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Exercise adult congenital heart disease

https://read.qxmd.com/read/38430485/early-hybrid-cardiac-rehabilitation-in-congenital-heart-disease-the-qualirehab-trial
#1
JOURNAL ARTICLE
Pascal Amedro, Arthur Gavotto, Helena Huguet, Luc Souilla, Anne-Cecile Huby, Stefan Matecki, Anne Cadene, Gregoire De La Villeon, Marie Vincenti, Oscar Werner, Charlene Bredy, Kathleen Lavastre, Hamouda Abassi, Sarah Cohen, Sebastien Hascoet, Claire Dauphin, Aurelie Chalard, Yves Dulac, Nathalie Souletie, Helene Bouvaist, Stephanie Douchin, Matthias Lachaud, Caroline Ovaert, Camille Soulatges, Nicolas Combes, Jean-Benoit Thambo, Xavier Iriart, Fanny Bajolle, Damien Bonnet, Helene Ansquer, Jean-Guillaume Delpey, Laurence Cohen, Marie-Christine Picot, Sophie Guillaumont
BACKGROUND AND AIMS: Cardiopulmonary fitness in congenital heart disease (CHD) decreases faster than in the general population resulting in impaired health-related quality of life (HRQoL). As the standard of care seems insufficient to encourage and maintain fitness, an early hybrid cardiac rehabilitation programme could improve HRQoL in CHD. METHODS: The QUALIREHAB multicentre, randomized, controlled trial evaluated and implemented a 12-week centre- and home-based hybrid cardiac rehabilitation programme, including multidisciplinary care and physical activity sessions...
March 2, 2024: European Heart Journal
https://read.qxmd.com/read/38401897/cardiac-rehabilitation-for-children-and-young-people-cardioactive-protocol-for-a-single-blind-randomised-feasibility-and-acceptability-study-of-a-centre-based-cardiac-rehabilitation-programme-versus-usual-care-in-11-16-years-with-heart-conditions
#2
JOURNAL ARTICLE
Lora Capobianco, Mark Hann, Emma McManus, Sarah Peters, Patrick Joseph Doherty, Giovanna Ciotti, Joanne Murray, Adrian Wells
BACKGROUND: Congenital heart conditions are among the most common non-communicable diseases in children and young people (CYP), affecting 13.9 million CYP globally. While survival rates are increasing, support for young people adjusting to life with a heart condition is lacking. Furthermore, one in three CYP with heart conditions also experiences anxiety, depression or adjustment disorder, for which little support is offered. While adults are offered cardiac rehabilitation (CR) to support their mental and physical health, this is not offered for CYP...
February 24, 2024: BMJ Open
https://read.qxmd.com/read/38397348/step-by-step-evaluation-of-cardiorespiratory-fitness-in-healthy-children-young-adults-and-patients-with-congenital-heart-disease-using-a-simple-standardized-stair-climbing-test
#3
JOURNAL ARTICLE
Maurice Pablo Mall, Johanna Wander, Anne Lentz, André Jakob, Felix Sebastian Oberhoffer, Guido Mandilaras, Nikolaus Alexander Haas, Simone Katrin Dold
(1) Background: Cardiorespiratory fitness (CRF) is known to be a prognostic factor regarding long-term morbidity and mortality. This study aimed to develop a standardized Stair Climbing Test (SCT) with a reliable correlation to spiroergometry and the 6MWT which can be used in healthy children as well as patients with congenital heart disease (CHD) and a restricted exercise capacity. (2) Methods: A total of 28 healthy participants aged 10-18 years were included. We tested the individuals' CRF by cardiopulmonary exercise testing (CPET) on a treadmill, the 6MWT, and a newly developed Stair Climbing Test (SCT)...
February 12, 2024: Children
https://read.qxmd.com/read/38242560/prognostic-value-of-right-ventricular-dyssynchrony-in-adults-with-repaired-tetralogy-of-fallot
#4
JOURNAL ARTICLE
Andrea Papa, Clement Nussbaumer, Eleni Goulouti, Fabienne Schwitz, Kerstin Wustmann, Daniel Tobler, Matthias Greutmann, Markus Schwerzmann
OBJECTIVE: Residual sequelae after surgical repair of tetralogy of Fallot (rTOF) affect clinical outcome. We investigated the prognostic impact of right ventricular (RV) dyssynchrony in adults with rTOF years after the surgical repair. METHODS: Patients from the Swiss Adult Congenital HEart disease Registry were included. NT-proBNP levels, echocardiography, exercise testing and MRI data were collected. An offline strain analysis to quantify RV-ventricular and interventricular dyssynchrony was performed...
