keyword
Keywords Quality of life congenital hea...

Quality of life congenital heart disease

https://read.qxmd.com/read/38508848/frailty-and-cognitive-function-in%C3%A2-middle-aged-and-older-adults-with%C3%A2-congenital-heart-disease
#1
JOURNAL ARTICLE
Bo Daelman, Liesbet Van Bulck, Koen Luyckx, Adrienne H Kovacs, Alexander Van De Bruaene, Magalie Ladouceur, Hsiao-Ling Yang, Ju Ryoung Moon, André Schmidt, Birgitte Lykkeberg, Edward Callus, Michèle de Hosson, Camilla Sandberg, Bengt Johansson, Joanna Hlebowicz, Maria Emília Areias, Pascal Amedro, Louise Coats, Zacharias Mandalenakis, Anna Kaneva, Philip Moons, Eva Goossens
BACKGROUND: Life expectancy of patients with congenital heart disease (CHD) has increased rapidly, resulting in a growing and aging population. Recent studies have shown that older people with CHD have higher morbidity, health care use, and mortality. To maintain longevity and quality of life, understanding their evolving medical and psychosocial challenges is essential. OBJECTIVES: The authors describe the frailty and cognitive profile of middle-aged and older adults with CHD to identify predictor variables and to explore the relationship with hospital admissions and outpatient visits...
March 26, 2024: Journal of the American College of Cardiology
https://read.qxmd.com/read/38506963/impact-of-underweight-overweight-and-obesity-on-health-related-quality-of-life-in-children-with-tetralogy-of-fallot-variants
#2
JOURNAL ARTICLE
Pip Hidestrand, Birgitta Svensson, Pippa Simpson, Petru Liuba, Constance G Weismann
Traditional cardiovascular risk factors put patients with congenital heart disease (CHD) at increased risk for cardiovascular morbidity and mortality. The aim of this study was to evaluate whether body mass index (BMI) is associated with health-related quality of life (HRQoL) in patients with variants of Tetralogy of Fallot (TOF). Patients and parents of children with variants of TOF-CHD were asked to fill out the PedsQL 4.0 questionnaire and provide weight and length. Patients were categorized into low, normal, and high BMI percentiles...
March 20, 2024: Pediatric Cardiology
https://read.qxmd.com/read/38488386/implications-of-cardiac-scarring-on-body-image-disturbance-among-young-adults-with-congenital-heart-defects
#3
JOURNAL ARTICLE
Victoria R Grant, Canice E Crerand, Jamie L Jackson
BACKGROUND: Many individuals with congenital heart disease (CHD) undergo open heart surgery, resulting in prominent scarring. However, little research has assessed the impact of surgical scarring on body image in this population. OBJECTIVE: Within this cross-sectional study, associations between body image concerns, anxiety and depression symptoms, and health-related quality of life among individuals with CHD were evaluated. METHODS: Young adults with CHD (N = 138) completed the Body Image Disturbance Questionnaire along with other patient-reported outcome measures...
March 13, 2024: Journal of Cardiovascular Nursing
https://read.qxmd.com/read/38485711/validation-of-the-sibling-perception-questionnaire-in-healthy-siblings-of-children-with-chronic-illnesses
#4
JOURNAL ARTICLE
Abbi L Gutierrez, Christine A Limbers
The purpose of the study was to assess the psychometric properties of the parent-report version of the Sibling Perception Questionnaire (SPQ) in well-siblings. Participants were 200 caregivers of healthy children ages 9-17 years who had a sibling (ages 0-18 years) diagnosed with cancer, diabetes, cystic fibrosis, epilepsy, spina bifida, or congenital heart disease. The SPQ had acceptable internal consistency reliability for the total score (α = 0.83) and displayed acceptable convergent validity as evidenced by medium to large positive correlations with the Strengths and Difficulties Questionnaire and Pediatric Quality of Life Inventory 4...
