keyword
MENU ▼
Read by QxMD icon Read
search

Pseudonymisation

keyword
https://www.readbyqxmd.com/read/27764135/linking-data-for-mothers-and-babies-in-de-identified-electronic-health-data
#1
Katie Harron, Ruth Gilbert, David Cromwell, Jan van der Meulen
OBJECTIVE: Linkage of longitudinal administrative data for mothers and babies supports research and service evaluation in several populations around the world. We established a linked mother-baby cohort using pseudonymised, population-level data for England. DESIGN AND SETTING: Retrospective linkage study using electronic hospital records of mothers and babies admitted to NHS hospitals in England, captured in Hospital Episode Statistics between April 2001 and March 2013...
2016: PloS One
https://www.readbyqxmd.com/read/27751180/legal-assessment-tool-lat-an-interactive-tool-to-address-privacy-and-data-protection-issues-for-data-sharing
#2
Wolfgang Kuchinke, Christian Krauth, René Bergmann, Töresin Karakoyun, Astrid Woollard, Irene Schluender, Benjamin Braasch, Martin Eckert, Christian Ohmann
BACKGROUND: In an unprecedented rate data in the life sciences is generated and stored in many different databases. An ever increasing part of this data is human health data and therefore falls under data protected by legal regulations. As part of the BioMedBridges project, which created infrastructures that connect more than 10 ESFRI research infrastructures (RI), the legal and ethical prerequisites of data sharing were examined employing a novel and pragmatic approach. METHODS: We employed concepts from computer science to create legal requirement clusters that enable legal interoperability between databases for the areas of data protection, data security, Intellectual Property (IP) and security of biosample data...
July 7, 2016: BMC Medical Informatics and Decision Making
https://www.readbyqxmd.com/read/27729352/evolution-of-primary-care-databases-in-uk-a-scientometric-analysis-of-research-output
#3
Paraskevas Vezyridis, Stephen Timmons
OBJECTIVE: To identify publication and citation trends, most productive institutions and countries, top journals, most cited articles and authorship networks from articles that used and analysed data from primary care databases (CPRD, THIN, QResearch) of pseudonymised electronic health records (EHRs) in UK. METHODS: Descriptive statistics and scientometric tools were used to analyse a SCOPUS data set of 1891 articles. Open access software was used to extract networks from the data set (Table2Net), visualise and analyse coauthorship networks of scholars and countries (Gephi) and density maps (VOSviewer) of research topics co-occurrence and journal cocitation...
October 11, 2016: BMJ Open
https://www.readbyqxmd.com/read/27616950/effect-of-named-accountable-gps-on-continuity-of-care-protocol-for-a-regression-discontinuity-study-of-a-national-policy-change
#4
Therese Lloyd, Adam Steventon
INTRODUCTION: Increasing continuity of care has been identified as a strategy to improve patient outcomes, but previous studies of integrated care have tended to focus on pilot areas, which limit their generalisability and the ability to determine in which contexts integrated care was most successful. OBJECTIVE: This study protocol describes a quantitative evaluation of a reform in England that introduced named, accountable general practitioners for all National Health Service (NHS) patients aged 75 years or over...
2016: International Journal of Integrated Care
https://www.readbyqxmd.com/read/27518117/-incidence-of-knee-injuries-numbers-for-outpatient-and-inpatient-care-in-germany
#5
O Schneider, H-P Scharf, T Stein, S Knapstein, C Hermann, J Flechtenmacher
BACKGROUND: Musculoskeletal illnesses and injuries are among the most common ailments in the Federal Republic of Germany. In 2008 they generated costs of nearly 29 billion euros. Figures about their incidence and prevalence are necessary for a demand-oriented planning of future patient-centred care. METHOD: Pseudonymised data of 3.8 million people insured by AOK Baden-Württemberg between 2008 and 2013 were evaluated. The diagnoses were assigned to nine injury groups...
August 12, 2016: Der Orthopäde
https://www.readbyqxmd.com/read/27504235/health-related-quality-of-life-for-young-people-receiving-dialectical-behaviour-therapy-dbt-a-routine-outcome-monitoring-pilot
#6
