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https://www.readbyqxmd.com/read/29772922/behavioral-pain-intervention-for-hospice-and-palliative-care-patients-an-integrative-review
#1
Masako Mayahara, JoEllen Wilbur, Louis Fogg, Susan M Breitenstein
Despite the advances in pain management, achieving optimal pain control in hospice and palliative care is challenging. Patient/caregiver's lack of pain management knowledge, poor pain reporting, and poor adherence to pain management regimens are all associated with inadequate pain control. The purpose of this integrated review is to examine behavioral interventions designed for patients and caregivers to improve pain control in hospice and palliative care settings. Ten studies were identified through a database search...
January 1, 2018: American Journal of Hospice & Palliative Care
https://www.readbyqxmd.com/read/29772281/geriatric-oncology-spirituality-and-palliative-care
#2
Lodovico Balducci
Cancer is a major cause of morbidity and mortality for older individuals. Palliative care is essential to improve the outcome of cancer treatment in terms of quality of life and treatment satisfaction. This review examines the influence of spirituality on aging in general and on the management of older cancer patients. A spiritual perspective has been associated with successful aging, and with better tolerance of physical and emotional stress, including the ability to cope with serious diseases and with isolation...
May 14, 2018: Journal of Pain and Symptom Management
https://www.readbyqxmd.com/read/29768117/experiences-and-expectations-of-bereavement-contact-among-caregivers-of-patients-with-advanced-cancer
#3
Maisam Makarem, Shan Mohammed, Nadia Swami, Ashley Pope, Nanor Kevork, Monika Krzyzanowska, Gary Rodin, Breffni Hannon, Camilla Zimmermann
BACKGROUND: Contact with bereaved caregivers is not standard practice among cancer physicians, and little is known about its impact on caregivers. OBJECTIVE: Our aim was to describe the experiences and opinions of caregivers regarding bereavement contact from healthcare providers (HCP). DESIGN: Semistructured qualitative interviews were conducted with 61 bereaved caregivers. SUBJECTS: Bereaved caregivers of advanced cancer patients who had completed a randomized controlled trial of an early palliative care intervention were approached one to five years after the patient's death...
May 16, 2018: Journal of Palliative Medicine
https://www.readbyqxmd.com/read/29767897/-oncology-trajectories-of-elderly-patients-in-a-palliative-situation-%C3%A2-the-long-and-winding-road-%C3%A2
#4
Annick Anchisi, Rose-Anna Foley, Claire Ansermet, Sandro Anchisi
This paper focuses on trajectories of elderly patients with metastatic cancer who experience several lines of systemic palliative cancer treatments. Based on photographs representing paths, the representations between patients and professional caregivers vary. Where the latter see wearisome treatments and spaces of negotiation, the patients wish to be seen as fighters, a figure that ought to be adopted to face cancer and its treatments, day after day, to meet medical and social expectations.
May 16, 2018: Revue Médicale Suisse
https://www.readbyqxmd.com/read/29764172/developing-compassionate-communities-in-australia-through-collective-caregiving-a-qualitative-study-exploring-network-centred-care-and-the-role-of-the-end-of-life-sector
#5
Debbie Horsfall
BACKGROUND: The new public health palliative care movement calls for a move away from an individualised model of caregiving to a whole of community approach which will increase expectations on community carers. In order to avoid carer isolation, exploitation and potential burnout there is then a very real need to understand environments and relationships which support collective community caregiving. In this research we explored in-home caring networks to understand if and how network centred care supports carers of the dying while developing a whole of community approach...
April 2018: Annals of Palliative Medicine
https://www.readbyqxmd.com/read/29756532/caring-for-a-dying-partner-the-male-experience
#6
Rebecca Judd, Helen Guy, Ruth A Howard
OBJECTIVE: Caring for someone close who is dying, such as a spouse, is an emotive experience; however, there is little research examining the phenomenon of caregiving for a spouse at the end of life and of men's experiences specifically. Existing literature suggests that men who are providing care are less likely to seek help than women, especially psychological and emotional support for themselves. The aim of the current study was to explore the lived experiences of men caring for a dying spouse or partner and their help-seeking for themselves during this time...
January 1, 2018: Journal of Palliative Care
https://www.readbyqxmd.com/read/29755917/sharing-is-caring-minimizing-the-disruption-with-palliative-care
#7
EDITORIAL
Abd Moain Abu Dabrh, Robert P Shannon, Richard J Presutti
There is an upward trend incidence of multiple chronic life-limiting conditions with a well-documented associated impact on patients and their caregivers. When patients approach the end of life, they are often faced with a challenging multidimensional burden while navigating a complex health care system. Patients and families/caregivers are faced with daily decisions, often with little or no frame of reference or medical knowledge. The "what, how, when, and where" puzzle during this challenging time can be overwhelming for patients and their families, and when clinicians do not contemplate this associated workload's impact on patients and caregivers' capacity for self-care, patients and caregivers scramble to find compensatory solutions, often putting their health care at lower priority...
