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"learning health system"

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https://www.readbyqxmd.com/read/28537812/perspectives-of-patients-with-cancer-on-the-ethics-of-rapid-learning-health-systems
#1
Reshma Jagsi, Kent A Griffith, Aaron Sabolch, Rochelle Jones, Rebecca Spence, Raymond De Vries, David Grande, Angela R Bradbury
Purpose To inform the evolving implementation of CancerLinQ and other rapid-learning systems for oncology care, we sought to evaluate perspectives of patients with cancer regarding ethical issues. Methods Using the GfK Group online research panel, representative of the US population, we surveyed 875 patients with cancer; 621 (71%) responded. We evaluated perceptions of appropriateness (scored from 1 to 10; 10, very appropriate) using scenarios and compared responses by age, race, and education. We constructed a scaled measure of comfort with secondary use of deidentified medical information and evaluated its correlates in a multivariable model...
May 24, 2017: Journal of Clinical Oncology: Official Journal of the American Society of Clinical Oncology
https://www.readbyqxmd.com/read/28515960/patient-centered-network-of-learning-health-systems-developing-a-resource-for-clinical-translational-research
#2
L J Finney Rutten, A Alexander, P J Embi, G Flores, C Friedman, I V Haller, P Haug, D Jensen, S Khosla, G Runger, N D Shah, T Winden, V L Roger
INTRODUCTION: The Learning Health System Network clinical data research network includes academic medical centers, health-care systems, public health departments, and health plans, and is designed to facilitate outcomes research, pragmatic trials, comparative effectiveness research, and evaluation of population health interventions. METHODS: The Learning Health System Network is 1 of 13 clinical data research networks assembled to create, in partnership with 20 patient-powered research networks, a National Patient-Centered Clinical Research Network...
February 2017: J Clin Transl Sci
https://www.readbyqxmd.com/read/28514917/advancing-health-care-quality-and-safety-through-action-learning
#3
Simon Mathews, Sherita Golden, Renee Demski, Peter Pronovost, Lisa Ishii
Purpose The purpose of this study is to demonstrate how action learning can be practically applied to quality and safety challenges at a large academic medical health system and become fundamentally integrated with an institution's broader approach to quality and safety. Design/methodology/approach The authors describe how the fundamental principles of action learning have been applied to advancing quality and safety in health care at a large academic medical institution. The authors provide an academic contextualization of action learning in health care and then transition to how this concept can be practically applied to quality and safety by providing detailing examples at the unit, cross-functional and executive levels...
May 2, 2017: Leadership in Health Services
https://www.readbyqxmd.com/read/28480476/the-role-of-free-libre-and-open-source-software-in-learning-health-systems
#4
C Paton, T Karopka
OBJECTIVE: To give an overview of the role of Free/Libre and Open Source Software (FLOSS) in the context of secondary use of patient data to enable Learning Health Systems (LHSs). METHODS: We conducted an environmental scan of the academic and grey literature utilising the MedFLOSS database of open source systems in healthcare to inform a discussion of the role of open source in developing LHSs that reuse patient data for research and quality improvement. RESULTS: A wide range of FLOSS is identified that contributes to the information technology (IT) infrastructure of LHSs including operating systems, databases, frameworks, interoperability software, and mobile and web apps...
May 8, 2017: Yearbook of Medical Informatics
https://www.readbyqxmd.com/read/28480469/toward-an-information-infrastructure-for-global-health-improvement
#5
C P Friedman, J C Rubin, K J Sullivan
Profound global challenges to individual and population health, alongside the opportunities to benefit from digital technology, have spawned the concept of the Learning Health System. Learning Health Systems (LHSs)--which can function at organizational, network, regional, and national levels of scale--have the capability of continuous data-driven self-study that promotes change and improvement. The LHS concept, which originated in the U.S. in 2007, is rapidly gaining attention around the world. LHSs require, but also transcend, the secondary use of health data...
May 8, 2017: Yearbook of Medical Informatics
https://www.readbyqxmd.com/read/28475606/shaping-innovations-in-long-term-care-for-stroke-survivors-with-multimorbidity-through-stakeholder-engagement
#6
Euan Sadler, Talya Porat, Iain Marshall, Uy Hoang, Vasa Curcin, Charles D A Wolfe, Christopher McKevitt
BACKGROUND: Stroke, like many long-term conditions, tends to be managed in isolation of its associated risk factors and multimorbidity. With increasing access to clinical and research data there is the potential to combine data from a variety of sources to inform interventions to improve healthcare. A 'Learning Health System' (LHS) is an innovative model of care which transforms integrated data into knowledge to improve healthcare. The objective of this study is to develop a process of engaging stakeholders in the use of clinical and research data to co-produce potential solutions, informed by a LHS, to improve long-term care for stroke survivors with multimorbidity...
