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ACT and Caregivers

Aleksander Krag, Marcus Schuchmann, Hanna Sodatonou, Jeff Pilot, James Whitehouse, Simone I Strasser, Mark Hudson
Background: Hepatic encephalopathy (HE) is one of the most important severe complications of liver cirrhosis. Thought to be caused by elevated blood levels of gut-derived neurotoxins (particularly ammonia) entering the brain, HE manifests as a wide range of neurological or psychiatric abnormalities, which increase the risk of mortality, result in substantial morbidity and negatively affect the quality of life (QoL) of both patients and their caregivers. HE is also associated with a substantial economic burden...
2018: Hepatology, Medicine and Policy
Olivia Magwood, Victoire Kpadé, Ruh Afza, Chinedu Oraka, Jennifer McWhirter, Sandy Oliver, Kevin Pottie
Mothers, caregivers, and healthcare providers in 163 countries have used paper and electronic home-based records (HBRs) to facilitate primary care visit. These standardized records have the potential to empower women, improve the quality of care for mothers and children and reduce health inequities. This review examines experiences of women, caregivers and providers with home-based records for maternal and child health and seeks to explore the feasibility, acceptability, affordability and equity of these interventions...
2018: PloS One
Emilio Gil, Fernando Garcia-Alonso, Anca Boldeanu, Thaïs Baleeiro Teixeira
INTRODUCTION: There is a need for fast-acting, non-injection antiagitation treatments that are well tolerated and can be used outside of healthcare facilities. In phase II/III trials, an inhaled formulation of loxapine (ADASUVE®), a well-established, first-generation antipsychotic agent, provided rapid control of mild to moderate agitation in the hospital setting. The present study was designed to investigate the safety and efficacy of inhaled loxapine when self-administered outside the hospital setting...
October 2, 2018: BMJ Open
HeungKyu Kim, Joung-Sook Ahn, Hyun Kim, Yong Sung Cha, Jinhee Lee, Min-Hyuk Kim, Seongho Min
OBJECTIVES: The purpose of this study was to identify distinctive characteristics of old-old suicide attempters (75 years and older) from young-old (60-74 years old) and middle-aged suicide attempters (45-59 years old). METHODS: We included consecutive series of 920 patients aged 45 years and older who had visited the emergency room from 2009 to 2015 because of suicide attempts. They were divided into 3 groups according to age. Information about the suicide attempt and sociodemographic status was gathered through interviews with attempters or caregivers...
September 27, 2018: International Journal of Geriatric Psychiatry
Lee T Gettler, Patty X Kuo, Sonny Agustin Bechayda
OBJECTIVES: Research on the psychobiology of partnering and fathering has focused on testosterone (T), oxytocin, and prolactin (PRL) as mechanisms that potentially mediate life history trade-offs related to those roles. Less is known about other hormones that might be responsive to life history transitions and implicated in fathering, such as estradiol (E2). We examined how E2 changed during the transition to marriage and fatherhood, its correlation with fathers' caregiving, and its joint within-individual production with other hormones (T, PRL)...
September 24, 2018: American Journal of Human Biology: the Official Journal of the Human Biology Council
Juliana Onwumere, Zheng Zhou, Elizabeth Kuipers
A modest association can be found between people with a schizophrenia spectrum diagnosis (psychosis) and perpetrating acts of violence. When a person with psychosis does engage in violence, it is their informal carers, when compared to those from the general population, who are more likely to be the targets, and violence will often occur within the family home. Despite the importance of carer support for improving patient outcomes, our understanding of how carers are impacted by patient initiated violence in psychosis remains limited...
2018: Frontiers in Psychology
Martin Schipperus, Georgia Kaiafa, Louise Taylor, Sally Wetten, Georg Kreuzbauer, Andy Boshier, Anouchka Seesaghur
INTRODUCTION: Romiplostim is a subcutaneously administered thrombopoietin-receptor agonist approved in the European Union for self-administration (or administration by a caregiver) in selected adult patients with chronic primary immune thrombocytopenia refractory to other treatments. To mitigate the risk of medication errors due to self-administration, the manufacturer has implemented additional risk minimisation measures (RMM) in the form of a Home Administration Training (HAT) pack to support the training of both healthcare professionals (HCPs) (guide and checklist for patient selection and training) and patients (a preparation mat, quick guide booklet, step-by-step guide, self-administration diary and DVD/video)...
