PCEHR), which incorporates an element of advance care planning (ACP). A further investment of $10 million AUD has been made to increase capability to a fully integrated electronic ACP (eACP). Australia has an aging population, the majority of whom will live, be cared for, and die in the community. ACP in the community setting can support older people to navigate their illness trajectories and health decision-making...
November 2014: Telemedicine Journal and E-health: the Official Journal of the American Telemedicine Association
Lynda Andrews, Randike Gajanayake, Tony Sahama
OBJECTIVE: The move internationally by Governments and other health providers to encourage patients to have their own electronic personal health record (e-PHRs) is growing exponentially. In Australia the initiative for a personally controlled electronic health record (known as PCEHR) is directed towards the public at large. The first objective of this study then, is to examine how individuals in the general population perceive the promoted idea of having a PCEHR. The second objective is to extend research on applying a theoretically derived consumer technology acceptance model to guide the research...
December 2014: International Journal of Medical Informatics
Alofi Black, Tony Sahama, Randike Gajanayake
A commitment in 2010 by the Australian Federal Government to spend $466.7 million dollars on the implementation of personally controlled electronic health records (PCEHR) heralded a shift to a more effective and safer patient centric eHealth system. However, deployment of the PCEHR has met with much criticism, emphasised by poor adoption rates over the first 12 months of operation. An indifferent response by the public and healthcare providers largely sceptical of its utility and safety speaks to the complex sociotechnical drivers and obstacles inherent in the embedding of large (national) scale eHealth projects...
2014: Studies in Health Technology and Informatics
Julie A Quinlivan, Sarah Lyons, Rodney W Petersen
BACKGROUND: On July 1, 2012 the Australian Government launched the personally controlled electronic health record (PCEHR). This article surveys obstetric patients about their medical record preferences and identifies barriers to adoption of the PCEHR. MATERIALS AND METHODS: A survey study was conducted of antenatal patients attending a large Australian metropolitan hospital. Consecutive patients completed questionnaires during the launch phase of the PCEHR system...
September 2014: Telemedicine Journal and E-health: the Official Journal of the American Telemedicine Association
Hayden Fisher, Kate Knapp
No abstract text is available yet for this article.
April 2014: Australian Nursing & Midwifery Journal
Christopher Pearce, Michael Bainbridge
OBJECTIVE: On July 1, 2012 Australia launched a personally controlled electronic health record (PCEHR) designed around the needs of consumers. Using a distributed model and leveraging key component national eHealth infrastructure, the PCEHR is designed to enable sharing of any health information about a patient with them and any other health practitioner involved in their care to whom the patient allows access. This paper discusses the consumer-facing part of the program. METHOD: Design of the system was through stakeholder consultation and the development of detailed requirements, followed by clinical design assurance...
July 2014: Journal of the American Medical Informatics Association: JAMIA
Paresh Kerai, Pene Wood, Mary Martin
PURPOSE: Australia introduced its version of personal health records in July 2012. Success of the personally controlled electronic health record (PCEHR) relies on acceptance during the early stages. The main aim of this study was to investigate the views of a sample of elderly people in a non-metropolitan region in Australia on the PCEHR, and to assess their acceptance levels of this concept. METHODS: A self-administered questionnaire was distributed to a non-probability convenience sample of respondents recruited from meetings of Probus, a community club for active business and professional retirees...
March 2014: International Journal of Medical Informatics
Michael Bainbridge, Christopher Pearce, Richard Taggart
In July 2012 Australia launched the Personally Controlled electronic Health Record (PCEHR). This structured record allows health related information to be shared between providers as well as between providers and consumers. The next big challenge in delivering value for consumers is to use the medicines information distributed throughout the record in a way that allows better medications management at all levels. This poster points to the design and usability challenges being dealt with in that process during a national roll out and proposes a maturity model to accelerate the delivery of shared medication records...
2013: Studies in Health Technology and Informatics
Brendon Wickham, Rachel Holbrook, Kathryn Dinh
INTRODUCTION: A medicines list iPhone app, based on an existing paper product, was developed by NPS MedicineWise for consumers. Since its launch in June 2011 the app has been downloaded over 19,000 times. With plans to expand its development and increase its use, it was critical to discover how the app is used and how useful it is. METHOD: A total of 61 study participants used the app for five days and then participated in online focus groups. RESULTS: While most people have a system for managing their medicines, these systems vary in their effectiveness...
2013: Studies in Health Technology and Informatics
H Almond, E Cummings, P Turner
The Australian Government launched a personally controlled electronic health record (PCEHR) system in July 2012 committing $466.7m. Currently Australia lacks a clearly articulated implementation and evaluation framework and there remains limited detail on how this system's success will be determined. These problems are especially visible in primary healthcare. The UK and US, have been advocated as models, however they have started to report points of failure arising from their approaches. Evidence suggests that alternatives need to be considered, if mistakes are not to be replicated...
2013: Studies in Health Technology and Informatics
Patricia A H Williams
Australia is stepping up to the new e-health environment. With this comes new legislation and new demands on information security. The expanded functionality of e-health and the increased legislative requirements, coupled with new uses of technology, means that enhancement of existing security practice will be necessary. This paperanalyses the new operating environment for Australian healthcare and the legislation governing it, and highlights the changes that are required to meet this new context. Individuals are now more responsible for security and organisations should be prompted to review their security measures in light of the new demands of legislative compliance...
2013: Health Information Management: Journal of the Health Information Management Association of Australia
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