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ACT and Caregivers

Stefano Eleuteri, Maria C Norton, Federica Livi, Caterina Grano, Paolo Falaschi, Cristiano Violani, Fabio Lucidi, Caterina Lombardo
PURPOSE: Although most cross-sectional and longitudinal studies of children and adolescents have found a link between short duration of sleep and obesity, the literature related to adults provides a non-consensual framework. The aim of the present study was to examine the association between sleep quality and BMI in a population of caregivers looking after people suffering from dementia, with a view to identifying the moderating role of depressive symptoms in the relationship between sleep problems and BMI...
August 10, 2018: Eating and Weight Disorders: EWD
Roberta de Lima, Leila Brito Bergold, Joana Darc Fialho de Souza, Genesis de Souza Barbosa, Márcia de Assunção Ferreira
OBJECTIVE: to report the application of a participatory teaching-learning method on the themes death, dying, and associate care to highlight its applicability to the students. METHOD: report of application of participatory method in 22 students from the 6th period of the undergraduate program in Nursing and Obstetrics of a public university. The first stage focused on personal experiences of the students and the second on professional prospects. As resources for data collection we used music, drawing, drama, and photography...
2018: Revista Brasileira de Enfermagem
Terrence Montague, Bonnie Cochrane, Amédé Gogovor, John Aylen, Lesli Martin, Joanna Nemis-White
The overarching purpose of serial Health Care in Canada (HCIC) surveys of the adult Canadian public and a broad spectrum of healthcare professionals over the past two decades has been the development of an evidence-based map to inform strategic and clinical decisions to improve care and outcomes for Canadians. Recent surveys reveal a growing concern that medicare may require complete rebuilding or major strategic repairs. On the other hand, a majority of stakeholders perceive continuing underlying quality in our clinical care and look forward to both system- and patient-centred initiatives to improve future care...
April 2018: Healthcare Quarterly
Hashem Abu Tariah, Nasser Ghasham, Mohammad Alolayan, Bandar Alahmadi, Abdullah Alqarni
BACKGROUND: Engagement in religious and spiritual activities and expression are important to many people. Praying in a mosque is a major component of basic worship for Muslims. Riyadh has a population of more than six million people and more than 17 thousand mosques. OBJECTIVE: The purpose of this study was to explore wheelchair accessibility of mosques in Riyadh from the perspective of wheelchair users and their caregivers. METHODS: A survey was conducted to explore the opinions of wheelchair users and their caregivers regarding wheelchair accessibility of frequently used mosques...
2018: Work: a Journal of Prevention, Assessment, and Rehabilitation
Faadhilah Tayob, Sharon Moonsamy
 Exposure to social trauma influences the psychosocial experiences of vulnerable children. This affects their positive development, consequentially resulting in poor scholastic progress. South Africa's history of inequality and injustice has compounded the current social, educational and economic situation, highlighting the need for research on children in care. A paucity of published studies exists on caregiver facilitation of literacy skills among vulnerable populations in South African children's homes...
June 28, 2018: South African Journal of Communication Disorders. die Suid-Afrikaanse Tydskrif Vir Kommunikasieafwykings
Morten Skovdal, Rufurwokuda Maswera, Noah Kadzura, Constance Nyamukapa, Rebecca Rhead, Alison Wringe, Simon Gregson
This article examines how parental obligations of care intersect with HIV treatment-seeking behaviours and retention. It draws on qualitative data from eastern Zimbabwe, produced from 65 interviews. Drawing on theories of practice and care ethics, our analysis revealed that norms of parental obligation and care acted as key motivators for ongoing engagement with HIV services and treatment. Parents' attentiveness to the future needs of their children ( caring about), and sense of obligation ( taking care of) and improved ability to care ( caregiving) following treatment initiation, emerged as central to understanding their drive for self-care and engagement with HIV services...
July 1, 2018: Journal of Health Psychology
E López-Cerdá, J M Carmona-Torres, M A Rodríguez-Borrego
AIMS: To determine what social support is available in Spain to people over 65 who also dedicate hours of their time to the care of others who are older. BACKGROUND: Demographic and social changes are leading to growth of the population. The social support available to older people in the final stage of life affects their health. METHODS: A cross-sectional study was conducted involving the records of older, non-institutionalized individuals residing in Spain, obtained from the European Health Survey of 2014...
