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https://www.readbyqxmd.com/read/29284551/family-care-conferences-in-long-term-care-exploring-content-and-processes-in-end-of-life-communication
#1
Pamela Durepos, Sharon Kaasalainen, Tamara Sussman, Deborah Parker, Kevin Brazil, Susan Mintzberg, Alyssa Te
OBJECTIVE: End-of-life (EoL) communication in long-term care (LTC) homes is often inadequate and delayed, leaving residents dying with unknown preferences or goals of care. Poor communication with staff contributes to families feeling unprepared, distressed, and dissatisfied with care. Family care conferences (FCCs) aim to increase structured systematic communication around goals and plans for the end of life. As part of the Strengthening a Palliative Approach to Care (SPA-LTC) project, FCCs were implemented in four LTC sites in Ontario, Canada...
December 29, 2017: Palliative & Supportive Care
https://www.readbyqxmd.com/read/29244119/is-social-work-prepared-for-diversity-in-hospice-and-palliative-care
#2
Christine M Rine
The purpose of this article is to assess current and future trends in hospice and palliative care with the objective of informing culturally appropriate best practice for social work. Concern for the intersectionality of racial, ethnic, social, and other differences in end-of-life (EOL) care is imperative given the ever growing range of diversity characteristics among the increasing aging populations in the United States. A review of literature from the current decade that is pertinent to the profession contributes to the ability of social work to consider evidence and build agreement germane to EOL practice settings...
December 13, 2017: Health & Social Work
https://www.readbyqxmd.com/read/29221475/a-critical-realist-evaluation-of-a-music-therapy-intervention-in-palliative-care
#3
Sam Porter, Tracey McConnell, Mike Clarke, Jenny Kirkwood, Naomi Hughes, Lisa Graham-Wisener, Joan Regan, Miriam McKeown, Kerry McGrillen, Joanne Reid
BACKGROUND: Music therapy is increasingly used as an adjunct therapy to support symptom management in palliative care. However, studies to date have paid little attention to the processes that lead to changes in patient outcomes. To fill this gap, we examined the processes and experiences involved in the introduction of music therapy as an adjunct complementary therapy to palliative care in a hospice setting in the United Kingdom (UK). METHODS: Using a realistic evaluation approach, we conducted a qualitative study using a variety of approaches...
December 8, 2017: BMC Palliative Care
https://www.readbyqxmd.com/read/29212346/palliative-care-providers-practices-surrounding-psychological-distress-screening-and-treatment-a-national-survey
#4
Elissa Kozlov, Claude Eghan, Sheila Moran, Keela Herr, M Carrington Reid
OBJECTIVE: To investigate how inpatient palliative care teams nationwide currently screen for and treat psychological distress. METHODS: A web-based survey was sent to inpatient palliative care providers of all disciplines nationwide asking about their practice patterns regarding psychological assessment and treatment. Descriptive statistics were used to characterize the sample and responses, and analysis of variance was conducted to determine whether certain disciplines were more likely to utilize specific treatment modalities...
January 1, 2017: American Journal of Hospice & Palliative Care
https://www.readbyqxmd.com/read/29172890/challenges-to-advance-care-planning-among-multidisciplinary-health-professionals-in-china
#5
Mei Ching Lee, Roger Auth, Katherine A Hinderer, Carla S Alexander
BACKGROUND: Advance care planning (ACP) is a critical component of quality end-of-life care. Little is known regarding the cultural influences on health professionals' attitudes toward the discussion of ACP in China. OBJECTIVE: To better understand attitudes toward ACP among Chinese healthcare professionals in China and the influence of cultural factors such as filial piety, or xiào. METHODS: A mixed methods study was used. This study reports the results of a descriptive cross-sectional survey of physicians, nurses and social workers with experience in palliative and end-of-life care...
