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Hospice Palliative Care

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https://www.readbyqxmd.com/read/29148298/understanding-patient-requirements-for-technology-systems-that-support-pain-management-in-palliative-care-services-a-qualitative-study
#1
Matthew J Allsop, Sally Taylor, Michael I Bennett, Bridgette M Bewick
Approaches to pain management using electronic systems are being developed for use in palliative care. This article explores palliative care patients' perspectives on managing and talking about pain, the role of technology in their lives and how technology could support pain management. Face-to-face interviews were used to understand patient needs and concerns to inform how electronic systems are developed. A total of 13 interviews took place with a convenience sample of community-based patients with advanced cancer receiving palliative care through a hospice...
November 1, 2017: Health Informatics Journal
https://www.readbyqxmd.com/read/29141459/factors-associated-with-caregivers-resilience-in-a-terminal-cancer-care-setting
#2
In Cheol Hwang, Young Sung Kim, Yong Joo Lee, Youn Seon Choi, Sun Wook Hwang, Hyo Min Kim, Su-Jin Koh
BACKGROUND: Resilience implies characteristics such as self-efficacy, adaptability to change, optimism, and the ability to recover from traumatic stress. Studies on resilience in family caregivers (FCs) of patients with terminal cancer are rare. This study aims to examine the factors associated with FCs' resilience in a terminal cancer care setting. METHODS: This is a cross-sectional study of 273 FCs from 7 hospice and palliative care units in Korea. Resilience was categorized as high and low, and factors associated with resilience were grouped or categorized into subscales...
January 1, 2017: American Journal of Hospice & Palliative Care
https://www.readbyqxmd.com/read/29141458/the-selection-of-death-place-among-patients-receiving-hospital-based-palliative-care-service-in-taiwan
#3
Ching-Sung Ho
INTRODUCTION: To analyze the selection of a place to die and its related factors in patients who received hospice shared care service in Taiwan. METHODS: This study included patients who received hospice shared care service in a metropolitan hospital as the research participants. A total of 172 questionnaires were collected, and 146 of them were used as valid samples for analysis. This study applied the multivariate logistic regression analysis to assess the significance of independent variables associated with the selection of place of death...
January 1, 2017: American Journal of Hospice & Palliative Care
https://www.readbyqxmd.com/read/29138955/the-impact-of-palliative-care-training-for-oncologists-and-integrative-palliative-service-in-a-public-funded-hospital-cluster-a-retrospective-cohort-study
#4
Pak-Lun Lam, Tai-Chung Lam, Cheuk-Wai Choi, Anne Wing-Mui Lee, Kwok-Keung Yuen, To-Wai Leung
PURPOSE: Oncological care of advanced cancer patients was provided by multiple departments in Hong Kong. One of these departments, the clinical oncology department (COD), introduced systematic palliative care training for its oncologists since 2002. The COD was recognized as a European Society for Medical Oncology (ESMO) Designated Centre of Integrated Oncology and Palliative Care since 2009. This retrospective cohort study aims to review the impact of integrative training and service on palliative care coverage and outcome...
November 14, 2017: Supportive Care in Cancer: Official Journal of the Multinational Association of Supportive Care in Cancer
https://www.readbyqxmd.com/read/29130839/exploring-palliative-care-competency-standards-for-medical-education-in-china-a-survey-of-national-hospice-service-program-providers
#5
Jonathan Lio, Xiaohong Ning, Lianlian Wu, Ling Fu, Renslow Sherer, Li He
No abstract text is available yet for this article.
November 13, 2017: Journal of Palliative Medicine
https://www.readbyqxmd.com/read/29123355/economics-of-palliative-and-end-of-life-care-in-india-a-concept-paper
#6
Arunangshu Ghoshal, Anuja Damani, Naveen Salins, Jayita Deodhar, M A Muckaden
Only a few studies have assessed the economic outcomes of palliative care in India. The major areas of interest include hospice care, the process and structure of care, symptom management, and palliative chemotherapy compared to best supportive care. At present, there is no definite health-care system followed in India. Medical bankruptcy is common. In situations where patients bear most of the costs, medical decision-making might have significant implications on economics of health care. Game theory might help in deciphering the underlying complexities of decision-making when considered as a two person nonzero sum game...
October 2017: Indian Journal of Palliative Care
https://www.readbyqxmd.com/read/29121791/unexpected-survivors-children-with-life-limiting-conditions-of-uncertain-prognosis
#7
Savithri Nageswaran, Anna Hurst, Andrea Radulovic
OBJECTIVE: Prognostication of survival is difficult in children with life-limiting illnesses because of the rarity of these conditions and technological advances improving survival. The objective of this article is to describe the characteristics of children with life-limiting illnesses who survived longer than the expectations of health-care providers. STUDY DESIGN: This is a retrospective cohort study conducted in a tertiary-care children's hospital in North Carolina...
