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Pediatric cardiology patient reported outcomes

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https://www.readbyqxmd.com/read/27761557/safety-and-efficacy-of-transthoracic-versus-transesophageal-echocardiography-in-transcatheter-closure-of-atrial-septal-defects-reporting-a-single-center-experience-from-saudi-arabia
#1
Ahmad S Azhar
OBJECTIVES: To assess the safety and effectiveness of transthoracic echocardiography (TTE) in monitoring transcatheter closure of atrial septal defect (ASD), in comparison with conventional technique using transesophageal echocardiography (TEE).  Methods: A retrospective review of all cases of transcatheter closure of isolated ostium secundum ASDs operated from 2005 to 2015, at the Pediatric Interventional Cardiology Department, King Abdulaziz University Hospital, Jeddah, Kingdom of Saudi Arabia...
November 2016: Saudi Medical Journal
https://www.readbyqxmd.com/read/27725476/clinical-features-of-acute-and-fulminant-myocarditis-in-children%C3%A3-2nd-nationwide-survey-by-japanese-society-of-pediatric-cardiology-and-cardiac-surgery
#2
Hiroyuki Matsuura, Fukiko Ichida, Tsutomu Saji, Shunichi Ogawa, Kenji Waki, Masahide Kaneko, Masahiro Tahara, Takashi Soga, Yasuo Ono, Satoshi Yasukochi
BACKGROUND: The 1st nationwide survey by the Japanese Society of Pediatric Cardiology and Cardiac Surgery of acute or fulminant myocarditis (AMC/FMC) in children revealed that the survival rate of FMC was only 51.6%. The 2nd nationwide survey was performed to evaluate the recent outcomes of pediatric myocarditis.Methods and Results:Questionnaires regarding patients aged ≤18 years with AMC/FMC during the period from January 2006 to December 2011 were mailed. A total of 221 cases (age 6...
October 4, 2016: Circulation Journal: Official Journal of the Japanese Circulation Society
https://www.readbyqxmd.com/read/27645708/psychosocial-health-and-quality-of-life-among-children-with-cardiac-diagnoses-agreement-and-discrepancies-between-parent-and-child-reports
#3
Bhavika J Patel, Lillian Lai, Gary Goldfield, Renee Sananes, Patricia E Longmuir
Psychosocial health issues are common among children with cardiac diagnoses. Understanding parent and child perceptions is important because parents are the primary health information source. Significant discrepancies have been documented between parent/child quality-of-life data but have not been examined among psychosocial diagnostic instruments. This study examined agreement and discrepancies between parent and child reports of psychosocial health and quality of life in the paediatric cardiology population...
September 20, 2016: Cardiology in the Young
https://www.readbyqxmd.com/read/27558553/center-variability-in-timing-of-stage-2-palliation-and-association-with-interstage-mortality-a-report-from-the-national-pediatric-cardiology-quality-improvement-collaborative
#4
Garick D Hill, Nancy A Rudd, Nancy S Ghanayem, David A Hehir, Peter J Bartz
For infants with single-ventricle lesions with aortic arch hypoplasia, the interstage period from discharge following stage 1 palliation (S1P) until stage 2 palliation (S2P) remains high risk. Significant variability among institutions exists around the timing of S2P. We sought to describe institutional variation in timing of S2P, determine the association between timing of S2P and interstage mortality, and determine the impact of earlier S2P on hospital morbidity and mortality. The National Pediatric Cardiology Quality Improvement Collaborative registry was queried...
December 2016: Pediatric Cardiology
https://www.readbyqxmd.com/read/27410425/perioperative-feeding-approaches-in-single-ventricle-infants-a-survey-of-46-centers
#5
Julie Slicker, Sharon Sables-Baus, Linda M Lambert, Laura E Peterson, Frances K Woodard, Elena C Ocampo
Background Feeding dysfunction occurs commonly in infants with single ventricle heart disease and impacts growth and long-term outcomes. Little evidence exists to guide safe feeding in this population. This study surveyed centers participating in the National Pediatric Cardiology Quality Improvement Collaborative to assess prevailing feeding practices amongthose caring for single ventricle neonates. Methods Web-based survey of 56 pediatric cardiac surgical centers was conducted. Questions addressed peri-operative feeding approaches and responses were presented and analyzed descriptively...