January 18, 2024: Open Heart
https://read.qxmd.com/read/38161674/the-role-of-cardiopulmonary-testing-to-risk-stratify-tetralogy-of-fallot-patients
#5
REVIEW
Benedetta Leonardi, Barbara Cifra
Neonatal repair has completely changed the clinical history of patients with tetralogy of Fallot (ToF); however, these patients carry a significant risk of severe arrhythmias and sudden cardiac death in the long term. The exact mechanism for late sudden cardiac death is multifactorial and still not well defined, and the risk stratification for primary prophylaxis in these patients remains challenging. Cardiopulmonary exercise testing (CPET) is a well-established and safe method to assess cardiopulmonary function in children and adults with congenital heart disease...
December 2023: CJC Pediatr Congenit Heart Dis
https://read.qxmd.com/read/38128898/effects-of-trimetazidine-on-cardiac-function-in-adult-cyanotic-congenital-heart-disease-patients-protocol-for-a-3-month-multicenter-randomized-double-blind-controlled-trial
#6
JOURNAL ARTICLE
Yi Shen, Li Xiang, Yifan Zhu, Chenyu Jiang, Xingliang Zhou, Xu Huang, Liwei Wu, Bei Feng, Yi Yan, Yiwei Liu, Hao Zhang
BACKGROUND: Nearly 20% Patients with cyanotic congenital heart disease (CCHD) are not able to receive surgery. These patients experience a decline in cardiac function as they age, which has been demonstrated to be associated with changes in energy metabolism in cardiomyocytes. Trimetazidine (TMZ), a metabolic regulator, is supposed to alleviate such maladaptation and reserve cardiac function in CCHD patients. METHODS: This is a randomized, double-blind, placebo-controlled clinical trial...
December 20, 2023: American Heart Journal
https://read.qxmd.com/read/38117446/exercise-as-medicine-evaluation-and-prescription-for-adults-with-congenital-heart-disease
#7
REVIEW
David Leone, Jonathan Buber, Keri Shafer
PURPOSE OF REVIEW: Understanding exercise physiology as it relates to adult congenital heart disease (ACHD) can be complex. Here we review fundamental physiologic principles and provide a framework for application to the unique ACHD patient population. RECENT FINDINGS: ACHD exercise participation has changed dramatically in the last 50 years. A modern approach focuses on exercise principles and individual anatomic and physiologic considerations. With an evolving better understanding of ACHD exercise physiology, we can strategize plans for patients to participate in dynamic and static exercises...
December 20, 2023: Current Cardiology Reports
https://read.qxmd.com/read/37970526/determining-research-priorities-with-teen-and-adult-congenital-heart-disease-patients-a-mixed-methods-study
#8
JOURNAL ARTICLE
Michelle Keir, Cheryl Tarr, Chanda McFadden, Glenda Durupt, Lori Newman, Yvonne Balon, Timothy Prieur, David J Patton, Jessica Jenkins, Nanette Alvarez, Jillian Colbert, Namrata Guron, Stephen Reynolds, Kim Myers
BACKGROUND: Children with congenital heart disease (CHD) are living longer than ever before. This growing cohort of adults with CHD has high medical and psychosocial needs. Also, patients and advocacy groups are justifiably demanding that their voices be heard in all phases of clinical and health services research. METHODS: We conducted a first of its kind research priority-setting exercise with teens and adults with moderate-to-complex CHD. Focus groups were held using a fixed, mixed methods, exploratory sequential design...
April 2023: CJC Pediatr Congenit Heart Dis
https://read.qxmd.com/read/37889178/resilient-hearts-measuring-resiliency-in-young-people-with-congenital-heart-disease
#9
JOURNAL ARTICLE
Thomas Glenn, Melissa K Cousino, Gil Wernovsky, Eleanor L Schuchardt
Background Congenital heart disease (CHD) is a life-long disease with long-term consequences on physical and mental health. Patients with CHD face multifaceted physical and psychosocial challenges. Resilience is an important factor that can be protective and positively impact mental health. We studied resiliency and its associated factors in teenagers and young adults with and without CHD using a social media-delivered survey. Resilience was measured using the 25-item Connor-Davidson Resilience Scale, a validated metric with a historical mean of 80...
October 27, 2023: Journal of the American Heart Association
https://read.qxmd.com/read/37861258/evaluation-of-pulmonary-hypertension-with-exercise-right-heart-catheterization-in-an-adult-patient-with-cor-triatriatum-sinister
#10
Emre Aslanger, Dursun Akaslan, Hatice Kaya, Ahmet Cem Nizam, Redwan Seid Busery, Bülent Mutlu
Cor triatriatum sinister (CTS) is a rare adult congenital heart disease. The usual presentation may vary according to the size of the hole in the membrane in the left atrium and the pressure gradient. In addition to acute clinical presentations including acute pulmonary edema and sudden cardiac death, patients may present with chronic findings such as right heart failure due to pulmonary hypertension. The development of pulmonary hypertension is an important indicator of mortality. In cases where non-invasive methods are not sufficient for the diagnosis of pulmonary hypertension, exercise right heart catheterization may also be used...
