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Survivorship pediatric cancer

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https://www.readbyqxmd.com/read/30229367/-late-effects-following-childhood-cancer-treatment-a-special-challenge-for-transition-medicine
#1
REVIEW
J Gebauer, H Lehnert, S M Schmid, C Spix, A Stein, T Langer
BACKGROUND: Childhood cancer survivors are at risk of cancer- and treatment-related chronic health conditions. Since these sequelae may occur years after the end of treatment, many patients are already adults and have completed pediatric oncological care. Thus, successful transition is essential in order to ensure long-term surveillance. OBJECTIVES: The present review outlines the most frequent late effects of childhood cancer treatment. Moreover, difficulties in transition of these patients are discussed and interdisciplinary models of care are presented...
September 18, 2018: Der Internist
https://www.readbyqxmd.com/read/30133346/understanding-the-role-of-advanced-practice-providers-in-oncology-in-the-united-states
#2
Suanna S Bruinooge, Todd A Pickard, Wendy Vogel, Amy Hanley, Caroline Schenkel, Elizabeth Garrett-Mayer, Eric Tetzlaff, Margaret Rosenzweig, Heather Hylton, Shannon N Westin, Noël Smith, Conor Lynch, Michael P Kosty, Stephanie F Williams
PURPOSE: Advanced practice providers (APPs, which include nurse practitioners [NPs] and physician assistants [PAs]) are integral members of oncology teams. This study aims first to identify all oncology APPs and, second, to understand personal and practice characteristics (including compensation) of those APPs. METHODS: We identified APPs who practice oncology from membership and claims data. We surveyed 3,055 APPs about their roles in clinical care. RESULTS: We identified at least 5,350 APPs in oncology and an additional 5,400 who might practice oncology...
September 2018: Journal of Oncology Practice
https://www.readbyqxmd.com/read/30126755/neurological-complications-of-the-treatment-of-pediatric-neoplastic-disorders
#3
REVIEW
Lisa R Sun, Stacy Cooper
Neurological complications resulting from childhood cancer treatments are common. Treatment for childhood neoplastic disorders is often multimodal and may include procedures, cranial irradiation, chemotherapy, transplant, and immunotherapy, each of which carries distinct neurological risks. Procedures, such as lumbar punctures, are commonly used in this population for diagnostic purposes as well as intrathecal medication administration. Surgery is associated with an array of potential neurological complications, with posterior fossa syndrome being a common cause of morbidity in pediatric brain tumor patients after neurosurgical resection...
June 2, 2018: Pediatric Neurology
https://www.readbyqxmd.com/read/30024087/parental-perception-of-child-vulnerability-in-childhood-cancer-survivors
#4
Mary-Jane Staba Hogan, Wilhelmenia L Ross, Lyn Balsamo, Hannah-Rose Mitchell, Nina S Kadan-Lottick
BACKGROUND: Parents' perception of their children's vulnerability to illness following cancer treatment is largely unknown, but is important to understand given known challenges of transitioning survivors to postcancer care. We investigated the frequency of and factors associated with perceived vulnerability by parents of childhood cancer survivors attending a regional survivorship clinic. PROCEDURE: This cohort study was offered to all parents of pediatric patients (currently ≤18 years) attending the Yale childhood cancer survivorship clinic January 2010 to October 2016 who were ≥1 year postcurative cancer therapy...
July 19, 2018: Pediatric Blood & Cancer
https://www.readbyqxmd.com/read/29938339/creation-and-evaluation-of-a-cancer-survivorship-curriculum-for-pediatric-resident-physicians
#5
Lindsay F Schwartz, Clarence H Braddock, Roy L Kao, Myung-Shin Sim, Jacqueline N Casillas
PURPOSE: There is a paucity of formal clinician education concerning cancer survivorship care, which produces care barriers and poorer outcomes for survivors of childhood cancer. To address this, we implemented a curriculum in childhood cancer survivorship care for pediatric residents at the University of California, Los Angeles (UCLA). We examined the efficacy of this curriculum following program completion. METHODS: A case-based curriculum was created and integrated within existing educational structures using Kern's model...