M Swales, R A B Hibbs, L Bryning, R P Hastings
PURPOSE: Adults presenting with borderline personality disorder (BPD) score poorly on measures of health related quality of life (HRQoL). Little is known about HRQoL in adolescents with BPD type presentations and how treatment impacts quality of life. Our primary aim was to use routinely collected quality-of-life outcome measures pre and post-treatment in dialectical behaviour therapy (DBT) for adolescents to address this gap. Secondary aims were to benchmark these data against EuroQol 5 dimensions (EQ-5D™) outcomes for clients treated in clinical trials and to assess the potential of the EQ-5D™ as a benchmarking tool...
2016: SpringerPlus
https://www.readbyqxmd.com/read/27441823/-which-back-pain-patients-benefit-from-multidisciplinary-pain-management-a-comparative-cost-analysis-using-claims-data-of-statutory-health-insurance
#7
S Behrendt, H Kulas, U Marschall, M Steffens, G Schiffhorst, H-H Bleß
Aim: Multidisciplinary pain therapy (MPT) is considered as best practice for treating patients with chronical back pain. Several studies showed the cost effectiveness of interdisciplinary treatment. The aim of the present study is to identify patient characteristics that, under condition of MMT, can be associated with favourable cost trajectories after intervention. We assume that an improved health status leads to less health care utilisation. Furthermore, we aim at identifying those patients with back pain without MPT for whom we can expect favourable cost trajectories...
July 21, 2016: Das Gesundheitswesen
https://www.readbyqxmd.com/read/27357194/regional-variation-of-patient-behaviour-and-reasons-for-consultation-in-the-general-practice-of-northern-germany-protocol-for-an-observational-study
#8
Ingmar Schäfer, Heike Hansen, Nadine Pohontsch, Laura Bole, Hans-Otto Wagner, Miriam Führ, Dagmar Lühmann, Martin Scherer
INTRODUCTION: Inappropriate supply and an increasing demand on the healthcare system have been of concern for health policy in Germany for at least 15 years. In the primary care setting, this especially relates to an undersupply of general practitioners (GPs) in the countryside. In addition, there seem to be other regional differences, for example, a difference in accessing primary and secondary care between rural and urban areas. Despite these findings, regional differences in health services have not been studied extensively in Germany...
2016: BMJ Open
https://www.readbyqxmd.com/read/27203791/effects-of-the-german-skin-cancer-screening-program-on-melanoma-incidence-and-indicators-of-disease-severity
#9
F Trautmann, F Meier, A Seidler, J Schmitt
BACKGROUND: In Germany a nationwide screening program for adults age ≥35 years was introduced in 07/2008. Evidence on utilisation and effects is limited. METHODS: This analysis is based on pseudonymised outpatient routine data of a German health insurance company covering data of >2 million individuals from Saxony for the years 2005-2012. Melanoma and non-melanoma skin cancer (NMSC) cases were identified using an ICD-10-code based algorithm. Cross-sectional and longitudinal analyses were applied to determine the utilisation of the screening program and effects on skin cancer incidence and disease severity as a proxy for prognosis...
May 20, 2016: British Journal of Dermatology
https://www.readbyqxmd.com/read/27142361/improving-care-and-research-electronic-data-trust-antwerp-icaredata-a-research-database-of-linked-data-on-out-of-hours-primary-care
#10
Annelies Colliers, Stefaan Bartholomeeusen, Roy Remmen, Samuel Coenen, Barbara Michiels, Hilde Bastiaens, Paul Van Royen, Veronique Verhoeven, Philip Holmgren, Bernard De Ruyck, Hilde Philips
BACKGROUND: Primary out-of-hours care is developing throughout Europe. High-quality databases with linked data from primary health services can help to improve research and future health services. METHODS: In 2014, a central clinical research database infrastructure was established (iCAREdata: Improving Care And Research Electronic Data Trust Antwerp, www.icaredata.eu ) for primary and interdisciplinary health care at the University of Antwerp, linking data from General Practice Cooperatives, Emergency Departments and Pharmacies during out-of-hours care...
2016: BMC Research Notes
https://www.readbyqxmd.com/read/26856942/the-management-and-outcomes-of-fingolimod-first-dose-cardiac-monitoring-in-uk-patients-with-relapsing-remitting-multiple-sclerosis