December 2016: Congenital Heart Disease
https://www.readbyqxmd.com/read/26665231/preventing-cardiac-diseases-in-childhood
#6
Andreas Petropoulos, Doris Ehringer-Schetitska, Peter Fritsch, Eero Jokinen, Robert Dalla Pozza, Renate Oberhoffer
OBJECTIVE: The burden of cardiac disease in childhood is unknown. It will be a sum of 1% of living births in the general population, suffering from Congenital Heart Disease (CHD) + approximately 2.5% of the general population suffering from bicuspid aortic valve diseases + an unknown higher prevalence of acquired diseases. Cardiomyopathies, arrhythmias - sudden cardiac death (SCD), rheumatic heard disease, hypertension and accelerating atherosclerosis are among the most frequent. Adding on, genetic syndromes including cardiac defects, endocarditis and myocarditis we can address a large pediatric population worldwide, suffering from heart disease...
September 2015: Hellenic Journal of Nuclear Medicine
https://www.readbyqxmd.com/read/26638054/correlation-between-cardio-pulmonary-exercise-test-variables-and-health-related-quality-of-life-among-children-with-congenital-heart-diseases
#7
P Amedro, M C Picot, S Moniotte, R Dorka, H Bertet, S Guillaumont, C Barrea, M Vincenti, G De La Villeon, C Bredy, C Soulatges, M Voisin, S Matecki, P Auquier
BACKGROUND: Health-related quality of life (HR-QoL) stands as a determinant "patient-related outcome" and correlates with cardio-pulmonary exercise test (CPET) in adults with chronic heart failure or with a congenital heart disease (CHD). No such correlation has been established in pediatric cardiology. METHODS AND RESULTS: 202 CHD children aged 8 to 18 performed a CPET (treadmill n=96, cycle-ergometer n=106). CHD severity was stratified into 4 groups. All children and parents filled out the Kidscreen HR-QoL questionnaire...
January 15, 2016: International Journal of Cardiology
https://www.readbyqxmd.com/read/26260497/association-of-interstage-home-monitoring-with-mortality-readmissions-and-weight-gain-a-multicenter-study-from-the-national-pediatric-cardiology-quality-improvement-collaborative
#8
MULTICENTER STUDY
Matthew E Oster, Alexandra Ehrlich, Eileen King, Christopher J Petit, Martha Clabby, Sherry Smith, Michelle Glanville, Jeffrey Anderson, Lynn Darbie, Robert H Beekman
BACKGROUND: Daily home monitoring of oxygen saturation and weight has been reported to improve outcomes for patients with single-ventricle heart disease during the period between stage I palliation and stage II palliation. However, these studies have been limited to single institutions and used historical control subjects. Our objective was to determine the association of various interstage home monitoring strategies with outcomes using a multicenter cohort with contemporary control subjects...
August 11, 2015: Circulation
https://www.readbyqxmd.com/read/26180159/outcome-in-children-operated-for-membranous-subaortic-stenosis-membrane-resection-plus-aggressive-septal-myectomy-versus-membrane-resection-alone
#9
Endale Tefera, Etsegenet Gedlu, Abebe Bezabih, Tamirat Moges, Tomasa Centella, Stefano Marianeschi, Berhanu Nega, Carin van Doorn, Lior Sasson, Michael Teodori
BACKGROUND: The optimal surgical procedure for treatment of fibromembranous subaortic stenosis has been a subject of debate. We report our experience with patients treated for membranous subaortic stenosis using membrane resection alone and membrane resection plus aggressive septal myectomy. METHODS: Patients followed in the pediatric cardiology clinic of a university hospital, who had undergone surgery for subaortic stenosis between 2002 and 2013 were reviewed...
July 2015: World Journal for Pediatric & Congenital Heart Surgery
https://www.readbyqxmd.com/read/25876753/perceptions-of-24-7-in-house-attending-coverage-on-fellow-education-and-autonomy-in-a-pediatric-cardiothoracic-intensive-care-unit
#10
Sonal T Owens, Gabe E Owens, Shaili H Rajput, John R Charpie, Kelley M Kidwell, Patricia B Mullan
BACKGROUND: The 24/7 in-house attending coverage is emerging as the standard of care in intensive care units. Implementation costs, workforce feasibility, and patient outcomes resulting from changes in physician staffing are widely debated topics. Understanding the impact of staffing models on the learning environment for medical trainees and faculty is equally warranted, particularly with respect to trainee education and autonomy. OBJECTIVE: This study aims to elicit the perceptions of pediatric cardiology fellows and attendings toward 24/7 in-house attending coverage and its effect on fellow education and autonomy...