October 2023: Türk Kardiyoloji Derneği Arşivi: Türk Kardiyoloji Derneğinin Yayın Organıdır
https://read.qxmd.com/read/37827554/peak-oxygen-consumption-by-smartwatches-compared-with-cardiopulmonary-exercise-test-in-complex-congenital-heart-disease
#11
JOURNAL ARTICLE
Tomio Tran, Jill Marie Steiner, Aparajithan Venkateswaran, Jonathan Buber
OBJECTIVE: To evaluate for correlation between exercise capacity as assessed by peak oxygen consumption (pVO2 ) measurement during a cardiopulmonary exercise test (CPET) and smartwatches reporting this parameter in patients with adult congenital heart disease (ACHD) complex lesions. METHODS: A prospective study that included patients with ACHD either a Fontan circulation or a right ventricle supporting the systemic circulation who underwent two separate CPETs at least 1 year apart...
October 12, 2023: Heart
https://read.qxmd.com/read/37767836/-an-unexpected-case-of-right-heart-dilation-in-the-elderly
#12
JOURNAL ARTICLE
Michele Pagliaccia, Serenella Conti, Alessandro Bufi, Valentino Borghetti, Marcella De Paolis, Marcello Dominici
Atrial septal defects (ASD) represent the most common congenital heart defect diagnosed in adulthood. Adults with an ASD are often asymptomatic, but sometimes may present with non-specific symptoms such as dyspnea on exertion or exercise intolerance. Isolated sinus venosus atrial defect is an extremely rare anomaly. Sinus venosus defects occur more commonly in the superior (rather than inferior) portion of the embryologic sinus venosus and commonly occur with partial anomalous pulmonary venous return, particularly of the right upper pulmonary vein...
October 2023: Giornale Italiano di Cardiologia
https://read.qxmd.com/read/37755470/evaluating-variation-in-the-cardiac-management-of-children-with-hereditary-thoracic-aortic-disease-in-the-united-states
#13
JOURNAL ARTICLE
Cassie N Weyland, Katherine B Salciccioli, Taylor Beecroft, Emily N Soludczyk, Shaine A Morris
Hereditary thoracic aortic diseases (HTAD) such as Marfan syndrome (MFS), Loeys-Dietz syndrome (LDS), and vascular Ehlers-Danlos syndrome (VEDS) frequently result in complex cardiovascular pathology that can lead to premature death. However, given limited research and lack of detailed pediatric management guidelines, practice in the U.S. is largely guided by personal experience and/or advice from other professionals. A REDCap survey was composed that covered topics including genetic testing, imaging, and medication choice (all in children), among others...
January 2024: Pediatric Cardiology
https://read.qxmd.com/read/37700620/unique-clinical-challenges-for-the-teenager-with-congenital-heart-disease
#14
REVIEW
Tony Pastor, Robert W Elder
PURPOSE OF REVIEW: On top of existing rites of passage, adolescents with congenital heart disease (CHD) face additional challenges as related to their underlying medical condition. These include compliance with medications and appointments, establishing heart-healthy behaviors, navigating potential at-risk situations, and transition to adult-oriented care. RECENT FINDINGS: Teenagers with CHD should focus on the importance of exercise as this seems to have important long-term benefits and may help improve weight management...
October 1, 2023: Current Opinion in Pediatrics
https://read.qxmd.com/read/37548158/health-and-well-being-in-older-adults-with-a-surgically-closed-or-an-unrepaired-ventricular-septal-defect
#15
JOURNAL ARTICLE
Marie Maagaard, Filip Eckerström, Anne-Sif Lund Schram, Heidi Amalie Rosendahl Jensen, Vibeke Hjortdal
Background Older adults with a congenital ventricular septal defect (VSD) recently exhibited reduced heart rate variability and exercise capacity. It is unknown whether these findings affect health-related quality of life. Methods and Results Adults with VSDs and healthy controls, all concurrently included as part of another clinical study, completed the Danish National Health Survey questionnaire. Questionnaire data distributed to the general population were included and matched 10:1 with patients. Thirty patients with surgically closed VSDs (mean±SD age, 51±8 years), 300 adults from the general population (mean±SD age, 50±8 years), and 30 controls (mean±SD age, 51±9 years), as well as 30 patients with unrepaired VSDs (mean±SD age, 55±11 years), 300 adults from the general population (mean±SD age, 55±12 years), and 30 controls (mean±SD age, 55±10 years) completed the questionnaire...