January 1, 2017: American Journal of Hospice & Palliative Care
https://www.readbyqxmd.com/read/29121789/a-descriptive-analysis-of-end-of-life-conversations-with-long-term-glioblastoma-survivors
#8
Stephen P Miranda, Rachelle E Bernacki, Joanna M Paladino, Andrew D Norden, Jane E Kavanagh, Marissa C Palmor, Susan D Block
BACKGROUND: Early, high-quality serious illness (SI) conversations are critical for patients with glioblastoma (GBM) but are often mistimed or mishandled. OBJECTIVE: To describe the prevalence, timing, and quality of documented SI conversations and evaluate their focus on patient goals/priorities. DESIGN/PARTICIPANTS: Thirty-three patients with GBM enrolled in the control group of a randomized controlled trial of a communication intervention and were followed for 2 years or until death...
January 1, 2017: American Journal of Hospice & Palliative Care
https://www.readbyqxmd.com/read/29121480/palliative-care-planner-pcplanner-a-pilot-study-to-evaluate-acceptability-and-usability-of-an-electronic-health-records-system-integrated-needs-targeted-app-platform
#9
Christopher E Cox, Derek M Jones, Wen Reagan, Mary D Key, Vinca Chow, Jessica McFarlin, David Casarett, Claire J Creutzfeldt, Sharron L Docherty
RATIONALE: The quality and patient-centeredness of intensive care unit (ICU)-based palliative care delivery is highly variable. OBJECTIVE: To develop and pilot an app platform for clinicians, ICU patients, and their family members that enhances the delivery of needs-targeted palliative care. METHODS: In the Development Phase of the study, we developed an electronic health record (EHR) system-integrated mobile web app system prototype, PCplanner (Palliative Care Planner)...
November 9, 2017: Annals of the American Thoracic Society
https://www.readbyqxmd.com/read/29118101/japanese-physicians-experiences-of-terminally-ill-patients-voluntarily-stopping-eating-and-drinking-a-national-survey
#10
Takuya Shinjo, Tatsuya Morita, Daisuke Kiuchi, Masayuki Ikenaga, Hirofumi Abo, Sayaka Maeda, Satoru Tsuneto, Yoshiyuki Kizawa
OBJECTIVES: Voluntarily stopping eating and drinking (VSED) could be regarded as a patients' own non-treatment decision that hastens death, which involves patients voluntarily forgoing food and liquid until death. The aims of this study were to investigate the experience of home hospice physicians and palliative care specialists who care for patients during VSED in Japan, and their opinions on continuous deep sedation (CDS) as a means to relieve patient symptoms during VSED. METHODS: 219 home hospice physicians and 695 palliative care specialists across Japan were surveyed by mail questionnaire in 2016...
November 8, 2017: BMJ Supportive & Palliative Care
https://www.readbyqxmd.com/read/29104615/can-e-learning-help-you-to-connect-compassionately-commentary-on-a-palliative-care-e-learning-resource-for-india
#11
EDITORIAL
Soumitra Shankar Datta, Sanjit Agrawal
e-learning resources need to be customised to the audience and learners to make them culturally relevant. The 'Palliative care e-learning resource for health care professionals in India' has been developed by the Karunashraya Hospice, Bengaluru in collaboration with the Cardiff Palliative Care Education Team, Wales to address the training needs of professionals in India. The resource, comprising over 20 modules, integrates psychological, social and medical care for patients requiring palliative care for cancer and other diseases...
2017: Ecancermedicalscience
https://www.readbyqxmd.com/read/29102921/tactile-massage-reduces-rescue-doses-for-pain-and-anxiety-an-observational-study
#12
Karina Pedersen, Linda Björkhem-Bergman
OBJECTIVES: The aim of this study was to evaluate the effect of tactile massage (TM) on palliative care patients. METHOD: An observational study at a hospice ward in Sweden was carried out. Forty-one palliative patients were offered TM, at an average of three treatments per patient. Before and after every treatment, self-assessed pain, well-being and anxiety according to the Edmonton Symptom Assessment Scale (0-10) were recorded. In addition, the number of rescue doses for pain and anxiety was monitored 24 hours before and after the treatment and in two consecutive days before the patients were offered TM (control data)...
November 4, 2017: BMJ Supportive & Palliative Care
https://www.readbyqxmd.com/read/29101086/beyond-idiopathic-pulmonary-fibrosis-diagnosis-multidisciplinary-care-with-an-early-integrated-palliative-approach-is-associated-with-a-decrease-in-acute-care-utilization-and-hospital-deaths
#13
Meena Kalluri, Francisca Claveria, Emily Ainsley, Maged Haggag, Susan Armijo-Olivo, Janice Richman-Eisenstat
CONTEXT: Idiopathic Pulmonary Fibrosis (IPF) is a progressive, incurable interstitial lung disease with heavy symptom burden and poor quality of life. The last year of life is characterized by increased acute care utilization and hospital deaths. Clinical guidelines recommend early integration of palliative care but is rarely implemented. In 2012, we reorganized our clinic into a multidisciplinary team comprising two pulmonologists (expertise in ILD and palliative respiratory care respectively), nurse, respiratory therapist, physiotherapist, and a dietitian...