May 2015: Congenital Heart Disease
https://www.readbyqxmd.com/read/25659600/experiences-and-outcomes-of-transition-from-pediatric-to-adult-health-care-services-for-young-people-with-congenital-heart-disease-a-systematic-review
#11
REVIEW
Emily Heery, Aisling M Sheehan, Alison E While, Imelda Coyne
This review synthesizes the empirical literature on outcomes and experiences of transfer and transition from pediatric to adult care for young people with congenital heart disease. A systematic review of papers published between January 2001 and May 2013 that examined outcomes or experiences of transfer and transition among young people with congenital heart disease was conducted. Data were extracted by two independent reviewers with the outcomes data combined using narrative synthesis and the experiences data integrated using thematic synthesis...
September 2015: Congenital Heart Disease
https://www.readbyqxmd.com/read/25512298/-eisenmenger-s-syndrome-in-pregnancy-a-case-report-and-literature-review
#12
REVIEW
X Y Guo, H Shao, Y S Chen, C Y Liu, Y Zhang, Y Y Zhao
OBJECTIVE: To investigate the clinical presentation, diagnosis and treatment of the Eisenmenger's syndrome in pregnancy. METHODS: One case of Eisenmenger's syndrome in pregnancy in our hospital was retrospectively analyzed and the literature reviewed. RESULTS: This patient who received antenatal care irregularly in other hospital was diagnosed with Eisenmenger's syndrome with the symptoms of chest distress. The other hospital suggested her to terminate pregnancy, but the patient refused...
December 18, 2014: Beijing da Xue Xue Bao. Yi Xue Ban, Journal of Peking University. Health Sciences
https://www.readbyqxmd.com/read/25073205/20-years-of-arterial-switch-operation-for-simple-tga
#13
H De Praetere, J Vandesande, F Rega, W Daenen, G Marc, B Eyskens, R Heying, B Cools, B Meyns
BACKGROUND: Arterial switch operation became the golden treatment for simple transposition of the great arteries (sTGA). We describe our experience with the arterial switch operation regarding long-term outcome and the need for re-intervention. Nevertheless, supravalvular pulmonary stenosis (SPS) remains a concern in the long run. We assess the evolution of SPS over time and evaluate the effect of technical modifications on SPS during our experience. METHODS: We performed a retrospective study on 133 patients operated with ASO for TGA between October 1991 and November 2009...
March 2014: Acta Chirurgica Belgica
https://www.readbyqxmd.com/read/24819301/a-closer-look-at-the-developmental-interplay-between-parenting-and-perceived-health-in-adolescents-with-congenital-heart-disease
#14
Jessica Rassart, Koen Luyckx, Eva Goossens, Silke Apers, Philip Moons
The present study examined associations between parenting and perceived health in adolescents with congenital heart disease (CHD) using a longitudinal trajectory approach. Adolescents with CHD were selected from the database of pediatric and congenital cardiology of the University Hospitals Leuven. A total of 429 adolescents (M age = 16 at T1) participated in the present study, comprising four measurement waves spanning approximately 3 years. Latent class growth analysis was used to identify trajectory classes of parenting and perceived health...
December 2014: Journal of Behavioral Medicine
https://www.readbyqxmd.com/read/24484330/an-official-american-thoracic-society-statement-pulmonary-hypertension-phenotypes
#15
Raed A Dweik, Sharon Rounds, Serpil C Erzurum, Stephen Archer, Karen Fagan, Paul M Hassoun, Nicholas S Hill, Marc Humbert, Steven M Kawut, Michael Krowka, Evangelos Michelakis, Nicholas W Morrell, Kurt Stenmark, Rubin M Tuder, John Newman
BACKGROUND: Current classification of pulmonary hypertension (PH) is based on a relatively simple combination of patient characteristics and hemodynamics. This limits customization of treatment, and lacks the clarity of a more granular identification based on individual patient phenotypes. Rapid advances in mechanistic understanding of the disease, improved imaging methods, and innovative biomarkers now provide an opportunity to define PH phenotypes on the basis of biomarkers, advanced imaging, and pathobiology...
