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Family practice related

Andrew T Timberlake, Derek M Steinbacher
A growing number of patients seeking plastic surgical procedures in our practice are first-degree relatives of our previous surgical patients. Three possibilities exist as to the coalescence of procedures within a family unit: 1) the morphologic and anatomical patterns are conserved and passed on within relatives; 2) a captive "audience" (family members) appreciates firsthand the surgical result and positive difference, be it functional or aesthetic for their relative, or 3) the rapport established between surgeon and patient lead that patient to recommend his or her surgeon to others...
August 10, 2018: Plastic and Reconstructive Surgery
Simon Read, Heather Waterman, James E Morgan, Robert A Harper, Anne Fiona Spencer, Penelope Stanford
Purpose: "She wouldn't remember. Even when I go through, and she's decided to go to bed, I'll say I'll come and do her drops. If I didn't say that, they wouldn't be done." Dementia is widely considered as a key factor in whether patients take their medication as prescribed. However, few studies have examined the effect of dementia on medication management strategies for glaucoma including how patient and carer needs impact adherence and long-term prognosis. We report findings from a qualitative grounded theory study incorporating the views of patients, carers, and healthcare professionals...
2018: Patient Preference and Adherence
Aaron J Goldenberg, Michele Lloyd-Puryear, Jeffrey P Brosco, Bradford Therrell, Lynn Bush, Susan Berry, Amy Brower, Natasha Bonhomme, Bruce Bowdish, Denise Chrysler, Angus Clarke, Thomas Crawford, Edward Goldman, Sally Hiner, R Rodney Howell, David Orren, Benjamin S Wilfond, Michael Watson
BACKGROUND: The evidence review processes for adding new conditions to state newborn screening (NBS) panels rely on data from pilot studies aimed at assessing the potential benefits and harms of screening. However, the consideration of ethical, legal, and social implications (ELSI) of screening within this research has been limited. This paper outlines important ELSI issues related to newborn screening policy and practices as a resource to help researchers integrate ELSI into NBS pilot studies...
August 13, 2018: Genetics in Medicine: Official Journal of the American College of Medical Genetics
Daniela Rodrigues, Cristina Padez, Aristides M Machado-Rodrigues
OBJECTIVES: The purpose of this study was to identify patterns of child and family characteristics and behaviors, and to determine the association of those patterns with child participation in sports. METHODS: A questionnaire and anthropometric measures were used to collect data on 834 parents and their 6- to 10-year-old children. A principal component analysis identified child and parental patterns, which were tested for association with child participation in extracurricular sports (ES)...
August 12, 2018: American Journal of Human Biology: the Official Journal of the Human Biology Council
Elisabeth Kenne Sarenmalm, Salmir Nasic, Cecilia Håkanson, Joakim Öhlén, Eva Carlsson, Monica E Pettersson, Richard Sawatzky
Background: The objective of this study was to validate the NCCN Distress Thermometer (DT), including the accompanying Problem List (PL), in a Swedish population of patients diagnosed with colorectal cancer (CRC). Methods: A total of 488 patients diagnosed with CRC completed the DT/PL and EORTC core quality-of-life questionnaire (QLQ-C30) before surgery. Construct validity of the PL was analyzed using a confirmatory factor analysis. Internal consistency reliability (ICR) was tested using Cronbach's alpha coefficient...
August 2018: Journal of the National Comprehensive Cancer Network: JNCCN
Joseph T Giacino, Douglas I Katz, Nicholas D Schiff, John Whyte, Eric J Ashman, Stephen Ashwal, Richard Barbano, Flora M Hammond, Steven Laureys, Geoffrey S F Ling, Risa Nakase-Richardson, Ronald T Seel, Stuart Yablon, Thomas S D Getchius, Gary S Gronseth, Melissa J Armstrong
OBJECTIVE: To update the 1995 American Academy of Neurology (AAN) practice parameter on persistent vegetative state and the 2002 case definition on minimally conscious state (MCS) and provide care recommendations for patients with prolonged disorders of consciousness (DoC). METHODS: Recommendations were based on systematic review evidence, related evidence, care principles, and inferences using a modified Delphi consensus process according to the AAN 2011 process manual, as amended...
August 7, 2018: Archives of Physical Medicine and Rehabilitation
Nancy Russell, Susan Jennings, Blair Jennings, Valerie Slee, Lisa Sterling, Mariana Castells, Peter Valent, Cem Akin
BACKGROUND: Mast cell diseases such as mastocytosis and mast cell activation syndrome involve abnormal proliferation and/or activation of these cells leading to many clinically relevant symptoms. OBJECTIVE: In order to determine the characteristics and experiences of people known or suspected to have a mast cell disorder, The Mastocytosis Society, a US based patient advocacy, research and education organization, conducted a survey of patients. METHODS: This web-based survey was publicized through specialty clinics and the Society's newsletter, Web site and online blogs...
