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Holistic palliative care

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https://www.readbyqxmd.com/read/30110105/comfort-level-of-caregivers-of-cancer-patients-receiving-palliative-care
#1
Maisa Vitória Gayoso, Marla Andréia Garcia de Avila, Thays Antunes da Silva, Rúbia Aguiar Alencar
OBJECTIVE: To verify the association between the level of comfort of the caregiver and socio-demographic variables related to caregiving, and the patient's functional status and symptoms. METHOD: Cross-sectional study with non-probabilistic intentional sample. The instruments Palliative Performance Scale (score 0 to 100%), Edmonton Symptom Assessment Scale (symptom scores from zero to ten) and Holistic Comfort Questionnaire (total score ranging from 49 to 294 and mean score from 1 to 6) were used...
August 9, 2018: Revista Latino-americana de Enfermagem
https://www.readbyqxmd.com/read/30063679/effect-of-hemodialysis-compared-with-conservative-management-on-quality-of-life-in-older-adults-with-end-stage-renal-disease-systematic-review
#2
Kathryn Eckert, Lila Motemaden, Michelle Alves
Patients with end-stage renal disease (ESRD) should choose a treatment modality, such as hemodialysis (HD) or conservative medical management (CMM), to improve their symptoms with the goal of attaining a good quality of life (QOL), a concept highly aligned with palliative care principles. This article aims to answer if elderly patients with ESRD have improved QOL with CMM compared with HD. Conservative medical management focuses on managing symptoms, rather than invasive procedures such as HD, with more focus on holistic care...
June 2018: Journal of Hospice and Palliative Nursing: JHPN
https://www.readbyqxmd.com/read/30063633/the-effects-of-guided-imagery-on-comfort-in-palliative-care
#3
Adriana Coelho, Vitor Parola, Anna Sandgren, Olga Fernandes, Katharine Kolcaba, João Apóstolo
Guided imagery (GI) is a nonpharmacological intervention that is increasingly implemented in different clinical contexts. However, there have been no studies on the effect of GI on the comfort of inpatients of palliative care (PC) units. Therefore, the aim of this study was to evaluate the effects of GI on the comfort of patients in PC. A 1-group, pretest-posttest, pre-experimental design was used to measure differences in heart rate, respiratory rate, pain, and comfort in patients (n = 26) before and after a 2-session GI program...
August 2018: Journal of Hospice and Palliative Nursing: JHPN
https://www.readbyqxmd.com/read/30063573/the-coping-and-support-needs-of-incurable-cancer-patients
#4
Anu Viitala, Marita Saukkonen, Juho T Lehto, Mira Palonen, Päivi Åstedt-Kurki
The purposes of this study were to describe the coping processes and support needs of patients with incurable cancer. The study was conducted as a qualitative study. The research data were gathered by conducting thematic interviews with outpatients with incurable cancer (n = 16) and analyzed by means of inductive content analysis. The results of the study indicate that the lives of patients were temporarily interrupted by the incurable illness. A sympathetic family was perceived as strength, and after the initial shock, the patients began to rebuild their lives...
April 2018: Journal of Hospice and Palliative Nursing: JHPN
https://www.readbyqxmd.com/read/30059464/case-managers-on-the-front-lines-of-opioid-epidemic-response-advocacy-education-and-empowerment-for-users-of-medical-and-nonmedical-opioids
#5
Charlotte Sortedahl, Jean Krsnak, Michelle M Crook, Lisa Scotton
PURPOSE: The purpose of this article is to examine how case managers, taking a holistic, patient-centered approach that is grounded in advocacy, have a crucial role to play in the opioid crisis response. This includes providing education, support, and resources to prevent misuse of and addiction to opioids prescribed for pain management and intervening with more resources to help combat the nonmedical use of prescription opioids and heroin. PRIMARY PRACTICE SETTINGS: In addition to case managers in acute care, workers' compensation, and palliative care, who have frequent contact with patients who are prescribed opioid medications for pain management, all case managers may interact with patients and support systems/families who are directly or indirectly impacted by opioid use, misuse, and addiction...
