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https://www.readbyqxmd.com/read/27658673/engaging-patient-advocates-and-other-stakeholders-to-design-measures-of-patient-centered-communication-in-cancer-care
#1
Katherine Treiman, Lauren McCormack, Murrey Olmsted, Nancy Roach, Bryce B Reeve, Christa E Martens, Rebecca R Moultrie, Hanna Sanoff
BACKGROUND: Patient-centered communication (PCC) is an essential component of patient-centered care and contributes to patient satisfaction, health-related quality of life, and other important patient outcomes. OBJECTIVE: The aim of this study was to develop and test survey questions to assess patients' experiences with PCC in cancer care. METHODS: We used a conceptual model developed by the National Cancer Institute as our framework. The survey questions align with the six core functions of PCC defined in the model: Exchanging Information, Managing Uncertainty, Enabling Patient Self-Management, Fostering Healing Relationships, Making Decisions, and Responding to Emotions...
September 23, 2016: Patient
https://www.readbyqxmd.com/read/27634294/qualitative-methods-in-patient-centered-outcomes-research
#2
Roxanne Vandermause, Frances K Barg, Laura Esmail, Lauren Edmundson, Samantha Girard, A Ross Perfetti
The Patient-Centered Outcomes Research Institute (PCORI), created to fund research guided by patients, caregivers, and the broader health care community, offers a new research venue. Many (41 of 50) first funded projects involved qualitative research methods. This study was completed to examine the current state of the science of qualitative methodologies used in PCORI-funded research. Principle investigators participated in phenomenological interviews to learn (a) how do researchers using qualitative methods experience seeking funding for, implementing and disseminating their work; and (b) how may qualitative methods advance the quality and relevance of evidence for patients? Results showed the experience of doing qualitative research in the current research climate as "Being a bona fide qualitative researcher: Staying true to research aims while negotiating challenges," with overlapping patterns: (a) researching the elemental, (b) expecting surprise, and (c) pushing boundaries...
September 14, 2016: Qualitative Health Research
https://www.readbyqxmd.com/read/27621272/implementing-the-painrelieveit-randomized-controlled-trial-in-hospice-care-mechanisms-for-success-and-meeting-pcori-methodology-standards
#3
Miriam O Ezenwa, Marie L Suarez, Jesus D Carrasco, Theresa Hipp, Anayza Gill, Jacob Miller, Robert Shea, David Shuey, Zhongsheng Zhao, Veronica Angulo, Timothy McCurry, Joanna Martin, Yingwei Yao, Robert E Molokie, Zaijie Jim Wang, Diana J Wilkie
This purpose of this article is to describe how we adhere to the Patient-Centered Outcomes Research Institute's (PCORI) methodology standards relevant to the design and implementation of our PCORI-funded study, the PAINRelieveIt Trial. We present details of the PAINRelieveIt Trial organized by the PCORI methodology standards and components that are relevant to our study. The PAINRelieveIt Trial adheres to four PCORI standards and 21 subsumed components. The four standards include standards for formulating research questions, standards associated with patient centeredness, standards for data integrity and rigorous analyses, and standards for preventing and handling missing data...
September 12, 2016: Western Journal of Nursing Research
https://www.readbyqxmd.com/read/27586855/all-together-now-findings-from-a-pcori-workshop-to-align-patient-reported-outcomes-in-the-electronic-health-record
#4
Roxanne E Jensen, Claire F Snyder, Ethan Basch, Lori Frank, Albert W Wu
In recent years, patient-reported outcomes have become increasingly collected and integrated into electronic health records. However, there are few cross-cutting recommendations and limited guidance available in this rapidly developing research area. Our goal is to report key findings from a 2013 Patient-Centered Outcomes Research Institute workshop on this topic and a summary of actions that followed from the workshop, and present resulting recommendations that address patient, clinical and research/quality improvement barriers to regular use...
November 2016: Journal of Comparative Effectiveness Research
https://www.readbyqxmd.com/read/27423939/the-adaptable-trial-and-aspirin-dosing-in-secondary-prevention-for-patients-with-coronary-artery-disease
#5
REVIEW
Abigail Johnston, W Schuyler Jones, Adrian F Hernandez
Coronary artery disease (CAD) is the underlying cause of death in one out of seven deaths in the USA. Aspirin therapy has been proven to decrease mortality and major adverse cardiovascular events in patients with CAD. Despite a plethora of studies showing the benefit of aspirin in secondary prevention of cardiovascular events, debate remains regarding the optimal dose due to relatively small studies that had disparate results when comparing patients taking different aspirin dosages. More recently, aspirin dosing has been thoroughly studied in the CAD population with concomitant therapy (such as P2Y12 inhibitors); however, patients in these studies were not randomized to aspirin dose...