#11
Joe Datt, Laura Baldock, Emily Pull, Bryn Webber
BACKGROUND: Patients initiated on Gilenya (fingolimod) require cardiovascular monitoring for 6h after the first dose. Novartis has engaged an independent provider (Regent's Park Heart Clinics [RPHC]) to provide a first dose observation (FDO) service to UK neurologists. OBJECTIVES: To describe routinely-documented clinical observations (heart rate [HR], blood pressure [BP], cardiac rhythm [CR]) and outcomes from the RPHC fingolimod FDO service. METHODS: Pseudonymised data (clinical observations pre-dose and for 6h after the first dose and any requirement for extended monitoring) were collected retrospectively from RPHC records for the first 850 RPHC FDO episodes (undertaken Jul-2012 to Jan-2015)...
January 2016: Multiple Sclerosis and related Disorders
https://www.readbyqxmd.com/read/26801463/patient-characteristics-associated-with-risk-of-first-hospital-admission-and-readmission-for-acute-exacerbation-of-chronic-obstructive-pulmonary-disease-copd-following-primary-care-copd-diagnosis-a-cohort-study-using-linked-electronic-patient-records
#12
L C Hunter, R J Lee, I Butcher, C J Weir, C M Fischbacher, D McAllister, S H Wild, N Hewitt, R M Hardie
OBJECTIVES: To investigate patient characteristics of an unselected primary care population associated with risk of first hospital admission and readmission for acute exacerbation of chronic obstructive pulmonary disease (AECOPD). DESIGN: Retrospective open cohort using pseudonymised electronic primary care data linked to secondary care data. SETTING: Primary care; Lothian (population approximately 800,000), Scotland. PARTICIPANTS: Data from 7002 patients from 72 general practices with a COPD diagnosis date between 2000 and 2008 recorded in their primary care record...
2016: BMJ Open
https://www.readbyqxmd.com/read/26547084/validation-and-application-of-a-core-set-of-patient-relevant-outcome-domains-to-assess-the-effectiveness-of-multimodal-pain-therapy-vapain-a-study-protocol
#13
MULTICENTER STUDY
Ulrike Kaiser, Christian Kopkow, Stefanie Deckert, Rainer Sabatowski, Jochen Schmitt
INTRODUCTION: Multimodal pain therapy (MPT) has been established accounting for biopsychosocial consideration in diagnostic and therapy. MPT seems to be effective, but comparability of studies is limited due to diversity of study designs and outcome measurements. The presented study aims to develop a core outcome set consisting of a minimum of outcome measures deemed necessary for medical and therapeutic decision-making, which must be measured in all clinical trials and non-randomised intervention studies...
2015: BMJ Open
https://www.readbyqxmd.com/read/26297363/data-linkage-errors-in-hospital-administrative-data-when-applying-a-pseudonymisation-algorithm-to-paediatric-intensive-care-records
#14
MULTICENTER STUDY
Gareth Hagger-Johnson, Katie Harron, Tom Fleming, Ruth Gilbert, Harvey Goldstein, Rebecca Landy, Roger C Parslow
OBJECTIVES: Our aim was to estimate the rate of data linkage error in Hospital Episode Statistics (HES) by testing the HESID pseudoanonymisation algorithm against a reference standard, in a national registry of paediatric intensive care records. SETTING: The Paediatric Intensive Care Audit Network (PICANet) database, covering 33 paediatric intensive care units in England, Scotland and Wales. PARTICIPANTS: Data from infants and young people aged 0-19 years admitted between 1 January 2004 and 21 February 2014...
August 21, 2015: BMJ Open
https://www.readbyqxmd.com/read/26069072/socioeconomic-deprivation-independently-predicts-painful-diabetic-neuropathy-in-type-2-diabetes
#15
S G Anderson, R P Narayanan, N S Malipatil, H Roberts, G Dunn, A H Heald
OBJECTIVE: Painful peripheral neuropathy in people with type 2 diabetes is a disabling complication. We explored associations of this condition with socioeconomic deprivation. RESEARCH DESIGN AND METHODS: The Townsend index of socioeconomic deprivation was examined in the pseudonymised GP records of 15388 (44.1% female) individuals with type 2 diabetes in the Cheshire county of England, and related to prevalence of drug treated painful diabetic neuropathy. We also analysed prescription trends with respect to pharmacotherapy for neuropathy pain relief...