September 2018: Professional Case Management
https://www.readbyqxmd.com/read/30058506/state-of-advance-care-planning-research-a-descriptive-overview-of-systematic-reviews
#6
Geronimo Jimenez, Woan Shin Tan, Amrit K Virk, Chan Kee Low, Josip Car, Andy Hau Yan Ho
OBJECTIVE: To provide an overview of the current state of research of advance care planning (ACP), highlighting most studied topics, publication time, quality of studies and reported outcomes, and to identify gaps to improve ACP receptivity, utilization, implementation, and outcomes. METHOD: Cochrane methodology for conducting overviews of systematic reviews. Study quality was assessed using a modified version of the Assessing the Methodological Quality of Systematic Reviews tool...
July 30, 2018: Palliative & Supportive Care
https://www.readbyqxmd.com/read/30045939/general-practice-palliative-care-patient-and-carer-expectations-advance-care-plans-and-place-of-death-a-systematic-review
#7
Claire E Johnson, Peta McVey, Joel Jin-On Rhee, Hugh Senior, Leanne Monterosso, Briony Williams, Julia Fallon-Ferguson, Matthew Grant, Harriet Nwachukwu, Michèle Aubin, Patsy Yates, Geoffrey Mitchell
BACKGROUND: With an increasing ageing population in most countries, the role of general practitioners (GPs) and general practice nurses (GPNs) in providing optimal end of life (EoL) care is increasingly important. OBJECTIVE: To explore: (1) patient and carer expectations of the role of GPs and GPNs at EoL; (2) GPs' and GPNs' contribution to advance care planning (ACP) and (3) if primary care involvement allows people to die in the place of preference. METHOD: Systematic literature review...
July 25, 2018: BMJ Supportive & Palliative Care
https://www.readbyqxmd.com/read/30042369/comorbidities-complications-and-non-pharmacologic-treatment-in-idiopathic-pulmonary-fibrosis
#8
REVIEW
Paloma Millan-Billi, Candela Serra, Ana Alonso Leon, Diego Castillo
Idiopathic pulmonary fibrosis (IPF) is a chronic, progressive and fatal disease. The treatment is challenging and nowadays a comprehensive approach based not only in pharmacological strategies is necessary. Identification and control of comorbidities, non-pharmacological treatment, prevention and management of exacerbations as well as other areas of care (social, psychological) are fundamental for a holistic management of IPF. Gastroesophageal reflux, pulmonary hypertension, obstructive sleep apnea, combined with emphysema, lung cancer and cardiovascular involvement are the main comorbidities associated with IPF...
July 24, 2018: Medical Sciences: Open Access Journal
https://www.readbyqxmd.com/read/30028799/care-needs-of-patients-at-the-end-of-life-with-a-noncancer-diagnosis-who-live-at-home
#9
Jiwon Lee, Younghye Park, Kyounjoo Lim, Ari Lee, Hanul Lee, Jong-Eun Lee
BACKGROUND: As the population ages, the prevalence of various chronic diseases increases. Palliative care for patients at the end of life with a noncancer diagnosis is currently limited because of the difficulties of demarcating the boundaries of the end-of-life care period and of determining the various care needs of patients at the end of life. PURPOSE: This study aimed to investigate the levels of importance and difficulty of the multidimensional care needs for patients with a noncancer diagnosis during various end-of-life stages...
July 19, 2018: Journal of Nursing Research: JNR
https://www.readbyqxmd.com/read/30012977/the-role-of-resilience-in-the-sibling-experience-of-pediatric-palliative-care-what-is-the-theory-and-evidence
#10
REVIEW
Wei Ling Chin, Tiina Jaaniste, Susan Trethewie
Siblings of children with life limiting conditions (LLC) are an important part of the broader family system and require consideration in the holistic care of the family. There can be considerable variation in the functioning and adjustment of these siblings. The current paper explores the resilience paradigm, particularly in the context of siblings of children with LLC and serious medical conditions. The potential impact of children living with a seriously ill brother or sister will be overviewed, and a range of functional outcomes considered...