2017: PloS One
https://www.readbyqxmd.com/read/28474263/quality-of-life-measurements-any-value-for-clinical-practice
#7
REVIEW
Matthias Büttner, Veit Zebralla, Andreas Dietz, Susanne Singer
Quality of life measurements are well established in cancer clinical trials. In daily clinical practice, where cancer patients often suffer from disease-specific symptoms and report unmet needs regarding their treatment, these measurements are not systematically implemented. The systematic (often computer-based) assessment of quality of life in daily cancer care has shown to be beneficial for patient-physician communication, symptom management, shared decision-making, and in creating a learning health system...
May 2017: Current Treatment Options in Oncology
https://www.readbyqxmd.com/read/28430088/informatics-for-health-2017-advancing-both-science-and-practice
#8
Philip J Scott, Ronald Cornet, Colin McCowan, Niels Peek, Paolo Fraccaro, Nophar Geifman, Wouter T Gude, William Hulme, Glen P Martin, Richard Williams
INTRODUCTION: The Informatics for Health congress, 24-26 April 2017, in Manchester, UK, brought together the Medical Informatics Europe (MIE) conference and the Farr Institute International Conference. This special issue of the Journal of Innovation in Health Informatics contains 113 presentation abstracts and 149 poster abstracts from the congress. DISCUSSION: The twin programmes of "Big Data" and "Digital Health" are not always joined up by coherent policy and investment priorities...
April 21, 2017: Journal of Innovation in Health Informatics
https://www.readbyqxmd.com/read/28428140/automated-annotation-and-classification-of-bi-rads-assessment-from-radiology-reports
#9
Sergio M Castro, Eugene Tseytlin, Olga Medvedeva, Kevin Mitchell, Shyam Visweswaran, Tanja Bekhuis, Rebecca S Jacobson
The Breast Imaging Reporting and Data System (BI-RADS) was developed to reduce variation in the descriptions of findings. Manual analysis of breast radiology report data is challenging but is necessary for clinical and healthcare quality assurance activities. The objective of this study is to develop a natural language processing (NLP) system for automated BI-RADS categories extraction from breast radiology reports. We evaluated an existing rule-based NLP algorithm, and then we developed and evaluated our own method using a supervised machine learning approach...
May 2017: Journal of Biomedical Informatics
https://www.readbyqxmd.com/read/28426457/race-differences-in-initial-presentation-early-treatment-and-1-year-outcomes-of-pediatric-crohn-s-disease-results-from-the-improvecarenow-network
#10
Jennifer L Dotson, Michele Cho, Josh Bricker, Michael D Kappelman, Deena J Chisolm, Gitit Tomer, Wallace V Crandall
BACKGROUND: Racially disparate care has been shown to contribute to suboptimal health care outcomes for minorities. Using the ImproveCareNow network, we investigated differences in management and outcomes of pediatric patients with Crohn's disease at diagnosis and 1-year postdiagnosis. METHODS: ImproveCareNow is a learning health network for pediatric inflammatory bowel disease. It contains prospective, longitudinal data from outpatient encounters. This retrospective study included all patients with Crohn's disease ≤21 years, September 2006 to October 2014, with the first recorded encounter ≤90 days from date of diagnosis and an encounter 1 year ±60 days...
May 2017: Inflammatory Bowel Diseases
https://www.readbyqxmd.com/read/28379426/observational-research-as-a-platform-for-evidence-based-public-health-policies-and-learning-health-systems
#11
Luigi Tavazzi
No abstract text is available yet for this article.
April 2, 2017: European Heart Journal
https://www.readbyqxmd.com/read/28340241/pragmatic-trial-informatics-a-perspective-from-the-nih-health-care-systems-research-collaboratory
#12
Rachel L Richesson, Beverly B Green, Reesa Laws, Jon Puro, Michael G Kahn, Alan Bauck, Michelle Smerek, Erik G Van Eaton, Meredith Zozus, W Ed Hammond, Kari A Stephens, Greg E Simon
Pragmatic clinical trials (PCTs) are research investigations embedded in health care settings designed to increase the efficiency of research and its relevance to clinical practice. The Health Care Systems Research Collaboratory, initiated by the National Institutes of Health Common Fund in 2010, is a pioneering cooperative aimed at identifying and overcoming operational challenges to pragmatic research. Drawing from our experience, we present 4 broad categories of informatics-related challenges: (1) using clinical data for research, (2) integrating data from heterogeneous systems, (3) using electronic health records to support intervention delivery or health system change, and (4) assessing and improving data capture to define study populations and outcomes...
March 14, 2017: Journal of the American Medical Informatics Association: JAMIA
https://www.readbyqxmd.com/read/28225531/a-shared-responsibility-for-developing-a-learning-health-system
#13
Andrew B Bindman
No abstract text is available yet for this article.