July 16, 2018: International Nursing Review
Geng Yang, Mingzhe Jiang, Wei Ouyang, Guangchao Ji, Haibo Xie, Amir M Rahmani, Pasi Liljeberg, Hannu Tenhunen
Facial expressions are among behavioral signs of pain that can be employed as an entry point to develop an automatic human pain assessment tool. Such a tool can be an alternative to the self-report method and particularly serve patients who are unable to self-report like patients in the Intensive Care Unit and minors. In this paper, a wearable device with a bio-sensing facial mask is proposed to monitor pain intensity of a patient by utilizing facial surface electromyogram (sEMG). The wearable device works as a wireless sensor node and is integrated into an Internet of Things system for remote pain monitoring...
November 22, 2017: IEEE Journal of Biomedical and Health Informatics
Ritabelle Fernandes, Sylvia Osarch, Nancy E Allen
The Pacific Islands Geriatric Education Center of the University of Hawaii conducted situational assessments of caregivers, older adults, and healthcare professionals in the Republic of Palau. The findings revealed an urgent need for a solution to the identified crisis of an aging population, increasing chronic diseases and their corresponding impact on caregivers and society. In 2010, the National Healthcare Financing Act was signed into law, becoming Palau's first step in helping residents and workers in Palau pay for medical expenses...
July 2018: Home Healthcare Now
Jonathan A Bernstein, Lyndon Mansfield
OBJECTIVE: To review therapeutic options for stepwise management of pediatric asthma in the context of this population's unique needs such as potential effects of asthma, treatments, or both on growth and psychosocial development, and caregiver involvement. DATA SOURCES AND STUDY SELECTION: We conducted PubMed searches to identify relevant articles then reviewed resultant articles, guidelines for asthma management in children, and articles from personal files. RESULTS: Stepwise management of asthma, similar to adults, is recommended for children in current global and US guidelines...
July 4, 2018: Journal of Asthma: Official Journal of the Association for the Care of Asthma
Xingwei Luo, Samuel F Law, Xiang Wang, Jingzheng Shi, Wu Zeng, Xiaoqian Ma, Wendy Chow, Shiyan Liu, Wei Zhao, Xiaoli Liu, Shuqiao Yao, Michael R Phillips
BACKGROUND: Assertive Community Treatment (ACT) is an evidence-based treatment program for people with severe mental illness developed in high-income countries. We report the first randomized controlled trial of ACT in mainland China. METHODS: Sixty outpatients with schizophrenia with severe functional impairments or frequent hospitalizations were randomly assigned to ACT (n = 30) or standard community treatment (n = 30). The severity of symptoms and level of social functioning were assessed at baseline and every 3 months during the 1-year study...
July 2, 2018: Psychological Medicine
David Rankin, Jeni Harden, Katharine D Barnard, John Stephen, Simita Kumar, Julia Lawton
BACKGROUND: While pre-adolescent children with type 1 diabetes receive most support from their parents/caregivers, others also contribute to their care. This study explored pre-adolescent children's experiences of receiving diabetes-related support from friends and peers. The objective was to identify how children could be better supported by their friends and peers to undertake diabetes self-management. METHODS: In-depth interviews with 24 children (aged 9-12 years) with type 1 diabetes...
July 2, 2018: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
Antoine Chéret, Christine Durier, Nicolas Noël, Katia Bourdic, Chantal Legrand, Catherine D'Andréa, Evelyne Hem, Cécile Goujard, Patrick Berthiaume, Silla M Consoli
OBJECTIVE: To evaluate the impact of brief training in motivational interviewing (MI) from a non-specialist professional for medical students. METHODS: Students (n = 20) received three four-hour sessions of MI training over one week. They interviewed caregivers acting as patients in two standardised medical situations, six weeks before and three weeks after training. Global scores from the MITI-3.1.1 code, including "MI- Spirit", were attributed to the audiotaped interviews by two independent coders, blind the pre- or post-training status of the interview...