March 14, 2024: Journal of Health Psychology
https://read.qxmd.com/read/38485484/heart-failure-clinic-inclusion-and-exclusion-criteria-cross-sectional-study-of-clinic-s-and-referring-provider-s-perspectives
#5
JOURNAL ARTICLE
Taslima Mamataz, Sean A Virani, Michael McDonald, Heather Edgell, Sherry L Grace
OBJECTIVES: There are substantial variations in entry criteria for heart failure (HF) clinics, leading to variations in whom providers refer for these life-saving services. This study investigated actual versus ideal HF clinic inclusion or exclusion criteria and how that related to referring providers' perspectives of ideal criteria. DESIGN, SETTING AND PARTICIPANTS: Two cross-sectional surveys were administered via research electronic data capture to clinic providers and referrers (eg, cardiologists, family physicians and nurse practitioners) across Canada...
March 14, 2024: BMJ Open
https://read.qxmd.com/read/38463124/adult-congenital-heart-diseases-systematic-review-meta-analysis
#6
REVIEW
Ahmdelmukashfi M Elmustfa A Azem Mahmod, Shima Hassan Mohammed Koko
BACKGROUND: Congenital heart disease (CHD) is a gross structural abnormality of the heart that has functional significance. The impact of CHD on the patients' quality of life (QOL) is a topic of considerable interest and importance to both researchers and clinician. However, there is a lack of systematic reviews investigating and identifying the QOL of congenital heart disease patients. AIM: To assess the QOL of adult patients with congenital heart disease by reviewing the previous studies conducted on this subject...
March 2024: Annals of Medicine and Surgery
https://read.qxmd.com/read/38458583/the-burden-of-psychological-trauma-and-post-traumatic-stress-disorder-among-adults-with-congenital-heart-disease-ptsd-in-achd
#7
JOURNAL ARTICLE
David J Harrison, Joseph Kay, Roni M Jacobsen, Camila Londono-Obregon, Elizabeth Yeung, Sarah L Kelly, Ann Poteet, Claire Levek, Michael J Landzberg, Molly Wallrich, Amber Khanna
BACKGROUND: Psychological trauma, symptoms of post-traumatic stress disorder (PTSD), and mental health conditions are common in adult congenital heart disease (ACHD). There is a gap in the literature examining PTSD in ACHD using the current DSM-5 criteria, while assessing patient characteristics and experiences with trauma-focused treatment. METHODS: Surveys were offered to outpatients over a six-month enrollment period to be completed via QR code on their personal smart phone...
March 6, 2024: American Journal of Cardiology
https://read.qxmd.com/read/38453293/australian-national-standards-of-care-for-childhood-onset-heart-disease-cohd-standards-1st-edition
#8
JOURNAL ARTICLE
Gary F Sholler, Lisa A Selbie, Mary Tallon, Jessica Keating, Julian Ayer, Luke Burchill, Michael M H Cheung, Rachael Cordina, Evelyn Culnane, Shakira Donovan, Lucas Eastaugh, Caitlin Elliott, Jeffery Fletcher, Robert N Justo, Nadine A Kasparian, Andrew Kelly, Dominique Morsman, Mugur Nicolae, Yishay Orr, Elle Pendrick, James M Ramsay, Bo Reményi, Stephen Shipton, Robert G Weintraub, Elsa Van Wijk, Gavin Wheaton, Prem Venugopal
These first Australian National Standards of Care for Childhood-onset Heart Disease (CoHD Standards) have been developed to inform the healthcare requirements for CoHD services and enable all Australian patients, families and carers impacted by CoHD (paediatric CoHD and adult congenital heart disease [ACHD]) to live their best and healthiest lives. The CoHD Standards are designed to provide the clarity and certainty required for healthcare services to deliver excellent, comprehensive, inclusive, and equitable CoHD care across Australia for patients, families and carers, and offer an iterative roadmap to the future of these services...