July 16, 2018: Children
https://www.readbyqxmd.com/read/29980197/the-lived-experience-of-palliative-care-patients-in-one-acute-hospital-setting-a-qualitative-study
#11
Anne Black, Tamsin McGlinchey, Maureen Gambles, John Ellershaw, Catriona Rachel Mayland
BACKGROUND: There is limited understanding of the 'lived experience' of palliative care patient within the acute care setting. Failing to engage with and understand the views of patients and those close to them, has fundamental consequences for future health delivery. Understanding 'patient experience' can enable care providers to ensure services are responsive and adaptive to individual patient need. METHODS: The aim of this study was to explore the 'lived experience' of a group of patients with palliative care needs who had recently been in-patients in one acute hospital trust in the north-west of England...
July 6, 2018: BMC Palliative Care
https://www.readbyqxmd.com/read/29978800/-practice-of-palliative-care-experience-of-a-patient-with-advanced-retroperitoneal-sarcoma-at-the-end-of-life
#12
Qiu-Mei Wang, Xiao-Hong Ning, Xiao-Hong Liu, Hui-Hui Li
According to the World Health Organization,palliative care is an approach that prevents and alleviates the pain of patients with life-threatening illness and improves the quality of life of patients and their families through early identification,assessment and treatment of pain and other physical,psychosocial and spiritual problems. It is the active holistic care accomplished by multidisciplinary team. This article describes the practice of the palliative care in a patient with advanced retroperitoneal sarcoma...
June 28, 2018: Zhongguo Yi Xue Ke Xue Yuan Xue Bao. Acta Academiae Medicinae Sinicae
https://www.readbyqxmd.com/read/29925846/-a-palliative-end-stage-copd-patient-does-not-exist-a-qualitative-study-of-barriers-to-and-facilitators-for-early-integration-of-palliative-home-care-for-end-stage-copd
#13
Charlotte Scheerens, Luc Deliens, Simon Van Belle, Guy Joos, Peter Pype, Kenneth Chambaere
Early integration of palliative home care (PHC) might positively affect people with chronic obstructive pulmonary disease (COPD). However, PHC as a holistic approach is not well integrated in clinical practice at the end-stage COPD. General practitioners (GPs) and community nurses (CNs) are highly involved in primary and home care and could provide valuable perspectives about barriers to and facilitators for early integrated PHC in end-stage COPD. Three focus groups were organised with GPs (n = 28) and four with CNs (n = 28), transcribed verbatim and comparatively analysed...
June 20, 2018: NPJ Primary Care Respiratory Medicine
https://www.readbyqxmd.com/read/29911969/home-based-palliative-care-program-relieves-chronic-pain-in-kerala-india-success-realized-through-patient-family-narratives
#14
Aparna Sai Ajjarapu, Ann Broderick
An estimated 1.5 billion people across the globe live with chronic pain, and an estimated 61 million people worldwide experience unrelieved serious health-related suffering. One-sixth of the global population lives in India, where approximately 10 million people endure unrelieved serious health-related suffering. The state of Kerala is home to Pallium India, one of the most sophisticated palliative care programs in the country. This private organization in Trivandrum provides palliative and hospice care to underresourced populations and emphasizes holistic pain treatment...
June 14, 2018: Permanente Journal
https://www.readbyqxmd.com/read/29894373/supportive-care-nursing-clinical-protocol-incorporates-holism-in-a-public-acute-care-hospital
#15
Jutara Srivali Teal, Dana N Rutledge, Sue Robertson, Eve Cruz
The Supportive Care Nursing Clinical Protocol (SCNCP) was developed to guide holistic nursing care for seriously ill hospitalized patients. The SCNCP uses national guidelines and evidence-based interventions as its foundation. Seriously ill patients may require palliative care, which is synonymous with supportive care. Acute care nurses may not be proficient in providing holistic supportive care for patients with life-limiting illness. At a 670-bed public acute care hospital, palliative care consultation requires a physician order and palliation may arrive late in an illness...