August 15, 2023: Journal of the American Heart Association
https://read.qxmd.com/read/37537911/current-practice-of-care-for-adolescent-and-adult-patients-after-fontan-surgery-in-poland
#16
JOURNAL ARTICLE
Ewa Warchol-Celinska, Anna Mazurek-Kula, Patrycja Gladysz-Piestrzynska, Maria Maciejewska-Szabelska, Małgorzata Zuk, Zuzanna Powichrowska, Lidia Tomkiewicz-Pajak, Agnieszka Bartczak-Rutkowska, Olga Trojnarska, Jacek Kusa, Tomasz Moszura, Grażyna Brzezinska-Rajszys, Piotr Hoffman
BACKGROUND: The growing number of adults patients after the Fontan operation requires regular surveillance tests in the specialized centers. AIMS: Evaluation of current practice of care for Fontan patients in Poland based on a multicenter survey. METHODS: Eight centers were included in the study-5 adult congenital heart disease (ACHD) and 3 pediatric centers for adolescents. To aim for a comparison between the centers and facilitate the interpretation of the results, the Fontan Surveillance Score (FSS) was developed...
August 4, 2023: Kardiologia Polska
https://read.qxmd.com/read/37435053/the-potential-of-sodium-glucose-cotransporter-2-inhibitors-for-the-treatment-of-systemic-right-ventricular-failure-in-adults-with-congenital-heart-disease
#17
JOURNAL ARTICLE
Ralph M L Neijenhuis, Marieke Nederend, Monique R M Jongbloed, Philippine Kiès, Joris I Rotmans, Hubert W Vliegen, J Wouter Jukema, Anastasia D Egorova
AIMS: Given the compelling evidence on the effectiveness of sodium-glucose cotransporter 2 inhibitors (SGLT2i) in the conventional heart failure population, SGLT2i deserve exploration in systemic right ventricular (sRV) failure. The initial experience with dapagliflozin in sRV failure patients is described, with a focus on tolerability and short-term effects on clinical outcomes. METHODS AND RESULTS: Ten patients (70% female, median age 50 years [46.5-52]) with symptomatic sRV failure who received dapagliflozin 10 mg per day on top of optimal medical therapy between 04-2021 and 01-2023 were included...
2023: Frontiers in Cardiovascular Medicine
https://read.qxmd.com/read/37433405/clinical-and-invasively-measured-predictors-of-high-exercise-capacity-in-fontan-patients
#18
JOURNAL ARTICLE
Reid Ponder, Luke Chez, Carl J Rosenthal, Katia Bravo, Gentian Lluri, Leigh Reardon, Jeannette Lin, Daniel S Levi, Jamil A Aboulhosn
INTRODUCTION: Fontan patients have variable exercise capacity. Contemporary understanding as to which factors predict high tolerance is limited. METHODS: Records from the Ahmanson/University of California, Los Angeles Adult Congenital Heart Disease Center were reviewed for adult Fontan patients who underwent CPET. Patients were considered "high performers" if their maximum oxygen uptake (VO2 max/kg)-predicted was greater than 80%. Cross-sectional clinical, hemodynamic, and liver biopsy data was gathered...
July 9, 2023: International Journal of Cardiology
https://read.qxmd.com/read/37385408/one-minute-sit-to-stand-test-in-patients-with-pulmonary-arterial-hypertension-associated-with-congenital-heart-disease-a-single-centre-prospective-study
#19
JOURNAL ARTICLE
Nejc Pavsic, Polona Kacar, Jure Dolenc, Katja Prokselj
BACKGROUND: Patients with pulmonary arterial hypertension associated with congenital heart disease (PAH-CHD) have reduced exercise capacity. Recently, the 1-minute sit-to-stand test (1MSTST), which measures the number of repetitions from sitting to standing position in one minute, has been proposed as an alternative test to the 6-minute walking test (6MWT). The aim of our study was to assess the safety and results of the 1MSTST in comparison to the 6MWT in patients with PAH-CHD. METHODS: Consecutive adult patients with PAH-CHD underwent the 6MWT and the 1MSTST on the same day...
June 27, 2023: Hellenic Journal of Cardiology: HJC
https://read.qxmd.com/read/37344559/living-with-congenital-aortic-stenosis-exercise-restriction-patterns-of-adherence-and-quality-of-life
#20
JOURNAL ARTICLE
Laura K Mansfield, Jeffrey R Reichman, David I Crowley, Jonathan N Flyer, Kaitlyn Freeman, Kimberlee K Gauvreau, Stewart A Mackie, Bradley S Marino, Jane W Newburger, Sonja I Ziniel, David W Brown
Modern consensus panel guidelines recommend restriction from most organized sports for patients with moderate or severe aortic stenosis (AS). However, there is little published data on how frequently physicians deviate from guidelines, how well patients adhere to exercise restrictions, or the effect of restriction on patient-reported quality of life. In this study, we surveyed 93 subjects with AS and their cardiologists regarding participation in organized sports, physical activity, weightlifting, and exercise restriction...
June 21, 2023: Pediatric Cardiology
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