August 2016: Current Cardiology Reports
https://www.readbyqxmd.com/read/27365094/consensus-of-recommendations-guiding-comparative-effectiveness-research-methods
#6
Jacob B Morton, Robert McConeghy, Kirstin Heinrich, Nicolle M Gatto, Aisling R Caffrey
PURPOSE: Because of an increasing demand for quality comparative effectiveness research (CER), methods guidance documents have been published, such as those from the Agency for Healthcare Research and Quality (AHRQ) and the Patient-Centered Outcomes Research Institute (PCORI). Our objective was to identify CER methods guidance documents and compare them to produce a summary of important recommendations which could serve as a consensus of CER method recommendations. METHODS: We conducted a systematic literature review to identify CER methods guidance documents published through 2014...
December 2016: Pharmacoepidemiology and Drug Safety
https://www.readbyqxmd.com/read/27337991/patient-perspectives-on-the-choice-of-dialysis-modality-results-from-the-empowering-patients-on-choices-for-renal-replacement-therapy-epoch-rrt-study
#7
Claudia Dahlerus, Martha Quinn, Emily Messersmith, Laurie Lachance, Lalita Subramanian, Erica Perry, Jill Cole, Junhui Zhao, Celeste Lee, Margie McCall, Leslie Paulson, Francesca Tentori
BACKGROUND: Little is known about factors that are important to patients with advanced kidney disease and their perspectives at the time they choose a dialysis modality. EPOCH-RRT, a study supported in part by the Patient-Centered Outcomes Research Institute (PCORI), was designed to assist patients with this choice by identifying such factors and effectively provide relevant information. STUDY DESIGN: Cross-sectional study, designed and conducted in collaboration with a multistakeholder advisory panel that included patients, caregivers, and health care professionals...
June 21, 2016: American Journal of Kidney Diseases: the Official Journal of the National Kidney Foundation
https://www.readbyqxmd.com/read/27307352/the-patient-outcomes-research-to-advance-learning-portal-network-adult-overweight-and-obesity-cohort-development-and-description
#8
Deborah R Young, Beth A Waitzfelder, David Arterburn, Gregory A Nichols, Assiamira Ferrara, Corinna Koebnick, Ayae Yamamoto, Matthew F Daley, Nancy E Sherwood, Michael A Horberg, Lee Cromwell, Kristina H Lewis
BACKGROUND: The Patient-Centered Outcomes Research Institute (PCORI) created a new national network infrastructure to enable large-scale observational comparative effectiveness research across diverse clinical care settings. As part of testing the feasibility of this effort, each clinical data research network (CDRN) was required to construct cohorts of patients, including one of patients with overweight and obesity. OBJECTIVE: The aim of this paper is to report on the development of the Patient Outcomes Research to Advance Learning (PORTAL) overweight and obese cohort, which includes patients from 10 health plans located across the United States...
2016: JMIR Research Protocols
https://www.readbyqxmd.com/read/27298206/an-overview-and-discussion-of-the-patient-centered-outcomes-research-institute-s-decision-aid-portfolio
#9
Christopher C Gayer, Matthew J Crowley, William F Lawrence, Jennifer M Gierisch, Bridget Gaglio, John W Williams, Evan R Myers, Amy Kendrick, Jean Slutsky, Gillian D Sanders
Decision aids (DAs) help patients make informed healthcare decisions in a manner consistent with their values and preferences. Despite their promise, DAs developed with public research dollars are not being implemented and adopted in real-world patient care settings at a rate consistent with which they are being developed. To appraise the sum of the parts of the portfolio and create a strategic imperative surrounding future funding, the Patient-Centered Outcomes Research Institute (PCORI) tasked the Duke Evidence Synthesis Group with evaluating its DA portfolio...