November 2, 2017: International Journal of Palliative Nursing
https://www.readbyqxmd.com/read/29145313/the-importance-of-family-caregiving-to-achieving-palliative-care-at-home-a-case-report-of-end-of-life-breast-cancer-in-an-area-struck-by-the-2011-fukushima-nuclear-crisis-a-case-report
#6
Akihiko Ozaki, Masaharu Tsubokura, Claire Leppold, Toyoaki Sawano, Manabu Tsukada, Tsuyoshi Nemoto, Kazuhiro Kosugi, Yoshitaka Nishikawa, Shigeaki Kato, Hiromichi Ohira
RATIONALE: The primary setting of palliative care has shifted from inpatient care to patients' residences. Family caregiving is essential for patients with life-limiting illnesses to receive palliative care at home, however little information is available regarding potential interventions to achieve palliative homecare for those without sufficient support from family members in various settings, including disasters. PATIENT CONCERNS: In March 2011, Fukushima, Japan experienced an earthquake, tsunami and nuclear disaster...
November 2017: Medicine (Baltimore)
https://www.readbyqxmd.com/read/29123350/evaluation-of-community-based-palliative-care-services-perspectives-from-various-stakeholders
#7
Venugopal Vinayagamoorthy, Elayaperumal Suguna, Amol R Dongre
Background: As a part of Memorandum of Understanding with Tamil Nadu Institute of Palliative Medicine, community-based palliative care services have been initiated 2 years back in our urban field practice areas. Aim: The aim of this study was to evaluate the home care service, a major component of our community-based palliative care, with a view to identify the unmet needs of the services rendered for decision-making about the program. Materials and Methods: It was a descriptive qualitative design carried out by the authors trained in qualitative research methods...
October 2017: Indian Journal of Palliative Care
https://www.readbyqxmd.com/read/29089255/huntington-disease-care-from-the-past-to-the-present-to-the-future
#8
T A Mestre, K Shannon
INTRODUCTION: Huntington disease is a progressive neurodegenerative disorder without a cure. Its clinical presentation makes complex the care of patients with HD, further impacted by the progressive loss of dependence and disability. Intuitively, HD management calls for multispecialty care. METHODS: Literature review and expert-based statement. RESULTS: Chorea is the only indication for symptomatic treatments in HD. Surgical therapies are experimental, and exercise-based physical interventions have been assessed but in small feasibility studies...
August 10, 2017: Parkinsonism & related Disorders
https://www.readbyqxmd.com/read/29033267/palliative-care-in-interstitial-lung-disease-living-well
#9
REVIEW
Michael Kreuter, Elisabeth Bendstrup, Anne-Marie Russell, Sabrina Bajwah, Kathleen Lindell, Yochai Adir, Crystal E Brown, Greg Calligaro, Nicola Cassidy, Tamera J Corte, Klaus Geissler, Azza Adel Hassan, Kerri A Johannson, Ronaldo Kairalla, Martin Kolb, Yasuhiro Kondoh, Sylvia Quadrelli, Jeff Swigris, Zarir Udwadia, Athol Wells, Marlies Wijsenbeek
Progressive fibrotic interstitial lung diseases (ILDs) are characterised by major reductions in quality of life and survival and have similarities to certain malignancies. However, palliative care expertise is conspicuously inaccessible to many patients with ILD. Unmet patient and caregiver needs include effective pharmacological and psychosocial interventions to improve quality of life throughout the disease course, sensitive advanced care planning, and timely patient-centred end-of-life care. The incorrect perception that palliative care is synonymous with end-of-life care, with no role earlier in the course of ILD, has created a culture of neglect...
December 2017: Lancet Respiratory Medicine
https://www.readbyqxmd.com/read/28920137/analysing-the-impact-of-a-case-management-model-on-the-specialised-palliative-care-multi-professional-team
#10
Julia Strupp, Christina Dose, Ulrike Kuhn, Maren Galushko, Anne Duesterdiek, Nicole Ernstmann, Holger Pfaff, Christoph Ostgathe, Raymond Voltz, Heidrun Golla
PURPOSE: Palliative care (PC) involves many health care providers leading to a high complexity of structures that requires efficient coordination as provided by case management (CM). Our study aimed to evaluate the effects of CM newly implemented in a specialised palliative care unit by evaluating team members' tasks and time resources before (T0) and after implementation (T1). It was hypothesised that team members would be able to spend less time on organisational and administrative tasks and more time on patient care...