February 2024: Heart, Lung & Circulation
https://read.qxmd.com/read/38439634/impact-of-obstructive-sleep-apnoea-on-cardiovascular-outcomes-and-mortality-in-young-adults-with-congenital-heart-anomalies-insights-from-the-national-inpatient-sample-2019
#9
JOURNAL ARTICLE
Ankit Vyas, Rupak Desai, Nitin Ghadge, Prerna Bansal, Harika Varma Chintalapalli Patta, Maharshi Raval, Akhil Jain, Tripti Gupta, Harshil Patel, Ashok Kondur, Carl J Lavie
BACKGROUND: Obstructive sleep apnoea is a common sleep disorder, and adult congenital heart disease (CHD) is also a significant burden on the population. Early diagnosis and treatment are important for improving quality of life and reducing the risk of health complications. The limited research on obstructive sleep apnoea and adult CHD highlights the need for further investigation into the relationship between these two conditions and the mechanisms underlying this relationship. METHOD: We used NIS 2019 database to identify adult CHD admissions aged 18-44 years and assess the impact of obstructive sleep apnoea on all-cause mortality, dysrhythmia, and stroke...
March 5, 2024: Cardiology in the Young
https://read.qxmd.com/read/38434729/case-report-remote-magnetic-navigation-and-accessory-pathways-ablation-in-a-single-ventricle-young-adult-with-complex-corrective-surgeries
#10
Steliana Cosmina Paja, Viviana Gondoș, Silvia Deaconu, Eliza Cinteză, Radu Vătășescu
Supraventricular arrhythmias have become an increasingly significant contributor to the risk of mortality and morbidity in adults with complex congenital heart disease (CHD), especially in light of recent advances in palliative corrective surgeries. Because of their unique characteristics, they demand specific treatment approaches. While pharmaco-logical interventions are an option, they have limited effectiveness and may lead to side effects. Although performing radiofrequency ablation (RFA) can be exceptionally challenging in patients with complex CHD, due to particular vascular access and also modified anatomy, it has paved the way to enhance comprehension of the underlying mechanisms of supraventricular arrhythmias...
2024: Frontiers in Pediatrics
https://read.qxmd.com/read/38430485/early-hybrid-cardiac-rehabilitation-in-congenital-heart-disease-the-qualirehab-trial
#11
JOURNAL ARTICLE
Pascal Amedro, Arthur Gavotto, Helena Huguet, Luc Souilla, Anne-Cecile Huby, Stefan Matecki, Anne Cadene, Gregoire De La Villeon, Marie Vincenti, Oscar Werner, Charlene Bredy, Kathleen Lavastre, Hamouda Abassi, Sarah Cohen, Sebastien Hascoet, Claire Dauphin, Aurelie Chalard, Yves Dulac, Nathalie Souletie, Helene Bouvaist, Stephanie Douchin, Matthias Lachaud, Caroline Ovaert, Camille Soulatges, Nicolas Combes, Jean-Benoit Thambo, Xavier Iriart, Fanny Bajolle, Damien Bonnet, Helene Ansquer, Jean-Guillaume Delpey, Laurence Cohen, Marie-Christine Picot, Sophie Guillaumont
BACKGROUND AND AIMS: Cardiopulmonary fitness in congenital heart disease (CHD) decreases faster than in the general population resulting in impaired health-related quality of life (HRQoL). As the standard of care seems insufficient to encourage and maintain fitness, an early hybrid cardiac rehabilitation programme could improve HRQoL in CHD. METHODS: The QUALIREHAB multicentre, randomized, controlled trial evaluated and implemented a 12-week centre- and home-based hybrid cardiac rehabilitation programme, including multidisciplinary care and physical activity sessions...
March 2, 2024: European Heart Journal
https://read.qxmd.com/read/38422504/universal-fetal-echocardiography-for-pregestational-diabetes-mellitus-a-cost-effectiveness-analysis
#12
JOURNAL ARTICLE
Leah M Savitsky, Caitlin Hamilton, Mary Sterrett, Kelsey Olerich, Kimberly Ma, Catherine M Albright
OBJECTIVE: To evaluate the cost effectiveness of universal fetal echocardiogram for patients with pregestational diabetes mellitus by first-trimester hemoglobin A1c (Hb A1c) level. METHODS: We developed a cost-effectiveness model comparing two strategies of screening for critical fetal congenital heart disease among patients with diabetes: universal fetal echocardiogram and fetal echocardiogram only after abnormal findings on detailed anatomy ultrasonogram. We excluded ventricular septal defect, atrial septal defects, and bicuspid aortic valve from the definition of critical fetal congenital heart disease...