July 2015: Experimental and Clinical Endocrinology & Diabetes
https://www.readbyqxmd.com/read/26040587/recognition-and-pseudonymisation-of-medical-records-for-secondary-use
#16
Johannes Heurix, Stefan Fenz, Antonio Rella, Thomas Neubauer
Health records rank among the most sensitive personal information existing today. An unwanted disclosure to unauthorised parties usually results in significant negative consequences for an individual. Therefore, health records must be adequately protected in order to ensure the individual's privacy. However, health records are also valuable resources for clinical studies and research activities. In order to make the records available for privacy-preserving secondary use, thorough de-personalisation is a crucial prerequisite to prevent re-identification...
March 2016: Medical & Biological Engineering & Computing
https://www.readbyqxmd.com/read/25714193/-deterministic-record-linkage-with-indirect-identifiers-data-of-the-berlin-myocardial-infarction-registry-and-the-aok-nordost-for-patients-with-myocardial-infarction
#17
B Maier, K Wagner, S Behrens, L Bruch, R Busse, D Schmidt, H Schühlen, R Thieme, H Theres
AIM OF THE STUDY: How can 2 pseudonymised data sets be linked? Using the example of data from the Berlin Myocardial Infarction Registry and from a German sickness fund (AOK Nordost) we will demonstrate how record linkage can be achieved without personal identifiers. METHODS: In different steps the method of deterministic record linkage with indirect identifiers: age, sex, hospital admission date and time, will be explained. RESULTS: We were able to show that 80...
February 2015: Das Gesundheitswesen
https://www.readbyqxmd.com/read/25622210/-linkage-of-statutory-health-insurance-data-with-those-of-a-hospital-information-system-feasible-but-also-useful
#18
C Ohlmeier, F Hoffmann, K Giersiepen, H Rothgang, R Mikolajczyk, H-J Appelrat, A Elsässer, E Garbe
AIM: Administrative data are increasingly being linked with other data sources for research purposes in the field of epidemiology and health services research abroad. In Germany, the direct linkage of routine data of statutory health insurance (SHI) providers with other data sources is complicated due to strict data protection requirements. The aim of this analysis was to evaluate an indirect linkage of SHI routine data with data of a hospital information system (HIS). METHODS: The dataset comprised data from 2004 to 2010 from 2 sickness funds and one HIS...
February 2015: Das Gesundheitswesen
https://www.readbyqxmd.com/read/25372654/-characteristics-of-health-care-provision-for-patients-in-out-of-hours-care-and-regular-care
#19
R Leutgeb, J Szecsenyi, T Kuehlein, G Laux
BACKGROUND: Little is known of the primary care characteristics in out of hours care centres (OOHC) as compared to regular care in Germany. Obviously the provision of patients in OOHC exhibits special characteristics concerning supply requirements, occupation and physician services, that require a first approximation. METHODS: The data retrieval is managed within the CONTENT (CONTinous morbidity registration Epidemiologic NeTwork) research network. The used software allows for classifying reasons for encounter (RFE), health-problems (diagnoses) and processes of care (prescriptions, referrals, hospitalisations) with the International Classification of Primary Care (ICPC)...
October 2015: Das Gesundheitswesen
https://www.readbyqxmd.com/read/25137757/patient-records-case-studies-return-to-the-source-how-health-researchers-are-already-using-pseudonymisation-of-data-at-source
#20
(no author information available yet)
No abstract text is available yet for this article.
May 30, 2014: Health Service Journal
keyword
keyword
18187
1
2
Fetch more papers »
Fetching more papers... Fetching...
Read by QxMD. Sign in or create an account to discover new knowledge that matter to you.
Remove bar
Read by QxMD icon Read
×

Search Tips

Use Boolean operators: AND/OR

diabetic AND foot
diabetes OR diabetic

Exclude a word using the 'minus' sign

Virchow -triad

Use Parentheses

water AND (cup OR glass)

Add an asterisk (*) at end of a word to include word stems

Neuro* will search for Neurology, Neuroscientist, Neurological, and so on

Use quotes to search for an exact phrase

"primary prevention of cancer"
(heart or cardiac or cardio*) AND arrest -"American Heart Association"