June 21, 2018: Patient Education and Counseling
Barbara Mroczko, Magdalena Groblewska, Ala Litman-Zawadzka, Johannes Kornhuber, Piotr Lewczuk
It is estimated that Alzheimer’s disease (AD) affects tens of millions of people, comprising not only suffering patients, but also their relatives and caregivers. AD is one of age-related neurodegenerative diseases (NDs) characterized by progressive synaptic damage and neuronal loss, which result in gradual cognitive impairment leading to dementia. The cause of AD remains still unresolved, despite being studied for more than a century. The hallmark pathological features of this disease are senile plaques within patients’ brain composed of amyloid beta (Aβ) and neurofibrillary tangles (NFTs) of Tau protein...
June 27, 2018: International Journal of Molecular Sciences
Ruth A Bush, Andrew C Richardson, Diana Cardona-Grau, Hena Din, Cynthia L Kuelbs, George J Chiang
Introduction: The Affordable Care Act promotes multiple directives for meaningful use of the Electronic Health Record, such as patient/provider portals, to increase patient engagement. Although portal use is common within adult healthcare, little information exists regarding pediatric portal use. We examined pediatric urology patient portal enrollment and activation patterns at a tertiary pediatric hospital in Southern California by race/ethnicity, preferred language, gender, and residential region...
July 2018: Urology Practice
Ildikó Gágyor, Arndt Heßling, Susanne Heim, Andreas Frewer, Friedemann Nauck, Wolfgang Himmel
Background: General practitioners (GPs), nurses and informal caregivers are often jointly involved in healthcare situations in which ethical issues play an important role. Objectives: To describe ethical problems from the perspective of these three groups and to investigate whether there is a common experience of ethical issues in primary care. Methods: We conducted six focus groups with general practitioners, nurses and informal caregivers in Germany...
June 21, 2018: Family Practice
Matthew S McCoy
Patient advocacy organizations (PAOs) have long been regarded as important representatives of patient and caregiver interests in health policy debates. Recently, however, PAOs have attracted increased scrutiny over their financial ties to drug and device companies. In the past year, researchers and policymakers have called for the creation of a "sunshine law" requiring mandatory public reporting of industry payments to PAOs. Others have suggested that increased transparency would do little to address, and may even exacerbate, underlying concerns about proindustry bias among industry-funded PAOs...
August 2018: American Journal of Public Health
C E Strachan, A Nuwa, D Muhangi, A P Okui, M E H Helinski, J K Tibenderana
BACKGROUND: Successful pre-referral treatment with rectal artesunate (RA) for suspected severe malaria requires operational linkages between community health workers (CHWs) and referral facilities, acceptance of pre-referral treatment and adherence to referral practices by CHWs and caregivers. This qualitative study investigated how community understanding of the concept of 'pre-referral treatment' is used in referral related decision-making following provision of RA in Uganda. METHODS: Narrative interviews were conducted with 30 caregivers of children under five who received RA within the previous three months and the 30 associated CHWs who provided the treatment...
June 19, 2018: BMC Health Services Research
Ines M Aguerre, Amy R Riley-Powell, Caroline T Weldon, Monica J Pajuelo, Rosa A Celis Nacimento, Anité Puente-Arnao, Lilia Cabrera, Richard A Oberhelman, Valerie A Paz-Soldan
BACKGROUND: More than one billion people worldwide live with a disability. Despite advances in recognising inequalities experienced by people with disabilities, barriers to services and stigmatisation still exist. The aims of this study were to explore: (1) perceptions and experiences of services specifically available to people with disabilities and their caregivers and (2) the perception of disability. METHODS: In-depth interviews were conducted with 20 caregivers of persons with a disability and 14 key informants in two cities in Peru; Lima and Iquitos...
June 17, 2018: Disability and Rehabilitation
Molly Scott, Bansi Malde, Carina King, Tambosi Phiri, Hilda Chapota, Esther Kainja, Florida Banda, Marcos Vera-Hernandez
OBJECTIVE: Parents may rely on information provided by extended family members when making decisions concerning the health of their children. We evaluate whether extended family members affected the success of an information intervention promoting infant health. METHODS: This is a secondary, sequential mixed-methods study based on a cluster randomised controlled trial of a peer-led home-education intervention conducted in Mchinji District, Malawi. We used linear multivariate regression to test whether the intervention impact on child height-for-age z-scores (HAZ) was influenced by extended family members...
June 7, 2018: BMJ Open
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