March 13, 2018: Curēus
https://www.readbyqxmd.com/read/29754684/-personal-care-and-support-after-death
#8
REVIEW
Idriss Farota-Romejko
As part of the palliative care provided to patients, personal care after death is a sign of the team's respect for the deceased person and marks the end of the care process. Beyond their professionalism, caregivers are confronted with their own humanity during this last act of care which marks the support for the deceased person and his or her family and friends in the first stages of their grief.
May 2018: Revue de L'infirmière
https://www.readbyqxmd.com/read/29745483/-oncological-patients-in-primary-care-ruptures-and-transitions
#9
Christopher Chung, Dagmar M Haller, Sophie Pautex, Johanna Sommer
Patients with severe cancer go through a journey requiring the involvement of several healthcare providers. Several transitions of care occur: from the general practitioner to the oncologist, and then depending on the outcomes of treatment, the patient enters a palliative care phase, and eventually end of life care. Lack of coordination of the different actors can lead to repeated loss of the continuum of care. Each transition requires better communication between healthcare providers and also with the patient...
May 9, 2018: Revue Médicale Suisse
https://www.readbyqxmd.com/read/29741457/differences-between-early-and-late-involvement-of-palliative-home-care-in-oncology-care-a-focus-group-study-with-palliative-home-care-teams
#10
Naomi Dhollander, Luc Deliens, Simon Van Belle, Aline De Vleminck, Koen Pardon
BACKGROUND: To date, no randomised controlled trials on the integration of specialised palliative home care into oncology care have been identified. Information on whether existing models of integrated care are applicable to the home care system and how working procedures and skills of the palliative care teams might require adaptation is missing. AIM: To gain insight into differences between early and late involvement and the effect on existing working procedures and skills as perceived by palliative home care teams...
May 1, 2018: Palliative Medicine
https://www.readbyqxmd.com/read/29729653/pain-management-in-the-pediatric-palliative-care-population
#11
Rene Thomas, Marcia Phillips, Rebekah J Hamilton
PURPOSE: The purpose of this integrative review was to identify, review, synthesize, and analyze the current literature related to pain management in the pediatric palliative care population from infancy through adolescence. METHODS: The literature was searched for the terms palliative, pediatric, and pain in PubMed, PsycINFO, Cumulative Index to Nursing and Allied HeALTH LITERATUre (CINAHL) Complete, and Google Scholar. The search was limited to papers in English that had been published from January 1, 2005, to December 31, 2016...
May 5, 2018: Journal of Nursing Scholarship
https://www.readbyqxmd.com/read/29729119/palliative-care-in-end-stage-liver-disease-time-to-do-better
#12
REVIEW
Chiara Mazzarelli, Wendy M Prentice, Michael A Heneghan, Luca S Belli, Kosh Agarwal, Mary D Cannon
Optimal involvement of palliative care services in the management of patients with decompensated cirrhosis and end-stage liver disease is limited. This may result from both ignorance and the failure to recognize the spectrum and unpredictability of the underlying liver condition. Palliative care is a branch of medicine that focuses on quality of life by optimizing symptom management and providing psychosocial, spiritual, and practical support for both patients and their caregivers. Historically, palliative care has been underutilized for patients with decompensated liver disease...
May 5, 2018: Liver Transplantation
https://www.readbyqxmd.com/read/29727249/reasons-for-and-frequency-of-end-of-life-hospital-admissions-gps-perspective-on-reducing-end-of-life-hospital-referrals
#13
Stéphanie Giezendanner, Klaus Bally, Dagmar M Haller, Corinna Jung, Ina C Otte, Hans-Ruedi Banderet, Bernice S Elger, Elisabeth Zemp, Heike Gudat
BACKGROUND: Many palliative care patients are admitted to hospital shortly before death even though the acute hospital setting is not considered ideal for end-of-life care (EOLC). OBJECTIVES: This study aimed to evaluate General Practitioners' (GPs') perspective on the frequency of and reasons for hospital referrals of these patients. METHODS: Cross-sectional survey involving a stratified random sample of 2000 GPs in Switzerland in 2014...
May 4, 2018: Journal of Palliative Medicine
https://www.readbyqxmd.com/read/29703204/exploring-end-of-life-interaction-in-dyads-of-parents-and-adult-children-a-protocol-for-a-mixed-methods-study
#14
Stephanie Stiel, Eva-Maria Stelzer, Nils Schneider, Franziska A Herbst
BACKGROUND: A considerable number of terminally-ill adult children are outlived by at least one parent and receive palliative care prior to their death. At the same time, adult children continue to be confronted with their parents' terminal illnesses and end-of-life situations. The current study explores the specifics of dyadic interaction at the end of life between a) adult children suffering from a life-threatening disease and their parents, and b) terminally ill parents and their adult children...