August 8, 2018: Journal of Allergy and Clinical Immunology in Practice
Shan Qiao, Xiaoming Li, Yuejiao Zhou, Zhiyong Shen, Bonita Stanton
Individuals' attitudes toward evidence-based practices (EBP) are critical in adopting, implementing and maintaining the EBP in clinical settings. Multiple empirical studies have examined how work context may shape perceptions and attitudes towards EBP. The current study aims to further explore how both work and family contexts, as assessed by three psychosocial indicators (i.e., occupational stress, work-related social support from coworkers, and work-related social support from family), may affect attitudes toward EBP among health care providers in HIV clinics in China...
2018: PloS One
Jens Kandt, Paul A Longley
This paper examines the association between given and family names and self-ascribed ethnicity as classified by the 2011 Census of Population for England and Wales. Using Census data in an innovative way under the new Office for National Statistics (ONS) Secure Research Service (SRS; previously the ONS Virtual Microdata Laboratory, VML), we investigate how bearers of a full range of given and family names assigned themselves to 2011 Census categories, using a names classification tool previously described in this journal...
2018: PloS One
Teresa Jerofke-Owen, Jennifer Dahlman
AIMS AND OBJECTIVES: To examine patients' experiences and preferences for engaging in their healthcare while hospitalized. BACKGROUND: Promoting patient engagement or involvement in healthcare has become an important component of contemporary, consumer-oriented approaches to quality care. Previous research on patient engagement highlights that preferences for engagement are not assessed while hospitalized, leading to patient role confusion and frustration. METHODS: Semi-structured interviews were conducted with patients from January to March 2017 to examine their experiences and preferences for engaging in their care while hospitalized on medical-surgical units in the United States...
August 9, 2018: Journal of Clinical Nursing
Jumana Antoun, Alan Johnson, Brock Clive, Maya Romani
Background It is not known in what ways is the doctor whose practice is secure in a clinic challenged to maintain a therapeutic doctor-patient relationship when confronting a flood of immigrants within a country that is politically volatile, internally fractionalized, and surrounded by sporadic military incursions? Methods During Balint seminars, a family medicine resident presents a troubling case which all group members reflect upon from the perspective of the doctor, the patient, and their relationship. Balint leaders later debrief and review the work of the group...
August 9, 2018: International Journal of Psychiatry in Medicine
Tamar Heller, Haleigh M Scott, Matthew P Janicki
Introduction: A specially commissioned working group produced a report on caregiving, intellectual and developmental disabilities (IDDs), and dementia for the National Institutes of Health-located National Research Summit on Care, Services, and Supports for Persons with Dementia and Their Caregivers. Methods: Experts in caregiving, dementia, and IDDs examined the current state of research, policy, and practice related to caregiving and supports; identified the similarities and dissimilarities between IDD-related care and services and the general population affected by dementia; and considered how these findings might contribute to the conversation on developing a dementia care research and services development agenda...
2018: Alzheimer's & Dementia: Translational Research & Clinical Interventions
Pascal Pujol, Pierre Vande Perre, Laurence Faivre, Damien Sanlaville, Carole Corsini, Bernard Baertschi, Michèle Anahory, Dominique Vaur, Sylviane Olschwang, Nadem Soufir, Noëlle Bastide, Sarah Amar, Michèle Vintraud, Olivier Ingster, Stéphane Richard, Pierre Le Coz, Jean-Philippe Spano, Olivier Caron, Pascal Hammel, Elisabeth Luporsi, Alain Toledano, Xavier Rebillard, Anne Cambon-Thomsen, Olivier Putois, Jean-Marc Rey, Christian Hervé, Caroline Zorn, Karen Baudry, Virginie Galibert, Joseph Gligorov, David Azria, Brigitte Bressac-de Paillerets, Nelly Burnichon, Marc Spielmann, Daniel Zarca, Isabelle Coupier, Olivier Cussenot, Anne-Paule Gimenez-Roqueplo, Sophie Giraud, Anne-Sophie Lapointe, Patricia Niccoli, Isabelle Raingeard, Muriel Le Bidan, Thierry Frebourg, Arash Rafii, David Geneviève
In oncology, the expanding use of multi-gene panels to explore familial cancer predisposition and tumor genome analysis has led to increased secondary findings discoveries (SFs) and has given rise to important medical, ethical, and legal issues. The American College of Medical Genetics and Genomics published a policy statement for managing SFs for a list of genes, including 25 cancer-related genes. Currently, there are few recommendations in Europe. From June 2016 to May 2017, the French Society of Predictive and Personalized Medicine (SFMPP) established a working group of 47 experts to elaborate guidelines for managing information given on the SFs for genes related to cancers...
