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https://www.readbyqxmd.com/read/28544437/autonomy-support-in-people-with-mild-to-borderline-intellectual-disability-testing-the-health-care-climate-questionnaire-intellectual-disability
#1
Noud Frielink, Carlo Schuengel, Petri J C M Embregts
BACKGROUND: Autonomy support in people with intellectual disability (ID) is an important yet understudied topic. Psychometrically sound instruments are lacking. This study tested the factor structure and reliability of an instrument for assessing the extent people with intellectual disability perceive their support staff as autonomy supportive. METHOD: In a single wave, 185 adults with mild-to-borderline intellectual disability filled in an adapted version of the Health Care Climate Questionnaire (i...
May 24, 2017: Journal of Applied Research in Intellectual Disabilities: JARID
https://www.readbyqxmd.com/read/28543651/the-past-present-and-future-of-mexico-s-national-bioethics-commission
#2
Manuel Ruiz de Chavez, Aidee Orozco, Gustavo Olaiz
The establishment of Mexico's National Bioethics Commission (Comisión Nacional de Bioética), in 1992, was conceived within the context of a global movement aimed at raising awareness of the ethical implications of technological and scientific development, especially in biomedicine. In 2005, a new decree put the commission under the scope of the Secretariat of Health and granted it technical and operational autonomy, allowing it to become a regulatory agency aimed at promoting a culture of bioethics, encouraging reflection on human health, and developing guidelines for health care, research, and education, through a global, secular, and democratic perspective...
May 2017: Hastings Center Report
https://www.readbyqxmd.com/read/28542525/women-s-role-in-sanitation-decision-making-in-rural-coastal-odisha-india
#3
Parimita Routray, Belen Torondel, Thomas Clasen, Wolf-Peter Schmidt
BACKGROUND: While women and girls face special risks from lack of access to sanitation facilities, their ability to participate and influence household-level sanitation is not well understood. This paper examines the association between women's decision-making autonomy and latrine construction in rural areas of Odisha, India. METHODS: We conducted a mixed-method study among rural households in Puri district. This included a cross sectional survey among 475 randomly selected households...
2017: PloS One
https://www.readbyqxmd.com/read/28542226/german-validation-of-quality-of-life-after-brain-injury-qolibri-assessment-and-associated-factors
#4
Nicole von Steinbüchel, Ruben G L Real, Nadine Sasse, Lindsay Wilson, Christiane Otto, Ryan Mullins, Robert Behr, Wolfgang Deinsberger, Ramon Martinez-Olivera, Wolfgang Puschendorf, Werner Petereit, Veit Rohde, Holger Schmidt, Stephan Sehmisch, Klaus Michael Stürmer, Klaus von Wild, Henning Gibbons
The consequences of traumatic brain injury (TBI) for health-related quality of life (HRQoL) are still poorly understood, and no TBI-specific instrument has hitherto been available. This paper describes in detail the psychometrics and validity of the German version of an internationally developed, self-rated HRQoL tool after TBI-the QOLIBRI (Quality of Life after Brain Injury). Factors associated with HRQoL, such as the impact of cognitive status and awareness, are specifically reported. One-hundred seventy-two participants after TBI were recruited from the records of acute clinics, most of whom having a Glasgow Coma Scale (GCS) 24-hour worst score and a Glasgow Outcome Scale (GOSE) score...
2017: PloS One
https://www.readbyqxmd.com/read/28542003/providing-choice-in-exercise-influences-food-intake-at-the-subsequent-meal
#5
Natalya J Beer, James A Dimmock, Ben Jackson, Kym J Guelfi
The benefits of regular exercise for health are well established; however, certain behaviors following exercise, such as unhealthy or excessive food consumption, can counteract some of these benefits. PURPOSE: To investigate the effect of autonomy support (through the provision of choice) in exercise - relative to a no-choice condition with matched energy expenditure - on appetite and subsequent energy intake. METHODS: Fifty-eight men and women (body mass index: 22...
May 23, 2017: Medicine and Science in Sports and Exercise
https://www.readbyqxmd.com/read/28541237/treatment-decision-making-capacity-in-hospitalized-patients-with-schizophrenia
#6
N Bilanakis, V K Peritogiannis, Aik Vratsista
In contemporary medical ethics and clinical practice the autonomy of patients and their right to accept or refuse an offered treatment is acknowledged and respected. Prerequisite for the right of a patient to consent to any medical act is the capacity to make valid decisions regarding his/ her treatment. The objective of our study was to assess -for the first time in our country- treatment decision-making capacity of hospitalized patients with schizophrenia; to explore any possible association with demographic and clinical variables; and to compare treatment decision-making capacity of patients with schizophrenia with medical patients' capacity...