April 2017: Journal of Nursing Care Quality
https://www.readbyqxmd.com/read/28225427/race-differences-in-initial-presentation-early-treatment-and-1-year-outcomes-of-pediatric-crohn-s-disease-results-from-the-improvecarenow-network
#14
Jennifer L Dotson, Michele Cho, Josh Bricker, Michael D Kappelman, Deena J Chisolm, Gitit Tomer, Wallace V Crandall
BACKGROUND: Racially disparate care has been shown to contribute to suboptimal health care outcomes for minorities. Using the ImproveCareNow network, we investigated differences in management and outcomes of pediatric patients with Crohn's disease at diagnosis and 1-year postdiagnosis. METHODS: ImproveCareNow is a learning health network for pediatric inflammatory bowel disease. It contains prospective, longitudinal data from outpatient encounters. This retrospective study included all patients with Crohn's disease ≤21 years, September 2006 to October 2014, with the first recorded encounter ≤90 days from date of diagnosis and an encounter 1 year ±60 days...
February 20, 2017: Inflammatory Bowel Diseases
https://www.readbyqxmd.com/read/28195179/fostering-collaboration-through-creation-of-an-ibd-learning-health-system
#15
Lisa C Johnson, Gil Y Melmed, Eugene C Nelson, Megan M Holthoff, S Alandra Weaver, Tamara S Morgan, Corey A Siegel
No abstract text is available yet for this article.
March 2017: American Journal of Gastroenterology
https://www.readbyqxmd.com/read/28186037/it-for-bending-the-healthcare-cost-curve-the-high-needs-high-cost-approach
#16
Karim Keshavjee, Douglas Morrison, Shams Mohammed, Aziz Guergachi
Health systems around the world are under tremendous fiscal pressures. Health system inflation continues to outpace GDP growth in most countries. Health system inflation has been resistant to policy measures, to traditional interventions such as productivity enhancing technologies and to optimization of performance metrics such as length of stay (LOS) and wait times. Organizations that are solving the issue are using specific information that individualizes costs per patient, rather than using average costs per case, which is misleading in most important, high cost, situations...
2017: Studies in Health Technology and Informatics
https://www.readbyqxmd.com/read/28183828/a-qualitative-study-of-emergency-physicians-perspectives-on-proms-in-the-emergency-department
#17
Katie N Dainty, Bianca Seaton, Andreas Laupacis, Michael Schull, Samuel Vaillancourt
INTRODUCTION: There is a growing emphasis on including patients' perspectives on outcomes as a measure of quality care. To date, this has been challenging in the emergency department (ED) setting. To better understand the root of this challenge, we looked to ED physicians' perspectives on their role, relationships and responsibilities to inform future development and implementation of patient-reported outcome measures (PROMs). METHODS: ED physicians from hospitals across Canada were invited to participate in interviews using a snowballing sampling technique...
February 9, 2017: BMJ Quality & Safety
https://www.readbyqxmd.com/read/28179745/are-you-practicing-in-a-learning-health-system
#18
Bill G Felkey, Brent I Fox
Learning never ceases. While continuing education is important for all of us, we are not speaking of licensure requirements. We are speaking of learning within your health system that systematically incorporates knowledge gained through research and clinical care into individual care.
January 2017: Hospital Pharmacy
https://www.readbyqxmd.com/read/28179044/translating-battlefield-practices-to-disaster-health
#19
Kandra Strauss-Riggs, Kevin Yeskey, Aubrey Miller, Stacey Arnesen, Craig Goolsby
We review aspects of the recently released National Academies of Sciences, Engineering, and Medicine report A National Trauma Care System: Integrating Military and Civilian Trauma Systems to Achieve Zero Preventable Deaths After Injury most relevant to disaster health, particularly the concepts of focused empiricism and building a learning health system. The article references battlefield success utilizing these concepts and the emerging Disaster Research Response Program. We call upon disaster health researchers to apply the report's recommendations to their work...
February 9, 2017: Disaster Medicine and Public Health Preparedness
https://www.readbyqxmd.com/read/28167999/informatics-metrics-and-measures-for-a-smart-public-health-systems-approach-information-science-perspective
#20
REVIEW
Timothy Jay Carney, Christopher Michael Shea
Public health informatics is an evolving domain in which practices constantly change to meet the demands of a highly complex public health and healthcare delivery system. Given the emergence of various concepts, such as learning health systems, smart health systems, and adaptive complex health systems, health informatics professionals would benefit from a common set of measures and capabilities to inform our modeling, measuring, and managing of health system "smartness." Here, we introduce the concepts of organizational complexity, problem/issue complexity, and situational awareness as three codependent drivers of smart public health systems characteristics...
2017: Computational and Mathematical Methods in Medicine
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