February 1, 2014: American Journal of Respiratory and Critical Care Medicine
https://www.readbyqxmd.com/read/24268954/left-thoracoscopic-sympathectomy-for-cardiac-denervation-in-patients-with-life-threatening-ventricular-arrhythmias
#16
Sophie C Hofferberth, Frank Cecchin, Dan Loberman, Francis Fynn-Thompson
BACKGROUND: We reported the outcomes of a single-institution experience using video-assisted thoracoscopic left cardiac sympathetic denervation as an adjunctive therapeutic technique in pediatric and young adult patients with life-threatening ventricular arrhythmias. METHODS: We conducted a retrospective clinical review of all patients who underwent left cardiac sympathetic denervation by means of video-assisted thoracoscopic surgery at our institution. From August 2000 to December 2011, 24 patients (13 with long QT syndrome, 9 with catecholaminergic polymorphic ventricular tachycardia, and 2 with idiopathic ventricular tachycardia) were identified from the cardiology database and surgical records...
January 2014: Journal of Thoracic and Cardiovascular Surgery
https://www.readbyqxmd.com/read/24016455/severe-obesity-in-children-and-adolescents-identification-associated-health-risks-and-treatment-approaches-a-scientific-statement-from-the-american-heart-association
#17
Aaron S Kelly, Sarah E Barlow, Goutham Rao, Thomas H Inge, Laura L Hayman, Julia Steinberger, Elaine M Urbina, Linda J Ewing, Stephen R Daniels
Severe obesity afflicts between 4% and 6% of all youth in the United States, and the prevalence is increasing. Despite the serious immediate and long-term cardiovascular, metabolic, and other health consequences of severe pediatric obesity, current treatments are limited in effectiveness and lack widespread availability. Lifestyle modification/behavior-based treatment interventions in youth with severe obesity have demonstrated modest improvement in body mass index status, but participants have generally remained severely obese and often regained weight after the conclusion of the treatment programs...
October 8, 2013: Circulation
https://www.readbyqxmd.com/read/23804470/using-statistical-process-control-to-identify-early-growth-failure-among-infants-with-hypoplastic-left-heart-syndrome
#18
Srikant B Iyer, Jeffrey B Anderson, Julie Slicker, Robert H Beekman, Carole Lannon
Although interventions to improve outcomes for children with congenital heart disease may be designed and tested, the rarity of any one specific defect presents a barrier to using traditional statistical methods to measure the effects of these interventions. The purpose of this report is to describe the innovative statistical approach taken by the Joint Council on Congenital Heart Disease (JCCHD) National Pediatric Cardiology Quality Improvement Collaborative (NPC-QIC) to measure outcomes for infants with hypoplastic left heart syndrome-a relatively rare disease...
October 1, 2011: World Journal for Pediatric & Congenital Heart Surgery
https://www.readbyqxmd.com/read/23735986/pediatric-extracorporeal-life-support-in-specialized-situations
#19
REVIEW
V Ben Sivarajan, Mel C Almodovar, Mark D Rodefeld, Peter C Laussen
OBJECTIVES: The purpose of this review was to provide a systematic review of the literature regarding the use of extracorporeal life support (ECLS) in various specialized conditions, as part of the Pediatric Cardiac Intensive Care Society/Extracorporeal Life Support Organization Joint Statement on Mechanical Circulatory Support. DATA SOURCES: MEDLINE and PubMed. STUDY SELECTION: Searches for published abstracts and articles were conducted using the following MeSH terms: extracorporeal life support, extracorporeal membrane oxygenation, or mechanical support, and pediatric or children...
June 2013: Pediatric Critical Care Medicine
https://www.readbyqxmd.com/read/23699086/airway-compression-resulting-from-massive-pericardial-effusion-and-tamponade
#20
Ashley Meekin Johnson, Najmul Salman, Charles Gaymes, Andrew Rivard
SESSION TYPE: Critical Care Student/Resident Case Report Posters IPRESENTED ON: Tuesday, October 23, 2012 at 01:30 PM - 02:30 PMINTRODUCTION: Viral pericardial effusions, have not been reported to cause airway compression possibly as the fluid does not create a mass effect. In young children, external compression of the bronchi may be seen more frequently due to the softer cartilage of these airways. (1)CASE PRESENTATION: A 5-month-old white female with an insignificant past medical history was admitted to an outside hospital with a low- grade fever of 10 days, labored breathing, and decreased appetite and urinary output...
October 1, 2012: Chest
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