September 19, 2018: Drug Safety: An International Journal of Medical Toxicology and Drug Experience
Kirti D Doekhie, Mathilde M H Strating, Martina Buljac-Samardzic, Hester M van de Bovenkamp, Jaap Paauwe
BACKGROUND: Patient involvement in the decision-making process, especially for chronically ill elderly patients, has become an important element of patient-centred primary care in many countries, including the Netherlands. This study openly explores different perspectives of patients, informal caregivers and primary care professionals on patient involvement in primary care team interactions. METHODS: Sixty-four qualitative semi-structured interviews with chronically ill elderly patients, informal caregivers and primary care professionals from various disciplines...
September 17, 2018: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
Sophie Kanerva Rice, Leslie Pendrill, Niclas Petersson, Jesper Nordlinder, Anne Farbrot
PURPOSE: The purpose of this study was to develop and test a new method to measure the usability of absorbent incontinence care products from the caregivers' perspective and to investigate if the method can be used to differentiate between product types in a product change. DESIGN: Process evaluation and validation study. SUBJECTS AND SETTING: Product developers and end users participated in designing the new method. Thereafter, professional caregivers acted as testers of the new method, ranking usability when performing absorbent product changes on patients in a simulated nursing home care environment, assisted by third-party research institute moderators...
September 2018: Journal of Wound, Ostomy, and Continence Nursing
Natalie James, Emma Power, Anne Hogden, Steve Vucic
PURPOSE: To explore the views of people with motor neurone disease (MND) on the barriers, facilitators and potential benefits of using home-based e-Health service delivery (telehealth) to access MND multidisciplinary clinic care. METHODS: Twelve patients from three MND multidisciplinary clinics and an MND support association group completed a survey of information technology (IT) use and participated in interviews, to gather participants' experiences and perceptions of home-based telehealth for MND clinic care...
September 5, 2018: Disability and Rehabilitation. Assistive Technology
Fahmida Chowdhury, Katharine Sturm-Ramirez, Abdullah Al Mamun, A Danielle Iuliano, Mohammod Jobayer Chisti, Makhdum Ahmed, Mejbah Uddin Bhuiyan, Kamal Hossain, Mohammad Sabbir Haider, Shaikh Abdul Aziz, Mahmudur Rahman, Eduardo Azziz-Baumgartner
BACKGROUND: Inappropriate dispensing of antibiotics for acute respiratory illness (ARI) is common among drug sellers in Bangladesh. In this study, we evaluated the impact of an educational intervention to promote guidelines for better ARI management among drug sellers. METHODS: From June 2012 to December 2013, we conducted baseline and post-intervention surveys on dispensing practices in 100 pharmacies within Dhaka city. In these surveys, drug sellers participated in 6 standardized role-playing scenarios led by study staffs acting as caregivers of ARI patients and drug sellers were blinded to these surveys...
August 31, 2018: BMC Health Services Research
Tyler Colasante, Antonio Zuffianò, David W Haley, Tina Malti
Despite the well-established protective functions of guilt across childhood, its underlying physiological mechanisms have received little attention. We used latent difference scores (LDS) to model changes in children's (N = 267; 4- and 8-year-olds, 51% girls) skin conductance (SC) and respiratory sinus arrhythmia (RSA) while they imagined themselves committing antisocial acts. We then tested if their later reports of guilt, caregiver-reported aggressive behavior, and age were associated with these physiological changes...
September 2018: Developmental Psychology
Monica L Molinaro, Paula C Fletcher
The effect of pediatric cancer and its treatment are overwhelming-these effects are multifaceted and felt by the entire family unit throughout the diagnosis and treatment process. Children experience a plethora of effects as a result of the treatment process; however, it is imperative to remember that a pediatric cancer diagnosis affects parents physically, emotionally, and psychologically as well. While much of the pediatric cancer treatment occurs at the hospital or in clinics, parents are often faced with additional caregiving responsibilities at home, and in many cases, it is mothers who provide care to their children, while also attempting to care for the siblings of their ill children...