February 29, 2024: Obstetrics and Gynecology
https://read.qxmd.com/read/38401897/cardiac-rehabilitation-for-children-and-young-people-cardioactive-protocol-for-a-single-blind-randomised-feasibility-and-acceptability-study-of-a-centre-based-cardiac-rehabilitation-programme-versus-usual-care-in-11-16-years-with-heart-conditions
#13
JOURNAL ARTICLE
Lora Capobianco, Mark Hann, Emma McManus, Sarah Peters, Patrick Joseph Doherty, Giovanna Ciotti, Joanne Murray, Adrian Wells
BACKGROUND: Congenital heart conditions are among the most common non-communicable diseases in children and young people (CYP), affecting 13.9 million CYP globally. While survival rates are increasing, support for young people adjusting to life with a heart condition is lacking. Furthermore, one in three CYP with heart conditions also experiences anxiety, depression or adjustment disorder, for which little support is offered. While adults are offered cardiac rehabilitation (CR) to support their mental and physical health, this is not offered for CYP...
February 24, 2024: BMJ Open
https://read.qxmd.com/read/38371342/congenital-lobar-emphysema-a-diagnostic-dilemma-with-coexistent-congenital-heart-defects
#14
Jigar Prabhulal Thacker, Vishal Vinayak Bhende, Tanishq Shashikant Sharma
KEY CLINICAL MESSAGE: Clinicians should think beyond pneumonia and left-to-right shunts when young children have persistent respiratory distress. Congenital lung anomalies, including congenital lobar emphysema, should be considered differential diagnoses. Chest X-ray and CT imaging should be conducted to gain insight regarding and establish diagnosis, respectively. ABSTRACT: Congenital lobar emphysema (CLE) is a rare and life-threatening congenital lung anomaly that often poses a diagnostic dilemma...
February 2024: Clinical Case Reports
https://read.qxmd.com/read/38337810/wolf-parkinson-white-syndrome-diagnosis-risk-assessment-and-therapy-an-update
#15
REVIEW
Radu Gabriel Vătășescu, Cosmina Steliana Paja, Ioana Șuș, Simona Cainap, Ștefana María Moisa, Eliza Elena Cinteză
Wolf-Parkinson-White (WPW) syndrome is a disorder characterized by the presence of at least one accessory pathway (AP) that can predispose people to atrial/ventricular tachyarrhythmias and even sudden cardiac death. It is the second most common cause of paroxysmal supraventricular tachycardia in most parts of the world, affecting about 0.1-0.3% of the general population. Most patients with WPW syndrome have normal anatomy, but it may be associated with concomitant congenital heart disease or systemic diseases...
January 30, 2024: Diagnostics
https://read.qxmd.com/read/38322730/failure-to-thrive-in-pediatric-patients-with-congenital-heart-disease-a-cross-sectional-study-of-13-256-patients
#16
JOURNAL ARTICLE
Qiyu He, Xinjie Lin, Zhibo Zhou, Huayan Shen, Kai Ma, Zheng Dou, Yuze Liu, Hui Pan, Shoujun Li
BACKGROUND: The prevalence and risk factors for failure to thrive (FTT) in pediatric patients with congenital heart disease (CHD) remain ambiguous. We aimed to investigate the prevalence, growth profiles, risk factors, and vulnerable subtypes of CHD associated with FTT in pediatric patients with CHD. METHODS: This was a cross-sectional study based on Chinese Database for Congenital Heart Surgery. FTT was defined as either stunting or underweight (height or weight standard deviation score <-2), and they were standardized by references of normal Chinese population...