January 2017: Psychiatrikē, Psychiatriki
https://www.readbyqxmd.com/read/28539303/pharma-websites-and-professionals-only-information-the-implications-for-patient-trust-and-autonomy
#7
Mark Alan Graber, Eliyakim Hershkop, Rachel Ilana Graber
BACKGROUND: Access to information is critical to a patient's valid exercise of autonomy. One increasingly important source of medical information is the Internet. Individuals often turn to drug company ("pharma") websites to look for drug information. OBJECTIVE: The objective of this study was to determine whether there is information on pharma websites that is embargoed: Is there information that is hidden from the patient unless she attests to being a health care provider? We discuss the implications of our findings for health care ethics...
May 24, 2017: Journal of Medical Internet Research
https://www.readbyqxmd.com/read/28538923/policy-of-labor-management-and-health-education-a-progesus-experience
#8
Carinne Magnago, Celia Regina Pierantoni, Tania França, Swheelen de Paula Vieira, Rômulo Gonçalves de Miranda, Dayane Nunes Nascimento
Aim: To evaluate the stage of labor management and education policies in municipal and state health secretariats (SMS and SES, respectively), having as reference the adherence to a qualification and structuring program of work management and education in the Unified Health System. Method: A descriptive and quantitative study, developed with 519 representatives from the Human Resources (HR) area of SMS and SES, through a survey composed of 56 questions, via a computer-assisted telephone interview in 2012...
May 2017: Ciência & Saúde Coletiva
https://www.readbyqxmd.com/read/28538807/professional-autonomy-and-nursing-representations-of-health-professionals
#9
Érick Igor Dos Santos, Yasmin Rayanne Alves, Aline Cerqueira Santos Santana da Silva, Antonio Marcos Tosoli Gomes
Objective: To analyse the social representations of the professional autonomy of nurses and nursing for non-nursing health professionals. Methods: This is a qualitative study based on the theory of social representations. Fifty-three non-nursing professionals of a municipal hospital participated in this study. Data were collected between March and April 2015, from hierarchical free evocations using the inductor terms, "professional autonomy of nurses" and "nursing"...
May 18, 2017: Revista Gaúcha de Enfermagem
https://www.readbyqxmd.com/read/28538797/-evaluation-of-municipal-administration-of-healthcare-actions-for-the-elderly
#10
Keila Cristina Rausch Pereira, Josimari Telino de Lacerda, Sonia Natal
Aging individuals can experience frailty and loss of independence and autonomy. Healthcare for the elderly should help them recover their health and maintain their autonomy, in keeping with the Brazilian Statute of the Elderly and underlying policies in the Brazilian Unified National Health System. Based on a multiple case study, the objective was to assess the capacity of municipal administration to provide healthcare for the elderly. The assessment was oriented by an evaluative model validated by experts in administration and evaluation, with 16 indicators analyzing political, organizational, technical, and operational factors...
May 18, 2017: Cadernos de Saúde Pública
https://www.readbyqxmd.com/read/28537853/dermatology-discharge-continuity-clinic-enhances-resident-autonomy-and-insight-into-transitions-of-care-competencies-a-cross-sectional-survey-study
#11
Jasmine Rana, Arash Mostaghimi
Dermatology residents perform consults on hospitalized patients, but are often limited in their ability to follow-up with these patients after discharge, leading to inadequate follow-up and understanding of post-discharge transitions of care. In 2013, a discharge continuity clinic (DCC) staffed by the inpatient consult dermatology resident and attending dermatologist was established at one of the four adult hospital sites residents rotate through in the Harvard Combined Dermatology Residency Program. Resident perceptions about the DCC and their educational experience on inpatient consult rotations with a DCC and without a DCC were obtained using a cross-sectional survey instrument in June 2016...
May 15, 2017: Dermatology Online Journal
https://www.readbyqxmd.com/read/28537834/when-respecting-autonomy-is-harmful-a-clinically-useful-approach-to-the-nocebo-effect
#12
John T Fortunato, Jason Adam Wasserman, Daniel Londyn Menkes
Nocebo effects occur when an adverse effect on the patient arises from the patient's own negative expectations. In accordance with informed consent, providers often disclose information that results in unintended adverse outcomes for the patient. While this may adhere to the principle of autonomy, it violates the doctrine of "primum non nocere," given that side-effect disclosure may cause those side effects. In this article we build off previous work, particularly by Wells and Kaptchuk ( 2012 ) and by Cohen ( 2013 ), to suggest ethical guidelines that permit nondisclosure in the case when a nocebo effect is likely to occur on of the basis of nonmaleficence...
June 2017: American Journal of Bioethics: AJOB
https://www.readbyqxmd.com/read/28537828/relational-autonomy-maternalism-and-the-nocebo-effect
#13
Laura Specker Sullivan, Fay Niker
No abstract text is available yet for this article.