July 2018: Holistic Nursing Practice
https://www.readbyqxmd.com/read/29861756/determining-the-expected-competencies-for-oncology-nursing-a-needs-assessment-study
#16
Nikoo Yamani, Fariba Taleghani, Maryam Alizadeh, Mahboobeh Khabaz-Mafinejad
Background: A critical component of cancer care, rarely addressed in the published literature, is an expected competency in oncology nursing education. The present text describes an effort to develop cancer-nursing competencies in Iran and the process of the needs assessment. Materials and Methods: A 3-phase, mixed-method approach for needs assessment was used, incorporating modified Delphi technique, literature review, interviews, and an expert panel. Different stakeholders, consisting of nurses, faculty members in fields related to oncology nursing education, and patients and their families, participated in different phases of the study...
May 2018: Iranian Journal of Nursing and Midwifery Research
https://www.readbyqxmd.com/read/29848006/does-being-on-tb-treatment-predict-a-higher-burden-of-problems-and-concerns-among-hiv-outpatients-in-kenya-a-cross-sectional-self-report-study
#17
Kennedy Nkhoma, Aabid Ahmed, Zipporah Ali, Nancy Gikaara, Lorraine Sherr, Richard Harding
Tuberculosis illness is associated with uncertain outcomes, and has high prevalence among people living with HIV. The new World Health Organization's End TB strategy specifies person-centred symptom management and psychosocial support alongside treatment within its pillars and components. There is a paucity of research to inform an effective care response in Kenya in terms of self-reported outcomes. We aimed to measure the three day period intensity of problems and concerns (physical, psychological, social and spiritual), and identify predictors of problems and concerns, among HIV patients attending outpatient care...
June 2018: AIDS Care
https://www.readbyqxmd.com/read/29843519/experience-and-views-of-oncology-and-palliative-care-professionals-on-a-corounding-model-of-care-for-inpatients-with-advanced-cancer
#18
Grace Meijuan Yang, Sungwon Yoon, Yung Ying Tan, Karen Liaw
BACKGROUND: Palliative care is associated with better outcomes in advanced cancer, but there is limited research comparing different models of palliative care delivery alongside oncology care. For inpatients with cancer, palliative care is mostly delivered through a consult service, primarily relying on oncologist-initiated referrals to a separate specialist palliative care team. In our hospital setting, we piloted a palliative care and oncology corounding model of care. AIM: To explore the views and experience of oncology and palliative care professionals on the corounding model compared to an inpatient consult service...
January 1, 2018: American Journal of Hospice & Palliative Care
https://www.readbyqxmd.com/read/29779057/using-patient-reported-outcome-measures-to-deliver-enhanced-supportive-care-to-people-with-lung-cancer-feasibility-and-acceptability-of-a-nurse-led-consultation-model
#19
Grigorios Kotronoulas, Constantina Papadopoulou, Mhairi F Simpson, John McPhelim, Lynn Mack, Roma Maguire
PURPOSE: Developing new supportive/palliative care services for lung cancer should encompass effective ways to promptly identify and address patients' healthcare needs. We examined whether an in-clinic, nurse-led consultation model, which was driven by use of a patient-reported outcomes (PRO) measure, was feasible and acceptable in the identification of unmet needs in patients with lung cancer. METHODS: A two-part, repeated-measures, mixed-methods study was conducted...
May 19, 2018: Supportive Care in Cancer: Official Journal of the Multinational Association of Supportive Care in Cancer
https://www.readbyqxmd.com/read/29768053/quality-of-life-and-patients-expectations-in-soft-tissue-sarcoma
#20
Robin L Jones, Axel Le Cesne
Assessment of health-related quality of life (HRQoL) is essential for holistic care. Greater efforts are required to incorporate HRQoL measures into clinical trials and daily practice. Considerable HRQoL data are available for localized soft tissue sarcomas (STS), particularly in the orthopedic setting. In future, HRQoL is expected to become increasingly important in the evaluation of palliative therapy in advanced STS. A patient-centric approach is advocated for STS management. Greater awareness of STS by nonspecialist clinicians, and timely referral to specialized sarcoma reference centers, is crucial for patient welfare...
May 2018: Future Oncology
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