July 2016: Journal of Comparative Effectiveness Research
https://www.readbyqxmd.com/read/27197917/interventions-to-improve-the-quality-of-life-and-survivorship-of-older-adults-with-cancer-the-funding-landscape-at-nih-acs-and-pcori
#10
REVIEW
Marie Flannery, Supriya Gupta Mohile, William Dale, Neeraj K Arora, Lauren Azar, Erica S Breslau, Harvey Jay Cohen, Efrat Dotan, Basil A Eldadah, Corinne R Leach, Sandra A Mitchell, Julia H Rowland, Arti Hurria
Identifying knowledge gaps and research opportunities in cancer and aging research was the focus of a three-part conference series led by the Cancer and Aging Research Group from 2010 to 2015. The third meeting, featured representatives from the NIA, NCI, ACS and PCORI each of whom discussed research priorities and funding opportunities in cancer and aging at their respective agencies. This manuscript reports on the proceedings of that conference with a specific focus on funding priorities for interventions to improve the quality of life and survivorship of older adults with cancer...
July 2016: Journal of Geriatric Oncology
https://www.readbyqxmd.com/read/27197911/patient-and-other-stakeholder-engagement-in-patient-centered-outcomes-research-institute-funded-studies-of-patients-with-kidney-diseases
#11
Daniel Cukor, Lewis M Cohen, Elizabeth L Cope, Nasrollah Ghahramani, S Susan Hedayati, Denise M Hynes, Vallabh O Shah, Francesca Tentori, Mark Unruh, Jeanette Bobelu, Scott Cohen, Laura M Dember, Thomas Faber, Michael J Fischer, Rani Gallardo, Michael J Germain, Donica Ghahate, Nancy Grote, Lori Hartwell, Patrick Heagerty, Paul L Kimmel, Nancy Kutner, Susan Lawson, Lisa Marr, Robert G Nelson, Anna C Porter, Phillip Sandy, Bruce B Struminger, Lalita Subramanian, Steve Weisbord, Bessie Young, Rajnish Mehrotra
Including target populations in the design and implementation of research trials has been one response to the growing health disparities endemic to our health care system, as well as an aid to study generalizability. One type of community-based participatory research is "Patient Centered-Research", in which patient perspectives on the germane research questions and methodologies are incorporated into the study. The Patient-Centered Outcomes Research Institute (PCORI) has mandated that meaningful patient and stakeholder engagement be incorporated into all applications...
September 7, 2016: Clinical Journal of the American Society of Nephrology: CJASN
https://www.readbyqxmd.com/read/27141524/building-a-governance-strategy-for-cer-the-patient-outcomes-research-to-advance-learning-portal-network-experience
#12
Andrea R Paolino, Elizabeth A McGlynn, Tracy Lieu, Andrew F Nelson, Stephanie Prausnitz, Michael A Horberg, David E Arterburn, Michael K Gould, Reesa L Laws, John F Steiner
INTRODUCTION: The Patient Outcomes Research to Advance Learning (PORTAL) Network was established with funding from the Patient-Centered Outcomes Research Institute (PCORI) in 2014. The PORTAL team adapted governance structures and processes from past research network collaborations. We will review and outline the structures and processes of the PORTAL governance approach and describe how proactively focusing on priority areas helped us to facilitate an ambitious research agenda. BACKGROUND: For years a variety of funders have supported large-scale infrastructure grants to promote the use of clinical datasets to answer important comparative effectiveness research (CER) questions...
2016: EGEMS
https://www.readbyqxmd.com/read/26919027/patient-centered-outcomes-research-in-emergency-care-opportunities-challenges-and-future-directions
#13
Kristin L Rising, Brendan G Carr, Erik P Hess, Zachary F Meisel, Megan L Ranney, Jody A Vogel
The Patient-Centered Outcomes Research Institute (PCORI) was established by Congress in 2010 to promote the conduct of research that could better inform patients in making decisions that reflect their desired health outcomes. PCORI has established five national priorities for research around which specific funding opportunities are issued: 1) assessment of prevention, diagnosis, and treatment options; 2) improving healthcare systems; 3) communication and dissemination research; 4) addressing disparities; and 5) improving methods for conducting patient-centered outcomes research...
April 2016: Academic Emergency Medicine: Official Journal of the Society for Academic Emergency Medicine
https://www.readbyqxmd.com/read/26914103/using-patient-reported-outcomes-and-promis-in-research-and-clinical-applications-experiences-from-the-pcori-pilot-projects
#14
Clifton O Bingham, Susan J Bartlett, Peter A Merkel, Thelma J Mielenz, Paul A Pilkonis, Lauren Edmundson, Emily Moore, Rajeev K Sabharwal
PURPOSE: The field of patient-centered outcomes research (PCOR) continues to develop. Patient-reported outcomes and, in particular the Patient-Reported Outcomes Measurement Information System (PROMIS) contribute complementary data to clinician-derived outcomes traditionally used in health decision-making. However, there has been little work to understand how PROMIS measures may inform or be integrated into PCOR or clinical applications. METHODS: Lead investigators from four pilot projects funded by the Patient-Centered Outcomes Research Institute (PCORI) collaborated to discuss lessons learned about the use of PROMIS in PCOR studies via virtual and in-person meetings...