August 27, 2018: Journal of Pediatric Oncology Nursing: Official Journal of the Association of Pediatric Oncology Nurses
Mara Buchbinder, Enioluwafe Ojo, Laila Knio, Elizabeth R Brassfield
CONTEXT: Eight jurisdictions in the U.S. currently permit medical aid-in-dying (AID), yet little is known about the direct experience of caregivers in supporting a loved one through the process. OBJECTIVES: To explore the experiences of lay caregivers involved with AID in the U.S., focusing on the day of death. METHODS: Semistructured in-depth interviews were conducted with caregivers of terminally ill patients who pursued AID under Vermont's 2013 "Patient Choice and Control at End of Life" Act...
August 24, 2018: Journal of Pain and Symptom Management
Deborah Lambotte, Liesbeth De Donder, Sofie Van Regenmortel, Bram Fret, Sarah Dury, An-Sofie Smetcoren, Eva Dierckx, Nico De Witte, Dominique Verté, Martinus J M Kardol
OBJECTIVES: This study examines different combinations of informal and formal care use of older adults and investigates whether these combinations differ in terms of need for care (physical and psychological frailty) and enabling factors for informal and formal care use (social and environmental frailty). METHODS: Using cross-sectional data from the Belgian Ageing Studies (survey, N = 38,066 community-dwelling older adults), Latent Class Analysis (LCA) is used to identify combinations of informal and formal care use...
June 2, 2018: Archives of Gerontology and Geriatrics
Stefano Eleuteri, Maria C Norton, Federica Livi, Caterina Grano, Paolo Falaschi, Cristiano Violani, Fabio Lucidi, Caterina Lombardo
PURPOSE: Although most cross-sectional and longitudinal studies of children and adolescents have found a link between short duration of sleep and obesity, the literature related to adults provides a non-consensual framework. The aim of the present study was to examine the association between sleep quality and BMI in a population of caregivers looking after people suffering from dementia, with a view to identifying the moderating role of depressive symptoms in the relationship between sleep problems and BMI...
October 2018: Eating and Weight Disorders: EWD
Roberta de Lima, Leila Brito Bergold, Joana Darc Fialho de Souza, Genesis de Souza Barbosa, Márcia de Assunção Ferreira
OBJECTIVE: to report the application of a participatory teaching-learning method on the themes death, dying, and associate care to highlight its applicability to the students. METHOD: report of application of participatory method in 22 students from the 6th period of the undergraduate program in Nursing and Obstetrics of a public university. The first stage focused on personal experiences of the students and the second on professional prospects. As resources for data collection we used music, drawing, drama, and photography...
2018: Revista Brasileira de Enfermagem
Terrence Montague, Bonnie Cochrane, Amédé Gogovor, John Aylen, Lesli Martin, Joanna Nemis-White
The overarching purpose of serial Health Care in Canada (HCIC) surveys of the adult Canadian public and a broad spectrum of healthcare professionals over the past two decades has been the development of an evidence-based map to inform strategic and clinical decisions to improve care and outcomes for Canadians. Recent surveys reveal a growing concern that medicare may require complete rebuilding or major strategic repairs. On the other hand, a majority of stakeholders perceive continuing underlying quality in our clinical care and look forward to both system- and patient-centred initiatives to improve future care...
April 2018: Healthcare Quarterly
Hashem Abu Tariah, Nasser Ghasham, Mohammad Alolayan, Bandar Alahmadi, Abdullah Alqarni
BACKGROUND: Engagement in religious and spiritual activities and expression are important to many people. Praying in a mosque is a major component of basic worship for Muslims. Riyadh has a population of more than six million people and more than 17 thousand mosques. OBJECTIVE: The purpose of this study was to explore wheelchair accessibility of mosques in Riyadh from the perspective of wheelchair users and their caregivers. METHODS: A survey was conducted to explore the opinions of wheelchair users and their caregivers regarding wheelchair accessibility of frequently used mosques...
2018: Work: a Journal of Prevention, Assessment, and Rehabilitation
Faadhilah Tayob, Sharon Moonsamy
 Exposure to social trauma influences the psychosocial experiences of vulnerable children. This affects their positive development, consequentially resulting in poor scholastic progress. South Africa's history of inequality and injustice has compounded the current social, educational and economic situation, highlighting the need for research on children in care. A paucity of published studies exists on caregiver facilitation of literacy skills among vulnerable populations in South African children's homes...
June 28, 2018: South African Journal of Communication Disorders. die Suid-Afrikaanse Tydskrif Vir Kommunikasieafwykings
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