April 27, 2018: BMC Palliative Care
https://www.readbyqxmd.com/read/29694599/-circumstances-and-consequences-of-care-characterization-of-the-family-caregiver-in-palliative-care
#15
Mayra Delalibera, António Barbosa, Isabel Leal
Family caregivers play an important role in advanced disease patient care. The goal of this study was to characterize the family caregiver in palliative care, evaluating the circumstances and consequences of care and preparation for the loss of the loved one. This is a quantitative, prospective and longitudinal study. The sample consisted of 60 family caregivers, mostly women, married with an average age of 44.53 years. Most caregivers cohabit with the patient, and they spend the greater part of their day caring for the patient and a significant part quit their jobs or reduce working hours to be with the patient...
April 2018: Ciência & Saúde Coletiva
https://www.readbyqxmd.com/read/29688843/cost-of-medical-care-of-patients-with-advanced-serious-illness-in-singapore-compass-prospective-cohort-study-protocol
#16
Irene Teo, Ratna Singh, Chetna Malhotra, Semra Ozdemir, Rebecca A Dent, Nesaretnam Barr Kumarakulasinghe, Wee Lee Yeo, Yin Bun Cheung, Rahul Malhotra, Ravindran Kanesvaran, Alethea Chung Pheng Yee, Noreen Chan, Huei Yaw Wu, Soh Mun Chin, Hum Yin Mei Allyn, Grace Meijuan Yang, Patricia Soek Hui Neo, Nivedita V Nadkarni, Richard Harding, Eric A Finkelstein
BACKGROUND: Advanced cancer significantly impacts quality of life of patients and families as they cope with symptom burden, treatment decision-making, uncertainty and costs of treatment. In Singapore, information about the experiences of advanced cancer patients and families and the financial cost they incur for end-of-life care is lacking. Understanding of this information is needed to inform practice and policy to ensure continuity and affordability of care at the end of life. The primary objectives of the Cost of Medical Care of Patients with Advanced Serious Illness in Singapore (COMPASS) cohort study are to describe changes in quality of life and to quantify healthcare utilization and costs of patients with advanced cancer at the end of life...
April 23, 2018: BMC Cancer
https://www.readbyqxmd.com/read/29683121/hospice-and-palliative-care-provider-experiences-with-meditation-using-mobile-applications
#17
Rebecca H Lehto, Carrie Heeter, Marcel Allbritton, Michelle Wiseman
PURPOSE: Healthcare providers who are involved in the care of patients at the end of life are at risk of developing compassion fatigue, a condition characterized by emotional exhaustion and reduced professional engagement. Research has shown that development of a meditation practice can modify stress perceptions and promote quality of life. This study aimed to evaluate perceived benefits, challenges, and recommendations following participation in a workplace mobile application- and email-based meditation research program...
May 1, 2018: Oncology Nursing Forum
https://www.readbyqxmd.com/read/29682885/identifying-palliative-care-needs-in-a-portuguese-liver-unit
#18
Joana Rita Carvalho, Mariana Vasconcelos, Pedro Marques da Costa, Rui Tato Marinho, Narcisa Fatela, Miguel Raimundo, Sofia Carvalhana, Fernando Ramalho, Helena Cortez-Pinto, José Velosa
BACKGROUND & AIMS: Chronic liver disease is a major worldwide cause of morbidity and mortality. Palliative care policies are not clearly established in chronic liver disease. The NECPAL CCOMS-ICO© (NECesidades PALiativas/Palliative Needs) is a tool to identify palliative care needs, including a section for liver disease. AIM: The aim of this study was to identify palliative care needs in liver patients hospitalised in a tertiary referral Liver Unit METHODS: single-center prospective observational study...
April 23, 2018: Liver International: Official Journal of the International Association for the Study of the Liver
https://www.readbyqxmd.com/read/29669562/comfort-in-palliative-sedation-compas-a-transdisciplinary-mixed-method-study-protocol-for-linking-objective-assessments-to-subjective-experiences
#19
Stefaan Six, Steven Laureys, Jan Poelaert, Johan Bilsen, Peter Theuns, Reginald Deschepper
BACKGROUND: In case of untreatable suffering at the end of life, palliative sedation may be chosen to assure comfort by reducing the patient's level of consciousness. An important question here is whether such sedated patients are completely free of pain. Because these patients cannot communicate anymore, caregivers have to rely on observation to assess the patient's comfort. Recently however, more sophisticated techniques from the neurosciences have shown that sometimes consciousness and pain are undetectable with these traditional behavioral methods...
April 18, 2018: BMC Palliative Care
https://www.readbyqxmd.com/read/29667475/how-family-caregivers-help-older-relatives-navigate-statutory-services-at-the-end-of-life-a-descriptive-qualitative-study
#20
Lisa Ann Williams, Tess Moeke-Maxwell, Janine Wiles, Stella Black, Gabriella Trussardi, Ngaire Kerse, Merryn Gott
BACKGROUND: A key challenge in meeting the palliative care needs of people in advanced age is the multiple healthcare and social service agencies typically involved in their care. The 'patient navigator' model, originally developed in cancer care, is the professional solution most often recommended to address this challenge. However, little attention has been paid, or is known, about the role that family carers play in enabling their dying relatives to negotiate service gaps. AIM: To explore the role family caregivers play in helping people dying in advanced old age navigate health services at the end of life...
April 1, 2018: Palliative Medicine
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