August 8, 2018: European Journal of Human Genetics: EJHG
Joseph T Giacino, Douglas I Katz, Nicholas D Schiff, John Whyte, Eric J Ashman, Stephen Ashwal, Richard Barbano, Flora M Hammond, Steven Laureys, Geoffrey S F Ling, Risa Nakase-Richardson, Ronald T Seel, Stuart Yablon, Thomas S D Getchius, Gary S Gronseth, Melissa J Armstrong
OBJECTIVE: To update the 1995 American Academy of Neurology (AAN) practice parameter on persistent vegetative state and the 2002 case definition on minimally conscious state (MCS) and provide care recommendations for patients with prolonged disorders of consciousness (DoC). METHODS: Recommendations were based on systematic review evidence, related evidence, care principles, and inferences using a modified Delphi consensus process according to the AAN 2011 process manual, as amended...
August 8, 2018: Neurology
Sharon R Smith, Stephanie T Johnson, Samantha M Oldman, Valerie B Duffy
PURPOSE: Rapid yet useful methods are needed to screen for dietary behaviors in clinical settings. We tested the feasibility and reliability of a pediatric adapted liking survey (PALS) to screen for dietary behaviors and suggest tailored caries and obesity prevention messages. METHODS: In an observational study, children admitted to a pediatric emergency department (PED) for nonurgent care were approached to complete the PALS (33 foods, 4 nonfoods including brushing teeth)...
August 8, 2018: Caries Research
Ídila Letícia Justiniana de Macedo, Cristina Mara Zamarioli, Emilia Campos de Carvalho
OBJECTIVE: To identify critical incidents (situations, behaviors and feelings) during practical activities, involving knowledge and skills related to the discipline of Semiology and Semiotics. METHOD: Descriptive research using the critical incident technique, with the Snow Ball technique for the selection of participants and an instrument for collection of data. The reports were categorized according to the elements of the critical incident (situations, behaviors and feelings)...
2018: Revista Brasileira de Enfermagem
Neilane Bertoni, Mirian Carvalho de Souza, Susanne Crocamo, Moyses Szklo, Liz Maria de Almeida
Families share behavioral risk factors that can increase the risk of cancer development. We examined whether having a positive family breast cancer history is associated with health behaviors/screening practices. Analyses were based on a cross-sectional sample of 545 Brazilian National Cancer Institute Hospital patients with newly diagnosed breast cancer in 2013/2014. Women were categorized according to their breast cancer family history. Age-adjusted Poisson regressions with robust variance were performed to estimate the association between breast cancer family history and selected health-related behaviors and screening practices...
August 7, 2018: International Journal of Behavioral Medicine
Patricia Velloso, Cinthia Piccinato, Ygor Ferrão, Eduardo Aliende Perin, Raony Cesar, Leonardo F Fontenelle, Ana G Hounie, Maria Conceição do Rosário
BACKGROUND: OCD causes impairment in different areas of the patients' quality of life (QoL), such as sociability, family relationships, and occupational performance. The literature has emphasized the relevance of assessing QoL as a critical outcome in mental health studies. AIMS: The aim of this study was to investigate sociodemographic and clinical predictors of QoL, including treatment response, in a large sample of OCD subjects. PROCEDURES: 575 adult OCD outpatients were interviewed as part of the Brazilian OCD Consortium (CTOC)...
July 31, 2018: Comprehensive Psychiatry
Elaine Seaton Banerjee, Sharon J Herring, Katelyn Hurley, Katherine Puskarz, Kyle Yebernetsky, Marianna LaNoue
OBJECTIVE: We set out to investigate the behaviors of low-income African American women who successfully lost weight. METHODS: From an urban, academic, family medicine practice, we used a mixed methods positive deviance approach to evaluate 35 low-income African American women who were obese and lost at least 10% of their maximum weight, and maintained this loss for 6 months, comparing them with 36 demographically similar control participants who had not lost weight...
January 2018: Journal of Primary Care & Community Health
Alessandro Mantovani, Ilaria Teobaldi, Vincenzo Stoico, Fabrizia Perrone, Marina Zannoni, Luca Cima, Massimiliano Bruti, Lucia Mingolla, Maddalena Trombetta, Enzo Bonora
After basal cell carcinoma, the cutaneous squamous cell carcinoma (cSCC) is the second most frequent non-melanoma skin cancer worldwide, and, classically, arises from the upper coats of the epidermis of sun-exposed areas or from skin areas constantly exposed to a chronic inflammatory stimulus. The occurrence of cSCC seems to be linked to several factors, including exposure to sunlight (or other ultraviolet radiations), immunosuppression, chronic scarring conditions and some familial cancer syndromes. Although the majority of cSCCs are adequately eradicated by surgical excision, a subgroup of cSCC may be linked with an increased risk of recurrence, metastasis and death...
2018: Endocrinology, Diabetes & Metabolism Case Reports
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