October 31, 2017: Journal of Pain and Symptom Management
https://www.readbyqxmd.com/read/29099671/lgbtq-inclusive-hospice-and-palliative-care-a-practical-guide-to-transforming-professional-practice
#14
Jennifer Currin-McCulloch, Jelena Todic
No abstract text is available yet for this article.
September 13, 2017: Journal of Psychosocial Oncology
https://www.readbyqxmd.com/read/29092065/physical-therapy-s-role-in-opioid-use-and-management-during-palliative-and-hospice-care
#15
Christopher M Wilson, Richard Briggs
No abstract text is available yet for this article.
October 30, 2017: Physical Therapy
https://www.readbyqxmd.com/read/29076857/liberty-and-justice-for-all
#16
Kimberly Radtke, Marianne Matzo
: This series on palliative care is developed in collaboration with the Hospice and Palliative Nurses Association (HPNA; http://hpna.advancingexpertcare.org). The HPNA aims to guide nurses in preventing and relieving suffering and in giving the best possible care to patients and families, regardless of the stage of disease or the need for other therapies. The HPNA offers education, competence, advocacy, leadership, and research.
November 2017: American Journal of Nursing
https://www.readbyqxmd.com/read/29076605/palliative-care-for-advanced-dementia-knowledge-and-attitudes-of-long-term-care-staff
#17
I-Hui Chen, Kuan-Yu Lin, Sophia H Hu, Yeu-Hui Chuang, Carol O Long, Chia-Chi Chang, Megan F Liu
AIM AND OBJECTIVES: To investigate the knowledge of and attitudes toward palliative care for advanced dementia and their associations with demographics among nursing staff, including nurses and nursing assistants, in long-term care settings. BACKGROUND: Nursing facilities are places where persons with dementia die; therefore, providing quality end-of-life care to residents with advanced dementia is crucial. To date, little attention has been paid to palliative care practice for patients with advanced dementia DESIGN: A descriptive, cross-sectional, survey design was used...
October 27, 2017: Journal of Clinical Nursing
https://www.readbyqxmd.com/read/29068784/predictors-of-posthospital-transitions-of-care-in-patients-with-advanced-cancer
#18
Daniel E Lage, Ryan D Nipp, Sara M D'Arpino, Samantha M Moran, P Connor Johnson, Risa L Wong, William F Pirl, Ephraim P Hochberg, Lara N Traeger, Vicki A Jackson, Barbara J Cashavelly, Holly S Martinson, Joseph A Greer, David P Ryan, Jennifer S Temel, Areej El-Jawahri
Purpose Patients with advanced cancer experience potentially burdensome transitions of care after hospitalizations. We examined predictors of discharge location and assessed the relationship between discharge location and survival in this population. Methods We conducted a prospective study of 932 patients with advanced cancer who experienced an unplanned hospitalization between September 2014 and March 2016. Upon admission, we assessed patients' physical symptoms (Edmonton Symptom Assessment System) and psychological distress (Patient Health Questionnaire-4)...
October 25, 2017: Journal of Clinical Oncology: Official Journal of the American Society of Clinical Oncology
https://www.readbyqxmd.com/read/29062577/metastatic-sarcomatoid-squamous-cell-carcinoma-of-the-cervix-presenting-with-chest-mass
#19
Lilit Karapetyan, Manoj Rai, Om Dawani, Heather S Laird-Fick
BACKGROUND: Sarcomatoid squamous cell carcinoma is a rare and aggressive form of cervical cancer. We report a case of metastatic sarcomatoid squamous cell carcinoma (SSCC) of cervix that presented with an anterior chest wall mass. CASE: A 43-year-old Hispanic female presented with a two-month history of a central chest wall mass. The patient's only past medical history was SSCC of the cervix, stage IIB, diagnosed two years priorly. She underwent neoadjuvant chemoradiation therapy (CRT) with cisplatin followed by radical hysterectomy...
2017: Case Reports in Oncological Medicine
https://www.readbyqxmd.com/read/29058518/recent-evidence-on-the-inclusion-of-hospice-and-palliative-care-physicians-in-medicare-shared-savings-program-accountable-care-organization-networks
#20
Julia Driessen, Turner West
OBJECTIVE: To document the presence of hospice and palliative physicians in Medicare Shared Savings Program (MSSP) ACOs. BACKGROUND: End-of-life care exhibits extreme variation in quality, cost, and patient experience. This baseline creates opportunities for improvements that would be financially rewarded in the new value-based reimbursement environment, such as the accountable care organization (ACO) model. Little is known about how ACOs have responded to this opportunity by including hospice and palliative providers in their formal provider networks...
October 23, 2017: Journal of Palliative Medicine
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