September 17, 2017: Supportive Care in Cancer: Official Journal of the Multinational Association of Supportive Care in Cancer
https://www.readbyqxmd.com/read/28844623/development-and-field-test-of-an-audit-tool-and-tracer-methodology-for-clinician-assessment-of-quality-in-end-of-life-care
#11
Marilyn Bookbinder, Amandine Hugodot, Katherine Freeman, Peter Homel, Elisabeth Santiago, Alexa Riggs, Maggie Gavin, Alice Chu, Ellen Brady, Pauline Lesage, Russell K Portenoy
CONTEXT: Quality improvement in end-of-life care generally acquires data from charts or caregivers. "Tracer" methodology, which assesses real-time information from multiple sources, may provide complementary information. OBJECTIVES: To develop a valid brief audit tool that can guide assessment and rate care when used in a clinician tracer to evaluate the quality of care for the dying patient. METHODS: To identify items for a brief audit tool, 248 items were created to evaluate overall quality, quality in specific content areas (e...
August 24, 2017: Journal of Pain and Symptom Management
https://www.readbyqxmd.com/read/28828922/preoperative-counseling-in-salvage-total-laryngectomy-content-analysis-of-electronic-medical-records
#12
Nikhila Raol, Elizabeth Lilley, Zara Cooper, Jayme Dowdall, Megan A Morris
Objective To study preoperative counseling in patients undergoing salvage total laryngectomy (STL). Study Design Case series with chart review. Setting Tertiary care academic hospital. Subjects and Methods We reviewed charts of patients ≥18 years undergoing STL between 2005 and 2015. Fifty-eight patients were identified. Notes written within 2 months prior to surgery by head and neck surgical oncologists, radiation oncologists, medical oncologists, speech-language pathologists, social workers, and nurse practitioners were extracted and coded into 4 categories...
October 2017: Otolaryngology—Head and Neck Surgery
https://www.readbyqxmd.com/read/28827941/analytical-study-of-short-and-long-term-results-of-home-based-palliative-care-services-to-cancer-patients
#13
Dhritiman Datta, Gautam Majumdar, Shiromani Debbarma, Badan Janapati, Amit Kumar Datta
AIMS AND OBJECT: Identification and selection of patients suffering from terminal stage in bed ridden condition upto village level and to determine the type of palliative care need. Also to asses the effectiveness of the palliative care provided at the bed side. MATERIALS: All registered patients under palliative care of Regional Cancer Centre, Agartala from 2014 April to 2016 March. METHODS: A retrospective study. Ten teams comprising of doctors, nurses, pharmacists & Social Workers were trained and engaged in this study for symptom assessment and pain relief of palliative patients...
July 2017: Indian Journal of Palliative Care
https://www.readbyqxmd.com/read/28827063/beyond-simple-planning-existential-dimensions-of-conversations-with-patients-at-risk-of-dying-from-heart-failure
#14
Valerie Marie Schulz, Allison M Crombeen, Denise Marshall, Joshua Shadd, Kori A LaDonna, Lorelei Lingard
CONTEXT: Despite the recent promotion of communication guides to improve decision making with patients nearing the end of their lives, these conversations remain challenging. Deeper and more comprehensive understanding of communication barriers that undermine discussions and decisions with patients at risk of dying from heart failure (HF) is vital for informing communication in health care. OBJECTIVES: To explore experiences and perspectives of patients with advanced HF, their caregivers, and providers, regarding conversations for patients at risk of dying from HF...
November 2017: Journal of Pain and Symptom Management
https://www.readbyqxmd.com/read/28820270/second-line-treatment-options-for-pancreatic-cancer
#15
Frank C Passero, Muhammad Wasif Saif
Patients with advanced pancreatic cancer (APC) refractory to first-line therapy have a dismal prognosis and limited therapeutic options, with only one option consisting of nanoliposomal irinotecan in combination with fluorouracil and folinic acid which was approved by FDA based upon results of the phase III NAPOLI-1 study. Areas covered: We performed a literature search for relevant published clinical trials, abstracts of trials in progress and ongoing or planned trials for the second line treatment of APC using Pubmed...
