Shadin Ahmed, Mary Frances Wedekind, Jaydira Del Rivero, Margarita Raygada, Robin Lockridge, John W Glod, Crystal Flowers, B J Thomas, Donna B Bernstein, Oxana B Kapustina, Ashish Jain, Markku Miettinen, Mark Raffeld, Liqiang Xi, Manoj Tyagi, Jung Kim, Kenneth Aldape, Ashkan A Malayeri, Rosandra N Kaplan, Taryn Allen, Christina A Vivelo, Abby B Sandler, Brigitte C Widemann, Karlyne M Reilly
Understanding of tumor biology and identification of effective therapies is lacking for many rare tumors. My Pediatric and Adult Rare Tumor (MyPART) network was established to engage patients, advocates and researchers and conduct a comprehensive longitudinal Natural History Study of Rare Solid Tumors. Through remote or in-person enrollment at the NIH Clinical Center, participants with rare solid tumors ≥4 weeks old complete standardized medical and family history forms, patient reported outcomes, and provide tumor, blood and/or saliva samples...
November 15, 2023: Cancer Res Commun