June 25, 2018: Journal of Cancer Survivorship: Research and Practice
https://www.readbyqxmd.com/read/29880581/president-signs-star-act-for-kids-cancers
#6
(no author information available yet)
On June 5, President Donald Trump signed the Childhood Cancer Survivorship, Treatment, Access and Research Act, which aims to support pediatric cancer research by expanding the collection of patient biospecimens and records, improving surveillance, and investigating pediatric survivorship.
July 2018: Cancer Discovery
https://www.readbyqxmd.com/read/29874142/new-agents-emerging-late-effects-and-the-development-of-precision-survivorship
#7
Eric J Chow, Zoltan Antal, Louis S Constine, Rebecca Gardner, W Hamish Wallace, Brent R Weil, Jennifer M Yeh, Elizabeth Fox
Incremental improvements in the treatment of children and adolescents with cancer have led to 5-year survival rates reaching nearly 85%. In the past decade, impressive progress has been made in understanding the biology of many pediatric cancers. With that understanding, multiple new agents have become available that offer the promise of more-effective and less-toxic treatment. These include agents that target various cell surface antigens and engage the adaptive immune system, as well as those that interfere with key signaling pathways involved in tumor development and growth...
July 20, 2018: Journal of Clinical Oncology: Official Journal of the American Society of Clinical Oncology
https://www.readbyqxmd.com/read/29874138/models-of-care-for-survivors-of-childhood-cancer-from-across-the-globe-advancing-survivorship-care-in-the-next-decade
#8
Emily S Tonorezos, Dana Barnea, Richard J Cohn, Monica S Cypriano, Brice C Fresneau, Riccardo Haupt, Lars Hjorth, Yasushi Ishida, Jarmila Kruseova, Claudia E Kuehni, Purna A Kurkure, Thorsten Langer, Paul C Nathan, Jane E Skeen, Roderick Skinner, Nurdan Tacyildiz, Marry M van den Heuvel-Eibrink, Jeanette F Winther, Melissa M Hudson, Kevin C Oeffinger
With improvements in cancer treatment and supportive care, a growing population of survivors of childhood cancer at risk for significant and potentially life-threatening late effects has been identified. To provide a current snapshot of the models of care from countries with varying levels of resources and health care systems, stakeholders in childhood cancer survivorship clinical care and research were identified from 18 countries across five continents. Stakeholders responded to a survey and provided a brief narrative regarding the current state of survivorship care...
July 20, 2018: Journal of Clinical Oncology: Official Journal of the American Society of Clinical Oncology
https://www.readbyqxmd.com/read/29799906/chemotherapy-induced-peripheral-neuropathy-in-long-term-survivors-of-childhood-cancer-clinical-neurophysiological-functional-and-patient-reported-outcomes
#9
Tejaswi Kandula, Michelle Anne Farrar, Richard J Cohn, David Mizrahi, Kate Carey, Karen Johnston, Matthew C Kiernan, Arun V Krishnan, Susanna B Park
Importance: In light of the excellent long-term survival of childhood cancer patients, it is imperative to screen for factors affecting health, function, and quality of life in long-term survivors. Objective: To comprehensively assess chemotherapy-induced peripheral neuropathy in childhood cancer survivors to define disease burden and functional effect and to inform screening recommendations. Design, Setting, and Participants: In this cross-sectional observational study, cancer survivors who were treated with chemotherapy for extracranial malignancy before age 17 years were recruited consecutively between April 2015 and December 2016 from a single tertiary hospital-based comprehensive cancer survivorship clinic and compared with healthy age-matched controls...
August 1, 2018: JAMA Neurology
https://www.readbyqxmd.com/read/29740904/falling-through-the-cracks-a-thematic-evaluation-of-unmet-needs-of-adult-survivors-of-childhood-cancers
#10
Jennifer White, Joanne Park, K Brooke Russell, K A Reynolds, A Madani, Linda E Carlson, Janine Giese-Davis
OBJECTIVE: The population of adult survivors of childhood cancers (ASCCs) is growing, resulting in unique long-term challenges. This study explored experiences of perceived unmet ASCC survivorship needs. METHODS: We invited ASCCs to complete surveys sent through the cancer registry. Four open-ended questions allowed participants to write in comments. We analyzed responses to these open-ended questions thematically, employing a process of constant comparison. RESULTS: Our sample included 94 ASCCs who completed open-ended questions (61 female; aged 20-78 years, mean age = 34...