October 2017: Expert Opinion on Pharmacotherapy
https://www.readbyqxmd.com/read/28813191/effect-and-efficiency-of-an-embedded-palliative-care-nurse-practitioner-in-an-oncology-clinic
#16
Anne M Walling, Sarah F D'Ambruoso, Jennifer L Malin, Sara Hurvitz, Ann Zisser, Anne Coscarelli, Robin Clarke, Andrew Hackbarth, Christopher Pietras, Frances Watts, Bruce Ferrell, Samuel Skootsky, Neil S Wenger
PURPOSE: To test a simultaneous care model for palliative care for patients with advanced cancer by embedding a palliative care nurse practitioner (NP) in an oncology clinic. METHODS: We evaluated the effect of the intervention in two oncologists' clinics beginning March 2014 by using implementation strategies, including use of a structured referral mechanism, routine symptom screening, integration of a psychology-based cancer supportive care center, implementation team meetings, team training, and a metrics dashboard for continuous quality improvement...
September 2017: Journal of Oncology Practice
https://www.readbyqxmd.com/read/28803085/palliative-care-in-south-africa
#17
Cornelia Drenth, Zodwa Sithole, Esme Pudule, Sheryl Wüst, Nicola GunnClark, Liz Gwyther
The Hospice Palliative Care Association (HPCA) was established in 1987 by hospices in South Africa who felt the need for a national body to share best practices and to promote palliative care services in South Africa. HPCA supports member hospices in providing palliative care to people of any age with a life-limiting condition. HPCA has the further aim to ensure access to palliative care in settings other than member hospices. Many projects were launched over the years to influence policy, and to educate medical practitioners, nurses, social workers, theologians, and community caregiver; and to develop services...
August 9, 2017: Journal of Pain and Symptom Management
https://www.readbyqxmd.com/read/28801002/legal-support-for-palliative-care-patients
#18
Tamar Ezer, Naomi Burke-Shyne, Kiera Hepford
CONTEXT: Palliative care patients face legal issues which impact their quality of life. Legal support, embedded in holistic palliative care services, has developed globally over the last decade to address this. OBJECTIVES: This paper aims to trace the origins of legal support for palliative care patients, detail models of legal support, and describe achievements and challenges. METHODS: The paper draws on years of work in this area, as well as the available literature...
August 8, 2017: Journal of Pain and Symptom Management
https://www.readbyqxmd.com/read/28768679/supporting-family-carers-in-home-based-end-of-life-care-using-participatory-action-research-to-develop-a-training-programme-for-support-workers-and-volunteers
#19
Glenys Caswell, Beth Hardy, Gail Ewing, Sheila Kennedy, Jane Seymour
BACKGROUND: Family carers are crucial in enabling dying people to stay at home, but are often not prepared for their caring role, receiving little support from formal health and social care services. It is increasingly likely that any help or support family carers receive will be provided by a third sector organisation on either a voluntary basis or by untrained carer support workers. OBJECTIVES: To produce a training programme designed to equip carer support workers and volunteers with the basic skills and knowledge needed to support family carers...
August 2, 2017: BMJ Supportive & Palliative Care
https://www.readbyqxmd.com/read/28754044/relational-approach-to-ethics-and-quality-improvement-in-institutional-care-for-people-with-dementia
#20
Dana Hradcová
BACKGROUND: Autonomy has become a key organizing principle in the official and expert discourses of the social services focused on strengthening of clients' independence and self-sufficiency. While "caring" has been seen as a threat to the autonomy of an individual, the care dependency and need for palliative care for people with dementia living in residential institutions are growing. METHODS: Participatory action research was realized in 9 homes providing services for people with dementia with the aim to improve the quality of care...
October 2017: Annals of Palliative Medicine
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