March 2024: The Lancet Regional Health. Western Pacific
https://read.qxmd.com/read/38317125/effects-of-6-month-customized-home-based-exercise-on-motor-development-bone-strength-and-parental-stress-in-children-with-simple-congenital-heart-disease-a-single-blinded-randomized-clinical-trial
#17
RANDOMIZED CONTROLLED TRIAL
Qing Du, Xin Li, Zhaoxi Wang, Sun Chen, Xi Zhang, Juping Liang, Haibin Guo, Nan Chen, Hong Yu, Xiaoqing Zhu, Xuan Zhou, Kun Sun
BACKGROUND: New "noncardiac" problems in children with congenital heart disease (CHD), such as developmental delay or long-term neurodevelopmental impairments, have attracted considerable attention in recent years. It is hypothesized that exercise might attenuate CHD-associated neurodevelopmental impairments; however, this has not been thoroughly investigated. The objective of this prospective, single-blinded, randomized controlled experiment was to evaluate the impact of customized home-based exercise for children with CHD...
February 6, 2024: BMC Medicine
https://read.qxmd.com/read/38290114/challenging-case-a-multidisciplinary-approach-to-demystifying-chronic-sleep-impairment-in-an-infant-with-a-complex-medical-and-behavioral-profile
#18
JOURNAL ARTICLE
Erica Gleason, Kristina Malik, Elise Sannar, Dana Kamara, Verenea Serrano, Marilyn Augustyn
X is a 22-month-old White male infant with a complex medical history, including diagnoses of FBXO11 mutation, hypotonia, restrictive lung disease and mild intermittent asthma, laryngotracheomalacia, obstructive sleep apnea (OSA), feeding difficulties with a history of aspiration, gastroesophageal reflux disease (GERD), and developmental delays. X's medical presentation has resulted in multiple prior medical admissions for respiratory failure due to acute illnesses, procedures and treatments including gastrojejunostomy (GJ) tube dependence, supraglottoplasty to reshape tissues of the upper larynx, and the use of biphasic positive airway pressure (BiPAP) at night and room air during the day when he is at baseline...
January 30, 2024: Journal of Developmental and Behavioral Pediatrics: JDBP
https://read.qxmd.com/read/38287708/-quality-of-life-analysis-in-the-long-term-follow-up-after-fontan-palliation-for-chds-a-single-centre-experience
#19
JOURNAL ARTICLE
Susann Brosig, Robert Wagner, Rabie Twal, Sabine Meier, Marcel Vollroth, Franziska Markel, Ingo Dähnert, Martin Kostelka, Christian Paech
BACKGROUND: Complex CHDs are life threatening, and surgical treatment is needed for survival. Fontan palliation led to a significant increase in survival rates during the last decades. Consequently, quality of life became more essential. While a reduced quality of life compared to healthy children has been reported, detailed knowledge about individual quality of life and particular areas is lacking. Furthermore, the effect of different risk factors on quality of life is only rarely evaluated...
January 30, 2024: Cardiology in the Young
https://read.qxmd.com/read/38283567/the-ozaki-procedure-standardized-protocol-adoption-of-a-complex-innovative-procedure
#20
JOURNAL ARTICLE
Viral Patel, Shinya Unai, Ryan Moore, Habib Layoun, Serge Harb, Michael Z Y Tong, Tara Karamlou, Hani K Najm, Lars G Svensson, Jeevanantham Rajeswaran, Eugene H Blackstone, Gösta B Pettersson
BACKGROUND: The Ozaki procedure using autologous pericardium is an interesting but complex alternative for aortic valve replacement. We present a standardized approach to minimize the learning curve and confirm reproducibility. METHODS: After careful preparation, from May 2015 to February 2021, an Ozaki procedure was performed on 46 patients age 51 ± 14 years. Seven had unicuspid (15%), 29 bicuspid (63%), and 10 tricuspid (22%) aortic valves, and 2 patients had endocarditis...
January 2024: Structural heart: the journal of the Heart Team
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