August 2018: Psycho-oncology
https://www.readbyqxmd.com/read/29671249/importance-ratings-on-patient-reported-outcome-items-for-survivorship-care-comparison-between-pediatric-cancer-survivors-parents-and-clinicians
#11
Conor M Jones, Justin N Baker, Rachel M Keesey, Ruth J Eliason, Jennifer Q Lanctot, Jennifer L Clegg, Belinda N Mandrell, Kirsten K Ness, Kevin R Krull, Deokumar Srivastava, Christopher B Forrest, Melissa M Hudson, Leslie L Robison, I-Chan Huang
PURPOSE: To compare importance ratings of patient-reported outcomes (PROs) items from the viewpoints of childhood cancer survivors, parents, and clinicians for further developing short-forms to use in survivorship care. METHODS: 101 cancer survivors, 101 their parents, and 36 clinicians were recruited from St. Jude Children's Research Hospital. Participants were asked to select eight items that they deemed useful for clinical decision making from each of the four Patient-Reported Outcomes Measurement Information System Pediatric item banks...
July 2018: Quality of Life Research
https://www.readbyqxmd.com/read/29582194/clinical-practice-guidelines-for-fertility-preservation-in-pediatric-adolescent-and-young-adults-with-cancer
#12
REVIEW
Nao Suzuki
In recent years, more cancer patients are achieving long-term survival owing to advances in treatment. However, cancer treatment can cause gonadal dysfunction that leads to loss of fertility. Thus, it is important for clinical oncologists to consider fertility preservation in children, adolescents, and young adults with cancer who are expected to have a favorable outcome and may wish to have children in the future. Sometimes, fertility preservation has to be abandoned depending on the stage of the cancer and the general condition of the patient, because fertility preservation procedures may unacceptably delay cancer treatment or be too risky for the patient...
March 26, 2018: International Journal of Clinical Oncology
https://www.readbyqxmd.com/read/29500581/attitudes-and-experiences-of-childhood-cancer-survivors-transitioning-from-pediatric-care-to-adult-care
#13
Beeshman S Nandakumar, Joanna E Fardell, Claire E Wakefield, Christina Signorelli, Jordana K McLoone, Jane Skeen, Ann M Maguire, Richard J Cohn
PURPOSE: Survivors of pediatric cancer are prone to late effects which require ongoing medical care. Young adult survivors often transition from specialist pediatric care to adult-oriented or community-based healthcare. This study aims to describe the attitudes and experiences of survivors and their parents towards transition barriers and enablers. METHODS: Long-term survivors and parents (of survivors < 16 years) were recruited from 11 hospitals in Australia and New Zealand to participate in a semi-structured telephone interview regarding their transition experiences...
August 2018: Supportive Care in Cancer: Official Journal of the Multinational Association of Supportive Care in Cancer
https://www.readbyqxmd.com/read/29498614/psychosocial-standards-of-care-for-children-with-cancer-and-their-families-a-national-survey-of-pediatric-oncology-social-workers
#14
Barbara Jones, Jennifer Currin-Mcculloch, Wendy Pelletier, Vicki Sardi-Brown, Peter Brown, Lori Wiener
In 2015, an interdisciplinary group of psychosocial experts developed The Standards of Psychosocial Care for Children with Cancer and Their Families. This paper presents data from a national survey of pediatric oncology social workers and their experiences in delivering psychosocial care to children and families. In total, 107 social workers from 81 cancer institutions participated in a 25-item online survey that mirrored the 15 Standards for Psychosocial Care. Both closed and open-ended questions were included...
April 2018: Social Work in Health Care
https://www.readbyqxmd.com/read/29432303/utility-of-echocardiography-as-screening-for-late-onset-anthracycline-induced-cardiotoxicity-in-pediatric-cancer-survivors-observations-from-the-first-decade-after-end-of-therapy
#15
Diana J Moke, Lynn E Schubert, Heather Y Sun, Beth F Printz, Andrew C Dietz
Current screening guidelines are available for anthracycline-induced cardiotoxicity. However, the utility of echocardiogram screening for late-onset anthracycline cardiotoxicity especially in the decade immediately after end of therapy is debatable. A retrospective chart review of patients seen in the Thriving after Cancer Clinic at Rady Children's Hospital January 2006 to December 2013 was performed. Treatment data, echocardiogram results, cardiology referral notes and cardiac medication data were abstracted from anthracycline-exposed survivors...