June 2017: American Journal of Bioethics: AJOB
https://www.readbyqxmd.com/read/28537821/to-disclose-or-not-to-disclose-when-fear-of-nocebo-effects-infringes-upon-autonomy
#14
Hadley Bryan, Veljko Dubljević
No abstract text is available yet for this article.
June 2017: American Journal of Bioethics: AJOB
https://www.readbyqxmd.com/read/28537089/federated-health-information-architecture-enabling-healthcare-providers-and-policymakers-to-use-data-for-decision-making
#15
Manish Kumar, Javed Mostafa, Rohit Ramaswamy
Health information systems (HIS) in India, as in most other developing countries, support public health management but fail to enable healthcare providers to use data for delivering quality services. Such a failure is surprising, given that the population healthcare data that the system collects are aggregated from patient records. An important reason for this failure is that the health information architecture (HIA) of the HIS is designed primarily to serve the information needs of policymakers and program managers...
January 1, 2017: HIM Journal
https://www.readbyqxmd.com/read/28535841/the-epigenetic-effects-of-assisted-reproductive-technologies-ethical-considerations
#16
M-C Roy, C Dupras, V Ravitsky
The use of assisted reproductive technologies (ART) has increased significantly, allowing many coping with infertility to conceive. However, an emerging body of evidence suggests that ART could carry epigenetic risks for those conceived through the use of these technologies. In accordance with the Developmental Origins of Health and Disease hypothesis, ART could increase the risk of developing late-onset diseases through epigenetic mechanisms, as superovulation, fertilization methods and embryo culture could impair the embryo's epigenetic reprogramming...
May 24, 2017: Journal of Developmental Origins of Health and Disease
https://www.readbyqxmd.com/read/28535316/residents-confidence-providing-primary-care-with-behavioral-health-integration
#17
Patrick Hemming, Amber Hewitt, Joseph J Gallo, Rodger Kessler, R B Levine
BACKGROUND AND OBJECTIVES: Behavioral health integration (BHI) entails integrated behavioral health clinicians (IBHCs) providing care-generally for mental health and substance abuse disorders and behavioral comorbidity- within the operational functioning of primary care. Because limited data exist regarding BHI in residency, we studied its impact on resident education by examining whether increased behavioral health (BH) co-management improved residents' perceived ability to treat BH conditions...
May 2017: Family Medicine
https://www.readbyqxmd.com/read/28534247/associations-between-parenting-factors-motivation-and-physical-activity-in-overweight-african-american-adolescents
#18
Lauren E Huffman, Dawn K Wilson, M Lee Van Horn, Russell R Pate
BACKGROUND: Positive parenting practices and environmental supports have been linked to physical activity (PA) levels in youth, yet factors associated with positive parenting styles have been understudied in African American adolescents. PURPOSE: This study expands on previous literature by examining associations between motivation, parenting factors associated with Self-Determination Theory's psychological needs (competence, autonomy, and relatedness) including authoritative parenting, autonomy support and emotional and tangible support, and adolescent moderate-to-vigorous PA (MVPA) and light PA (LPA)...
May 22, 2017: Annals of Behavioral Medicine: a Publication of the Society of Behavioral Medicine
https://www.readbyqxmd.com/read/28533984/predictive-ability-of-the-mini-nutritional-assessment-short-form-mna-sf-in-a-free-living-elderly-population-a-cross-sectional-study
#19
Raimunda Montejano Lozoya, Nieves Martínez-Alzamora, Gonzalo Clemente Marín, Silamani J A Guirao-Goris, Rosa María Ferrer-Diego
BACKGROUND: Various scales have been used to perform a quick and first level nutritional assessment, and the MNA is one of the most used and recommended by experts in the elderly in all areas. This scale has a short form, the MNA-SF, revised and validated in 2009, which has two versions: the BMI-MNA-SF contains the first six items of the full scale including Body Mass Index while the CC-MNA-SF includes Calf Circumference instead of BMI. OBJECTIVE: To evaluate the predictive ability for nutritional status of the two versions of the MNA-SF against the MNA in free-living elderly in the province of Valencia...
2017: PeerJ
https://www.readbyqxmd.com/read/28532859/humility-when-responding-to-the-abuse-of-adults-with-mental-disabilities
#20
Paul Skowron
Legal theorists often reduce the ethics of responding to the abuse of another person to a clash between the principles of autonomy and protection. This reduction is a problem. Responding to suspected abuse requires humility - the potential responder must be aware of and respect their own limits - but humility cannot be usefully reduced to protection and autonomy. Using examples from the Court of Protection of England and Wales, this article examines the different ways that someone responding to abuse should respect their own limits, and suggests that a failure to do so will disproportionately affect people with mental disabilities...
May 19, 2017: International Journal of Law and Psychiatry
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