August 2016: Quality of Life Research
https://www.readbyqxmd.com/read/26862842/primary-care-research-in-the-patient-centered-outcomes-research-institute-s-portfolio
#15
COMMENT
Joe V Selby, Jean R Slutsky
In their article in this issue, Mazur and colleagues analyze the characteristics of early recipients of funding from the Patient-Centered Outcomes Research Institute (PCORI). Mazur and colleagues note correctly that PCORI has a unique purpose and mission and suggest that it should therefore have a distinct portfolio of researchers and departments when compared with other funders such as the National Institutes of Health (NIH). Responding on behalf of PCORI, the authors of this Commentary agree with the characterization of PCORI's mission as distinct from that of NIH and others...
April 2016: Academic Medicine: Journal of the Association of American Medical Colleges
https://www.readbyqxmd.com/read/26862840/characteristics-of-early-recipients-of-patient-centered-outcomes-research-institute-funding
#16
Stephany Mazur, Andrew Bazemore, Daniel Merenstein
The Patient Protection and Affordable Care Act (ACA) is grounded in the goals of increasing access, improving quality, and reducing cost in the U.S. health care system. The ACA established the Patient-Centered Outcomes Research Institute (PCORI) to help accomplish these goals through patient-focused research. PCORI has a different charge than its federally supported counterpart, the National Institutes of Health (NIH)-to fund research that ultimately helps patients make better-informed health care decisions...
April 2016: Academic Medicine: Journal of the Association of American Medical Colleges
https://www.readbyqxmd.com/read/26843899/educating-the-psychology-workforce-in-the-age-of-the-affordable-care-act-a-graduate-course-modeled-after-the-priorities-of-the-patient-centered-outcomes-research-institute-pcori
#17
Michael Hoerger
The Affordable Care Act (ACA) represents a paradigm shift in the U.S. healthcare system, which has implications for psychology programs producing the next generation of trainees. In particular, the ACA has established the Patient-Centered Outcomes Research Institute (PCORI), which has been tasked with developing national priorities and funding research aimed at improving healthcare quality by helping patients and providers to make informed healthcare decisions. PCORI's national priorities span five broad domains: person-centered outcomes research, health disparities research, healthcare systems research, communication and dissemination research, and methodologic research...
November 1, 2015: Training and Education in Professional Psychology
https://www.readbyqxmd.com/read/26698828/using-design-methods-to-provide-the-care-that-people-want-and-need
#18
Kim Erwin, Jerry A Krishnan
Kim Erwin is an Assistant Professor at IIT Institute of Design and trained in user-centered design methods, which put people at the center of any problem space so as to develop solutions that better fit their everyday lives, activities and context. Her expertise is in making complex information easier to understand and use. Her research targets communication tools and methods for collaborative knowledge construction built through shared experiences. Her book, Communicating the New: Methods to shape and accelerate innovation focuses on helping teams explore, build and diffuse critical knowledge inside organizations...
January 2016: Journal of Comparative Effectiveness Research
https://www.readbyqxmd.com/read/26683507/opportunities-for-patient-centered-outcomes-research-in-radiology
#19
Matthew E Zygmont, Diana L Lam, Kristina M Nowitzki, Kirsteen R Burton, Leon Lenchik, Tatum A McArthur, Aarti K Sekhar, Jason N Itri
Recently created in 2010, the Patient-Centered Outcomes Research Institute (PCORI) supports patient-centered comparative effectiveness research with a focus on prioritizing high-impact studies and improving trial design methodology. The Association of University Radiologists Radiology Research Alliance Task Force on patient-centered outcomes research in Radiology aims to review recently funded imaging-centric projects that adhere to the methodologies established by PCORI. We provide an overview of the successful application of PCORI standards to radiology topics, highlight how these methodologies differ from other forms of radiology research, and identify opportunities for new projects as well as potential barriers for involvement...
January 2016: Academic Radiology
https://www.readbyqxmd.com/read/26595059/stakeholder-driven-comparative-effectiveness-research-an-update-from-pcori
#20
Joseph V Selby, Laura Forsythe, Harold C Sox
No abstract text is available yet for this article.
December 1, 2015: JAMA: the Journal of the American Medical Association
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