July 2018: Journal of Pediatric Hematology/oncology
https://www.readbyqxmd.com/read/29427193/knowledge-and-perceptions-of-infertility-in-female-cancer-survivors-and-their-parents
#16
Taryn Sandheinrich, Sarah B Wondmeneh, Caroline Mohrmann, Katie Gettinger, Jennifer Henry, Robert J Hayashi
PURPOSE: The purpose of this study was to assess knowledge and perceptions of infertility, reproductive concerns, quality of life, and emotional burden of fertility concerns in adolescent female cancer survivors and their parents. METHODS: A cross-sectional design was used to investigate reproductive knowledge and concerns among female childhood cancer survivors and their parents. The instruments administered at a single, routine visit were the 13-item knowledge instrument, Adolescent Fertility Values Clarification Tool (VCT), Impact of Event Scale (IES), and Pediatrics Quality of Life Assessment (PedsQL)...
July 2018: Supportive Care in Cancer: Official Journal of the Multinational Association of Supportive Care in Cancer
https://www.readbyqxmd.com/read/29395178/early-post-therapy-prescription-drug-usage-among-childhood-and-adolescent-cancer-survivors
#17
Andrew B Smitherman, Danielle Mohabir, Tania M Wilkins, Julie Blatt, Hazel B Nichols, Stacie B Dusetzina
OBJECTIVE: To describe the patterns of prescription drug use among child and adolescent survivors of cancer in the early post-therapy period compared with matched peers without a cancer history. STUDY DESIGN: Using the MarketScan commercial insurance claims database, we performed a retrospective cohort study identifying survivors of pediatric (0-21 years of age at diagnosis) leukemia, lymphoma, central nervous system, bone, or gonadal cancers who completed therapy from 2000 to 2011 and remained insured for 3 years post-therapy...
April 2018: Journal of Pediatrics
https://www.readbyqxmd.com/read/29322843/immunotherapy-for-brain-tumors-understanding-early-successes-and-limitations
#18
Nicole A P Lieberman, Nicholas A Vitanza, Courtney A Crane
Adverse effects and toxicities related to standard treatments for brain tumors significantly reduce patients' quality of life. Although most immunotherapy approaches for solid tumors have not been successful, several early-phase clinical trials are beginning to reveal a potential role for immunotherapy in the treatment of brain tumors. In particular, methods that activate the innate immune system and induce a polyclonal anti-cancer response have demonstrated that brain tumors are susceptible to immune-mediated tumor destruction...
March 2018: Expert Review of Neurotherapeutics
https://www.readbyqxmd.com/read/29286558/family-history-taking-practices-and-genetic-confidence-in-primary-and-tertiary-care-providers-for-childhood-cancer-survivors
#19
Claire E Wakefield, Veronica F Quinn, Joanna E Fardell, Christina Signorelli, Katherine M Tucker, Andrea F Patenaude, David Malkin, Thomas Walwyn, Frank Alvaro, Richard J Cohn
BACKGROUND: There is growing impetus for increased genetic screening in childhood cancer survivors. Family history-taking is a critical first step in determining survivors' suitability. However, the family history-taking practices of providers of pediatric oncology survivorship care and the confidence of these providers to discuss cancer risks to relatives are unknown. PROCEDURE: Fifty-four providers completed semistructured interviews in total, which included eight tertiary providers representing nine hospitals across two countries (63% male, 63% oncologists, 37% nurses) and 46 primary care providers (PCPs) nominated by a survivor (59% male, 35% regional practice)...
April 2018: Pediatric Blood & Cancer
https://www.readbyqxmd.com/read/29270394/clinical-assessment-and-diagnosis-of-germline-predisposition-to-hematopoietic-malignancies-the-university-of-chicago-experience
#20
REVIEW
Ami V Desai, Melody Perpich, Lucy A Godley
With the increasing use of clinical genomics to guide cancer treatment and management, there is a rise in the identification of germline cancer predisposition syndromes and a critical need for patients with germline findings to be referred for surveillance and care. The University of Chicago Hematopoietic Malignancies Cancer Risk Team has established a unique approach to patient care for individuals with hereditary hematologic malignancies through close communication and coordination between our pediatric and adult programs...
2017: Frontiers in Pediatrics
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